FabSwingers.com forum: I'm not sure why...

By *rcticFoxxx OP Woman
over a year ago

Hereabouts

I'm not actually sure why I'm posting this, other than to get it off my chest...

Dear Doctor/Consultant/Healthcare Professional,

Thank you for taking the time to read this letter. This is written over a number of days in various states of pain and mood, so please bare with me.

In October 2014, I injured my knee. It bent the wrong way as I stopped suddenly to avoid an opening door, and I heard a pop from my knee. I went to the walk in clinic (oh, the irony) the following day, and was given crutches and told to see my GP for a referral for physiotherapy.

Physiotherapy started and there was a small improvement to begin with but after a couple of weeks the pain got worse and the physiotherapist suggested I go for an MRI scan, because I was showing symptoms of a torn meniscus.

Fast forward to January 2015, I had the MRI and went to see an Orthopaedic specialist at a hospital in Surrey. He told me that my meniscus was torn, but that my pain was too great for it to just be that. So he diagnosed me with Complex Regional Pain Syndrome. His advice to me was 'lose weight'. At 24 stone, my mobility was limited, exercise was difficult and I didn't have any motivation. He said any surgery to my knee would make the CRPS pain worse. He also gave me an injection into the side of my knee. The injection improved the pain almost to the point where I could hobble without crutches. However the relief lasted less than 48 hours. I went back to my GP, who prescribed me naproxen.

My home life at the time was far from ideal, and in July 2015 I moved from Surrey to Yorkshire. As soon as I moved to Yorkshire, I went to my GP and asked for a Pain Management referral. I was seen by Doctor S*** at *** Hospital in Yorkshire. He gave me a few pain medications to try, I can't remember now what they were, and some lidocaine patches. In December 2015, I had a Lumbar Sympathetic Block, minus steroids as I had a mild infection. The pain relief lasted less than 72 hours. From the day I got the appointment letter, I was a wreck. I hate anything to do with surgeries and needles, and I was picturing the procedure and worrying so much that it brought on a couple of panic attacks. A couple of days of reduced pain in my knee was nowhere near worth the pain of the worry.

In January 2016, I saw another Orthopaedic specialist at ***. He explained to me that if my meniscus were skin, the damage would be more like a bruise than a cut. He told me there was nothing surgically that he could do for me, as there wasn't actually anything to repair. The first specialist said otherwise. I now don't actually know what's wrong with my knee now as I've had two scans and two different opinions. Is it even CRPS? I don't know. I'm confused.

Dr S*** and I discussed the option of Spinal Cord Stimulation. I had an appointment with the specialist nurse and I decided to go ahead with the procedure, and I was put on the waiting list.

I made a mistake in my actions, I decided that my mental health was more important to me than my physical health and I asked to put the procedure on hold until September, as I had been offered work over the summer. I was depressed from being stuck at home all the time, and I could feel myself getting more and more miserable, and less motivated, so I took the job.

In March 2016, my Father-in-Law took ill and my partner and I moved from Yorkshire to Lancashire to care for him. I was under the impression that I could be transferred straight from Pain Management in Yorkshire, to Pain Management in Lancashire.

When September came around and I was building myself up for the procedure, I called the pain team in Yorkshire (as I was asked to when I was ready to go back on the waiting list), who then told me that I have to be referred by my GP, and that they can't do it from their end.

So third GP. I was referred to *** in October 2016 to whom I thought was a Pain Management specialist. During this appointment, he told me I should never have been referred to him in the first place, and that even if I was referred to the correct hospital, I'd not be eligible for Spinal Cord Stimulation because I have depression. Please excuse my tone, but of course I'm depressed, I've been in constant pain for 2 years, and very little makes the pain go away! I went back to the same GP and told her what happened, she then referred me to Preston Pain Management. I am still waiting for an appointment.

On Monday 31 October 2016, I had to leave work because of a flare up in my pain. However I've never ever had a flare up this bad before. Usually the pain radiates out to either my hip or my ankle, but this time it's both. My toes hurt, that's never happened before. My knee feels like it is covered with ice, it's cold to the core. Three pairs of trousers isn't enough to warm it up. And then there's the issue of the burning skin. Lose fabric rubbing on my skin feels like sandpaper. Usually this only happens around my knee, and I wear a brace to limit the amount of movement over the skin. The pressure is sore but ignorable. Since Monday, the skin on my whole thigh is just as sensitive as my knee usually is. This has never happened before. I'm scared it's getting worse. I can't put any weight on my leg at all at the moment.

