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 I’m me always have always will be but my self confidence has took a major nose dive the last few months Cos of this! | |||
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"Finally after a 8 month wait I get to see a new consultant in the morn , just hope he will give me the new treatment me n my gp have been fighting for the last 8 months if not I’ll be beyond gutted sick of it all now n having to put meets off n having fun n generally living life as it’s such a horrid skin condition to have n makes me feel like a leper not that I am I’m me always have always will be but my self confidence has took a major nose dive the last few months Cos of this! "Well good luck and hope you get the new treatment  x | |||
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"Finally after a 8 month wait I get to see a new consultant in the morn , just hope he will give me the new treatment me n my gp have been fighting for the last 8 months if not I’ll be beyond gutted sick of it all now n having to put meets off n having fun n generally living life as it’s such a horrid skin condition to have n makes me feel like a leper not that I am I’m me always have always will be but my self confidence has took a major nose dive the last few months Cos of this!
Well good luck and hope you get the new treatment x"Thanks xx | |||
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"Finally after a 8 month wait I get to see a new consultant in the morn , just hope he will give me the new treatment me n my gp have been fighting for the last 8 months if not I’ll be beyond gutted sick of it all now n having to put meets off n having fun n generally living life as it’s such a horrid skin condition to have n makes me feel like a leper not that I am I’m me always have always will be but my self confidence has took a major nose dive the last few months Cos of this!
Well good luck and hope you get the new treatment x
Thanks xx
"You're welcome. Let us know how you get on  | |||
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"Make sure you tell him how miserable you've been and how it's affecting how you feel about yourself. Good luck, hope it goes well! x " Thank you n oh I will be telling him , it’s totally ruined my life the last few months n made me so depressed x | |||
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"Finally after a 8 month wait I get to see a new consultant in the morn , just hope he will give me the new treatment me n my gp have been fighting for the last 8 months if not I’ll be beyond gutted sick of it all now n having to put meets off n having fun n generally living life as it’s such a horrid skin condition to have n makes me feel like a leper not that I am I’m me always have always will be but my self confidence has took a major nose dive the last few months Cos of this!
Well good luck and hope you get the new treatment x
Thanks xx
Will do n thank you again x
You're welcome. Let us know how you get on " | |||
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"Finally after a 8 month wait I get to see a new consultant in the morn , just hope he will give me the new treatment me n my gp have been fighting for the last 8 months if not I’ll be beyond gutted sick of it all now n having to put meets off n having fun n generally living life as it’s such a horrid skin condition to have n makes me feel like a leper not that I am I’m me always have always will be but my self confidence has took a major nose dive the last few months Cos of this!
Well good luck and hope you get the new treatment x
Thanks xx
Will do n thank you again x
You're welcome. Let us know how you get on "xx | |||
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"Make sure you tell him how miserable you've been and how it's affecting how you feel about yourself. Good luck, hope it goes well! x "  | |||
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"good luck keep us updated." Will do x | |||
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"I hope you have found the best Doctor for you. Good luck. My lovely dermatologist retired 18 months ago. So I’m back being passed from pillar to post every 6 months with foreign speaking docs who don’t have a flipping clue about my Rare skin condition. I’m sick of it. " I’m in same position , my consultant is a twat u hate him he don’t do fuck all to help me x | |||
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"So I saw consultant today n he agreed it is severe n needs treatment ASAP so I guessed I’d be back on waiting list til jan but no I start treatment tomoz am n 3 times a week for upto 30 weeks I’m so happy n just hope it works n clears it n I can finally get my self confidence back n be back to my old self again n finally stop putting off meets , thank you to each and everyone of you that commented on this post n I will post regular updates on how the treatment is going.... the side effects of it are skin cancer ( low risk) burning , itching, redness of skin n feeling sick but it’s a risk worth taking not to look n feel like elephant woman anymore!! X " Is it light treatment? | |||
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"So I saw consultant today n he agreed it is severe n needs treatment ASAP so I guessed I’d be back on waiting list til jan but no I start treatment tomoz am n 3 times a week for upto 30 weeks I’m so happy n just hope it works n clears it n I can finally get my self confidence back n be back to my old self again n finally stop putting off meets , thank you to each and everyone of you that commented on this post n I will post regular updates on how the treatment is going.... the side effects of it are skin cancer ( low risk) burning , itching, redness of skin n feeling sick but it’s a risk worth taking not to look n feel like elephant woman anymore!! X Is it light treatment?" Yes | |||
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"So I saw consultant today n he agreed it is severe n needs treatment ASAP so I guessed I’d be back on waiting list til jan but no I start treatment tomoz am n 3 times a week for upto 30 weeks I’m so happy n just hope it works n clears it n I can finally get my self confidence back n be back to my old self again n finally stop putting off meets , thank you to each and everyone of you that commented on this post n I will post regular updates on how the treatment is going.... the side effects of it are skin cancer ( low risk) burning , itching, redness of skin n feeling sick but it’s a risk worth taking not to look n feel like elephant woman anymore!! X Is it light treatment? Yes " I’d be interested in knowing how it works | |||
