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Prostate Cancer

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By *r_wonder_shag OP   Man
12 weeks ago

Darlaston

Hi Fabbers,

I was just looking to see if anyone has had prostate cancer on here. I’ve just been diagnosed and need surgery.

But wondering if anyone has it or had surgery and how’s the wee man post surgery.

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By *eliusMan
12 weeks ago

Henlow

Yep, full prostatectomy last May, and PSA levels have slightly increased.

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By *lan157Man
12 weeks ago

a village near Haywards Heath in East Sussex

Yes I have had Prostate cancer. However I had radiotherapy and hormone treatment and did not need surgery. Hope all goes well for you .

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By *r_wonder_shag OP   Man
12 weeks ago

Darlaston

Does that mean that it’s back?

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By *r_wonder_shag OP   Man
12 weeks ago

Darlaston

They recommend surgery as I am young. Apparently radiotherapy can cause other cancers when I get older

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By (user no longer on site)
12 weeks ago

Is it laproscopic or robotic surgery? The later is the best for preserving sexual function and recovery.

Ps not a lad but know a few men who have had surgery for prostate cancer

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By *r_wonder_shag OP   Man
12 weeks ago

Darlaston

They offered me robotic surgery.

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By *eliusMan
12 weeks ago

Henlow


"Does that mean that it’s back?"

PET scan says no spread. Currently under Hormone therapy, with radio therapy in a month or so. Erections still occur, but not as strong. Obviously no semen production. I was on a course of a ‘viagra’ type med which was supposed to help but one of the side effects indigestion is horrible.

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By (user no longer on site)
12 weeks ago


"They offered me robotic surgery. "

That is great. I hope your surgery and treatment goes well and you recover well too.

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By *iftmanMan
12 weeks ago

london/essex

Yes had my prostate removed 3 years ago. Got it before aggressive. Now take injection side of penis . Not a horrible as it sound. Good hard on 👍

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By *lley-CatMan
12 weeks ago

Folkestone

Wishing you well, OP.

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By *r_firmwareMan
12 weeks ago

Luton

I had mine removed over 15 years ago using robotic daVininci robot. I use injections now...Invicorp.

Hope all goes well

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By *eautyandthebeast86Couple
12 weeks ago

Somewhere in Norfolk ask :)

Get well soon OP sending virtual hugs zx

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By *avid BlackhardtMan
12 weeks ago

Walsall

My heart and soul goes out to you all, stay strong my friends. You can do it

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By *he one 23Man
12 weeks ago

Sheffield

Had mine removed 8yr ago.I struggled to get erect even after nerves sparring surgery. I am now sat here with a penile prosthesis which is the best thing I have done .I pump it up when needed and let it down when the lady as had enough.

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By *iss DevilWoman
12 weeks ago

Bedford

My FWB was diagnosed with prostate cancer 2 years ago, and he had surgery (robotic) to remove it. He has better days and worse days when it comes to erection, but he is not overly bothered as he has a hollow strap on that he uses. And that works very well for all involved.

All the best, OP.

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By *unseeker1Man
12 weeks ago

southeast/med

Any information/ experience of a penile prosthesis would be welcome.

Many thanks

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By (user no longer on site)
12 weeks ago

Can I ask what your symptoms were?

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By *oml and mwgcCouple
12 weeks ago

evington


"Hi Fabbers,

I was just looking to see if anyone has had prostate cancer on here. I’ve just been diagnosed and need surgery.

But wondering if anyone has it or had surgery and how’s the wee man post surgery.

"

Hope everything goes well for you x

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By *i mature masseurMan
12 weeks ago

London and elsewhere

I sucked off a guy at a club with his wife helping. He had prostate cancer operated. A fine hard cock and when he came nothing came out, no cum but a powerful orgasm.

Is that usually the case?

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By *enerationfornicationMan
12 weeks ago

close to


"I sucked off a guy at a club with his wife helping. He had prostate cancer operated. A fine hard cock and when he came nothing came out, no cum but a powerful orgasm.

Is that usually the case? "

After a radical prostatectomy, a man can still have a strong orgasm, but it’s usually “dry” as the prostate and seminal vesicles are removed i.e. there is no semen produced to come out.

Erection quality can be affected, sometimes erectile dysfunction can be long term, or it maybe managed.

There can also be urine leakage.

Radiation and hormone therapy can affect sex differently.

With radiation: ejaculation may still happe, but it often reduces and may gradually get weaker over time.

With hormone therapy, your sex drive drops a lot and erections can become much harder to get.

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By *econdtimelucky101Man
12 weeks ago

Near Birmingham.


"Hi Fabbers,

I was just looking to see if anyone has had prostate cancer on here. I’ve just been diagnosed and need surgery.

But wondering if anyone has it or had surgery and how’s the wee man post surgery.

"

I had my prostate removed a couple of years ago. No real symptoms found by chance. They opened me up to remove it. They spared the nerves so I can get an election buy can be harder to achieve than it was. It took a few months for it to come back so don't panic at first. I dry orgasm which if im honest to me feels better that when a cum, you can sometimes have a little pee come out so be prepared for that. The only other thing I found is you do lose length from your penis, I don't think i was fully prepared for that so came as a bit of a shock.