I got an emergency appointment with a different GP, who referred me for a third opinion from an Orthopaedic specialist. He also prescribed me codeine.

Tramacet. The first time I met my new partner's family I was in pain so I took tramacet. I spent the whole weekend in an almost coma like state. I couldn't move, I couldn't speak. Every time I tried to speak I tripped over my words and slurred. Then I started itching all over. I felt sick, my stomach was in knots. I felt terrible for sitting there like a zombie. It was humiliating.

Amitriptyline. Even on a low dose I couldn't function. I couldn't concentrate on anything and my mouth felt like the desert. If it's pain or just floating around in a daze, I'd rather be in pain, at least then I know I'm alive.

Codeine. I'm quite a sicky person anyway. I used to vomit bile quite often in the mornings, not so much now though. Codeine is horrible. One minute I'm fine and the pain is easing a little, then out of nowhere I have the overwhelming urge to vomit. My stomach is uncomfortable for hours after taking codeine. It makes me feel fuzzy and my concentration dips. The pain relief is moderate but the added stomach pain and zombie feeling detracts from that.

Naproxen. Naproxen almost takes the edge off. But it also gives me a stomach ache. I'm also taking sertraline so I've been advised not to take naproxen.

This pain is ruining my life. It's pain or horrible side effects, those are my options. I'm terrified to make friends. I avoid going to parties. And for good reason. Only last week I told myself I was being daft about not wanting to go to parties in case I got hurt. So I went to a party, and within 20 minutes of being there, a friend laughed at a joke and his hand landed on my knee. Cue tears, embarrassment, bite marks on my hand (distraction pain), and the end of my night.

I've just started a new job. I'm scared I'll lose it because of my pain. I can't go to work whilst crying. And I can't serve customers when I'm off my rocker on pain medication. If I lose my job it will mess up my Universal Credit claim and I'll yet again be stressed and skint.

For the might of the NHS, it's a young lad in a local seaside town that's helped me the most. I'm self medicating with m*******a. I don't want to break the law. I feel awful for breaking the law. But it's breaking the law that helps me sleep and eases my pain enough to be able to get out and do things, to live my life rather than just exist.

That first orthopaedic specialist gave me an important piece of advice. Lose weight. I did. I lost over 10 stone to help my knee. I've put all of myself into improving my health in the hopes that it would improve my pain. I've done my part. Please help me.

I've moved around from pillar to post for the past two years. I've tried everything my doctors have offered me. I've had enough of this. The pain is destroying me. I don't feel like a 22 year old woman, I feel like a slave to my own body. You may see crutches, but I see cell bars.

I need somebody to take me seriously. I'm really struggling to stay positive, I'm trying my hardest but the vision of a future free of pain is fading.

Please, please help me. I'm desperate.

Yours sincerely,

*** ***

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By (user no longer on site)
over a year ago

2 years of that. No wonder you needed to get it off your chest.

Hope they get you sorted.

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By *rcticFoxxx OP Woman
over a year ago

Hereabouts

"2 years of that. No wonder you needed to get it off your chest.

Hope they get you sorted. "

Thank you

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By *risky_MareWoman
over a year ago

...Up on the Downs

Make sure one or several of the medics involved read this - sometimes they need help to see an overview. Good Luck with it all, sometimes you need to be like a dog with a bone to get what you need!

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By *rcticFoxxx OP Woman
over a year ago

Hereabouts

"Make sure one or several of the medics involved read this - sometimes they need help to see an overview. Good Luck with it all, sometimes you need to be like a dog with a bone to get what you need!

That's the plan. I wrote it to give to my GP and any specialists I see in the coming months.

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By (user no longer on site)
over a year ago

you not thought about claiming PIP? you put down your worst days and they base your claim off that, eve if every day isn't like your worst day. it'd pay for taxis to work and the dr and things like this.

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By *orny1970Man
over a year ago

Northwest Greater Manchester and lancashire

Totally syphathy from me... I know what your going through.. Long story just like you on both knees may worse but out the other side now thank god. Not posting them on here but if you want to chat DM me even for some advise on the do's and donts. If not I truly hope everything works out for you X

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By *rcticFoxxx OP Woman
over a year ago

Hereabouts

"you not thought about claiming PIP? you put down your worst days and they base your claim off that, eve if every day isn't like your worst day. it'd pay for taxis to work and the dr and things like this."

