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Fibroids- advice from the ladies please

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By *adyA01 OP   Woman
over a year ago

Wellington

There is a very strong possibility that I have fibroids. I ended up in hospital a couple of weeks ago and I have scan this Friday, both my mother and grandmother had them also.

For the time being it has stopped me playing as I am in a fair amount of discomfort most of the time. So any ladies who have had them, what treatment did you have and how long was recovery! I have googled it etc and there are several options, I would prefer to avoid a hysterectomy if possible.

Thanks

A x

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By (user no longer on site)
over a year ago

I had huge fibroids which caused me to be severely anaemic. My only option was a hysterectomy. I only had my uterus and the fibroids removed and still bleed a little every month. I feel so much better after but I had no other choice.

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By *adyA01 OP   Woman
over a year ago

Wellington


"I had huge fibroids which caused me to be severely anaemic. My only option was a hysterectomy. I only had my uterus and the fibroids removed and still bleed a little every month. I feel so much better after but I had no other choice."

Glad you feel better now! How long did it take you to recover? Xx

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By *B9 QueenWoman
over a year ago

Over the rainbow, under the bridge

I've had fibroids twice. Like you I didn't want a hysterectomy (I was 40). I did a bit of research and found out about the myomectomy which is where they open you up and just remove the tumours. However, the drawbacks are that it takes about 2 months to recover like a hysterectomy, the fibroids can return (as mine did) and if you bkeed excessively during the op (fibroids are quite venous) they may end up having to do the full hysterectomy.

The second time I was treated was with the mirena coil. Once it had settled down after around 6 months it was great. Barely have a period and when I dit's so light as to be almost non - existent.

Many surgeons will go for hysterectomy as it's the easy option. They will tell you that they'll leave the ovaries so you won't hit the menopause and end up on hrt. However, what they fail to tell you is that without the uterus the ovaries shut down after around 18 months to 2 years and you end up with hrt anyway.

The best treatment for me was obviously the mirena coil.

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By (user no longer on site)
over a year ago


"I had huge fibroids which caused me to be severely anaemic. My only option was a hysterectomy. I only had my uterus and the fibroids removed and still bleed a little every month. I feel so much better after but I had no other choice.

Glad you feel better now! How long did it take you to recover? Xx"

I went back to work 8 weeks after my operation. I was still sore because they took a lot of tissue from me. If you have to have a hysterectomy take it slowly after,do things but at your own pace. My scar is a foot long but not noticeable

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By *adyA01 OP   Woman
over a year ago

Wellington


"I've had fibroids twice. Like you I didn't want a hysterectomy (I was 40). I did a bit of research and found out about the myomectomy which is where they open you up and just remove the tumours. However, the drawbacks are that it takes about 2 months to recover like a hysterectomy, the fibroids can return (as mine did) and if you bkeed excessively during the op (fibroids are quite venous) they may end up having to do the full hysterectomy.

The second time I was treated was with the mirena coil. Once it had settled down after around 6 months it was great. Barely have a period and when I dit's so light as to be almost non - existent.

Many surgeons will go for hysterectomy as it's the easy option. They will tell you that they'll leave the ovaries so you won't hit the menopause and end up on hrt. However, what they fail to tell you is that without the uterus the ovaries shut down after around 18 months to 2 years and you end up with hrt anyway.

The best treatment for me was obviously the mirena coil.

"

I already have the mirena coil and have had it for about 2 years, so I guess that won't be suggested as treatment as it clearly isn't working.

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By (user no longer on site)
over a year ago


"I've had fibroids twice. Like you I didn't want a hysterectomy (I was 40). I did a bit of research and found out about the myomectomy which is where they open you up and just remove the tumours. However, the drawbacks are that it takes about 2 months to recover like a hysterectomy, the fibroids can return (as mine did) and if you bkeed excessively during the op (fibroids are quite venous) they may end up having to do the full hysterectomy.