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By *izandpaulCouple
12 weeks ago

merseyside

You need to have a good conversation with your surgeon and oncologist.

Each man is very different and therefore each prognosis is different depending on location of cancer, if nerve sparing is possible, sexual function before diagnosis, general health, Gleeson score etc., etc.

I'm sure you have been assigned a specialist nurse and a contact number.

If you have any questions phone them, they have seen and heard it all.

The problem with social media sites like FAB is all the men who respond have different prognosis, journeys and outcomes so its hard to nail down what will happen in your individual case.

How you will fair is dependant on many factors but I wish you luck and best outcome.

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By *iss DevilWoman
12 weeks ago

Bedford


"I sucked off a guy at a club with his wife helping. He had prostate cancer operated. A fine hard cock and when he came nothing came out, no cum but a powerful orgasm.

Is that usually the case? "

that's why they are called "dry orgasms".

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By *izandpaulCouple
12 weeks ago

merseyside


"I sucked off a guy at a club with his wife helping. He had prostate cancer operated. A fine hard cock and when he came nothing came out, no cum but a powerful orgasm.

Is that usually the case? "

Yes.

Most men, depending on treatment, find although they have dry orgasms the sensation is enough to rattle their fillings. 🤣

Initially, some complain that their orgasm is bordering on painful but they soon tolerate, enjoy it.

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By *irty DiamondsCouple
12 weeks ago

London - South East and West

There’s a relatively new treatment now, goes by the name of Focal Therapy, apparently men who live in the London area are more likely to get it than if you don’t. It’s said to come with little to no side effects either, which means you can still get erections and ejaculate.

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By *anda2018Couple
12 weeks ago

Scunthorpe

Sending best wishes OP,

Tongues and fingers can be just as satisfying as a cock! Don't put too much stress on yourself to 'perform'

Mrs xx

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By *aGaGagging for itCouple
12 weeks ago

Newcastle upon Tyne


"They recommend surgery as I am young. Apparently radiotherapy can cause other cancers when I get older"

Surgery is generally recommended for younger guys as it enables you to have Radiotherapy later if it returns. However, you can't have surgery after Radiotherapy

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By *izandpaulCouple
12 weeks ago

merseyside


"They recommend surgery as I am young. Apparently radiotherapy can cause other cancers when I get older

Surgery is generally recommended for younger guys as it enables you to have Radiotherapy later if it returns. However, you can't have surgery after Radiotherapy "

Thats not true.

It can be more problematic due to radiotherapy scarring but certainly is doable.

Radiotherapy and surgery have come on leaps and bounds over the past 10 years.

If you ask a man who had treatment over 10 years ago please remember today things have moved on dramatically but at least you know they are still breathing.

Please, please don't use social media for advice, your surgeon, oncologist and specialist nurse are the by far the best.

Good luck.

Good luck.

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By *izandpaulCouple
12 weeks ago

merseyside


"There’s a relatively new treatment now, goes by the name of Focal Therapy, apparently men who live in the London area are more likely to get it than if you don’t. It’s said to come with little to no side effects either, which means you can still get erections and ejaculate."

Its only for men where tumour is in certain area of the gland, not for everyone.

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By (user no longer on site)
12 weeks ago

So you can inject your penis to get a good erection? A friend of mine had his prostate removed but is left impotent.

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By *r_firmwareMan
12 weeks ago

Luton

Yes, it stays hard for over an hour usually...for.me anyway!

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By *r_wonder_shag OP   Man
11 weeks ago

Darlaston


"Can I ask what your symptoms were? "

Initially rectal bleeding which wasn’t cancer related, but they discovered my prostate was enlarged. Then had biopsies.

I get prostitus and sometimes an urgent need to pee

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By *r_wonder_shag OP   Man
11 weeks ago

Darlaston

Does a pump help regain some of the lengh

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By *r_firmwareMan
11 weeks ago

Luton

Yes it can do

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By *aGaGagging for itCouple
11 weeks ago

Newcastle upon Tyne


"They recommend surgery as I am young. Apparently radiotherapy can cause other cancers when I get older

Surgery is generally recommended for younger guys as it enables you to have Radiotherapy later if it returns. However, you can't have surgery after Radiotherapy

Thats not true.

It can be more problematic due to radiotherapy scarring but certainly is doable.

Radiotherapy and surgery have come on leaps and bounds over the past 10 years.

If you ask a man who had treatment over 10 years ago please remember today things have moved on dramatically but at least you know they are still breathing.

Please, please don't use social media for advice, your surgeon, oncologist and specialist nurse are the by far the best.

Good luck.

