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"Another type 2 here ! Diagnosed two and a bit years ago now ? Numbers sat at 50 (118 at diagnosis) I also have arthritis I’m stable according to my nurse but I want to be lower than I am . Having all Sorts of fun with the nhs trying to get them to listen to me Any one else has the same problem with the nhs not listening to the needs of the patient " 50mg/dl ? | |||
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"Another type 2 here ! Diagnosed two and a bit years ago now ? Numbers sat at 50 (118 at diagnosis) I also have arthritis I’m stable according to my nurse but I want to be lower than I am . Having all Sorts of fun with the nhs trying to get them to listen to me Any one else has the same problem with the nhs not listening to the needs of the patient 50mg/dl ?" Currently hba1c is sat at 50 Daily sugars are all over the place lol | |||
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"Another type 2 here ! Diagnosed two and a bit years ago now ? Numbers sat at 50 (118 at diagnosis) I also have arthritis I’m stable according to my nurse but I want to be lower than I am . Having all Sorts of fun with the nhs trying to get them to listen to me Any one else has the same problem with the nhs not listening to the needs of the patient " Oh God yes. The good news for you as you are newly diagnosed you have a chance of putting it into remission before it damages your body. There's a whole NHS course about how to do it. | |||
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 I know that is never a good sign, so have seen that it could be protein in the urine and related to kidney malfunction. I am beside myself with worry now.
I’ve contacted GP and was given a container to take a sample in the morning. Wanted to know if this is something that anyone else here has experienced? I am really scared  | |||
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"So glad for this thread. I’ve just been diagnosed with diabetes 2 months ago. Went to see diabetes nurse, I wanted to try to get my blood sugar controlled without medication as I am just over the threshold at 49 Hb1ac. I’ve lost 5kg since diagnosis… been feeling ok mostly but since yesterday I had some bubbles/froth in my wee I know that is never a good sign, so have seen that it could be protein in the urine and related to kidney malfunction. I am beside myself with worry now.
I’ve contacted GP and was given a container to take a sample in the morning. Wanted to know if this is something that anyone else here has experienced? I am really scared "First of all, don't panic. It will only upset you and your body more. Check out the forums on diabetes UK for a wide variety of topics that will give you a better idea of what others have experienced. Anything with urine involved should be helped by increasing water intake. Have you checked for ketones?  | |||
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"So glad for this thread. I’ve just been diagnosed with diabetes 2 months ago. Went to see diabetes nurse, I wanted to try to get my blood sugar controlled without medication as I am just over the threshold at 49 Hb1ac. I’ve lost 5kg since diagnosis… been feeling ok mostly but since yesterday I had some bubbles/froth in my wee I know that is never a good sign, so have seen that it could be protein in the urine and related to kidney malfunction. I am beside myself with worry now.
I’ve contacted GP and was given a container to take a sample in the morning. Wanted to know if this is something that anyone else here has experienced? I am really scared "Try not to worry. It's very unlikely to be kidney damage as that takes a while to develop. You are right to get tested though. But I'm sure the results will be nothing. Keep us updated. | |||
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"Many years ago I was wrongly diagnosed and Type II diabetes after a few years I became a type one I’m use libra 2 plus sensor I do a lot of exercise on a regular daily basis. If u want to join me I’m now down to 11. It needs to come down a little bit more. My level" Type 1 is sometimes misdiagnosed as type 2 especially if you get diagnosed later in life. I presume you are on insulin. | |||
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"The problem is they have never offered me any courses and just want me to continue taking metformin 1g a day for the rest of my natural lol They tell me to loose weight as that will help the arthritis but hit a plateau a few months ago so asked about munjaro or even a referral to weight management team - nope keep taking the pills was the response . Ironic isn’t it I’m trying to help myself but they point blank refuse to help me to help Myself " That's so annoying. Im on Ozempuc because it also helps control blood glucose. I would push your doctor harder and even consider changing practice as ozempuc is regularly prescribed for diabetics. | |||
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"Many years ago I was wrongly diagnosed and Type II diabetes after a few years I became a type one I’m use libra 2 plus sensor I do a lot of exercise on a regular daily basis. If u want to join me I’m now down to 11. It needs to come down a little bit more. My level Type 1 is sometimes misdiagnosed as type 2 especially if you get diagnosed later in life. I presume you are on insulin." Currently hba1c is sat at 11 | |||
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"11 ? Pretty sure that’s not good either is it " No higher than they like to see.4 to 5 is optimal but everyone has somewhat different goals. | |||
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"Hey all type 1 here " Hi Eva all types welcome here. | |||
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"Many years ago I was wrongly diagnosed and Type II diabetes after a few years I became a type one I’m use libra 2 plus sensor I do a lot of exercise on a regular daily basis. If u want to join me I’m now down to 11. It needs to come down a little bit more. My level Type 1 is sometimes misdiagnosed as type 2 especially if you get diagnosed later in life. I presume you are on insulin. Currently hba1c is sat at 11 " Show off. | |||
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"11 ? Pretty sure that’s not good either is it No higher than they like to see.4 to 5 is optimal but everyone has somewhat different goals." Type 1s generally have higher blood sugars than type 2s. And all sorts of things affect it. Also as a type 1 they go mad if the hba1c is too low, I think an hba1c of 4 would mean your average blood sugar reading was 2. Something which is way too low | |||
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"11 ? Pretty sure that’s not good either is it No higher than they like to see.4 to 5 is optimal but everyone has somewhat different goals. Type 1s generally have higher blood sugars than type 2s. And all sorts of things affect it. Also as a type 1 they go mad if the hba1c is too low, I think an hba1c of 4 would mean your average blood sugar reading was 2. Something which is way too low " I guess because if the risk of hypos. For typec2 they love to see 4vto 5. My eye doctor refused to do cataract surgery until I had it under 7. | |||