The second time I was treated was with the mirena coil. Once it had settled down after around 6 months it was great. Barely have a period and when I dit's so light as to be almost non - existent.

Many surgeons will go for hysterectomy as it's the easy option. They will tell you that they'll leave the ovaries so you won't hit the menopause and end up on hrt. However, what they fail to tell you is that without the uterus the ovaries shut down after around 18 months to 2 years and you end up with hrt anyway.

The best treatment for me was obviously the mirena coil.

"

I had my operation in 2009 and I'm not on hrt. I wasn't able to have the mirena coil,I was offered it but my uterus was too out of shape,tablets to stem the bleeding didn't work as I flooded intensely. I was offered all options but the hysterectomy was the only option or suffer for another 10 or more years.

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By *B9 QueenWoman
over a year ago

Over the rainbow, under the bridge


"I've had fibroids twice. Like you I didn't want a hysterectomy (I was 40). I did a bit of research and found out about the myomectomy which is where they open you up and just remove the tumours. However, the drawbacks are that it takes about 2 months to recover like a hysterectomy, the fibroids can return (as mine did) and if you bkeed excessively during the op (fibroids are quite venous) they may end up having to do the full hysterectomy.

The second time I was treated was with the mirena coil. Once it had settled down after around 6 months it was great. Barely have a period and when I dit's so light as to be almost non - existent.

Many surgeons will go for hysterectomy as it's the easy option. They will tell you that they'll leave the ovaries so you won't hit the menopause and end up on hrt. However, what they fail to tell you is that without the uterus the ovaries shut down after around 18 months to 2 years and you end up with hrt anyway.

The best treatment for me was obviously the mirena coil.

I already have the mirena coil and have had it for about 2 years, so I guess that won't be suggested as treatment as it clearly isn't working. "

Enquire about the myomectomy. There's also the embolism method but I'm not sure if anyone does this in the UK or even if it would be suitable in your case.

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By (user no longer on site)
over a year ago


"I've had fibroids twice. Like you I didn't want a hysterectomy (I was 40). I did a bit of research and found out about the myomectomy which is where they open you up and just remove the tumours. However, the drawbacks are that it takes about 2 months to recover like a hysterectomy, the fibroids can return (as mine did) and if you bkeed excessively during the op (fibroids are quite venous) they may end up having to do the full hysterectomy.

The second time I was treated was with the mirena coil. Once it had settled down after around 6 months it was great. Barely have a period and when I dit's so light as to be almost non - existent.

Many surgeons will go for hysterectomy as it's the easy option. They will tell you that they'll leave the ovaries so you won't hit the menopause and end up on hrt. However, what they fail to tell you is that without the uterus the ovaries shut down after around 18 months to 2 years and you end up with hrt anyway.

The best treatment for me was obviously the mirena coil.

"

I had a hysterectomy 8 years ago , left one ovary and I'm not on hrt.

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By *B9 QueenWoman
over a year ago

Over the rainbow, under the bridge


"I've had fibroids twice. Like you I didn't want a hysterectomy (I was 40). I did a bit of research and found out about the myomectomy which is where they open you up and just remove the tumours. However, the drawbacks are that it takes about 2 months to recover like a hysterectomy, the fibroids can return (as mine did) and if you bkeed excessively during the op (fibroids are quite venous) they may end up having to do the full hysterectomy.

The second time I was treated was with the mirena coil. Once it had settled down after around 6 months it was great. Barely have a period and when I dit's so light as to be almost non - existent.

Many surgeons will go for hysterectomy as it's the easy option. They will tell you that they'll leave the ovaries so you won't hit the menopause and end up on hrt. However, what they fail to tell you is that without the uterus the ovaries shut down after around 18 months to 2 years and you end up with hrt anyway.

The best treatment for me was obviously the mirena coil.

I had a hysterectomy 8 years ago , left one ovary and I'm not on hrt. "

My cousin, my mum and a good friend all ended up on hrt within a couple of years after their Hysterectomies. As did my friend's mother. It is quite common.