Good luck. "

Yes, it is doable though not common and Urologists generally don't want to do it. I was giving the general principle without going into the exact science of it all. The principle being that you shouldn't count on being able to have a prostatectomy after radiotherapy, so if you want to reserve having a shot at further treatment in the future (e.g. if biochemical recurrence occurs) having a prostatectomy first is more likely to be recommended. This can happen when the patient is younger when diagnosed, such as in the OP's case (and mine) as obviously, the longer you live there is more chance that you might need further treatment (as I did). I hope this clarifies and agree that you shouldn't use social media. Take the advice of the specialists as every case is different. Ask loads of questions and make the decision that is right for you based on the advice given.

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By *r_firmwareMan
11 weeks ago

Luton

Completely agree

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By *eadhead7Man
11 weeks ago

Aberdeen

I know nothing of treatments etc but I wish you a speedy recovery my friend and all the best.

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By *izandpaulCouple
11 weeks ago

merseyside


"They recommend surgery as I am young. Apparently radiotherapy can cause other cancers when I get older

Surgery is generally recommended for younger guys as it enables you to have Radiotherapy later if it returns. However, you can't have surgery after Radiotherapy

Thats not true.

It can be more problematic due to radiotherapy scarring but certainly is doable.

Radiotherapy and surgery have come on leaps and bounds over the past 10 years.

If you ask a man who had treatment over 10 years ago please remember today things have moved on dramatically but at least you know they are still breathing.

Please, please don't use social media for advice, your surgeon, oncologist and specialist nurse are the by far the best.

Good luck.

Good luck.

Yes, it is doable though not common and Urologists generally don't want to do it. I was giving the general principle without going into the exact science of it all. The principle being that you shouldn't count on being able to have a prostatectomy after radiotherapy, so if you want to reserve having a shot at further treatment in the future (e.g. if biochemical recurrence occurs) having a prostatectomy first is more likely to be recommended. This can happen when the patient is younger when diagnosed, such as in the OP's case (and mine) as obviously, the longer you live there is more chance that you might need further treatment (as I did). I hope this clarifies and agree that you shouldn't use social media. Take the advice of the specialists as every case is different. Ask loads of questions and make the decision that is right for you based on the advice given."

Don't want to be pedantic but men should not be worried about treatment post radiotherapy should they have recurrence.

Salvage radiotherapy and ADT is available.

But, every patient is different and although lots of people on social media mean well, the information they offer can sometimes be incorrect, out of date or just there own journey.

Think we can all agree a quick phone call to your specialist nurse, surgeon or oncologist is far, far better than a forum group on a sex site.

Its a very worrying time for all the men who are diagnosed, but caught early the prognosis is excellent.

Good luck.

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By *r_wonder_shag OP   Man
11 weeks ago

Darlaston

I’m a nurse so aware of the ins and outs of the treatment but was looking at the personal aspects.

We all know that sometimes the doctors are very prescriptive with the treatment but don’t always look at the psychological and practical aspects after treatment

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By *izandpaulCouple
11 weeks ago

merseyside


"I’m a nurse so aware of the ins and outs of the treatment but was looking at the personal aspects.

We all know that sometimes the doctors are very prescriptive with the treatment but don’t always look at the psychological and practical aspects after treatment "

I'm really sorry but find that comment both disingenuous and totally untrue.

Any treatment always takes into account the psychological, practical and future aspects of all patients both pre and post.

It maybe looks like doctors have little impact once primary treatment is over and specialist nurses, physiotherapists etc take the lead but the whole team is actively involved in regular MDT meetings.

3 or 6 monthly clinics are an integral part of treatment until around 5 years.

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By *d4funtimesMan
11 weeks ago

Cambridge


"I’m a nurse so aware of the ins and outs of the treatment but was looking at the personal aspects.

We all know that sometimes the doctors are very prescriptive with the treatment but don’t always look at the psychological and practical aspects after treatment

I'm really sorry but find that comment both disingenuous and totally untrue.

Any treatment always takes into account the psychological, practical and future aspects of all patients both pre and post.

It maybe looks like doctors have little impact once primary treatment is over and specialist nurses, physiotherapists etc take the lead but the whole team is actively involved in regular MDT meetings.

3 or 6 monthly clinics are an integral part of treatment until around 5 years."

What matters most is the patient perspective and how care is experienced.

Simply saying “no, that doesn’t happen” does not help improve healthcare. There are well-documented examples where patients’ concerns have not been fully listened to or taken seriously.

This has particularly been highlighted in areas such as women’s health, where conditions like endometriosis can be overlooked or misdiagnosed, with some women experiencing delays in diagnosis or having their pain attributed to other causes.

Acknowledging these experiences is not an attack on doctors or the healthcare system; it is part of understanding where improvements can be made so patients feel heard as well as treated.

This keeps the focus on patient experience and improvement rather than making a general accusation against all doctors.

Therefore, describing the comment as “disingenuous” is itself unfair and an inadequate response. The patient perspective must remain central. While medical teams provide essential treatment and expertise, patients also need support with the psychological, emotional, and practical impact of their illness.

For people affected by prostate cancer, there are excellent organisations that can accompany, support, and guide patients through their journey. Sometimes this type of support may resonate more with patients because it focuses on their individual experiences, concerns, and needs beyond the treatment itself.

