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Suffering with endometriosis

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By *urvySub87 OP   Woman
over a year ago

Near Wellingborough

It doesn't matter how much I love sex I have this god awful painful disease that likes to try and get in the way of my sex life. I can be fine one minute and then the next I'm curled in a ball wishing to die because nothing helps with the pain. I have to take pain killers an hour before I have sex because otherwise it would hurt too much. The main problem I have is that I don't know when these flare ups will happen so if a guy wants to meet with me I can't always do it or I have to cancel because I can't move.

How do I explain that I have this condition without sounding like I'm trying to just fob a guy off?

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By (user no longer on site)
over a year ago

I understand to an extent. I have a back condition where if i get a flare up i can be unable to do anything, including standing up straight to brush my teeth at the sink. The bone crunching pain can last days or almost a week sometimes.

-I was due for an operation earlier this month, but am considering other options.

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By (user no longer on site)
over a year ago

Best just to be honest and up front about your condition and if it’s a problem for them well it’s their loss and not yours.

We are new at this and Carol worries about hot flushes but if the playmate knows then they can be ready for it.

Good luck and don’t stop enjoying your life sex or otherwise.

T

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By (user no longer on site)
over a year ago

Write it in your profile, so its known in advance? It will only put off the utter fuck wits, so not worth your time anyway.

Do you go to any local support groups? To share with like minded people that will understand?

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By *urvySub87 OP   Woman
over a year ago

Near Wellingborough


"Write it in your profile, so its known in advance? It will only put off the utter fuck wits, so not worth your time anyway.

Do you go to any local support groups? To share with like minded people that will understand? "

I'm on a social media support page where I can talk to others who are going through the same thing but they are with long term partners who understand. Thanks for the advice though I appreciate it

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By *naswingdressWoman
over a year ago

Manchester (she/her)

Unpredictable chronic condition?

Some guys will throw their toys out of the pram no matter what tbh

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By *B69Woman
over a year ago

Wiltshire

I suffered with this for many years, if you would like a chat msg me

You shouldn’t have to explain anything

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By (user no longer on site)
over a year ago

Horrible disease. My best friend had a complete hysterectomy and then tissue removed that coiled around her organs by the age of 38.

I am glad you have support. Don't ever feel you have to explain your pain to anyone for their benefit, especially given they can just look it up online and find out what it is for themselves. Either they get it and respect you to do that or can fuck off with their immaturity.

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By (user no longer on site)
over a year ago

Most guys will understand

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By (user no longer on site)
over a year ago

Slight rephrasing of the above, the right guys will understand. Good luck OP and tell people what’s happening with you. More people need to be educated.

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By *otwifehotlifeCouple
over a year ago

Nottingham

Glad that we have a forum thread for this, the hotwife struggles with endo, it's plagued her for a good few years now, playing with new people can be very daunting if we haven't spoken about things like it before, she isn't a fan of the rough pounding away that you see in many clubs, especially the big open rooms, this kind of play does nothing for her, not to say she's opposed to hard fucking from time to time but definitely prefers the more sensual approach as can quite often, but not always, leave her in pain days after.

Sexual positions can be difficult to attain, like legs over shoulders for instance, where when we play together if she is feeling any pain she can say or we can change positions where as she feels it could be a mood killer with another party.

She can often be made to feel very self conscious about her self when the bloating that comes with endo occurs

Endo and the swinging scene can be very difficult

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By *urvySub87 OP   Woman
over a year ago

Near Wellingborough

I've actually put it on my profile (when it's not hidden) so that people can be more understanding.

There's certain times of the month where there's no way I can take a cervix bashing but other times where I can.

On my bloated days I won't even consider sex, just sit around with my best buddies Ben and Jerry's

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By *otwifehotlifeCouple
over a year ago

Nottingham

The pounding style has definitely become more into the open play club scene and the wife just doesn't enjoy for multiple of these reasons and mainly as she maybe in pain for days after, that's not to say she doesn't like a bit of rough fun but the constant is an issue

We have spoken with other couples when been in a club about this and have been told of their issues also, seems everyone has different things and communication is key

Endo is horrific

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By *uke olovingmanMan
over a year ago

Gravesend

I'm glad this has been flagged up ..everyone take note

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By *rHotNottsMan
over a year ago

Dubai & Nottingham

The right partners will understand. I would suggest not rushing into sex , take time to get to know that they understand your disability / illness and it’s implications. I’ve dated a woman with invisible disability and we took a long time to have PV sex, by the time we did I was fully understanding her condition, mostly just through spending time with her.