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By (user no longer on site)
over a year ago


"I've had fibroids twice. Like you I didn't want a hysterectomy (I was 40). I did a bit of research and found out about the myomectomy which is where they open you up and just remove the tumours. However, the drawbacks are that it takes about 2 months to recover like a hysterectomy, the fibroids can return (as mine did) and if you bkeed excessively during the op (fibroids are quite venous) they may end up having to do the full hysterectomy.

The second time I was treated was with the mirena coil. Once it had settled down after around 6 months it was great. Barely have a period and when I dit's so light as to be almost non - existent.

Many surgeons will go for hysterectomy as it's the easy option. They will tell you that they'll leave the ovaries so you won't hit the menopause and end up on hrt. However, what they fail to tell you is that without the uterus the ovaries shut down after around 18 months to 2 years and you end up with hrt anyway.

The best treatment for me was obviously the mirena coil.

I had a hysterectomy 8 years ago , left one ovary and I'm not on hrt.

My cousin, my mum and a good friend all ended up on hrt within a couple of years after their Hysterectomies. As did my friend's mother. It is quite common. "

All I was told was that the ovary I was left with would probably need to be removed in a couple years so I can understand what you mean. So far for me though so good.

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By *B9 QueenWoman
over a year ago

Over the rainbow, under the bridge


"I've had fibroids twice. Like you I didn't want a hysterectomy (I was 40). I did a bit of research and found out about the myomectomy which is where they open you up and just remove the tumours. However, the drawbacks are that it takes about 2 months to recover like a hysterectomy, the fibroids can return (as mine did) and if you bkeed excessively during the op (fibroids are quite venous) they may end up having to do the full hysterectomy.

The second time I was treated was with the mirena coil. Once it had settled down after around 6 months it was great. Barely have a period and when I dit's so light as to be almost non - existent.

Many surgeons will go for hysterectomy as it's the easy option. They will tell you that they'll leave the ovaries so you won't hit the menopause and end up on hrt. However, what they fail to tell you is that without the uterus the ovaries shut down after around 18 months to 2 years and you end up with hrt anyway.

The best treatment for me was obviously the mirena coil.

I had a hysterectomy 8 years ago , left one ovary and I'm not on hrt.

My cousin, my mum and a good friend all ended up on hrt within a couple of years after their Hysterectomies. As did my friend's mother. It is quite common.

All I was told was that the ovary I was left with would probably need to be removed in a couple years so I can understand what you mean. So far for me though so good. "

That's good news. Hopefully, it will keep going for a while. The prospect of osteoporosis is not fun.

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By *adyA01 OP   Woman
over a year ago

Wellington

Thanks ladies! God it's shit being a woman sometimes! X

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By (user no longer on site)
over a year ago


"I've had fibroids twice. Like you I didn't want a hysterectomy (I was 40). I did a bit of research and found out about the myomectomy which is where they open you up and just remove the tumours. However, the drawbacks are that it takes about 2 months to recover like a hysterectomy, the fibroids can return (as mine did) and if you bkeed excessively during the op (fibroids are quite venous) they may end up having to do the full hysterectomy.

The second time I was treated was with the mirena coil. Once it had settled down after around 6 months it was great. Barely have a period and when I dit's so light as to be almost non - existent.

Many surgeons will go for hysterectomy as it's the easy option. They will tell you that they'll leave the ovaries so you won't hit the menopause and end up on hrt. However, what they fail to tell you is that without the uterus the ovaries shut down after around 18 months to 2 years and you end up with hrt anyway.

The best treatment for me was obviously the mirena coil.

I had a hysterectomy 8 years ago , left one ovary and I'm not on hrt.

My cousin, my mum and a good friend all ended up on hrt within a couple of years after their Hysterectomies. As did my friend's mother. It is quite common.

