FabSwingers.com forum: Psoriasis

By (user no longer on site) OP
over a year ago

Any fellow people suffer from this god awful condition I'm at my wit's end with it 70% body covered ten years in December since I've had it

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By (user no longer on site)
over a year ago

Do a forum search for 'psoriasis'. There's a few threads that come up under yours with some good info/ tips on. (I remember them from when they were live threads.) It seems like different things work for different people so it might take a few attempts at trying different creams etc.

You're not alone. Hope you find something that works for you.

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By *heEvilWithinWoman
over a year ago

Barnsley

Have you tried light therapy? (ie sunbed) apparently that works really well if you go twice a week for 6 weeks. Not sure of the reasons why it works but a lot of my clients (I do hair) have followed the advice and it's made it a lot better or cleared it up for the most part.

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By (user no longer on site)
over a year ago

"Have you tried light therapy? (ie sunbed) apparently that works really well if you go twice a week for 6 weeks. Not sure of the reasons why it works but a lot of my clients (I do hair) have followed the advice and it's made it a lot better or cleared it up for the most part. "

I'm a lover of sunbeds but surely this would only make the risks of skin cancer higher?

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By (user no longer on site)
over a year ago

I get small flair ups on my elbows when i get stressed or poorly. 'Balmonds skin salve' saves me every time. Completely natural ingredients.

I used it on my daughters eczema and again it completely cleared it up.

Couldn't recommend it enough, read all the reviews

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By *uriouscouple83Couple
over a year ago

Worcester

I'm a lover of sunbeds but surely this would only make the risks of skin cancer higher?"

Some tanning places have switched a tanning bed to red light tubes which encourage the production of collagen and aren’t made for tanning.

I suffer from eczema and used to use loads of creams prescribed by the doctor but now I manage it through diet and being careful what soaps and detergents I use.

I found dairy was an aggravating factor and cutting this out helped a load. Switching to natural homemade soaps and making mr do the washing up also helped.

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By *ichaelangelaCouple
over a year ago

notts

May sound stupid. but, my brother in law had the condition really bad too, I pointed out to him some years ago that every time he comes back from holiday, it is not as bad.

As an experiment (an expensive one) he went away a lot more for a year or so and it almost cleared up, he now lives in Spain (drastic i know) but the condition has all but gone, just the odd small patch on elbows/knees etc.

He puts it down to the warmer weather and salt water. The apartment he lives in has a communal salt water pool plus he spends time on the beach and in the sea. as he says, he don't stress so much now he is out of the rat race and maybe that helps too as I understand stress is a large factor of the condition

I know this is a drastic and expensive way to clear it up but I hope you can get some ideas from this.

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By (user no longer on site)
over a year ago

My dad does, he calls it monkey aids

My wee cousin does as well, when she was three she got those sun beds at the hospital which helped a bit. But what helped the most was going on holiday and playing in the pool

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By (user no longer on site) OP
over a year ago

Thanks for all the replies people I've tried every lotion potion going, only thing that nearly got rid of it was photopherpy at the dermatologists department at hospital but with Covid it's not classed as essential someone mentioned malt vinegar applied neat at night but done nothing for me, i do go on sunbed once a week though its getting to the point it is making me depressed it's such a relentless condition luckily i don't have it on my face so wouldn't know i even had it till i stripped off lol

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By *offiaCoolWoman
over a year ago

Kidsgrove

'Bliss and beauty' natural salve. I only get it on my elbows, it works amazing fit me. I got it off Fleabay.

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By (user no longer on site) OP
over a year ago

[Removed by poster at 27/10/20 09:17:06]

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By (user no longer on site) OP
over a year ago

Thank you Sofiacool will try it also thank you previous poster for recommending Balmonds I've heard good stuff about that.