Recognising the patient’s perspective does not undermine the work of healthcare professionals; it helps ensure that care remains truly patient-centred.

There are great charities such as Macmillan Cancer Support that work alongside patients and families throughout their cancer experience. Anyone who feels they need additional support should consider reaching out to these trusted organisations, whose aim is to help people navigate their journey and ensure that patients remain at the centre of care.

Recognising patient experiences does not diminish the work of healthcare professionals; it strengthens healthcare by highlighting the importance of treating the person as well as the disease.

Thus, your answer is highly inadequate for such a difficult and challenging journey faced by cancer patients and their families. The emotional, psychological, and practical impact of cancer cannot be reduced to the medical treatment alone; patients and their loved ones also need to feel heard, supported, and understood throughout the journey.

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By *vonCalling2022Couple
11 weeks ago

Whyteleafe

I just want to wish anyone experiencing this the very best xxxx

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By *aGaGagging for itCouple
11 weeks ago

Newcastle upon Tyne


"They recommend surgery as I am young. Apparently radiotherapy can cause other cancers when I get older

Surgery is generally recommended for younger guys as it enables you to have Radiotherapy later if it returns. However, you can't have surgery after Radiotherapy

Thats not true.

It can be more problematic due to radiotherapy scarring but certainly is doable.

Radiotherapy and surgery have come on leaps and bounds over the past 10 years.

If you ask a man who had treatment over 10 years ago please remember today things have moved on dramatically but at least you know they are still breathing.

Please, please don't use social media for advice, your surgeon, oncologist and specialist nurse are the by far the best.

Good luck.

Good luck.

Yes, it is doable though not common and Urologists generally don't want to do it. I was giving the general principle without going into the exact science of it all. The principle being that you shouldn't count on being able to have a prostatectomy after radiotherapy, so if you want to reserve having a shot at further treatment in the future (e.g. if biochemical recurrence occurs) having a prostatectomy first is more likely to be recommended. This can happen when the patient is younger when diagnosed, such as in the OP's case (and mine) as obviously, the longer you live there is more chance that you might need further treatment (as I did). I hope this clarifies and agree that you shouldn't use social media. Take the advice of the specialists as every case is different. Ask loads of questions and make the decision that is right for you based on the advice given.

Don't want to be pedantic but men should not be worried about treatment post radiotherapy should they have recurrence.

Salvage radiotherapy and ADT is available.

But, every patient is different and although lots of people on social media mean well, the information they offer can sometimes be incorrect, out of date or just there own journey.

Think we can all agree a quick phone call to your specialist nurse, surgeon or oncologist is far, far better than a forum group on a sex site.

Its a very worrying time for all the men who are diagnosed, but caught early the prognosis is excellent.

Good luck."

Yes, salvage RT is available post prostatectomy though we have gone full circle as this particular discussion was around having a prostatectomy after radiotherapy and vice-versa. (However, research is indicating that ADT is not effective as a secondary treatment but only really had its place as a primary treatment alongside radiotherapy. However, due to the variables in the research, some Consultants still take a belt and braces approach, whilst others don't consider it to be necessary.)

For all those on the journey, stay strong, the help and support is out there!

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By *exy Pretty FeetCouple
11 weeks ago

Live in Scotland Play in England


"Does that mean that it’s back?

PET scan says no spread. Currently under Hormone therapy, with radio therapy in a month or so. Erections still occur, but not as strong. Obviously no semen production. I was on a course of a ‘viagra’ type med which was supposed to help but one of the side effects indigestion is horrible."

You could look into trying digestive enzymes for the indigestion.

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By *eliusMan
11 weeks ago

Henlow


"Does that mean that it’s back?

PET scan says no spread. Currently under Hormone therapy, with radio therapy in a month or so. Erections still occur, but not as strong. Obviously no semen production. I was on a course of a ‘viagra’ type med which was supposed to help but one of the side effects indigestion is horrible.

I use omeprazole, very sparingly and drink ginger tea and ginger in smoothies. Which help a bit.

You could look into trying digestive enzymes for the indigestion. "

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By *eeds OwlsCouple
11 weeks ago

Leeds

Terrific thread keep it going.

Outrageous that National Cancer screening service will not extend to all men.

Best wishes OP.

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By *izandpaulCouple
11 weeks ago

merseyside


"I’m a nurse so aware of the ins and outs of the treatment but was looking at the personal aspects.

We all know that sometimes the doctors are very prescriptive with the treatment but don’t always look at the psychological and practical aspects after treatment

I'm really sorry but find that comment both disingenuous and totally untrue.

Any treatment always takes into account the psychological, practical and future aspects of all patients both pre and post.

It maybe looks like doctors have little impact once primary treatment is over and specialist nurses, physiotherapists etc take the lead but the whole team is actively involved in regular MDT meetings.

3 or 6 monthly clinics are an integral part of treatment until around 5 years.

What matters most is the patient perspective and how care is experienced.

Simply saying “no, that doesn’t happen” does not help improve healthcare. There are well-documented examples where patients’ concerns have not been fully listened to or taken seriously.

