FabSwingers.com forum: psoriasis..

By (user no longer on site) OP
over a year ago

Iv just recently been diagnosed with psoriasis and just wondering how common it is, had it since I was 17 and after several doc apps only now been told what it is. Currently putting dovonex on and diprobase twice a day but this past week rather than get better its gotten 10 times worse and spread. Anyone know anything that can make it less visible? Its getting me down knowing its there and rearing its ugly patches :/ any advice appreciated.

Reply privately

Reply in forum

Reply +quote

By (user no longer on site)
over a year ago

Uv light is used to treat severe cases, friend goes in an upright tanning machine twice a week, just for 3 mins, and it has kept it under control.x

Reply privately

Reply in forum

Reply +quote

By *erseysideridersCouple
over a year ago

wallasey

gud luk

Reply privately

Reply in forum

Reply +quote

By (user no longer on site)
over a year ago

Agree with above UV treatments are great and work really well. The treatment is known as phototherapy. Ask your dermatologist to refer you. There is also a treatment known as PUVA where you go into a bath filled with a specialist solution before hand which makes you even more light sensitive. Honestly brilliant treatment!!!!

Reply privately

Reply in forum

Reply +quote

By (user no longer on site)
over a year ago

A friend of mine has the arthritis that goes with it and she is in methotrexate to keep it under control

Reply privately

Reply in forum

Reply +quote

By (user no longer on site) OP
over a year ago

Il talk to my gp about being referred, im soo paranoid about the likes of skirt wearing, swimming and meets, where I live the drs are pretty crap :/

Reply privately

Reply in forum

Reply +quote

By *ratty_DamselWoman
over a year ago

Greater London

Have you actually been seen by dermatologist? If not insist on being referred & also phone them up directly once referred & try and get a cancellation. Good luck.

Reply privately

Reply in forum

Reply +quote

By (user no longer on site)
over a year ago

"A friend of mine has the arthritis that goes with it and she is in methotrexate to keep it under control"

So does my Sister

Reply privately

Reply in forum

Reply +quote

By *abioMan
over a year ago

Newcastle and Gateshead

"Iv just recently been diagnosed with psoriasis and just wondering how common it is, had it since I was 17 and after several doc apps only now been told what it is. Currently putting dovonex on and diprobase twice a day but this past week rather than get better its gotten 10 times worse and spread. Anyone know anything that can make it less visible? Its getting me down knowing its there and rearing its ugly patches :/ any advice appreciated."

had it for years... they reckon 1 in 10 people suffer from it in one way or form....

you could try aloe vera either gel or if you are green fingered in plant form.... it has done wonders for mine....

Reply privately

Reply in forum

Reply +quote

By *pplecrunchWoman
over a year ago

Yeovil

I am 40 had psoriasis since I was 18mths old I also have asthma which is linked with it and also psoriatic arthritis. Had every treatment going and the only time it disappeared was when expecting my daughter.

Reply privately

Reply in forum

Reply +quote

By *utumnWoman
over a year ago

leeds

Try asking the doc to change the dovonex to either metoysyn or dovobet and Silkis if you have facial.

I've had it for years and found long term use of some ointments did the same so I was recommended by the specialist to alternate every so often.

I'm just using the metosyn daily now and it's good for me and can be used in damper areas like under the boobs.

Don't let it get to you I've lost count of the number of stares my arms and legs get but if folk don't like it then thats there problem. Bare your legs and arms and sod them all! Lets the sun get to it too so doubly beneficial!

Reply privately

Reply in forum

Reply +quote

By *pplecrunchWoman
over a year ago

Yeovil

I found when having a flare up under my boobs if I put cream and gauze there so my bra doesn't stick to it

Reply privately

Reply in forum

Reply +quote

By *pplecrunchWoman
over a year ago

Yeovil

Reading my paper yesterday and someone had put they have had psoriasis for 30yrs tried everything was given Adalimumab injections and it has changed her life. It only costs £300

Reply privately

Reply in forum

Reply +quote

By *empting Devil.Woman
over a year ago

Sheffield

Apparently those fish that people go to for the pedicures can help, though you do need to go to a medically certified place. I believe there's one in Wales.

