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Psoriasis sufferers

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By *enny79 OP   TV/TS
over a year ago

chesterfield

I've got psoriasis quite bad in some places and v nervous with meets would it put people off me?

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By (user no longer on site)
over a year ago

Awwww in sure it wouldn't put people off, I'd to think it wouldn't anyway. Have you got any cream for it?

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By *enny79 OP   TV/TS
over a year ago

chesterfield


"Awwww in sure it wouldn't put people off, I'd to think it wouldn't anyway. Have you got any cream for it? "

I have to apply 3 different creams daily and a scalp solution every day still bearly keeps it under control

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By *LCCCouple
over a year ago

Cambridge

It fucking sucks doesn't it? I know your pain. Circlosporin, an immunosupresent works well for me, but as soon as I come off, the psoriasis comes back.

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By (user no longer on site)
over a year ago


"I've got psoriasis quite bad in some places and v nervous with meets would it put people off me?"

In all honesty - yes. That might put me off. The way people look is always going to be a factor (although of varying importance) in meeting people and to say otherwise on a swingers site is somewhat naive.

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By (user no longer on site)
over a year ago

It does suck OP.

I get patches of the same through stress. Even on my face. Some days it looks bad others it doesn't. But to honest I have never had anyone comment on it or even turn me down for being a freak!!

I'd more likely exchange make up ideas with you.

If people are judgemental of a skin condition of this kind. I'd say don't bother meeting them.

It's life. And plenty of people have it. And as others have said. 'It sucks'

Mrs x

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By *inky-MinxWoman
over a year ago

Grantham

This may sound odd but Google & read up on dairy and psoriasis

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By *awandOrderCouple
over a year ago

SW London


"This may sound odd but Google & read up on dairy and psoriasis "

I dint eat dairy and I have it. I have been on and off to the dermatologist very the years and manage most times to keep it under control to some level, and localised. Luckily Mr puts my treatments on, don't know what I would do without him ...

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By *inky-MinxWoman
over a year ago

Grantham


"This may sound odd but Google & read up on dairy and psoriasis

I dint eat dairy and I have it. I have been on and off to the dermatologist very the years and manage most times to keep it under control to some level, and localised. Luckily Mr puts my treatments on, don't know what I would do without him ..."

Might be something else that triggers it with you?

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By *enny79 OP   TV/TS
over a year ago

chesterfield


"This may sound odd but Google & read up on dairy and psoriasis

I dint eat dairy and I have it. I have been on and off to the dermatologist very the years and manage most times to keep it under control to some level, and localised. Luckily Mr puts my treatments on, don't know what I would do without him ..."

I've patches all over head to foot worse places are elbows head and groin will look up about dairy tho ty xx

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By (user no longer on site)
over a year ago

I have it on my thighs and elbows, stress and worry is my main trigger, that and chlorene, I use coconut oil on my skin for a flare up there's a great group on Fb for psoriasis sufferers. Its a closed group but lots of people who have every kind of p

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By *uxom redCouple
over a year ago

Shrewsbury

Sun light therapy worked wonders for mine. Go to your gp and ask to see a dermatologist who could get you a course of light therapy.

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By *LCCCouple
over a year ago

Cambridge


"Sun light therapy worked wonders for mine. Go to your gp and ask to see a dermatologist who could get you a course of light therapy. "

I tried that, went to hospital 3 times a week for about 3 months, eventually got rid of it, it started to come back less than a week after the treatment stopped, within a month it was just as bad as it was whenI started.

Psoriasis is cruel in the way a treatment can be a silver bullet for one person, and not work on another.

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By (user no longer on site)
over a year ago

I have had several meets with another lady on here who has psoriasis. It tends to be on her hands and knees mostly but can flare up on her tummy area.....she avoids meeting when it gets bad. But to be fair...if not in a "sensitive" area it does/would not bother me.

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By (user no longer on site)
over a year ago

ive tried sunbeds sometimes..if i have something coming up i maybe want to wear shorter skirt,nice dress etc...its really worked for me,seems to takes weeks for it to come back, but in the long term i guees theyre not ideal...i dont have it badly enough now to get light treatments from the nhs.

the trouble is that until they know what causes it, its pretty hard to come up with any cure.