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x | |||
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"So I saw consultant today n he agreed it is severe n needs treatment ASAP so I guessed I’d be back on waiting list til jan but no I start treatment tomoz am n 3 times a week for upto 30 weeks I’m so happy n just hope it works n clears it n I can finally get my self confidence back n be back to my old self again n finally stop putting off meets , thank you to each and everyone of you that commented on this post n I will post regular updates on how the treatment is going.... the side effects of it are skin cancer ( low risk) burning , itching, redness of skin n feeling sick but it’s a risk worth taking not to look n feel like elephant woman anymore!! X Is it light treatment? Yes I’d be interested in knowing how it works " I’ll keep u all updated | |||
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"Fantastic news! Here's hoping it works for you, I'm sure it will! x"Aww thank you x | |||
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"Fantastic news! Here's hoping it works for you, I'm sure it will! x
Aww thank you x "They used to use light treatment many years ago, for skin conditions, my dad had it for acne on his back, it worked, I would imagine its more sophisticated now | |||
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"So I saw consultant today n he agreed it is severe n needs treatment ASAP so I guessed I’d be back on waiting list til jan but no I start treatment tomoz am n 3 times a week for upto 30 weeks I’m so happy n just hope it works n clears it n I can finally get my self confidence back n be back to my old self again n finally stop putting off meets , thank you to each and everyone of you that commented on this post n I will post regular updates on how the treatment is going.... the side effects of it are skin cancer ( low risk) burning , itching, redness of skin n feeling sick but it’s a risk worth taking not to look n feel like elephant woman anymore!! X " Thats great news. Hope it goes well x | |||
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"So I saw consultant today n he agreed it is severe n needs treatment ASAP so I guessed I’d be back on waiting list til jan but no I start treatment tomoz am n 3 times a week for upto 30 weeks I’m so happy n just hope it works n clears it n I can finally get my self confidence back n be back to my old self again n finally stop putting off meets , thank you to each and everyone of you that commented on this post n I will post regular updates on how the treatment is going.... the side effects of it are skin cancer ( low risk) burning , itching, redness of skin n feeling sick but it’s a risk worth taking not to look n feel like elephant woman anymore!! X " Fantastic news!! | |||
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"Fantastic news! Here's hoping it works for you, I'm sure it will! x
Aww thank you x
They used to use light treatment many years ago, for skin conditions, my dad had it for acne on his back, it worked, I would imagine its more sophisticated now "I work in this field. It hasn't changed UV therapy is still a man treatment technique for a lot of skin conditions. | |||
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"Finally after a 8 month wait I get to see a new consultant in the morn , just hope he will give me the new treatment me n my gp have been fighting for the last 8 months if not I’ll be beyond gutted sick of it all now n having to put meets off n having fun n generally living life as it’s such a horrid skin condition to have n makes me feel like a leper not that I am I’m me always have always will be but my self confidence has took a major nose dive the last few months Cos of this! "Have you had UV therapy? | |||
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"So I saw consultant today n he agreed it is severe n needs treatment ASAP so I guessed I’d be back on waiting list til jan but no I start treatment tomoz am n 3 times a week for upto 30 weeks I’m so happy n just hope it works n clears it n I can finally get my self confidence back n be back to my old self again n finally stop putting off meets , thank you to each and everyone of you that commented on this post n I will post regular updates on how the treatment is going.... the side effects of it are skin cancer ( low risk) burning , itching, redness of skin n feeling sick but it’s a risk worth taking not to look n feel like elephant woman anymore!! X Thats great news. Hope it goes well x" Thanks x | |||
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"So I saw consultant today n he agreed it is severe n needs treatment ASAP so I guessed I’d be back on waiting list til jan but no I start treatment tomoz am n 3 times a week for upto 30 weeks I’m so happy n just hope it works n clears it n I can finally get my self confidence back n be back to my old self again n finally stop putting off meets , thank you to each and everyone of you that commented on this post n I will post regular updates on how the treatment is going.... the side effects of it are skin cancer ( low risk) burning , itching, redness of skin n feeling sick but it’s a risk worth taking not to look n feel like elephant woman anymore!! X Fantastic news!! " thanks x | |||
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"Op did your consultant ask you anything about the type of food and drink you consume?" I’ve done gluten free , dairy free all kinds of diff diets over the last year n nothing worked | |||
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"Fantastic news! Here's hoping it works for you, I'm sure it will! x
Aww thank you x
They used to use light treatment many years ago, for skin conditions, my dad had it for acne on his back, it worked, I would imagine its more sophisticated now
I work in this field. It hasn't changed UV therapy is still a man treatment technique for a lot of skin conditions.
