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"Does that mean that it’s back?" PET scan says no spread. Currently under Hormone therapy, with radio therapy in a month or so. Erections still occur, but not as strong. Obviously no semen production. I was on a course of a ‘viagra’ type med which was supposed to help but one of the side effects indigestion is horrible. | |||
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"They offered me robotic surgery. " That is great. I hope your surgery and treatment goes well and you recover well too. | |||
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"Hi Fabbers, I was just looking to see if anyone has had prostate cancer on here. I’ve just been diagnosed and need surgery. But wondering if anyone has it or had surgery and how’s the wee man post surgery. " Hope everything goes well for you x | |||
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"I sucked off a guy at a club with his wife helping. He had prostate cancer operated. A fine hard cock and when he came nothing came out, no cum but a powerful orgasm. Is that usually the case? " After a radical prostatectomy, a man can still have a strong orgasm, but it’s usually “dry” as the prostate and seminal vesicles are removed i.e. there is no semen produced to come out. Erection quality can be affected, sometimes erectile dysfunction can be long term, or it maybe managed. There can also be urine leakage. Radiation and hormone therapy can affect sex differently. With radiation: ejaculation may still happe, but it often reduces and may gradually get weaker over time. With hormone therapy, your sex drive drops a lot and erections can become much harder to get. | |||
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"Hi Fabbers, I was just looking to see if anyone has had prostate cancer on here. I’ve just been diagnosed and need surgery. But wondering if anyone has it or had surgery and how’s the wee man post surgery. " I had my prostate removed a couple of years ago. No real symptoms found by chance. They opened me up to remove it. They spared the nerves so I can get an election buy can be harder to achieve than it was. It took a few months for it to come back so don't panic at first. I dry orgasm which if im honest to me feels better that when a cum, you can sometimes have a little pee come out so be prepared for that. The only other thing I found is you do lose length from your penis, I don't think i was fully prepared for that so came as a bit of a shock. | |||
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"I sucked off a guy at a club with his wife helping. He had prostate cancer operated. A fine hard cock and when he came nothing came out, no cum but a powerful orgasm. Is that usually the case? " that's why they are called "dry orgasms". | |||
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"I sucked off a guy at a club with his wife helping. He had prostate cancer operated. A fine hard cock and when he came nothing came out, no cum but a powerful orgasm. Is that usually the case? " Yes. Most men, depending on treatment, find although they have dry orgasms the sensation is enough to rattle their fillings. 🤣 Initially, some complain that their orgasm is bordering on painful but they soon tolerate, enjoy it. | |||
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"They recommend surgery as I am young. Apparently radiotherapy can cause other cancers when I get older" Surgery is generally recommended for younger guys as it enables you to have Radiotherapy later if it returns. However, you can't have surgery after Radiotherapy | |||
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"They recommend surgery as I am young. Apparently radiotherapy can cause other cancers when I get older Surgery is generally recommended for younger guys as it enables you to have Radiotherapy later if it returns. However, you can't have surgery after Radiotherapy " Thats not true. It can be more problematic due to radiotherapy scarring but certainly is doable. Radiotherapy and surgery have come on leaps and bounds over the past 10 years. If you ask a man who had treatment over 10 years ago please remember today things have moved on dramatically but at least you know they are still breathing. Please, please don't use social media for advice, your surgeon, oncologist and specialist nurse are the by far the best. Good luck. Good luck.  | |||
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"There’s a relatively new treatment now, goes by the name of Focal Therapy, apparently men who live in the London area are more likely to get it than if you don’t. It’s said to come with little to no side effects either, which means you can still get erections and ejaculate." Its only for men where tumour is in certain area of the gland, not for everyone. | |||
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"Can I ask what your symptoms were? " Initially rectal bleeding which wasn’t cancer related, but they discovered my prostate was enlarged. Then had biopsies. I get prostitus and sometimes an urgent need to pee | |||