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By (user no longer on site)
over a year ago

My ex used to use skin so soft by Avon she swore by it

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By (user no longer on site)
over a year ago

I George had this for years, on my scalp and knees sometimes elbows,

about 15 yrs ago I had a general which is a total body covering, it was very sore and itchy for 3 wks didn't know what to do with myself, docs tried alsorts of cures nothing worked,

then a specialist gave me some cream called lockoid, rubbed it in everywhere and woke in the morning it had calmed down, it wasn't red or sore just rough skin, he said that it had probably run its course but the cream realy did help, few days latter the skin on my hand cum of in chunks literally, that lasted a week ish and cleared up,

good news is I haven't had any more probs since its completely gone

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By (user no longer on site)
over a year ago

Cousin gets it bad and tried everything from Dr. He reckons vit e helps ,takes daily and opens the capsules and puts directly on areas.don't stop it but helps .

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By *abioMan
over a year ago

Newcastle and Gateshead


"

Psoriasis is cruel in the way a treatment can be a silver bullet for one person, and not work on another. "

this......

when i was first diagnosed with it (i suffer with it right on the top of my head) a lot of people suggested tar gel shampoo..... way too harsh for me and basically burnt my scalp....

in the end with with it has been a case of trial and error... and the thing that works for me and keeping mine under control is aloe vera... which i can either just grow a plane and chop a little off... or just go down to holland and barrett and get some....

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By (user no longer on site)
over a year ago

I have suffered for years and have had every medical way of helping because as we all know it can not be cured Recently my skin specialist suggested I start a treatment that involves an injection given by myself every 12 weeks called Stelara,this works well and my skin is now clear for the first time in many years.Husbands support helped me accept my skin and the people who called me names-thank you-he always said its their problem not mine.

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By (user no longer on site)
over a year ago


"

Psoriasis is cruel in the way a treatment can be a silver bullet for one person, and not work on another.

this......

when i was first diagnosed with it (i suffer with it right on the top of my head) a lot of people suggested tar gel shampoo..... way too harsh for me and basically burnt my scalp....

in the end with with it has been a case of trial and error... and the thing that works for me and keeping mine under control is aloe vera... which i can either just grow a plane and chop a little off... or just go down to holland and barrett and get some...."

this might sound like a stupid question,but do you drink aloe juice or apply gel?

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By *abioMan
over a year ago

Newcastle and Gateshead


"

Psoriasis is cruel in the way a treatment can be a silver bullet for one person, and not work on another.

this......

when i was first diagnosed with it (i suffer with it right on the top of my head) a lot of people suggested tar gel shampoo..... way too harsh for me and basically burnt my scalp....

in the end with with it has been a case of trial and error... and the thing that works for me and keeping mine under control is aloe vera... which i can either just grow a plane and chop a little off... or just go down to holland and barrett and get some....

this might sound like a stupid question,but do you drink aloe juice or apply gel? "

me.... i apply the gel...... so it is soothing.....

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By (user no longer on site)
over a year ago


"

Psoriasis is cruel in the way a treatment can be a silver bullet for one person, and not work on another.

this......

when i was first diagnosed with it (i suffer with it right on the top of my head) a lot of people suggested tar gel shampoo..... way too harsh for me and basically burnt my scalp....

in the end with with it has been a case of trial and error... and the thing that works for me and keeping mine under control is aloe vera... which i can either just grow a plane and chop a little off... or just go down to holland and barrett and get some....

this might sound like a stupid question,but do you drink aloe juice or apply gel?

me.... i apply the gel...... so it is soothing..... "

thank you!

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By (user no longer on site)
over a year ago

This is going to sound wacko BUT goats milk with solve it. I know that sounds crazy but have seen it work many times

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By (user no longer on site)
over a year ago


"This is going to sound wacko BUT goats milk with solve it. I know that sounds crazy but have seen it work many times "

Being a bit dim here - do you rub it on or drink it?

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By (user no longer on site)
over a year ago


"This is going to sound wacko BUT goats milk with solve it. I know that sounds crazy but have seen it work many times "

'will solve it' is a rather wild claim....i know it can help with eczema which is dairy sensitive, but claiming it will cure something that 1 in 10 people suffer from is a bit ridiculous. help,maybe, but 'solve' sorry,no.

