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"We’re waiting for Ben’s first biological meds, a long wait list here after years of trying and failing treatments. Methotrexate worked to reduce it for a while but his organs didn’t like it so came off while we wait for the biologicals. It’s probably the worst it’s ever been atm, really painful - especially as he works outside. With that a lot of bleeding. He’s really self conscious about it and someone asked at a club whether he’d be in the dungeon because they thought it was welts from a spanking. Other than that it doesn’t affect us too much because I’m there bigging him up but it does affect his confidence and he’s conscious of flakiness 😔 " I feel you with that, I came of the methotrexate as it just made me ill and kept having to get called into hospital for tests. It has taken years where I am to even get started on the biologics and now I'm on to my 2nd one. First helped with the arthritis but not the skin. Sorry to hear someone asked him that about his skin, it seems to be what most idiots pick on here when I get a shitty message. Hope you get the biologics sorted soon ☺️ | |||
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"I only get it very mildly but mine does get worse with stress,I'm not sure if it's the same for everyone" I'm always stressed about something so that likely doesn't help! | |||
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"Do effect my erecctions when in pain and the meds I take." Oh no that isn't good, I hope you get a long clear spell soon! | |||
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"I’ve had a patch on my right shin and a bit on each knee. For me stress or anxiety doesn’t help and having autistic traits becomes something of a vicious circle. On bad days it can appear under some of my nails…it gets me down and depressed at times." I get it under my nails too, once described it as feeling like my nail beds are being stabbed to someone at work and they just looked confused at how it could hurt. Hopefully you have some good friends (fab or otherwise) to help you through it ☺️ | |||
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"We’re waiting for Ben’s first biological meds, a long wait list here after years of trying and failing treatments. Methotrexate worked to reduce it for a while but his organs didn’t like it so came off while we wait for the biologicals. It’s probably the worst it’s ever been atm, really painful - especially as he works outside. With that a lot of bleeding. He’s really self conscious about it and someone asked at a club whether he’d be in the dungeon because they thought it was welts from a spanking. Other than that it doesn’t affect us too much because I’m there bigging him up but it does affect his confidence and he’s conscious of flakiness 😔 I feel you with that, I came of the methotrexate as it just made me ill and kept having to get called into hospital for tests. It has taken years where I am to even get started on the biologics and now I'm on to my 2nd one. First helped with the arthritis but not the skin. Sorry to hear someone asked him that about his skin, it seems to be what most idiots pick on here when I get a shitty message. Hope you get the biologics sorted soon ☺️" A dickhead will always find something to be nasty about. I hate that single women get these shitty responses (usually because they got rejected!) on here. Hope you reported him x | |||
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"We’re waiting for Ben’s first biological meds, a long wait list here after years of trying and failing treatments. Methotrexate worked to reduce it for a while but his organs didn’t like it so came off while we wait for the biologicals. It’s probably the worst it’s ever been atm, really painful - especially as he works outside. With that a lot of bleeding. He’s really self conscious about it and someone asked at a club whether he’d be in the dungeon because they thought it was welts from a spanking. Other than that it doesn’t affect us too much because I’m there bigging him up but it does affect his confidence and he’s conscious of flakiness 😔 I feel you with that, I came of the methotrexate as it just made me ill and kept having to get called into hospital for tests. It has taken years where I am to even get started on the biologics and now I'm on to my 2nd one. First helped with the arthritis but not the skin. Sorry to hear someone asked him that about his skin, it seems to be what most idiots pick on here when I get a shitty message. Hope you get the biologics sorted soon ☺️ A dickhead will always find something to be nasty about. I hate that single women get these shitty responses (usually because they got rejected!) on here. Hope you reported him x" Didn't think I could report for that? They took themselves out anyway profile was gone a week later. Either way, psoriasis flare up or not I'm still here hoping to find the decent ones 🤞🏻 | |||
