FabSwingers.com mobile

Join us FREE, we're FREE to use

Web's largest swingers site since 2006.

Already registered?
Login here

Back to forum list
Back to Virus

Crohns

Jump to newest
 

By *moothshaft OP   Man
22 weeks ago

Coventry

Mainly for the ladies really.

My wife has had this disease for many years. It's settled down a lot now from the first few years, she was on all sorts of meds including steroids, but now takes no meds at all and just lives with it.

But what this wretched illness has left her with are recto-vaginal fistula's. Those who know, know.

Our sex life has been non existent for a decade now because she's in a bit of a mess down there and embarrassed about it.

Just wondering if we're on our own with this on here?

Reply privatelyReply in forumReply +quote
 

By *oml and mwgcCouple
22 weeks ago

oadby

I'm sure there must be others with the same issues. Has her GP been any help with it ?

Reply privatelyReply in forumReply +quote
 

By *attoo_PeachCouple
22 weeks ago

Norfolk

feel for her, its a horrible disease and the way the NHS look after patients with conditions is disgusting, very neglectful of them in all honesty

Reply privatelyReply in forumReply +quote
 

By (user no longer on site)
22 weeks ago


"Mainly for the ladies really.

My wife has had this disease for many years. It's settled down a lot now from the first few years, she was on all sorts of meds including steroids, but now takes no meds at all and just lives with it.

But what this wretched illness has left her with are recto-vaginal fistula's. Those who know, know.

Our sex life has been non existent for a decade now because she's in a bit of a mess down there and embarrassed about it.

Just wondering if we're on our own with this on here?"

It's my understanding that active disease is the underlying cause of th fistulas.

when the disease is in remission for several years th fistulas should clear themselves up.

There are also operations/procedures one can have done

Does she not have a specialist gastro to discuss?

Reply privatelyReply in forumReply +quote
 

By (user no longer on site)
22 weeks ago

You have my sincere sympathies, it's a wretched condition

Reply privatelyReply in forumReply +quote
 

By *izandpaulCouple
22 weeks ago

merseyside

She needs a referral from her GP.

Very rarely will these be sorted without surgical intervention.

Maybe even go to a private clinic for either/or a private consultation/second opinion or for the costs for private surgery.

I tend to always use our local Spire for second opinions, usually only around £100 for a basic consultation. Money well spent if it puts your mind at ease.

For me, the first port of call would be GP to start the ball rolling.

Good luck.

Reply privatelyReply in forumReply +quote
 

By *inkyandthebrain2023Couple
22 weeks ago

Cheshire

Just popping in a bookmark

Reply privatelyReply in forumReply +quote
 

By *erkshire8299Man
18 weeks ago

slough

I have had Colitis for around a decade now...got a bit worse in the past summer...my surgeon has advised colon surgery with stoma bag ...gonna have a face to face with him on Monday 5 Jan...thankfully I am retired ..

Maybe has to be done for the long term as colon as he said I may get cancer in future if not done in 2026

Reply privatelyReply in forumReply +quote
 

By *ountrylad82Man
18 weeks ago

Alton hampshire

Hi mate its any help ive had colitis for years and have a stoma if youd like to talk please just message

Reply privatelyReply in forumReply +quote
 

By *ettieTV/TS
18 weeks ago

London

I have a friend who see's a Gastro Consultant call Singh in St.Georges Tooting. He tries to treat things with drugs and works with dietician to cut out certain foods which promote outbreaks. Not a miracle worker but it works for some. My sister has Ulcerative Colitis for 30 years. Fistula, how awful. Best of luck to your wife.

Reply privatelyReply in forumReply +quote
 

By (user no longer on site)
17 weeks ago


"feel for her, its a horrible disease and the way the NHS look after patients with conditions is disgusting, very neglectful of them in all honesty"

Defo neglectful, I had spinal surgery last year and

No after care at all, backs been paying up again and now waiting for referral again.

Reply privatelyReply in forumReply +quote
 

By *nly2getherCouple
17 weeks ago

East London / Essex

Crohns is an awful disease, but if not too far advanced can be “helped” by diet and drugs.

Ask about the FODMAP diet, all foods are graded red, amber and green. You can eat anything green, occasional ambers and avoid all reds. Also avoid things like onion - that tends to really exacerbate it.

Ask your GP about Adalumimab - it’s been an absolute game changer for my son.

Good luck x

Reply privatelyReply in forumReply +quote
 

By *moothshaft OP   Man
17 weeks ago

Coventry

Thank you for all your advice. Honestly, it's soooo much appreciated.

She's had this for 20 odd years now, and has settled down considerably. Yes, she has to be careful what she eats, but manageable.

Thank you all again.