"Thank you for that | |||
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"Op did your consultant ask you anything about the type of food and drink you consume? I’ve done gluten free , dairy free all kinds of diff diets over the last year n nothing worked " It's the acid forming food and drinks you want to limit and increase the alkaline forming ones. The red itchy patches are acids excreating from your lymph nodes and the flakey skin is your immune systems response to the acids attacking your skin cells so it produces more and more to try and protect itself. If you have a bath with epson salts in it will have a soothing effect because the salts are neutal to alkaline that soak into your skin neutralising the acids. | |||
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"Op did your consultant ask you anything about the type of food and drink you consume? I’ve done gluten free , dairy free all kinds of diff diets over the last year n nothing worked It's the acid forming food and drinks you want to limit and increase the alkaline forming ones. The red itchy patches are acids excreating from your lymph nodes and the flakey skin is your immune systems response to the acids attacking your skin cells so it produces more and more to try and protect itself. If you have a bath with epson salts in it will have a soothing effect because the salts are neutal to alkaline that soak into your skin neutralising the acids. "What kind of foods are worst for acid forming and best for alkaline forming? And I’m going to pinch that tip with the Epsom salts.x | |||
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"Op did your consultant ask you anything about the type of food and drink you consume? I’ve done gluten free , dairy free all kinds of diff diets over the last year n nothing worked It's the acid forming food and drinks you want to limit and increase the alkaline forming ones. The red itchy patches are acids excreating from your lymph nodes and the flakey skin is your immune systems response to the acids attacking your skin cells so it produces more and more to try and protect itself. If you have a bath with epson salts in it will have a soothing effect because the salts are neutal to alkaline that soak into your skin neutralising the acids.
What kind of foods are worst for acid forming and best for alkaline forming? And I’m going to pinch that tip with the Epsom salts.x"You can find the extensive list by googling acid forming foods and then switch to images, but the worst things are wine,coffee,choclate,meat,artifical sweeteners,pasta,shellfish,pastries,cheese ect, and the most alkalising things are raw spinach,red cabbage,cucumber,raw celery,carrots,sea,onions,lemons and limes. Simply shining a light on your skin will only treat the symptoms and wont address the cause plus you have an increased chance of getting skin cancer which is far worse than psoriasis | |||
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"Op did your consultant ask you anything about the type of food and drink you consume? I’ve done gluten free , dairy free all kinds of diff diets over the last year n nothing worked It's the acid forming food and drinks you want to limit and increase the alkaline forming ones. The red itchy patches are acids excreating from your lymph nodes and the flakey skin is your immune systems response to the acids attacking your skin cells so it produces more and more to try and protect itself. If you have a bath with epson salts in it will have a soothing effect because the salts are neutal to alkaline that soak into your skin neutralising the acids.
What kind of foods are worst for acid forming and best for alkaline forming? And I’m going to pinch that tip with the Epsom salts.x
You can find the extensive list by googling acid forming foods and then switch to images, but the worst things are wine,coffee,choclate,meat,artifical sweeteners,pasta,shellfish,pastries,cheese ect, and the most alkalising things are raw spinach,red cabbage,cucumber,raw celery,carrots,sea,onions,lemons and limes. Simply shining a light on your skin will only treat the symptoms and wont address the cause plus you have an increased chance of getting skin cancer which is far worse than psoriasis "Thank you | |||
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"Op did your consultant ask you anything about the type of food and drink you consume? I’ve done gluten free , dairy free all kinds of diff diets over the last year n nothing worked It's the acid forming food and drinks you want to limit and increase the alkaline forming ones. The red itchy patches are acids excreating from your lymph nodes and the flakey skin is your immune systems response to the acids attacking your skin cells so it produces more and more to try and protect itself. If you have a bath with epson salts in it will have a soothing effect because the salts are neutal to alkaline that soak into your skin neutralising the acids.
