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"Hi everyone, I suffer from Cerebral Palsy and confined to a wheelchair, but live a full life, work full time and drive a car too, also very clean as I shower everyday. Could anyone please give me any advice. I have been here for a few months now with a couple successes under my belt. But lately I've been writing to ladies without much luck. I know a person with a disability isn't everybody's cup of tea, but like all of youselves I love sex and loved to get a few more meets. So any advice or offers (cheeky I know) would be great. Thank you for reading this." Hi rojo, don't feel that your disability is necessarily working against you, as you will see if you look at my profile I'm a disabled person too. What I would suggest is that you show more confidence in yourself, you are a person with CP you don't suffer with it! Just like I don't suffer with blindness, it is what makes us different and fab is all about difference and peoples tastes. OK so neither of us may be everyones taste, but doesn't that make the meets more special? Stick at it, be honest and be yourself remember there are disabled women on fab as well, they promote themselves and not their disability first and formost. Now what about a disabled ersons chat room? | |||
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"Maybe he needs more advice No advice from me though sorry , other than the normal of patience." The best advice ever Rugby, patience patience and more patience. | |||
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"Rojo, seems your memories failing too, you did this post 6 months ago, I replied to you privately. " Yes, I do remember and like I said had a couple of meets but lately nothing, I'm just seeking the advice of other swingers. | |||
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"Ah, I would take any negative comments off your profile though. Negativity puts some people off." I really didn't think it was negative. I would you to take a look at it. | |||
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"I'd get rid of the status, of make it more of an innuendo, also that daft legal warning taking up half of your profile." +1 ,i ahve a general rule of not meeting anyone with the warning,it shows a mentality that does not attract me. | |||
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"I'd get rid of the status, of make it more of an innuendo, also that daft legal warning taking up half of your profile. +1 ,i ahve a general rule of not meeting anyone with the warning,it shows a mentality that does not attract me." Thanks for the advice, I know taken out the warning, I put it in because when I joined a lot of people put the warning on their profiles. (Why do they put it on?) As for the status have a look now. | |||
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"Hi everyone, I suffer from Cerebral Palsy and confined to a wheelchair, but live a full life, work full time and drive a car too, also very clean as I shower everyday. Could anyone please give me any advice. I have been here for a few months now with a couple successes under my belt. But lately I've been writing to ladies without much luck. I know a person with a disability isn't everybody's cup of tea, but like all of youselves I love sex and loved to get a few more meets. So any advice or offers (cheeky I know) would be great. Thank you for reading this." what advice can people give you? You just have to do the same as everyone else If people do not want to meet you thats their choice theres nothing anyone can say to you to change that | |||
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" .... what advice can people give you? You just have to do the same as everyone else If people do not want to meet you thats their choice theres nothing anyone can say to you to change that " And yet nineteen posts above ours managed to be positive, give helpful advice and generally try to help the OP... Others of us would wish Rojo good luck... Even if we didnt understand his situation...;-) Others yet would simply read the thread and make no comment... Which in itself would have left the thread clear for those who do have advice... Me, to repeat other replies..."Patience" and positivity... Good luck and happy hunting... | |||
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"A disability is something that stops you doing something that you want to do. If it doesn't stop you then it's not a disability. I'm feeling very philosophical tonight!! Focus on the positive is my advice. Ms" If only that were true. Still, you might change your mind should you ever be unfortunate enough to be affected by a chronic health condition or disability yourself. | |||
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"A disability is something that stops you doing something that you want to do. If it doesn't stop you then it's not a disability. I'm feeling very philosophical tonight!! Focus on the positive is my advice. Ms If only that were true. Still, you might change your mind should you ever be unfortunate enough to be affected by a chronic health condition or disability yourself. " If you are in an unfortunate position where you have a disability then unfortunately that disability is for life...a disability does not disappear overnight. There are many, many disabilities that are not 'visible'. It is also, a fact of life, that a disability does have a detrimental effect on a person's self esteem and self worth to the point that it is often very difficult to accept that the average person sees a disability as an inconvenience. Mock the afflicated at your peril because come the day (hopefully not) that you'll be seeking some 'extra' attention that isn't easily forthcoming. Disability or not EVERYBODY deserves to be treated equal and not as 'something on the bottom of your shoe that a dog may have dropped'. This sorry world of ours is just so judgemental and aspersive....why??...because some people have got nothing better to do than to 'mock the afflicted'. Man, woman or child all deserve the same grace irrespective or race, creed, gender or disability!! | |||
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"A disability is something that stops you doing something that you want to do. If it doesn't stop you then it's not a disability. I'm feeling very philosophical tonight!! Focus on the positive is my advice. Ms" I was born with Cerebral Palsy, never been able to walk but I'm well educated, have worked for over 25 years wirhout a break, and drive (not just a wheelchair) LOL. so I that dispells your theory. Having a disability means you have to try harder in life. I'm like everyone on this we all love sex. On the the upside, when I get started I'm cheaper than a rabbit LOL | |||
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"Once again, thank you for your advice both the good and bad. I have now changed my status to something, I think is funny." I like it Your profile has changed so much now and looks a lot better. Good luck | |||
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"A disability is something that stops you doing something that you want to do. If it doesn't stop you then it's not a disability. I'm feeling very philosophical tonight!! Focus on the positive is my advice. Ms If only that were true. Still, you might change your mind should you ever be unfortunate enough to be affected by a chronic health condition or disability yourself. " Thats a big assumption. you don't know anything about me apart from whats on my profile and what I post on here. | |||
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"A disability is something that stops you doing something that you want to do. If it doesn't stop you then it's not a disability. I'm feeling very philosophical tonight!! Focus on the positive is my advice. Ms If only that were true. Still, you might change your mind should you ever be unfortunate enough to be affected by a chronic health condition or disability yourself. Thats a big assumption. you don't know anything about me apart from whats on my profile and what I post on here." But wasn't you making the same assumption about me. I'm always positive about life and what it throws. Just think about it, I've never been able to walk, so I've never missed it but if you were to have an accident (and I hope you never), you would have to learn to adapt and may never be able to have sex again. With CP you can have sex with full erections, so I have to agree the lady from Manchester on that one. | |||
