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Cancer and mental health

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By *rew2475 OP   Man
3 weeks ago

cleckheaton

I’m currently being treated for liver cancer for the last 9 months it was caught early and so far has reduced by 40% but the medication I take every month effects my mental health medication.anyone have any advice

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By *ogandher1962Couple
3 weeks ago

Reading


"I’m currently being treated for liver cancer for the last 9 months it was caught early and so far has reduced by 40% but the medication I take every month effects my mental health medication.anyone have any advice "

Speak with you oncologist or CNS team

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By *rew2475 OP   Man
3 weeks ago

cleckheaton


"I’m currently being treated for liver cancer for the last 9 months it was caught early and so far has reduced by 40% but the medication I take every month effects my mental health medication.anyone have any advice

Speak with you oncologist or CNS team "

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By *rew2475 OP   Man
3 weeks ago

cleckheaton


"I’m currently being treated for liver cancer for the last 9 months it was caught early and so far has reduced by 40% but the medication I take every month effects my mental health medication.anyone have any advice

Speak with you oncologist or CNS team "

They want me to try and stick with it all though I get really low every month

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By *icecouple561Couple
Forum Mod

3 weeks ago

East Sussex

Have you been in contact with McMillan nurses or Marie Curie?

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By *icecouple561Couple
Forum Mod

3 weeks ago

East Sussex

I'm sorry you're going through this it must be awful

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By *rew2475 OP   Man
3 weeks ago

cleckheaton


"I'm sorry you're going through this it must be awful "

It’s honestly not that bad I just don’t want to slip down the mental health rabbit hole again

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By *icecouple561Couple
Forum Mod

3 weeks ago

East Sussex


"I'm sorry you're going through this it must be awful

It’s honestly not that bad I just don’t want to slip down the mental health rabbit hole again "

No I don't expect you do. Have you contacted McMillan?

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By *rew2475 OP   Man
3 weeks ago

cleckheaton


"I'm sorry you're going through this it must be awful

It’s honestly not that bad I just don’t want to slip down the mental health rabbit hole again

No I don't expect you do. Have you contacted McMillan?"

No not really I’m trying to carry on working,just want to be normal

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By *ere4work.Man
3 weeks ago

midlands

Been through it and my biggest mistake was I didn't talk to someone. I didnt realise it at the time so you are already in a better place than me. Definitely agree with Macmillan or find someone you can talk to. Depends on your own preference. Feel free to DM

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By *icecouple561Couple
Forum Mod

3 weeks ago

East Sussex


"I'm sorry you're going through this it must be awful

It’s honestly not that bad I just don’t want to slip down the mental health rabbit hole again

No I don't expect you do. Have you contacted McMillan?

No not really I’m trying to carry on working,just want to be normal "

Ok I thought you might find their on line community helpful because there would be people who would understand.

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By *ortney FoxxxWoman
3 weeks ago

honeysuckle lane


"I'm sorry you're going through this it must be awful

It’s honestly not that bad I just don’t want to slip down the mental health rabbit hole again

No I don't expect you do. Have you contacted McMillan?

No not really I’m trying to carry on working,just want to be normal "

sometimes op you have to chat to mentioned organisation maybe not face to face with someone if you’re not comfortable with it but even if you could email them or if they have a forum you could join in on with people who have the same illnesses as you don’t suffer in silence it’s not good for you & I’m sorry to hear what your going though x

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By *ust RachelTV/TS
3 weeks ago

Horsham

Have a word with someone at the hospital where you are being treated, there might be someone who can help you

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By *ookie46Woman
2 weeks ago

Deepest darkest Peru

Macmillian are a great support and so are their online forums. Does your hospital have a Maggies centre local to it. They are a great charity and offer so much. I pop into my local one just for a cuppa on some days before my treatment

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By *illan-KillashMan
2 weeks ago

London/Sussex/Surrey/Berks/Hants


"I’m currently being treated for liver cancer for the last 9 months it was caught early and so far has reduced by 40% but the medication I take every month effects my mental health medication.anyone have any advice "

Another vote for McMillan and their chat groups.

You're genuinely not alone and they've supported every situation you can think of.

Good mental health will help you get through this. Don't forsake it, don't try and get through it on your own, you've now idea how this will hit you, get your support in place now, while have enough energy.