I made the call this morning. It took this flare up to make me realise that I can't cope. My hands and all down the sides of my body hurt from having to completely take the weight off my leg. Usually I can put a bit of weight down, and on good days it almost looks like I'm walking properly.

I had to put my tea in a plastic bottle with a lid today so I could carry it through the house. I can't carry things from the fridge to the counter top because my hands are full with my crutches.

It's not usually this bad but if I were on my own I'd be fucked :-/

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By *rcticFoxxx OP Woman
over a year ago

Hereabouts

"Totally syphathy from me... I know what your going through.. Long story just like you on both knees may worse but out the other side now thank god. Not posting them on here but if you want to chat DM me even for some advise on the do's and donts. If not I truly hope everything works out for you X

Thank you

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By (user no longer on site)
over a year ago

"you not thought about claiming PIP? you put down your worst days and they base your claim off that, even if every day isn't like your worst day. it'd pay for taxis to work and the dr and things like this.

I had to put my tea in a plastic bottle with a lid today so I could carry it through the house. I can't carry things from the fridge to the counter top because my hands are full with my crutches.

It's not usually this bad but if I were on my own I'd be fucked :-/ "

good. if you get that at least you're not worrying about money. also you'll be able to buy proper disability aides that you need, and possibly even your own private health care if you want to (you shouldn't have to but the option could be there).

might be entitled to have disability improvements to your home also, so you can get around more easily and be independent.

yeah you're lucky you don't have to struggle by yourself.

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By *isandreTV/TS
over a year ago

Durham

I've had a lot of dealings with the NHS over the last 7 or 8 years with various family health issues.

It wasn't perfect before but the decline in this period is shocking and it is all down to the cuts. If you've used the health service a lot in that period, or if you are in it, you know this, no matter what the government claim.

The one area that, though straining at the seams under the weight, where the service is still pretty excellent, is A&E.

I think OP, you are at such a place that your condition now is an emergency. Go to A&E. Tell them about the pain. Tell them that the last you heard was that there was no problem even though you had previously been told there were several things. With luck the A&E docs will order a number of tests that may well pin the problem down.

GP's are not only very busy they aren't always current. A&E docs impress me far more when I've been there (which is many times for many different reasons). What is more, they will treat you as a medical problem and urgent. When you are in the normal system you become an admin problem.

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By *rcticFoxxx OP Woman
over a year ago

Hereabouts

I had to put my tea in a plastic bottle with a lid today so I could carry it through the house. I can't carry things from the fridge to the counter top because my hands are full with my crutches.

It's not usually this bad but if I were on my own I'd be fucked :-/

might be entitled to have disability improvements to your home also, so you can get around more easily and be independent.

yeah you're lucky you don't have to struggle by yourself.

First thing I'm buying when I get paid from work is some of those 'smart crutches'... My wrists need a break!

I'm a bit worried though that they'll tell me I'm not eligible. I was on ESA for a while and never got past the assessment phase because they said I didn't score enough points. I kept getting paid the assessment rate because they lost my paperwork or something but yeah, they told me I wasn't eligible.

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By *isandreTV/TS
over a year ago

Durham

But obviously only go down there on a very bad day.

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By (user no longer on site)
over a year ago

Just marking this to follow X

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By *rcticFoxxx OP Woman
over a year ago

Hereabouts

"I've had a lot of dealings with the NHS over the last 7 or 8 years with various family health issues.

The one area that, though straining at the seams under the weight, where the service is still pretty excellent, is A&E.

I can't bring myself to take up a space in A&E :-/ it's not an emergency because it's a chronic problem :-/

If I get another flare up like this though or if it gets worse I'll consider it...

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By (user no longer on site)
over a year ago

I had to put my tea in a plastic bottle with a lid today so I could carry it through the house. I can't carry things from the fridge to the counter top because my hands are full with my crutches.

It's not usually this bad but if I were on my own I'd be fucked :-/

might be entitled to have disability improvements to your home also, so you can get around more easily and be independent.

yeah you're lucky you don't have to struggle by yourself.