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"Thats a big assumption. you don't know anything about me apart from whats on my profile and what I post on here." And your profile is currently, conveniently, hidden so you're right - I know nothing about you. But I really don't think you needed to post something so patronising towards disabled people, which is all I have to form an opinion of you. It was quite unnecessary - the OP asked for advice on fixing his profile, he didn't need telling that his disability means he can't do some things, as I'm sure he already knows that. Those of us living with disabilities already do focus on the positive, the things we can do. I long ago accepted I'm unlikely to hold a driving licence again and my mobility issues meant I also eventually had to face the fact that I'm not safe on a bicycle any more. The day I sold my bike was heartbreaking for me as I love cycling. But do I let it stop me getting around? No, of course not. Likewise, I've grudgingly accepted in the last year that in future it's better for friends to change my lightbulbs for me as I can't manage a step stool now but hey, I'm still 99.9% independent. No point crying over what I've lost. Yes, lost. But I just get on with stuff. And I've never stopped working. I actually believe that living with a disability for the last 15 years has made me a better person. It has taught me to be far more compassionate than I was, I have learned to be very resilient and I have developed ingenuity to find ways round the things my disability stops me from doing. It has also taught me patience and acceptance. The biggest disability us disabled people face is the attitude of others towards us, that is far more disabling than our physical conditions or the physical barriers that mean we have to fight for equality in society. | |||
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"Thats a big assumption. you don't know anything about me apart from whats on my profile and what I post on here. And your profile is currently, conveniently, hidden so you're right - I know nothing about you. But I really don't think you needed to post something so patronising towards disabled people, which is all I have to form an opinion of you. It was quite unnecessary - the OP asked for advice on fixing his profile, he didn't need telling that his disability means he can't do some things, as I'm sure he already knows that. Those of us living with disabilities already do focus on the positive, the things we can do. I long ago accepted I'm unlikely to hold a driving licence again and my mobility issues meant I also eventually had to face the fact that I'm not safe on a bicycle any more. The day I sold my bike was heartbreaking for me as I love cycling. But do I let it stop me getting around? No, of course not. Likewise, I've grudgingly accepted in the last year that in future it's better for friends to change my lightbulbs for me as I can't manage a step stool now but hey, I'm still 99.9% independent. No point crying over what I've lost. Yes, lost. But I just get on with stuff. And I've never stopped working. I actually believe that living with a disability for the last 15 years has made me a better person. It has taught me to be far more compassionate than I was, I have learned to be very resilient and I have developed ingenuity to find ways round the things my disability stops me from doing. It has also taught me patience and acceptance. The biggest disability us disabled people face is the attitude of others towards us, that is far more disabling than our physical conditions or the physical barriers that mean we have to fight for equality in society. " +1 | |||
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"What really upsets me are two things. 1. When I do write to someone and they delete it without reading it and 2. They read it a then that person blocks you from seeing their profile. Why? " That's the way it is on this site. Don't take it personally; move on the next person. There are umpteen threads about it! | |||
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"What really upsets me are two things. 1. When I do write to someone and they delete it without reading it and 2. They read it a then that person blocks you from seeing their profile. Why? " 1. You don't know whether they've read it or not. You do know their not interested. 2. If they have no intention of meeting you, why not block you? You should be used to rejection by now for no other reason than your a single guy on a swinging site. If not, get a thicker skin. | |||
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"What really upsets me are two things. 1. When I do write to someone and they delete it without reading it and 2. They read it a then that person blocks you from seeing their profile. Why? That's the way it is on this site. Don't take it personally; move on the next person. There are umpteen threads about it!" I thought Rojo was talking to himself then, you have similar avatars | |||
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"No problem.. and nothing wrong with talking to yourself, either!" I do it all the time so it seems | |||
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"What really upsets me are two things. 1. When I do write to someone and they delete it without reading it and 2. They read it a then that person blocks you from seeing their profile. Why? 1. You don't know whether they've read it or not. You do know their not interested. 2. If they have no intention of meeting you, why not block you? You should be used to rejection by now for no other reason than your a single guy on a swinging site. If not, get a thicker skin. " Oh I'm used to the rejection, but I do think people have preconcived ideas what a disabled should be. Not every disabled person is like Stephen Hawkins (Mind I wish I had his brain) LOL | |||
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"Hi everyone, I suffer from Cerebral Palsy and confined to a wheelchair, but live a full life, work full time and drive a car too, also very clean as I shower everyday. Could anyone please give me any advice. I have been here for a few months now with a couple successes under my belt. But lately I've been writing to ladies without much luck. I know a person with a disability isn't everybody's cup of tea, but like all of youselves I love sex and loved to get a few more meets. So any advice or offers (cheeky I know) would be great. Thank you for reading this." Rojo - contratry to what you think and what you have said, you have had an unprecidentedly good streak of luck on fabswingers. you have had one meet overall less that 50% of people that join fab ever get even one. when it comes to single guys, I'd guess that drops to something like 20%. so you are in fact doing great and not experiencing bad luck. the lack of response from people you mail is not something unusual - it is just how things are here - and you are clearly better at it than around 80% of able bodied single guys. well done! | |||
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" You should be used to rejection by now for no other reason than your a single guy on a swinging site. If not, get a thicker skin. Oh I'm used to the rejection, but I do think people have preconcived ideas what a disabled should be. Not every disabled person is like Stephen Hawkins (Mind I wish I had his brain) LOL" People have preconceived ideas of every type of person, but I think you do the overwhelming majority a great disservice if you think most people visualise Stephen Hawkins when they think of a disabled person. | |||
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" You should be used to rejection by now for no other reason than your a single guy on a swinging site. If not, get a thicker skin. Oh I'm used to the rejection, but I do think people have preconcived ideas what a disabled should be. Not every disabled person is like Stephen Hawkins (Mind I wish I had his brain) LOL People have preconceived ideas of every type of person, but I think you do the overwhelming majority a great disservice if you think most people visualise Stephen Hawkins when they think of a disabled person. " I agree: an overwhelming disservice. | |||
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"A disability is something that stops you doing something that you want to do. If it doesn't stop you then it's not a disability. I'm feeling very philosophical tonight!! Focus on the positive is my advice. Ms" I read this post earlier today and have been trying to work out why it struck a 'negative' cord. I'm afraid I haven't been able to. I respectfully ask Rojo or Sirena to explain why you reacted the way you did to this post, I get the impression it upset you and I'd hate to make the same mistake. | |||