Reply privately

Reply in forum

Reply +quote

By (user no longer on site)
over a year ago

[Removed by poster at 29/04/14 18:47:10]

Reply privately

Reply in forum

Reply +quote

By *ohnnySwingingMan
over a year ago

Portsmouth

I've had it on and off for long as can remember and live in fear of it returning with a vengeance. Light treatment and 2weeks in the sun cleared majority up. It also affects the joints as I had it thick on elbows and behind knees that I could nt straighten them with out causing agony. Still can't complain lol it's gone now and has been for long time

Reply privately

Reply in forum

Reply +quote

By (user no longer on site)
over a year ago

Try eating lots of organic veg as well, drink lots of mineral water and cut out wheat and dairy foods and sweet, sugary desserts...and that includes chocolate especially milk chocolate. Sounds drastic but one/all of the latter foods might be triggering attacks?

Reply privately

Reply in forum

Reply +quote

By *he Master JMan
over a year ago

Southall

"Il talk to my gp about being referred, im soo paranoid about the likes of skirt wearing, swimming and meets, where I live the drs are pretty crap :/ "
you can research the best hospitals and you have a right to request your hospital of choice and they cannot deny you

Reply privately

Reply in forum

Reply +quote

By *et a roomCouple
over a year ago

Leeds

I had it quite bad for years. Sunlight exposure always helped together with creams and shampoos which dermatologist prescribed. Weirdly mine completely disappeared when I had a sudden bereavement. Only flare ups since have been on scalp. Tgel shampoo and Aveda itchy scalp lotion help when that happens. Try 3 minute sun bed sessions a couple of times a week and I'm sure you'll see a rapid improvement. Good luck

Reply privately

Reply in forum

Reply +quote

By (user no longer on site)
over a year ago

I used to use lockoid cream, was great had it on my scalp and knees for years , 15 yrs ago I had a general attack which is an explosion and it covered me head to foot for a month, very uncomfortable, when it went it all went and never had any probs since

Reply privately

Reply in forum

Reply +quote

By (user no longer on site) OP
over a year ago

The drs never knew what it was because I had pitrisis rosea for about 3-4months about two years ago and it left my body and then nothing until recently, its on the inside.of my legs little plaques and it ranges down to my knees and on my right elbow, just started working a month ago, have a 2.5yo and only see his dad on weekends so they whole travelling for the best hosp wont be an easy task as my family all work 6day weeks :/ will talk to my gp as since changing my new dr is 10x better at helping my conditions so at my next app il talk about a dermatologist. Thank you everyone for your help! Makes me feel a little better knowing so many people can help!

Reply privately

Reply in forum

Reply +quote

By (user no longer on site)
over a year ago

I have had it for years at the moment am covered head to toe due to stress I use dovabet oil and gel combined and have also been put on Thyroxilin think that is how it is spelt so will let you know how this works also when it gets really bad I use sun beds as they work extremely well same sort of uv treatment that you get in hospital x

Reply privately

Reply in forum

Reply +quote

By *pplecrunchWoman
over a year ago

Yeovil

I have it under my finger and toe nails. I can't wear foundations or nail varnish because it just looks worse. When shaving your legs use an electric razor easier and doesn't cut you open

Reply privately

Reply in forum

Reply +quote

By *ikki ShooterTV/TS
over a year ago

Epsom

Uv is good natural sun much more fun, stress and scratching can make it spread, try getting qv cream if no luck 3.99 for a tube or better getting products through your gp.

Hope it helps x

Reply privately

Reply in forum

Reply +quote

By (user no longer on site)
over a year ago

I have this and have since little tried all.lotions and potions and the light treatment certainly helped but if not severe enough it will not be offered.

I have spent time in hospital on occasions and basically you are wrapped up like a mummy and tons of cream was used alongside medication which basically idea is to get you relaxed as anyone who suffers with it knows stress makes it worse.

i also was given some medication called aricetin or something like that there were side effects of headaches for me but they helped so was worth the headaches but its strong medication.

Anyone with it has my sympathy.

Reply privately

Reply in forum

Reply +quote

By *ce WingerMan
over a year ago

P.O. Box DE1 0NQ

I've had it for about 25yrs and was initially given coal tar ointment for it. That didn't make much difference so I stopped using it and haven't bothered with anything since.

Two large patches on my knees have recently disappeared after 10yrs and now I only have slight patches on the back of my hands, lower inside arms and buttocks.

