FabSwingers.com forum: Psoriasis

By (user no longer on site) OP
over a year ago

Anyone else got it? Badly?

Mine is driving me nuts. Worst ever flare up. It's scaring me off meeting anyone tbh. Feeling very

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By (user no longer on site)
over a year ago

yeah I suffer with this.....fortunately mine has been absent for a couple of years now

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By (user no longer on site)
over a year ago

Yes ive got it but only on my elbows but its very itchy

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By (user no longer on site) OP
over a year ago

"yeah I suffer with this.....fortunately mine has been absent for a couple of years now

Did it disappear spontaneously or did you do something?

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By (user no longer on site)
over a year ago

i know eczema is different but my daughter had bad flare ups when she was younger tried all sorts of creams from aveeno to e45 but the only thing that calmed her down was something called 'pure potions'.. it was a soothing balm.. worked miracles. Could be worth a shot on your skin

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By (user no longer on site) OP
over a year ago

"Yes ive got it but only on my elbows but its very itchy "

I've found massively cutting sugar out of my diet cuts out the itch a bit. And tons of moisturiser.

Mine is on my legs, badly, arms and now it's my torso in small patches. It's spread so much in a short time. I miss going out and wearing sexy/revealing clothing.

Haven't gone out with bare legs in around 3 years now at least!

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By *ingle Beds LassWoman
over a year ago

Bedfordshire

"Anyone else got it? Badly?

Mine is driving me nuts. Worst ever flare up. It's scaring me off meeting anyone tbh. Feeling very

My old flat mate had it bad!!!! He now lives in Cyprus so cleared up now but he said hedgehog flesh lol

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By (user no longer on site)
over a year ago

"yeah I suffer with this.....fortunately mine has been absent for a couple of years now

Did it disappear spontaneously or did you do something?"

I used to use a lot of cream (Dovobet) but then went to live on an island for a few years......just chilling out and relaxing for a bit made the world of difference

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By (user no longer on site)
over a year ago

"Anyone else got it? Badly?

Mine is driving me nuts. Worst ever flare up. It's scaring me off meeting anyone tbh. Feeling very

I used to have it on elbows, knees & scalp & the itch drove me nuts - but went & lived down under & - problem solved!! .......... still nuts though!

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By *innamon!Woman
over a year ago

no matter

Only on the back of my head.. try coconut oil as a moisturiser .

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By (user no longer on site)
over a year ago

My mum had it very bad and use to spend 6 or 7 months a year in hospital. She had it everywhere but her face. I Get it but only slightly.

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By (user no longer on site)
over a year ago

seriously google 'pure potions' read the reviews, even GPs are prescribing it now in some circumstances, saved sooo many tears for my baby. Cant sing its praises enough

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By (user no longer on site) OP
over a year ago

"Only on the back of my head.. try coconut oil as a moisturiser .

I tried this and weirdly my skin doesn't seem to like it? After two days use it seemed to get worse? I've tried it a couple of times now.

Toshn, your poor mum. It's so painful when it covers you.

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By (user no longer on site) OP
over a year ago

"seriously google 'pure potions' read the reviews, even GPs are prescribing it now in some circumstances, saved sooo many tears for my baby. Cant sing its praises enough "

I had a look but it seems really expensive, I go through tons as I'm covered in it. I've spent a fortune chasing miracle cures over the years.

Waiting to go on meds for it now.

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By (user no longer on site) OP
over a year ago

"seriously google 'pure potions' read the reviews, even GPs are prescribing it now in some circumstances, saved sooo many tears for my baby. Cant sing its praises enough

I had a look but it seems really expensive, I go through tons as I'm covered in it. I've spent a fortune chasing miracle cures over the years.

Waiting to go on meds for it now. "

Sorry that seemed really ungrateful. Thanks for posting though. I may try it if I get more desperate.

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By *abioMan
over a year ago

Newcastle and Gateshead

i get pure aloe vera gel from holland and barretts to get with mine (also it is in the penny sell so can get two large packs

mine is on the top of my head so can feel itchy, but the aloe gel soothes....