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"Blackspice.... You are one of the most clear, concise and respectful posters on here. It is a joy to read your contributions. And I don't say that often " I agree: I'm a fan too | |||
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"Blackspice.... You are one of the most clear, concise and respectful posters on here. It is a joy to read your contributions. And I don't say that often " Thank you View. That's very nice of you. | |||
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"A disability is something that stops you doing something that you want to do. If it doesn't stop you then it's not a disability. I'm feeling very philosophical tonight!! Focus on the positive is my advice. Ms I read this post earlier today and have been trying to work out why it struck a 'negative' cord. I'm afraid I haven't been able to. I respectfully ask Rojo or Sirena to explain why you reacted the way you did to this post, I get the impression it upset you and I'd hate to make the same mistake. " I think it's the assumption that a disability is non-existent if it doesn't stop you from doing something: utter nonsense of course. I have a colleague that had his leg amputated below the knee last year. He has a prosthetic limb fitted so he's able to walk. The above comment would suggest since he can still walk he's not disabled. I'm sure he'd disagree! | |||
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" I agree: I'm a fan too That's it I'm blushing! " You've a great handle/username too! (BlackSpice explodes from embarrassment xD) | |||
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"A disability is something that stops you doing something that you want to do. If it doesn't stop you then it's not a disability. I'm feeling very philosophical tonight!! Focus on the positive is my advice. Ms I read this post earlier today and have been trying to work out why it struck a 'negative' cord. I'm afraid I haven't been able to. I respectfully ask Rojo or Sirena to explain why you reacted the way you did to this post, I get the impression it upset you and I'd hate to make the same mistake. I think it's the assumption that a disability is non-existent if it doesn't stop you from doing something: utter nonsense of course. I have a colleague that had his leg amputated below the knee last year. He has a prosthetic limb fitted so he's able to walk. The above comment would suggest since he can still walk he's not disabled. I'm sure he'd disagree!" Not to mention those with disabilities which are not visible such as autism.i hope my son is never stopped from achieving anything he wants,it doesnt change the fact he is disabled though. | |||
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"A disability is something that stops you doing something that you want to do. If it doesn't stop you then it's not a disability. I'm feeling very philosophical tonight!! Focus on the positive is my advice. Ms I read this post earlier today and have been trying to work out why it struck a 'negative' cord. I'm afraid I haven't been able to. I respectfully ask Rojo or Sirena to explain why you reacted the way you did to this post, I get the impression it upset you and I'd hate to make the same mistake. I think it's the assumption that a disability is non-existent if it doesn't stop you from doing something: utter nonsense of course. I have a colleague that had his leg amputated below the knee last year. He has a prosthetic limb fitted so he's able to walk. The above comment would suggest since he can still walk he's not disabled. Another assumption drawn from what I said. I was just trying (in vain) to be positive about overcoming difficulties/disabilities. I'm sure he'd disagree!" | |||
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"A disability is something that stops you doing something that you want to do. If it doesn't stop you then it's not a disability. I'm feeling very philosophical tonight!! Focus on the positive is my advice. Ms I read this post earlier today and have been trying to work out why it struck a 'negative' cord. I'm afraid I haven't been able to. I respectfully ask Rojo or Sirena to explain why you reacted the way you did to this post, I get the impression it upset you and I'd hate to make the same mistake. " What I trying to say was this, I have CP and have never walked so I've never missed it but I can have full sex but just imagine if someone who is able-bodied guy lets say an accident breaks their spine and they don't have feeling from the neck down they would confined to a chair and no sex, just think how your life would change. As for the comment about Stephen Hawkins, its something I regret. | |||
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"Always had a day-dream fantasy thing about having a blind girlfriend/wife. She'd be especially vulnerable and I could take care of her! Sound strange when I put it like that, it's a 'kitten-complex', you have these cuddly cute little fellows, kittens and puppies, and you like them because they are fluffy and vulnerable chaps, and I think I'd feel the same way about a blind girl (with a nice pony-tail, lol!) " I could introduce you to just such a woman Adarkhorse, My vanilla GF, we're at a party in Southampton on Saturday if you're free - strictly non swinging vanilla party though | |||
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"I respectfully ask Rojo or Sirena to explain why you reacted the way you did to this post, I get the impression it upset you and I'd hate to make the same mistake. " Because, as I've already said, it was patronising. It also showed a profound lack of understanding of any of the issues that people with disabilities deal with. As with most subjects, if you don't know what you're talking about it's usually best to say nothing. To give an example along the same lines, the government is about to remove certain essential benefits that disabled people receive in order to help them live (very slightly) more equal lives. They are changing the criterion of mobility to the criterion of access - ergo, if you use a wheelchair you must be mobile and therefore can access places. This completely ignores the fact that the majority of the built environment cannot be accessed by wheelchair users, or even by disabled people who don't use a wheelchair but still struggle with mobility. But hey, the government says that because a law was passed that says buildings should where possible be made accessible we must therefore all be able to access all p[laces and thus do not need benefits. Problem solved. It's the same kind of ludicrous thinking as that in the post we objected to. | |||
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" The truth is that it is society that disables, people are just different, and therefore they deserve equal respect. We are gradually improving the built environment so that we live in a more inclusive society, yet still systemic discrimination towards people exists, individual attitudes towards people that are disabled continue, violence and hatred of disabled people is increasing, and that is why it is crucial that all people disabled or not promote the positiveness and become disability confident. Only by dismantleing the barriers can we start to fully accept people for what they are, how they contribute and what a far more miserable world we would live in without their diversity. We shouldn't rely on statistics but to add further to an earlier post 1 in 4 of the population are or will become a disabled person within their lifetime, they will have friends or family that have a health condition or are impeded from living their life and conducting day to day duties without difficulty. I am extremely self confident about how I am disabled by sociedue to a continued reliance of an image conscious world, yet I don't allow that to preoccupy my life, on fab I only ask for some accommodation and understanding - the disabling world I live in I am quite happy to talk about for hours and hours, just don't ask me "when did you lose your sight" or make such assumptions on how dreadful it must be living life blind! You wouldn't ask a black man or woman that so accept us for our diversity and let us all concentrate on living a jolly fun and happy life. xx TT " I totally agree, TactileTechnician. I too support the social model theory of disability, which says it is society that disables us and prevents us from being treated equally. Even the Disability Discrimination Act underpins this _iew in that the law says discriminating against disabled people is only a civil offence and the onus is the discriminated person to bring a court case (and try doing that if your only income is meagre disability benefits cos you won't get legal aid). Discriminating on racial, gender or religious grounds is a criminal offence, though. Disability hate crime is rising at a shocking rate, partly because the current government has spent the last year painting disabled people as feckless scroungers. Yet the police often fail to investigate and prosecute offenders. On here, it saddens me when people air their prejudices about disability. As has been said, disabled people usually just need a little extra flexibility and understanding from people when it comes to sorting out a meet. But if you don't want to meet someone with disabilities, that's fine, it's your choice, but please don't come in here telling us we just need to be positive and then we won't be disabled any more, cos it's bollocks. | |||