First thing I'm buying when I get paid from work is some of those 'smart crutches'... My wrists need a break!

if they're sending out forms for PIP then don't worry too much. so long as you called PIP and asked them for the forms then you're doing this right.

you put down your worst days only.

send them details of everyone who has been involved with you, even if you've been diagnosed with nothing at all they need is your symptoms and how they affect you, and sending details of drs involved helps them get evidence that you have had symptoms.

if they tell you you aren't eligible you appeal.

my youngest sister is double incontinent (after an operation on her back), has neurological problems, can't walk unaided and she had to appeal but she won that. got a load of backpay too for waiting so long for her claim to be sorted.

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By (user no longer on site)
over a year ago

i'm tired and off in a minute but you could always call 111 for advice on whether you need to go to a&e or not?

also, you're important enough to be looked after. don't worry about 'taking up space'.

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By *rcticFoxxx OP Woman
over a year ago

Hereabouts

I had to put my tea in a plastic bottle with a lid today so I could carry it through the house. I can't carry things from the fridge to the counter top because my hands are full with my crutches.

It's not usually this bad but if I were on my own I'd be fucked :-/

might be entitled to have disability improvements to your home also, so you can get around more easily and be independent.

yeah you're lucky you don't have to struggle by yourself.

First thing I'm buying when I get paid from work is some of those 'smart crutches'... My wrists need a break!

if they're sending out forms for PIP then don't worry too much. so long as you called PIP and asked them for the forms then you're doing this right.

you put down your worst days only.

if they tell you you aren't eligible you appeal.

I don't know the names of the doctor in Surrey or the orthopaedic doctor in Yorkshire :-/

Someone I used to know has fibromyalgia and he was in a wheelchair and couldn't get in it out of the bath alone etc. he was told he wasn't eligible but appealed and won.

I'm hoping I get it, its not much but it'll pay for a bus pass to work and stuff..

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By *rcticFoxxx OP Woman
over a year ago

Hereabouts

"i'm tired and off in a minute but you could always call 111 for advice on whether you need to go to a&e or not?

also, you're important enough to be looked after. don't worry about 'taking up space'.

Good idea. Thank you. You're a super star x

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By *ackDMissMorganCouple
over a year ago

Halifax

Big hugs darl. Wish there was a way to get you seen privately by a specialist.

I cant claim anything for my MS as it isnt severe enough. Yet. My best friends wife has it a lost worse than I do. She has to use a wheelchair etc most days. She got turned down too and was told she was fit for work. Anyway she appealed and thankfully got it.

I know its hard and its obviously getting you down but just keep pushing and pushing until somebody does something to help you. Big hugs. Jack.

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By (user no longer on site)
over a year ago

"i'm tired and off in a minute but you could always call 111 for advice on whether you need to go to a&e or not?

also, you're important enough to be looked after. don't worry about 'taking up space'.

Good idea. Thank you. You're a super star x"

yeah he will have got fobbed off too, not sure what the first assessment is but i presume they just fob off people who don't have any 'back up' from social services or any other institutions.

the other poster brought up the idea of a&e lol, but i was like you and didn't want to be a 'problem' or inconvenience, all i learned is i struggled for nothing. no need to struggle when the help is out there.

hope everything goes well for you. will be checking back tomorrow to see if anyone had any other advice too (always good to find advice and remember it).

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By *ce WingerMan
over a year ago

P.O. Box DE1 0NQ

Crikey missus, I knew you had problems with your mobility, as do I sometimes, but I didn't realise it was that bad

Lots of hugs and kisses xx

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By (user no longer on site)
over a year ago

"Crikey missus, I knew you had problems with your mobility, as do I sometimes, but I didn't realise it was that bad

Lots of hugs and kisses xx "

on the plus side...means she can't run away

silver linings and all that

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By *rcticFoxxx OP Woman
over a year ago

Hereabouts

"Big hugs darl. Wish there was a way to get you seen privately by a specialist.

I know its hard and its obviously getting you down but just keep pushing and pushing until somebody does something to help you. Big hugs. Jack."

My newest GP has given me a tiny ray of hope. He said I should get a 3rd opinion on my knee.. he wants to fix the cause, not just the pain.

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By *rcticFoxxx OP Woman
over a year ago

Hereabouts

"Crikey missus, I knew you had problems with your mobility, as do I sometimes, but I didn't realise it was that bad

Lots of hugs and kisses xx

on the plus side...means she can't run away

silver linings and all that "

Dick...