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By (user no longer on site)
over a year ago

Hi there i suffer from the condition also.....I've been using dovovet.....its a steroid cream....It seems to work for me.......some people have said to me to use a sunbed as the uv light clears it or take a bath in Epsom salts and let yourself dry naturally after

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By *meenaTV/TS
over a year ago

chesterfield

hi i have had the same problem for years and use to have tar baths at the hospital and body stockings on i now have it under control by usin senses from avon its brill for me i hardly get any now it takes about a month before you see a dfference but i can wear anything now n dont even think about it which also does help

also dnt eat to much dairy products hopeit helps xx

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By (user no longer on site)
over a year ago

Another thing that works for some us porridge oats! Sounds mad I know but don't cook them, fill a thin sock, better still foot of tights and then use like a bath bomb. Needs to make water cloudy and repeat daily to get the benefit.

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By *ngel n tedCouple
over a year ago

maidstone

I get it on my elbows and knees, i think it's connected to my weight ie the fatter i get, the more stressed about it i get, the more rhino hide i grow. I don't think smoking helps it either. It's fucking annoying

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By (user no longer on site)
over a year ago


"Another thing that works for some us porridge oats! Sounds mad I know but don't cook them, fill a thin sock, better still foot of tights and then use like a bath bomb. Needs to make water cloudy and repeat daily to get the benefit. "

I work with an ex nurse and she advised me to do this - not tried it yet though.

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By (user no longer on site)
over a year ago


"Another thing that works for some us porridge oats! Sounds mad I know but don't cook them, fill a thin sock, better still foot of tights and then use like a bath bomb. Needs to make water cloudy and repeat daily to get the benefit.

I work with an ex nurse and she advised me to do this - not tried it yet though."

Give it a go as I say works for some

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By *izzygizzMan
over a year ago

manchester

I have had psoriasis for years, I went to the doctors 10 days ago, gave mr a gel called DOVOBET, it is brilliant, almost gone now, its slightly pink where my psoriasis was

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By (user no longer on site)
over a year ago


"Another thing that works for some us porridge oats! Sounds mad I know but don't cook them, fill a thin sock, better still foot of tights and then use like a bath bomb. Needs to make water cloudy and repeat daily to get the benefit.

I work with an ex nurse and she advised me to do this - not tried it yet though.

Give it a go as I say works for some "

Would I do this daily or weekly?

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By (user no longer on site)
over a year ago


"Another thing that works for some us porridge oats! Sounds mad I know but don't cook them, fill a thin sock, better still foot of tights and then use like a bath bomb. Needs to make water cloudy and repeat daily to get the benefit.

I work with an ex nurse and she advised me to do this - not tried it yet though.

Give it a go as I say works for some

Would I do this daily or weekly?"

Few times a week. Ideally daily to see if it makes a difference after a few days

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By (user no longer on site)
over a year ago

Vitamin D

Moisturiser

Blow Jobs

Works for me..

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By (user no longer on site)
over a year ago


"Another thing that works for some us porridge oats! Sounds mad I know but don't cook them, fill a thin sock, better still foot of tights and then use like a bath bomb. Needs to make water cloudy and repeat daily to get the benefit.

I work with an ex nurse and she advised me to do this - not tried it yet though.

Give it a go as I say works for some

Would I do this daily or weekly?

Few times a week. Ideally daily to see if it makes a difference after a few days "

Cool, thank you

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By (user no longer on site)
over a year ago

I get a small amount on my elbows but also a patch on my face, between my eyebrows if I am going through a particularly stressful time.

My mum has always suffered with it, mainly on her elbows and arms and she purchased a facial solarium and would sit with her elbows in front of it for a short period a few times a week.

It can make you feel self conscious, I try and hide the patch I have currently with my fringe.

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By (user no longer on site)
over a year ago

Just spotted this thread. I suffer. Quite a few patches. I am conscious of it but it's not stopped me playing or trying to play lol. Not yet found the treatment that works for me x

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By (user no longer on site)
over a year ago

I too am on stelara and its almost a miracle cure

tiny injections once every 3 months and I'm 99% clear after being at one point 95% covered and hospitalised twice

my specialist put me on methotrexate for 5 years and then cyclosporine but blood pressure probs forced me to stop

been on stellara for 3 years now and its fantastic

stubborn spots like scalp groins and crack of my buttocks still suffer

people stop staring at me like a leper on nudist beaches,

now they just stare at me like a beached whale!!!

seriously its changed my life

get onto your gp or specialist

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By (user no longer on site)
over a year ago


"I've got psoriasis quite bad in some places and v nervous with meets would it put people off me?"

R isn't a big lover of sun beds but he does find using them now and again clears his up.