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By *offiaCoolWoman
over a year ago

Kidsgrove

"Thank you Sofiacool will try it also thank you previous poster for recommending Balmonds I've heard good stuff about that. "

Above post a new message, there is reply privately, reply in forum, reply and quote. Click reply and quote to the post you want to reply to particularly, then you don't have to name them

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By (user no longer on site) OP
over a year ago

[Removed by poster at 27/10/20 09:23:47]

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By (user no longer on site) OP
over a year ago

Thanks Sofia im hopless haha

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By (user no longer on site)
over a year ago

"Any fellow people suffer from this god awful condition I'm at my wit's end with it 70% body covered ten years in December since I've had it

Oats in a warm bath helps. Plus yes, the sun and sea do help a lot. My mum suffers and I have eczema which it also helps with. And destressing! Mine always flares up when I've had a bad week at work etc. Sunbeds are brilliant, just make sure you moisturise well afterwards too!

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By (user no longer on site) OP
over a year ago

Thanks Mystik i actually do use porridge oats in the bath in a muslin bag i qlso have Aveeno cream made with colodial oatmeal x

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By *inky_couple2020Couple
over a year ago

North West

I'm a lover of sunbeds but surely this would only make the risks of skin cancer higher?"

Correct. The UV therapy offered by the NHS uses UV wavelengths that are less damaging to the skin. Ask your dermatologist about the UV therapy on the NHS. If you don't have a dermatologist, ask to be referred to one.

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By *rincess peachWoman
over a year ago

shits creek

BBC1 right now!

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By (user no longer on site)
over a year ago

Enstilar foam, coal tar and methotrexate (tablets) keeps mine under control.

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By (user no longer on site) OP
over a year ago

Enstliller foam made it spread worked brilliant at first to the point it got rid of it then it came back even worse thank you for all your replies and help it's much appreciated x

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By (user no longer on site) OP
over a year ago

I'm yet to try methotrexate in tablet form but did have injections I'm currently using a coal tar product called exorex lotion but improvement is a slow process

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By *parklesueTV/TS
over a year ago

Middleton

A few years ago I heard of a place in turkey where they had a pool with a certain breed of fish that lived off the disease people went there and the fish ate all the dead skin and it never came back xx I don’t know how true it is but it’s worth checking out x

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By *toC Thats MeWoman
over a year ago

Sheffield

Fellow sufferer here. It’s very frustrating at times which doesn’t help. On my second flare up since March. I rented a narrow band bed under the ok of the doctor. The light therapy cleared it completely. Besides endless creams I’ve not found much else works for me. I’ve not been under the dermatologist care since I was a teenager but on the waiting list now so just waiting for an appointment to discuss treatment. X

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By *oulfulSinnerWoman
over a year ago

Chester

Try forever living aloe first spray, thats very soothing. I too have tried and testing everything, I now am on a 3 monthly injection from dermatology, Stewart, its changed my life completely. Gone from being covered and having 2am coconut oil baths, to occasionally putting ointment on. Speak to ur dermatologist, but get the aloe first spray too, fingers crossed x

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By *oulfulSinnerWoman
over a year ago

Chester

Apologies, the injection is called stelara, not Stewart lol

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By *toC Thats MeWoman
over a year ago

Sheffield

"Try forever living aloe first spray, thats very soothing. I too have tried and testing everything, I now am on a 3 monthly injection from dermatology, Stewart, its changed my life completely. Gone from being covered and having 2am coconut oil baths, to occasionally putting ointment on. Speak to ur dermatologist, but get the aloe first spray too, fingers crossed x"

That’s really good to hear, gives me a little hope too. X

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By *igblueMan
over a year ago

london

What i heard that one of my friends been using 100% cannabis oil is legal to by in shops and treat them with the oil.He cleaned all of them.Do resurch on Internet about this treatment I know sound weird but worth to have a look on Internet.

