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"So following what I believed to be a surgery for Endometriosis I wake up to be told it potentially could be Adenomyosis. Never heard of it so had a morning of googling but curious to know how ladies manage it in real life and long term " Oh I feel for you because I’ve got this, I bled for 43 days had 9 days off then 22 days.. clots the size of mice and pain unbearable, I’ve now had the coil fitted but it was only a few weeks ago so can’t see any benefits yet but apparently it’s a life saver for this condition. If you want to dm me feel free x | |||
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"So following what I believed to be a surgery for Endometriosis I wake up to be told it potentially could be Adenomyosis. Never heard of it so had a morning of googling but curious to know how ladies manage it in real life and long term Oh I feel for you because I’ve got this, I bled for 43 days had 9 days off then 22 days.. clots the size of mice and pain unbearable, I’ve now had the coil fitted but it was only a few weeks ago so can’t see any benefits yet but apparently it’s a life saver for this condition. If you want to dm me feel free x " Oh wow. Yeah been there Yeah I’ve had the coil for about 8 years which was a life saver and had it replaced same time yesterday - thanks I’ll pop over | |||
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"I have four sisters and all of them have had some gynecological problem with lots of pain and bleeding, and the medical professionals seem clueless. One sister it was so debilitating she would have to spend time in bed with hot water bottles, pain killers. We men get away pretty lightly to be honest. Feel for op take care." Hope you don't mind us men joining in this conversation. | |||
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"I don’t mind useful information but mostly looking for advice but I appreciate input Yes it something that woman suffer with but it’s important for men to understand x" I looked after my wife for many years who had Huntingtons chorea. So I'm sorting of quite understanding, plus having four sisters who were quite open and plain speaking about stuff. | |||
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"So following what I believed to be a surgery for Endometriosis I wake up to be told it potentially could be Adenomyosis. Never heard of it so had a morning of googling but curious to know how ladies manage it in real life and long term " Can’t pm you, and have some information I’d like to share but in private | |||
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"So following what I believed to be a surgery for Endometriosis I wake up to be told it potentially could be Adenomyosis. Never heard of it so had a morning of googling but curious to know how ladies manage it in real life and long term Can’t pm you, and have some information I’d like to share but in private " Ahhh age restrictions. I’ve changed them so go ahead | |||
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"I only found out I had it after my hysterectomy (many years ago now!) but it certainly explained a few things!! I hope all you ladies suffering find what works for you, it was the bane of my life til it was removed! " Oh wow. Yeah a hysterectomy is the other option but the coil seems to be working however I still have symptoms but without the heavy bleeding which made me anaemic. But I will say I was skinny without the coil 😂 | |||
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"I only found out I had it after my hysterectomy (many years ago now!) but it certainly explained a few things!! I hope all you ladies suffering find what works for you, it was the bane of my life til it was removed! Oh wow. Yeah a hysterectomy is the other option but the coil seems to be working however I still have symptoms but without the heavy bleeding which made me anaemic. But I will say I was skinny without the coil 😂 " I have to say my hysterectomy hurt like a bitch afterwards but I don't regret it at all - however I don't think I've EVER been skinny! 🤣 | |||
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"I only found out I had it after my hysterectomy (many years ago now!) but it certainly explained a few things!! I hope all you ladies suffering find what works for you, it was the bane of my life til it was removed! Oh wow. Yeah a hysterectomy is the other option but the coil seems to be working however I still have symptoms but without the heavy bleeding which made me anaemic. But I will say I was skinny without the coil 😂 I have to say my hysterectomy hurt like a bitch afterwards but I don't regret it at all - however I don't think I've EVER been skinny! 🤣 " 😂 I thought it was good jeans turns out I was just losing too much blood. Yeah a hysterectomy sounds extreme but considering it. My baby box is a box of torture and torment | |||
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"Hysterectomy finally resolved mine! I needed it for other reasons but at least the bleeding went too! Life with the condition for 15 years was horrendous. Nothing helped. " I’m thinking this may be the next step but I need to mentally prepare for it and maybe when the kids are a tad older | |||
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"Ive had endometriosis and adenomyosis mostly all my life! Full hysterectomy helped the adenomyosis, but not completely endometriosis and surgical menopause is a nightmare!!! Really consider everything in depth and see a specialist not a general gynaecologists. Good luck xx" Yeah I read that endometriosis can spread so I was kinda relieved when they said I didn’t have it. Seeing a specialist is the way to go. The NHS just doesn’t have the time to invest in people | |||
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"Ive had endometriosis and adenomyosis mostly all my life! Full hysterectomy helped the adenomyosis, but not completely endometriosis and surgical menopause is a nightmare!!! Really consider everything in depth and see a specialist not a general gynaecologists. Good luck xx" The wife had overys removed so a surgical menopause, OMG what a nightmare trying to find the right support. This will be a roller coster ride. Know one can prepare you for so please do lots of research and have support in place. Good luck. | |||
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