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Restless leg syndrome

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By (user no longer on site) OP   
over a year ago

Anyone else suffer? Driving me mad

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By (user no longer on site)
over a year ago

Me! I despise it

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By *eelouWoman
over a year ago

Glasgow

Oh aye and it drives me fucking mental. It drives my insomnia and I'm still yet to find anything that eases it.

I feel your pain xx

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By (user no longer on site)
over a year ago


"Me! I despise it"

Upper right thigh on the side. I have to walk it off or wank it off, one of the two.

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By (user no longer on site)
over a year ago

Me! Friggin hate it

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By (user no longer on site) OP   
over a year ago

It starts the minute I get in bed so I try to concentrate on something else then end up getting back up , usually until about 3 !

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By (user no longer on site)
over a year ago


"Anyone else suffer? Driving me mad "

Really bad some evenings if I'm sat on the sofa, fine if I go to bed though....

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By *uke olovingmanMan
over a year ago

Gravesend

Yep..I have to get to bed to relieve it

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By (user no longer on site)
over a year ago

Yup.. ridiculously annoying. Constantly twitching

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By (user no longer on site) OP   
over a year ago


"Me! I despise it

Upper right thigh on the side. I have to walk it off or wank it off, one of the two."

Mostly my right calf , that horrible twitchy crawly feeling!

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By *uke olovingmanMan
over a year ago

Gravesend

Line us all up ..... Riverdance

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By *ollymollWoman
over a year ago

Stockport

Drives me round the twist!

Only started with it after being pregnant. I hoped it would go away after but it didn’t.

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By (user no longer on site)
over a year ago

Yep i kick my own arse daily

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By (user no longer on site)
over a year ago


"Anyone else suffer? Driving me mad "

Have you had it officially diagnosed? Symptoms of RLS are very similar to those of a DVT.

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By (user no longer on site)
over a year ago


"Me! I despise it

Upper right thigh on the side. I have to walk it off or wank it off, one of the two.

Mostly my right calf , that horrible twitchy crawly feeling!"

like you have to move it every 5 seconds or so?

Honestly, 2min walk around the block, or a quick strum before bed. I've had it since puberty.

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By (user no longer on site)
over a year ago


"Me! I despise it

Upper right thigh on the side. I have to walk it off or wank it off, one of the two.

Mostly my right calf , that horrible twitchy crawly feeling!"

Are you the male? Does your calf muscle feel firmer than the other one?

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By (user no longer on site) OP   
over a year ago


"Anyone else suffer? Driving me mad

Have you had it officially diagnosed? Symptoms of RLS are very similar to those of a DVT."

Had it since I was about 15 x

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By (user no longer on site) OP   
over a year ago


"Me! I despise it

Upper right thigh on the side. I have to walk it off or wank it off, one of the two.

Mostly my right calf , that horrible twitchy crawly feeling!

Are you the male? Does your calf muscle feel firmer than the other one? "

Female, nope both the same x

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By (user no longer on site)
over a year ago


"Anyone else suffer? Driving me mad

Have you had it officially diagnosed? Symptoms of RLS are very similar to those of a DVT.

Had it since I was about 15 x"

Oh ok. About 5 years ago I thought I had RLS, turned out to be DVT - on warfarin for life

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By (user no longer on site) OP   
over a year ago


"Anyone else suffer? Driving me mad

Have you had it officially diagnosed? Symptoms of RLS are very similar to those of a DVT.

Had it since I was about 15 x

Oh ok. About 5 years ago I thought I had RLS, turned out to be DVT - on warfarin for life "

Oh bloody hell thats scary !

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By (user no longer on site) OP   
over a year ago


"Me! I despise it

Upper right thigh on the side. I have to walk it off or wank it off, one of the two.

Mostly my right calf , that horrible twitchy crawly feeling!

like you have to move it every 5 seconds or so?

Honestly, 2min walk around the block, or a quick strum before bed. I've had it since puberty."