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"They recommend surgery as I am young. Apparently radiotherapy can cause other cancers when I get older Surgery is generally recommended for younger guys as it enables you to have Radiotherapy later if it returns. However, you can't have surgery after Radiotherapy Thats not true. It can be more problematic due to radiotherapy scarring but certainly is doable. Radiotherapy and surgery have come on leaps and bounds over the past 10 years. If you ask a man who had treatment over 10 years ago please remember today things have moved on dramatically but at least you know they are still breathing. Please, please don't use social media for advice, your surgeon, oncologist and specialist nurse are the by far the best. Good luck. Good luck. "Yes, it is doable though not common and Urologists generally don't want to do it. I was giving the general principle without going into the exact science of it all. The principle being that you shouldn't count on being able to have a prostatectomy after radiotherapy, so if you want to reserve having a shot at further treatment in the future (e.g. if biochemical recurrence occurs) having a prostatectomy first is more likely to be recommended. This can happen when the patient is younger when diagnosed, such as in the OP's case (and mine) as obviously, the longer you live there is more chance that you might need further treatment (as I did). I hope this clarifies and agree that you shouldn't use social media. Take the advice of the specialists as every case is different. Ask loads of questions and make the decision that is right for you based on the advice given. | |||
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"They recommend surgery as I am young. Apparently radiotherapy can cause other cancers when I get older Surgery is generally recommended for younger guys as it enables you to have Radiotherapy later if it returns. However, you can't have surgery after Radiotherapy Thats not true. It can be more problematic due to radiotherapy scarring but certainly is doable. Radiotherapy and surgery have come on leaps and bounds over the past 10 years. If you ask a man who had treatment over 10 years ago please remember today things have moved on dramatically but at least you know they are still breathing. Please, please don't use social media for advice, your surgeon, oncologist and specialist nurse are the by far the best. Good luck. Good luck.
Yes, it is doable though not common and Urologists generally don't want to do it. I was giving the general principle without going into the exact science of it all. The principle being that you shouldn't count on being able to have a prostatectomy after radiotherapy, so if you want to reserve having a shot at further treatment in the future (e.g. if biochemical recurrence occurs) having a prostatectomy first is more likely to be recommended. This can happen when the patient is younger when diagnosed, such as in the OP's case (and mine) as obviously, the longer you live there is more chance that you might need further treatment (as I did). I hope this clarifies and agree that you shouldn't use social media. Take the advice of the specialists as every case is different. Ask loads of questions and make the decision that is right for you based on the advice given."Don't want to be pedantic but men should not be worried about treatment post radiotherapy should they have recurrence. Salvage radiotherapy and ADT is available. But, every patient is different and although lots of people on social media mean well, the information they offer can sometimes be incorrect, out of date or just there own journey. Think we can all agree a quick phone call to your specialist nurse, surgeon or oncologist is far, far better than a forum group on a sex site. Its a very worrying time for all the men who are diagnosed, but caught early the prognosis is excellent. Good luck. | |||
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"I’m a nurse so aware of the ins and outs of the treatment but was looking at the personal aspects. We all know that sometimes the doctors are very prescriptive with the treatment but don’t always look at the psychological and practical aspects after treatment " I'm really sorry but find that comment both disingenuous and totally untrue. Any treatment always takes into account the psychological, practical and future aspects of all patients both pre and post. It maybe looks like doctors have little impact once primary treatment is over and specialist nurses, physiotherapists etc take the lead but the whole team is actively involved in regular MDT meetings. 3 or 6 monthly clinics are an integral part of treatment until around 5 years. | |||