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By (user no longer on site)
over a year ago

"Big hugs darl. Wish there was a way to get you seen privately by a specialist.

I know its hard and its obviously getting you down but just keep pushing and pushing until somebody does something to help you. Big hugs. Jack.

My newest GP has given me a tiny ray of hope. He said I should get a 3rd opinion on my knee.. he wants to fix the cause, not just the pain. "

Hi! I just sent you a pm x

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By (user no longer on site)
over a year ago

"Crikey missus, I knew you had problems with your mobility, as do I sometimes, but I didn't realise it was that bad

Lots of hugs and kisses xx

on the plus side...means she can't run away

silver linings and all that

Dick...

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By *rcticFoxxx OP Woman
over a year ago

Hereabouts

"Crikey missus, I knew you had problems with your mobility, as do I sometimes, but I didn't realise it was that bad

Lots of hugs and kisses xx "

Thanks sweet xxx

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By *ackDMissMorganCouple
over a year ago

Halifax

"Big hugs darl. Wish there was a way to get you seen privately by a specialist.

I know its hard and its obviously getting you down but just keep pushing and pushing until somebody does something to help you. Big hugs. Jack.

My newest GP has given me a tiny ray of hope. He said I should get a 3rd opinion on my knee.. he wants to fix the cause, not just the pain. "

Well that makes sense. Fix the cause it should fix the reaction. Fingers crossed.

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By *ce WingerMan
over a year ago

P.O. Box DE1 0NQ

"Crikey missus, I knew you had problems with your mobility, as do I sometimes, but I didn't realise it was that bad

Lots of hugs and kisses xx

on the plus side...means she can't run away

silver linings and all that "

You've got some shed building to do methinks

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By (user no longer on site)
over a year ago

Omg that sounds awful! You're stronger than me! I don't think I could deal with that let alone managing mental health issues as well!

I hope you can get to the bottom of this, unfortunately the likelihood of that happening is bleak!

What an awful 2 years you've had! I'm so sorry!

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By (user no longer on site)
over a year ago

"Crikey missus, I knew you had problems with your mobility, as do I sometimes, but I didn't realise it was that bad

Lots of hugs and kisses xx

on the plus side...means she can't run away

silver linings and all that

You've got some shed building to do methinks

doghouse maybe

I have a shed man..It's lovely. There's power and interwebs and music and a sofa and a freezer and fridge and brew stuff all set off beautifully by a bench grinder and pillar drill and a smattering of other power tools, all brought together with a light weave of hand tools and fastenings here and there with some ferret nets to add some texture to the place. All this around a central piece composed of a matching pair of al-Ko 5375 vs aluminium lawnmowers in Ferrari red.

I ain't building another shed brother

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By (user no longer on site)
over a year ago

"Omg that sounds awful! You're stronger than me! I don't think I could deal with that let alone managing mental health issues as well!

I hope you can get to the bottom of this, unfortunately the likelihood of that happening is bleak!

What an awful 2 years you've had! I'm so sorry! "

cheery.

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By *ce WingerMan
over a year ago

P.O. Box DE1 0NQ

"Crikey missus, I knew you had problems with your mobility, as do I sometimes, but I didn't realise it was that bad

Lots of hugs and kisses xx

on the plus side...means she can't run away

silver linings and all that

You've got some shed building to do methinks

doghouse maybe

I ain't building another shed brother

I think ya need to cos yours will be inundated with scatter cushions and pink things soon apparently, and what sort of a man shed is that ffs

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By (user no longer on site)
over a year ago

ot equipment is mostly free of charge, give your adult social care a call and ask for an assessment! can be crutches or even adaptations in your house, depending if you live in private rented or council housing etc...

fingers crossed for you! also make sure you discuss w gp that you suffer from depression as some pain meds can have a negative impact on your mood which wouldn't help...

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By (user no longer on site)
over a year ago

"Crikey missus, I knew you had problems with your mobility, as do I sometimes, but I didn't realise it was that bad

Lots of hugs and kisses xx

on the plus side...means she can't run away

silver linings and all that

You've got some shed building to do methinks

doghouse maybe

I ain't building another shed brother

I think ya need to cos yours will be inundated with scatter cushions and pink things soon apparently, and what sort of a man shed is that ffs

makes it a fuckin' comfy man shed

I'm bi..it's a perfect expression of that..A beautiful physical manifestation of my huge masculinity merged with my love of taking the odd bit of cock no?