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By (user no longer on site)
over a year ago

"seriously google 'pure potions' read the reviews, even GPs are prescribing it now in some circumstances, saved sooo many tears for my baby. Cant sing its praises enough

I had a look but it seems really expensive, I go through tons as I'm covered in it. I've spent a fortune chasing miracle cures over the years.

Waiting to go on meds for it now.

Sorry that seemed really ungrateful. Thanks for posting though. I may try it if I get more desperate.

lol i had the same thoughts as you regarding the cost of it, but because its like a balm it kinda melts into the skin and you end up using very little. Good luck though and hope your flare ups settle down x

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By (user no longer on site)
over a year ago

"Only on the back of my head.. try coconut oil as a moisturiser .

I tried this and weirdly my skin doesn't seem to like it? After two days use it seemed to get worse? I've tried it a couple of times now.

Toshn, your poor mum. It's so painful when it covers you.

"
yeah she spent most of her life in hospitals. Under ultra violet lights Bless her

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By (user no longer on site)
over a year ago

"Anyone else got it? Badly?

Mine is driving me nuts. Worst ever flare up. It's scaring me off meeting anyone tbh. Feeling very

"
yes mines really bad at the moment x L x

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By (user no longer on site)
over a year ago

"i get pure aloe vera gel from holland and barretts to get with mine (also it is in the penny sell so can get two large packs

mine is on the top of my head so can feel itchy, but the aloe gel soothes...."
my mum use to give me her Polytar for my scalp. It worked for me

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By *abioMan
over a year ago

Newcastle and Gateshead

" my mum use to give me her Polytar for my scalp. It worked for me "

I couldn't use that on my scalp as it was so abrasive that it was literaly burning my scalp and making it a million times worse.....

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By (user no longer on site)
over a year ago

I had it at when I was pregnant and split with my partner. Elbows and knees and even around my ankles, was horrid never had it before but they said stress can bring it on. After I had the baby I had lamp treatment in the hospital, was like a big sunbed and the nurses would put this coal tar stuff on me and it cleared up in a few months. Over the last 5 years since I've noticed whenever I'm particularly stressed it will come back on my elbows, when it happens I use the tar stuff and leave it on for an hour and then remove it with almond oil. I also take vitamin e capsules every day and I get this cream called double base from my gp and it's really moisturising it's like water when you put it on but it keeps your skin really hydrated.

Just keep asking your doctor to try you on different things, it's a horrible thing to have, I've had it through a summer and not been able to wear anything sleeveless, or going out and trying to find a going out outfit that covers all the bits is hard.

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By *inaTitzTV/TS
over a year ago

Titz Towers, North Notts

I had an ex with it and she was more put out by it than I was.

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By *innamon!Woman
over a year ago

no matter

[Removed by poster at 16/01/15 21:12:44]

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By *opsy RogersWoman
over a year ago

London

"Anyone else got it? Badly?

Mine is driving me nuts. Worst ever flare up. It's scaring me off meeting anyone tbh. Feeling very

You said that sugar makes it worse? You may want to try cutting carbs from your diet for a while and see what happens. Up the really good fats like ghee, lard, butter and olive oil and avoid vegetable oils, they are trans fats when heated and not good at all.

Avoid all processed stuff too.

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By *radleyandRavenCouple
over a year ago

Herts

I have it on my bum which I'm quite paranoid about. Vincent used to let meets know purely for MY peace of mind, as I couldn't stand the idea of any potential meets reacting badly when they saw it.

It's not scaly, it's just red but it hasn't bothered anyone yet. I've found Palmers cocoa butter to be the best.

Mine too clears up when I get some sun.

Fucking England and it's shitty weather...

- Amy. x

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By *empting Devil.Woman
over a year ago

Sheffield

A friend of mine was recommended to eat more alliums - onions basically, it really did seem to help.