All I was told was that the ovary I was left with would probably need to be removed in a couple years so I can understand what you mean. So far for me though so good.

That's good news. Hopefully, it will keep going for a while. The prospect of osteoporosis is not fun."

I'm actually glad you mentioned it as my mum has osteoporosis , think I may just go get checked out. Thank you.

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By *B9 QueenWoman
over a year ago

Over the rainbow, under the bridge


"I've had fibroids twice. Like you I didn't want a hysterectomy (I was 40). I did a bit of research and found out about the myomectomy which is where they open you up and just remove the tumours. However, the drawbacks are that it takes about 2 months to recover like a hysterectomy, the fibroids can return (as mine did) and if you bkeed excessively during the op (fibroids are quite venous) they may end up having to do the full hysterectomy.

The second time I was treated was with the mirena coil. Once it had settled down after around 6 months it was great. Barely have a period and when I dit's so light as to be almost non - existent.

Many surgeons will go for hysterectomy as it's the easy option. They will tell you that they'll leave the ovaries so you won't hit the menopause and end up on hrt. However, what they fail to tell you is that without the uterus the ovaries shut down after around 18 months to 2 years and you end up with hrt anyway.

The best treatment for me was obviously the mirena coil.

I had a hysterectomy 8 years ago , left one ovary and I'm not on hrt.

My cousin, my mum and a good friend all ended up on hrt within a couple of years after their Hysterectomies. As did my friend's mother. It is quite common.

All I was told was that the ovary I was left with would probably need to be removed in a couple years so I can understand what you mean. So far for me though so good.

That's good news. Hopefully, it will keep going for a while. The prospect of osteoporosis is not fun.

I'm actually glad you mentioned it as my mum has osteoporosis , think I may just go get checked out. Thank you. "

It was one of the main reasons I refused a hysterectomy. A friend has it and she's only 30. She's had terrible problems after having a baby just a year ago to the point where she can't even pick her child up. Hers is inherited though.

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By (user no longer on site)
over a year ago

Having my hysterectomy was the best thing I ever did as far as my health goes as I had suffered for years. I had adenomyosis.

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By *B9 QueenWoman
over a year ago

Over the rainbow, under the bridge


"Having my hysterectomy was the best thing I ever did as far as my health goes as I had suffered for years. I had adenomyosis. "

I'm glad it worked out for you.

My advice is for the op to do a bit of homework about it and discuss it all with her consultant before making any decisions.

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By (user no longer on site)
over a year ago


"Having my hysterectomy was the best thing I ever did as far as my health goes as I had suffered for years. I had adenomyosis.

I'm glad it worked out for you.

My advice is for the op to do a bit of homework about it and discuss it all with her consultant before making any decisions. "

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By *adyA01 OP   Woman
over a year ago

Wellington

I realise a hysterectomy is probably the way to go, I don't want them to come back and I have had my children, so losing my womb to have better health is a good thing! But 8 weeks recovery scares the hell out of me! I am a single mum with no financial support from their dad and I am self employed! 8 weeks off work is not an option, I still have bills to pay etc!

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By *B9 QueenWoman
over a year ago

Over the rainbow, under the bridge


"I realise a hysterectomy is probably the way to go, I don't want them to come back and I have had my children, so losing my womb to have better health is a good thing! But 8 weeks recovery scares the hell out of me! I am a single mum with no financial support from their dad and I am self employed! 8 weeks off work is not an option, I still have bills to pay etc! "

I had my myomectomy 12 years ago. At that time there were few choices. I'd do some research first. Discuss it with your consultant and explain your financial issues. There may be a solution.

There are injections (zoladex I think) which can shrink them but the problem with that is it shuts down the ovaries temporarily. This leaves you vulnerable to osteoporosis.

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By *icketysplitsWoman
over a year ago

Way over Yonder, that's where I'm bound

OP, wait until you see the results. Size, positioning, number of fibroids... all help to inform what is the best treatment.