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" The truth is that it is society that disables, people are just different, and therefore they deserve equal respect. We are gradually improving the built environment so that we live in a more inclusive society, yet still systemic discrimination towards people exists, individual attitudes towards people that are disabled continue, violence and hatred of disabled people is increasing, and that is why it is crucial that all people disabled or not promote the positiveness and become disability confident. Only by dismantleing the barriers can we start to fully accept people for what they are, how they contribute and what a far more miserable world we would live in without their diversity. We shouldn't rely on statistics but to add further to an earlier post 1 in 4 of the population are or will become a disabled person within their lifetime, they will have friends or family that have a health condition or are impeded from living their life and conducting day to day duties without difficulty. I am extremely self confident about how I am disabled by sociedue to a continued reliance of an image conscious world, yet I don't allow that to preoccupy my life, on fab I only ask for some accommodation and understanding - the disabling world I live in I am quite happy to talk about for hours and hours, just don't ask me "when did you lose your sight" or make such assumptions on how dreadful it must be living life blind! You wouldn't ask a black man or woman that so accept us for our diversity and let us all concentrate on living a jolly fun and happy life. xx TT " That's a great post. I agree with the concept and the logic that, as you say, 'it is society that disables, people are just different'. You have explained it very well. Does that also mean that in a 'utopia' or ideal society the environment we are born into and grow within would not 'disable' anyone? I know we are a very long way from any such 'utopia' and as Serena has eluded to in her post, we seem to be moving backwards as a society in some respects. My question is (and please excuse my lack of understanding from the perspective of a disabled person, that's why I ask the question) in an ideal 'fantasy' world that does not disable anyone, would people still be labled disabled or would they just be accepted as being different? Or do you think in a society sadly obsessed with labelling, we'd just come up with another label? | |||
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"I agree with the concept and the logic that, as you say, 'it is society that disables, people are just different'. You have explained it very well. Does that also mean that in a 'utopia' or ideal society the environment we are born into and grow within would not 'disable' anyone? I know we are a very long way from any such 'utopia' and as Serena has eluded to in her post, we seem to be moving backwards as a society in some respects. My question is (and please excuse my lack of understanding from the perspective of a disabled person, that's why I ask the question) in an ideal 'fantasy' world that does not disable anyone, would people still be labled disabled or would they just be accepted as being different? Or do you think in a society sadly obsessed with labelling, we'd just come up with another label?" I don't have any issue with being described as disabled, it's preferable to the PC term "differently abled" which was popular in the 1980s, because the fact is that my medical condition does limit my abilities on a daily basis. It means I'm not allowed to hold a driving licence any more and it means I'm not safe to do a number of things that until 15 years ago I wouldn't have given a second thought to, such as cycling or standing on step stools. I'm extremely independent and always have been but I've been living alone for the past 3 years and am now being forced to confront the fact that as I get older I will need more help for more things as it's likely my condition will slowly worsen. Every thing I do every day is for me a case of risk assessment/management. I probably shouldn't cook alone, for example, because of the risk of fire or injury if I have an attack while doing so. Yet I do, every day. Of course, I take steps to lessen the risks but I'm still risking life and limb. It took me a year to find a coffee table to buy for my home because every time I went looking for one they all had glass tops and I can't have glass topped furniture because of the risk I could fall through it during an attack. In an ideal world the built environment around me and other disabled people would be hugely more accessible and people's attitudes would be more accepting but we are a very, very long way off that. | |||
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"I'd get rid of the status, of make it more of an innuendo, also that daft legal warning taking up half of your profile. +1 ,i ahve a general rule of not meeting anyone with the warning,it shows a mentality that does not attract me." The legals warnings count for nothing. How many people on here are going to actually take legal action against any organisations that used their details. The expense and publicity would be terrible. It more likely to be other internet users rather than an organisation that use your photos and details. If any orginastions are reading this, please feel free to use my details | |||
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"without sounding rude (i also use a WC for a snapped acl in my knee when it plays up not the same but i know how it feels when people look at you like shit when your out) what i would be thinking is can he do the things i need to get into it fully . it says on your profile your in your WC full time . so i wud be thinking can you support yourself , i like to be thrown around the bed lifted up and fucked ect ... so what wud put me off is the thought that maybe you wud want me to do all the work lol so what maybe help is letting people know what you can and cant do " Not only do society _iew people in different ways. Disabled people also _iew themselves in different ways as well. | |||
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" I don't have any issue with being described as disabled, it's preferable to the PC term "differently abled" which was popular in the 1980s, because the fact is that my medical condition does limit my abilities on a daily basis. It means I'm not allowed to hold a driving licence any more and it means I'm not safe to do a number of things that until 15 years ago I wouldn't have given a second thought to, such as cycling or standing on step stools. I'm extremely independent and always have been but I've been living alone for the past 3 years and am now being forced to confront the fact that as I get older I will need more help for more things as it's likely my condition will slowly worsen. Every thing I do every day is for me a case of risk assessment/management. I probably shouldn't cook alone, for example, because of the risk of fire or injury if I have an attack while doing so. Yet I do, every day. Of course, I take steps to lessen the risks but I'm still risking life and limb. It took me a year to find a coffee table to buy for my home because every time I went looking for one they all had glass tops and I can't have glass topped furniture because of the risk I could fall through it during an attack. In an ideal world the built environment around me and other disabled people would be hugely more accessible and people's attitudes would be more accepting but we are a very, very long way off that. " People take the words disability or disabled to mean different things. Does disabled refer to the actual medical condition? Or does it refer to the things the medical condition stops an individual from doing or achieving (because of our 'disabling' society)? E.g driving. | |||