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"11 ? Pretty sure that’s not good either is it No higher than they like to see.4 to 5 is optimal but everyone has somewhat different goals. Type 1s generally have higher blood sugars than type 2s. And all sorts of things affect it. Also as a type 1 they go mad if the hba1c is too low, I think an hba1c of 4 would mean your average blood sugar reading was 2. Something which is way too low I guess because if the risk of hypos. For typec2 they love to see 4vto 5. My eye doctor refused to do cataract surgery until I had it under 7." As a rule, the NHS won’t do surgery if your hba1c is 70+, which is 8.6. Can I ask where you’re based that you’re still doing hba1c in percentages? Are you in the states? | |||
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"11 ? Pretty sure that’s not good either is it No higher than they like to see.4 to 5 is optimal but everyone has somewhat different goals. Type 1s generally have higher blood sugars than type 2s. And all sorts of things affect it. Also as a type 1 they go mad if the hba1c is too low, I think an hba1c of 4 would mean your average blood sugar reading was 2. Something which is way too low I guess because if the risk of hypos. For typec2 they love to see 4vto 5. My eye doctor refused to do cataract surgery until I had it under 7. As a rule, the NHS won’t do surgery if your hba1c is 70+, which is 8.6. Can I ask where you’re based that you’re still doing hba1c in percentages? Are you in the states? " Sorry yes I used to live in the states but I think it was thinking more about my daily one. So yes for a1c 40 to 50. | |||
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"11 ? Pretty sure that’s not good either is it No higher than they like to see.4 to 5 is optimal but everyone has somewhat different goals. Type 1s generally have higher blood sugars than type 2s. And all sorts of things affect it. Also as a type 1 they go mad if the hba1c is too low, I think an hba1c of 4 would mean your average blood sugar reading was 2. Something which is way too low I guess because if the risk of hypos. For typec2 they love to see 4vto 5. My eye doctor refused to do cataract surgery until I had it under 7. As a rule, the NHS won’t do surgery if your hba1c is 70+, which is 8.6. Can I ask where you’re based that you’re still doing hba1c in percentages? Are you in the states? Sorry yes I used to live in the states but I think it was thinking more about my daily one. So yes for a1c 40 to 50." No need to apologise! I grew up on % hba1c so when someone says “72” I still have to convert it back so it means something to me 🤣 | |||
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"No higher than they like to see.4 to 5 is optimal but everyone has somewhat different goals. My goal is to get it lower" Are you a type 1? Do you have a pump and a cgm? If I recommend asking for them | |||
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"11 ? Pretty sure that’s not good either is it No higher than they like to see.4 to 5 is optimal but everyone has somewhat different goals. Type 1s generally have higher blood sugars than type 2s. And all sorts of things affect it. Also as a type 1 they go mad if the hba1c is too low, I think an hba1c of 4 would mean your average blood sugar reading was 2. Something which is way too low I guess because if the risk of hypos. For typec2 they love to see 4vto 5. My eye doctor refused to do cataract surgery until I had it under 7. As a rule, the NHS won’t do surgery if your hba1c is 70+, which is 8.6. Can I ask where you’re based that you’re still doing hba1c in percentages? Are you in the states? Sorry yes I used to live in the states but I think it was thinking more about my daily one. So yes for a1c 40 to 50. No need to apologise! I grew up on % hba1c so when someone says “72” I still have to convert it back so it means something to me 🤣" I gave up trying to work it out. I just go with the double digits these days. 50 is good, whereas in the old days 8 was good. | |||
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"11 ? Pretty sure that’s not good either is it No higher than they like to see.4 to 5 is optimal but everyone has somewhat different goals. Type 1s generally have higher blood sugars than type 2s. And all sorts of things affect it. Also as a type 1 they go mad if the hba1c is too low, I think an hba1c of 4 would mean your average blood sugar reading was 2. Something which is way too low I guess because if the risk of hypos. For typec2 they love to see 4vto 5. My eye doctor refused to do cataract surgery until I had it under 7. As a rule, the NHS won’t do surgery if your hba1c is 70+, which is 8.6. Can I ask where you’re based that you’re still doing hba1c in percentages? Are you in the states? Sorry yes I used to live in the states but I think it was thinking more about my daily one. So yes for a1c 40 to 50. No need to apologise! I grew up on % hba1c so when someone says “72” I still have to convert it back so it means something to me 🤣" Same… when they told me mine is 52 I had to go and convert it back. | |||
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"Also type 1 here, not always well behaving though for various reasons "I'd advise taking more seriously now. It's later it bites you in the arse. And I'm speaking from experience. | |||
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"Also type 1 here, not always well behaving though for various reasons
I'd advise taking more seriously now. It's later it bites you in the arse. And I'm speaking from experience.
"Sadly brain chemistry is fickle and cannot be predicted  | |||
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"Also type 1 here, not always well behaving though for various reasons
I'd advise taking more seriously now. It's later it bites you in the arse. And I'm speaking from experience.
Sadly brain chemistry is fickle and cannot be predicted "I think what people don’t get until they live it is how many decisions and assessments and adjustments we are constantly making. This is throughout the day and often throughout the night too. Day after day, year after year, it never stops and we never get a break. No one can be perfect all the time. | |||
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"Also type 1 here, not always well behaving though for various reasons
I'd advise taking more seriously now. It's later it bites you in the arse. And I'm speaking from experience.
Sadly brain chemistry is fickle and cannot be predicted
I think what people don’t get until they live it is how many decisions and assessments and adjustments we are constantly making. This is throughout the day and often throughout the night too. Day after day, year after year, it never stops and we never get a break. No one can be perfect all the time."It's mentally exhausting. | |||
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"Also type 1 here, not always well behaving though for various reasons
I'd advise taking more seriously now. It's later it bites you in the arse. And I'm speaking from experience.