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"So I've had psoriasis since I was 5, but it has never been as that bad until about 4 years ago. On another biologic to see if it works 🤞🏻 Be keen to hear from anyone else who has it what they are on/has tried and helped. Also, how has your psoriasis and/or psoriatic arthritis affected your swinging? I get really self conscious when the flare up is bad. " Hi ive also got both.. im now on Pyzchive ( ustekinumab) 90mg every 12 weeks. Has helped with the arthritis. Ive tried multiable things over the years.still have bad days but nowhere near as bad so yes it helps.. the psoriasis ive lost count of different creams but best by far is Enstilar foam wish i found it years ago..speak to your dr but you have to keep doing it but it works.. and to cover ip i use a finish concealer from mac and they get the best match for your skin type and blends right in.. they also keep the details of item with your details so you can go in and get more. Hope this helps need anymore info feeel free to ask. Good luck | |||
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"So I've had psoriasis since I was 5, but it has never been as that bad until about 4 years ago. On another biologic to see if it works 🤞🏻 Be keen to hear from anyone else who has it what they are on/has tried and helped. Also, how has your psoriasis and/or psoriatic arthritis affected your swinging? I get really self conscious when the flare up is bad. " Like you had it since childhood as you know they try all sorts of lotions and potions been in hospital many times. The light treatment helps for short while but comes back. I was on tablets for long time cannot recall name tbh then they put me on injections and generally help downside are nausea the injections are also used for chemo Currently on WEGENSY or name like that Psoriatic arthritis is horrible affecting my fingers badly and couple of toes | |||
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"I've witnessed my dad for 28 years deal with this, he's dealt with it for 60 years, he's had acid baths, every procedure possible, he stopped one thing Dairy products... Dairy products almost took my dad to suicide, please try cut milk. Cheese, anything dairy out of your life and watch the difference " My partner went fairy free for over 2 years it didn't work with him | |||
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"I also suffer with this, mostly on arms and knees. I'm very conscious of it and it does get me down. Due to start Methotrexate soon but now having second thoughts" Sorry was supposed to be responding to this I use it and have never had any problems with it. I’d give it a try and see if it works for you. Some it does, some it doesn’t. I’ve literally never felt sick whether taking it in the morning or night etc. but if I take it in the morning, I am exhausted at night. | |||
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"I also suffer with this, mostly on arms and knees. I'm very conscious of it and it does get me down. Due to start Methotrexate soon but now having second thoughts Sorry was supposed to be responding to this I use it and have never had any problems with it. I’d give it a try and see if it works for you. Some it does, some it doesn’t. I’ve literally never felt sick whether taking it in the morning or night etc. but if I take it in the morning, I am exhausted at night." Ty x | |||
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"I have found this thread very interesting. I had psoriasis for as long as I can remember. Then 10 years ago my brother died suddenly I devastated we suffered extreme children abuse as children together, he was my witness as I was his. At this time my uncle our abuser contacted the family saying he wanted to attend the funeral! I didn't want that nor did my late brother partner. We conceded if he wanted to pay his respects then do so but then fuck off. He attended the funeral but gloated and didn't seem at all remorseful about his abuse of us. I drank too much and the next morning report the ra£e and abuse of 40 odd years ago. The police were supportive and the CPS prosecuted, eventhough the msin victim was dead. He eventually received 14 yrs in jail. What surprised me and still does was that psoriasis on both calfs of legs had completely cleared in about 18th months from my brothers death to sentencing. I so glad it has I have cut ties with my family now as they were not at all supportive . Just not sure of the reasons of the clearance. " I’m so sorry to read about the loss of your brother and for the abuse you both suffered. Absolutely amazing you felt able to report it and that CPS prosecuted - and he got the time he deserved! I’m sorry your family weren’t supportive - fuck them! Psoriasis can be triggered by stress, maybe the weight lifted meant your nervous system was able to settle down and the autoimmune issue cleared? Interesting! | |||
