FabSwingers.com forum: Functional Neurological Disorders

By *oxy_minx OP Woman
over a year ago

Scotland - Aberdeen

I'm not expecting many replies to this thread for obvious reasons, but I would love to hear of either your experiences or even people that you know.

For over 10 years I have what I call a bodily tremor, most times it is just my hands that people notice, but it is actually my whole body. Of late I have tried to avoid high heels as this seems to draw more attraction to it. But funnily enough alcohol is the one thing that settles it.

So in the last year I have had an anonymous report made at work against me (the coward, but that is another thread

) Saying I must be an alcoholic because I shake, I have also had a sexual 'friend' who thought they could use my shakes as a way to hurt me, and boy did that hurt!

So since those incidents I have gone back to the doctors as 10 years ago when I first went, little was known about it and they didn't really know what to do. So I gave up if I am being honest, but since that report ect I have looked into it more and my current doctors have become more interested and I have been trialling meds that seem to be working, also my sister (older) has developed the same(ish) condition and is now under the consultation of a leading neurology specialist in Edinburgh as it appears this condition appears to be more prevalent, so I would be interested to know who else has this and how are they dealing with it, as I have a follow up appointment tomorrow and whether I should insist on being referred to the neurology dept as was sort of mentioned in my last appointment whilst being told to increase my meds in the mean time which do seem to have worked.

Long winded I know so sorry, but I would love to know your experiences

Reply privately

Reply in forum

Reply +quote

By *icketysplitsWoman
over a year ago

Way over Yonder, that's where I'm bound

I don't have one but I did employ someone with shaking and weakness. She had a regular physio appointment, which appeared to help her. She took up yoga to help with her balance too.

You've reminded me to contact her - it's been a while.

Reply privately

Reply in forum

Reply +quote

By *oxy_minx OP Woman
over a year ago

Scotland - Aberdeen

It's a strange one I know but apparently is becoming more common, but not going by this thread

Reply privately

Reply in forum

Reply +quote

By *icketysplitsWoman
over a year ago

Way over Yonder, that's where I'm bound

"It's a strange one I know but apparently is becoming more common, but not going by this thread

There's a lot of crying going on tonight, and not just from the Arsenal fans. Bump it on a week day and you might get more responses.

Reply privately

Reply in forum

Reply +quote

By *ngandnickCouple
over a year ago

Haverhill

I would definately ask for a referral to see a neurologist as there are a number of causes for the symptoms you describe--- to speculate would potentially only cause you to worry. Good luck x

Reply privately

Reply in forum

Reply +quote

By *icecouple561Couple
Forum Mod
over a year ago

East Sussex

I know someone with this and she's been treated with botox

Sorry that people have used it against you.

Reply privately

Reply in forum

Reply +quote

By *radleywigginsMan
over a year ago

northwest

Implantable brain electrodes will become the mainstay of treatment for this and the results can be life changing.

In the meantime think of it as a particular skill that many would find good use for...

Reply privately

Reply in forum

Reply +quote

By (user no longer on site)
over a year ago

I would ask to be referred to another neurologist for a new or second option, and just keep on trying to fine a diagnosis ...Our son has a neurological condition which is rare they say, he now requires 24 hr care, not like your symptoms, but we think they only see him on most occasions to build up a reference library of symptoms and potential medicines to limit those symptoms ...in other words a guinea pig... try this try that...but we all start somewhere, we hope you find what your looking for and a way of limiting your symptoms xxxxx

Reply privately

Reply in forum

Reply +quote

By *oxy_minx OP Woman
over a year ago

Scotland - Aberdeen

"I would definately ask for a referral to see a neurologist as there are a number of causes for the symptoms you describe--- to speculate would potentially only cause you to worry. Good luck x"

I know but I have never pressed the issue to be honest as the body shakes has been the only issue and I know it sounds stupid now but I didn't want to waste NHS money

So I will see how tomorrow goes, but I'm not expecting much tbh x

Reply privately

Reply in forum

Reply +quote

By *oxy_minx OP Woman
over a year ago

Scotland - Aberdeen

"I would ask to be referred to another neurologist for a new or second option, and just keep on trying to fine a diagnosis ...Our son has a neurological condition which is rare they say, he now requires 24 hr care, not like your symptoms, but we think they only see him on most occasions to build up a reference library of symptoms and potential medicines to limit those symptoms ...in other words a guinea pig... try this try that...but we all start somewhere, we hope you find what your looking for and a way of limiting your symptoms xxxxx"

I know that feeling as my docs only took an interest when I said my sister had recently been diagnosed with ME but gabapentin is working ish for now x

Reply privately

Reply in forum

Reply +quote

By (user no longer on site)
over a year ago

Is it essential tremor?

Reply privately

Reply in forum

Reply +quote

By *oxy_minx OP Woman
over a year ago

Scotland - Aberdeen

"Is it essential tremor?"

In essence yes it is

Reply privately

Reply in forum

Reply +quote

By (user no longer on site)
over a year ago

"Is it essential tremor?

In essence yes it is

My mum has it. I have it in my hands a bit. My mum can't hold cups very well. Her hands shake a lot.

Reply privately

Reply in forum

Reply +quote

By (user no longer on site)
over a year ago

I have it in my hands and head, it's not too bad at the moment.

My mom has it very severely, she can't hold things and can't eat certain foods as she can't get a fork or spoon into her mouth.

My eldest son also has it. I know that medically prescribed marijuana does help alleviate the symptoms x

Reply privately

Reply in forum

Reply +quote

By *oxy_minx OP Woman
over a year ago

Scotland - Aberdeen

"Is it essential tremor?

In essence yes it is

My mum has it. I have it in my hands a bit. My mum can't hold cups very well. Her hands shake a lot. "

Like I said, I've had it for over 10 years, and I have only just followed through with it and gabapentin has really helped me and has improved my hand writing a lot! please don't ignore it like I did! If a top neurologist is showing a interest, grab it with both hands!

Reply privately

Reply in forum

Reply +quote

By *ensualguy101Man
over a year ago

Orpington

I hope you find a solution that helps alleviate it. It looks like you've received some excellent advice on here, which doesn't surprise me at all. Appalled at those around you at work who have behaved vindictively. Wishing you all the best...

Reply privately

Reply in forum

Reply +quote

By *rishM29Man
over a year ago

Somewhere

Can you DM me Foxey re FND please

Reply privately

Reply in forum

Reply +quote

Post new Message to Thread