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By *oughandCurvyCouple
over a year ago

galway

Mr has pretty it pretty bad, creams only keep it at bay as there really isn't any cure for it, he is pretty self conscious of it but as far as we know it hasn't effected our meets. If it is something you worry about your best bet is to be open about it, once people know what it is I think they are more sympathetic than anything else.

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By *oghunter33Woman
over a year ago

on the hill NordWest of


"Mr has pretty it pretty bad, creams only keep it at bay as there really isn't any cure for it, he is pretty self conscious of it but as far as we know it hasn't effected our meets. If it is something you worry about your best bet is to be open about it, once people know what it is I think they are more sympathetic than anything else."

This! I think once you let people know then there won't be any surprises or speculations.

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By *ELLONS AND CREAMWoman
over a year ago

stourbridge area

I have a friend who suffers with this ....

She swears by using sunbeds ... although I know they are not always advisable ...it works for her

...people who say they would be put off by meeting someone who happens to suffer from this .... to me are just plain shallow .... and just need to look in the mirror .... cause beauty is only skin deep ....

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By (user no longer on site)
over a year ago

This probs sounds daft,but yeah goats milk rubbed on,I used to get it real bad,shins n elbows,more when seasons changed wtf specially start of winter,steroid cream dovobet cleared it,did wonders for sores on pet cats ear too if i remember rightly! Avoid chocolate mostly now,guess it can be trial and error? Almost completely cleared up get occasional rim when feels like flare up but e45 sorts it out now,lucky I guess dont know why it started,n just ended

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By (user no longer on site)
over a year ago

Please, please, please if you have any skin condition DO NOT use sun beds to try and control your symptoms.

Sun beds are uncontrolled sources of UV light and are highly dangerous in terms of causing skin cancer. Why they are permitted to be sold/used by the general public I have no idea.

I've had light therapy and can no longer have it due to the very slight increase in risk of skin cancer due to repeated exposure to UV. That was under controlled conditions in hospital. Light therapy worked initially for me but gradually became less effective. If it works it is am amazing treatment, but as mentioned above, what works for one sufferer can have no impact on another.

Best thing is to talk to your GP, get referred to a dermatologist and discuss your options with them. But DON'T use sunbeds - please!

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By (user no longer on site)
over a year ago

Agree with joemangle about sunbeds. No, psoriasis wouldn't put me off. It's about the experience and the person, not all about the physical and image.

I suffer from a little eczema myself and like many others have parts of my body I don't like.

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By *he Devils Daughter!Woman
over a year ago

some where in yorkshire


"I have a friend who suffers with this ....

She swears by using sunbeds ... although I know they are not always advisable ...it works for her

...people who say they would be put off by meeting someone who happens to suffer from this .... to me are just plain shallow .... and just need to look in the mirror .... cause beauty is only skin deep .... "

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By *ucyfur77Woman
over a year ago

Pleasuretown

Hi OP,

Dovomex works, in moderation

Salcura Bioskin works and has natural ingredients. You can get at H&B or directly from their own site

LUSH Dream Cream worked but isn't cheap.

X

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By *LCCCouple
over a year ago

Cambridge

I have it too, I'm shy about showing it in photos, but in meetings no one seems to be bothered.

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By (user no longer on site)
over a year ago

I had two large plaques measuring two inches by two of psoriasis on my chest and stomach a few years back but wore basques to cover them when I met folk. I was very conscious of it. For me it flares up during severe stress and also for hormone reasons. Never had it since as bad thankfully

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By *uxom redCouple
over a year ago

Shrewsbury

Hemp rescue balm is helping mine at the moment

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By *imon_hydeMan
over a year ago

Stockport

Sunbed in moderation and trying to avoid stress help me...

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By *ockerMrBloggs6969Man
over a year ago

nr you but not too near


"Sun light therapy worked wonders for mine. Go to your gp and ask to see a dermatologist who could get you a course of light therapy. "
yep n get yr bits fried then you'll be on dermovate

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By (user no longer on site)
over a year ago

Try skin so soft by avon

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By *huckzMan
over a year ago

spalding


"I've got psoriasis quite bad in some places and v nervous with meets would it put people off me?"
try aveeno cream .....bin the doctors prescription creams they only work short term and never totally get rid of it.........aveeno do a range of products from shower cream face and body etc but are quite pricey .....worked for 3 people I know

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By (user no longer on site)
over a year ago


"I've got psoriasis quite bad in some places and v nervous with meets would it put people off me? try aveeno cream .....bin the doctors prescription creams they only work short term and never totally get rid of it.........aveeno do a range of products from shower cream face and body etc but are quite pricey .....worked for 3 people I know "

Aveeno can be given on perscripton by the hospital...my Mum has it and really does help her

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By (user no longer on site)
over a year ago

Dead Sea bath salts help and sanex when I get a flare up I use the sun beds x

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By *he Devils Daughter!Woman
over a year ago

some where in yorkshire


"I have it too, I'm shy about showing it in photos, but in meetings no one seems to be bothered."

