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Swingers living with chronic pain?

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By *kultra OP   Couple
over a year ago

chesterfield

I’m only 35 but I suffer with fibromyalgia and I have severe osteoarthritis in my lower spine as well as pelvic instability. It does make me worry how I will cope at meets. I love swinging but the fact that I am always in pain and I get tired easily makes me wary and I don’t want to put people off by mentioning it. It’s also caused me to gain weight due to the medications I’m on and the fact I can’t be as active as I used to be so my confidence has taken a knock too. Is there anyone else like me out there and how do you deal with it? Is there any advice you can give? Does it put people off? Please help. I feel so alone with this.

PS. Do not suggest I take any illegal substances because I won’t. Thank you xx

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By *uilder506Man
over a year ago

bognor

I know the feeling sort of. Two discs in my back an buggerd , nerve damage in one shoulder and a bad knee lol

Painkillers and stretching is all I can do.

There has been times where I’m on top and have to stop/swap due to the pain

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By (user no longer on site)
over a year ago

I have fibromyalgia too, as well as a twisted vertebrae in my lower back which causes sciatica and stiffness in my left hip.

I’ve not had problems with meets on here or otherwise, I’m just honest and upfront if I need to change position or get worn out.

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By (user no longer on site)
over a year ago

CBD oil is 100% legal and you can even buy bath bombs that contain it specifically designed for fybro and other conditions that affect the joints, a few lady friends of mine swear by it, you can get it from Holland and Barrett, worth a look?

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By *oodmessMan
over a year ago

yumsville

[Removed by poster at 15/10/18 14:34:23]

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By *oodmessMan
over a year ago

yumsville

I have CFS, and have to say I have not found anything that enables me to cut through the pain or fatigue as yet. Sure you get surges of adrenaline but this doesn't last. Considering I used to play for a good few hours, I am a little resigned at the mo. If you can keep a low carb - low sugar diet, this'll help you regulate your metabolism and will benefit you as much as anything will.

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By (user no longer on site)
over a year ago

I can’t comment on the problems you’re having, but it certainly wouldn’t put me off.

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By *xMFM3sumsxxWoman
over a year ago

SouthWest Lancashire

Hi. I have spinal problems, there are certain positions i won't be able to do now as they're painful and sometimes the pain is so bad i can't move, dress, or anything so obviously can't meet then.

I would say there will be guys out there who won't mind wha type of meet you need or want, it may take more time to find the more considerate guys that's all.

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By *utterflygirlCouple
over a year ago

belvedere

i have fibro too. i use a combination of stretching every day and i visit an osteopath every 3 or 4 weeks who does a combination of manipulation and massage. i am on amitriptaline and vitamin d and i try to avoid sugar. i will change positions if i am in pain . most people are fine and i have some cocodamol that i take sometimes before a meet if i am feeling particularly sore although this is very rare

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By *inkerbell67Woman
over a year ago

Clacton on sea essex

I was diagnosed with cfs a few years ago and fibro ,i take vitamin D3 and vit c and cod liver oil i try and do a lot of walking to keep weight down ,must admit i have days when i could have sex all night and days when i just sleep and in pain ,when its bad its morphine, but it wont beat me ..

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By (user no longer on site)
over a year ago

I deal with chronic pain. Following this thread because I want to feel at least half normal, even for a day.

I can’t cope much longer.

I hope you find a solution OP x

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By (user no longer on site)
over a year ago

Hello, I am sorry about your pain, it sounds awful. For me, it would not be in the slightest bit off-putting, it is part of you at the moment and would all be part of getting to know each other, physically and mentally, which is the most fun bit of meeting each other and finding out each other's needs. If someone is put off, that would indicate to me that they are not interested in your needs, so pain or not, you dodge a bullet anyway.

Just as a side note, it is so refreshing to see such a helpful thread with lovely people.

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By (user no longer on site)
over a year ago

I have chronic pain plus some mobility issues. Guys that we meet are always ok about my pain and mobility issues. I use painkillers to slightly deaden the pain.

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By *aucy tiggerWoman
over a year ago

Back where I belong

I've had a hip replacement and am now suffering with knee pain due to osteoarthritis.

I tell people my scar is a shark bite and take painkillers for my knee. I tell meets about my knee and haven't had anyone who has been off about it. Sometimes walking and standing are difficult.

Good luck op xx

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By (user no longer on site)
over a year ago

I have chronic diarrhea of the mouth........

During a meet I use Gin to cope

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By (user no longer on site)
over a year ago


"I've had a hip replacement and am now suffering with knee pain due to osteoarthritis.