Yep mine started at 15 , sometimes I stand outside the back door as the cold on my feet can help strangely

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By (user no longer on site)
over a year ago

I've had it a few years. It only starts when I'm in bed. Sometimes both legs, from the calf down. I get relief from banging them on the bed

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By *inkerbell67Woman
over a year ago

Clacton on sea essex

Tonic water is good for restless legs ,never heard DVT was related that's a new one on me,was a nurse for 14years Lol

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By (user no longer on site)
over a year ago

Yep..but i get it in my arms usually. (Yes that can happen) find it's worse if i take certain medication too late in the day

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By (user no longer on site) OP   
over a year ago


"Yep..but i get it in my arms usually. (Yes that can happen) find it's worse if i take certain medication too late in the day "

I sometimes get it in my shoulder!!!

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By *xpanding our horizonsCouple
over a year ago

East Anglia

Yep yep yep. Can't sleep! Driving me nuts!!

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By (user no longer on site)
over a year ago

Yup! It tends to happen only when I'm in bed and when it's cold.

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By (user no longer on site) OP   
over a year ago

I’m still up, sitting on my garden bench! Trying to see if the cold on my feet helps as it has before x

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By (user no longer on site)
over a year ago

I get it every now and then. I feel for those who have it chronic.

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By (user no longer on site)
over a year ago


"Anyone else suffer? Driving me mad

Have you had it officially diagnosed? Symptoms of RLS are very similar to those of a DVT.

Had it since I was about 15 x

Oh ok. About 5 years ago I thought I had RLS, turned out to be DVT - on warfarin for life "

Blimey

Another sufferer here ...bloody hate it

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By *sgigglersCouple
over a year ago

Stoke on Trent

Had it for 12 years. Takes a lot to switch your legs off. There is a drug called stalevo that is effective.

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By (user no longer on site)
over a year ago

I've had it for years. I'm a drummer longer though so make beats with them when they get going to keep things interesting haha!

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By (user no longer on site)
over a year ago

Sure there’s a documentary coming on about this or been on?

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By *xpanding our horizonsCouple
over a year ago

East Anglia

I'm still awake. So fed up now. Tomorrow is going to be hell!

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By (user no longer on site)
over a year ago

Gabapentin, pregabalin and ropinirole are all effective

The gabapentin and pregablin particularly effective for night time

Ropinirole is a dopamine agonist which helps raise dopamine levels

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By (user no longer on site)
over a year ago

I suffer from it. Nothing can sort it. My mum has it aswell and its started in her arms haha. When does all yours mainly flare up? Mines when sitting down or just when im falling asleep

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By (user no longer on site)
over a year ago


"Anyone else suffer? Driving me mad "

Yep I do have since I was a kid some nights are worse than others though x

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By (user no longer on site) OP   
over a year ago


"I suffer from it. Nothing can sort it. My mum has it aswell and its started in her arms haha. When does all yours mainly flare up? Mines when sitting down or just when im falling asleep"

Usually starts late evening when I’m sat down , I used to get a few weeks where for some reason it didn’t happen but now it’s every night!

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By (user no longer on site)
over a year ago


"I suffer from it. Nothing can sort it. My mum has it aswell and its started in her arms haha. When does all yours mainly flare up? Mines when sitting down or just when im falling asleep

Usually starts late evening when I’m sat down , I used to get a few weeks where for some reason it didn’t happen but now it’s every night!"

Same i have it pretty much all the time im sitting down.

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By *adeiteWoman
over a year ago

Staffordshire

Drink tonic water. It helps.

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By (user no longer on site)
over a year ago

My whole body does this.. Soon as I m up I jump in van and drive with music on til i find a good spot by sea

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By (user no longer on site)
over a year ago

I get this occasionally. I ought this vibrating paddle thing that was meant to go in a cot to soothe them to sleep. I put it between my calves and it stops it completely.

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By (user no longer on site)
over a year ago


"Gabapentin, pregabalin and ropinirole are all effective

The gabapentin and pregablin particularly effective for night time

Ropinirole is a dopamine agonist which helps raise dopamine levels "

After reading about the side effects, I think I'd rather have restless legs.

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By (user no longer on site)
over a year ago


"Anyone else suffer? Driving me mad "

Go for a walk!

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By (user no longer on site) OP   
over a year ago


"Anyone else suffer? Driving me mad

Go for a walk!"

It was about 1am !

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By *im himCouple (MM)
over a year ago

bedworth

There are 2 documentaries on channel 5 . You can get both on catchup.

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By (user no longer on site) OP   
over a year ago


"There are 2 documentaries on channel 5 . You can get both on catchup.