I have it bad n I get shy and anxious about it when having meets n do forewarn the guy I'm meeting first but luckily like u said no one seems to be bothered

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By *iReyWoman
over a year ago

Cheshire East

I have it too, all over my legs, lower back, hips and arms. Recently found a patch forming on the back of my hand. Can't really offer any advice other than to say it's never put anyone off from playing with me, I'm sure you'll be fine

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By (user no longer on site)
over a year ago

I posted earlier but no one seems to have noticed

there is a 95% cure called stelara

injection every three months

I still have a few spots on my scalp

-ceanel shampoo dissolves that

and the only problem area is in the cleft of my buttocks

google stelara

the side effects listed are not for the feint hearted

all I get is flu like symptoms for 24hrs

I see a specialist and we tried everything

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By *adja_lazloCouple
over a year ago

Solihull


"I've got psoriasis quite bad in some places and v nervous with meets would it put people off me?"

sundbeds and diprobase, never goes away, but does clear up a little x

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By *innamon!Woman
over a year ago

no matter


"I posted earlier but no one seems to have noticed

there is a 95% cure called stelara

injection every three months

I still have a few spots on my scalp

-ceanel shampoo dissolves that

and the only problem area is in the cleft of my buttocks

google stelara

the side effects listed are not for the feint hearted

all I get is flu like symptoms for 24hrs

I see a specialist and we tried everything

"

Ceanel shampoo does it really work . I have psoriasis flairing on my head ,not found anything that clears it.

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By (user no longer on site)
over a year ago


"I posted earlier but no one seems to have noticed

there is a 95% cure called stelara

injection every three months

I still have a few spots on my scalp

-ceanel shampoo dissolves that

and the only problem area is in the cleft of my buttocks

google stelara

the side effects listed are not for the feint hearted

all I get is flu like symptoms for 24hrs

I see a specialist and we tried everything

Ceanel shampoo does it really work . I have psoriasis flairing on my head ,not found anything that clears it."

it removes the crusty flakey bits and leaves a shiny flat red surface

then you need to apply whatever lotion u use

dovobet or whatever

I found if I soaked in a bath for 30 mins all my flakes came off

leaving shiny flat red patches

DONT use dovonex/dovobet before using a sunbed or tanning

it drastically reduces burn time

I underwent puva and uva therapy and one time went blathered in dovonex and got burnt badly blisters everywhere

I think u have to be badly affected to be put on stelara

I look back at pics videos of me covered with it

I now forget I even have psoriasis!!

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By (user no longer on site)
over a year ago

sorry I may be misleading you

30 mins was for my body flakes to come off

ceanel works after a minute or so

it removes the scaly bits

I did mine dinner time and 9 hours later its crusting up again but its so insignificant I don't bother applying creams lotions thanks to the stelara

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By (user no longer on site)
over a year ago

It wouldnt put me off i also have a skin conditiom called vitiligo.

anyone that wont meet you because of it isnt worth meeting anyway.embrace yourself and have fun .... the true people will shine through xxxxx

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By *unlovermeMan
over a year ago

lytham

My other half suffers from psoriasis........ if you know of anyone going on holiday to Mexico ask them to bring back.some gelmicin it is amazing on all skin issues.....cost a couple of quid for a decent size tube over the counter at pharmacy

Not available in this country (well I'm not aware of it)

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By (user no longer on site)
over a year ago

Hi.. Suffered for years all over my body.. And tried everything...

Near enough clear now. Minor scales in elbow/knees..stress is my major cause and Complete lifestyle change worked for me.. Don't be ashamed.. Explain what it is and most people are fine with it. Also USA leads the way in over the counter creams.. I got this and you can get it on amazon cheap as chips

Mg217 multi symptom ointment.. Coal tar based but nice selling and goes a very long way.. Also do a moisturising cream too.. But I tend to stick to. Mango or coconut oil based moisturisers which really work.

Hope this helps...take the stress out of your life do some yoga... It's mental and it works?.