I tell people my scar is a shark bite and take painkillers for my knee. I tell meets about my knee and haven't had anyone who has been off about it. Sometimes walking and standing are difficult.

Good luck op xx"

I tell people my scars are shark bites too

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By *kultra OP   Couple
over a year ago

chesterfield


"I have chronic pain plus some mobility issues. Guys that we meet are always ok about my pain and mobility issues. I use painkillers to slightly deaden the pain. "

It is genuinely comforting for me to see this. I think I worry far too much about it. I’ve only recently been diagnosed and I also have mobility issues. I use a stick most days and I have a mobility scooter for long distances. It does make me feel really unsexy and I think other people will look at me and think the same

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By *kultra OP   Couple
over a year ago

chesterfield


"Hello, I am sorry about your pain, it sounds awful. For me, it would not be in the slightest bit off-putting, it is part of you at the moment and would all be part of getting to know each other, physically and mentally, which is the most fun bit of meeting each other and finding out each other's needs. If someone is put off, that would indicate to me that they are not interested in your needs, so pain or not, you dodge a bullet anyway.

Just as a side note, it is so refreshing to see such a helpful thread with lovely people. "

Thank you so much, I just feel very unsexy at the moment and keep worrying that others will think the same thing

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By (user no longer on site)
over a year ago


"Hello, I am sorry about your pain, it sounds awful. For me, it would not be in the slightest bit off-putting, it is part of you at the moment and would all be part of getting to know each other, physically and mentally, which is the most fun bit of meeting each other and finding out each other's needs. If someone is put off, that would indicate to me that they are not interested in your needs, so pain or not, you dodge a bullet anyway.

Just as a side note, it is so refreshing to see such a helpful thread with lovely people.

Thank you so much, I just feel very unsexy at the moment and keep worrying that others will think the same thing "

I had a stroke 3 years ago...good days and bad days with regards to mojo and health in general

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By (user no longer on site)
over a year ago


"CBD oil is 100% legal and you can even buy bath bombs that contain it specifically designed for fybro and other conditions that affect the joints, a few lady friends of mine swear by it, you can get it from Holland and Barrett, worth a look? "

Where can you get the bath bombs from please?

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By *wisted999Man
over a year ago

North Bucks

My friend has this and the amount of abuse he has suffered because people think he is too lazy to work is saddening.

He cannot find anything to ease the pain so is trying the CND oil. Will report back.

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By (user no longer on site)
over a year ago

I have chronic pain and chronic fatigue problems. I have stopped meeting by and large because ive found I struggle to find partners who have any tolerance for it.

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By (user no longer on site)
over a year ago


"I have chronic pain plus some mobility issues. Guys that we meet are always ok about my pain and mobility issues. I use painkillers to slightly deaden the pain.

It is genuinely comforting for me to see this. I think I worry far too much about it. I’ve only recently been diagnosed and I also have mobility issues. I use a stick most days and I have a mobility scooter for long distances. It does make me feel really unsexy and I think other people will look at me and think the same "

I think most people look beyond anything you use to help your mobility. X

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By *ettyboop61Woman
over a year ago

St Neots

Lots of us have problems and yes sometimes it stops us playing me included after all we are all still feeling sexy and need a little loving...good luck OP I must admit it has stopped me sometimes from meeting

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By (user no longer on site)
over a year ago

I explain to people that I need plenty of notice before I can meet- on a first time meet- and that there are positions and acts I can't do.

I've met plenty of people.

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By (user no longer on site)
over a year ago

CBD oil will be available by prescription from next month for some cases

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By (user no longer on site)
over a year ago


"Lots of us have problems and yes sometimes it stops us playing me included after all we are all still feeling sexy and need a little loving...good luck OP I must admit it has stopped me sometimes from meeting"

The problem I have is I don't feel sexy when I'm tired and in pain.

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By *orny PTMan
over a year ago

Peterborough

Just copy and paste this on your profile. It's that simple; the ones who are not worth will move on, the decent ones will ask how you are and ask about your coping mechanisms.

You never know, who you'll meet and what they know.

Clarity is key here!

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By *orny PTMan
over a year ago

Peterborough

Sorry to hear about your condition.

I've been in daily contact with a fellow fabber, who is a bit fragile at the moment, so that's not an issue at the moment. Support is available here, just accept it when it comes. You can still decide how much contact you can manage...