I had fibroids from 20 until I had a hysterectomy (ovaries too - no HRT and scanned for osteoporosis every couple of years). Every other treatment just resulted in them coming back.

By the time I had the hysterectomy I had 28 fibroids, with one big orange-sized one pressing on my bladder.

Only you can decide whether you want to try myomectomy or go for an hysterectomy. I had had enough by the time I decided to whip it all out and I have been fitter and healthier since.

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By (user no longer on site)
over a year ago

Have you looked at natural alternatives?

I don't know a lot about it but it's often something doctors don't suggest and you can't lose anything by researching ways to change your diet and maybe take supplements for a while to see if it helps?

I had a weird discomfort during sex thing that was thoroughly investigated and nothing could be found.

It's been ongoing for years but I discovered that cutting out junk food for a prolonged period made it almost disappear completely!

I'm not sure if my issue was fibroid related but I suspect it may have been?

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By *B9 QueenWoman
over a year ago

Over the rainbow, under the bridge


"Have you looked at natural alternatives?

I don't know a lot about it but it's often something doctors don't suggest and you can't lose anything by researching ways to change your diet and maybe take supplements for a while to see if it helps?

I had a weird discomfort during sex thing that was thoroughly investigated and nothing could be found.

It's been ongoing for years but I discovered that cutting out junk food for a prolonged period made it almost disappear completely!

I'm not sure if my issue was fibroid related but I suspect it may have been?"

A change in diet would not make any difference. Fibroids are benign tumours. They cause agonising period pains and extremely heavy bleeding to the point where women often suffer anaemia. What you eat will not affect that apart from taking iron supplements. The fibroids themselves won't disappear.

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By (user no longer on site)
over a year ago


"Have you looked at natural alternatives?

I don't know a lot about it but it's often something doctors don't suggest and you can't lose anything by researching ways to change your diet and maybe take supplements for a while to see if it helps?

I had a weird discomfort during sex thing that was thoroughly investigated and nothing could be found.

It's been ongoing for years but I discovered that cutting out junk food for a prolonged period made it almost disappear completely!

I'm not sure if my issue was fibroid related but I suspect it may have been?

A change in diet would not make any difference. Fibroids are benign tumours. They cause agonising period pains and extremely heavy bleeding to the point where women often suffer anaemia. What you eat will not affect that apart from taking iron supplements. The fibroids themselves won't disappear. "

Ok fair enough. I just think it's worth looking at other options, before doing anything drastic.

I've had doctors tell me diet makes no difference to psoriasis either, but I know for me it makes a massive difference.

I was wondering whether a diet focussing on anti-inflammatory foods would help? And avoid foods known to cause inflammation (such as sugar).

I also recently discovered my crippling period pains completely disappear if I totally avoid caffeine.

I wish someone had told me sooner, it seems to affect a lot of women the same way if you google it.

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By *adyA01 OP   Woman
over a year ago

Wellington

I know a bit of homework is needed, don't worry I am not using this as my homework, just as part of it to find out about other people's experiences, I have been online too and spoken to friends I know who have had a hysterectomy. Ultimately I will be waiting to discuss all options with the consultant. I still haven't had it confirmed but I am fairly positive that is what it will be - it just all feels very daunting at the moment!

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By *eubenesqueWoman
over a year ago

Northampton

I had big fibroids, and the doc told me that as I was still young (34 at the time) they would keep coming back as I was still secreting low levels of growth hormones. I had completed my family, two lovely kids, so he recommended a hysterectomy, taking only the womb and leaving my ovaries. It was the best thing ever. I had the womb removed through the vagina, so had no scar (just a couple of keyhole ones) and no cutting through the muscle, so recovery was much faster, I was out of bed and walking around within a couple of days and maybe 3 weeks until I could do most stuff. Like you I'm self employed, so I started back to work...just don't lift anything or strain too much until you are fully healed. Feel free to message me if you want to know any more x good luck!