"

I didn’t realise there was two I only watched one , thank you x

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By (user no longer on site)
over a year ago

Yes I do. It’s awful

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By *at3232Woman
over a year ago

the moon


"Sure there’s a documentary coming on about this or been on?"

Was on channel 5 last week....scary

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By *at3232Woman
over a year ago

the moon

For restless legs put a small bit of hard soap under your toes and put on socks. Sounds weird but it works!!

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By *im himCouple (MM)
over a year ago

bedworth


"There are 2 documentaries on channel 5 . You can get both on catchup.

I didn’t realise there was two I only watched one , thank you x"

New one only came out last week I think

Your welcome x

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By (user no longer on site) OP   
over a year ago


"There are 2 documentaries on channel 5 . You can get both on catchup.

I didn’t realise there was two I only watched one , thank you x

New one only came out last week I think

Your welcome x "

Just found it will watch it tonight! X

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By (user no longer on site) OP   
over a year ago

Well tonight I’m going to try no caffeine after 5 and drinking tonic water . These sleepless nights are not doing my wrinkles any good!

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By *im himCouple (MM)
over a year ago

bedworth


"Well tonight I’m going to try no caffeine after 5 and drinking tonic water . These sleepless nights are not doing my wrinkles any good!"

I ended up going to the doctors with mine , I have been given ropinirole to take , it has helped but not taken them away.

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By (user no longer on site) OP   
over a year ago


"Well tonight I’m going to try no caffeine after 5 and drinking tonic water . These sleepless nights are not doing my wrinkles any good!

I ended up going to the doctors with mine , I have been given ropinirole to take , it has helped but not taken them away. "

It’s a drain isn’t it?!

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By *aeganaWoman
over a year ago

birmingham

Yup drives me loopy feels like crawling under ya knees and back of my leg. End up walkin about and looking like a zombie the next day.

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By (user no longer on site) OP   
over a year ago


"Yup drives me loopy feels like crawling under ya knees and back of my leg. End up walkin about and looking like a zombie the next day."

Zombie here!

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By *stellaWoman
over a year ago

London

Levodopa and increased iron intake.

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By *im himCouple (MM)
over a year ago

bedworth


"Well tonight I’m going to try no caffeine after 5 and drinking tonic water . These sleepless nights are not doing my wrinkles any good!

I ended up going to the doctors with mine , I have been given ropinirole to take , it has helped but not taken them away.

It’s a drain isn’t it?!"

It is when you got to be in work for 6am and you been up all night twitching. I hate it

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By *sgigglersCouple
over a year ago

Stoke on Trent

Try stalevo Or ropinerol. They work well x

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By (user no longer on site)
over a year ago

I usually get it at specific times.

- When I'm physically tired.

- When I'm trapped in a confined space like a packed car or aeroplane.

- Or if a doze off, and woken up before I enter deep sleep.

Feels like it's almost psychological.

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By (user no longer on site) OP   
over a year ago


"I usually get it at specific times.

- When I'm physically tired.

- When I'm trapped in a confined space like a packed car or aeroplane.

- Or if a doze off, and woken up before I enter deep sleep.

Feels like it's almost psychological. "

It can definitely be psychological as sometimes if I try and distract myself it goes ! I have cut out caffeine in the evening and that’s helped a lot x

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By (user no longer on site) OP   
over a year ago


"Try stalevo Or ropinerol. They work well x"

Are these prescriptions?

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By (user no longer on site)
over a year ago

A friend of mine has it while shes asleep, apparently shes like a dog dreaming with the way she twitches. Her doctor put her on Pramipexole which is used to treat Epilepsy. Seems to work for her.

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By *tella HeelsTV/TS
over a year ago

west here ford shire

So metimes

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By *sgigglersCouple
over a year ago

Stoke on Trent

Prescription drugs for people with parkinsons disease.

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By (user no longer on site) OP   
over a year ago

Thank you will ask docs next time it gets bad x

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By (user no longer on site)
over a year ago

Curruntly sat rubbing my feet together to try and ease rls. Drives me mad, makes my legs feel really heavy

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By (user no longer on site) OP   
over a year ago


"Curruntly sat rubbing my feet together to try and ease rls. Drives me mad, makes my legs feel really heavy "

That makes mine worse

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