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By *ast_jjMan
over a year ago

Dublin and London

I know it's easy to say it but don't let it get you down. If someone you would like to meet can't see past the fact you have mobility and pain challenges then they really are not worth meeting. And for the record, you certainly are sexy, very sexy in my eyes. Good luck with it and most of all have fun. J

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By *kultra OP   Couple
over a year ago

chesterfield


"I know it's easy to say it but don't let it get you down. If someone you would like to meet can't see past the fact you have mobility and pain challenges then they really are not worth meeting. And for the record, you certainly are sexy, very sexy in my eyes. Good luck with it and most of all have fun. J "

That’s very true, I never thought of it like that and thank you very much for the compliment xx

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By *etLikeMan
over a year ago

most fundamental aspects

I had a rather serious spinal injury following an accident. That statement could get people’s imagination going in a direction that is not the case.

I function and perform. I just get fatigued easily and am never far away from a pack of Gabapentin. I pace myself when at clubs by trying to grab a sleep before. I’ll push through a lot of the discomfort and will use my fingers altered sensations to a partner’s advantage.

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By *etLikeMan
over a year ago

most fundamental aspects


"CBD oil will be available by prescription from next month for some cases"

In addition it’s already available over the counter in most chemists. Some did get a run on it though and it was out of stock for a while.

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By *hrobbermanMan
over a year ago

Lanarkshire

I have a degenerative scoliosis in the lower spine. It means lower back pain forever. I take a long-term low-dosage neuropathic pain inhibitor. Some days it is intolerable. Some days it is a wee bit easier.

Everything down there still works absolutely fine. It just takes a wee bit longer to get there. And my youthful gymnastics are a little less extravagent nowadays. But I am sure that is the same for everyone my age.

It would be great to meet a woman who has perhaps similar issues, some understanding and we could get there at approximately the same speed.

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By *lice AgainTV/TS
over a year ago

Bristol

Type 3 EDS and the related osteoarthritis.

The 420 certainly helps, but that's obviously not for you OP.

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By (user no longer on site)
over a year ago

Pilates is great for back problems,but you have to persevere with it.

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By (user no longer on site)
over a year ago

So everyone when you have had a bad day remember some people have worse ones. OP I do hope you can find a way to be free to do what most take for granted xxx

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By (user no longer on site)
over a year ago

mrs has scoliosis, and suffers back pain trapped nerves,

cbd oil works and you can take as much as you need rather than painkillers that restrict how many a day you take,

its like alcohol its rated by percentage Holland and barret only sell upto 5% strength for good pain releif you need at least 25% cbd per 10 ml bottle

all oils are made of 100% hemp oil but vary on the cbd content wich is stated on the package, we get ours from usual web site beginning with E, cbd is completely legal in the uk

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By *andDeeCouple
over a year ago

Ashford

Noticed quite a few recommending CBD oil, which is great to hear people are becoming aware and educated to this.

The thing that puts people off who don’t know, is worrying about the side effects, as in feeling stoned.

The part of the cannabis leaf that gives you the ‘high’ (THC) is filtered out through the process, so it’s safe, even go as far as to say safer than some prescription painkillers for driving on. It’s also better for your insides as the ingredients in many painkillers can cause internal bleeding when taken over a long period of time.

It’s definitely worth investigating and trying to see how it works for you.

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By (user no longer on site)
over a year ago

I (female) suffer with chronic pain in my back, sciatica etc. On alot of medication prescribed by the doctor.

I just have to listen to my body, and sometimes have to say not at the moment, as I could put it out badly and be hospitalised again, as I am unable to do anything for myself when it goes this way.

I struggle with certain positions and so would explain this at a social, so they understand my limits. If they cannot respect that, then there are plenty more fish in the sea and will move on.

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By (user no longer on site)
over a year ago


"I’m only 35 but I suffer with fibromyalgia and I have severe osteoarthritis in my lower spine as well as pelvic instability. It does make me worry how I will cope at meets. I love swinging but the fact that I am always in pain and I get tired easily makes me wary and I don’t want to put people off by mentioning it. It’s also caused me to gain weight due to the medications I’m on and the fact I can’t be as active as I used to be so my confidence has taken a knock too. Is there anyone else like me out there and how do you deal with it? Is there any advice you can give? Does it put people off? Please help. I feel so alone with this.

PS. Do not suggest I take any illegal substances because I won’t. Thank you xx"

I have looked at your profile a number of times thinking I should get in touch.

I would love to meet, I might suffer from premature ejaculation though, you are gorgeous.

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By (user no longer on site)
over a year ago


"CBD oil will be available by prescription from next month for some cases

In addition it’s already available over the counter in most chemists. Some did get a run on it though and it was out of stock for a while. "

yes- as a food additive. This way, via the prescription, the concentration and percentage of cannabidiol will be determined. Also the carrier might be optimum for those with fibromyalgia

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By (user no longer on site)
over a year ago


"Noticed quite a few recommending CBD oil, which is great to hear people are becoming aware and educated to this.

