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"Carl's finally going into Hospital THIS FRIDAY (of all days!!!!) for his "cancerous" total~Prostate removal!! NB:The only symptom he had (seriously) was going to the Lou 3/4 times per night which I personally thought was a little too much. So I googled this & the "possibility" of 'Prostate Cancer' came up!! That was in June 2016. Bloods were slightly high & at this stage it was just "moderately "enlarged & was given medication to 'shrink it (the side effect was "Retograde ejaculation" & diminished Lobedo) ~bloody crap for both of us !!! His GP told him at his annual check in June 2017..."I'll see you again Carl in 12months"(over my dead body I told him) & demanded he see Carl every month!!!!! & BLOODY 'THANK GOD' I INSISTED HE SEE HIM EVERY MONTH ~ because by August's examination it had totally changed & felt different(HARDER) His bloods were higher & at his 2nd MRI scan,BODY BONE SCAN & Biopsies it showed a 8mm tumour!! & Carl' STILL' feels absolutely NORMAL!! His energy levels are normal,he works out for 2hrs 5 x a week & walks the dogs twice a day !! seriously normal! So ...take note Fab Guys /peeps~ "there doesn't have to be ANY symptoms AT ALL for ya to have Prostate Cancer :o( Carl's lucky he had a pushy Fiance LOL All will go well ...i'm sure xx Jules xxxx " Yes, all the best. Must be a complete nightmare for you both and your family. | |||
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"All the best to you both. " Good luck with it all x | |||
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"Lots of good wishes for you both. Well done for pushing your gp, they are lazy buggers at best. I've got true stories about lazy gps that miss things, that could fill a book. I know they are only human but I just wish more would listen to us when we tell them that something isn't right with our bodies. " that's fucked up. Well done op, on catching it and all the very best | |||
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"Lots of good wishes for you both. Well done for pushing your gp, they are lazy buggers at best. I've got true stories about lazy gps that miss things, that could fill a book. I know they are only human but I just wish more would listen to us when we tell them that something isn't right with our bodies. " Daily mail reader | |||
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" Hi everyone x ~just to update you all ~ Carl was in Theatre for 6hrs 10mins!!!(having obviously opted for the much~lengthier "Nerve~ sparing" procedure. He then went str8 to recovery & was then eventually transferred to the Clinical intensive care Unit(massive delay due to a terrible 8 car+ pile~up at Meadowhall on the M1 at Jct 34. Rotherham was Full,so all the 30+ ppl were sent to both Hallamshire & Northern General hospitals & obviously no spare beds were available in the ITC (bless them all !!) Carl was then eventually allocated a bed in Clinical care & STAYED THERE until 7pm Saturday only 24hrs after arriving in ICU...He's now on the normal Urology ward & unbelievably will possibly be being discharged at some point today (Sunday....less than 60hrs in Hospital) what a weekend!!! Lol x" Wow wonderful news x | |||
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"Carl's finally going into Hospital THIS FRIDAY (of all days!!!!) for his "cancerous" total~Prostate removal!! NB:The only symptom he had (seriously) was going to the Lou 3/4 times per night which I personally thought was a little too much. So I googled this & the "possibility" of 'Prostate Cancer' came up!! That was in June 2016. Bloods were slightly high & at this stage it was just "moderately "enlarged & was given medication to 'shrink it (the side effect was "Retograde ejaculation" & diminished Lobedo) ~bloody crap for both of us !!! His GP told him at his annual check in June 2017..."I'll see you again Carl in 12months"(over my dead body I told him) & demanded he see Carl every month!!!!! & BLOODY 'THANK GOD' I INSISTED HE SEE HIM EVERY MONTH ~ because by August's examination it had totally changed & felt different(HARDER) His bloods were higher & at his 2nd MRI scan,BODY BONE SCAN & Biopsies it showed a 8mm tumour!! & Carl' STILL' feels absolutely NORMAL!! His energy levels are normal,he works out for 2hrs 5 x a week & walks the dogs twice a day !! seriously normal! So ...take note Fab Guys /peeps~ "there doesn't have to be ANY symptoms AT ALL for ya to have Prostate Cancer :o( Carl's lucky he had a pushy Fiance LOL All will go well ...i'm sure xx Jules xxxx " Sending you 2 my best wishes op x | |||
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" ** 3RD UPDATE** Carl's had a really awfully uncomfortable week with his catheter & the massively painful trauma swelling it's created (bless him) So yesterday it was "finally" removed THANK GOD!!!along with all the staples from his 6 portal sites on his tummy(from where the surgeon went into his stomach to perform the keyhole procedure) He's 'STILL' absolutely NO CONTROL over his bladder (as yet) and will need to work on this over the next 6 weeks (really annoying,very frustrating and embarrassing all at the same time) Still very sore & swollen ,even his thighs are swelling & retaining fluid,But all is quite normal we've been reassured!! Carl's just got to continue with the 250ml minimum of water every hour and have a small walk each hour to keep everything moving.. BUT~ HE'S SOOOO FED UP NOW 'BLESS HIM'X " Aw it doesnt sound nice but its good hes on the mend. Much love to you both xx | |||