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" I don't have any issue with being described as disabled, it's preferable to the PC term "differently abled" which was popular in the 1980s, because the fact is that my medical condition does limit my abilities on a daily basis. It means I'm not allowed to hold a driving licence any more and it means I'm not safe to do a number of things that until 15 years ago I wouldn't have given a second thought to, such as cycling or standing on step stools. I'm extremely independent and always have been but I've been living alone for the past 3 years and am now being forced to confront the fact that as I get older I will need more help for more things as it's likely my condition will slowly worsen. Every thing I do every day is for me a case of risk assessment/management. I probably shouldn't cook alone, for example, because of the risk of fire or injury if I have an attack while doing so. Yet I do, every day. Of course, I take steps to lessen the risks but I'm still risking life and limb. It took me a year to find a coffee table to buy for my home because every time I went looking for one they all had glass tops and I can't have glass topped furniture because of the risk I could fall through it during an attack. In an ideal world the built environment around me and other disabled people would be hugely more accessible and people's attitudes would be more accepting but we are a very, very long way off that. People take the words disability or disabled to mean different things. Does disabled refer to the actual medical condition? Or does it refer to the things the medical condition stops an individual from doing or achieving (because of our 'disabling' society)? E.g driving. " the definition of disablity is: an illness, injury or condition that makes it difficult for someone to do the things that other people do a physical/learning disability She is deaf, but refuses to let her disability prevent her from doing what she wants to do. Trying to change attitudes to disability is an uphill struggle clear as mud....i think | |||
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"Not only do society _iew people in different ways. Disabled people also _iew themselves in different ways as well. " We do not. | |||
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"People take the words disability or disabled to mean different things. Does disabled refer to the actual medical condition? Or does it refer to the things the medical condition stops an individual from doing or achieving (because of our 'disabling' society)? E.g driving. " Both. | |||
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"People take the words disability or disabled to mean different things. Does disabled refer to the actual medical condition? Or does it refer to the things the medical condition stops an individual from doing or achieving (because of our 'disabling' society)? E.g driving. Both. " That's interesting because clearly not all 'disabled' people agree. I spoke with a disabled colleague in person today who does not believe the word disabled refers to his medical condition, but to the things his medical condition stops him doing. He doesn't like the word. He mentioned 'the social model of disability', something I think you refered to in an earlier post. That appears to also suggest a medical condition that causes functional limitations need not necessarily lead to a disability, it blames society for disability. I think this topic can be tricky to discuss because the different perceptions and _iews held make it an easy one to unwittingly cause offence. I've learnt from this thread and from talking to some outside of it, been interesting. | |||
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"That's interesting because clearly not all 'disabled' people agree. I spoke with a disabled colleague in person today who does not believe the word disabled refers to his medical condition, but to the things his medical condition stops him doing. He doesn't like the word. He mentioned 'the social model of disability', something I think you refered to in an earlier post. That appears to also suggest a medical condition that causes functional limitations need not necessarily lead to a disability, it blames society for disability. I think this topic can be tricky to discuss because the different perceptions and _iews held make it an easy one to unwittingly cause offence. I've learnt from this thread and from talking to some outside of it, been interesting. " In saying "both" I was referring to a range of _iewpoints, not necessarily my own. | |||
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"That's interesting because clearly not all 'disabled' people agree. I spoke with a disabled colleague in person today who does not believe the word disabled refers to his medical condition, but to the things his medical condition stops him doing. He doesn't like the word. He mentioned 'the social model of disability', something I think you refered to in an earlier post. That appears to also suggest a medical condition that causes functional limitations need not necessarily lead to a disability, it blames society for disability. I think this topic can be tricky to discuss because the different perceptions and _iews held make it an easy one to unwittingly cause offence. I've learnt from this thread and from talking to some outside of it, been interesting. In saying "both" I was referring to a range of _iewpoints, not necessarily my own. " Which one is yours then? | |||
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"She is deaf, but refuses to let her disability prevent her from doing what she wants to do. Disability? Hmm an interesting notion. DEAF is a culture it is not a disability. DEAF people communicate using their own language and therefore are only disabled in the manner that another person is disabled from understanding somebody else that doesn't speak the same language. " I should point out TactileTechnician is not referring to me. I am not deaf, as any fabbers who have met me will know. However, I have several deaf friends and I would agree that deaf people see their difference as cultural rather than a physical disability. Deafness is unique in that sense (pun not intended). In my own case, I consider myself legally disabled as my medical condition is included in the disability laws, and for people who have it worse than me it can be extremely physically disabling. From a daily point of _iew, I don't really because I'm not too hindered by the built environment and my problems are largely caused by other people's attitudes to the condition I have. However, my disability is also what's called a hidden disability - you wouldn't know I am disabled unless I told you or saw me having an attack - I can walk, talk, see, hear and do pretty much 99% of what non-disabled people can do. Obviously, this has a lot of advantages for me as it means I can maintain a very high degree of independence. Although I can't drive, as I have said, or take a bath alone and if I was younger and starting my career I'd discover that I'd be barred from certain jobs (including the police and armed forces). However, my medical condition has never had any effect on my sex life or sexuality. And actually, that's the case for most disabled people - we all still have sexual desires and feelings and can for the most part have sex unaided (some people may need some extra assistance if very severely disabled). With a new partner, the only thing I need to do is give them a very short first aid briefing, for example - just in case (never needed yet!). The downside is that because my disability is hidden I have to fight in public almost daily for my rights. I am fed up of being told I can't use the disabled toilet and as for asking someone to give up the disabled seat on a bus, nightmare. Passengers see a woman in high heels and think, no, tell me I'm not disabled. Except I need that seat and the extra space it gives me in case I have an attack. And I need the extra space in the disabled loom, as well as knowing there is an alarm cord in there so I can call for help if I need it. Plus there is the level of risk I live with every day for my safety, which needs constant management. And then there is the risk of sudden death, something my otherwise utterly lovely consultant didn't tell me when he diagnosed me - I only found out by chance some 7 years later. | |||