The thing that puts people off who don’t know, is worrying about the side effects, as in feeling stoned.

The part of the cannabis leaf that gives you the ‘high’ (THC) is filtered out through the process, so it’s safe, even go as far as to say safer than some prescription painkillers for driving on. It’s also better for your insides as the ingredients in many painkillers can cause internal bleeding when taken over a long period of time.

It’s definitely worth investigating and trying to see how it works for you. "

It's NOT a completely safe drug- it can cause liver failure. Many painkillers do not cause internal bleeding- the older kids could but the modern ones can cause strokes etc- the opposite. Nothing in this world is completely safe- it's a balance between what helps and what kills you.

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By *ittikat0375Couple
over a year ago

Devon

Hi,

I'm 42 and was diagnosed when I was 30 with fibromyalgia, 4 prolapsed discs (lower back) and nerve damage. I take a mixture of painkillers and anti-inflammatory drugs to help control the pain and I've learned to be adaptable so that I can do most of the things I want to. This has meant having to use a stick, rollator or wheelchair depending on the circumstances...I agree that they feel like they put your sex appeal down but without them I can't get where I want to be so I accept them begrudgingly however others don't really seem to notice...it certainly hasn't put people off!!

Like you, I felt very unsexy...I hadn't had any kind of relationship for years as I had lost all my confidence. Because i am unable to do any exercise apart from a bit of pilates (which helps me maintain my core muscles so I don't lose my balance as much) I have also put on a lot of weight over the past few years...going from a size 14 to a size 22.

Initially I only tell people I have back pain as few understand what fibro is or means and most people have been considerate, accepting when I need a break or a change of positions and those that don't I will stop playing with...if they don't respect my needs, they don't respect me and aren't worth my time - there are lots of others who will listen and act accordingly.

I actually met my partner at a Swingers club and he has been really good...once I had explained in detail what it all means for me he was able to help me discover what I can and can't do.

Because of the nerve damage I have, I don't feel sensations quite the same as other women, there's a kind of delay between someone touching me intimately and my brain registering it...it has left me feeling very sore at times but each time I learn what not to do so the next time is so much better.

I'm not very good at voicing what I do and don't want so I tend to give little directions like "not so fast" but then make sure I say something when they've got it right...even just a "yes, that's it" is enough for most.

Dealing with fibromyalgia is about pacing yourself...do a bit, rest a bit and so on, so that you're not doing too much of the same thing for very long. Once you've got the hang of that in daily life it's relatively easy to transfer it to your sex life...variety is the key and if you're getting uncomfy or sore then suggest a change of some kind...not many will object to experimenting with different positions (most dream of someone who wants to mix things up more!!).

I guarantee that if you tell people you've got a bad back, haven't played since its been bad, aren't sure what the best position is yet and would they mind swapping positions if you need to...they will guiding you to the nearest bed rather than running in the opposite direction.

I hope that's helped a bit and that it makes sense as I'm a little bit foggy today. If you have any questions then I'm more than happy to answer them either here or privately.

Kindest regards

Clare

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By *andDeeCouple
over a year ago

Ashford


"Noticed quite a few recommending CBD oil, which is great to hear people are becoming aware and educated to this.

The thing that puts people off who don’t know, is worrying about the side effects, as in feeling stoned.

The part of the cannabis leaf that gives you the ‘high’ (THC) is filtered out through the process, so it’s safe, even go as far as to say safer than some prescription painkillers for driving on. It’s also better for your insides as the ingredients in many painkillers can cause internal bleeding when taken over a long period of time.

It’s definitely worth investigating and trying to see how it works for you.

It's NOT a completely safe drug- it can cause liver failure. Many painkillers do not cause internal bleeding- the older kids could but the modern ones can cause strokes etc- the opposite. Nothing in this world is completely safe- it's a balance between what helps and what kills you."

I personally am not convinced CBD oil can cause any liver damage but I am open to examples. If anyone has suffered from liver damage, I’d take my bets that they already had underlying health problems.

I also do not trust the big corrupt pharmaceutical companies when it comes to covering up their mistakes and the propaganda against natural medicines.