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"5th update ~ xx Well it's been a while since my last update,so felt it only right I update you all ,after all the fantastic genuinely lovely messages Carl & I have received TY Well it's been just over 7 weeks now since Carl had a complete Prostecomy He's still very much dribbling & and in need of his pads :o) bless him,but his major swelling has at long last started to reduce slowly day by day ,over the last couple of weeks!!! Thank goodness!! He's going back to see his urologist in 2 weeks so will know far more then(fingers & toes tightly X'ed they've removed it all) It's gonna be a very long slow recovery but we hope & pray...his feeling comes back soon& can get back his erections & control the bladder incontinence....but with strong pelvic floor muscles prior to his OP,hopefully things will soon be back to normal TY SOOO much for ALL the positive messages & fab vibes Mwah!! Mwah!! Jules (& Carl) xxx " Wishing him continued recovery. | |||
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" ======================================== **** 4th update **** ======================================== Firstly~ THANK YOU SO VERY MUCH TO ALL OF YOU FOR TAKING THE TIME AND EFFORT TO READ MY THREAD ABT Mr C's operation! :o) Well it's been 17 days since Carl's operation to removed his cancerous total Prostate Gland (24/11) He's STILL very swollen in the penile~testicular,pubic,upper thigh & lower leg area's.This is quite normal apparently as fluid builds up and aren't able to drain as quickly,which results in this painful retention swollen build up(which is very uncomfortable 24/7) His balls are ONE MASSIVE GRAPEFRUIT in size & Penis is like a "beached twisted swollen Jurassic~slug" (there's really no other way of describing it at the moment) His catheter was continually sore throughout the 7 days it was fitted and caused Carl severe discomfort & swelling throughout(I had him back to both Rotherham & Sheffield hospitals 3 times during this 1st week,convinced this swelling wasn't right,only to be discharged & reasurred "THIS WAS NORMAL SWELLING!!" So we assumed once this was removed it would settle back to it's NORMAL pre~op size,but to our shock & obvious disappointment this hasn't been the case so far. But Carl's a born~fighter and not one to let anything get him down....so he's been determined to try his very best to get back to a slow normality EG: walking the dogs & keep things moving (as advised by the Urologists)Eating & drinking as required & resting in between as also advised. It will eventually settle we've been assured ~ but each day seems to last a lifetime at the moment and I feel totally helpless at the moment and can only try my best to be here for him,which is so bloody frustrating seeing Carl suffer so much x x x " No words except been there. Sending virtual hugs . | |||
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" As your status says you're looking for somebody younger than MrC now so none of this really matters.." Swinging and health are two different. A lot of people have followed this couple's experiences and will be glad of an update. This has nothing to do with the decisions they have made regarding their sex life. To be honest your reply appears rude, ever heard the saying " If you haven't got any thing nice to say, don't say anything!" The scars from cancer run deep, let people deal with these scars as they see fit. | |||
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"latest update for MrC XXX Well the last almost 7months have flown by since MrC's Prostate cancer operation TYVVM to everyone for ALL the wonderful genuine messages and genuine concern for both of us x Carl's still off work and unfortunately STILL "totally incontinent " and also still unable to achieve an erection as yet, We were referred to the clinic who gave him a pump~ but no joy as yet!!! He's still working on his pelvic floor exercises ,but has severe Lymphadema in his left leg still(due to the removal of all the nodes in both Groins(as a safe guard) The cancer was removed totally by robotic key hole surgery at the Hallamshire in Sheffield(so anyone with advice please feel free to PM us love Jules & Carl xxx " XXX | |||
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"latest update for MrC XXX Well the last almost 7months have flown by since MrC's Prostate cancer operation TYVVM to everyone for ALL the wonderful genuine messages and genuine concern for both of us x Carl's still off work and unfortunately STILL "totally incontinent " and also still unable to achieve an erection as yet, We were referred to the clinic who gave him a pump~ but no joy as yet!!! He's still working on his pelvic floor exercises ,but has severe Lymphadema in his left leg still(due to the removal of all the nodes in both Groins(as a safe guard) The cancer was removed totally by robotic key hole surgery at the Hallamshire in Sheffield(so anyone with advice please feel free to PM us love Jules & Carl xxx " Glad the surgery seems to have gone well, despite the unfortunate side effects. Fingers crossed things improve for you both x | |||