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"This thread has been tremendously fascinating and if it has helped by increasing peoples awareness towards disability that has to be a bonus. Sirena has been extremely erudite in explaining her _iews, but I'm going to throw a spanner in here and further confuse what I think was clear and has been well promoted. She is deaf, but refuses to let her disability prevent her from doing what she wants to do. Disability? Hmm an interesting notion. DEAF is a culture it is not a disability. DEAF people communicate using their own language and therefore are only disabled in the manner that another person is disabled from understanding somebody else that doesn't speak the same language. " Good post, makes you question the basis on which we take things for granted. | |||
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"......I have several deaf friends and I would agree that deaf people see their difference as cultural rather than a physical disability. Deafness is unique in that sense (pun not intended). " Why is deafness 'unique in that sense'? Afterall there is still an underlying 'medical condition'. I do understand what you and others have said about the cultural aspect and society being disabling etc, but I don't understand why it's unique for deafness? | |||
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"......I have several deaf friends and I would agree that deaf people see their difference as cultural rather than a physical disability. Deafness is unique in that sense (pun not intended). Why is deafness 'unique in that sense'? Afterall there is still an underlying 'medical condition'. I do understand what you and others have said about the cultural aspect and society being disabling etc, but I don't understand why it's unique for deafness?" Deafness is the only disability that is cultural rather than medical, for reasons TT has already explained. Not having hearing doesn't stop you from doing anything except hear. And you don't need to be able to hear to communicate - sign language is a language like any other. It has its own vocabulary, slang and jokes etc like any spoken language. This is the major difference between deaf people and other disabled people. If I lost my sight tomorrow I would become profoundly disabled at a stroke because I'd need to spend months being trained to function without vision until I'd learned new skills to take care of myself - washing, dressing, cooking, getting around, etc without assistance. Only then would I be less disabled, because I'd have achieved independence again but I'd still be living in a world designed for people who can see because much of the built environment assumes you can and is not designed for those who can't. Imagine if you were in a plane crash on a remote island and were the only survivor. Then you suddenly get found by the local tribe, who tend your wounds and feed you while you recover. But you can't talk to them because they don't know any English and you don't know their language. You'd be as disabled as a deaf person in such circumstances until you and the tribe start learning each other's languages. However, once you'd picked up the language skills your disability would disappear. Deaf-mutes (can't speak either) are very rare but many deaf people can speak fine although us hearing people might have trouble understanding some of their pronunciation because they cannot hear how they sound so don't always get it "right", even if they use hearing aids as these can distort sound. Two deaf friends of mine use a combination of hearing aids and lipreading to function in the hearing world. One can sign, the other has never bothered to learn but now finds he is disabled in the company of other deaf people who only sign! | |||
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"......I have several deaf friends and I would agree that deaf people see their difference as cultural rather than a physical disability. Deafness is unique in that sense (pun not intended). Why is deafness 'unique in that sense'? Afterall there is still an underlying 'medical condition'. I do understand what you and others have said about the cultural aspect and society being disabling etc, but I don't understand why it's unique for deafness? Deafness is the only disability that is cultural rather than medical, for reasons TT has already explained. Not having hearing doesn't stop you from doing anything except hear. And you don't need to be able to hear to communicate - sign language is a language like any other. It has its own vocabulary, slang and jokes etc like any spoken language. This is the major difference between deaf people and other disabled people. If I lost my sight tomorrow I would become profoundly disabled at a stroke because I'd need to spend months being trained to function without vision until I'd learned new skills to take care of myself - washing, dressing, cooking, getting around, etc without assistance. Only then would I be less disabled, because I'd have achieved independence again but I'd still be living in a world designed for people who can see because much of the built environment assumes you can and is not designed for those who can't. Imagine if you were in a plane crash on a remote island and were the only survivor. Then you suddenly get found by the local tribe, who tend your wounds and feed you while you recover. But you can't talk to them because they don't know any English and you don't know their language. You'd be as disabled as a deaf person in such circumstances until you and the tribe start learning each other's languages. However, once you'd picked up the language skills your disability would disappear. Deaf-mutes (can't speak either) are very rare but many deaf people can speak fine although us hearing people might have trouble understanding some of their pronunciation because they cannot hear how they sound so don't always get it "right", even if they use hearing aids as these can distort sound. Two deaf friends of mine use a combination of hearing aids and lipreading to function in the hearing world. One can sign, the other has never bothered to learn but now finds he is disabled in the company of other deaf people who only sign! " But what about the profoundly deaf people whose hearing aids go funny when there in busy noisy enviroments, they need help becasue they become disorientated and there balance is bad | |||
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"But what about the profoundly deaf people whose hearing aids go funny when there in busy noisy enviroments, they need help becasue they become disorientated and there balance is bad" Says who? Have deaf people themselves told you this? I'm curious to know on what facts you are basing this. Balance has nothing to do with hearing, by the way, even though both happen inside the ear. They do not affect each other. | |||
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"It's worth remembering that Deafness and deafness are disabilities within the terms of the Disability Discrimination Act so, yes, it may be primarily cultural but there are loads of d/Deaf people who do not considered themselves to be disabled yet benefit from some of the protections the DDA offered." Absolutely. It is right that deafness is included within the DDA because the social model of disability shows that deaf people face discrimination as much as other disabled people do, for example in employment. Also, some deaf people may have other disabilities too. In terms of benefits, deafness like other disabilities means it can be more expensive to live day to day. The Disability Living Allowance, for example is meagre but it is non-means tested so you can claim whether employed or unemployed but its aim is to help pay towards the extra costs of having a disability. It's also VERY difficult to make a successful claim for it despite what some papers would have you believe. For deaf people, DLA could be used to help pay for having an assistance dog, for example, or paying privately for hearing aids as NHS ones can be very basic. DLA is a gateway benefit in that if you are entitled to it, it then means you can access other non-state benefits such as a Disabled Person Railcard, which allows you not just discounted train travel for yourself but also for a travelling companion acting as your carer. You can't get the national disabled concession bus pass either without showing proof of receipt of DLA. This is why disabled people are very concerned about the attack on disability welfare right now - we face losing not just DLA but the gateway benefits we can access through it. I am fairly sure I will lose my DLA in the shake-up - it goes almost entirely on subsidising my mobility needs, including free bus travel and reduced train fares and this enables me to keep working. Without my DLA I may well have to stop working and depend on the state for support, which benefits no one, certainly not the tax payers (and I am one as a worker so I pay into the communal pot with my taxes and NI - that contribution from me will disappear if I have to stop working). | |||
