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"I opt out if most info sharing except for my Tesco club card that I use when I buy diesel in shell or esso....never can remember which. I have opted in to this though enough paper records have been left in rubbish bins, on trains or viewed by nosey receptionists for me to realise that my medical records have never really been secure." I believe 'interested parties' would receive the information if requested. This could be anything from insurers (car/home/life) to potentially employers? The national dissemination or personal records is a little different to information being misplaced? | |||
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"*of personal records.." post a link please as its a bit vague as to what its about. | |||
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"How do you opt out? I havent really heard much about this." the ONLY way to do it is with an appointment with your GP. You cannot either do it over the phone, email or in writing. I just got a letter back from the Dr's this morning, your practice has to literally put a code next to your name to stop and sharing. I think it's beginning next year (or later this - I cant remember) | |||
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"How do you opt out? I havent really heard much about this." On my doctors it says we have to fill in a form to opt out  | |||
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"How do you opt out? I havent really heard much about this. On my doctors it says we have to fill in a form to opt out "strange as the leaflet I got through said you could phone up on and find out what it was about.. when you did, you get told to make an appointment | |||
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"I opt out if most info sharing except for my Tesco club card that I use when I buy diesel in shell or esso....never can remember which. I have opted in to this though enough paper records have been left in rubbish bins, on trains or viewed by nosey receptionists for me to realise that my medical records have never really been secure. I believe 'interested parties' would receive the information if requested. This could be anything from insurers (car/home/life) to potentially employers? The national dissemination or personal records is a little different to information being misplaced? " Yes you're right and it does bear closer consideration. Would the information just be given on request? | |||
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"*of personal records.. post a link please as its a bit vague as to what its about." http://www.nhs.uk/NHSEngland/thenhs/records/healthrecords/Pages/care-data.aspx | |||
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"How do you opt out? I havent really heard much about this. On my doctors it says we have to fill in a form to opt out
strange as the leaflet I got through said you could phone up on and find out what it was about.. when you did, you get told to make an appointment"Then it just shows your doctors isn't the same one we use I can only go on what I have just read on our own doctors website. | |||
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"I opt out if most info sharing except for my Tesco club card that I use when I buy diesel in shell or esso....never can remember which. I have opted in to this though enough paper records have been left in rubbish bins, on trains or viewed by nosey receptionists for me to realise that my medical records have never really been secure. I believe 'interested parties' would receive the information if requested. This could be anything from insurers (car/home/life) to potentially employers? The national dissemination or personal records is a little different to information being misplaced? Yes you're right and it does bear closer consideration. Would the information just be given on request?" couldnt say, but I have a good few illnesses meaning I have been off work for a good few periods of time. If employers want to request it they can ask me (is my opinion) though I wouldnt want them thinking I'm some kind of bum. Same with banks potentially... they could ask and if it looks like you're always on a sick note - you never know, it could impact any applications for lending? Though I dont know if I am looking too deeply into it. Expect not, somehow though lolo  | |||
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"How do you opt out? I havent really heard much about this. On my doctors it says we have to fill in a form to opt out
strange as the leaflet I got through said you could phone up on and find out what it was about.. when you did, you get told to make an appointment
Then it just shows your doctors isn't the same one we use
I can only go on what I have just read on our own doctors website. "have you opted out? (have you got a letter about a code next to your name)? I found it really strange reading that "I now have a code against my name" lol | |||
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"How do you opt out? I havent really heard much about this. On my doctors it says we have to fill in a form to opt out
strange as the leaflet I got through said you could phone up on and find out what it was about.. when you did, you get told to make an appointment
Then it just shows your doctors isn't the same one we use
I can only go on what I have just read on our own doctors website.
have you opted out?
(have you got a letter about a code next to your name)? I found it really strange reading that "I now have a code against my name" lol "Not yet no, if I am honest the first I head of it was your thread, I went and looked it up , checked what I had to do to opt out and answered on here....so Thanks for that, I might have missed it if you hadn't started a thread on it  | |||
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"It is like they don't want it highlighted as we havn't even had a scrappy leaflet "
(seems a very expensive way to have the nation opt out if they chose to, too) | |||
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"How do you all feel about the information sharing going on of your medical records? Just opted out myself - and, got confirmation "Im opting out they say its the next thing the ppi guys will ring you about when ppi is dead.  | |||
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"If you have to go to your GPs to opt out I think thats bloody outrageous. They spend a bomb trying to keep people away from the GPs surgery and then they waste their time making people go for this sort of thing... You can do pretty much everything else online these days, so why on earth cant you do this? Oooo can I say it?? Rant Over. "Did you enjoy that? Paxo is bringing up the point that our data is not safe given the NSA Data Center issues we know about already. Clare Gerada didn't come across well in that interview. We printed out one of the pro-formas available and just handed it in to reception. | |||
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"How do you all feel about the information sharing going on of your medical records? Just opted out myself - and, got confirmation "Not heard/ read anything about it til I saw this thread so will be doing some research. Thanks. | |||
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"agree that Clare Gerada came across poorly, not up to speed on her brief and whilst she reckons the info wont be 'sold' to third paties insurance companies etc private medical providers may request it if they have a reason and meet the criteria..? sounds like a crock.. ty OP, will be opting out also.." np, glad the thread didnt get lost in the wash
was thinking about bumping it a few times as people to glance down listings | |||
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" I have been well aware of this for a long time now. A written form should be available for everyone to opt out, no appointment necessary. Takes 2 mins to complete. I would strongly advise everyone to check some two to three weeks later that your choice has been implemented correctly. I categorically opted out yet the surgery overrode this and put it on my records that i'd opted to stay in. " lol that's an appointment with the GP just to shout at em lol | |||
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"You do not have to attend an appointment at the surgery to opt out of Care.Data, it can be done in writing or by completing a form which can be downloaded. There are numerous variations of the form but whichever one you use, or if you wish to put it in writing, it should include two codes 9Nu0 and 9Nu4 and you must include both if you wish to opt out completely. The first will opt you out of your GP Practice sharing info from your medical records with the HSCIC and the second will stop information from hopitals and other care providers being released by the Health & Social Care Information Centre (HSCIC) for care.data. The care.data opt out should not be confused with opting out of the Summary Care Record altho you can also opt out of this. The SCR simply means that other health professionals can access a list of ONLY your medication/allergies/adverse reaction to drugs should the need arise, for example if you are admitted to hospital in an emergency or visiting another GP in England. You can also opt to include a list of chronic illnesses such as diabetes, asthma, kidney disease etc on this for information to aid the clinicians treating you who do NOT have access to your full medical records. Some GPs are so against this new system that they are opting out all of their patients and the onus is then on the patients to individually opt in. According to tonight's news reports the launch of this system has been put back six months from April 2014 when it was due to start. "
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"Is it just me who is surprised swingers don't want to share? "It not just swingers... I wouldn't mind if they guaranteed anonymity and weren't going to selling the info to commercial companies. That's just wrong. 40% of doctors are opting out so far. | |||
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"Is it just me who is surprised swingers don't want to share?
