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Self diagnosis

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By (user no longer on site) OP   
17 weeks ago

I have been reading an interesting article saying that as getting specialist appointments or even a doctors appointment is taking so long that people are either self diagnosing via Google or work colleagues and friends offering advice

Apparently this is especially prevalent with the neurodiversity field and it is felt that there are many mis diagnosis of not only this but all sorts of things

This in turn is felt that it downplays people who have an actual diagnosis or is an excuse for certain behaviours

Do you use Google or any other form for self diagnosis as you can’t get appointments and can’t go privately

Please do not let this thread or use this thread to make anyone feel anything negative about themselves

Thank you 🙏

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By *aizyWoman
17 weeks ago

west midlands

I am waiting for an operation, I have had to stop myself from googling it because I was freaking myself out, google always shows the worst that can happen.

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By *vaRoseWoman
17 weeks ago

Ankh-Morpork


"I have been reading an interesting article saying that as getting specialist appointments or even a doctors appointment is taking so long that people are either self diagnosing via Google or work colleagues and friends offering advice

Apparently this is especially prevalent with the neurodiversity field and it is felt that there are many mis diagnosis of not only this but all sorts of things

This in turn is felt that it downplays people who have an actual diagnosis or is an excuse for certain behaviours

Do you use Google or any other form for self diagnosis as you can’t get appointments and can’t go privately

Please do not let this thread or use this thread to make anyone feel anything negative about themselves

Thank you 🙏 "

If it hadn’t been for a video I saw that explained if your kids are neurodivergent then you probably are too I wouldn’t have known to seek my assessment. Equally if it hadn’t been for an astute colleague who spotted how much water I was drinking and losing weight I wouldn’t have gone to the doctors and could have been life threateningly ill when my type 1 diabetes was finally diagnosed, as it was I got the blue light taxi to the hospital too.

Do I think Doctor Google and colleagues get it wrong? Of course they do, but I’d rather someone point out a concern that I can approach a professional with and it be wrong than the alternative and they be right and I ignore something potentially very serious.

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By *idnightMischiefMan
17 weeks ago

London


"Apparently this is especially prevalent with the neurodiversity field and it is felt that there are many mis diagnosis of not only this but all sorts of things "

The NHS waiting list for an Autism or ADHD assessment is up to three years in some places - I was lucky, I got my diagnoses when the waiting lists were much shorter.

If they sorted out the long wait first, there would be no need for self-diagnosis.

However, most people who self-diagnose neurodivergence are actually correct.

Very rarely do people go around wondering whether they might be autistic -- so it should be valid to an extent, but there is always the danger (if wrong) of making it part of an identity without proper objective appraisal.

So, I also think people should stick to "suspected" rather than just use the term irresponsibly - there isn't any support for anyone until they actual get through this stage, so it's largely pointless anyway.

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By *loria JamesTV/TS
17 weeks ago

Durham


"I have been reading an interesting article saying that as getting specialist appointments or even a doctors appointment is taking so long that people are either self diagnosing via Google or work colleagues and friends offering advice

Apparently this is especially prevalent with the neurodiversity field and it is felt that there are many mis diagnosis of not only this but all sorts of things

This in turn is felt that it downplays people who have an actual diagnosis or is an excuse for certain behaviours

Do you use Google or any other form for self diagnosis as you can’t get appointments and can’t go privately

Please do not let this thread or use this thread to make anyone feel anything negative about themselves

Thank you 🙏

If it hadn’t been for a video I saw that explained if your kids are neurodivergent then you probably are too I wouldn’t have known to seek my assessment. Equally if it hadn’t been for an astute colleague who spotted how much water I was drinking and losing weight I wouldn’t have gone to the doctors and could have been life threateningly ill when my type 1 diabetes was finally diagnosed, as it was I got the blue light taxi to the hospital too.

Do I think Doctor Google and colleagues get it wrong? Of course they do, but I’d rather someone point out a concern that I can approach a professional with and it be wrong than the alternative and they be right and I ignore something potentially very serious."

