I’ve been suffering with fibro for years
The worst thing about fibro isn’t the pain or the fatigue but the things you lose !
You become unreliable, you struggle to make and keep plans, you struggle to get out of bed some days
You lose partners/friends - they don’t understand, they get sick of you skipping off early, they get annoyed at you turning up late, changing your mind last minute or simply not waking up and missing things, your now boring cause you don’t drink or wanna go dancing you prefer something slower and chilled, they take everything personal and think you’re finding excuses not to show up
You lose jobs - you’re off sick lots, you can’t function the same anymore and make mistakes at work or take longer to do your job, you miss lots of days and don’t phone in sick because you never actually woke up
You lose your confidence - you feel old, you feel boring, you feel drained, you don’t want to spend hours getting ready, you just want to be comfortable and chilled, without the war paint on you don’t feel quite ready for battle
You lose your drive/ambition - you no longer feel the same about things like this because you’re worried in the back of your mind about how it’s going to affect your fibro, that adventure you would have jumped at the chance of before you start overthinking it and stressing about it and talk yourself out of it
You lose your independence - if you’re going through a particularly bad flare you can’t do everything you could before, have to ask people to help you, can’t go shopping alone, can’t tidy your house by yourself, struggle to make meals, struggle to go for a shower
And the list doesn’t stop there !!
Then there’s the whole negative impact all of the above has on your mental health !!
The constant grief over the things you’ve lost, the low feeling of self worth, crying over the things you’ve lost can’t do but feel you should be doing
And then to top it off you have folk saying to you it can’t be that bad, everyone gets tired working full time, but you were fine last week, how can you do that if you have fibro, you don’t look sick to me, I know someone with fibro and they still work full time and go out and do everything else no problem
Could go on all day about how fibro affects a person but only from a personal perspective because everyone else is different
Biggest thing for me about fibro is learning that when I have my good days don’t hang about waiting for people to show up !! They don’t put anything on hold for you when you’re ill, they don’t change plans to accommodate you so why wait for them ! Jus get out there and do what you can today and fuck everyone else |
he still has his major flare ups but they are more manageable and we are able to plan around them helping distract it as well does help 