Good luck.

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By (user no longer on site)
over a year ago


"My other half suffers from psoriasis........ if you know of anyone going on holiday to Mexico ask them to bring back.some gelmicin it is amazing on all skin issues.....cost a couple of quid for a decent size tube over the counter at pharmacy

Not available in this country (well I'm not aware of it)"

its just the 2 main steroid ingredients in most psoriarsis creams, just in a stronger dose..so yes, it will work,but long term its not a good idea...theres a reason steroids are prescription only here..

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By *ndigo40Woman
over a year ago

secret town


"I've got psoriasis quite bad in some places and v nervous with meets would it put people off me?"

Mine hasnt come back since I went on holiday to Turkey

I sat in the sun 8 hrs a day

Came back to England it all went away and that was 6 Yrs ago

Have you tried Ultra Violet light treatment?

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By (user no longer on site)
over a year ago

My mum suffered with psoriasis for years! Someone suggested she stop eating red meat! It cleared up very quickly and by being a vegetarian for 22 years she has had no more psoriasis for 22 years! I have no idea whether this will work for anyone else but it's worked for her!

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By *tephstockingsTV/TS
over a year ago

birmingham

I have it to on 75% of my body hands legs belly bum back arms head control mine with creams and am now on tablets keep pestering ur doc u might get sum where xxx

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By *uteLittleGeekWoman
over a year ago

Somewhere


"I've got psoriasis quite bad in some places and v nervous with meets would it put people off me?"

Hi .

Message me privately and I will give you details of the hospital / spa abroad that helped my brother regarding the worst kind of psoriasis .

He had all over his whole body and head . There wasn't a spot clear and it was very very severe .

He had been clear for 20 years now and not used any treatment since .

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By (user no longer on site)
over a year ago


"I've got psoriasis quite bad in some places and v nervous with meets would it put people off me?"

You are cute, I would meet you. I used to suffer with Eczema so does not bother me. xxx

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By *inderellaRockerfellazCouple
over a year ago

warrington

My daughter suffers from psoriasis - it first appeared around 11 years old & the doctor linked it with strep throats as the trigger. Over the years she has tried many things medical/self help/ all the above in various forms.

It flares when she is stressed or under the weather. The things that appear to work best for her.

* Sunshine (light therapy & sun beds have their drawbacks)

* excercise & keeping her body & immune system as strong as possible

* avoiding dairy & other fat filled foods

It abates but never completely goes away - So appears no magic bullet or total cure. It's a seemingly variable set of treatment what works for one does not work for all.

In the end it's a condition, those that see a person - don't see the condition.

Xx B

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By (user no longer on site)
over a year ago

Smoking really exacerbates This condition

Dry foods IE too much fast food

Healthy Eating

Drinking alcohol

Dried Skin etc.

Stress Is Key

Perfumes , chemicals

Too much Washing of skin

Allergy testing will help

Tactically Draw from above ideas

Check with Doc

If on Meds

Keep at it

Don't give up

The Answer is There x

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By (user no longer on site)
over a year ago


"Hi.. Suffered for years all over my body.. And tried everything...

Near enough clear now. Minor scales in elbow/knees..stress is my major cause and Complete lifestyle change worked for me.. Don't be ashamed.. Explain what it is and

most people are fine

with it. Also USA leads the way in over the counter creams.. I got this and you can get it on amazon cheap as chips

Mg217 multi symptom ointment.. Coal tar based but nice selling and goes a very long way.. Also do a moisturising cream too.. But I tend to stick to. Mango or coconut oil based moisturisers which really work.

Hope this helps...take the stress out of your life do some yoga... It's mental and it works?.

Good luck. "

Excellent Advice

Coal Tar Soap works wonders

Yoga ,stress relief but easy does it

Never push beyond pain

It takes Several months

To iron out injuries & Posture .

Chi hung will help

Or just ....

Follow your instincts

Tune into mind body thoughts

Avoid Excesses whilst relearning

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By (user no longer on site)
over a year ago


"My daughter suffers from psoriasis - it first appeared around 11 years old & the doctor linked it with strep throats as the trigger. Over the years she has tried many things medical/self help/ all the above in various forms.

It flares when she is stressed or under the weather. The things that appear to work best for her.

* Sunshine (light therapy & sun beds have their drawbacks)

* excercise & keeping her body & immune system as strong as possible

* avoiding dairy & other fat filled foods

It abates but never completely goes away - So appears no magic bullet or total cure. It's a seemingly variable set of treatment what works for one does not work for all.