This has particularly been highlighted in areas such as women’s health, where conditions like endometriosis can be overlooked or misdiagnosed, with some women experiencing delays in diagnosis or having their pain attributed to other causes.

Acknowledging these experiences is not an attack on doctors or the healthcare system; it is part of understanding where improvements can be made so patients feel heard as well as treated.

This keeps the focus on patient experience and improvement rather than making a general accusation against all doctors.

Therefore, describing the comment as “disingenuous” is itself unfair and an inadequate response. The patient perspective must remain central. While medical teams provide essential treatment and expertise, patients also need support with the psychological, emotional, and practical impact of their illness.

For people affected by prostate cancer, there are excellent organisations that can accompany, support, and guide patients through their journey. Sometimes this type of support may resonate more with patients because it focuses on their individual experiences, concerns, and needs beyond the treatment itself.

Recognising the patient’s perspective does not undermine the work of healthcare professionals; it helps ensure that care remains truly patient-centred.

There are great charities such as Macmillan Cancer Support that work alongside patients and families throughout their cancer experience. Anyone who feels they need additional support should consider reaching out to these trusted organisations, whose aim is to help people navigate their journey and ensure that patients remain at the centre of care.

Recognising patient experiences does not diminish the work of healthcare professionals; it strengthens healthcare by highlighting the importance of treating the person as well as the disease.

Thus, your answer is highly inadequate for such a difficult and challenging journey faced by cancer patients and their families. The emotional, psychological, and practical impact of cancer cannot be reduced to the medical treatment alone; patients and their loved ones also need to feel heard, supported, and understood throughout the journey."

I thought my response covered these issues and was adequate.

My patients care on all fronts is always my concern.

Of course there will be areas for improvement but in prostate cancer the emotional, psychological etc support is always part of the extended treatment.

Its a terrible time for a man and his family to be given a cancer diagnosis and when you have this chat you can almost see the roller shutter come down within minutes of starting my chat.

The information is overwhelming and impossible to take on board at the initial diagnosis consultation, therefore the need for specific contact points which, im my experience, are a life line for these men are well understood and used.

Its a complicated journey on all fronts and I stick by my comments but thank you for taking the effort to respond.

Disingenuous is still the word I would use.

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By *unnyAndDickieCouple
11 weeks ago

FARINGDON

Research, Prostate8 a new treatment, although "New" it has over a ten year history in the UK. One of the London hospitals. Should be on the BBC sounds archive

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By *unnyAndDickieCouple
11 weeks ago

FARINGDON

Actually just looked it up and it's Prost8

Dodge the finger!!

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By *r_wonder_shag OP   Man
11 weeks ago

Darlaston

[Removed by poster at 20/07/26 22:19:29]

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By *r_wonder_shag OP   Man
11 weeks ago

Darlaston

Well I’ve seen a consultant once and the rest of the time it’s been a nurse, who have been very good at explaining the processes. But what they lack is lived experience of the condition, men’s personal experiences, how they came to their choices and lived with it. I worked in urology 20 years ago so could rattle off the text book stuff and regurgitate my training and respite how we always put the patient first. But now I am that patient and how it’s going to impact me is only something that someone who’s lived through it is going to get close to explaining.

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By *d4funtimesMan
11 weeks ago

Cambridge


"I’m a nurse so aware of the ins and outs of the treatment but was looking at the personal aspects.

We all know that sometimes the doctors are very prescriptive with the treatment but don’t always look at the psychological and practical aspects after treatment

I'm really sorry but find that comment both disingenuous and totally untrue.

Any treatment always takes into account the psychological, practical and future aspects of all patients both pre and post.

It maybe looks like doctors have little impact once primary treatment is over and specialist nurses, physiotherapists etc take the lead but the whole team is actively involved in regular MDT meetings.

3 or 6 monthly clinics are an integral part of treatment until around 5 years.

What matters most is the patient perspective and how care is experienced.

Simply saying “no, that doesn’t happen” does not help improve healthcare. There are well-documented examples where patients’ concerns have not been fully listened to or taken seriously.

This has particularly been highlighted in areas such as women’s health, where conditions like endometriosis can be overlooked or misdiagnosed, with some women experiencing delays in diagnosis or having their pain attributed to other causes.

Acknowledging these experiences is not an attack on doctors or the healthcare system; it is part of understanding where improvements can be made so patients feel heard as well as treated.

This keeps the focus on patient experience and improvement rather than making a general accusation against all doctors.

Therefore, describing the comment as “disingenuous” is itself unfair and an inadequate response. The patient perspective must remain central. While medical teams provide essential treatment and expertise, patients also need support with the psychological, emotional, and practical impact of their illness.

For people affected by prostate cancer, there are excellent organisations that can accompany, support, and guide patients through their journey. Sometimes this type of support may resonate more with patients because it focuses on their individual experiences, concerns, and needs beyond the treatment itself.

Recognising the patient’s perspective does not undermine the work of healthcare professionals; it helps ensure that care remains truly patient-centred.