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By (user no longer on site)
over a year ago

I also suffer with fibromyalgia, I have osteoarthritis and sarcoidosis between flare ups I have a bloody good time on meets the only problem I have is that my knees can’t cope with me being on top, as for pain relief I have used cocodamols tramadol morphine so many anti inflammatory ds I don’t find anything actually works the pain remains while your of your face unable to function, cannabis oils also didn’t work for me. I’m currently not in a flare up so can tolerate the pain I am in I am dreading the flare up this time

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By *imandher84Couple
over a year ago

Leeds

I have nerve damage across both shoulders which causes my hands to suffer, my back is busted and what started as one bad knee has turn into 2 if I'm not careful i will soon find myself walking in circles

Don't worry about it op i have had to tap out and whilst it's a bit of a nuisance what can you. Hopefully these posts make you realise there is lots of us walking wounded about

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By *imandher84Couple
over a year ago

Leeds

I apologise for the sheer number of missed words above, it appears my brain ran ahead of my thumbs

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By (user no longer on site)
over a year ago


"CBD oil is 100% legal and you can even buy bath bombs that contain it specifically designed for fybro and other conditions that affect the joints, a few lady friends of mine swear by it, you can get it from Holland and Barrett, worth a look? "

Correct but you won't get the real stuff from Holland and Barrett - I also wouldn't reccomend anyone purchase Vitamins/minerals and protein supplements from them - inferior quality.Buy online.

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By (user no longer on site)
over a year ago

I have MS and suffer from varying degrees of pain throughout the day. I use Gabapentin for pain relief ( if it works) and . Not CBD oil. That did nothing. I need the thc which the oil doesn’t contain.

I have to manage how I do stuff, I have trouble walking, fatigue and pain amongst other things . It also knocked my confidence but I’m getting better about myself now. I didn’t ask for it and there’s no cure so rather than wasting the time I have for having fun fretting about how I look, I’m grabbing it and enjoying the ride

So if I have a meet, I rest up, the next day my body punishes me so I have to say in bed. But it’s so worth it

It’s slowly getting me but I’m not letting it take away all of my fun without a fight. So I’m grabbing as much as I can, while I can still enjoy myself..

A xx

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By (user no longer on site)
over a year ago

I have fibromyalgia and CFS..

I try not to let it get in the way of my meets and only tell people on a need to know basis but its been ok so far

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By (user no longer on site)
over a year ago

It definetley wouldn't put me off just a cuddle can sometimes be as good as penetration it would add variety to the meets. I agree nice to have a thread of pure acceptance and loving thoughts. Male xx

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By (user no longer on site)
over a year ago


"

It's NOT a completely safe drug- it can cause liver failure. Many painkillers do not cause internal bleeding- the older kids could but the modern ones can cause strokes etc- the opposite. Nothing in this world is completely safe- it's a balance between what helps and what kills you.

I personally am not convinced CBD oil can cause any liver damage but I am open to examples. If anyone has suffered from liver damage, I’d take my bets that they already had underlying health problems.

I also do not trust the big corrupt pharmaceutical companies when it comes to covering up their mistakes and the propaganda against natural medicines. "

Sadly, there's no such thing as a '100% safe drug'. Some 'natural' medicines have more side effects than benefits and a few are so dangerous that their use is not recommended. It's well documented that cbd oil can cause liver damage and if you are medically put on it, it's likely that there will be blood tests involved to check. As I said, everything is a balance. The fact that prescriptions can now be given for cbd will make things safer, with dose rates and formulations controlled and maintained.

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By *hris 62Man
over a year ago

HEREFORD

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By (user no longer on site)
over a year ago

[Removed by poster at 17/10/18 09:13:37]

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By (user no longer on site)
over a year ago

Try Liberty shapes sex position couch the esse there are cheaper versions that allow more comfort and positions too. CBD oil such as Medipen are 100% legal and can be life changing I’ve seen it and worth a try

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By (user no longer on site)
over a year ago


"I’m only 35 but I suffer with fibromyalgia and I have severe osteoarthritis in my lower spine as well as pelvic instability. It does make me worry how I will cope at meets. I love swinging but the fact that I am always in pain and I get tired easily makes me wary and I don’t want to put people off by mentioning it. It’s also caused me to gain weight due to the medications I’m on and the fact I can’t be as active as I used to be so my confidence has taken a knock too. Is there anyone else like me out there and how do you deal with it? Is there any advice you can give? Does it put people off? Please help. I feel so alone with this.

PS. Do not suggest I take any illegal substances because I won’t. Thank you xx"

OP, I completely feel your pain! I'm 34 and was diagnosed with fibromyalgia about 2yrs ago - although I know (given the symptoms) that I've had it since my teens.

I've also been diagnosed with another rare chronic inflammatory condition called mesenteric panniculitis.

Everything you've said there resonates with me on so many levels.