Sadly brain chemistry is fickle and cannot be predicted
I think what people don’t get until they live it is how many decisions and assessments and adjustments we are constantly making. This is throughout the day and often throughout the night too. Day after day, year after year, it never stops and we never get a break. No one can be perfect all the time."I'm type 2 but my dad is insulin dependent now after having Acute pancreatitis and he keeps telling me to do all I can to stage off going on to insulin because of the mental load it brings to everything. Plus the unpredictability of how and when spikes occur etc. I know you posted on the other thread that type 1's hate type 2's, which makes me sad, but I do understand how differently you have to manage things to control your sugar levels. I'm on 3 meds including mounjaro now and my recent hba1c has gone from 84 to 71 which is encouraging. Hopefully that, combined with a renewed focus on my diet and my continued activity levels will help bring it down further. | |||
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"I agree regarding the glucose monitor. Though I have not had one for ages. I wish they would provide them on the NHS. All my doctors surgery says is they dont care abiut shot term monotoring, just teh H1 blood test levels. I do not agree" Read the nice guidelines continues monitoring is now the standard. | |||
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" Read the nice guidelines continues monitoring is now the standard. " Will do | |||
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"Type 2 here, on metformin, click and jardience.test sugars are really controlled, but getting other complications, glaucoma signs, tight foreskin, up in the night for multiple pees, also had heart attack 10 years ago which adds up the medication. I'm 15st, but love food, unfortunately I don't help myself. " glic not click 🤣 | |||
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"Tight foreskin... eeek I did not know that was a complication in diabetes..." Yup. Loads of things. Even your teeth. Or well more the gums as when glucose levels change the guns swell etc. | |||
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"Continue monitoring is only standard for Type one not type 2 . For type two it’s only perceived I’d you require insulin Type two these days certainly locally hers in south wales you veg told not to even bother taking daily sugars with a finger prick tester - very much an approach from local healthcare system of just take the pills and get on with it sadly , even when you as the patient are doing everything you can to help yourself " Type 2 and regular testing is recommended here if you have other conditions aswell both of us have type 2 my husband is told to check his occasionally whers my im on different medication to him and I have other conditions that effect my insulin production so I have to test daily think its just different for everyone | |||
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"I bet none of you have got diabetes insipidus like me or even heard of it "What is "diabetes Insipidus"? | |||
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"am type 2 and have been for some 25 plus years. Pre-covid I was diagnosed with heart failure and cardiologist changed the diuretic dose levels and I lost 3 plus stone in weight. Down side is kidney damage so frequent blood tests and changes of drugs now have kidney issue under control but GP also insisted that I drink a minimum of 2-3 pints of water a day in addition to normal drinks. One pint has to be consumed when I first get up but the effort is worth it. Work with your GP and diabetic nurse and it helps. my pin prick bloods are done every other day and much better now than they have been in years. Due to heart issues and spinal issues exercise is hard but I still do a walk daily." Hey good on you. It isn't easy. | |||
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"Tight foreskin... eeek I did not know that was a complication in diabetes..." Yes super coomon I'm afraid | |||
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"Unbelievable what diabetes affects " E V E R Y T H I N B literally every cell in your body. | |||
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"Continue monitoring is only standard for Type one not type 2 . For type two it’s only perceived I’d you require insulin Type two these days certainly locally hers in south wales you veg told not to even bother taking daily sugars with a finger prick tester - very much an approach from local healthcare system of just take the pills and get on with it sadly , even when you as the patient are doing everything you can to help yourself " I self fund my cgm. Its not cheap but has been a game changer. | |||
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"I bet none of you have got diabetes insipidus like me or even heard of it "I have hence all types. | |||
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"Also type 1 here, not always well behaving though for various reasons
I'd advise taking more seriously now. It's later it bites you in the arse. And I'm speaking from experience.
Sadly brain chemistry is fickle and cannot be predicted
I think what people don’t get until they live it is how many decisions and assessments and adjustments we are constantly making. This is throughout the day and often throughout the night too. Day after day, year after year, it never stops and we never get a break. No one can be perfect all the time.
I'm type 2 but my dad is insulin dependent now after having Acute pancreatitis and he keeps telling me to do all I can to stage off going on to insulin because of the mental load it brings to everything. Plus the unpredictability of how and when spikes occur etc. I know you posted on the other thread that type 1's hate type 2's, which makes me sad, but I do understand how differently you have to manage things to control your sugar levels.
I'm on 3 meds including mounjaro now and my recent hba1c has gone from 84 to 71 which is encouraging. Hopefully that, combined with a renewed focus on my diet and my continued activity levels will help bring it down further. "Any and all improvements should be celebrated well done. | |||
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"Continue monitoring is only standard for Type one not type 2 . For type two it’s only perceived I’d you require insulin Type two these days certainly locally hers in south wales you veg told not to even bother taking daily sugars with a finger prick tester - very much an approach from local healthcare system of just take the pills and get on with it sadly , even when you as the patient are doing everything you can to help yourself I self fund my cgm. Its not cheap but has been a game changer." Me too & worth every penny  | |||
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"I bet none of you have got diabetes insipidus like me or even heard of it
I have hence all types. "Annoying ain’t it how did you end up with it? Apologies for being nosey I had a purity gland tumour when I was a kid that’s how I got it | |||
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"Type 2 here diagnosed last year hb1c was 118 I got it down to 58 in 3 months last check it was 38 lost a stone then docs put me on semaglutide I've lost 3 and a half stone so far on that " Similar story here but without the smegultide | |||
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😮💨 😮💨 😮💨
Sometimes (not always) there is still a bit of froth so I have set a Dr appointment anyway.
I am very low carb- and haven’t checked for ketones so it could be that but will tell the doctor!
Thanks everyone 😘 | |||
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"I had my wee tested and everything, everything came back normal!!! 😮💨 😮💨 😮💨
Sometimes (not always) there is still a bit of froth so I have set a Dr appointment anyway.