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By *ce WingerMan
over a year ago

P.O. Box DE1 0NQ

"Crikey missus, I knew you had problems with your mobility, as do I sometimes, but I didn't realise it was that bad

Lots of hugs and kisses xx

on the plus side...means she can't run away

silver linings and all that

You've got some shed building to do methinks

doghouse maybe

I ain't building another shed brother

I think ya need to cos yours will be inundated with scatter cushions and pink things soon apparently, and what sort of a man shed is that ffs

makes it a fuckin' comfy man shed

I'm bi..it's a perfect expression of that..A beautiful physical manifestation of my huge masculinity merged with my love of taking the odd bit of cock no?

That's a fair comment, but she says I can't bring ma leather recliner when I move in as well

A bean bag in the corner for me then

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By *rcticFoxxx OP Woman
over a year ago

Hereabouts

"Big hugs darl. Wish there was a way to get you seen privately by a specialist.

I know its hard and its obviously getting you down but just keep pushing and pushing until somebody does something to help you. Big hugs. Jack.

My newest GP has given me a tiny ray of hope. He said I should get a 3rd opinion on my knee.. he wants to fix the cause, not just the pain.

Well that makes sense. Fix the cause it should fix the reaction. Fingers crossed."

Since that doc said he couldn't do anything surgically, I sort of gave up on fixing the cause. But its the pain that's my main problem and that's just pushing everything else to the background..

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By *rcticFoxxx OP Woman
over a year ago

Hereabouts

"ot equipment is mostly free of charge, give your adult social care a call and ask for an assessment! can be crutches or even adaptations in your house, depending if you live in private rented or council housing etc...

fingers crossed for you! also make sure you discuss w gp that you suffer from depression as some pain meds can have a negative impact on your mood which wouldn't help..."

A fair few adaptations going in for FIL anyway. I love the banisters on the stairs, I can swing down the stairs really quickly

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By (user no longer on site)
over a year ago

"Crikey missus, I knew you had problems with your mobility, as do I sometimes, but I didn't realise it was that bad

Lots of hugs and kisses xx

on the plus side...means she can't run away

silver linings and all that

You've got some shed building to do methinks

doghouse maybe

I ain't building another shed brother

I think ya need to cos yours will be inundated with scatter cushions and pink things soon apparently, and what sort of a man shed is that ffs

makes it a fuckin' comfy man shed

I'm bi..it's a perfect expression of that..A beautiful physical manifestation of my huge masculinity merged with my love of taking the odd bit of cock no?

That's a fair comment, but she says I can't bring ma leather recliner when I move in as well

A bean bag in the corner for me then

recliner you say?....

i shall have words......bear with me

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By *rcticFoxxx OP Woman
over a year ago

Hereabouts

"Crikey missus, I knew you had problems with your mobility, as do I sometimes, but I didn't realise it was that bad

Lots of hugs and kisses xx

on the plus side...means she can't run away

silver linings and all that

You've got some shed building to do methinks

doghouse maybe

I ain't building another shed brother

I think ya need to cos yours will be inundated with scatter cushions and pink things soon apparently, and what sort of a man shed is that ffs

makes it a fuckin' comfy man shed

I'm bi..it's a perfect expression of that..A beautiful physical manifestation of my huge masculinity merged with my love of taking the odd bit of cock no?

That's a fair comment, but she says I can't bring ma leather recliner when I move in as well

A bean bag in the corner for me then

No space for a beanbag either... Otherwise I'd let you bring the recliner...

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By *rcticFoxxx OP Woman
over a year ago

Hereabouts

[Removed by poster at 03/11/16 03:02:37]

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By (user no longer on site)
over a year ago

"Crikey missus, I knew you had problems with your mobility, as do I sometimes, but I didn't realise it was that bad

Lots of hugs and kisses xx

on the plus side...means she can't run away

silver linings and all that

You've got some shed building to do methinks

doghouse maybe

I ain't building another shed brother

I think ya need to cos yours will be inundated with scatter cushions and pink things soon apparently, and what sort of a man shed is that ffs

makes it a fuckin' comfy man shed

I'm bi..it's a perfect expression of that..A beautiful physical manifestation of my huge masculinity merged with my love of taking the odd bit of cock no?