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"But what about the profoundly deaf people whose hearing aids go funny when there in busy noisy enviroments, they need help becasue they become disorientated and there balance is bad Says who? Have deaf people themselves told you this? I'm curious to know on what facts you are basing this. Balance has nothing to do with hearing, by the way, even though both happen inside the ear. They do not affect each other. " Yes deaf people have told me this, my sister worke with a young guy who was prfoundly deaf. When he was in busy built up areas ie a city or crossing roads where there was alot of traffic he needed to walk linking arms with some one as his balance was unstable and he became disorientated. | |||
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"But what about the profoundly deaf people whose hearing aids go funny when there in busy noisy enviroments, they need help becasue they become disorientated and there balance is bad Says who? Have deaf people themselves told you this? I'm curious to know on what facts you are basing this. Balance has nothing to do with hearing, by the way, even though both happen inside the ear. They do not affect each other. " Do profoundly deaf people use hearing aids? My understanding is that profoundly deaf people can't benefit from hearing aids - in exactly the same way as totally blind people won't benefit from spectacles. | |||
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"But what about the profoundly deaf people whose hearing aids go funny when there in busy noisy enviroments, they need help becasue they become disorientated and there balance is bad Says who? Have deaf people themselves told you this? I'm curious to know on what facts you are basing this. Balance has nothing to do with hearing, by the way, even though both happen inside the ear. They do not affect each other. Do profoundly deaf people use hearing aids? My understanding is that profoundly deaf people can't benefit from hearing aids - in exactly the same way as totally blind people won't benefit from spectacles." Ok severely deaf whatever you want to call people that wear strong hearing aids | |||
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"All disabled people have different needs. All disabled people have different _iews on disability. This thread is proof of that. Disabled people are individuals just like everyone else so therefore will all act and think differently. It is unlawful to discriminate against disabled people and there are "crutches" in the form of careers, equipment ect out there for those that need it to lead as much as a full life as is possible dependant on the disability" Well said. Your so right. I would add that the fact there are so many different _iews on disability from people with 'disabilities' can make an open conversation on such a potentially sensitive subject rare. It's so easy for an 'able' person to unwittingly offend a 'disabled' person by voicing an alternative _iew to theirs, even if that 'able' person has good awareness and their _iew is held by other disabled people! I guess it's the same with some other subject matters. I'm from the camp that promotes as much open discussion about 'sensitive' subjects as possible, it helps to raise the bar of awareness. | |||
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"I saw an article sometime ago of some guys who are at the forefront of developing a microchip and electrode 'machine' that will eventually allow blind people to see. I have seen cars that drive themselves, you don't touch the brakes accelerator or steering wheel, the technology is here today. If you are disabled by society from driving, society will progress to eradicate that disability one day. Stephen Hawkins can talk, all be it via a machine, but imagine the technology in 10, 20, 100 years. I would suggest that some of the disabilities of yesterday are the diseases and medical conditions of today. As a society we have technical and medical advances that reduce the impact of medical conditions on the life of the individual. So I respectfully ask, when does a disability stop being a disability and become just a medical condition*. Is it when society has developed the culture, and technology so that the individual with the medical condition can do all the things they want to? The definition suggests this is the case, am I missing something? Or is a disability always a disability, no matter what? - * by use of the word 'just' I mean no disrespect that the medical condition may be a serious one. " A lot of people use technology already to manage living with disabilities. You mention Stephen Hawking but there are also deaf people who use cochlear implants and people with epilepsy who have a vagal nerve stimulator (VNS) - two great examples of implanted technology through surgery. There's also the more obvious things such as prosthetic limbs for amputees, some of which look pretty bionic. I'd say, though, that as fantastic as surgical advances through technology can be, they do not cure the disability - the best they can do is make living with it better/easier/more manageable. So talk of "eradication" is misleading. | |||
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"All disabled people have different needs. All disabled people have different _iews on disability. This thread is proof of that. Disabled people are individuals just like everyone else so therefore will all act and think differently. It is unlawful to discriminate against disabled people and there are "crutches" in the form of careers, equipment ect out there for those that need it to lead as much as a full life as is possible dependant on the disability Well said. Your so right. I would add that the fact there are so many different _iews on disability from people with 'disabilities' can make an open conversation on such a potentially sensitive subject rare. It's so easy for an 'able' person to unwittingly offend a 'disabled' person by voicing an alternative _iew to theirs, even if that 'able' person has good awareness and their _iew is held by other disabled people! I guess it's the same with some other subject matters. I'm from the camp that promotes as much open discussion about 'sensitive' subjects as possible, it helps to raise the bar of awareness. " Ive been thinking about this and the only solution i can come up with is changing the word disabled. The word disabled straight away gives of negative vibes. When we here the word disabled we automatically jump to conclusions, no we dont think of steven hawkins but we do think its something that inpacts on that persons life in a big way. If disability means imperfection than the range of disabilites is incredible. If we sub catogarized disabily and and prefixed the word it might be easier for people to understand. Here some examples Able bodied midly disabled Able bodied moderatly disabled Able bodied severely disabled Wheelchair user midly disabled and so on But the catogaries wouldnt depend on the illness but what impact it has on your life. Example, if someone is in a wheelchair but it has none or very little impact on their lives they would come under wheelchair user midly disabled. Which would mean they need wheelchair access but apart from that pretty much look afterthemselves. So the level of disability wouldnt be on what the condition was but on what impact it had on someones life. Someone with agrophobia would fall into a higher catogary because it stops them doing more. I dont think people need to know what someones disability is but the needs they have because of it. Straight away by using the groups ive given if someone ws to say to you over the telephone they where moderatly disabled, you would know that they need a reasonable level of help to get around. Unless we are going to be dealing with a person everyday on either a work basis, personal basis, relationship basis. | |||