I am very low carb- and haven’t checked for ketones so it could be that but will tell the doctor!
Thanks everyone 😘 "Great news. | |||
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 )
So far so good, have lost 12kg and the Hb1ac is down to 37, but it does feel like it takes over everything. People always asking 'can you eat that'? If I'm with friends or family | |||
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"The problem is they have never offered me any courses and just want me to continue taking metformin 1g a day for the rest of my natural lol They tell me to loose weight as that will help the arthritis but hit a plateau a few months ago so asked about munjaro or even a referral to weight management team - nope keep taking the pills was the response . Ironic isn’t it I’m trying to help myself but they point blank refuse to help me to help Myself " There are currently very strict guidelines on prescribing mounjaro. You have to be over a certain bmi and also have to have tried at least 3 different diabetic medications that have either have not been tolerated or havent lowered your levels. If the metformin has brought your levels down you have no chance of getting mounjaro on the NHS. | |||
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"Just saying hi. I'm type 2, diagnosed in Jan this year. Hb1AC was at 54 but I have a once daily Metformin at breakfast and watching the diet. I opted for the metformin as I also have PCOS which apparently ups the chances of insulin resistance and a family history of Type 2. (Maybe if they'd taken the PCOS seriously I might have at least staved off the diabetes for a few more years! )
So far so good, have lost 12kg and the Hb1ac is down to 37, but it does feel like it takes over everything. People always asking 'can you eat that'? If I'm with friends or family "People thinking they know about what you should do is a pain sometimes. | |||
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"Find out i was type 2 beginning of the year after being on the therehold of 48 for years, finally it snuck up to 49, reasons unknown jump to 54 and ladt bloods its down to 50, on metformin, and waiting to go on a crazy 3 month road to remission course, but I have to get my BP under control first" I was on the threshold for many, many years- had PCOS from puberty until I had my first child at 31. A very traumatic and scary accident where I genuinely thought I was going to die last year tipped me over to 50. Might have been a coincidence but my blood sugar was through the roof in A&E, going back to normal levels within a few hours. It’s almost coming to 3 months since diagnosis for me and I think I’m making good progress. I am losing weight ridiculously slowly, but it is coming off. I am confident my HB1AC will be improved. I can’t afford Mounjaro for the rest of my life really so I am doing it old school haha. I really, really don’t want to go on Metformin. | |||
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"Many years ago I was wrongly diagnosed and Type II diabetes after a few years I became a type one I’m use libra 2 plus sensor I do a lot of exercise on a regular daily basis. If u want to join me I’m now down to 11. It needs to come down a little bit more. My level" Cut the sugar ou, eat less, exercise more, you life depends on it  | |||
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"Find out i was type 2 beginning of the year after being on the therehold of 48 for years, finally it snuck up to 49, reasons unknown jump to 54 and ladt bloods its down to 50, on metformin, and waiting to go on a crazy 3 month road to remission course, but I have to get my BP under control first I was on the threshold for many, many years- had PCOS from puberty until I had my first child at 31. A very traumatic and scary accident where I genuinely thought I was going to die last year tipped me over to 50. Might have been a coincidence but my blood sugar was through the roof in A&E, going back to normal levels within a few hours. It’s almost coming to 3 months since diagnosis for me and I think I’m making good progress. I am losing weight ridiculously slowly, but it is coming off. I am confident my HB1AC will be improved. I can’t afford Mounjaro for the rest of my life really so I am doing it old school haha. I really, really don’t want to go on Metformin. " You are right to avoid metformin. It was bloody awful when they put me on it to see if it would help my type 1. It didn't. My own analysis and increased testing alongside the sensor readings did. | |||
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"I've just been diagnosed last night with type 2. Wasn't overly unexpected as diabetes runs in my family but still a bit of a shock. Especially that I got the news from reading my test results on the NHS app rather than from any health professional - I guess that will come either today or on Tuesday. " Hugs I'm trying to avoid diabetes and heart disease as long as I possibly can as they run in my family along with mental illness. I'm already crazy. I was prediabetic at one point but that might have been my mental health meds. I'm convinced dementia is coming for me. This time last year I started to feel very unwell, especially with fatigue and took my hypochondriac self to the GP asking for a blood sugar test. He said um why do you need one? Your blood sugar is dropping every year. So I've now concluded it's the dreaded perimenoapuse..GP sent me to the chronic fatigue clinic instead. I have stevia in my tea and drink a lot of water but If i get diagnosed, I'm going to need a glucose monitor because with my brain fog..I can't remember anything. 
Swings and roundabouts now. Hope you can get it sorted out. | |||
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"I've just been diagnosed last night with type 2. Wasn't overly unexpected as diabetes runs in my family but still a bit of a shock. Especially that I got the news from reading my test results on the NHS app rather than from any health professional - I guess that will come either today or on Tuesday. Hugs I'm trying to avoid diabetes and heart disease as long as I possibly can as they run in my family along with mental illness. I'm already crazy. I was prediabetic at one point but that might have been my mental health meds. I'm convinced dementia is coming for me. This time last year I started to feel very unwell, especially with fatigue and took my hypochondriac self to the GP asking for a blood sugar test. He said um why do you need one? Your blood sugar is dropping every year. So I've now concluded it's the dreaded perimenoapuse..GP sent me to the chronic fatigue clinic instead. I have stevia in my tea and drink a lot of water but If i get diagnosed, I'm going to need a glucose monitor because with my brain fog..I can't remember anything.
