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nhs medical records

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By *onnybag69 OP   Man
over a year ago

Manchester

can anyone remember last year all households recived a leaflet from the nhs explaining that your medical records would be transfered to a national datebase the leaflet explains that you can opt out of this move which i have. the thing is could this date base be misused could your employers insurance companies etc have access to your medical records

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By (user no longer on site)
over a year ago

In short, no.

Your employer would need your consent to access your medical records.

There were some concerns that the data would be made available (sold?!) to insurance companies and the like but this will be in an aggregated format if at all. A lot of it was scare mongering by the media.

The project is being rolled out as a pilot 3 areas (one up north, one south west and one in the south) so we will know more about it come the end of the year.

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By *onnybag69 OP   Man
over a year ago

Manchester

thanks for your interesting info just wondering where it will all end up the police,nhs,council,national insurance, banks benefits and many more they all have profiles on us all

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By *fcdTV/TS
over a year ago

Southend


"In short, no.

Your employer would need your consent to access your medical records.

There were some concerns that the data would be made available (sold?!) to insurance companies and the like but this will be in an aggregated format if at all. A lot of it was scare mongering by the media."

Actually, they have already sold it to many such companies and from reports, they manages to identify about 80% of the records by cross indexing with other databases they had so unless you want various firms knowing all about you, don't allow your records to be shared.

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By *onnybag69 OP   Man
over a year ago

Manchester

[Removed by poster at 03/06/15 12:58:33]

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By *onnybag69 OP   Man
over a year ago

Manchester

i wonder if the dvla or vehicle insurance companies as access to your medical records there must be millions of people driving around with medical problems and shouldn't be driving and have not surrendered there driving license to dvla

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By (user no longer on site)
over a year ago


"In short, no.

Your employer would need your consent to access your medical records.

There were some concerns that the data would be made available (sold?!) to insurance companies and the like but this will be in an aggregated format if at all. A lot of it was scare mongering by the media.

Actually, they have already sold it to many such companies and from reports, they manages to identify about 80% of the records by cross indexing with other databases they had so unless you want various firms knowing all about you, don't allow your records to be shared."

I don't believe that the figure would be anywhere as near as high as 80%. To have a figure that high you'd be expecting both datasets to be damn near identical. I would find it hard to understand how selling a complete data extract could be justified to anyone who wasn't an NHS or Public Health body.

It's also worth noting that linking datasets in that way would be illegal unless you made it clear to that was your intention (in which case you wouldn't be given access to the care.data info)

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By *fcdTV/TS
over a year ago

Southend

As far as I know, they did get ages and approx locations then used multiple other datasets of information to match up key words. The details may be online somewhere but all I could find was the numbers at the time.

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By *icketysplitsWoman
over a year ago

Way over Yonder, that's where I'm bound


"In short, no.

Your employer would need your consent to access your medical records.

There were some concerns that the data would be made available (sold?!) to insurance companies and the like but this will be in an aggregated format if at all. A lot of it was scare mongering by the media.

Actually, they have already sold it to many such companies and from reports, they manages to identify about 80% of the records by cross indexing with other databases they had so unless you want various firms knowing all about you, don't allow your records to be shared.

I don't believe that the figure would be anywhere as near as high as 80%. To have a figure that high you'd be expecting both datasets to be damn near identical. I would find it hard to understand how selling a complete data extract could be justified to anyone who wasn't an NHS or Public Health body.

It's also worth noting that linking datasets in that way would be illegal unless you made it clear to that was your intention (in which case you wouldn't be given access to the care.data info)"

The initial proposal was that the data could be sold to researchers, leading to improvements in medicine and care. That could include insurance companies developing policies for health insurance. It was a wide range of companies and institutions able to access the data sets.

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By *fcdTV/TS
over a year ago

Southend

http://www.telegraph.co.uk/finance/personalfinance/insurance/10667245/NHS-database-will-it-push-up-your-insurance-premiums.html

"The data will include a patient’s date of birth, postcode, NHS number and gender. It will not include names or full addresses. "

Not hard to join the dots starting from there...

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By *est Wales WifeCouple
over a year ago

Near Carmarthen

Anyone who believes that their data will be safe and private in the hands of a government that is constantly seeking to extend its powers of surveillance and control on its citizens must be a sandwich short of a picnic.

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By *inkxRabbitWoman
over a year ago

Mostly in GU24

It's only accessible by selected staff with a smart card and a password. I had one five years ago and it's been handed back because I'm no longer working for them.

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By (user no longer on site)
over a year ago

Definitely not!

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By (user no longer on site)
over a year ago

The government's record in computer systems and data privacy is by no means exemplary. The idea is that an individual's details will be protected. Whether the idea lives up to the ideal is another matter.

The integrated medical database system failed horribly. When I go to the hospital, they have no computer access to my GP's records. No major business could function like that.

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By *ophieslutTV/TS
over a year ago

Central

Many people could be identified as by the time the granularity is drilled down to, it becomes clear who the person is. I've opted out.

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By *ig1gaz1Man
over a year ago

bradford

the old one was called care data if you filled that one out you need to refill out another

The Care.data programme will push the NHS towards a consent-based model of data sharing by 2020, but 100 per cent security of patient information can't be guaranteed, Tim Kelsey, NHS England's national director for patients and information, has admitted.

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By *eMontresMan
over a year ago

Halesowen


"In short, no.

Your employer would need your consent to access your medical records.

There were some concerns that the data would be made available (sold?!) to insurance companies and the like but this will be in an aggregated format if at all. A lot of it was scare mongering by the media.

Actually, they have already sold it to many such companies and from reports, they manages to identify about 80% of the records by cross indexing with other databases they had so unless you want various firms knowing all about you, don't allow your records to be shared."

Exactly this, and it is why I opted out immediately. I would recommend everyone does the same. I checked out the list of private companies that were approved for purchasing the data and it was very scary.

Yes, insurance companies and the like will be able to get hold of these data, cross reference it with other databases and identify you personally and your medical history, enabling them to discriminate or levy punitive premiums. And that's just the least sinister of the possible scenarios.

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