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By (user no longer on site)
over a year ago

Hi

Fortunately, there are other options these days. Unfortunately, neither the mirena coil nor endometrial ablation (I has other symptoms not thought to be fibroid related) worked for me but they do have good success rates. I had to have a hysterectomy, owing to the fibroids and other symptoms. Being in my mid-40s and not wanting to start a family at that age, it wasn't such a difficult decision and feel better than I've felt in years. With regard to early onset of the menopause, my mum had her hysterectomy at the same age and didn't go through menopause until her mid-50s. I'm hoping I'll be the same.

I hope whatever course of treatment you go for it goes well for you.

Her

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By *adyA01 OP   Woman
over a year ago

Wellington


"I had big fibroids, and the doc told me that as I was still young (34 at the time) they would keep coming back as I was still secreting low levels of growth hormones. I had completed my family, two lovely kids, so he recommended a hysterectomy, taking only the womb and leaving my ovaries. It was the best thing ever. I had the womb removed through the vagina, so had no scar (just a couple of keyhole ones) and no cutting through the muscle, so recovery was much faster, I was out of bed and walking around within a couple of days and maybe 3 weeks until I could do most stuff. Like you I'm self employed, so I started back to work...just don't lift anything or strain too much until you are fully healed. Feel free to message me if you want to know any more x good luck! "

I could cope with that, I shall wait for confirmation and then I may well pm you with lots of questions! Thanks x

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By *B9 QueenWoman
over a year ago

Over the rainbow, under the bridge


"Have you looked at natural alternatives?

I don't know a lot about it but it's often something doctors don't suggest and you can't lose anything by researching ways to change your diet and maybe take supplements for a while to see if it helps?

I had a weird discomfort during sex thing that was thoroughly investigated and nothing could be found.

It's been ongoing for years but I discovered that cutting out junk food for a prolonged period made it almost disappear completely!

I'm not sure if my issue was fibroid related but I suspect it may have been?

A change in diet would not make any difference. Fibroids are benign tumours. They cause agonising period pains and extremely heavy bleeding to the point where women often suffer anaemia. What you eat will not affect that apart from taking iron supplements. The fibroids themselves won't disappear.

Ok fair enough. I just think it's worth looking at other options, before doing anything drastic.

I've had doctors tell me diet makes no difference to psoriasis either, but I know for me it makes a massive difference.

I was wondering whether a diet focussing on anti-inflammatory foods would help? And avoid foods known to cause inflammation (such as sugar).

I also recently discovered my crippling period pains completely disappear if I totally avoid caffeine.

I wish someone had told me sooner, it seems to affect a lot of women the same way if you google it."

Fibroids are tumours - growths in the uterus - rather than just inflammation.

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By *adyA01 OP   Woman
over a year ago

Wellington

Just a quick update for all you lovely ladies, who posted. I have had my scan today and not a fibroid in sight although I do have cysts on both my ovaries which apparently gives the same symptoms! Hopefully they will be able to remove them quite quickly xxx thanks again ladies xxxx

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By *eubenesqueWoman
over a year ago

Northampton

That's great news! Good luck with it all xx

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By (user no longer on site)
over a year ago

I have a 10cm submucosal fibroid had anemia plus heavy periods. The gynecoligist wants to see me again in 6 months.

My doctor said I would have it removed.

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By (user no longer on site)
over a year ago


"I have a 10cm submucosal fibroid had anemia plus heavy periods. The gynecoligist wants to see me again in 6 months.

My doctor said I would have it removed."

I might be having a procedure called the mini touch. It uses microwave to thing the lining of my womb. Depends if the consultant thinks my c-section scar is thick enough. Had an internal scan and it's only 2-3 cm thick from the womb.

I need a hysterectomy, been begging gynae for 7 years, but was told to go on coil (it fell out), or told it's an old fashioned procedure and now told I'm too overweight.

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