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By (user no longer on site)
over a year ago

"Any fellow people suffer from this god awful condition I'm at my wit's end with it 70% body covered ten years in December since I've had it

See DR, but most likely he will say use moisturiser twice daily as steroid creams can only be used for a few years. DO not use Lynx or other strongly scented body wash products (the cheapest are generally the best) or Sanex. I, Tasmin have had ezecma all my life and it is mainly well controlled. Though I did see a skin specialist in my 20s who treated what my doctor said could not be treated using Ether Soluble Tar Paste ESTP, it stinks but it works!

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By *uke olovingmanMan
over a year ago

Gravesend

So... what's the go with psoriasis sufferers? Pardon my total ignorance but can the affected areas be stroked ..caressed or avoided?

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By *he Devils Daughter!Woman
over a year ago

some where in yorkshire

"Any fellow people suffer from this god awful condition I'm at my wit's end with it 70% body covered ten years in December since I've had it

Op I feel ur pain n suffering I have it the same n I stopped meeting anyone due to this , I was on cyclosporine for it and it cleared me up so good but as it’s such a strong medication they took me off it for a year as it was wearing my whole immune system n my kidney n liver functions got bad from it , so I’m now just using enstillar n Aveeno cream , feel free to inbox me if u need a chat about it , big hugs

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By (user no longer on site)
over a year ago

"So... what's the go with psoriasis sufferers? Pardon my total ignorance but can the affected areas be stroked ..caressed or avoided?

Don't worry they'll let you know if you need to avoid any areas and it isn't contagious

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By *assy69Man
over a year ago

West Sussex and Wales

"Any fellow people suffer from this god awful condition I'm at my wit's end with it 70% body covered ten years in December since I've had it

Have had it for years, gets worse when I am under stress, but, weirdly, it has subsided since March to a very manageable level. I have some potions and creams to use when it gets bad, but cannot remember what any of them are though, sorry.

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By (user no longer on site)
over a year ago

"Thanks for all the replies people I've tried every lotion potion going, only thing that nearly got rid of it was photopherpy at the dermatologists department at hospital but with Covid it's not classed as essential someone mentioned malt vinegar applied neat at night but done nothing for me, i do go on sunbed once a week though its getting to the point it is making me depressed it's such a relentless condition luckily i don't have it on my face so wouldn't know i even had it till i stripped off lol "

I've just finished my latest Phototherapy course, so it is possible to have it done.

I'm going to my local stand'n'tan now and doing short doses (4 minutes) as well as using Dovobet cream and E45 moisturiser, which is keeping the psoriasis at bay for now.

Keep pestering your Dermatologist for a medication solution is my advice. There are many alternatives so keep trying.

Diet and exercise is also important.

There are many support groups online, so you could always try there for some advice.

Bad news is that everyone is different and what works for someone else may not work for you

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By (user no longer on site)
over a year ago

About 8 years for me now...

Currently at about the worst its ever been,

Stress etc not helping.

My face is the worst, given up all hope with the docs. Just try and manage it as best i can with e45.

If anyone has any tips id be happy to listen!

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By *arex2Couple
over a year ago

Bradford

"Any fellow people suffer from this god awful condition I'm at my wit's end with it 70% body covered ten years in December since I've had it

See your doctor and ask about a referral to a specialist to discuss. Neotigason or methotrexate. I was on neotigason for about a year and it did ok but my body got used to it and its effects wore down. On methotrexate now and no longer have much psoriasis to speak of. It's amazing!

Hope this helps.

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By (user no longer on site) OP
over a year ago

Thanks so much people for your replies and advice qnd massively big hugs to fellow suffers

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By (user no longer on site)
over a year ago

So....

Psoriasis can be mild, moderate and severe depending on percentage body coverage. It is a non-contagious inflammatory skin decision.