If you’re wanting to have sex in clubs or with relative strangers on here it’s going to be problematic , most men won’t get this stuff quickly and will probably think it’s an excuse if they don’t know you well because for many on here , it’s all about sex.

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By *otwifehotlifeCouple
over a year ago

Nottingham


"The right partners will understand. I would suggest not rushing into sex , take time to get to know that they understand your disability / illness and it’s implications. I’ve dated a woman with invisible disability and we took a long time to have PV sex, by the time we did I was fully understanding her condition, mostly just through spending time with her.

If you’re wanting to have sex in clubs or with relative strangers on here it’s going to be problematic , most men won’t get this stuff quickly and will probably think it’s an excuse if they don’t know you well because for many on here , it’s all about sex."

Absolutely agree with you on this, we try to spend that time getting to know someone(s) and chat about things pre any talk of play, we have been in a club environment and the wife has seen and had interaction with a single male who we had later seen in a main play room and she was glad she didn't play with due to the style of play.

We have seldom found substantial meets on fab to be fair and generally meet via club visits, I don't think things like this get spoken about enough as when we have spoken to couples for instance in a club they often tell stories of similar issues they have male and female which maybe can feel embarrassing or similar

Your correct the selection process is key to having fun in this scene

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By *acey_RedWoman
over a year ago

Liverpool

For me it usually comes up when getting to know anyone and discussing sexual tastes because for me it means I find deep sex painful and therefore certain positions difficult. If it puts anyone off they're probably not understanding enough for me to have enjoyable sex with them anyway.

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By *urvySub87 OP   Woman
over a year ago

Near Wellingborough

There are so many on here looking for a massive cock to pound away at them. My brain goes, nope, average is absolutely fine by me. Don't get me wrong, I can enjoy rough sex but I definitely have limits

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By *moothshaftMan
over a year ago

Coventry

OP, am I right in saying that this is treatable?

Forgive me if I'm wrong, but my daughter had this for years and couldn't get pregnant because of it.

She had treatment (tubes cleared?), and now I have a beautiful granddaughter.

Not sure if I've got the right illness! X

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By (user no longer on site)
over a year ago

Wow my ex girlfriend had this I always thought she just wasn't wanting me maybe she had this issue without knowing

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By *acey_RedWoman
over a year ago

Liverpool


"OP, am I right in saying that this is treatable?

Forgive me if I'm wrong, but my daughter had this for years and couldn't get pregnant because of it.

She had treatment (tubes cleared?), and now I have a beautiful granddaughter.

Not sure if I've got the right illness! X"

It's not curable, if you have it you have it for life. It can be managed with hormonal treatments. They can do a laparoscopy which can remove some of the extra tissue that grows but that is only temporary and the liklihood is it will grow back. There's often internal scar tissue and adhesions from it and they can be improved by surgery but as we know with external scars, you'll always have them. Mine has also affected some of the nerves in my pelvis which gives me pain in my right leg. There's not a great deal that can be done about that, nothing that wouldn't risk the feeling and movement in my leg anyway. Otherwise treatment is a hysterectomy.

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By *urvySub87 OP   Woman
over a year ago

Near Wellingborough

And unfortunately even a hysterectomy doesn't always cure it as it has been known to grow around the liver, kidneys even the lungs. It's a truly horrible disease that effects 1 in 10 women and can take years, even decades to diagnose

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By *moothshaftMan
over a year ago

Coventry


"OP, am I right in saying that this is treatable?

Forgive me if I'm wrong, but my daughter had this for years and couldn't get pregnant because of it.

She had treatment (tubes cleared?), and now I have a beautiful granddaughter.

Not sure if I've got the right illness! X

It's not curable, if you have it you have it for life. It can be managed with hormonal treatments. They can do a laparoscopy which can remove some of the extra tissue that grows but that is only temporary and the liklihood is it will grow back. There's often internal scar tissue and adhesions from it and they can be improved by surgery but as we know with external scars, you'll always have them. Mine has also affected some of the nerves in my pelvis which gives me pain in my right leg. There's not a great deal that can be done about that, nothing that wouldn't risk the feeling and movement in my leg anyway. Otherwise treatment is a hysterectomy. "

Ahhh ok, thank you for educating me. X

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By *moothshaftMan
over a year ago

Coventry


"And unfortunately even a hysterectomy doesn't always cure it as it has been known to grow around the liver, kidneys even the lungs. It's a truly horrible disease that effects 1 in 10 women and can take years, even decades to diagnose"

Sounds truly awful. This illness should be brought to the forefront more often. X

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