There are great charities such as Macmillan Cancer Support that work alongside patients and families throughout their cancer experience. Anyone who feels they need additional support should consider reaching out to these trusted organisations, whose aim is to help people navigate their journey and ensure that patients remain at the centre of care.

Recognising patient experiences does not diminish the work of healthcare professionals; it strengthens healthcare by highlighting the importance of treating the person as well as the disease.

Thus, your answer is highly inadequate for such a difficult and challenging journey faced by cancer patients and their families. The emotional, psychological, and practical impact of cancer cannot be reduced to the medical treatment alone; patients and their loved ones also need to feel heard, supported, and understood throughout the journey.

I thought my response covered these issues and was adequate.

My patients care on all fronts is always my concern.

Of course there will be areas for improvement but in prostate cancer the emotional, psychological etc support is always part of the extended treatment.

Its a terrible time for a man and his family to be given a cancer diagnosis and when you have this chat you can almost see the roller shutter come down within minutes of starting my chat.

The information is overwhelming and impossible to take on board at the initial diagnosis consultation, therefore the need for specific contact points which, im my experience, are a life line for these men are well understood and used.

Its a complicated journey on all fronts and I stick by my comments but thank you for taking the effort to respond.

Disingenuous is still the word I would use.

"

The main point to consider is the following; studies show that patients forget or fail to understand 40% to 80% of the medical information provided during clinical consultations. For specific chemotherapy and treatment plans, research indicates that only around 14% to 13.7% of patients have a complete, accurate understanding of what was explained.

Ref: Expert recommendations on sharing medical information with patients: a qualitative study

Research, BMC, Volume 25, article number 1137 (2025).

Several factors drive this low comprehension rate:

Information Overload: Consultations are dense, covering everything from diagnosis and prognosis to complex drug schedules and potential side effects.

Emotional Stress: High anxiety at the moment of a new or difficult diagnosis drastically reduces a patient's cognitive capacity to process and retain new details.

Medical Jargon: The use of complex medical terminology creates a communication gap between the oncologist and the patient.

Statistical Misunderstanding: Many patients struggle to comprehend numerical data, such as median survival times or probabilities of success.

In summary:

"Disingenuous" means someone is being insincere, dishonest, or pretending to know less than they do. When the nurse pointed out that doctors often focus on the prescription of treatment while missing the psychological or practical aftermath, they were sharing a well-documented reality of the patient experience.

When a patient only takes in about 14% to 20% of the information due to shock (the "roller shutter coming down"), they do not experience the system. They experience confusion, fear, and a lack of practical guidance at home.

The nurse is highlighting how patients actually feel, while, as clinician, you are defending how the system looks on paper. Describing a patient-centric observation as "insincere" (disingenuous) ignores the massive gap between what a doctor says and what a patient actually processes.

"Disingenuous" Silences Patient Feedback.

If a nurse or patient says, "We felt abandoned practically or psychologically," that is a subjective truth. It cannot be "untrue," because it is how the patient experienced the care.

Conclusion:

Effective healthcare delivery relies entirely on the gap being closed between what medical professionals intend to communicate and what patients actually understand. When discussions become defensive or judgmental, communication breaks down.

This dynamic is visible across medicine, from oncology treatment plans to public health initiatives like childhood vaccinations.

For clinicians, scientists, and nurses, the focus must remain on the practical reality of the patient experience.

Improving health literacy and ensuring patients truly comprehend their care requires continuous attention, clearer communication strategies, and objective licensing standards.

Ultimately, progress is made not by judging differing viewpoints, but by working productively to ensure that critical medical information is accessible, understood, and trusted by the public.

Personally, the rising level of misinformation regarding medical science is deeply concerning and feels threatening to public health.

However, addressing this is a long-term fight. Clear, compassionate communication remains our most critical tool, and responding with judgment is never effective.

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By *erfect pineappleWoman
11 weeks ago

neath

My ex hubby had it his health is fine but uses a pump to get it up

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By *arkman69Man
8 weeks ago

Erdington


"Hi Fabbers,

I was just looking to see if anyone has had prostate cancer on here. I’ve just been diagnosed and need surgery.

But wondering if anyone has it or had surgery and how’s the wee man post surgery.

"

Hi there. Yeah me too. I had surgery as I was also told it could return at a later date. Got the all clear now, but have to depend on the little pills now

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By *bhs72Man
8 weeks ago

witham

Best of luck to all you guys. I hope it all works out for you. Stay positive of mind 💪

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By *iguan3700Man
8 weeks ago

gloucestershire

Hi mate i had prostate cancer and had prostate removed july 2019,since then nothing tablets didnt work i now need and injection in penis to get an erection which isnt good,there is no feeling in penis is hard for about 30 mins but not hard enough for sex,and it creates havoc with your mind as hormones are flying around and no outlet for them, have a good talk with your doctor before having it done..

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By *atnip make me purrWoman
8 weeks ago

Reading


"Sending best wishes OP,

Tongues and fingers can be just as satisfying as a cock! Don't put too much stress on yourself to 'perform'

Mrs xx "

Completely agree with this. Some of my best times have been with diabetic men who can't get erections but become super skillful with hands and mouth.