There are also different types of psoriasis. The most common are as follows (in order of prevalence):

1. Plaque psoriasis - usually over elbows and knees. Can spread to affect most skin areas.

2. Gutate psoriasis- droplets of 2-10mm psoriatic patches over the body (usually chest, abdomen, thighs, upper arms)

3. Inverse psoriasis- belly button, groins, armpits, genitals.

Treatment would generally be as follows for all of them, depending on the severity:

a. Soap substitutes. Use emollient washes in the shower instead of normal soaps. These may include Dermol-200, Aveeno body wash, Oilatum body wash, Aqueous cream or Epimax body wash.

b. Moisturisers

c. Calcipotriol cream - a vitamin D cream.

d. Dovobet - (vitamin d combined with betnovate steroid). Prescription only - your GP can prescribe this; speak to them. Comes also in a foam called ‘Enstilar’. Usually very effective.

e. Light therapy - UV light therapy, usually by a dermatologist. Long wait to see one on the NHS. Or take a nice sunny holiday (lockdown permitting!)

f. Methotrexate - only can be started by a Dermatologist, but can then be continued by your GP. Needs a blood test to monitor your liver function every few months. Very effective for severe cases.

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By (user no longer on site)
over a year ago

And...

Make sure your take a vitamin D supplement and manage any stress you may be suffering from - exercise, meditation, talking, counselling, laughing and having safe sex!

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By (user no longer on site) OP
over a year ago

"And...

Make sure your take a vitamin D supplement and manage any stress you may be suffering from - exercise, meditation, talking, counselling, laughing and having safe sex! "
thanks mate currently take daily one zinc tablet one vitamin d and calcium tablet one vitamin c tablet and a vitamins b12 nothingand i mean nothing is helping barring the local sunbed shop

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By (user no longer on site)
over a year ago

"And...

Make sure your take a vitamin D supplement and manage any stress you may be suffering from - exercise, meditation, talking, counselling, laughing and having safe sex! thanks mate currently take daily one zinc tablet one vitamin d and calcium tablet one vitamin c tablet and a vitamins b12 nothingand i mean nothing is helping barring the local sunbed shop "

Take one multivitamin with the equivalent doses of everything you’re taking currently. Glad to hear sun beds are working...just be cautious as it’s undifferentiated UV light (i.e. bad UV light as well as good UV).

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By *inky_couple2020Couple
over a year ago

North West

"And...

Multivitamin level of Vit D will be insufficient. You need an oil based capsule, somewhere like 1000IU per day. Don't go too high because you can overdo it. Your GP can prescribe suitable capsules if you are officially deficient - get a blood test

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By *inkyguymkMan
over a year ago

Milton Keynes

Sorry for your condition, but if you are asking for advice on Fabswingers then you are not taking it seriously enough.

Maybe you need to see a specialist if 70% your body is affected?

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By (user no longer on site)
over a year ago

Someone in my family suffered from this. Lactose free milk, hemp body wash(body shop) and various moisturisers helped.

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By (user no longer on site)
over a year ago

I'm now a week into trialling Acetretin and it's working very well so far. Better than anything else.

About to go for my first follow-up blood tests, so wish me luck!

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By (user no longer on site)
over a year ago

I use dead sea salts in the bath and coconut oil and sanex sometimes use oats. I use ecover washing up liquid, fabric softener and clothes liquid, vitamin D and fish oil capsules and I make my own turmeric paste. I don't use any creams or lotions. I suppose being a naturist helps as well

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By (user no longer on site)
over a year ago

Try keeping a diary of your flare ups. Note down factors that cause of relieve the symptoms (vit D, Sunlight, diet, soap powders etc.) Discuss your finding with your GP and see if you can change your lifestyle habits etc to help you with your condition.

By taking positive steps yourself and having a journal of factors that relieve or intensify your symptoms, you will have a clear idea of what does and does not work for you. You can then relay that information to medical staff who can further help you with your condition.

I wish you luck

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By *ristol HellfireMan
over a year ago

Bristol

It's Psoriasis Awareness Week (until 4 November).

Don't forget to look-up the Psoriasis Association.

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