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"Totally with you on the methotrexate, it's a horrible med, wipes you out and horrible nausea, I was prescribed it for arthritis but took my self of it, managed to get on Amjavita which is brilliant no side affects and no joint pain, I believe it also works on skin conditions.. enquire and see what they docs say." . Methotrexate I was on for few years and despite the side effects it helped, however it became less effective and now on injections called Wezegny. To compound this I had Sepsis and very lucky to be here and had numerous episodes since. My immune system in effect looked any infection is a danger timing is key. | |||
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"I have found this thread very interesting. I had psoriasis for as long as I can remember. Then 10 years ago my brother died suddenly I devastated we suffered extreme children abuse as children together, he was my witness as I was his. At this time my uncle our abuser contacted the wanted to attend the funeral! I didn't want that nor did my late brother partner. We conceded if he wanted to pay his respects then do so but then fuck off. He attended the funeral but gloated and didn't seem at all remorseful about his abuse of us. I drank too much and the next morning report the ra£e and abuse of 40 odd years ago. The police were supportive and the CPS prosecuted, eventhough the msin victim was dead. He eventually received 14 yrs in jail. What surprised me and still does was that psoriasis on both calfs of legs had completely cleared in about 18th months from my brothers death to sentencing. I’m so sorry to read about the loss of your brother and for the abuse you both suffered. Absolutely amazing you felt able to report it and that CPS prosecuted - and he got the time he deserved! I’m sorry your family weren’t supportive - fuck them! Psoriasis can be triggered by stress, maybe the weight lifted meant your nervous system was able to settle down and the autoimmune issue cleared? Interesting!" Thank you for your reply, yes the weight was lifted I was able to see I had nothing to be ashamed about. The police and support groups were excellent in my case, so I am grateful for that. | |||
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"I also suffer with this, mostly on arms and knees. I'm very conscious of it and it does get me down. Due to start Methotrexate soon but now having second thoughts" They monitor bloods very well on this so any changes and they pull you off the meds very quickly. Don’t think I lasted 1 week on methotrexate | |||
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"A long term psoriasis sufferer here. Had it for years. Tried various lotion and potions and creams. Nothing seems to shift. It keeps it from getting worse but doesn't seem to actually get better. Then I discovered holidays. Sun and UV. Want away 4 times last year . And the smaller less developed patches. Gone. The longer crustier patch if you like were better for a while. So much so. After chatting to the hospital and doctor I've been and purchased a UV machine so I can sit and zap myself at home. Defo seems to be working for me.. so far" Would you mind telling us make/model of the machine you bought please? I get some patches which are well controlled with betnovate. But l agree with you that sunshine is the best medicine I’ve found. Which gives a nice reason to visit a nudist beach. | |||
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"You could consider a liver and gall bladder flush. Almost every person with a skin disease also has intestinal problems and impure blood. These are mainly caused by gallstones in the gallbladder and liver which can cause problems with the lymphatic system, skin and other dis-ease etc etc. Nothing to loose by trying it. ,🙏" Don't you think that doctors dermatologists would recommend this? They haven't cause it's not been proven to work. My partner has psoriasis and has had it since the age of 11 now 43 he has gone on numerous detox plans and cut fairy from diet nothing worked | |||
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"You could consider a liver and gall bladder flush. Almost every person with a skin disease also has intestinal problems and impure blood. These are mainly caused by gallstones in the gallbladder and liver which can cause problems with the lymphatic system, skin and other dis-ease etc etc. Nothing to loose by trying it. ,🙏" LOL | |||
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"So I've had psoriasis since I was 5, but it has never been as that bad until about 4 years ago. On another biologic to see if it works 🤞🏻 Be keen to hear from anyone else who has it what they are on/has tried and helped. Also, how has your psoriasis and/or psoriatic arthritis affected your swinging? I get really self conscious when the flare up is bad. " Stress is a factor, use simple soaps and shampoo, expensive ones have to much perfume in which aggravates it. Apply moisturizer twice a day, rub a small amount in thoroughly. See a skin specialist not a GP it makes a world of difference. I was very bad in my twenties but now can easily control it, drugs do not work. Bath or shower daily and steer clear of strong aftershave and washing powder..I use SMOL. | |||