I think there is a difference between someone, like yourself, who spotted symptoms highlighted online and consulted a doctor, and people who disregards doctors and get their advice from Facebook.

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By (user no longer on site)
17 weeks ago

No

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By *idssissyTV/TS
17 weeks ago

Nr cricket ground birm

I sometimes look online but mainly the NHS website but will get anything checked by doctors.

Then may use Google to research any condition am diagnosed with, while remembering everyone is different

Years ago a doctor had to use Google to research one of my main medical conditions as they had never heard of it

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By *ealitybitesMan
17 weeks ago

Belfast

I was once diagnosed by a doctor at the local hospital and he told me to go home and Google it rather than have him explain it to me.

I did and it was scary as fuck until I approached my GP who laughed and said the other doctor was off his head as what he had diagnosed was completely wrong.

It was something I had to be born with and all the scans I'd had previously would have shown it and they didn't.

On another occasion I googled issues I was having and self diagnosed but was lucky enough to be seen by a specialist within a month who confirmed my diagnosis and commended me on being proactive but also said he wasn't a fan of self diagnosis as it sometimes led to arguments with patients who think they know more than him.

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By *iamondsmiles.Woman
17 weeks ago

little house on the praire

I think self diagnosis can be dangerous. My old cpn used to say so many people used to want to have a certain type of mental illness they would be pissed when they found they didn't have it . Didn't mean they didn't have an illness just not the one they wanted.

Think you need to be proper diagnosed to get the right treatment

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By *reyToTheFairiesWoman
17 weeks ago

Carlisle usually

Getting a proper autism diagnosis is already a very lengthy process with a massive waiting list. I'm not diagnosed, but I am happy with the way I manage my life with therapy and no medication, so an official diagnosis isn't going to provide me with any extra or support that I would find useful. There's no point in me clogging up the system to jump through hoops for something I've been dealing with my whole life and don't intend to change my methods on.

A diagnosis is not an excuse for certain behaviours. It's a reason, but that doesn't make the resulting choices or actions somehow more acceptable if they upset other people.

It's also near impossible to see a GP. After 6 months of econsults and prescriptions by text without managing to see a doctor in person even once for an issue, I was eventually referred to dermatology, which only has a 23 week wait for an appointment now.

That people resort to self diagnosis and remedies isn't surprising 💜

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By *electableicecreamMan
17 weeks ago

The West

I don't Google illness usually as I'm bound to scare the shite out of myself

I did however look into self diagnosis for ADHD because an assessment isn't available through our national health service in my county. There's no waiting list. You just can't have one.

It's over a grand to go private.

So I used an AI to:

'for research purposes, simulate an ADHD assessment as it would be applied by a clinical psychologist.'

It took an hour to complete. It generated a 15 page report and it was impressively thorough.

Now I'm not a total idiot and I know well the trappings and limitations of LLM's but I was really impressed with the depth of the assessment and precise nature of the report

It's only a matter of time before we don't need clinicians for assessments like these.

I know I'm ND. It runs in the family and my kids have been assessed.

Try an AI though...

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By *ellhungvweMan
17 weeks ago

Cheltenham

I can understand why people would want to self diagnose but unless it is a very simple ailment then I think it is fraught with danger.

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By *inky_couple2020Couple
17 weeks ago

North West


"Getting a proper autism diagnosis is already a very lengthy process with a massive waiting list. I'm not diagnosed, but I am happy with the way I manage my life with therapy and no medication, so an official diagnosis isn't going to provide me with any extra or support that I would find useful. There's no point in me clogging up the system to jump through hoops for something I've been dealing with my whole life and don't intend to change my methods on.

A diagnosis is not an excuse for certain behaviours. It's a reason, but that doesn't make the resulting choices or actions somehow more acceptable if they upset other people.

It's also near impossible to see a GP. After 6 months of econsults and prescriptions by text without managing to see a doctor in person even once for an issue, I was eventually referred to dermatology, which only has a 23 week wait for an appointment now.