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By (user no longer on site)
over a year ago

I was gonna say I'll post you the stuff I got cos I've got it in bulk unused incase of a flare up but you get free prescriptions in Haverfordwest west don't you? Ask them for the double base stuff and for coal tar I've got 2% strength and it does take the scales away and makes it smooth.

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By *innamon!Woman
over a year ago

no matter

oh dear im sorry .. Emu oil perhaps .. ebay try a small bottle . I dunno I just keep trying stuff. will look up cute's stuff

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By *ce WingerMan
over a year ago

P.O. Box DE1 0NQ

Had mine since I was 27 and used to put creams on it but as they made no difference I stopped bothering after about 5 yrs. 2 massive patches on both knees have completely disappeared in the last 18 months though.

Downside to all this is that I have now developed psoriatic arthritis and have been off work for the past 5 months

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By *radleyandRavenCouple
over a year ago

Herts

"I have it on my bum which I'm quite paranoid about. Vincent used to let meets know purely for MY peace of mind, as I couldn't stand the idea of any potential meets reacting badly when they saw it.

It's not scaly, it's just red but it hasn't bothered anyone yet. I've found Palmers cocoa butter to be the best.

Mine too clears up when I get some sun.

Fucking England and it's shitty weather...

- Amy. x"

It also completely disappeared when I was pregnant...

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By (user no longer on site) OP
over a year ago

Mine started after my first round of IVF. Never went away except once when I had UVB light treatment. I was clear six months and then bam, it was back.

I've had it six years now.

The first time I was covered so badly and I was a mess. All over my body and even a ridiculous amount in the palms of my hands. Hurt my legs just standing up.

Agony changing my babies nappies at that time!

This time is not quite this bad but rapidly getting there.

UVB and PUVA (light) treatments haven't worked.

I did a ridiculously strict diet for four months (no dairy, no grains except oats, no sugar, no processed, no alcohol, no red meat, no citrus, loads of green smoothies).

Four months! It was clearing very slowly but I was doing UV using a light box at home and I just got new outbreaks wherever the UVB light wasn't hitting me. The UVB at home was taking 2 hours, three times a week. Then cooking every meal from scratch and it was very stressful.

I finally quit as I'd had enough over Christmas. I lost a ton of weight and just felt rubbish the entire time.

It was soul destroying to know all that work didn't do much. But eating sugar again has made me flare worse - and I stopped UVB for a few weeks as I was exhausted. Back doing it now.

I've got to the point where my arms are pretty bad so I don't even want to do a social. I have a couple lined up but am thinking of cancelling. They know about the psoriasis.

I did try and upload a photo of the state of my legs a while back to let a guy know and Fab rejected the photo. I suspect they thought is done some form of kinky self mutilation or something?

Just arrrrrggggghhhhhh!

Thanks for listening guys.

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By *inkxRabbitWoman
over a year ago

Mostly in GU24

Go get PUVA therapy. Light therapy available on the NHS via your GP.

You're welcome x

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By *mmabluTV/TS
over a year ago

upton wirral

got cream from my doctor soon cleared it up

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By *opsy RogersWoman
over a year ago

London

That diet you posted was severely lacking in good nutrients.

Your body needs protein and fats to heal and maintain and unless you have a sensitivity to dairy, don't exclude it.

Have you been tested for D deficiency? Most of us are and need robust supplementation. I take 10,000 in a day and have done for years.

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By (user no longer on site) OP
over a year ago

Topsy yep that's what I decided in the end. I had tons of salmon and olive oil though. Just felt like not enough calories too.

Pink rabbit - tried it and it didn't work AND it was excruciating for some reason? Didn't work for me. Know it works for some.

Whoever suggested a cream that clears it up - wish it was that simple!

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By (user no longer on site)
over a year ago

Try Dream Cream from Lush - oat milk is really soothing!

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By (user no longer on site)
over a year ago

Nivea sensitive moisturiser for men. Desensitises skin over time. White tube, navy circle I think.

Cleared eczema literally overnight. Maybe worth a try? Also reduces redness on psoriasis patches and sometimes heals.

