FabSwingers.com forum: Brain tumour

By (user no longer on site) OP
over a year ago

Hi all

Sorry for the neg post in a fun site but....

Looking for advice on recovery from a brain tumour, Timescale, aches and pains ect....

please mail me if you have any info.

I got the all clear in may, but basically I feel terrible again

p.s docs and aftercare has been poor

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By *hocko87Man
over a year ago

dublin

Sorry to hear man I thought d health crowd in England were much better cos d after care is as important as d operation .

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By (user no longer on site)
over a year ago

"Hi all

Sorry for the neg post in a fun site but....

Looking for advice on recovery from a brain tumour, Timescale, aches and pains ect....

please mail me if you have any info.

I got the all clear in may, but basically I feel terrible again

p.s docs and aftercare has been poor"

I have a pituitary tumour. I think the best advice I can give you is if you are experiencing any symptoms or having any concerns go straight to your GP. They should arrange for an MRI pretty sharpish.

Keep your head up, don't be intimidated by medics. If you see a specialist maybe give them a call and ask for clarification on follow ups and aftercare as well as explaining any current symptoms.

Above all, don't be scared. Things are often not as bad as you expect. It's the worry half the time and this can compound things. You are not alone!

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By (user no longer on site) OP
over a year ago

Thanks Guys

Problem is I have been to my GP, he says what do Neuro care say. They so go to my GP.

Neuro aftercare nurse say its ok and I would be feeling worse if it was a tumour. But this is bullshit as I didn't feel bad before they found one, same with a close friend of mine. He had no symptoms at all yet he has a year left to live. No body is listerning, I just wondered if what I'm feeling is what other have experienced yet are still ok today.

Its very depressing, as the people who should listern don't.

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By *ike00465Man
over a year ago

Nottingham

Me two had brain operation for tumour but failed

I used Csrf.net Web site to help me give it a look

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By (user no longer on site)
over a year ago

Can I ask what type of bt you have x

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By (user no longer on site) OP
over a year ago

Thanks I have emailed you guys x

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By *izzy.Woman
over a year ago

Stoke area

Speak to the aftercare nurse, go back to the GP. Keep pushing to have some checks, scans or whatever you need to reassure you.

I have no personal experience of brain tumours, but have some health issues which I know are kept in check only because I am pushy and insist on having tests and investigations.

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By (user no longer on site)
over a year ago

Swap your GP you have a right to request a MRI, don't take no for a answer - I see so many people that it's too late for because they trusted their GP. Get further advise

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By *ike00465Man
over a year ago

Nottingham

"Can I ask what type of bt you have x"

Mine in my pituitary gland on the part that makes cortisone

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By (user no longer on site) OP
over a year ago

Thanks for the messages guys!

Bizarrely enough I got home from work yesterday and a new scan date has come through. 12th November

Nice to know there are some good people left on here!

I suppose I was looking for whether what I'm feeling is nornmal

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By *izzy.Woman
over a year ago

Stoke area

I don't know if what you feel is normal or not. But pleased to hear you have an MRI booked.

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By (user no longer on site) OP
over a year ago

thanks lizzy

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