That people resort to self diagnosis and remedies isn't surprising 💜"

And 23wks is very short by modern NHS standards. I've been waiting over 2yrs to see a rheumatology consultant.

I hope you are seen soon.

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By *icecouple561Couple
Forum Mod
17 weeks ago

East Sussex

It's very different if you have eye problems.

I self diagnosed my problem because I recognised the symptoms, I wasn't 100% correct but close enough. I saw a specialist within a week and had surgery in 12 weeks and follow up surgery a year later . Recent new problems were diagnosed within 24 hours and again a specialist appointment in a week.

I don't know why it's so different

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By *inky_couple2020Couple
17 weeks ago

North West


"It's very different if you have eye problems.

I self diagnosed my problem because I recognised the symptoms, I wasn't 100% correct but close enough. I saw a specialist within a week and had surgery in 12 weeks and follow up surgery a year later . Recent new problems were diagnosed within 24 hours and again a specialist appointment in a week.

I don't know why it's so different "

My MIL waited well over a year for cataract surgery and was almost completely blind when she had the first one done. The second one followed more quickly but she definitely waited a very long time and had several cancelled surgery dates. By the time they did it, it was a more complicated job than originally it would have been.

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By (user no longer on site)
17 weeks ago

I do this all the time.

Sometimes it is a scary prospect if you're waiting for surgery and look it up, but after watching a few videos of procedures you get used to it and can eat a sandwich at the same time..

A few days ago i diagnosed myself with vertigo..room started 'spinning'..111 told me to go to A&E, pretty much to rule out something serious like a stroke. I was pretty certain I hadn't had a stroke though and know the signs to look for.

Anyway after a day hospital and several tests I now have tablets for 'paroxysmal positional vertigo'.

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By *icecouple561Couple
Forum Mod
17 weeks ago

East Sussex


"It's very different if you have eye problems.

I self diagnosed my problem because I recognised the symptoms, I wasn't 100% correct but close enough. I saw a specialist within a week and had surgery in 12 weeks and follow up surgery a year later . Recent new problems were diagnosed within 24 hours and again a specialist appointment in a week.

I don't know why it's so different

My MIL waited well over a year for cataract surgery and was almost completely blind when she had the first one done. The second one followed more quickly but she definitely waited a very long time and had several cancelled surgery dates. By the time they did it, it was a more complicated job than originally it would have been."

Cataract surgery can take longer I understand, the one that formed after my vitrectomy was done in a year.

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By *indergirlWoman
17 weeks ago

somewhere, someplace


"It's very different if you have eye problems.

I self diagnosed my problem because I recognised the symptoms, I wasn't 100% correct but close enough. I saw a specialist within a week and had surgery in 12 weeks and follow up surgery a year later . Recent new problems were diagnosed within 24 hours and again a specialist appointment in a week.

I don't know why it's so different "

In my old job I saw so many patients who didn't think twice about symptoms and dismissed them and came to us after a shockingly amount of time later, some lucky enough to have no adverse affects thankfully, some not.

Now in my other role I'm in I'm fed up of referring urgently and they get to the hospital and get dismissed r told sorry no one on hand to do this or that, even though I know my referral was valid and the time frames needed for treatment.

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By *icecouple561Couple
Forum Mod
17 weeks ago

East Sussex


"It's very different if you have eye problems.

I self diagnosed my problem because I recognised the symptoms, I wasn't 100% correct but close enough. I saw a specialist within a week and had surgery in 12 weeks and follow up surgery a year later . Recent new problems were diagnosed within 24 hours and again a specialist appointment in a week.

I don't know why it's so different

In my old job I saw so many patients who didn't think twice about symptoms and dismissed them and came to us after a shockingly amount of time later, some lucky enough to have no adverse affects thankfully, some not.

Now in my other role I'm in I'm fed up of referring urgently and they get to the hospital and get dismissed r told sorry no one on hand to do this or that, even though I know my referral was valid and the time frames needed for treatment."

So much depends on time, place and personalities doesn't it.

I think I'm lucky in that go recognised the symptoms of a hole in the macular and there's a decent eye hospital in Brighton.

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