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"I’m currently being treated for liver cancer for the last 9 months it was caught early and so far has reduced by 40% but the medication I take every month effects my mental health medication.anyone have any advice " Speak with you oncologist or CNS team | |||
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"I’m currently being treated for liver cancer for the last 9 months it was caught early and so far has reduced by 40% but the medication I take every month effects my mental health medication.anyone have any advice Speak with you oncologist or CNS team " | |||
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"I’m currently being treated for liver cancer for the last 9 months it was caught early and so far has reduced by 40% but the medication I take every month effects my mental health medication.anyone have any advice Speak with you oncologist or CNS team " They want me to try and stick with it all though I get really low every month | |||
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"I'm sorry you're going through this it must be awful " It’s honestly not that bad I just don’t want to slip down the mental health rabbit hole again | |||
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"I'm sorry you're going through this it must be awful It’s honestly not that bad I just don’t want to slip down the mental health rabbit hole again " No I don't expect you do. Have you contacted McMillan? | |||
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"I'm sorry you're going through this it must be awful It’s honestly not that bad I just don’t want to slip down the mental health rabbit hole again No I don't expect you do. Have you contacted McMillan?" No not really I’m trying to carry on working,just want to be normal | |||
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"I'm sorry you're going through this it must be awful It’s honestly not that bad I just don’t want to slip down the mental health rabbit hole again No I don't expect you do. Have you contacted McMillan? No not really I’m trying to carry on working,just want to be normal " Ok I thought you might find their on line community helpful because there would be people who would understand. | |||
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"I'm sorry you're going through this it must be awful It’s honestly not that bad I just don’t want to slip down the mental health rabbit hole again No I don't expect you do. Have you contacted McMillan? No not really I’m trying to carry on working,just want to be normal " sometimes op you have to chat to mentioned organisation maybe not face to face with someone if you’re not comfortable with it but even if you could email them or if they have a forum you could join in on with people who have the same illnesses as you don’t suffer in silence it’s not good for you & I’m sorry to hear what your going though x | |||
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"I’m currently being treated for liver cancer for the last 9 months it was caught early and so far has reduced by 40% but the medication I take every month effects my mental health medication.anyone have any advice " Another vote for McMillan and their chat groups. You're genuinely not alone and they've supported every situation you can think of. Good mental health will help you get through this. Don't forsake it, don't try and get through it on your own, you've now idea how this will hit you, get your support in place now, while have enough energy. Get professional advice from your team on med clashes..... | |||
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"I was assigned a specialist skin cancer nurse when I was diagnosed with melanoma. She told me I could contact her at any time. Tbh, I didn't think I would need to. But a week after my initial surgery, she phoned me and I broke down in tears. She was amazing support. She said, when someone is diagnosed with cancer, their immediate thoughts turn to the physical treatment, the side effects, the recovery ... they very rarely stop to think about if and how it's going to affect their mental health. But it always does. It's okay to not feel okay about what you are experiencing; but it's even better knowing there is always someone to reach out to when it gets too much. They can take those negative feelings you carry around in your head and help you turn them into something more positive, which in turn will make you feel stronger during your treatment. OP, as others have already suggested, there are lots of support services out there...Macmillan, Marie Curie, Maggies, and Mind too. I hope you manage to find support, it really can make all the difference. Best wishes to you 🫶 " If you don't want to answer this please ignore my question 😊. Was the nurse assigned to you a 'clinical nurse specialist'? I hope you're doing well. | |||
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"I was assigned a specialist skin cancer nurse when I was diagnosed with melanoma. She told me I could contact her at any time. Tbh, I didn't think I would need to. But a week after my initial surgery, she phoned me and I broke down in tears. She was amazing support. She said, when someone is diagnosed with cancer, their immediate thoughts turn to the physical treatment, the side effects, the recovery ... they very rarely stop to think about if and how it's going to affect their mental health. But it always does. It's okay to not feel okay about what you are experiencing; but it's even better knowing there is always someone to reach out to when it gets too much. They can take those negative feelings you carry around in your head and help you turn them into something more positive, which in turn will make you feel stronger during your treatment. OP, as others have already suggested, there are lots of support services out there...Macmillan, Marie Curie, Maggies, and Mind too. I hope you manage to find support, it really can make all the difference. Best wishes to you 🫶 If you don't want to answer this please ignore my question 😊. Was the nurse assigned to you a 'clinical nurse specialist'? I hope you're doing well. " Almost certainly a CNS. I was assigned one when I was first told I had throat cancer. Again, she was happy to be contacted at any time. She became a life saver for us when the effects of chemo and RT really hit. Happy to say that now, 10 years on, she's a friend of both of us in the real world. | |||