In the end it's a condition, those that see a person - don't see the condition.

Xx B

"

psoriasis is actually an immune disorder

so keeping your immune system strong can be counter productive

treatments such as cyclosporine and the like switch off the immune system

stelara is the first that only targets the immune systems that targets the skin

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By *orwegian BlueMan
over a year ago

Iceland, but Aldi is closer..

I use evening primrose tablets to deal with my flare ups.

Stress is the main factor for me and probably diet when I did get stressed, eating rubbish food and drinking too much..

Had stress counselling which helped deal with the root cause of my anxiety (job related)and haven't had any flare ups since..

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By *erts NNCouple
over a year ago

Hertfordshire

Amazing thread! Me (mr) have been suffering for three years now, back shoulders, elbows, thighs and knees. Finally got a referral to specialist with a four month wait.

For me sunbeds do not clear it but having a tan does cover the harsh look of it. I have found Palmers coco butter gradual tan works good. But generally if I know we are going on a meet I make sure I apply loads of steroid cream for two weeks leading up and it does clear up and with a bit of a tan, I feel great.

In the US hemp oil is prescribed with great results and also medical cannabis to relieve stress.

Great thread!!!

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By *erts NNCouple
over a year ago

Hertfordshire

Also if my condition continues to get worst I will use private health care. I know there is no 100% cure but using the NHS will take a long time and also it will be cost effective treatment on their behalf.

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By (user no longer on site)
over a year ago

stelara is the closest thing to a 100% cure

I got mine through nhs but due to a backlog they rushed me through to see a speacialist who normally does private patients

best of luck everyone!!!

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By *haneleviMan
over a year ago

Kidderminster

I also suffer. Especially when I'm stressed or over worked..

Gets in the way of initiating meets etc on here !

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By (user no longer on site)
over a year ago

I've used Dovobet but it comes back, now using tumeric and neem soap and its cleared it up!

Doll x

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By (user no longer on site)
over a year ago


"I've used Dovobet but it comes back, now using tumeric and neem soap and its cleared it up!

Doll x "

Doll were did you get the soap from please ? Y xxx

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By (user no longer on site)
over a year ago


"I've used Dovobet but it comes back, now using tumeric and neem soap and its cleared it up!

Doll x

Doll were did you get the soap from please ? Y xxx"

I got it off amazon x

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By *haneleviMan
over a year ago

Kidderminster


"I've used Dovobet but it comes back, now using tumeric and neem soap and its cleared it up!

Doll x

Doll were did you get the soap from please ? Y xxx

I got it off amazon x "

Just orderd myself some for about £2 will try anything once, hopefully works!

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By (user no longer on site)
over a year ago

I just bought some too

if it don't work I quite like turmeric so may be able to use it for cooking if nowt else . .

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By (user no longer on site)
over a year ago

I have it head to toe I feel your pain x

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By (user no longer on site)
over a year ago


"Amazing thread! Me (mr) have been suffering for three years now, back shoulders, elbows, thighs and knees. Finally got a referral to specialist with a four month wait.

For me sunbeds do not clear it but having a tan does cover the harsh look of it. I have found Palmers coco butter gradual tan works good. But generally if I know we are going on a meet I make sure I apply loads of steroid cream for two weeks leading up and it does clear up and with a bit of a tan, I feel great.

In the US hemp oil is prescribed with great results and also medical cannabis to relieve stress.

Great thread!!! "

Said earlier in the thread fella try these products.. I got them. In th u.s but are available on Amazon very cheaply

Psoriasin..

Or

Mg217 psoriasis 2%coal tar ointment.

Added to

Mg217 3%sal acid formula moisturising cream..

For extra moisturiser. Holland n barret dead sea mineral skin lotion.

I had in on 40%of my body.. Today if it's on 1% of my body it's rare.