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By *r6golfMan
7 weeks ago

Scarborough

I've just been diagnosed with medium level prostate cancer ,prostate wall solid so it's classed as local,just in prosses of getting booked in for permanent seed brackitherapy, hopefully get it all sorted soon

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By *ldcdTV/TS
7 weeks ago

Dumfries

After having TURP in July, they found low grade cancer cells, so now awaiting MRI scan and start PSA blood test every 3 months. Thats life for yer.

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By *izandpaulCouple
7 weeks ago

merseyside


"I’m a nurse so aware of the ins and outs of the treatment but was looking at the personal aspects.

We all know that sometimes the doctors are very prescriptive with the treatment but don’t always look at the psychological and practical aspects after treatment

I'm really sorry but find that comment both disingenuous and totally untrue.

Any treatment always takes into account the psychological, practical and future aspects of all patients both pre and post.

It maybe looks like doctors have little impact once primary treatment is over and specialist nurses, physiotherapists etc take the lead but the whole team is actively involved in regular MDT meetings.

3 or 6 monthly clinics are an integral part of treatment until around 5 years.

What matters most is the patient perspective and how care is experienced.

Simply saying “no, that doesn’t happen” does not help improve healthcare. There are well-documented examples where patients’ concerns have not been fully listened to or taken seriously.

This has particularly been highlighted in areas such as women’s health, where conditions like endometriosis can be overlooked or misdiagnosed, with some women experiencing delays in diagnosis or having their pain attributed to other causes.

Acknowledging these experiences is not an attack on doctors or the healthcare system; it is part of understanding where improvements can be made so patients feel heard as well as treated.

This keeps the focus on patient experience and improvement rather than making a general accusation against all doctors.

Therefore, describing the comment as “disingenuous” is itself unfair and an inadequate response. The patient perspective must remain central. While medical teams provide essential treatment and expertise, patients also need support with the psychological, emotional, and practical impact of their illness.

For people affected by prostate cancer, there are excellent organisations that can accompany, support, and guide patients through their journey. Sometimes this type of support may resonate more with patients because it focuses on their individual experiences, concerns, and needs beyond the treatment itself.

Recognising the patient’s perspective does not undermine the work of healthcare professionals; it helps ensure that care remains truly patient-centred.

There are great charities such as Macmillan Cancer Support that work alongside patients and families throughout their cancer experience. Anyone who feels they need additional support should consider reaching out to these trusted organisations, whose aim is to help people navigate their journey and ensure that patients remain at the centre of care.

Recognising patient experiences does not diminish the work of healthcare professionals; it strengthens healthcare by highlighting the importance of treating the person as well as the disease.

Thus, your answer is highly inadequate for such a difficult and challenging journey faced by cancer patients and their families. The emotional, psychological, and practical impact of cancer cannot be reduced to the medical treatment alone; patients and their loved ones also need to feel heard, supported, and understood throughout the journey.

I thought my response covered these issues and was adequate.

My patients care on all fronts is always my concern.

Of course there will be areas for improvement but in prostate cancer the emotional, psychological etc support is always part of the extended treatment.

Its a terrible time for a man and his family to be given a cancer diagnosis and when you have this chat you can almost see the roller shutter come down within minutes of starting my chat.

The information is overwhelming and impossible to take on board at the initial diagnosis consultation, therefore the need for specific contact points which, im my experience, are a life line for these men are well understood and used.

Its a complicated journey on all fronts and I stick by my comments but thank you for taking the effort to respond.

Disingenuous is still the word I would use.

The main point to consider is the following; studies show that patients forget or fail to understand 40% to 80% of the medical information provided during clinical consultations. For specific chemotherapy and treatment plans, research indicates that only around 14% to 13.7% of patients have a complete, accurate understanding of what was explained.

Ref: Expert recommendations on sharing medical information with patients: a qualitative study

Research, BMC, Volume 25, article number 1137 (2025).

Several factors drive this low comprehension rate:

Information Overload: Consultations are dense, covering everything from diagnosis and prognosis to complex drug schedules and potential side effects.

Emotional Stress: High anxiety at the moment of a new or difficult diagnosis drastically reduces a patient's cognitive capacity to process and retain new details.

Medical Jargon: The use of complex medical terminology creates a communication gap between the oncologist and the patient.

Statistical Misunderstanding: Many patients struggle to comprehend numerical data, such as median survival times or probabilities of success.

In summary:

"Disingenuous" means someone is being insincere, dishonest, or pretending to know less than they do. When the nurse pointed out that doctors often focus on the prescription of treatment while missing the psychological or practical aftermath, they were sharing a well-documented reality of the patient experience.

When a patient only takes in about 14% to 20% of the information due to shock (the "roller shutter coming down"), they do not experience the system. They experience confusion, fear, and a lack of practical guidance at home.