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By (user no longer on site)
over a year ago

i use to suffer with it real bad on and off when I was younger.after trying many different treatments my docter gave me a cream call carbodome and it got rid of it within a week.i was just left with a few white scar marks which vanished in the sun.iv been clear now for over 20 years

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By *emmefataleWoman
over a year ago

dirtybigbadsgirlville

Dermol, can be used as a soap substitute too, then wait to see what your dermatologist prescribes.

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By (user no longer on site)
over a year ago

my brother suffered really bad with this even had it on the inside of his eye lids

when he was little my nan use to take him and sit where ever they was laying tar on the roads she would sit right next to the barrels of hot tar it use to clear it up this was many years ago mind

. other than that helping he never did find anything to cure it longer than a few months

there was a spell he was having heat treatment that seemed to help for a while

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By *s_bettyboopWoman
over a year ago

-3

Ive suffered with this since i was a teenager on and off. Got it really badly at the moment on my forehead and ears. Used most of the prescription stuff,worked for a bit then stopped. Someone recommended pure glycerine and this worked for a long time for me. Sadly no more.

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By *ust_for_laughsCouple
over a year ago

Hinckley

Mrs JFL is working with a pharma company that are developing a cure that goes to clinical trials soon (if it hasn't already, it's been a while since we spoke about it)

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By *ady SalfordWoman
over a year ago

Manchester

My 17 yr old daughter was born with it and there is so much can be done either via tablets or injections. Stress is the main enemy for those that suffer with it, it's a irritating and painful at times

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By *ee VianteWoman
over a year ago

Somewhere in North Norfolk

"Mine started after my first round of IVF. Never went away except once when I had UVB light treatment. I was clear six months and then bam, it was back.

I've had it six years now.

The first time I was covered so badly and I was a mess. All over my body and even a ridiculous amount in the palms of my hands. Hurt my legs just standing up.

Agony changing my babies nappies at that time!

This time is not quite this bad but rapidly getting there.

UVB and PUVA (light) treatments haven't worked.

I did a ridiculously strict diet for four months (no dairy, no grains except oats, no sugar, no processed, no alcohol, no red meat, no citrus, loads of green smoothies).

I finally quit as I'd had enough over Christmas. I lost a ton of weight and just felt rubbish the entire time.

It was soul destroying to know all that work didn't do much. But eating sugar again has made me flare worse - and I stopped UVB for a few weeks as I was exhausted. Back doing it now.

I've got to the point where my arms are pretty bad so I don't even want to do a social. I have a couple lined up but am thinking of cancelling. They know about the psoriasis.

I did try and upload a photo of the state of my legs a while back to let a guy know and Fab rejected the photo. I suspect they thought is done some form of kinky self mutilation or something?

Just arrrrrggggghhhhhh!

Thanks for listening guys.

I don't have psoriasis but I have had bad eczema in the past and I have several other skin problems that flare up badly one or two weeks every month unless I am careful. Mine are more easily managed though. A low carb diet clears mine up almost completely. It's just a shame I've not managed to stick to a low carb diet long term so far!

Saying you have my sympathies sounds patronising but I understand what you're going through. I can't offer any suggestions beyond persist with your doctor and dermatologist. I hope you find a resolution soon.

Don't worry about what other people think. I know it's difficult, but tell them in advance and if they have a problem with it, think that those aren't the sort of people you want to meet. They've saved you the trouble of having to meet someone with so little empathy and understanding.

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By *ink magnolia s yorksWoman
over a year ago

south yorkshire

Aromatherapy oils are the only thing that work on my excema, the lotions & potions seem to make it worse, maybe the added chemicals x I have delicate skin and I seem to claw myself at night, I often look like I was the loser in a scrap with a cat!

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By *ngel n tedCouple
over a year ago

maidstone

I've got it on my elbows and right knee, it seems to linked to my weight, the more i put on the worse it gets, when i lose some it dies down......not sure if its physically or mentally linked

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By (user no longer on site)
over a year ago

A family member suffered with it for a few years and went through stages of various treatment as to which worked best for them finding a sunbed of sorts treatment was the best option.