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" I've waited 8 months with zero sex!!!!! " I am sure with what your husband has gone through that is insignificant | |||
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" I've waited 8 months with zero sex!!!!! I am sure with what your husband has gone through that is insignificant" I believe she was making the point to the poster above that said Mr C’s issues were now irrelevant because she was looking for a younger guy. Sad that she feels the need to defend herself from really heartless & cruel comments like that in the first place, or that unpleasant & unnecessary comments like that are even allowed to remain when they have clearly caused so much disgust & pain | |||
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"Best wishes to you both. I’ve just been diagnosed with an enlarged prostate. 40% of men over 40 have this. Also have a slightly raised PSA level. GP is 80% sure I don’t have cancer but has referred me to a specialist to make sure. I was pretty relaxed about the whole thing until I met a guy a few weeks back with prostate cancer, age 72 and on medication, he looked and said he felt awful. Now reading your post - suddenly I’m getting worried especially as I’m just about to move in with my girlfriend- a very naughty nurse by the way. Here’s hoping and as I said, best wishes" It affects everyone differently, and the positive for you is that you are already due to see a specialist - it’s is one of the most treatable cancers if caught early, which is why I’ve never understood the lack of a screening programme. It sounds like you’re doing all the right things & I'm sure you will be fine!! Especially with a nurse right there to look after you xx | |||
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" I've waited 8 months with zero sex!!!!! I am sure with what your husband has gone through that is insignificant I believe she was making the point to the poster above that said Mr C’s issues were now irrelevant because she was looking for a younger guy. Sad that she feels the need to defend herself from really heartless & cruel comments like that in the first place, or that unpleasant & unnecessary comments like that are even allowed to remain when they have clearly caused so much disgust & pain ." I know why it was made, I chose to answer it. It isn't against rules to have an opinion even if people don't like it. If mods took down every post that someone didn't like there would be hardly any posts at all.She didn't have to defend herself The only reason why it was removed was because it mentioned it was on a status. | |||
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"couple of things. as been thru the same. is he doing his keegle exercises every few hours? message me if you don't know,whatthey are. they help with the incontinence. has he seen the lymphodema specialist and had stockings fitted? at the incontinence clinic, persevere with viagra. I went through the whole range of aids that were available. only months,later by a different nurses specialist was I told that I should have stuckwith viagara longer instead of trying pellets and injections etc etc." yes!! yes!! and yes!! to stockings ,lymphatic massage and specialist nurse tried Viagra,pump and pellets ,now awaiting the injection day appointment he does his pelvic floor and has a keegle x | |||
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"Well it's NOW A YEAR!! Since Carl had his operation (24/11/17) & OMG!! what a yr it's been!!! Unfortunately~ I have to say that Carl's STILL "TOTALLY erectile & still incontinent & has severe Lymphadema in his left leg as a result of the removal of the groin nodes(as a precaution) He also (unluckily) has an inqenial Hernia(from lifting a very heavy heavy washer drier with s friend on a removal day) & is awaiting a date for his op. We still keep smiling and try our best not to allow this to get us both down!! I'm (obviously) now in need of sex!!! and have now started to meet other BBC's again (with the 100% blessing of my gawjus beautiful Fiance Carl xx bless him x love Jules xx " Aah, bless you both Jules, it's a hard road, but Carl is still here. Wishing you lots of luck for the future! | |||
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"I am going to post something very important. Lads please get your prostate checked I have had to have a check a couple of weeks ago, not the nicest thing in the world but very important that you do. For those that haven’t had it it requires you to have a finger in your bum. They do use lube and you do feel a bit eww for a few hours after. It’s actually not as bad as people make out, and rather have that than the blood tests that I have had " Best wishes to the OP and thanks for sharing. I had the finger and the blood test the other day. Doctor was very apologetic when he stuck it up there. It was ok - got all nostalgic for a woman on Fab I knew in the wilds of Wales | |||