What kind of foods are worst for acid forming and best for alkaline forming? And I’m going to pinch that tip with the Epsom salts.x
You can find the extensive list by googling acid forming foods and then switch to images, but the worst things are wine,coffee,choclate,meat,artifical sweeteners,pasta,shellfish,pastries,cheese ect, and the most alkalising things are raw spinach,red cabbage,cucumber,raw celery,carrots,sea,onions,lemons and limes. Simply shining a light on your skin will only treat the symptoms and wont address the cause plus you have an increased chance of getting skin cancer which is far worse than psoriasis "Very informative, thank you | |||
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"Finally after a 8 month wait I get to see a new consultant in the morn , just hope he will give me the new treatment me n my gp have been fighting for the last 8 months if not I’ll be beyond gutted sick of it all now n having to put meets off n having fun n generally living life as it’s such a horrid skin condition to have n makes me feel like a leper not that I am I’m me always have always will be but my self confidence has took a major nose dive the last few months Cos of this! "Know how you feel, suffered with it from age 13. Now on great meds (injections) what treatment are you hoping to start? T x | |||
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"Finally after a 8 month wait I get to see a new consultant in the morn , just hope he will give me the new treatment me n my gp have been fighting for the last 8 months if not I’ll be beyond gutted sick of it all now n having to put meets off n having fun n generally living life as it’s such a horrid skin condition to have n makes me feel like a leper not that I am I’m me always have always will be but my self confidence has took a major nose dive the last few months Cos of this!
Know how you feel, suffered with it from age 13. Now on great meds (injections) what treatment are you hoping to start? T x "I’m on UVB light therapy | |||
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"Also great news op, fingers crossed for you it helps.xx" Thanks x | |||
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, it’s not working just yet but got another 29 weeks to go  | |||
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"Another treatment today , it’s not working just yet but got another 29 weeks to go "Aah bless you, early days | |||
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"Another treatment today , it’s not working just yet but got another 29 weeks to go
Aah bless you, early days "
yeah baby steps each time until it builds up to the stronger treatment x | |||
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"Another treatment today , it’s not working just yet but got another 29 weeks to go
Aah bless you, early days
yeah baby steps each time until it builds up to the stronger treatment x "good luck lass | |||
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"Another treatment today , it’s not working just yet but got another 29 weeks to go
Aah bless you, early days
yeah baby steps each time until it builds up to the stronger treatment x " | |||
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"Methotrexate worked wonders for me x" That’s a serious drug! | |||
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"Another treatment today , it’s not working just yet but got another 29 weeks to go
Aah bless you, early days
yeah baby steps each time until it builds up to the stronger treatment x "I’ve been through the UV treatment a few years ago. I tried to message you privately but I’m outside your preferences Message me and I’ll let you know how I got on with it. I’m currently suffering a flare up.
Best of luck x | |||
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"Finally after a 8 month wait I get to see a new consultant in the morn , just hope he will give me the new treatment me n my gp have been fighting for the last 8 months if not I’ll be beyond gutted sick of it all now n having to put meets off n having fun n generally living life as it’s such a horrid skin condition to have n makes me feel like a leper not that I am I’m me always have always will be but my self confidence has took a major nose dive the last few months Cos of this! "Best of luck,I suffer with the same problem,I find it very upsetting,all I do is try different creams,I get told it will go in time but I am beginning to have my doubts | |||
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"Keeping an eye on this forum, my other half has psoriasis, and psoriatic arthritis, she gets so down and at times really struggles to stay positive. Good luck OP. " . Thank you I’m now on week 3 of uvb treatment not working much but I’ve a long way to go yet I’m getting a good tan thou | |||
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"I’ve just got Betnovate to try out. Hopefully it’ll help. " That stuff don’t work for me at all infact had every ointment n cream known going n it’s not worked but uvb should work hopefully I’ve a long way to go yet , I’ll keep u posted n thanks | |||
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"Another treatment today , it’s not working just yet but got another 29 weeks to go
Aah bless you, early days
yeah baby steps each time until it builds up to the stronger treatment x good luck lass"Thanks | |||
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"I’ve just got Betnovate to try out. Hopefully it’ll help. That stuff don’t work for me at all infact had every ointment n cream known going n it’s not worked but uvb should work hopefully I’ve a long way to go yet , I’ll keep u posted n thanks " Fingers crossed for you. The light treatment didn’t work for me but reading even more on this subject makes me think what works one time may not the next and what didn’t work could well do now. There’s so many types of this irritating skin condition | |||