The nurse is highlighting how patients actually feel, while, as clinician, you are defending how the system looks on paper. Describing a patient-centric observation as "insincere" (disingenuous) ignores the massive gap between what a doctor says and what a patient actually processes.

"Disingenuous" Silences Patient Feedback.

If a nurse or patient says, "We felt abandoned practically or psychologically," that is a subjective truth. It cannot be "untrue," because it is how the patient experienced the care.

Conclusion:

Effective healthcare delivery relies entirely on the gap being closed between what medical professionals intend to communicate and what patients actually understand. When discussions become defensive or judgmental, communication breaks down.

This dynamic is visible across medicine, from oncology treatment plans to public health initiatives like childhood vaccinations.

For clinicians, scientists, and nurses, the focus must remain on the practical reality of the patient experience.

Improving health literacy and ensuring patients truly comprehend their care requires continuous attention, clearer communication strategies, and objective licensing standards.

Ultimately, progress is made not by judging differing viewpoints, but by working productively to ensure that critical medical information is accessible, understood, and trusted by the public.

Personally, the rising level of misinformation regarding medical science is deeply concerning and feels threatening to public health.

However, addressing this is a long-term fight. Clear, compassionate communication remains our most critical tool, and responding with judgment is never effective.

"

Sorry.

But great soundbites but although I don't disagree in principle to some of your post its pretty obvious you have no practical experience or rounded knowledge which would show through, just internet cut and paste.

The majority of my patients do understand the process, initial consultation is difficult, once the word cancer raises its head, things get fuzzy but the channels of communication are in place, understood, varied and work on a level understood by most.

Can communication be improved, of course it can and I have never met anyone in healthcare who would not wish for improvements in most areas and we all strive to do so, but lots of areas operate well and I feel the initial and early communication between patient and medical team is excellent but extremely difficult as the narrative is not something prople wish to take on board.

I understand this from both sides as been through surgery, chemo and radiotherapy myself and its gruelling, painful and frightening.

I would suggest you take some time as a volunteer in a cancer unit and see what happens on a day to day, up to date, real operating environment.

It will open your eyes and hopefully recognise how lucky we all are to have such an excellent, world beating service on our doorstep.

Once again, thanks for your input.

Good luck with any volunteering.

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By *alkingbobMan
7 weeks ago

Hamilton


"I sucked off a guy at a club with his wife helping. He had prostate cancer operated. A fine hard cock and when he came nothing came out, no cum but a powerful orgasm.

Is that usually the case? "

Yes that is what happens there possibly will be no sperm produced and the cum is not ejected but orgasm still happens.

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By *ldcdTV/TS
7 weeks ago

Dumfries


"I sucked off a guy at a club with his wife helping. He had prostate cancer operated. A fine hard cock and when he came nothing came out, no cum but a powerful orgasm.

Is that usually the case?

Yes that is what happens there possibly will be no sperm produced and the cum is not ejected but orgasm still happens."

Same as having a TURP op, gives you the pitfalls of the procedure in the leaflets they give in Urology. I have not had an erection since having the TURP a month ago.

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By *inkyjijoMan
5 weeks ago

Angus

I was diagnosed last year after, PSA tests, scans and a very unpleasant but necessary biopsy procedure. Was scheduled to get a removal op but I took a reaction to the anaesthetic (never had any allergies before?)Very serious reaction so op was cancelled. Got put on Hormone injections and eventually given a 20 day Radiotherapy course. The hormone treatment completely took away any interest in sex for about 6 months. Once the hormones wore off erections started to return and I now take a 5mg taladafil each day. I must say my wee chap has definitely gotten smaller and changed shape when erect (more curved up and not straight). I dont ejaculate anything other than a small spurt of clear fluid but the orgasms are still good. It was a very long road and is tough on your partner when going through hormone therapy. Key to getting through it is speaking to people...nurses, Drs, other patients and most importantly your family. Things are very different but grateful I am still able to get clear and a bonus of being able to perform again. The alternative of not getting treatment is in my opinion not even an option, life is precious and problems can always be overcome. I hope this is of some help and happy to answer any questions on here or in a private message 👍

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By *heStockingtoppsCouple
5 weeks ago

Stourbridge

Good Health & Happiness & Best Wishes to all on this forum who have been diagnosed with prostate cancer.

My question is what brought about he initial diagnosis, was it a result of the PSA test or other contributing factors ?

Like many older blokes I suffer with urgency needing to pee, visiting the toilet more often at night and poor flow but have always put this down to an enlarged prostate.

Were any of the above contributing factors to diagnosis ?

Any cancer is a cunt.. fuck cancer.

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By *inkyjijoMan
5 weeks ago

Angus

I had no real obvious signs, but when I turned 60 I asked for a test as there was genetic history and my PSA flagged up straight away prompting full investigation. Most of the guys at the pre treatment information day were similar putting extra pees st night to just getting older ...🤷‍♂️

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By *iguan3700Man
5 weeks ago

gloucestershire

Hi mate, had surgery 7 yrs ago had prostate removed can only get an erection with an injection not nice and no feeling from waist down its horrible.

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