Get professional advice from your team on med clashes.....

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By *wiggy2112Woman
2 weeks ago

some where in Yorkshire

Hey u... hope you're getting support... we were chatting for some time about your illness...im still around if you want a brew

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By *lessandra_BWoman
2 weeks ago

Here, There & Everywhere

I was assigned a specialist skin cancer nurse when I was diagnosed with melanoma. She told me I could contact her at any time. Tbh, I didn't think I would need to. But a week after my initial surgery, she phoned me and I broke down in tears.

She was amazing support. She said, when someone is diagnosed with cancer, their immediate thoughts turn to the physical treatment, the side effects, the recovery ... they very rarely stop to think about if and how it's going to affect their mental health. But it always does. It's okay to not feel okay about what you are experiencing; but it's even better knowing there is always someone to reach out to when it gets too much. They can take those negative feelings you carry around in your head and help you turn them into something more positive, which in turn will make you feel stronger during your treatment.

OP, as others have already suggested, there are lots of support services out there...Macmillan, Marie Curie, Maggies, and Mind too. I hope you manage to find support, it really can make all the difference. Best wishes to you 🫶

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By *ugarandSpice123Couple
2 weeks ago

Birmingham

After my diagnosis, operation and chemo it was hard for someone to understand what I was going through.

I had a lot of advice, support and comfort from forums on the MacMillan website. But most of all talking to those around you for support can sometimes be the best form of support, friends who will check in on you etc

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By *icecouple561Couple
Forum Mod

2 weeks ago

East Sussex


"I was assigned a specialist skin cancer nurse when I was diagnosed with melanoma. She told me I could contact her at any time. Tbh, I didn't think I would need to. But a week after my initial surgery, she phoned me and I broke down in tears.

She was amazing support. She said, when someone is diagnosed with cancer, their immediate thoughts turn to the physical treatment, the side effects, the recovery ... they very rarely stop to think about if and how it's going to affect their mental health. But it always does. It's okay to not feel okay about what you are experiencing; but it's even better knowing there is always someone to reach out to when it gets too much. They can take those negative feelings you carry around in your head and help you turn them into something more positive, which in turn will make you feel stronger during your treatment.

OP, as others have already suggested, there are lots of support services out there...Macmillan, Marie Curie, Maggies, and Mind too. I hope you manage to find support, it really can make all the difference. Best wishes to you 🫶

"

If you don't want to answer this please ignore my question 😊.

Was the nurse assigned to you a 'clinical nurse specialist'?

I hope you're doing well.

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By *ogandher1962Couple
2 weeks ago

Reading


"I was assigned a specialist skin cancer nurse when I was diagnosed with melanoma. She told me I could contact her at any time. Tbh, I didn't think I would need to. But a week after my initial surgery, she phoned me and I broke down in tears.

She was amazing support. She said, when someone is diagnosed with cancer, their immediate thoughts turn to the physical treatment, the side effects, the recovery ... they very rarely stop to think about if and how it's going to affect their mental health. But it always does. It's okay to not feel okay about what you are experiencing; but it's even better knowing there is always someone to reach out to when it gets too much. They can take those negative feelings you carry around in your head and help you turn them into something more positive, which in turn will make you feel stronger during your treatment.

OP, as others have already suggested, there are lots of support services out there...Macmillan, Marie Curie, Maggies, and Mind too. I hope you manage to find support, it really can make all the difference. Best wishes to you 🫶

If you don't want to answer this please ignore my question 😊.

Was the nurse assigned to you a 'clinical nurse specialist'?

I hope you're doing well. "

Almost certainly a CNS. I was assigned one when I was first told I had throat cancer. Again, she was happy to be contacted at any time. She became a life saver for us when the effects of chemo and RT really hit. Happy to say that now, 10 years on, she's a friend of both of us in the real world.

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By *lessandra_BWoman
2 weeks ago

Here, There & Everywhere


"If you don't want to answer this please ignore my question 😊.

Was the nurse assigned to you a 'clinical nurse specialist'?