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"If that don’t work then I’ll be gutted n back to where I first started , it’s totally ruining my life right now I’m so depressed n anxious constantly n puts me off meeting anyone no one would want me state it’s in I just feel so ugly n depressed "Have they given any indication of when you should see an improvement? It could still be early days. They wouldn't prescribe 9 weeks if it was cured quicker. x | |||
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"If that don’t work then I’ll be gutted n back to where I first started , it’s totally ruining my life right now I’m so depressed n anxious constantly n puts me off meeting anyone no one would want me state it’s in I just feel so ugly n depressed
Have they given any indication of when you should see an improvement? It could still be early days. They wouldn't prescribe 9 weeks if it was cured quicker. x"Today I’ve noticed too half of my back has nearly cleared n some on my legs has cleared yeeha .. it’s going to be a long process but fingers crossed it’s finally doing something it will be so nice to feel normal again n not feel like a leper x | |||
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"If that don’t work then I’ll be gutted n back to where I first started , it’s totally ruining my life right now I’m so depressed n anxious constantly n puts me off meeting anyone no one would want me state it’s in I just feel so ugly n depressed
Have they given any indication of when you should see an improvement? It could still be early days. They wouldn't prescribe 9 weeks if it was cured quicker. x
Today I’ve noticed too half of my back has nearly cleared n some on my legs has cleared yeeha .. it’s going to be a long process but fingers crossed it’s finally doing something it will be so nice to feel normal again n not feel like a leper x "Aah, great news, obviously it needs to run its course, but good news you're seeing some improvement | |||
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"I have psoristic arthrtis and the methotrexate and daily vitamin d work wonders. Been on 22.5mg s week for the past 12 years. If i cant take the methotrexate for any reason the psoriasis starts to flare again." Is the methotrexate injections? As that’s my next step if uvb don’t work , I’ve noticed a difference the last few days top of my back has cleared n other places have faded n it’s all the places I’m very itchy now where I wasn’t before ... just hope it clears n I can begin to feel normal again n not be so anxious self consious n embarrassed x | |||
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"Ive sufferd since i eas 13, on and off mainly on though. All stress related snd anxiety. Vicious circle! Childsfarn is the best moisturiser I've come across, UV lighr treatment also. Hope something works for you !" Child’s farm didn’t work for me at all made it worse | |||
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"If that don’t work then I’ll be gutted n back to where I first started , it’s totally ruining my life right now I’m so depressed n anxious constantly n puts me off meeting anyone no one would want me state it’s in I just feel so ugly n depressed
Have they given any indication of when you should see an improvement? It could still be early days. They wouldn't prescribe 9 weeks if it was cured quicker. x
Today I’ve noticed too half of my back has nearly cleared n some on my legs has cleared yeeha .. it’s going to be a long process but fingers crossed it’s finally doing something it will be so nice to feel normal again n not feel like a leper x "That's really good news! | |||
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"If that don’t work then I’ll be gutted n back to where I first started , it’s totally ruining my life right now I’m so depressed n anxious constantly n puts me off meeting anyone no one would want me state it’s in I just feel so ugly n depressed
Have they given any indication of when you should see an improvement? It could still be early days. They wouldn't prescribe 9 weeks if it was cured quicker. x
Today I’ve noticed too half of my back has nearly cleared n some on my legs has cleared yeeha .. it’s going to be a long process but fingers crossed it’s finally doing something it will be so nice to feel normal again n not feel like a leper x
Aah, great news, obviously it needs to run its course, but good news you're seeing some improvement "Thanks | |||
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"If that don’t work then I’ll be gutted n back to where I first started , it’s totally ruining my life right now I’m so depressed n anxious constantly n puts me off meeting anyone no one would want me state it’s in I just feel so ugly n depressed
Have they given any indication of when you should see an improvement? It could still be early days. They wouldn't prescribe 9 weeks if it was cured quicker. x
Today I’ve noticed too half of my back has nearly cleared n some on my legs has cleared yeeha .. it’s going to be a long process but fingers crossed it’s finally doing something it will be so nice to feel normal again n not feel like a leper x
That's really good news! "Thanks | |||
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"Finally after a 8 month wait I get to see a new consultant in the morn , just hope he will give me the new treatment me n my gp have been fighting for the last 8 months if not I’ll be beyond gutted sick of it all now n having to put meets off n having fun n generally living life as it’s such a horrid skin condition to have n makes me feel like a leper not that I am I’m me always have always will be but my self confidence has took a major nose dive the last few months Cos of this! "Good luck | |||
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