It not just swingers... I wouldn't mind if they guaranteed anonymity and weren't going to selling the info to commercial companies. That's just wrong.
40% of doctors are opting out so far."Hey im all for opting out i just smiled a little the fact swingers are dead against sharing there is a pinch of irony about it (me included) hat made me grin. | |||
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"Is it just me who is surprised swingers don't want to share?
It not just swingers... I wouldn't mind if they guaranteed anonymity and weren't going to selling the info to commercial companies. That's just wrong.
40% of doctors are opting out so far.
Hey im all for opting out i just smiled a little the fact swingers are dead against sharing there is a pinch of irony about it (me included) hat made me grin. "Some things are better shared, others not so much
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"Is it just me who is surprised swingers don't want to share?
It not just swingers... I wouldn't mind if they guaranteed anonymity and weren't going to selling the info to commercial companies. That's just wrong.
40% of doctors are opting out so far."I already struggle to get travel insurance due to a condition I have to inform them of, in fact there are large parts of the world I can't even consider travelling to at the moment. I currently don't have to inform most other insurers about these issues but can envision a day when I start getting refused car or home insurance based on my health records. I'm opting out. | |||
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"Even more erosion of our privacy. Thank you Op for highlighting it. " pleasure. I didnt take it seriously on first sight... just when questioning my Dr, they had little clue about it so made me more determined to not be included | |||
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"If someone is interested in the kidney infection I had when I was twelve and they are willing to pay for it then more fool them. But if I did have more info on my medical records I would be opting out. " The information being used by the HSCIC does not include names but does include date of birth/postcode/NHS No which would make each patient identifiable even tho the info is to be used "anonymously" in HSCIC studies. It only becomes a bigger issue if this information is later released to other parties. With regard to GPs overriding a patient's choice to opt out - this should never be the case and if it were me I would take issue with the Practice Manager insisting on a personal appointment to discuss the matter further with written confirmation of the outcome. In the majority of surgeries ALL patient related incoming correspondence, including opt out forms, is scanned into a patient's electronic record so there should be no doubt that a patient has opted out either by form or in writing. In the case of the opt out forms/letters scanning should be in addition to entering the two relevant codes on your electronic record. There is no reason to suppose that medical conditions should impact on car/home insurance but its a sad fact that they can adversely affect travel insurance and applications for life insurance and mortgages. With regard to travel insurance it is advisable to declare any pre-existing conditions even at the risk of being refused, if you are issued insurance and it later transpires that you failed to declare relevant information it will negate your cover. Medical treatment abroad can very quickly amount to £1000s , for all that it has it's faults we are still very lucky to have the NHS!! | |||
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"wow, seems like you know a fair bit on it. Interesting how it could potentially affect some insurances or mortgages. I do think though that anyone willing to pay a price for this kind of information, will be able to get hold of it. I just cant understand why it hasnt got more press attention " Like the majority of posters I actually knew very little about care.data until a couple of weeks ago - and I work in the NHS!! I asked questions because we had started receiving queries from patients and had not been informed ourselves. With regard to insurance, that is a completely separate issue to care.data, it has long been the practise that medical information is sought when people apply for health/travel/life insurance and mortgages. GPs will not release any information to third parties under these circumstances without signed consent from the patient or someone who has power of attorney if they are unable to sign themselves. If they do they are in breach of confidentiality rules and answerable to patients. The purpose of the new care.data initiative is to enable the NHS to allocate funding appropriately to areas where it is most needed and of greatest benefit, it is only if this information is made available to third parties that issues regarding confidentiality arise. I do not claim to be an expert but do have some insight based on my job, I hope this information has been of help. | |||
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"opting out imo medical history should be a private thing anyway, there are a lot of judgemental people around that will make assumptions over certain conditions. For example I have absent eplilepsy and was told i wouldnt be a good mother because of it! total hog wash of a statement" It is a sad fact that people are judgemental, and not only about medical conditions, it is obvious from daily posts on the forums that people can be quick to judge others. Having a medical condition should not dictate anybody's ability to be a good parent, there are plenty of fit and healthy people who should not be allowed to be parents given the way they treat their children, the media is rife with examples and Jeremy Kyle makes a living out of them! | |||
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"Neglected to say in my previous posts - I have opted out and have given family and friends the necessary information so that they can make an informed choice whether to do so too!!" | |||
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