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"When the liver is congested it's unable to do its job properly, including keeping the lymphatic system clear. There are many things the medical industry don't tell, they would loose customers if they did. Just because they haven't mentioned it doesn't mean it doesn't work does it? I used to get patches on my chest, legs and one arm, all gone, my daughter no longer has eczema which she's had since a child. It's up to you, keep listening to your GP etc that's obviously helped so much that your all taking pharma medication that isn't working and your all moaning about side affects. The liver and gall bladder flush uses no medication. Enjoy your suffering. " I’m doing just fine with my meds, thank you for asking | |||
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"Had UV treatments for a few weeks which seemed to help. But it’s only a temporary measure. Had it for so long now I couldn’t really care what others think. I used to wear hats, jeans and jumpers in the summer as I was so self conscious. Got appointment with hospital to discuss methotrexate. So interesting to hear how it’s effecting others. Heard there were injections available that also help." Methotrexate has been a game changer for my other half you have to have regualblood teat to check liver function you need to watch what you drink and stay out of the sun or make sure you wear a strong sun cream if you do go out in it. His body is now at least 95% clear of psoriasis | |||
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"Had UV treatments for a few weeks which seemed to help. But it’s only a temporary measure. Had it for so long now I couldn’t really care what others think. I used to wear hats, jeans and jumpers in the summer as I was so self conscious. Got appointment with hospital to discuss methotrexate. So interesting to hear how it’s effecting others. Heard there were injections available that also help. Methotrexate has been a game changer for my other half you have to have regualblood teat to check liver function you need to watch what you drink and stay out of the sun or make sure you wear a strong sun cream if you do go out in it. His body is now at least 95% clear of psoriasis " Just been prescribed this. In terms of alcohol did it change the consumption much? | |||
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"Had UV treatments for a few weeks which seemed to help. But it’s only a temporary measure. Had it for so long now I couldn’t really care what others think. I used to wear hats, jeans and jumpers in the summer as I was so self conscious. Got appointment with hospital to discuss methotrexate. So interesting to hear how it’s effecting others. Heard there were injections available that also help. Methotrexate has been a game changer for my other half you have to have regualblood teat to check liver function you need to watch what you drink and stay out of the sun or make sure you wear a strong sun cream if you do go out in it. His body is now at least 95% clear of psoriasis Just been prescribed this. In terms of alcohol did it change the consumption much?" He avoids spirits and maybe has a few beers now and them | |||
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"I was told milk free diet might help well it works for someone i know " Didn't work for my partner he went dairy free for 2 years no change in skin | |||
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"We’re waiting for Ben’s first biological meds, a long wait list here after years of trying and failing treatments. Methotrexate worked to reduce it for a while but his organs didn’t like it so came off while we wait for the biologicals. It’s probably the worst it’s ever been atm, really painful - especially as he works outside. With that a lot of bleeding. He’s really self conscious about it and someone asked at a club whether he’d be in the dungeon because they thought it was welts from a spanking. Other than that it doesn’t affect us too much because I’m there bigging him up but it does affect his confidence and he’s conscious of flakiness 😔 " I hope the biologics work for your hubby as well as they did on my daughter's severe eczema -completely cleared it. She also was on methotrexate before. | |||
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"Just a wee update. Thanks for everyone that responded on this thread, I've never actually known anyone with it before and was good to hear from you all. I have not long taken my 2nd injection of wezenla and my skin is doing good. The plaques have gone, still have discoloration but I can't remember the last time my skin was this smooth! Not had any issues with the arthritis yet either and not any bad side effects (so far!) " Thats great news | |||
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"Happy to discuss the arthritis side privately. What makes you believe you have the arthritis? Is it diagnosed by a consultant?" As mentioned previously yes I am under the care of a specialist for both aspects of the psoriasis and the arthritis. | |||