Whilst a long process they are fine now with top ups every so often.

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By (user no longer on site)
over a year ago

My wife has it. Used to be all over but then she developed psoriac arthritis and had to see a specialist.

He put her on a low dose of a cancer drug called methotrexate, just 2 small 10mg tablets 1 day a week and 90% of her psoriasis cleared up within a month and her joints are practically pain free and no more random inflammations.

She was getting joints that would swell up like a melon under the skin, looked like she had ripped a tendon or something!

Any psoriasis that is left is so mild and she has never been happier. She says it is worth a few hours feeling sick on Sunday evening after she takes the pills.

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By (user no longer on site)
over a year ago

"I've got it on my elbows and right knee, it seems to linked to my weight, the more i put on the worse it gets, when i lose some it dies down......not sure if its physically or mentally linked

"
Depression, anxiety and stress have a massive impact on psoriasis.

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By (user no longer on site) OP
over a year ago

Thankyou everyone. You are all lovely.

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By (user no longer on site)
over a year ago

I've also have it. Since the age of 16. I completely know how you all feel. It's under control at the moment TG. I always go on holiday through the winter months to keep it in check. Male C

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By (user no longer on site) OP
over a year ago

Right. After this thread I'm feeling determined! It's not gonna win.

I am going to quit sugary foods and alcohol again, do UV again, and drink five pints of water daily (I find this helps a bit) and... I'm going to try and use glycerine on my skin twice daily again.

I did it for a few days on holiday and did see a difference but it was hard work to do consistently.

But I'm going to stick to all of the above for ten days and if it has made a real difference I will stay with it.

Very excited about the glycerin as I did see results after only a few days last time.

More determined this time. And will use the promise of some meets to keep motivated!

Wish me luck. If it works I will report back.

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By *ee VianteWoman
over a year ago

Somewhere in North Norfolk

"Right. After this thread I'm feeling determined! It's not gonna win.

I am going to quit sugary foods and alcohol again, do UV again, and drink five pints of water daily (I find this helps a bit) and... I'm going to try and use glycerine on my skin twice daily again.

I did it for a few days on holiday and did see a difference but it was hard work to do consistently.

But I'm going to stick to all of the above for ten days and if it has made a real difference I will stay with it.

Very excited about the glycerin as I did see results after only a few days last time.

More determined this time. And will use the promise of some meets to keep motivated!

Wish me luck. If it works I will report back.

Be sure to take time to relax regularly too. Do some breathing exercises and visualise your skin healing.

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By (user no longer on site)
over a year ago

"Right. After this thread I'm feeling determined! It's not gonna win.

I am going to quit sugary foods and alcohol again, do UV again, and drink five pints of water daily (I find this helps a bit) and... I'm going to try and use glycerine on my skin twice daily again.

I did it for a few days on holiday and did see a difference but it was hard work to do consistently.

But I'm going to stick to all of the above for ten days and if it has made a real difference I will stay with it.

Very excited about the glycerin as I did see results after only a few days last time.

More determined this time. And will use the promise of some meets to keep motivated!

Wish me luck. If it works I will report back.

UV works. A friend had it but I think it's short courses right?

Have you had a consultation with a skin expert (dermatology?)

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By (user no longer on site)
over a year ago

Also the psoriasis association.

Google it. They might be able to help?

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By (user no longer on site)
over a year ago

I don't but my sister and mum do. So bad that oral chemo was needed after numerous years trying other treatments

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By *inkxRabbitWoman
over a year ago

Mostly in GU24

Methotrexate is widely used for rheumatoid arthritis. Remember to get your eyes checked before going on it though.

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By *effrey45Man
over a year ago

Lytham

Having spent many months in Iceland the locals with any skin complaints were prescribed a course of treatment in the blue lagoon, some of the tourists I was looking after also went and it worked for them. You can buy the mineral salts online, it worked wonders for some.

