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Ashya king, thoughts?

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By (user no longer on site) OP   
over a year ago

As a parent the heartbreaking situation reported recently around Ashya King and his parents is worrying on many levels.

1) The media reporting led people to believe that the parents took Ashya out of hospital for a negative reason eg to avoid treatment. In fact they were seeking advanced treatment proven to work( in another country ) as it's not readily available on the NHS due to costs and they were willing to pay for it.

2) Once a child enters the current NHS system it would appear that the parents are no longer entitled to voice concern in their treatment or have major input (in this case anyway)

3) if you wish to get treatment outside the NHS which the consultant you deal with disagrees with a court order can be taken out so you are no longer responsible or the carer/custodian of you own child.

I know this is a very exceptional case and in no way am I belittling the NHS however it does worry that a precedent is being set whereby if your enter the NHS for treatment they then have carte Blanche to dictate what happens to you (whether an alternative treatment is available or not) or your loved ones without your consent or you are likely to be subject to legal proceeding and the child/persons care being taken away from you.

Thoughts??

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By *iewMan
Forum Mod

over a year ago

Angus & Findhorn

I am not a parent so I can't quite get to 'what I would do if the child was mine' but I think if the Dr's advised me to not take my child, I wouldn't.

but..

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By (user no longer on site)
over a year ago

A child is always unprotected ..regardless who thinks and acts on what they regard as " in the best interest )

Horror story's from all sides ....

The system in place just now " a complete fucking joke.... Sending out young workers barely out of nappies themselves , no life experience an they have to make decisions on what's best.....

Feeling a rant coming on so I will regress....

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By *ola cubesMan
over a year ago

coatbridge

Difficult one this to my mind the blame lies woth the media I think for the most part our medical practioners do what they believe is best and it cant be denied they put there child at risk this is where our system goes wrong as pointed out there has been times that guardianship has been taken from parents another case springs to mind of a family who didnt believe in giving blood (cant remember religeous order) but most of folk in uk wanted the children removed and treated we cant pick and choose the right and wrong of it as long as this family are doing right by there child good on them

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By (user no longer on site)
over a year ago

Its a difficult one,while i agree that maybe he should have remained in hospital for treatment(unsure how succesfull it may have been),i can see it from the parents point of _iew as well,if he was terminally ill and never going to recover,i agree with them wanting to take him away for a wee break and just maybe brighten up his life a wee bit.

i for one dont believe they were being neglectful and shouldnt have been locked up

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By *nnyMan
over a year ago

Glasgow


".............. I can't quite get to 'what I would do if the child was mine' but I think if the Dr's advised me to not take my child, I wouldn't.

but.."

I'm with you almost all the way.

I wouldn't take a child (or my granny) out of hospital against advice but if I did, I'd expect to bear the consequences should it go wrong.

Re religious cult. I read (it may not be true) that the parents are Jehovah's Witnesses so they're clearly a few coppers short of a bob to begin with.

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By (user no longer on site)
over a year ago

I honestly think unless your faced with that horrible situation

You wouldn't know what to do?

So sad

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By (user no longer on site)
over a year ago


".............. I can't quite get to 'what I would do if the child was mine' but I think if the Dr's advised me to not take my child, I wouldn't.

but..

I'm with you almost all the way.

I wouldn't take a child (or my granny) out of hospital against advice but if I did, I'd expect to bear the consequences should it go wrong.

Re religious cult. I read (it may not be true) that the parents are Jehovah's Witnesses so they're clearly a few coppers short of a bob to begin with."

im afraid that id have to disagree with you about them being a "few coppers short of a bob",its their religious beliefs

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By (user no longer on site)
over a year ago


".............. I can't quite get to 'what I would do if the child was mine' but I think if the Dr's advised me to not take my child, I wouldn't.

but..

I'm with you almost all the way.

I wouldn't take a child (or my granny) out of hospital against advice but if I did, I'd expect to bear the consequences should it go wrong.

Re religious cult. I read (it may not be true) that the parents are Jehovah's Witnesses so they're clearly a few coppers short of a bob to begin with."

why? Because their religious beliefs are different from yours?

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By (user no longer on site)
over a year ago

I've been in that position. Believe me....when you are faced with the imminent death of your adored child, you will do anything at all in your power to postpone the moment even when in your heart you know it is inevitable. Of one thing I am sure...that wee boy is deeply loved and cared for. I feel nothing but the deepest sadness for the whole family.

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By (user no longer on site) OP   
over a year ago


"I've been in that position. Believe me....when you are faced with the imminent death of your adored child, you will do anything at all in your power to postpone the moment even when in your heart you know it is inevitable. Of one thing I am sure...that wee boy is deeply loved and cared for. I feel nothing but the deepest sadness for the whole family."

Can't even imagine the pain, don't really know what to say, just wish there was a heartfelt hug button. Xx

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By (user no longer on site)
over a year ago


"I've been in that position. Believe me....when you are faced with the imminent death of your adored child, you will do anything at all in your power to postpone the moment even when in your heart you know it is inevitable. Of one thing I am sure...that wee boy is deeply loved and cared for. I feel nothing but the deepest sadness for the whole family.

