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"What would you do if you woke up one morning and one of your senses/limbs had "gone" How would you cope (if you didn't have a partner to help)? **Morbid subject, sorry x " Depending on which sense and limbs the reaction is different. Has happened to me and I just did what I had to do to be honest and try to function with the rest that is functioning while waiting on the Docs to figure out what's the problem. As we have said before, you just get on and put a smile on as much as you can. xx | |||
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"Jane, I'm fine honey.. It was a conversation last night whereby the disability was from birth so never knew anything different, whereas I woke up one morning 16 months ago and was paralysed from the waist down.... " Good to hear, Had those convos too, not been able to work out a decent answer either. J | |||
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"Jane, I'm fine honey.. It was a conversation last night whereby the disability was from birth so never knew anything different, whereas I woke up one morning 16 months ago and was paralysed from the waist down.... From reading your posts on here i know your a strong woman _muma so hope you continue to remain that way. " | |||
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"Jane, I'm fine honey.. It was a conversation last night whereby the disability was from birth so never knew anything different, whereas I woke up one morning 16 months ago and was paralysed from the waist down.... " omg sorry to hear this x | |||
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"Do as many do everyday...adapt" yes people do adapt..but it's not that simple Say YOU woke up one morning, entirely on your own, couldn't move.., had absolutely no feeling from your waist down and didn't have a phone beside you?? | |||
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"Iv never been in that situation ..plus always Have a phone beside me... But as I said...you would have to try to fall out of bed to get to a phone..window or door ...instinct would kick in " yeah but sometimes that just isn't an option if you cant move is it? | |||
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"Jane, I'm fine honey.. It was a conversation last night whereby the disability was from birth so never knew anything different, whereas I woke up one morning 16 months ago and was paralysed from the waist down.... From reading your posts on here i know your a strong woman _muma so hope you continue to remain that way. " What he said. I work with people who have been in this position. I believe you are strong person x | |||
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"Thank you all, but I'm not looking for sympathy or anything like that in any way shape or form. Obviously I have coped and adapted over the past year and I still am, as it's not as simple as just having MS. I just wondered how other people would react if they woke up one morning and life was totally turned on it's head... " Indeed and you didn't come across as looking for sympathy. You don't sound like someone who would be self pitying and I do hope that doesn't sound awful. Hard to put this just the right way. It is a thought provoking question, we all take our health so much for granted. | |||
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"Thank you all, but I'm not looking for sympathy or anything like that in any way shape or form. Obviously I have coped and adapted over the past year and I still am, as it's not as simple as just having MS. I just wondered how other people would react if they woke up one morning and life was totally turned on it's head... " I wouldn't know what to do and probably have a panic fueled breakdown . Hopefully after that I'd be able to adapt to the new situation with support of those around me . | |||
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"Thank you all, but I'm not looking for sympathy or anything like that in any way shape or form. Obviously I have coped and adapted over the past year and I still am, as it's not as simple as just having MS. I just wondered how other people would react if they woke up one morning and life was totally turned on it's head... Indeed and you didn't come across as looking for sympathy. You don't sound like someone who would be self pitying and I do hope that doesn't sound awful. Hard to put this just the right way. It is a thought provoking question, we all take our health so much for granted. " Doesn't sound awful at all and thank you. I was with friends last night, one has a bone condition from birth, other friend's son has CF from birth. Mine was literally overnight, so it started a conversation about how you handle it... from birth, you've not known any different so it is your way of life. But to go from being a very active person to suddenly being in hospital, learning to walk again, using a wheelchair etc | |||
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"Been on the caring side of this for 20+ years. Everyone deals with it differently. I've seen people collapse in tears, rage with anger, retreat into themselves. But from my side of the matter all I ever do is try to help and cope. Fumama, you know you can always drop me a line if you want to vent/ask questions. Jane" I've done all that Jane (still do at times), it's why I wasn't on the forums much and haven't been back to CJs yet xx (and we had many a good laugh there) x | |||
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"I don't think until faced with the situation anyone would really know what they would do. Some would react how they predicted, others the opposite. FMUMA you like many others in this world have been dealt a very cruel hand and I am really sorry to hear this. Much love from us xx" Tands, you know me well... the day I lose my sense of humour is the day you will all be getting the funeral party invitation and that;s not for a long while yet.. xxx | |||
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"I don't think until faced with the situation anyone would really know what they would do. Some would react how they predicted, others the opposite. FMUMA you like many others in this world have been dealt a very cruel hand and I am really sorry to hear this. Much love from us xx Tands, you know me well... the day I lose my sense of humour is the day you will all be getting the funeral party invitation and that;s not for a long while yet.. xxx " I frigging hope not | |||
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"Thank you all, but I'm not looking for sympathy or anything like that in any way shape or form. Obviously I have coped and adapted over the past year and I still am, as it's not as simple as just having MS. I just wondered how other people would react if they woke up one morning and life was totally turned on it's head... Indeed and you didn't come across as looking for sympathy. You don't sound like someone who would be self pitying and I do hope that doesn't sound awful. Hard to put this just the right way. It is a thought provoking question, we all take our health so much for granted. Doesn't sound awful at all and thank you. I was with friends last night, one has a bone condition from birth, other friend's son has CF from birth. Mine was literally overnight, so it started a conversation about how you handle it... from birth, you've not known any different so it is your way of life. But to go from being a very active person to suddenly being in hospital, learning to walk again, using a wheelchair etc " Phew, thanks. I know what you mean re that type of conversation. Also I have a friend who's son has severe MS. It's ripped the family apart but as you have asked in your original question, how do others think we'd cope??? It's not something you can know I guess and we all hope we will never find out. Big kudos to you in how you have coped. | |||
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