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"Ive been thinking about this and the only solution i can come up with is changing the word disabled. The word disabled straight away gives of negative vibes. When we here the word disabled we automatically jump to conclusions, no we dont think of steven hawkins but we do think its something that inpacts on that persons life in a big way. If disability means imperfection than the range of disabilites is incredible. If we sub catogarized disabily and and prefixed the word it might be easier for people to understand. Here some examples Able bodied midly disabled Able bodied moderatly disabled Able bodied severely disabled Wheelchair user midly disabled and so on But the catogaries wouldnt depend on the illness but what impact it has on your life. Example, if someone is in a wheelchair but it has none or very little impact on their lives they would come under wheelchair user midly disabled. Which would mean they need wheelchair access but apart from that pretty much look afterthemselves. So the level of disability wouldnt be on what the condition was but on what impact it had on someones life. Someone with agrophobia would fall into a higher catogary because it stops them doing more. I dont think people need to know what someones disability is but the needs they have because of it. Straight away by using the groups ive given if someone ws to say to you over the telephone they where moderatly disabled, you would know that they need a reasonable level of help to get around. Unless we are going to be dealing with a person everyday on either a work basis, personal basis, relationship basis. " I can't begin to explain how offended I am by this. Firstly, perhaps before you start touting "solutions" you should find out the _iews of the disabled community themselves, instead of deciding to relabel us from the top down. This is typical of the old "does he take sugar?" attitude in which the ablebodied decide what's best for disabled people. Excuse me - we're quite capable of advocating for ourselves, thanks very much. We do not need to be further patronised. I find this new list that ranks people by disability incredibly offensive, too. It's as bad as the tags the government currently uses to rate people according to how much care package and/or benefits they are entitled to receive and we all know how accurate that is! That is to say, not at all. You can't make assumptions about anyone's needs just because they say over the phone they are "moderately disabled". It's meaningless in any practicab;e sense. Why? Because we are all individuals, with individual needs. One person's moderate disability and need for help will never be identical to another person with a so-called moderate disability. Too angry to type anymore for fear of breaking forum rules. Except to say once again, it's offensive and I'm disgusted. | |||
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"And another thing, disability does NOT mean imperfection. " I think you will find in some cases it is. If you want to be offended then that is your right. But you have basically said what i said in my previous post about all disabled people being individuals. YOU as a disabled person can speak for yourself, and the people you know/ are in contact with. But please dont assume that you are speaking for ALL disabled people. Plus it was merely a suggestion, if you cant disagree with a suggestion and put your own suggestions forward without becoming deeply offended then that is entirely up to you. The intention was never their to offend anyone, but it also proves that "suggestions" cant even be suggested without someone getting offended by it. | |||
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" I'd say, though, that as fantastic as surgical advances through technology can be, they do not cure the disability - the best they can do is make living with it better/easier/more manageable. So talk of "eradication" is misleading. " I don't think 'cure the disability' is a good choice of words, if a disability arises when a person is restricted from an action or activity because of a medical condition. If you remove the restriction then you remove the disabling effect, the medical condition remains. Medical advances may one day cure the medical condition, which will in turn remove the disability. If technological advances can remove the 'disabling' effect of a medical condition then they surely eradicate that aspect of the disability (not the medical condition). Looking at an example mentioned earlier, driving, there are cars that you get into, state your destination, and sit back. The car 'drives itself' from A to B with zero steering, braking, acceleration from the 'driver'. The technology is already here :FACT. In the future it is believed all cars will travel this way. Come this day it is irrelevant whether it's someone currently 'disabled' from driving or me behind the wheel. Technology would have eradicated that aspect of the persons disability, their ability to transport themself by car. No one is remotely suggesting it 'cures' the medical condition, but would they still be classed as disabled when it comes to driving? | |||
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" I can't begin to explain how offended I am by this. Firstly, perhaps before you start touting "solutions" you should find out the _iews of the disabled community themselves, instead of deciding to relabel us from the top down. This is typical of the old "does he take sugar?" attitude in which the ablebodied decide what's best for disabled people. Excuse me - we're quite capable of advocating for ourselves, thanks very much. We do not need to be further patronised. I find this new list that ranks people by disability incredibly offensive, too. It's as bad as the tags the government currently uses to rate people according to how much care package and/or benefits they are entitled to receive and we all know how accurate that is! That is to say, not at all. You can't make assumptions about anyone's needs just because they say over the phone they are "moderately disabled". It's meaningless in any practicab;e sense. Why? Because we are all individuals, with individual needs. One person's moderate disability and need for help will never be identical to another person with a so-called moderate disability. Too angry to type anymore for fear of breaking forum rules. Except to say once again, it's offensive and I'm disgusted. " I'll start by saying I'm very saddened that you have been offended to this degree. It's a shame to think that this thread has offended anyone. That said I know from experience what it feels like to be offended, I understand the difference between someone intentionally insulting, someone not caring whether they offend or not, and someone with absolutely no intention of causing offence. It is clear to anyone reading this thread that Diamond falls into the last category. I believe your reaction is over the top. This thread was an opportunity for you to help others less aware about the finer points of a very difficult subject for 'able' bodied people to debate. Your reaction to an opinion and suggestion demonstrates why most people would just choose to pass a topic like this by. You may be disgusted by what I'm saying, I can assure you it's not personal but I'm not here for popularity I'm here to say what I believe and I believe your reaction was unfair in the context of the debate. | |||
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"........... Ive been thinking about this and the only solution i can come up with is changing the word disabled. The word disabled straight away gives of negative vibes. ................. " Our American cousins tried to popularise the expression 'differently abled'. It never really caught on. | |||
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"Quality TT, that post is absolutely top draw. Well said fella. " Ditto from us. Fantastic post TT. | |||
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"Yeah I looked xx To me , your status message and first paragraph sounds negative, but obviously only to me x" wow rugby your good , mmm wanna check mine for me xx | |||
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