Although, my conditions are not so severe yet that I'm unable to push myself to get to the gym and I'm still working a 40 hour week in a moderately physical job. But, it certainly is getting harder

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By (user no longer on site)
over a year ago


"I’m only 35 but I suffer with fibromyalgia and I have severe osteoarthritis in my lower spine as well as pelvic instability. It does make me worry how I will cope at meets. I love swinging but the fact that I am always in pain and I get tired easily makes me wary and I don’t want to put people off by mentioning it. It’s also caused me to gain weight due to the medications I’m on and the fact I can’t be as active as I used to be so my confidence has taken a knock too. Is there anyone else like me out there and how do you deal with it? Is there any advice you can give? Does it put people off? Please help. I feel so alone with this.

PS. Do not suggest I take any illegal substances because I won’t. Thank you xx

OP, I completely feel your pain! I'm 34 and was diagnosed with fibromyalgia about 2yrs ago - although I know (given the symptoms) that I've had it since my teens.

I've also been diagnosed with another rare chronic inflammatory condition called mesenteric panniculitis.

Everything you've said there resonates with me on so many levels.

Although, my conditions are not so severe yet that I'm unable to push myself to get to the gym and I'm still working a 40 hour week in a moderately physical job. But, it certainly is getting harder "

Also, thank you for starting this thread

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By *ardiffCoupleNJCouple
over a year ago

Pontypridd/Rhyfelin

Don't want to make sweeping statements, but this won't make make a jot of difference to the swingers on this site for the most part. For those out for a quick shag maybe it will.

Dare I say it, the more mature peeps will have every sympathy. My partner gets severe joint pain, and muscular problems, so I know how bad it can be. Its not only an age thing -some ailments can strike at any age. But I guarantee you noone here is getting any younger.

For most of us these things are part of life so don't let them get you down and keep on enjoying Fabs for what it is.

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By *kultra OP   Couple
over a year ago

chesterfield

It’s really lovely to have so many positive responses here. I take on board what you say about it not putting people off, I think that was just me worrying. My confidence issues, I think, will take more time to improve. I just don’t feel like me at the moment. I have added it to our profile just so people know in advance. Thank you everyone here for helping put my mind at ease and sharing your own problems with me. Much love to each and every one of you xxx

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By *ants_Nerdy_CoupleCouple
over a year ago

Havant

Liz has a chronic knee issue that causes constant severe pain and requires her to take some pretty fierce pain killers. She is also a larger girl. This does not put men off, plenty of people like that. Plus based on your photos you look great and have a pretty face so I don't think you'll have problems with people wanting to play.

We're having to take a break because Liz is just too tired from the constant pain, hopefully soon we'll be back in the swing of things but it is what it is. Take it at your own pace.

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By (user no longer on site)
over a year ago

I also have fibro along with M.E i find getting to know someone before a meet is a must. My last meet he wanted a certain position and i had to explain i couldnt due to pain etc. I am upfront about it and if the person im talking to doesnt like it or cant be understanding then they need to move on. As for coping with the pain i take nothing. The only medication i am on is folic acid as mine is way to low. My friend who has fibro is on all sorts of medication and spends most of her life in bed due to the side effects of the meds she takes that doesnt even help with the pain. For this reason i fight on through the pain. I have learned that sitting for to long hurts more so i only sit for a max of 30 mins before i get up and move around. Some days im fine in fact most of the days you wouldnt know but like last week some days i have to use my wheelchair when out of the house. Flu got hold of me and knocked me for six! OP if you want a chat feel free to message me if not good luck and take care

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By (user no longer on site)
over a year ago

I've got fibromyalgia and I haven't had much trouble but I do take meds when needed and I swear by cbd oil! It's a life changer.

I have been hurt but another person when he pushed my hip while stiff but it was an accident. I just make sure that I'm very clear about my pain and how it affects me with people who need to know.

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By (user no longer on site)
over a year ago

I have fibro too. I'm lucky as once my endorphins are going I don't feel the pain as much. The next day however.....

I'm currently on amitriptyline and co codemol. I tried CBD oil but it upset my stomach, brownies don't so much.

I've been told about the use of Low dose naltrexone (LDN) for fibro. My doctor says I need to produce evidence for him to prescribe as it is expensive.

I was delighted that medical cannabis is to be licensed...But it can only be prescribed by a specialist and I've been discharged into primary care so not an option for me! I'm really trying to avoid gabapentin.

The weight gain has been my biggest issue. I hate not being able to do anything about it!