Swings and roundabouts now. Hope you can get it sorted out."Thank you. Got a rather "matter of fact" phone call this morning, from a PA, to officially inform me about the diagnosis, let me know the options and what appointments I'm going to get. I guess diabetes nurse will be more specific. But no daily monitoring, which surprised me a bit. Also, I had none of the usual symptoms, the GP just sent me for "MOT". Fingers crossed for you. | |||
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"I've just been diagnosed last night with type 2. Wasn't overly unexpected as diabetes runs in my family but still a bit of a shock. Especially that I got the news from reading my test results on the NHS app rather than from any health professional - I guess that will come either today or on Tuesday. Hugs I'm trying to avoid diabetes and heart disease as long as I possibly can as they run in my family along with mental illness. I'm already crazy. I was prediabetic at one point but that might have been my mental health meds. I'm convinced dementia is coming for me. This time last year I started to feel very unwell, especially with fatigue and took my hypochondriac self to the GP asking for a blood sugar test. He said um why do you need one? Your blood sugar is dropping every year. So I've now concluded it's the dreaded perimenoapuse..GP sent me to the chronic fatigue clinic instead. I have stevia in my tea and drink a lot of water but If i get diagnosed, I'm going to need a glucose monitor because with my brain fog..I can't remember anything.
Swings and roundabouts now. Hope you can get it sorted out.
Thank you. Got a rather "matter of fact" phone call this morning, from a PA, to officially inform me about the diagnosis, let me know the options and what appointments I'm going to get. I guess diabetes nurse will be more specific. But no daily monitoring, which surprised me a bit. Also, I had none of the usual symptoms, the GP just sent me for "MOT".
Fingers crossed for you. "I was told I didn't need any daily monitoring as well, they seem to advise against unless you are on meds which can cause hypos. I need data to keep me on the straight and narrow so bought a monitor from Amazon for under £20 and just check periodically or if I feel ill. (Not advisable for everyone as it might worsen some people's anxiety). My reasoning being that if my glucose levels are OK, the Hb1Ac should come out OK when tested! Good luck - and don't forget to claim for free prescriptions if eligible xx | |||
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"I've just been diagnosed last night with type 2. Wasn't overly unexpected as diabetes runs in my family but still a bit of a shock. Especially that I got the news from reading my test results on the NHS app rather than from any health professional - I guess that will come either today or on Tuesday. Hugs I'm trying to avoid diabetes and heart disease as long as I possibly can as they run in my family along with mental illness. I'm already crazy. I was prediabetic at one point but that might have been my mental health meds. I'm convinced dementia is coming for me. This time last year I started to feel very unwell, especially with fatigue and took my hypochondriac self to the GP asking for a blood sugar test. He said um why do you need one? Your blood sugar is dropping every year. So I've now concluded it's the dreaded perimenoapuse..GP sent me to the chronic fatigue clinic instead. I have stevia in my tea and drink a lot of water but If i get diagnosed, I'm going to need a glucose monitor because with my brain fog..I can't remember anything.
Swings and roundabouts now. Hope you can get it sorted out.
Thank you. Got a rather "matter of fact" phone call this morning, from a PA, to officially inform me about the diagnosis, let me know the options and what appointments I'm going to get. I guess diabetes nurse will be more specific. But no daily monitoring, which surprised me a bit. Also, I had none of the usual symptoms, the GP just sent me for "MOT".
Fingers crossed for you.
I was told I didn't need any daily monitoring as well, they seem to advise against unless you are on meds which can cause hypos.
I need data to keep me on the straight and narrow so bought a monitor from Amazon for under £20 and just check periodically or if I feel ill. (Not advisable for everyone as it might worsen some people's anxiety). My reasoning being that if my glucose levels are OK, the Hb1Ac should come out OK when tested!
Good luck - and don't forget to claim for free prescriptions if eligible xx"Thank you. | |||
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"Find out i was type 2 beginning of the year after being on the therehold of 48 for years, finally it snuck up to 49, reasons unknown jump to 54 and ladt bloods its down to 50, on metformin, and waiting to go on a crazy 3 month road to remission course, but I have to get my BP under control first I was on the threshold for many, many years- had PCOS from puberty until I had my first child at 31. A very traumatic and scary accident where I genuinely thought I was going to die last year tipped me over to 50. Might have been a coincidence but my blood sugar was through the roof in A&E, going back to normal levels within a few hours. It’s almost coming to 3 months since diagnosis for me and I think I’m making good progress. I am losing weight ridiculously slowly, but it is coming off. I am confident my HB1AC will be improved. I can’t afford Mounjaro for the rest of my life really so I am doing it old school haha. I really, really don’t want to go on Metformin. " Stress affects my bg almost as much as chocolate. Driving is always a stressful thing for me so I always see a spike whilst driving. As a diabetic you should have no problems getting prescribed ozempic or mounjaro | |||
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"I've just been diagnosed last night with type 2. Wasn't overly unexpected as diabetes runs in my family but still a bit of a shock. Especially that I got the news from reading my test results on the NHS app rather than from any health professional - I guess that will come either today or on Tuesday. Hugs I'm trying to avoid diabetes and heart disease as long as I possibly can as they run in my family along with mental illness. I'm already crazy. I was prediabetic at one point but that might have been my mental health meds. I'm convinced dementia is coming for me. This time last year I started to feel very unwell, especially with fatigue and took my hypochondriac self to the GP asking for a blood sugar test. He said um why do you need one? Your blood sugar is dropping every year. So I've now concluded it's the dreaded perimenoapuse..GP sent me to the chronic fatigue clinic instead. I have stevia in my tea and drink a lot of water but If i get diagnosed, I'm going to need a glucose monitor because with my brain fog..I can't remember anything.
Swings and roundabouts now. Hope you can get it sorted out.
Thank you. Got a rather "matter of fact" phone call this morning, from a PA, to officially inform me about the diagnosis, let me know the options and what appointments I'm going to get. I guess diabetes nurse will be more specific. But no daily monitoring, which surprised me a bit. Also, I had none of the usual symptoms, the GP just sent me for "MOT".