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"If you don't want to answer this please ignore my question 😊. Was the nurse assigned to you a 'clinical nurse specialist'? I hope you're doing well. " Hi Mrs Nice. I'm sorry I didn't see your post earlier in the day 😊 Yes, as someone else pointed out, she probably is classed as a CNS, but when I looked on my discharge paperwork, it states her job title as 'Skin Cancer Nurse Specialist'. Either way she was brilliant. In respect of the melanoma, I have been cancer-free for 2 years and 4 months now, but I continue to carry out monthly checks for any new lesions. It's just become part of normal life 😊 | |||
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"I was assigned a specialist skin cancer nurse when I was diagnosed with melanoma. She told me I could contact her at any time. Tbh, I didn't think I would need to. But a week after my initial surgery, she phoned me and I broke down in tears. She was amazing support. She said, when someone is diagnosed with cancer, their immediate thoughts turn to the physical treatment, the side effects, the recovery ... they very rarely stop to think about if and how it's going to affect their mental health. But it always does. It's okay to not feel okay about what you are experiencing; but it's even better knowing there is always someone to reach out to when it gets too much. They can take those negative feelings you carry around in your head and help you turn them into something more positive, which in turn will make you feel stronger during your treatment. OP, as others have already suggested, there are lots of support services out there...Macmillan, Marie Curie, Maggies, and Mind too. I hope you manage to find support, it really can make all the difference. Best wishes to you 🫶 If you don't want to answer this please ignore my question 😊. Was the nurse assigned to you a 'clinical nurse specialist'? I hope you're doing well. Almost certainly a CNS. I was assigned one when I was first told I had throat cancer. Again, she was happy to be contacted at any time. She became a life saver for us when the effects of chemo and RT really hit. Happy to say that now, 10 years on, she's a friend of both of us in the real world. " That's good to hear in every respect 😊. | |||
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"If you don't want to answer this please ignore my question 😊. Was the nurse assigned to you a 'clinical nurse specialist'? I hope you're doing well. Hi Mrs Nice. I'm sorry I didn't see your post earlier in the day 😊 Yes, as someone else pointed out, she probably is classed as a CNS, but when I looked on my discharge paperwork, it states her job title as 'Skin Cancer Nurse Specialist'. Either way she was brilliant. In respect of the melanoma, I have been cancer-free for 2 years and 4 months now, but I continue to carry out monthly checks for any new lesions. It's just become part of normal life 😊" It's no problem 😊. I'm happy to hear that you've been cancer free for two years four months. Long may it continue. I asked because my 98 year old dad has been assigned a clinical nurse specialist as he's started hormone treatment for prostate cancer. He's a bit confused about her role so I'm trying to find out as much as possible. It took me long enough to explain to him that she's not a secretary 🤦 | |||
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"I asked because my 98 year old dad has been assigned a clinical nurse specialist as he's started hormone treatment for prostate cancer. He's a bit confused about her role so I'm trying to find out as much as possible. It took me long enough to explain to him that she's not a secretary 🤦" Oh gosh, your poor dad having to go through it at his age. And a worry for you too (sending hugs). If my memory is correct, I'm pretty sure I was given an information pack before my treatment started, which explained everything they do, as well as info about all the other support services available. I'm sure the CNS would be more than happy for you to phone them and ask for more information 😊 | |||
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"I've just got through throat cancer. Surgery, radiotherapy and chemo. It was bloody brutal but bounced out the other end and am embracing my big scar. I found the specialist cancer nurses excellent, always at the end of the phone. The whole process from diagnosis to surgery, radio and chemo was super fast and like a whirlwind. I struggled with pain relief, found oral morphine knocked me loopy. I found Maggies OK but a little too much retired ladies offering tea and cup cakes but found one member of staff a godsend. Macmillan I found a tad patronising but that was my personal view and the Hope course absolutely useless. Apart from getting down for the usual reasons didn't find the process too daunting, just wished cancer had never come knocking. Like you, I got back to work ASAP and the post cancer exercise classes are a great way to fight the fatigue that is part of the process (hate the word journey that is so widely used). You sound very realistic in your approach and seem to be doing the right things. I'd take and go to everything they offer. Some you may get something from some are awful but you may get a little nugget of information that helps. Good luck, happy to chat if I can be of any help. Liz. X" Fellow throat cancer patient here. Glad you’ve got through it! Sounds like you’ve got the right mindset  | |||