That's a fair comment, but she says I can't bring ma leather recliner when I move in as well

A bean bag in the corner for me then

No space for a beanbag either... Otherwise I'd let you bring the recliner... "

what?

no no no...

I've decided to get the spade and dig a cellar and dry line it for ace. maybe we can stick a big comfy bed down there...

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By *rcticFoxxx OP Woman
over a year ago

Hereabouts

"Crikey missus, I knew you had problems with your mobility, as do I sometimes, but I didn't realise it was that bad

Lots of hugs and kisses xx

on the plus side...means she can't run away

silver linings and all that

You've got some shed building to do methinks

doghouse maybe

I ain't building another shed brother

I think ya need to cos yours will be inundated with scatter cushions and pink things soon apparently, and what sort of a man shed is that ffs

makes it a fuckin' comfy man shed

I'm bi..it's a perfect expression of that..A beautiful physical manifestation of my huge masculinity merged with my love of taking the odd bit of cock no?

That's a fair comment, but she says I can't bring ma leather recliner when I move in as well

A bean bag in the corner for me then

No space for a beanbag either... Otherwise I'd let you bring the recliner...

what?

no no no...

I've decided to get the spade and dig a cellar and dry line it for ace. maybe we can stick a big comfy bed down there...

Ok fine we christen the bed...

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By *ce WingerMan
over a year ago

P.O. Box DE1 0NQ

"No space for a beanbag either... Otherwise I'd let you bring the recliner...

what?

no no no...

I've decided to get the spade and dig a cellar and dry line it for ace. maybe we can stick a big comfy bed down there...

Oooh, a 4 poster perhaps

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By (user no longer on site)
over a year ago

"No space for a beanbag either... Otherwise I'd let you bring the recliner...

what?

no no no...

I've decided to get the spade and dig a cellar and dry line it for ace. maybe we can stick a big comfy bed down there...

Oooh, a 4 poster perhaps

I like your thinking.....a lot.

Make the posts structural to help support the shed floor. manly and beautiful at the same time

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By (user no longer on site)
over a year ago

"Crikey missus, I knew you had problems with your mobility, as do I sometimes, but I didn't realise it was that bad

Lots of hugs and kisses xx

on the plus side...means she can't run away

silver linings and all that

You've got some shed building to do methinks

doghouse maybe

I ain't building another shed brother

I think ya need to cos yours will be inundated with scatter cushions and pink things soon apparently, and what sort of a man shed is that ffs

makes it a fuckin' comfy man shed

I'm bi..it's a perfect expression of that..A beautiful physical manifestation of my huge masculinity merged with my love of taking the odd bit of cock no?

That's a fair comment, but she says I can't bring ma leather recliner when I move in as well

A bean bag in the corner for me then

No space for a beanbag either... Otherwise I'd let you bring the recliner...

what?

no no no...

I've decided to get the spade and dig a cellar and dry line it for ace. maybe we can stick a big comfy bed down there...

Ok fine we christen the bed... "

deal!

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By *ce WingerMan
over a year ago

P.O. Box DE1 0NQ

"No space for a beanbag either... Otherwise I'd let you bring the recliner...

what?

no no no...

I've decided to get the spade and dig a cellar and dry line it for ace. maybe we can stick a big comfy bed down there...

Oooh, a 4 poster perhaps

I like your thinking.....a lot.

Make the posts structural to help support the shed floor. manly and beautiful at the same time

See, I'm not just a pretty face

No hang on, I'm not even a pretty face

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By (user no longer on site)
over a year ago

Nothing to add really apart from wanting to give you a massive hug.

My mum has serious problems with her knees and is waiting to see a Consultant to discuss surgery. She has waited ages. Her mobilty is now very poor, so much so that I (and my kids) moved in with her to help out as she can't carry a plate to her room which is fet away.

I've seen the pain she is in, so can only imagine the kind of pain you must be in.

