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help re clefts

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By (user no longer on site) OP   
over a year ago

Our 16 day old grandson was born with a small cleft. Doesnt affect his lip or pallette. Wasnt picked up on scans.

Daughter got appt today for end of october to see specialist with him. In letter it says it is linked to heart problems. She is beside herself and has looked on the net and scared herself stupid.

Does anyone have experience of or with cleft or can give me a good site or group that may help with info please?

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By (user no longer on site)
over a year ago

My mum had a cleft lip ? I remember her being worried sick when I was pregnant with my first. When he was born she saw him a couple mins after and ran her hand down his face saying perfect. 2 days later we found out he had a serious heart defect.

No help I know but off to google.

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By (user no longer on site)
over a year ago

What does it affect if not lip or pallet?

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By (user no longer on site)
over a year ago


"What does it affect if not lip or pallet? "

Oops palette

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By (user no longer on site) OP   
over a year ago


"What does it affect if not lip or pallet? "

Under his lip, top gum if that makes sense.

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By *iamondsmiles.Woman
over a year ago

little house on the praire

My son was born with a submucous cleft pallette. It wasn't picked up until he was about 2. It never interfered with him aoartbfrom speech. He went to speech therapy for a few years, now he's an adult just talks like he's mumbling sometimes. But apparently the pallette fuses together by the time they are around seven

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By *yrdwomanWoman
over a year ago

Putting the 'cum' in Eboracum

Never never never look online for medical stuff! You end up thinking you've got Beri Beri and a club foot. Of course she is worried but the specialist will give her all options and know more about it than a generic search engine.

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By (user no longer on site) OP   
over a year ago

The letter says he has to have an ECHO also see the surgeon and anaesthetist

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By (user no longer on site)
over a year ago


"Never never never look online for medical stuff! You end up thinking you've got Beri Beri and a club foot. Of course she is worried but the specialist will give her all options and know more about it than a generic search engine."

That's so very true , I just like to see what they say.

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By (user no longer on site) OP   
over a year ago


"Never never never look online for medical stuff! You end up thinking you've got Beri Beri and a club foot. Of course she is worried but the specialist will give her all options and know more about it than a generic search engine."

Thats what ive told her as im sn health care professional but wondered if there is a specific cleft support

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By *yrdwomanWoman
over a year ago

Putting the 'cum' in Eboracum


"Never never never look online for medical stuff! You end up thinking you've got Beri Beri and a club foot. Of course she is worried but the specialist will give her all options and know more about it than a generic search engine.

Thats what ive told her as im sn health care professional but wondered if there is a specific cleft support "

I've just googled cleft lip support and there's a few websites there.

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By (user no longer on site)
over a year ago


"Never never never look online for medical stuff! You end up thinking you've got Beri Beri and a club foot. Of course she is worried but the specialist will give her all options and know more about it than a generic search engine.

Thats what ive told her as im sn health care professional but wondered if there is a specific cleft support

I've just googled cleft lip support and there's a few websites there."

I found them as well

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By (user no longer on site) OP   
over a year ago

Thank you xx wil have a look xx

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By *riendly foeWoman
over a year ago

In a crisp poke on the A814

It has been connected to heart problems BUT it is a very small %.....

They are just covering everything, im sure she has nothing to worry about...

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