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"I've just got through throat cancer. Surgery, radiotherapy and chemo. It was bloody brutal but bounced out the other end and am embracing my big scar. I found the specialist cancer nurses excellent, always at the end of the phone. The whole process from diagnosis to surgery, radio and chemo was super fast and like a whirlwind. I struggled with pain relief, found oral morphine knocked me loopy. I found Maggies OK but a little too much retired ladies offering tea and cup cakes but found one member of staff a godsend. Macmillan I found a tad patronising but that was my personal view and the Hope course absolutely useless. Apart from getting down for the usual reasons didn't find the process too daunting, just wished cancer had never come knocking. Like you, I got back to work ASAP and the post cancer exercise classes are a great way to fight the fatigue that is part of the process (hate the word journey that is so widely used). You sound very realistic in your approach and seem to be doing the right things. I'd take and go to everything they offer. Some you may get something from some are awful but you may get a little nugget of information that helps. Good luck, happy to chat if I can be of any help. Liz. X Fellow throat cancer patient here. Glad you’ve got through it! Sounds like you’ve got the right mindset "Bet my scar is better than yours...  | |||
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"I've just got through throat cancer. Surgery, radiotherapy and chemo. It was bloody brutal but bounced out the other end and am embracing my big scar. I found the specialist cancer nurses excellent, always at the end of the phone. The whole process from diagnosis to surgery, radio and chemo was super fast and like a whirlwind. I struggled with pain relief, found oral morphine knocked me loopy. I found Maggies OK but a little too much retired ladies offering tea and cup cakes but found one member of staff a godsend. Macmillan I found a tad patronising but that was my personal view and the Hope course absolutely useless. Apart from getting down for the usual reasons didn't find the process too daunting, just wished cancer had never come knocking. Like you, I got back to work ASAP and the post cancer exercise classes are a great way to fight the fatigue that is part of the process (hate the word journey that is so widely used). You sound very realistic in your approach and seem to be doing the right things. I'd take and go to everything they offer. Some you may get something from some are awful but you may get a little nugget of information that helps. Good luck, happy to chat if I can be of any help. Liz. X Fellow throat cancer patient here. Glad you’ve got through it! Sounds like you’ve got the right mindset
Bet my scar is better than yours... "Mine is ear to ear….. total laryngectomy | |||
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"I've just got through throat cancer. Surgery, radiotherapy and chemo. It was bloody brutal but bounced out the other end and am embracing my big scar. I found the specialist cancer nurses excellent, always at the end of the phone. The whole process from diagnosis to surgery, radio and chemo was super fast and like a whirlwind. I struggled with pain relief, found oral morphine knocked me loopy. I found Maggies OK but a little too much retired ladies offering tea and cup cakes but found one member of staff a godsend. Macmillan I found a tad patronising but that was my personal view and the Hope course absolutely useless. Apart from getting down for the usual reasons didn't find the process too daunting, just wished cancer had never come knocking. Like you, I got back to work ASAP and the post cancer exercise classes are a great way to fight the fatigue that is part of the process (hate the word journey that is so widely used). You sound very realistic in your approach and seem to be doing the right things. I'd take and go to everything they offer. Some you may get something from some are awful but you may get a little nugget of information that helps. Good luck, happy to chat if I can be of any help. Liz. X Fellow throat cancer patient here. Glad you’ve got through it! Sounds like you’ve got the right mindset
Bet my scar is better than yours...
Mine is ear to ear….. total laryngectomy "OK, you win. Mines only one side bottom of ear to chest. | |||
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"I've just got through throat cancer. Surgery, radiotherapy and chemo. It was bloody brutal but bounced out the other end and am embracing my big scar. I found the specialist cancer nurses excellent, always at the end of the phone. The whole process from diagnosis to surgery, radio and chemo was super fast and like a whirlwind. I struggled with pain relief, found oral morphine knocked me loopy. I found Maggies OK but a little too much retired ladies offering tea and cup cakes but found one member of staff a godsend. Macmillan I found a tad patronising but that was my personal view and the Hope course absolutely useless. Apart from getting down for the usual reasons didn't find the process too daunting, just wished cancer had never come knocking. Like you, I got back to work ASAP and the post cancer exercise classes are a great way to fight the fatigue that is part of the process (hate the word journey that is so widely used). You sound very realistic in your approach and seem to be doing the right things. I'd take and go to everything they offer. Some you may get something from some are awful but you may get a little nugget of information that helps. Good luck, happy to chat if I can be of any help. Liz. X Fellow throat cancer patient here. Glad you’ve got through it! Sounds like you’ve got the right mindset
Bet my scar is better than yours...
Mine is ear to ear….. total laryngectomy
OK, you win. Mines only one side bottom of ear to chest. "I have been compared to the Kurgan from Highlander | |||
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