I hope you get sorted lovely xx

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By (user no longer on site)
over a year ago

Firstly I just wanna say (Hugs). I understand some of this, I am waiting for surgery on my back but it affects my nerves so I have pain in my knees,legs and feet and its a struggle to get out of bed every day. Had over a year off sick from work, endless appointments with doctors and neurosurgeons and constant phonecalls chasing up my MRI scans. I've had many of the medications you mentioned, and tramadol makes me itch like a mad woman but is the only one that takes the edge off and naproxen. You have done brilliant in loosing the weight, I'm struggling with mine due to mobility when I'm having a bad flare up and gaining.

Hope it works out for you in the end. Xxx

Doll x

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By *rcticFoxxx OP Woman
over a year ago

Hereabouts

Thank you all for your kind words x

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By (user no longer on site)
over a year ago

My niece (who is 14) has CRPS and goes from good days to days when she is wracked with pain and can hardly get out of bed..so I can empathise with you about how debilitating the condition is both mentally and physically. Keep the pressure on with the GP and consultants and hope you can find one that recognises CRPS. There are a few good fb groups for it too which may help ..good luck with it all x

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By (user no longer on site)
over a year ago

Just read this OP

And huge hugs to you ... you have a great partner standing by you ...

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By *rcticFoxxx OP Woman
over a year ago

Hereabouts

"My niece (who is 14) has CRPS and goes from good days to days when she is wracked with pain and can hardly get out of bed..so I can empathise with you about how debilitating the condition is both mentally and physically. Keep the pressure on with the GP and consultants and hope you can find one that recognises CRPS. There are a few good fb groups for it too which may help ..good luck with it all x"

Oh gosh that's awful

its bad enough at 22, I couldn't imagine having it at 14

I'll have a look for fb groups. I've looked online for forums and stuff but not found much. Nothing recent anyway.

Thank you x

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By *rcticFoxxx OP Woman
over a year ago

Hereabouts

"Just read this OP

And huge hugs to you ... you have a great partner standing by you ...

Thank you. Yeah I do

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By (user no longer on site)
over a year ago

"Just read this OP

And huge hugs to you ... you have a great partner standing by you ...

Thank you. Yeah I do

You do indeed , and having met you both we wish to say that you guys are amazing .

What a harrowing story , and no end in sight .

You are an inspiration to carry on enjoying life despite your pain .

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By (user no longer on site)
over a year ago

"Just read this OP

And huge hugs to you ... you have a great partner standing by you ...

Thank you. Yeah I do

You do indeed , and having met you both we wish to say that you guys are amazing .

What a harrowing story , and no end in sight .

You are an inspiration to carry on enjoying life despite your pain .

ain't she just...more than once I've looked at her when I've been in a shit mood and thought 'fuck me...I've nowt to moan about'

strength has many faces I find

thanks guys

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By *erbyDalesCplCouple
over a year ago

Derbyshire

What a harrowing story , and no end in sight .

You are an inspiration to carry on enjoying life despite your pain .

ain't she just...more than once I've looked at her when I've been in a shit mood and thought 'fuck me...I've nowt to moan about'

strength has many faces I find

It is shit that any doctor can think long-term painkillers can be an answer. Printing out your letter should not only give them the background, but help to remind them that you are a human being too, rather than a collection of symptoms.

Stay strong, and I hope they find a solution for you soon.

Mr ddc

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By *rcticFoxxx OP Woman
over a year ago

Hereabouts

"Just read this OP

And huge hugs to you ... you have a great partner standing by you ...

Thank you. Yeah I do

You do indeed , and having met you both we wish to say that you guys are amazing .

What a harrowing story , and no end in sight .

You are an inspiration to carry on enjoying life despite your pain .

Thanks guys

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By *rcticFoxxx OP Woman
over a year ago

Hereabouts

What a harrowing story , and no end in sight .

You are an inspiration to carry on enjoying life despite your pain .

ain't she just...more than once I've looked at her when I've been in a shit mood and thought 'fuck me...I've nowt to moan about'

strength has many faces I find

Stay strong, and I hope they find a solution for you soon.

Mr ddc"

That's the plan. I'm sick of being treated like a patient number. I'm a human being who isn't getting to live my life to the full and I've had enough. I want to enjoy my 20s, not be in pain all the time. Latest GP is the first since Jan 2014 that actually wants to fix the cause, rather than just the symptoms.

Thank you xx

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By (user no longer on site)
over a year ago

Wow. My empathy to you. I've twatted my knees a couple of times (once in Lancs, once in Amsterdam) but I have no idea what you must be going through. I'm moved and humbled by your words.

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