Can't even imagine the pain, don't really know what to say, just wish there was a heartfelt hug button. Xx"

There is....and you just pressed it. Thank you xx

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By *nnyMan
over a year ago

Glasgow


".............. I can't quite get to 'what I would do if the child was mine' but I think if the Dr's advised me to not take my child, I wouldn't.

but..

I'm with you almost all the way.

I wouldn't take a child (or my granny) out of hospital against advice but if I did, I'd expect to bear the consequences should it go wrong.

Re religious cult. I read (it may not be true) that the parents are Jehovah's Witnesses so they're clearly a few coppers short of a bob to begin with.why? Because their religious beliefs are different from yours?"

No, because they HAVE religious beliefs.

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By *iewMan
Forum Mod

over a year ago

Angus & Findhorn

I just don't get why arresting the parents will help anyone, it is surely better that the wee lad is getting care with his family around him.

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By (user no longer on site) OP   
over a year ago


"I just don't get why arresting the parents will help anyone, it is surely better that the wee lad is getting care with his family around him."

Thats what I think and also the treatment they want to give him has been proven to work.

At they very least they should have been allowed to refer to other consultants for an opinion.

Just hope all works out for him & his family. I assume the stress of being separated from his family will not be helping his condition.

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By (user no longer on site)
over a year ago

[Removed by poster at 31/08/14 17:36:36]

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By (user no longer on site)
over a year ago

I have two boys with disabilities one has a more complex illness which is life limited I would not judge these parents as on two occasions I was told my boy wouldn't make it through the night I went against doctors recommendation I fought to keep his machine on does that mean I have neglected my son Nope I believed he could come through it against doctors advice I believe these parents tried to do the same by taking him to a place that They felt could help their son they gave him his medicine he needed don't see why they were arrested??

At the end of the day they were chasing hope what any parents would want in this situation

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By (user no longer on site)
over a year ago


"I have two boys with disabilities one has a more complex illness which is life limited I would not judge these parents as on two occasions I was told my boy wouldn't make it through the night I went against doctors recommendation I fought to keep his machine on does that mean I have neglected my son Nope I believed he could come through it against doctors advice I believe these parents tried to do the same by taking him to a place that They felt could help their son they gave him his medicine he needed don't see why they were arrested??

At the end of the day they were chasing hope what any parents would want in this situation "

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By *iewMan
Forum Mod

over a year ago

Angus & Findhorn

they are in a Spanish Jail tonight, that is so sad....

goodness sake, surely after he slips away is the time for a decision about the rights & wrongs.....

every minute TOGETHER is precious.

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By *nnyMan
over a year ago

Glasgow


"I just don't get why arresting the parents will help anyone, it is surely better that the wee lad is getting care with his family around him."

It makes a better tale for when the parents sell their story to the tabloids.

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By (user no longer on site)
over a year ago


"I just don't get why arresting the parents will help anyone, it is surely better that the wee lad is getting care with his family around him.

It makes a better tale for when the parents sell their story to the tabloids."

Yeah their son is dying and all their thinking of is selling their story???

Get a grip ffs

It's a child .... Their child !

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By (user no longer on site)
over a year ago


"I just don't get why arresting the parents will help anyone, it is surely better that the wee lad is getting care with his family around him.

It makes a better tale for when the parents sell their story to the tabloids."

Sell story to the tabloid are you for real ???

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By *iewMan
Forum Mod

over a year ago

Angus & Findhorn

do you know Onny, even if they do can they not just let one of the parents stay with the wee lad...

we have shared similar _iews on the people who go to the gutter press for the ££££'s, but a wee boy with stage 4 cancer and both parents are in a jail.

seems utterly heartless.

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By (user no longer on site)
over a year ago

Someone at the Crown Prosecution Service must be doing some back pedalling of olympic proportions about now. As for the parents, I think they will be engaging the services of the m'learned friends at the bar.

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By *nnyMan
over a year ago

Glasgow


"I just don't get why arresting the parents will help anyone, it is surely better that the wee lad is getting care with his family around him.

It makes a better tale for when the parents sell their story to the tabloids.

Sell story to the tabloid are you for real ???"

It'd be an excellent way to raise the money they need to have him treated overseas. A public collection + a few high profile celebrity donors and they'll have the dosh in no time.

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By *nnyMan
over a year ago

Glasgow


"do you know Onny, even if they do can they not just let one of the parents stay with the wee lad...

we have shared similar _iews on the people who go to the gutter press for the ££££'s, but a wee boy with stage 4 cancer and both parents are in a jail.

seems utterly heartless."

I agree. Jailing both parents seems a bit OTT but there may be more to this than meets the eye.

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By (user no longer on site)
over a year ago

Right now... at this moment in time.... the priority is the child. That he has been prevented from having the comfort of his parents is an utter disgrace. People who have no understanding of such a situation will always be critical of his parents and accuse them of many things no matter how they act subsequently. A no win situation if ever one existed. I continue to feel deeply for them...ALL....