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By *heHookyMonsterMan
over a year ago

Liverpool

I've had Sciatica for the last year due to a bulging disc. I've found having bought a TENS machine has helped a lot, along with decent compression socks for my calves. Both those, combined with Paracetamol can be very effective. Keep moving as much as possible and try not to stay in one place for too long as stiffness sets in. Plenty of fluids too. Xx

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By (user no longer on site)
over a year ago

I my self suffer Nmo {neuro myelitis optica}and spinal problems the pain can be horrendous at times. has put me off meeting.its the explaining part that's putting me off its the not knowing what people think when you tell them. on the out side I am a normal bloke looking for great times as many of us are but on the inside I am a bit different this condition has left me with no feeling down the left side of my body it was nice to see other people on hear speaking about heath issue's

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By (user no longer on site)
over a year ago

I can’t talk about chronic pain myself.

But it doesn’t worry me meeting up with someone in that position.

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By (user no longer on site)
over a year ago

Hiya. You could ask your doctor about cannabis oil as a prescription,

From 1st November, they can prescribe it apparently

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By (user no longer on site)
over a year ago

thanks afterhours going to docs on Friday so going run it past him about cannabis oil

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By (user no longer on site)
over a year ago

Anyone use PEA for their pain?

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By *lice AgainTV/TS
over a year ago

Bristol


"Anyone use PEA for their pain?"

Phenethylamine? That will not work. Stuff gets broken down quicker than you can say monoamine oxidase.

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By (user no longer on site)
over a year ago


"CBD oil is 100% legal and you can even buy bath bombs that contain it specifically designed for fybro and other conditions that affect the joints, a few lady friends of mine swear by it, you can get it from Holland and Barrett, worth a look? "

I've done some serious research about this ( my ex has triple negative grade 3 breast cancer) the CBD oil in holland and barrets is rubbish mate. Its not actually proper CBD oil. Its industrial made hemp oil. You need find a grower that does proper cannabis CBD oil. You need at least 5000mg which is really good. THC is the illegal substance that is the "high" part of the plant. This is needed for cancer though as this is the substance to kill cancer. CBD on its own does not. There called tintures. Each cannabis plant has different strains. Therefore different efforts and remedies can work on different people. You need to get to at least 1mg taking each day, goes under your tongue. Tastes like shit bare in mind... They always say the worst tasting medicine is the best for you lol.CBD is pure black and smells like cannabis. Stay away from the browny colored CBD. It's rubbish.

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By (user no longer on site)
over a year ago

I didn't know Fibro was so common!

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By (user no longer on site)
over a year ago


"Anyone use PEA for their pain?

Phenethylamine? That will not work. Stuff gets broken down quicker than you can say monoamine oxidase.

"

No, PEA is palmitoylethanolamine in relation to chronic pain.

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By *ackDanielsWhiteRabbitMan
over a year ago

Halifax

I have MS. Luckily I dont suffer from chronic pain but as others have mentioned some positions are just too tricky, I get fatigued easily, have to use a stick sometimes to walk. Luckily I have an amazing girlfriend who is very understanding.

I always mention it if there is the potential of a meet, on this profile and our couples one. I must say 99% of people are very understanding. But I know what you are saying op re. not always feeling sexy etc.

All I can say is the serious swingers will be understanding and take in to account your situation.

All the best to everybody and have fun.

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By *assionatepoetsCouple
over a year ago

Highbridge

Bookmarked

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By (user no longer on site)
over a year ago


"I’m only 35 but I suffer with fibromyalgia and I have severe osteoarthritis in my lower spine as well as pelvic instability. It does make me worry how I will cope at meets. I love swinging but the fact that I am always in pain and I get tired easily makes me wary and I don’t want to put people off by mentioning it. It’s also caused me to gain weight due to the medications I’m on and the fact I can’t be as active as I used to be so my confidence has taken a knock too. Is there anyone else like me out there and how do you deal with it? Is there any advice you can give? Does it put people off? Please help. I feel so alone with this.

PS. Do not suggest I take any illegal substances because I won’t. Thank you xx

OP, I completely feel your pain! I'm 34 and was diagnosed with fibromyalgia about 2yrs ago - although I know (given the symptoms) that I've had it since my teens.

I've also been diagnosed with another rare chronic inflammatory condition called mesenteric panniculitis.

Everything you've said there resonates with me on so many levels.

Although, my conditions are not so severe yet that I'm unable to push myself to get to the gym and I'm still working a 40 hour week in a moderately physical job. But, it certainly is getting harder "

I see you struggle daily my darling. Breaks my heart that I cant help with the pain

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By *iking67Man
over a year ago

BP Auckland

I too have chronic pain (back) and yes it's very exhausting and makes me feel very unsexy at times. But good days I'm fine but never know when a good day is coming....