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"Hi everyone!!~ Happy new year to u ALL ~x It's a while since my last update!!! Carl's Prostate CANCER op was just over 14 months ago now & sadly he's still totally erectile & still suffering with severe Lymphadema in his left leg (although with the use of a 5/7 days a weeks use of the Inovo It's very gradually getting a little bit better a device he wears rather like a tens machine that "restores the floor!!" I've also had a sudden stroke on dec3rd and that resulted in my having to have an emergency Carotid Endarterectomy 2 weeks LATER ,SO recovering with a massive bloody scar :o( but ce la vie I'm sooo very lucky to be here thank goodness & to have recovered sooo very well xx THANK YOU ALL FOR THE CONTINUED FAB SUPPORT !!! MWAH!! MWAH!! XXXX Jules and Carl xxx " Sorry to hear about your stroke Jules but glad you've recovered well About Carl's left leg lymphedema though... is he still getting regular scans and biopsies? Because my father-in-law had one swollen leg for a year and a half after his TURP and they never thought to investigate that. Turned out his prostate cancer had spread and it was a metastasis in the lymph node in that's legs groin | |||
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"Hi everyone!!~ Happy new year to u ALL ~x It's a while since my last update!!! Carl's Prostate CANCER op was just over 14 months ago now & sadly he's still totally erectile & still suffering with severe Lymphadema in his left leg (although with the use of a 5/7 days a weeks use of the Inovo It's very gradually getting a little bit better a device he wears rather like a tens machine that "restores the floor!!" I've also had a sudden stroke on dec3rd and that resulted in my having to have an emergency Carotid Endarterectomy 2 weeks LATER ,SO recovering with a massive bloody scar :o( but ce la vie I'm sooo very lucky to be here thank goodness & to have recovered sooo very well xx THANK YOU ALL FOR THE CONTINUED FAB SUPPORT !!! MWAH!! MWAH!! XXXX Jules and Carl xxx " Just read this . Wishing you both a fast recovery x Big boobie hugs to you both. | |||
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"Hiya everyone !! "THANK YOU SOOO MUCH" For all your continuing support *after well~over 16 months now!! :o) Carl had all the groin Lymphs removed at the same time of his Prostate removal in November 2017!!! and is still suffering with a left leg total Lymphadema & has a massage with his specialist nurse ,but it's noway often enough!! NHS for ya!! " Whilst I appreciate you are going through a difficult time perhaps remember that it was the NHS that provided treatment to save his life in the first place. Are there any charatirs you can go yo for additional massages? | |||
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"also just a reminder to all you boys 40+ THE TEST FOR "P R O S T A T E CANCER" IS SIMPLY A TINY SINGLE "BLOOD TEST" DONE AT YOUR OWN GP SURGERY the golden age "appears to be 40!!" when every man should 100% GO AND GET THIS SIMPLE BLOOD TEST DONE !! no need for an anal feel 100% not needed ..please don't not go for this blood test ..as my Carl Had Prostate Cancer & was totally fit & very healthy with absolute ZERO side effects "what so ever!!" xx love & Kisses to you all ...Jules & Carl xxx " Can I also say, I have issues with my prostate not cancer but Prosititus. I had the anal feel not idea but it’s not as bad as people make out. | |||
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"Carl's STILL totally incontinent and erectile & has severe Lymphoedema in his left leg still !! Now he's had his hernia op, He can now start to use his penile pump in conjunction with the penile injections ( so FINGERS & TOES tightly X'ed this works ) WOULD WELCOME ANY ADVICE HERE WITH REGARDS THIS !! PM US TYVM X Jules & Carl xx " Best wishes and big hugs to both of you xx | |||
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"Carl's finally going into Hospital THIS FRIDAY (of all days!!!!) for his "cancerous" total~Prostate removal!! NB:The only symptom he had (seriously) was going to the Lou 3/4 times per night which I personally thought was a little too much. So I googled this & the "possibility" of 'Prostate Cancer' came up!! That was in June 2016. Bloods were slightly high & at this stage it was just "moderately "enlarged & was given medication to 'shrink it (the side effect was "Retograde ejaculation" & diminished Lobedo) ~bloody crap for both of us !!! His GP told him at his annual check in June 2017..."I'll see you again Carl in 12months"(over my dead body I told him) & demanded he see Carl every month!!!!! & BLOODY 'THANK GOD' I INSISTED HE SEE HIM EVERY MONTH ~ because by August's examination it had totally changed & felt different(HARDER) His bloods were higher & at his 2nd MRI scan,BODY BONE SCAN & Biopsies it showed a 8mm tumour!! & Carl' STILL' feels absolutely NORMAL!! His energy levels are normal,he works out for 2hrs 5 x a week & walks the dogs twice a day !! seriously normal! So ...take note Fab Guys /peeps~ "there doesn't have to be ANY symptoms AT ALL for ya to have Prostate Cancer :o( Carl's lucky he had a pushy Fiance LOL All will go well ...i'm sure xx Jules xxxx " wow well done you for pushing it ,hope they get it | |||
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