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"I’m a nurse so aware of the ins and outs of the treatment but was looking at the personal aspects. We all know that sometimes the doctors are very prescriptive with the treatment but don’t always look at the psychological and practical aspects after treatment I'm really sorry but find that comment both disingenuous and totally untrue. Any treatment always takes into account the psychological, practical and future aspects of all patients both pre and post. It maybe looks like doctors have little impact once primary treatment is over and specialist nurses, physiotherapists etc take the lead but the whole team is actively involved in regular MDT meetings. 3 or 6 monthly clinics are an integral part of treatment until around 5 years." What matters most is the patient perspective and how care is experienced. Simply saying “no, that doesn’t happen” does not help improve healthcare. There are well-documented examples where patients’ concerns have not been fully listened to or taken seriously. This has particularly been highlighted in areas such as women’s health, where conditions like endometriosis can be overlooked or misdiagnosed, with some women experiencing delays in diagnosis or having their pain attributed to other causes. Acknowledging these experiences is not an attack on doctors or the healthcare system; it is part of understanding where improvements can be made so patients feel heard as well as treated. This keeps the focus on patient experience and improvement rather than making a general accusation against all doctors. Therefore, describing the comment as “disingenuous” is itself unfair and an inadequate response. The patient perspective must remain central. While medical teams provide essential treatment and expertise, patients also need support with the psychological, emotional, and practical impact of their illness. For people affected by prostate cancer, there are excellent organisations that can accompany, support, and guide patients through their journey. Sometimes this type of support may resonate more with patients because it focuses on their individual experiences, concerns, and needs beyond the treatment itself. Recognising the patient’s perspective does not undermine the work of healthcare professionals; it helps ensure that care remains truly patient-centred. There are great charities such as Macmillan Cancer Support that work alongside patients and families throughout their cancer experience. Anyone who feels they need additional support should consider reaching out to these trusted organisations, whose aim is to help people navigate their journey and ensure that patients remain at the centre of care. Recognising patient experiences does not diminish the work of healthcare professionals; it strengthens healthcare by highlighting the importance of treating the person as well as the disease. Thus, your answer is highly inadequate for such a difficult and challenging journey faced by cancer patients and their families. The emotional, psychological, and practical impact of cancer cannot be reduced to the medical treatment alone; patients and their loved ones also need to feel heard, supported, and understood throughout the journey. | |||
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"They recommend surgery as I am young. Apparently radiotherapy can cause other cancers when I get older Surgery is generally recommended for younger guys as it enables you to have Radiotherapy later if it returns. However, you can't have surgery after Radiotherapy Thats not true. It can be more problematic due to radiotherapy scarring but certainly is doable. Radiotherapy and surgery have come on leaps and bounds over the past 10 years. If you ask a man who had treatment over 10 years ago please remember today things have moved on dramatically but at least you know they are still breathing. Please, please don't use social media for advice, your surgeon, oncologist and specialist nurse are the by far the best. Good luck. Good luck.
Yes, it is doable though not common and Urologists generally don't want to do it. I was giving the general principle without going into the exact science of it all. The principle being that you shouldn't count on being able to have a prostatectomy after radiotherapy, so if you want to reserve having a shot at further treatment in the future (e.g. if biochemical recurrence occurs) having a prostatectomy first is more likely to be recommended. This can happen when the patient is younger when diagnosed, such as in the OP's case (and mine) as obviously, the longer you live there is more chance that you might need further treatment (as I did). I hope this clarifies and agree that you shouldn't use social media. Take the advice of the specialists as every case is different. Ask loads of questions and make the decision that is right for you based on the advice given.
Don't want to be pedantic but men should not be worried about treatment post radiotherapy should they have recurrence.
Salvage radiotherapy and ADT is available.
But, every patient is different and although lots of people on social media mean well, the information they offer can sometimes be incorrect, out of date or just there own journey.
Think we can all agree a quick phone call to your specialist nurse, surgeon or oncologist is far, far better than a forum group on a sex site.
Its a very worrying time for all the men who are diagnosed, but caught early the prognosis is excellent.