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By (user no longer on site)
over a year ago

I used to use a product called Skin Cap. It has a steroid in it so beware, but after a few weeks it got rid of the dry skin. Just a burst every month or so keeps it at bay. It is now called, PSOR-VAL and I buy a can from the US every year. Like most things, there has been good and bad press, but a cousin of mine tried it years ago and it worked. So I had a go.

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By *ipsTeaserCouple
over a year ago

here and there, thereabouts

Dandelion tea is apparently very good for skin health.

Almonds, almond milk and Brazil nuts..

Up your intake of vitamin c, and eat plenty of spinach,carrot and sweet potato (antioxidants)

Drink plenty of water and consider Pilates or yoga as stress can make it flair.

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By *reelove1969Couple
over a year ago

bristol

having a bath/shower and whilst still wet coating your affected areas in baby oil helps for some

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By *ngel_38Woman
over a year ago

Staffs

Go abroad lie in the sun as much as U can with plenty of sun cream that will sort the Psoriasis. Or ultra violet light

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By (user no longer on site)
over a year ago

Try an oat bath for your psoriasis

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By (user no longer on site)
over a year ago

Friend of mine had it on her legs, body and arms. had to cover up even in summer. she had hospital treatment of uv treatments and cream to put on it. hers was quite bad too. hope you get something sorted soon

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By (user no longer on site)
over a year ago

Yeah and it's embarrassing.

I get it in my hair when I'm stressed.

Gets to me at times

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By *hechairman18Man
over a year ago

Salford Quays , Manchester

I have it from time to time.

Nothing actually clears it, but good old Nivea, and then Olive oil on top, seems to keep mine under control.

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By *reelove1969Couple
over a year ago

bristol

olive oil and sugar is a good body rub if done vigorously ...try it on your hands for 3 minutes ...they feel like velvet afterwards

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By *hooter McGavinMan
over a year ago

Exeter

One of the worst parts of having this condition is the itch, you can't help but want to scratch and when you do quite often you scratch so hard you start to bleed, well I do when I scratch and then you have people telling you not to do it, sometimes you just have to as it's the only thing that helps

I have had this condition well over 10 years and now I'm not bothered really by people seeing it and asking things, I was quite ofter asked if I had been burned in a fire and would have to explain it was a skin condition and then go through the treatments I had tried or were trying, for a very long time I would hide it or apply so much cream or ointment my clothes would become stained, I even would cover my hands in lotions and wear cotton gloves to bed, but somehow every morning they would of worked their way off, it can and is very demoralising to ones self esteem, mine did seem to calm down last year but last few months my legs have flared up again, you can worry about it or you can let it be a part of you and try to live your life, I am trying to live mine with it, the lady asking the question she and I have talked privately about this and as far as meets go, guys and girls if you were to meet her and had a problem with her and the condition she and some of the posters on here suffer from then it's your problem, I would definitely not have a problem, she is a right fox ??

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By *hooter McGavinMan
over a year ago

Exeter

"Try Dream Cream from Lush - oat milk is really soothing!"

Dream cream is good, forgot the name of that, pardon the pun but it does also smell lush, more of a soothing thing though,

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By (user no longer on site) OP
over a year ago

"One of the worst parts of having this condition is the itch, you can't help but want to scratch and when you do quite often you scratch so hard you start to bleed, well I do when I scratch and then you have people telling you not to do it, sometimes you just have to as it's the only thing that helps

Aww thanks for saying that.

That's made my day., such a nice thing to say, you made me cry! (In a good way.)

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By *ercymouseCouple
over a year ago

cheltenham

i have it very bad at the moment.(in a way i look and feel like a lepar)ive been to worried to go to the club or have any meets at home.as a person im still the same,wicked wild and daring. .a bbw who adores lots of fun etc.. but society can be cruel, and people often think its catching.once treated them im in need to make up for lost time.i have the light treatment. .it clears it completely and lasts for almost 2 years..no more flaky scabs and skin.

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