Fingers crossed for you. "Hugs and Thanks. It's a journey so I guess we all have to buckle in. At this stage I'm looking to tie myself up in rope. lol! I'm learning shibari. | |||
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"Im type 2, and high cholesterol and blood pressure. Really bought my numbers down to start but have hit a brick wall " I hire a fitness trainer and/nutritionist for those brick walls. I did 8 weeks of weightlifting with a trainer once a week in June and July at my local leisure centre. It did improve my perimeno symptoms and it's keeping the high numbers at bay...for now. I'm starting another 12 week meno course at my leisure centre gym again. I cycle, swim and walk but fatigue stopped me. The weightlifting I can do without crashing in energy completely. I weigh the same but there has been a body recomp. December 2024 I was a size 20 and now I'm a size big 16. It's the only way I get out of walls. switching exercise routine or switching diet. I gained 30lbs and couldn't walk up a hill I used to run up for the first pandemic lockdown. The second lockdown I got a trainer twice a week and then I got an electric bike in 2022 to build up stamina. | |||
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"I have type 2, on metformin and stating, in control " Good. keep on keeping on in control. | |||
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"I'm one blood test away from officially being told I am not longer type 2. Long story short, got diagnosed a couple of years back...my own fault really. Fast forward to July last year and I was sick of myself. Saw something in the docs ref a type 2 remission program. I enquired, got on it and started in October last year. It was pretty brutal, first 3 months is total food replacement, soups and shakes, but my god does it work. I lost 7.5st in 3 months. HB1AC is now down to late 30's, I've stopped the Metformin and just waiting on the last blood test. It is possible." great news! One of my therapists went on that meal replacement through the GP for diabetes and boy was he crabby ...more crabby than us nutcases. Lol! But it works and he changed his lifestyle and switched to less stressful therapy work. We burn out our therapists, unfortunately, so they often have to stop and do their own self care. | |||
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R xxx | |||
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"I'm one blood test away from officially being told I am not longer type 2. Long story short, got diagnosed a couple of years back...my own fault really. Fast forward to July last year and I was sick of myself. Saw something in the docs ref a type 2 remission program. I enquired, got on it and started in October last year. It was pretty brutal, first 3 months is total food replacement, soups and shakes, but my god does it work. I lost 7.5st in 3 months. HB1AC is now down to late 30's, I've stopped the Metformin and just waiting on the last blood test. It is possible. great news! One of my therapists went on that meal replacement through the GP for diabetes and boy was he crabby ...more crabby than us nutcases. Lol! But it works and he changed his lifestyle and switched to less stressful therapy work. We burn out our therapists, unfortunately, so they often have to stop and do their own self care." Thank you!! | |||
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"First thing I am in Spain where things are done differently. I was diagnosed with Type 2 at 62 years of age after months of lack of energy, constant thirst and hunger. Given a diet sheet, prescribed Metmorfin and told to come back in 3 months for a blood test, by which time I had lost 13kg, intentionally, dropped back to an almost normal blood glucose level and felt 100% better all round. There are lifestyle changes involved but for me it has been a very positive process, blood test every 3 months and pretty consistent levels. I am aware of highs and lows, usually lows, but there are ways to overcome them without further medical intervention. For me the biggest thing that helped, apart from the medication, was losing weight, then diet and then water intake. What seriously messes it up is the heat. " Well done on getting it under control. Unfortunately it's a different battle for everyone. | |||
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"The problem is they have never offered me any courses and just want me to continue taking metformin 1g a day for the rest of my natural lol They tell me to loose weight as that will help the arthritis but hit a plateau a few months ago so asked about munjaro or even a referral to weight management team - nope keep taking the pills was the response . Ironic isn’t it I’m trying to help myself but they point blank refuse to help me to help Myself " | |||
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"First thing I am in Spain where things are done differently. I was diagnosed with Type 2 at 62 years of age after months of lack of energy, constant thirst and hunger. Given a diet sheet, prescribed Metmorfin and told to come back in 3 months for a blood test, by which time I had lost 13kg, intentionally, dropped back to an almost normal blood glucose level and felt 100% better all round. There are lifestyle changes involved but for me it has been a very positive process, blood test every 3 months and pretty consistent levels. I am aware of highs and lows, usually lows, but there are ways to overcome them without further medical intervention. For me the biggest thing that helped, apart from the medication, was losing weight, then diet and then water intake. What seriously messes it up is the heat. "   | |||
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"I've been diagnosed as type 2, I've been struggling some days as I get cravings for sweet food. It's so hard and challenging to balance a diet with long stressfull days at work and then last thing I wanna do is cook in the evenings. I live alone so cooking for one eveey days is not easy "I hear you, I live alone, too (apart from weekends that I spend with my partner) and often can't be arsed to cook after work. Have you thought about batch cooking? It wouldn't work for everyone, but whenever I make things like Bolognese sauce, curry or casserole, I make enough for a portion or two to go into freezer. I have only just started my diabetes journey though so still loads of good intentions. | |||
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"I've been diagnosed as type 2, I've been struggling some days as I get cravings for sweet food. " Stick at it. I gave up sugar in tea/coffee, biscuits and cakes very quickly. I honestly dont even like sugary foods these days. I do however allow good quality ice cream as a treat VERY occasionally. Some tips: Do not keep biscuits or chocolate in the house. Even for 'emergencies' Have alternative snacks ready: Nuts Salami Chicken bites/satay sticks | |||
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"Diabetic here, have been for nearly 26 years now. I had my latest Insulin Pump Consultation yesterday, and there's a plan in place for getting it. My control was never the best in the past, and like another in here, it went haywire after Cancer treatment, specifically the Chemotherapy and the Steroids that are part of it. I got on the Libre 2 about 2 years ago, and since then, my control has been A LOT better, but there are still some improvements to make." Best move I made was getting a pump! | |||
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"Diabetic here, have been for nearly 26 years now. I had my latest Insulin Pump Consultation yesterday, and there's a plan in place for getting it. My control was never the best in the past, and like another in here, it went haywire after Cancer treatment, specifically the Chemotherapy and the Steroids that are part of it. I got on the Libre 2 about 2 years ago, and since then, my control has been A LOT better, but there are still some improvements to make. Best move I made was getting a pump! " I'm still undecided, especially after being told that I'm spectacularly well controlled. Even better than someone with a closed loop system apparently. It's still shit. | |||
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"Best move I made was getting a pump! " The waiting list is quite long, apparently. I've been told 3-5 years. | |||
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"Best move I made was getting a pump! The waiting list is quite long, apparently. I've been told 3-5 years." Mine was fought for with the diabetic dieticians and the libre sensor showing so many nocturnal hypos - plus no hypo awareness. I’m lucky that I had some of the team on my side fighting my case for me. I hope you don’t have too long to wait | |||
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"So glad for this thread. I’ve just been diagnosed with diabetes 2 months ago. Went to see diabetes nurse, I wanted to try to get my blood sugar controlled without medication as I am just over the threshold at 49 Hb1ac. I’ve lost 5kg since diagnosis… been feeling ok mostly but since yesterday I had some bubbles/froth in my wee I know that is never a good sign, so have seen that it could be protein in the urine and related to kidney malfunction. I am beside myself with worry now.
