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parkinsons disease

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By (user no longer on site) OP   
over a year ago

Hello my fellow fables, I know this is not the nicest of posts but I was just wondering if any of you had had 1st hand dealing ls with this awful condition and you would be willing to talk to me about it.

Thanks hope everyone has a great weekend xxx

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By *om and JennieCouple
over a year ago

Chams or Socials

My grandad had it but not sure how much I can help or if at all??

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By (user no longer on site) OP   
over a year ago

My grandad has just been diagnosed with it. They have had to start feeding him through a tube as when he eats it's pooling on his chest. I suppose what I really want to know is how long does he have. I know your not a Dr but you've dealt with it xxx

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By *om and JennieCouple
over a year ago

Chams or Socials

Oh my!

My grandad lived off soup from what I can remember. I thought he had dementia until fairy redntkr

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By (user no longer on site)
over a year ago

Can you not talk to his GP/consultant/him/relative in the know?

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By *adcowWoman
over a year ago

kirkcaldy

I used to care for people who had Parkinsons. Some lived for 20 years after diagnosis but deteriorating gradually, mostly memory and movement. They can still live a full life it just means adjusting their care as the disease progresses.

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By *icketysplitsWoman
over a year ago

Way over Yonder, that's where I'm bound

Look up the Parkinson Association. There are some handy bits of information on their website.

Every case is different.

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By *adcowWoman
over a year ago

kirkcaldy

Also you could check your local area for Parkinson support groups. They give great advice and support for those family members caring for the person with the disease.

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By (user no longer on site) OP   
over a year ago

Thank you folks. I get the feeling family are keeping things from me. (I suffer with depression) It's only 12 months since I lost my nanna plus a few other stuff going on. Am really struggling at the mo just wanted a little support

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By (user no longer on site)
over a year ago


"My grandad has just been diagnosed with it. They have had to start feeding him through a tube as when he eats it's pooling on his chest. I suppose what I really want to know is how long does he have. I know your not a Dr but you've dealt with it xxx "

When you say tube do you mean he has a peg feed or a tube in his mouth?

I do community nursing and have worked with a few peoples with Parkinson's over the years, I'm by no means an expert on the condition but I know a bit x

How long somebody lives with this condition is case to case really, I know of one lady who lived 22 years with it

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By (user no longer on site)
over a year ago


"Can you not talk to his GP/consultant/him/relative in the know?"

His GP/consultant are legally not allowed to discuss his case with others until he's diagnosed as not having mental capacity

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By *histler21Man
over a year ago

Ipswich


"Hello my fellow fables, I know this is not the nicest of posts but I was just wondering if any of you had had 1st hand dealing ls with this awful condition and you would be willing to talk to me about it.

Thanks hope everyone has a great weekend xxx "

My mother in law has had it for about 5 years. Controlled with co-beneldopa tablets 8 times a day (both slow release and quick release).

Drop me a line if you want to know more (I'm not an expert though)

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By (user no longer on site)
over a year ago


"Hello my fellow fables, I know this is not the nicest of posts but I was just wondering if any of you had had 1st hand dealing ls with this awful condition and you would be willing to talk to me about it.

Thanks hope everyone has a great weekend xxx "

I suffer from RLS which is related to Parkinsons so am susceptible to develop it later in life. How do I feel about it? Well all I can say is "it is what it is" hopefully my nearest and dearest will carry me through until it's my time to separate over to the next part of the journey x

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By (user no longer on site)
over a year ago


"Hello my fellow fables, I know this is not the nicest of posts but I was just wondering if any of you had had 1st hand dealing ls with this awful condition and you would be willing to talk to me about it.

Thanks hope everyone has a great weekend xxx

I suffer from RLS which is related to Parkinsons so am susceptible to develop it later in life. How do I feel about it? Well all I can say is "it is what it is" hopefully my nearest and dearest will carry me through until it's my time to separate over to the next part of the journey x"

Step*

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By *uke olovingmanMan
over a year ago

Gravesend

Your best trying to remember your grandàd when he was more active and healthy .. These diseases and conditions rob people of their personality and dignity .. He has lived a full life and you are part of his story

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By (user no longer on site)
over a year ago


"Can you not talk to his GP/consultant/him/relative in the know?

His GP/consultant are legally not allowed to discuss his case with others until he's diagnosed as not having mental capacity "

Mental capacity is assessed and is time and event specific.

Her grandad may have consented to healthcare professionals discussing his diagnosis/prognosis.

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By (user no longer on site)
over a year ago


"Look up the Parkinson Association. There are some handy bits of information on their website.

Every case is different.

"

This.

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By (user no longer on site)
over a year ago


"Also you could check your local area for Parkinson support groups. They give great advice and support for those family members caring for the person with the disease."

And this.

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By (user no longer on site) OP   
over a year ago

Thanks for the suppose and advice x

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