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By (user no longer on site)
over a year ago


"I’m only 35 but I suffer with fibromyalgia and I have severe osteoarthritis in my lower spine as well as pelvic instability. It does make me worry how I will cope at meets. I love swinging but the fact that I am always in pain and I get tired easily makes me wary and I don’t want to put people off by mentioning it. It’s also caused me to gain weight due to the medications I’m on and the fact I can’t be as active as I used to be so my confidence has taken a knock too. Is there anyone else like me out there and how do you deal with it? Is there any advice you can give? Does it put people off? Please help. I feel so alone with this.

PS. Do not suggest I take any illegal substances because I won’t. Thank you xx"

Next month you can get 'illegal substances' from your GP

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By *alcon43Woman
over a year ago

Paisley

Be honest and find someone who is understanding. They are out there and definitely worth looking for. Don’t be shy, if anything hurts, find a position that works for you.

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By (user no longer on site)
over a year ago


" Next month you can get 'illegal substances' from your GP"

Don't think you can- think it's only from consultant referrals.

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By *heHookyMonsterMan
over a year ago

Liverpool


"Be honest and find someone who is understanding. They are out there and definitely worth looking for. Don’t be shy, if anything hurts, find a position that works for you. "

Exactly this!

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By *kultra OP   Couple
over a year ago

chesterfield

Well today I’m feeling more positive. My husband had suggested I get my hair permed so that I have one less thing to have to do as it takes ages to straighten my hair. He suggested also that no matter how bad I feel I can at least wash my hair, scrunch it and go and I should also put some make up on. He knows it always makes me feel better when I have my make up and hair done. I reckon he’s right as I don’t work any more, I’m lucky my husband has a well paying job so I don’t have to do I have plenty of time on my hands. I got my hair permed today and put my makeup on and I feel fantastic for it. I feel more normal and more confident. If you want to see what I look like now, photos are on our profile xx

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By (user no longer on site)
over a year ago


"I’m only 35 but I suffer with fibromyalgia and I have severe osteoarthritis in my lower spine as well as pelvic instability. It does make me worry how I will cope at meets. I love swinging but the fact that I am always in pain and I get tired easily makes me wary and I don’t want to put people off by mentioning it. It’s also caused me to gain weight due to the medications I’m on and the fact I can’t be as active as I used to be so my confidence has taken a knock too. Is there anyone else like me out there and how do you deal with it? Is there any advice you can give? Does it put people off? Please help. I feel so alone with this.

PS. Do not suggest I take any illegal substances because I won’t. Thank you xx"

EFT = Emotional Freedom Technique is good for pain. It is 100% natural. I'ts very easy to learn. You can learn the basics in about 10 minutes.

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By (user no longer on site)
over a year ago


"CBD oil will be available by prescription from next month for some cases"

It is going to depend on the strength. Currently in the UK cannabis oil from places like Holland and Barrats is 0.2% CBD. The stuff I ordered for my Dad from Holland is 10% CBD.

Although I did read some woman in the UK claims to have cured he bi-polar disorder with the 0.2% stuff.

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By (user no longer on site)
over a year ago

Hi

I understand , im in a similar situation with osteo in lumber /cervical spine. Gained masses of weight /couldnt walk for 2 years.And yes lost confidence.

Tried all opiods/ meds.

I went back to usa n took tylenol arthritis 8hr & green lipped muscle high grade .

I started to move and can now walk again.

I have told play mates my back problems and they were ok with me not bieng able to swing like an acrobat.

Really who does that anyway.

Find a few good friends who are understanding

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By (user no longer on site)
over a year ago


"CBD oil will be available by prescription from next month for some cases

It is going to depend on the strength. Currently in the UK cannabis oil from places like Holland and Barrats is 0.2% CBD. The stuff I ordered for my Dad from Holland is 10% CBD.

Although I did read some woman in the UK claims to have cured he bi-polar disorder with the 0.2% stuff. "

Holland and barrets cbd is is very low great if you want to relax for a good nites sleep.

mildred uses 15% daily and that helps her sleep as her biggest problem is getting comfy to go to sleep which makes her tired for the day ahead, when her nerves and muscles start playing up she has 40% for bad pain , it immediately eases the pain to a bearable limit.

you can get stronger but the price goes up aswell,

the prescription that doctors will give out I think will be full spectrum oil which includes thc, the thc part gives you the high and is also used for cancer and alzhimers ect,

we need to see what is offered when the doctors start dishing out perscriptions

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