I’ve contacted GP and was given a container to take a sample in the morning. Wanted to know if this is something that anyone else here has experienced? I am really scared "Proteinuria can be a diabetic finding or it can just be incidental. They will probably ask you to do a few repeat urine dipstick tests and keep a close eye on you. Protein in the urine is usually when there is slight damage in the kidneys basmenet menbrane and proteins leak through. It sounds worse than it is trust me. See how they attempt to manage it first, u can always post back here with an update. | |||
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"I bet none of you have got diabetes insipidus like me or even heard of it "Fairly rare in all honesty. High calcium Levels by any chance? And low Potassium? | |||
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"Me to. Pulling foreskin back can make your eyes water. Also developed genital warts which has been due to type 2. Bloody pain to shift." Type2 doesn’t cause genital warts | |||
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"Although I had another nightmare last night of the sensor being pulled off. It’s never happened in reality in the 2 years I’ve had them but still creeps me out" I pulled one off once, by walking too close to a door-frame, it was more of a shock than actual pain. My main issue right now is that they're falling off too easily. I'm on my 3rd sensor in under a fortnight because they just fell off. One fell off just as I was heading into the shower, and the other I was getting ready to go for my Pump Consultation the other day and felt a type of nip in my arm. Lifted my t-shirt sleeve to take a look and the sensor just fell off. I'm still on the Librea 2, and because it's end of life, I don't think Abbott care abut it any more, and will happily send out replacements without wanting the other one returned. Next batch I get, shoud be the Libre 2+ | |||
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"Best move I made was getting a pump! The waiting list is quite long, apparently. I've been told 3-5 years. Mine was fought for with the diabetic dieticians and the libre sensor showing so many nocturnal hypos - plus no hypo awareness. I’m lucky that I had some of the team on my side fighting my case for me. I hope you don’t have too long to wait " My partner had terrible nocturnal hypos i often had to rub for orange juice cartons in middle of the night x | |||
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"Me to. Pulling foreskin back can make your eyes water. Also developed genital warts which has been due to type 2. Bloody pain to shift. Type2 doesn’t cause genital warts " Its true type 2 doesn't cause genital warts but it can make you more susceptible so it can be a contributing factor and the effects on the immune system can make them more severe. | |||
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"Me to. Pulling foreskin back can make your eyes water. Also developed genital warts which has been due to type 2. Bloody pain to shift. Type2 doesn’t cause genital warts Its true type 2 doesn't cause genital warts but it can make you more susceptible so it can be a contributing factor and the effects on the immune system can make them more severe. " Absolutely, like any autoimmune disease you’re more susceptible to infections, and recovery is often more protracted… that’s for any infection not just sexually transmitted. However the poster clearly stated his genital warts were due to his type 2. It most certainly is not. | |||
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"Me to. Pulling foreskin back can make your eyes water. Also developed genital warts which has been due to type 2. Bloody pain to shift. Type2 doesn’t cause genital warts Its true type 2 doesn't cause genital warts but it can make you more susceptible so it can be a contributing factor and the effects on the immune system can make them more severe. Absolutely, like any autoimmune disease you’re more susceptible to infections, and recovery is often more protracted… that’s for any infection not just sexually transmitted. However the poster clearly stated his genital warts were due to his type 2. It most certainly is not." Calm down everyone i just wanted to put it out there. My wording was somewhat lacking in details, the practice nurse did mention my immune system is depressed & makes me susceptible to this. | |||
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"Me to. Pulling foreskin back can make your eyes water. Also developed genital warts which has been due to type 2. Bloody pain to shift. Type2 doesn’t cause genital warts Its true type 2 doesn't cause genital warts but it can make you more susceptible so it can be a contributing factor and the effects on the immune system can make them more severe. Absolutely, like any autoimmune disease you’re more susceptible to infections, and recovery is often more protracted… that’s for any infection not just sexually transmitted. However the poster clearly stated his genital warts were due to his type 2. It most certainly is not. Calm down everyone i just wanted to put it out there. My wording was somewhat lacking in details, the practice nurse did mention my immune system is depressed & makes me susceptible to this." I don't know about _varose but its fine I don't need to calm down just putting some facts out there not arguing lol the increases susceptibility just makes being careful more important | |||
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"Me to. Pulling foreskin back can make your eyes water. Also developed genital warts which has been due to type 2. Bloody pain to shift. Type2 doesn’t cause genital warts Its true type 2 doesn't cause genital warts but it can make you more susceptible so it can be a contributing factor and the effects on the immune system can make them more severe. Absolutely, like any autoimmune disease you’re more susceptible to infections, and recovery is often more protracted… that’s for any infection not just sexually transmitted. However the poster clearly stated his genital warts were due to his type 2. It most certainly is not. Calm down everyone i just wanted to put it out there. My wording was somewhat lacking in details, the practice nurse did mention my immune system is depressed & makes me susceptible to this. I don't know about _varose but its fine I don't need to calm down just putting some facts out there not arguing lol the increases susceptibility just makes being careful more important "Yep definitely not needing to calm down, simply stopping the spread of misinformation 🤷🏻♀️ | |||