I'm overjoyed and have the confidence to play here now

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By *he Devils Daughter!Woman
over a year ago

some where in yorkshire


"I have it head to toe I feel your pain x"
me too it seems to get worse weekly x

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By (user no longer on site)
over a year ago

My partner has suffered with it most of her life but is now the worst it's ever been, she has 4 different steroid creams aswell as a bath solution, shampoo and natural ointments. Just as it clears up something as little as the steam from a pan of boiling water triggers it and we are back to square one. She has been put on methotrexate for her arthritis which has helped a lot and also has a hot wax also for her arthritis but is also great for her skin. We are slowly getting on top of it, I say we because it has been a huge joint effort to get this far by rubbing creams in daily, doing all the cooking, washing, help her bath, keep her calm and feeling positive when she is having her low days. I really do feel for those suffering, especially the extreme cases Google decides to scare us with

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By (user no longer on site)
over a year ago


"My partner has suffered with it most of her life but is now the worst it's ever been, she has 4 different steroid creams aswell as a bath solution, shampoo and natural ointments. Just as it clears up something as little as the steam from a pan of boiling water triggers it and we are back to square one. She has been put on methotrexate for her arthritis which has helped a lot and also has a hot wax also for her arthritis but is also great for her skin. We are slowly getting on top of it, I say we because it has been a huge joint effort to get this far by rubbing creams in daily, doing all the cooking, washing, help her bath, keep her calm and feeling positive when she is having her low days. I really do feel for those suffering, especially the extreme cases Google decides to scare us with "

your post really is inspiring1 it can be so debilitating you feel no-one will ever go near you!...you sound a wonderfully supportive partner!.

ive used a variety of things since i was a teen...only thing that really works is the steroids...but in the last couple of years,for some reason,menopause seems to be just switching it off..my gp said she's seen that before...as the rest of me collapses,my skin is finally clearing!..my best wishes to your partner..and,really,to you,heartfelt admiration..its not an easy thing to deal with..

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By (user no longer on site)
over a year ago

..and waitrose 'baby bottom butter' is a great moisturiser...only contains olive oil and vanilla oil...very cheap..good on your face!

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By *he Devils Daughter!Woman
over a year ago

some where in yorkshire

My dermatologist put me on fumerderm tablets ... made it worse plus it made me have horrendous hot skin outbursts n flushes n fucked my kidney n liver funtions up I give up think I'm destined for a life of psoriasis really wish there was a cure for it

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By *mmabluTV/TS
over a year ago

upton wirral

I got some cream off the doctor and it cleared up,sometimes bits come back but I just put cream on and gone in a few days,will try to remember the name and tell

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By (user no longer on site)
over a year ago

oddly, its seems very like menopause to me...everyone finds something that works for a while...but in the end you just have to get on with it

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By *haneleviMan
over a year ago

Kidderminster


"My partner has suffered with it most of her life but is now the worst it's ever been, she has 4 different steroid creams aswell as a bath solution, shampoo and natural ointments. Just as it clears up something as little as the steam from a pan of boiling water triggers it and we are back to square one. She has been put on methotrexate for her arthritis which has helped a lot and also has a hot wax also for her arthritis but is also great for her skin. We are slowly getting on top of it, I say we because it has been a huge joint effort to get this far by rubbing creams in daily, doing all the cooking, washing, help her bath, keep her calm and feeling positive when she is having her low days. I really do feel for those suffering, especially the extreme cases Google decides to scare us with "

You're a credit to yourself, is just as much of a pain for partners as it is the sufferer.

Props for helping her out and easing her when needed

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By (user no longer on site)
over a year ago


"My partner has suffered with it most of her life but is now the worst it's ever been, she has 4 different steroid creams aswell as a bath solution, shampoo and natural ointments. Just as it clears up something as little as the steam from a pan of boiling water triggers it and we are back to square one. She has been put on methotrexate for her arthritis which has helped a lot and also has a hot wax also for her arthritis but is also great for her skin. We are slowly getting on top of it, I say we because it has been a huge joint effort to get this far by rubbing creams in daily, doing all the cooking, washing, help her bath, keep her calm and feeling positive when she is having her low days. I really do feel for those suffering, especially the extreme cases Google decides to scare us with

your post really is inspiring1 it can be so debilitating you feel no-one will ever go near you!...you sound a wonderfully supportive partner!.

ive used a variety of things since i was a teen...only thing that really works is the steroids...but in the last couple of years,for some reason,menopause seems to be just switching it off..my gp said she's seen that before...as the rest of me collapses,my skin is finally clearing!..my best wishes to your partner..and,really,to you,heartfelt admiration..its not an easy thing to deal with.."

Thanks you for your kind words. It is extremely hard work and has had a huge impact on our relationship but has made us much stronger and when she is feeling good about herself we sure do make the most of it

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By (user no longer on site)
over a year ago

has no one else on this thread heard of stelara?

its the nearest thing to a cure out there

I was hospitalised twice

but now only have a couple of tiny patches

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