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"So I've had psoriasis since I was 5, but it has never been as that bad until about 4 years ago. On another biologic to see if it works 🤞🏻 Be keen to hear from anyone else who has it what they are on/has tried and helped. Like you I have had psoriasis since I was a toddler, quite a few years ago in Quest swingers club in Leeds and got chatting to a couple where the lady suffered with Psoriasis so had good natter about it because it was good to know I was not only swinger with it and we had some rumpy pumpy and so glad we met. On and off for years had been hospitalised with it. Currently doing am on injection of Wesegny and clear get the odd bit on skin. As for psoriatic arthritis that is horrendous both feet and toes abd couple of fingers each hand affected. Also, how has your psoriasis and/or psoriatic arthritis affected your swinging? I get really self conscious when the flare up is bad. " | |||
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"Started methotrexate literally to tonight. Fingers crossed it does something. It’s not been bad for a few years now. But just recently started getting a few patches on the back of my calfs. Elbows and knees are just standard parts to have for me. I remember when it first started I would leave the house unless I was fully covered. Hat and all. Even in the summer. Yet to see if it effects meets on here as I haven’t had any Fingers crossed for you with the methotrexate. I’m on week 3 of it and I’ve been fine. Week 1 was awful but I begin to wonder if that was more because I maybe picked up one if the many bugs that seem to have been doing the rounds. Weeks 2 and 3 have been absolutely fine. Yet to gave results of blood tests to see how kidneys and liver are coping. My psoriasis has stayed pretty clear we it’s little zero base and zero dovobet. And my knees ( psoriatic arthritis there being the reason for the medication) has completely cleared up. | |||
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"Is it the tablet version you have and are you taking folic acid with it?" Yes to both. Currently 10 methotrexate tablets per week. | |||
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"Do you think just CBD would do the same?" It probably would help people take cbd for other pain conditions | |||
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"Do you think just CBD would do the same?" Yes definitely I think it would work I don't take the tablets or injections anymore and just use the 420 works wonders for me | |||
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"So I've had psoriasis since I was 5, but it has never been as that bad until about 4 years ago. On another biologic to see if it works 🤞🏻 Be keen to hear from anyone else who has it what they are on/has tried and helped. Also, how has your psoriasis and/or psoriatic arthritis affected your swinging? I get really self conscious when the flare up is bad. " I’ve been on Imraldi for nearly six years - you wouldn’t know I had it, and I had severe psoriasis before that. My right arm was one giant plaque (or looked it anyway) Benepali worked for about a year, Stelara wasn’t effective enough | |||
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"Also if anyone needs any advice any questions on psoriasis please message me, I've witnessed my dad for many years, I've seen him fight and try everything possible for years... At 63 he's now clear so if I can give anyone any advice as my dad wouldn't wish it on his worst enemy... Please message me " anyone else know if this is true, I hope not because I love dairy, but if giving it up got rid of my psoriasis I'd give it up | |||
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"D has psoriasis and it never ceases to impress me at clubs and even in Cap how he owns it.. We've had the comments that I should take it easy with the paddle etc (unlikely 😉) People in vanilla life making assumptions he doesn't wash enough or is an alcoholic as his face reddens occasionally in areas. He has had and now refuses the steroid ointments, suffered skin thinning and now uses coconut oil for longer easing of flair ups, but as a poster above mentioned his is stress cortisol related we feel and we're looking at ways to help that ATM. His worst thing is in his ears, where you are damned if you do, dammed if you don't with trying to manage it while avoiding ear infections, which are quite common. To me he's still fucking sexy!! 😈🔥 He actually thanks it in a way as people don't believe he's any older than me, basically because he can't remember not being able to get away without moisturising, but it can really affect people's confidence and I think that's probably worse than the discomfort for many. We'll be looking at some of the contributions with interest and thank you all for the honesty! Keep naughty 😘" D with you buddy, the ear are fucking annoying. All the best 👊 | |||
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