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"As the other one got too big i thought i would pay another so we can support each other. I'm type 2 presently well controlled for the first time in 2 decades. I found the continuous glucose monitor to be a game changer and can't recommend it enough." Hey i am type 2 and recently been told my number has shot up to 120 i stopped metformin as it wasn't really bringing it down and it was piling weight on me and my ibs was irritated by it too but now am out of control and I have been so good with eating i thought i could do it | |||
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"The problem is they have never offered me any courses and just want me to continue taking metformin 1g a day for the rest of my natural lol They tell me to loose weight as that will help the arthritis but hit a plateau a few months ago so asked about munjaro or even a referral to weight management team - nope keep taking the pills was the response . Ironic isn’t it I’m trying to help myself but they point blank refuse to help me to help Myself " That’s so frustrating as someone also with type 2 and rheumatoid arthritis and prescribed mounjaro I know what a game changer it can be | |||
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"Any type 1s using smart insulin pens? I don't know if I've just been living under a rock, but I didn't know they existed! Saw it on my LibreLink app yesterday." They're very helpful and save remembering stuff. The novopen ones are a skank on the NHS as they don't last the 5 years they're supposed to. The manufacturers won't replace them and you end up having to get another on prescription. | |||
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"Unbelievable what diabetes affects " Diabetic neuropathy | |||
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I also had an abdominal scan and all organs are ok and healthy.
I am pretty confident my Hb1ac will be muchly improved when I have it tested again in December | |||
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"I am 900g away from a 10kg weight loss since my diagnosis in mid-June.
I also had an abdominal scan and all organs are ok and healthy.
I am pretty confident my Hb1ac will be muchly improved when I have it tested again in December "Fingers crossed for you. And great news on the weight loss! | |||
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"Hi all am karl and am type 1 and have Omni pod 5 and g6 GCM which raises a few eyebrows when I spend evenings in the club Quest Leeds. So thought I would say hi to all who have diabetes 1 and 2" i have a pump and sensor and thats the reason i dont do nudist or clubs | |||
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"Hi all am karl and am type 1 and have Omni pod 5 and g6 GCM which raises a few eyebrows when I spend evenings in the club Quest Leeds. So thought I would say hi to all who have diabetes 1 and 2 i have a pump and sensor and thats the reason i dont do nudist or clubs" I have a pump and sensor Was at nude night in Chams without issue, I asked them what to do and kept my bra on to hold my pump Next time I’ll grab one of those armbands runners wear to hold their phone and keep my pump in that | |||
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"I just got my latest test 1ac up to 94 from 89 even though testing low on ginger test every time I do (admittedly not often as should) tested before and an hour after dinner (sandwich and an apple) was 2.3 before and 2.6 an hour after eating, yet 1ac remains high on doctors tests Is there anything can cause a false high 1ac reading as baffled here ?" Um, type 1 or type 2 NHS guidance type 1: It's recommended that you check your blood glucose at least 4 times a day (or at least 5 times for children), including before meals and before bed. Source:https://www.nhs.uk/conditions/type-1-diabetes/living-with/#:~:text=Checking%20your%20blood%20glucose%20is,or%20when%20you're%20unwell.&text=Your%20diabetes%20team%20will%20discuss,meals:%205%20to%209mmol/L | |||
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"Diagnosed type 1 after contracting Covid. Playing havoc with my weight and testosterone levels." hugs | |||
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"I just got my latest test 1ac up to 94 from 89 even though testing low on ginger test every time I do (admittedly not often as should) tested before and an hour after dinner (sandwich and an apple) was 2.3 before and 2.6 an hour after eating, yet 1ac remains high on doctors tests Is there anything can cause a false high 1ac reading as baffled here ? Um, type 1 or type 2 NHS guidance type 1: It's recommended that you check your blood glucose at least 4 times a day (or at least 5 times for children), including before meals and before bed. Source:https://www.nhs.uk/conditions/type-1-diabetes/living-with/#:~:text=Checking%20your%20blood%20glucose%20is,or%20when%20you're%20unwell.&text=Your%20diabetes%20team%20will%20discuss,meals:%205%20to%209mmol/L " Hi I have type 2 apparently tested again after having some biscuits and it 2.9 ha can’t understand why 1ac is so high | |||
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"I just got my latest test 1ac up to 94 from 89 even though testing low on ginger test every time I do (admittedly not often as should) tested before and an hour after dinner (sandwich and an apple) was 2.3 before and 2.6 an hour after eating, yet 1ac remains high on doctors tests Is there anything can cause a false high 1ac reading as baffled here ? Um, type 1 or type 2 NHS guidance type 1: It's recommended that you check your blood glucose at least 4 times a day (or at least 5 times for children), including before meals and before bed. Source:https://www.nhs.uk/conditions/type-1-diabetes/living-with/#:~:text=Checking%20your%20blood%20glucose%20is,or%20when%20you're%20unwell.&text=Your%20diabetes%20team%20will%20discuss,meals:%205%20to%209mmol/L Hi I have type 2 apparently tested again after having some biscuits and it 2.9 ha can’t understand why 1ac is so high " Anything under 3 would have me feeling fucking terrible. I think you might need a different meter if your A1C is consistently high. Maybe consider a trial with a libre or other cgm/flash monitoring device to really track what’s happening | |||
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