Sunlight seems to help but I don't spend too long in it as I'd sooner have ma psoriasis than skin cancer

Reply privately

Reply in forum

Reply +quote

By (user no longer on site)
over a year ago

Had it at primary school.used emollient cream and polytar shampoo to manage it.it disappeared in my early teens of its own accord.came back with vengeance in early 30s as i split with ex.did the UV treatment and got it under control.still get odd flare up when been drinking excessively but other than that no problem.id recommend the UV and if possible remove as much stress from your life as you can,definite link to stress i was told.good luck

Reply privately

Reply in forum

Reply +quote

By (user no longer on site)
over a year ago

"Apparently those fish that people go to for the pedicures can help, though you do need to go to a medically certified place. I believe there's one in Wales. "

Talapia the name of the fish, not the place in Wales. Sunbeds work a treat... As does sunshine....

Reply privately

Reply in forum

Reply +quote

By (user no longer on site)
over a year ago

I was told to recommend hemp products when i worked for the body shop. They have a great range. & customers always comment on how much its helped them.

T g shampoo is great as well. Around a fiver but great. Good luck x

Reply privately

Reply in forum

Reply +quote

By *mmabluTV/TS
over a year ago

upton wirral

I had this a couple of years ago,put cream on it went away no problem

Reply privately

Reply in forum

Reply +quote

By (user no longer on site)
over a year ago

i have had psoriasis for years now..... i used tolook like i had been in a fire..... i to had every drug and cream available.

i was referred to a professor at Salford Royal hospital five years ago and i am now treated Wih two biological injections every three months and my skin is completely clear.

These injections are extremely expensive anda lit of screening ttakes place before your own Gp accepts the costs.

also you cannot have these injectionsII'd you are thinking of starting a family... but that seems to be the norm with psoriasis treatments.

Reply privately

Reply in forum

Reply +quote

By (user no longer on site)
over a year ago

I've had psoriasis on and off for about 16 years. I've had both the plaque psoriasis and also gutate psoriasis (the kind where you just look dotty rather than hard scales in one place). The second form was much harder to treat with creams (and never found any that had any real impact anyway) and the GP referred me for light treatment at the hospital, 3 times a week, cleared the majority of it up.

It tries to come back from time to time, usually when i'm either stressed or have been under the weather but I've been using shampoos and shower gels that contain no SLS or parabens etc in and for the last couple of years its pretty much been keeping it all in check.

Sunshine will help (if the UK ever sees it again) and try to wear looser clothes to avoid irritation.

Bathing with Dead Sea Salts can also soothe the skin I've found.

Reply privately

Reply in forum

Reply +quote

By (user no longer on site)
over a year ago

I get this on my vulva & have managed to keep it from flaring up over the past 4 years with Aloe Vera gel. You can still see the red shiny skin though in close up pics, but I've had to get used to that x

Reply privately

Reply in forum

Reply +quote

By (user no longer on site)
over a year ago

My mum has it. Sunshine helps her. Things that make it worse are worrying, some lotions and bacon.

Reply privately

Reply in forum

Reply +quote

By (user no longer on site)
over a year ago

For those using the and the like, tesco do their own medicated shampoo,(green bottle) for 89p, works Great.x

Reply privately

Reply in forum

Reply +quote

By *s_bettyboopWoman
over a year ago

-3

Ive had it since i was a teenager and had a lot of different prescribed things over the years and they didn't work. Someone recommended pure glycerine and this has worked for me.

Reply privately

Reply in forum

Reply +quote

By *entfootloverMan
over a year ago

Sevenoaks

"Things that make it worse are worrying, some lotions and bacon."

That's tragic.

Reply privately

Reply in forum

Reply +quote

By *rcticstarWoman
over a year ago

Corsham

Hi. Sorry if any if what I'm going to say has been repeated.

I've had psoriasis for many years and tried various treatments for it. It is hereditary and is made worse through stress. I have found the steroid creams quite useless to be honest with you. I have had UVB treatment too. Great free tan. Thanks NHS! Lol. Anyway. What I have found is argan oil every day. Even once a day there is a vast improvement. I also use it on my hair too. As many people who know me on fab about 60% of me is covered but with the argan oil it is now reduced by 10%. Smoking makes it worse as does poor diet too.

Anyway good luck Hun x

Reply privately

Reply in forum

Reply +quote

By *all-Eddies QosCouple
over a year ago

wirral

ive had it for 20 years...only mild....do get people making comments as its on my knees "its carpet burns!" is my usual response...soon shuts them up

fish oils and sunlight are both great....also try porriage oats in a sock in the bath....helps me

Reply privately

Reply in forum

Reply +quote

By *hole Lotta RosieWoman
over a year ago

Deviant City

sunbed works for me, I only need to use hydramol cream with about one sunbed session a month. Use Capasal coal tar shampoo for my head x

Reply privately

Reply in forum

Reply +quote

Post new Message to Thread