Reply privatelyReply in forumReply +quote
 

By *3xymamaWoman
17 weeks ago

...., Wales


"Thank you for all your advice. Honestly, it's soooo much appreciated.

She's had this for 20 odd years now, and has settled down considerably. Yes, she has to be careful what she eats, but manageable.

Thank you all again. "

Does your wife have a Gastro consultant? Maybe see if she could have an appointment with colorectal consultant to discuss treatment of the fistula.

Reply privatelyReply in forumReply +quote
 

By *moothshaft OP   Man
17 weeks ago

Coventry


"Thank you for all your advice. Honestly, it's soooo much appreciated.

She's had this for 20 odd years now, and has settled down considerably. Yes, she has to be careful what she eats, but manageable.

Thank you all again.

Does your wife have a Gastro consultant? Maybe see if she could have an appointment with colorectal consultant to discuss treatment of the fistula. "

She had the fistula dealt with years ago.

The problem with fistula's are that when the 'tunnel' is repaired and blocked, it burrows another one elsewhere.

Terrible thing. X

Reply privatelyReply in forumReply +quote
 

By *luepillguyMan
16 weeks ago

Rugeley

The NHS care standards in north staffs are awful , there are a lot of "nurses" and doctors that shouldnt be in the care system

But because of staff shortages theyll employ anyone just to fill a gap.

My brother spent 3 months in hospital last year and had to have 4 major surgeries

The nurses were a disgrace and so neglectful they spend a lot of time chit chatting

And last year I saw first hand how bone idle some of them are

I was visiting my brother on the critical care ward at royal stoke hospital and patients were buzzing for help

The nurses were busy putting up christmas decorations etc around the staff desk and ignored people calling for help

I overheard Them talking about their social lives and where theyre going on holiday etc they just seemed to do the bare minimum where work was concerned

A lot of lazy people in the system

Then there were others that were very good but those were few and far between

Its a horrible place to be if you're in for a long time like my brother was

You probably wouldnt notice it if you were only in for a couole of days.

Reply privatelyReply in forumReply +quote
 

By *hirleyMan
16 weeks ago

Wine bar


"The NHS care standards in north staffs are awful , there are a lot of "nurses" and doctors that shouldnt be in the care system

But because of staff shortages theyll employ anyone just to fill a gap.

My brother spent 3 months in hospital last year and had to have 4 major surgeries

The nurses were a disgrace and so neglectful they spend a lot of time chit chatting

And last year I saw first hand how bone idle some of them are

I was visiting my brother on the critical care ward at royal stoke hospital and patients were buzzing for help

The nurses were busy putting up christmas decorations etc around the staff desk and ignored people calling for help

I overheard Them talking about their social lives and where theyre going on holiday etc they just seemed to do the bare minimum where work was concerned

A lot of lazy people in the system

Then there were others that were very good but those were few and far between

Its a horrible place to be if you're in for a long time like my brother was

You probably wouldnt notice it if you were only in for a couole of days.

"

What does this have to do with crohns?

Reply privatelyReply in forumReply +quote
 

By *luepillguyMan
16 weeks ago

Rugeley


"The NHS care standards in north staffs are awful , there are a lot of "nurses" and doctors that shouldnt be in the care system

But because of staff shortages theyll employ anyone just to fill a gap.

My brother spent 3 months in hospital last year and had to have 4 major surgeries

The nurses were a disgrace and so neglectful they spend a lot of time chit chatting

And last year I saw first hand how bone idle some of them are

I was visiting my brother on the critical care ward at royal stoke hospital and patients were buzzing for help

The nurses were busy putting up christmas decorations etc around the staff desk and ignored people calling for help

I overheard Them talking about their social lives and where theyre going on holiday etc they just seemed to do the bare minimum where work was concerned

A lot of lazy people in the system

Then there were others that were very good but those were few and far between

Its a horrible place to be if you're in for a long time like my brother was

You probably wouldnt notice it if you were only in for a couole of days.

What does this have to do with crohns?"

Sorry thats what my eldest brother has had for 30 years its really been awful for the past 5 years and it nearly killed him last year he had to have two emergency operations as he got sepsis twice in his pelvis

Crohns is horrible and a lot of the time it gets worse with age

Reply privatelyReply in forumReply +quote
 

By *100Man
16 weeks ago

Essex

My wife’s had Crohns since 1998 it started just after we got married so i can understand what you’ve been through

Reply privatelyReply in forumReply +quote
 
 

By *luepillguyMan
16 weeks ago

Rugeley

Its a horrible illness and really gets you down the fatigue ithere seems no end to it at times

Especially if you're hospitalised and fed through tubes etc

Reply privatelyReply in forumReply +quote
Post new Message to Thread
back to top