Good luck."Yes, salvage RT is available post prostatectomy though we have gone full circle as this particular discussion was around having a prostatectomy after radiotherapy and vice-versa. (However, research is indicating that ADT is not effective as a secondary treatment but only really had its place as a primary treatment alongside radiotherapy. However, due to the variables in the research, some Consultants still take a belt and braces approach, whilst others don't consider it to be necessary.) For all those on the journey, stay strong, the help and support is out there! | |||
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"Does that mean that it’s back? PET scan says no spread. Currently under Hormone therapy, with radio therapy in a month or so. Erections still occur, but not as strong. Obviously no semen production. I was on a course of a ‘viagra’ type med which was supposed to help but one of the side effects indigestion is horrible." You could look into trying digestive enzymes for the indigestion. | |||
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"Does that mean that it’s back? PET scan says no spread. Currently under Hormone therapy, with radio therapy in a month or so. Erections still occur, but not as strong. Obviously no semen production. I was on a course of a ‘viagra’ type med which was supposed to help but one of the side effects indigestion is horrible. I use omeprazole, very sparingly and drink ginger tea and ginger in smoothies. Which help a bit. You could look into trying digestive enzymes for the indigestion. " | |||
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"I’m a nurse so aware of the ins and outs of the treatment but was looking at the personal aspects. We all know that sometimes the doctors are very prescriptive with the treatment but don’t always look at the psychological and practical aspects after treatment I'm really sorry but find that comment both disingenuous and totally untrue. Any treatment always takes into account the psychological, practical and future aspects of all patients both pre and post. It maybe looks like doctors have little impact once primary treatment is over and specialist nurses, physiotherapists etc take the lead but the whole team is actively involved in regular MDT meetings. 3 or 6 monthly clinics are an integral part of treatment until around 5 years. What matters most is the patient perspective and how care is experienced. Simply saying “no, that doesn’t happen” does not help improve healthcare. There are well-documented examples where patients’ concerns have not been fully listened to or taken seriously. This has particularly been highlighted in areas such as women’s health, where conditions like endometriosis can be overlooked or misdiagnosed, with some women experiencing delays in diagnosis or having their pain attributed to other causes. Acknowledging these experiences is not an attack on doctors or the healthcare system; it is part of understanding where improvements can be made so patients feel heard as well as treated. This keeps the focus on patient experience and improvement rather than making a general accusation against all doctors. Therefore, describing the comment as “disingenuous” is itself unfair and an inadequate response. The patient perspective must remain central. While medical teams provide essential treatment and expertise, patients also need support with the psychological, emotional, and practical impact of their illness. For people affected by prostate cancer, there are excellent organisations that can accompany, support, and guide patients through their journey. Sometimes this type of support may resonate more with patients because it focuses on their individual experiences, concerns, and needs beyond the treatment itself. Recognising the patient’s perspective does not undermine the work of healthcare professionals; it helps ensure that care remains truly patient-centred. There are great charities such as Macmillan Cancer Support that work alongside patients and families throughout their cancer experience. Anyone who feels they need additional support should consider reaching out to these trusted organisations, whose aim is to help people navigate their journey and ensure that patients remain at the centre of care. Recognising patient experiences does not diminish the work of healthcare professionals; it strengthens healthcare by highlighting the importance of treating the person as well as the disease. Thus, your answer is highly inadequate for such a difficult and challenging journey faced by cancer patients and their families. The emotional, psychological, and practical impact of cancer cannot be reduced to the medical treatment alone; patients and their loved ones also need to feel heard, supported, and understood throughout the journey." I thought my response covered these issues and was adequate. My patients care on all fronts is always my concern. Of course there will be areas for improvement but in prostate cancer the emotional, psychological etc support is always part of the extended treatment. Its a terrible time for a man and his family to be given a cancer diagnosis and when you have this chat you can almost see the roller shutter come down within minutes of starting my chat. The information is overwhelming and impossible to take on board at the initial diagnosis consultation, therefore the need for specific contact points which, im my experience, are a life line for these men are well understood and used. Its a complicated journey on all fronts and I stick by my comments but thank you for taking the effort to respond. Disingenuous is still the word I would use. | |||
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