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By (user no longer on site)
over a year ago


"Right now... at this moment in time.... the priority is the child. That he has been prevented from having the comfort of his parents is an utter disgrace. People who have no understanding of such a situation will always be critical of his parents and accuse them of many things no matter how they act subsequently. A no win situation if ever one existed. I continue to feel deeply for them...ALL...."

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By (user no longer on site)
over a year ago


"I've been in that position. Believe me....when you are faced with the imminent death of your adored child, you will do anything at all in your power to postpone the moment even when in your heart you know it is inevitable. Of one thing I am sure...that wee boy is deeply loved and cared for. I feel nothing but the deepest sadness for the whole family."
xxx

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By (user no longer on site)
over a year ago


"I just don't get why arresting the parents will help anyone, it is surely better that the wee lad is getting care with his family around him.

It makes a better tale for when the parents sell their story to the tabloids.

Sell story to the tabloid are you for real ???

It'd be an excellent way to raise the money they need to have him treated overseas. A public collection + a few high profile celebrity donors and they'll have the dosh in no time."

and iv thought I was a cynic

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By (user no longer on site)
over a year ago


"I just don't get why arresting the parents will help anyone, it is surely better that the wee lad is getting care with his family around him.

It makes a better tale for when the parents sell their story to the tabloids."

WTF

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By *nnyMan
over a year ago

Glasgow


"I just don't get why arresting the parents will help anyone, it is surely better that the wee lad is getting care with his family around him.

It makes a better tale for when the parents sell their story to the tabloids.

Sell story to the tabloid are you for real ???

It'd be an excellent way to raise the money they need to have him treated overseas. A public collection + a few high profile celebrity donors and they'll have the dosh in no time.and iv thought I was a cynic "

What's to be cynical about? It seems a perfectly sensible way to raise a lot of money in a hurry.

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By (user no longer on site) OP   
over a year ago


"I just don't get why arresting the parents will help anyone, it is surely better that the wee lad is getting care with his family around him.

It makes a better tale for when the parents sell their story to the tabloids.

Sell story to the tabloid are you for real ???

It'd be an excellent way to raise the money they need to have him treated overseas. A public collection + a few high profile celebrity donors and they'll have the dosh in no time.and iv thought I was a cynic

What's to be cynical about? It seems a perfectly sensible way to raise a lot of money in a hurry."

I assume you are looking at this analytically & logically in which case it's a perfectly good suggestion (may also get legal fees covered), however given the sensitive nature of this & the condition of the child some people may think the thought or suggestion of selling their story to the press is distasteful.

I suppose only his parents can make that choice & I hope the whole family get the support they need no matter what happens & they choose to do. Dx

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By (user no longer on site)
over a year ago

Ever wished there was a button on forum chat for someone to fall thru a hatch door..... :-/

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By *nnyMan
over a year ago

Glasgow

They've already laid the groundwork for fundraising by claiming they went to Spain to sell their flat in Marbella.

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By *ola cubesMan
over a year ago

coatbridge

Strange thing about this for me is exactly what have they been arrested for have just watched the brother speak on the news shocking that no one from his family are even allowed to visit poor kid must be breaking his heart

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By (user no longer on site)
over a year ago


"Ever wished there was a button on forum chat for someone to fall thru a hatch door..... :-/"

Yip

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By (user no longer on site) OP   
over a year ago


"Strange thing about this for me is exactly what have they been arrested for have just watched the brother speak on the news shocking that no one from his family are even allowed to visit poor kid must be breaking his heart "

I think the hospital & staff should be held to account , IF we are to believe what I've seen the family were told not to question the consultants advice or he would get a care order.

Now the hospital is saying they'll get a second opinion!!!!

Ridiculous, just because you have skills and are in a position of power does not give you a green light for having a God Complex. That's was the original question in my post why did the hospital allow it to get to this stage for the family.

Dx

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By *ndykayMan
over a year ago

Falkirk

As a parent, I feel desperately sad that they are now in a jail while their young son is in a foreign hospital.

I would do whatever it took to try everything humanly possible to help my sick child.

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By *ndykayMan
over a year ago

Falkirk

As for them being Jehovah's Witnesses, I'm not convinced as their religion would prevent them from allowing a lot of treatment and medical intervention.

As for the hospital, I think they've got this really wrong.

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By (user no longer on site)
over a year ago


"As a parent, I feel desperately sad that they are now in a jail while their young son is in a foreign hospital.

I would do whatever it took to try everything humanly possible to help my sick child.

"

Exactly andy as any parent would do

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By (user no longer on site)
over a year ago


"As a parent, I feel desperately sad that they are now in a jail while their young son is in a foreign hospital.

I would do whatever it took to try everything humanly possible to help my sick child.

"

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By (user no longer on site)
over a year ago


"Ever wished there was a button on forum chat for someone to fall thru a hatch door..... :-/"

Yep with a seriously long drop

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By (user no longer on site)
over a year ago


"As for them being Jehovah's Witnesses, I'm not convinced as their religion would prevent them from allowing a lot of treatment and medical intervention.

As for the hospital, I think they've got this really wrong. "

JWs have some, to me, strange beliefs but I've yet to meet one who didn't love their children deeply

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