I hope you're doing well. "

Hi Mrs Nice. I'm sorry I didn't see your post earlier in the day 😊 Yes, as someone else pointed out, she probably is classed as a CNS, but when I looked on my discharge paperwork, it states her job title as 'Skin Cancer Nurse Specialist'. Either way she was brilliant. In respect of the melanoma, I have been cancer-free for 2 years and 4 months now, but I continue to carry out monthly checks for any new lesions. It's just become part of normal life 😊

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By *icecouple561Couple
Forum Mod

2 weeks ago

East Sussex


"I was assigned a specialist skin cancer nurse when I was diagnosed with melanoma. She told me I could contact her at any time. Tbh, I didn't think I would need to. But a week after my initial surgery, she phoned me and I broke down in tears.

She was amazing support. She said, when someone is diagnosed with cancer, their immediate thoughts turn to the physical treatment, the side effects, the recovery ... they very rarely stop to think about if and how it's going to affect their mental health. But it always does. It's okay to not feel okay about what you are experiencing; but it's even better knowing there is always someone to reach out to when it gets too much. They can take those negative feelings you carry around in your head and help you turn them into something more positive, which in turn will make you feel stronger during your treatment.

OP, as others have already suggested, there are lots of support services out there...Macmillan, Marie Curie, Maggies, and Mind too. I hope you manage to find support, it really can make all the difference. Best wishes to you 🫶

If you don't want to answer this please ignore my question 😊.

Was the nurse assigned to you a 'clinical nurse specialist'?

I hope you're doing well.

Almost certainly a CNS. I was assigned one when I was first told I had throat cancer. Again, she was happy to be contacted at any time. She became a life saver for us when the effects of chemo and RT really hit. Happy to say that now, 10 years on, she's a friend of both of us in the real world.

"

That's good to hear in every respect 😊.

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By *icecouple561Couple
Forum Mod

2 weeks ago

East Sussex


"If you don't want to answer this please ignore my question 😊.

Was the nurse assigned to you a 'clinical nurse specialist'?

I hope you're doing well.

Hi Mrs Nice. I'm sorry I didn't see your post earlier in the day 😊 Yes, as someone else pointed out, she probably is classed as a CNS, but when I looked on my discharge paperwork, it states her job title as 'Skin Cancer Nurse Specialist'. Either way she was brilliant. In respect of the melanoma, I have been cancer-free for 2 years and 4 months now, but I continue to carry out monthly checks for any new lesions. It's just become part of normal life 😊"

It's no problem 😊.

I'm happy to hear that you've been cancer free for two years four months. Long may it continue.

I asked because my 98 year old dad has been assigned a clinical nurse specialist as he's started hormone treatment for prostate cancer. He's a bit confused about her role so I'm trying to find out as much as possible. It took me long enough to explain to him that she's not a secretary 🤦

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By *lessandra_BWoman
2 weeks ago

Here, There & Everywhere


"I asked because my 98 year old dad has been assigned a clinical nurse specialist as he's started hormone treatment for prostate cancer. He's a bit confused about her role so I'm trying to find out as much as possible. It took me long enough to explain to him that she's not a secretary 🤦"

Oh gosh, your poor dad having to go through it at his age. And a worry for you too (sending hugs).

If my memory is correct, I'm pretty sure I was given an information pack before my treatment started, which explained everything they do, as well as info about all the other support services available. I'm sure the CNS would be more than happy for you to phone them and ask for more information 😊

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By *uscious_lips30Woman
2 weeks ago

gloucestershire

As someone else who has had cancer 2years and a month free didn’t actually speak to anyone until getting back to life after cancer. To be honest I found that more difficult than the cancer journey. Though it was difficult for me to find support groups as my cancer was rare not all groups or places support the rare ones.so I ended up up going through maggies.

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By *4bimMan
2 days ago

Farnborough Hampshire

thinking of you all

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By *obert 323Man
2 days ago

Hastings

Sorry to hear about your cancer but so glad they caught it in time. Speaking from experience with my own cancer, it does feel that you're on your own and that other people don't really know what you're going through. It's not true. There is lots of help avaliable these days and you are not alone. Macmillam is a good place to start. Stay strong, your winning and things will get better. I'm 13 years cancer free now and enjoying life, which I didn't think I'd get.

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By *kandUSACoupleCouple
1 day ago

Stratford-upon-Avon

McMillan. Definitely. What do you have to lose by approaching them

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