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"The only person I know dose OK out of being clased as disabled. He gets PIP and has just changed his car as he had to much building up in the bank. He was diagnosed with prostate cancer but is now in romition. But is still listed as disabled and quite alot of state help. " I know too many of these but I didn’t want to turn the thread. But its fucking annoying when people I know who’ve never worked , fuck all wring with them, driving round in brand new cars , stinking of vveed , courtesy of the tax payer | |||
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"The only person I know dose OK out of being clased as disabled. He gets PIP and has just changed his car as he had to much building up in the bank. He was diagnosed with prostate cancer but is now in romition. But is still listed as disabled and quite alot of state help. I know too many of these but I didn’t want to turn the thread. But its fucking annoying when people I know who’ve never worked , fuck all wring with them, driving round in brand new cars , stinking of vveed , courtesy of the tax payer " We don't know a single person like that. All of my disabled friends are very much (and generally visibility evidently) disabled. All struggle financially massively. All live with constant micro (and macro) "aggressions" that stop them accessing the world in the same way as someone able bodied and several have experienced overt discrimination and disadvantage. No-one is swimming in money or swanning round enjoying the life of Riley. | |||
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"To be honest I try not to think about it. My biggest concern at the moment (due to my age and my youngest being 12) is what if something happens to me, who is going to look after him if something happens to me. Because I cannot see him ever living independently, and I wouldn’t want his brother to put his life on hold to look after him. Of course there is his dad, but his dad is older than me. So would he have to go into special accommodation. How does that work? How much is it? Would he be vulnerable to being ripped off and taken advantage of? I see such horrible things in my job as a social care provider, that it really worries me. So financial concerns yes, but also other concerns." I hear you  ❤️. This is what keeps me awake at night | |||
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"To be honest I try not to think about it. My biggest concern at the moment (due to my age and my youngest being 12) is what if something happens to me, who is going to look after him if something happens to me. Because I cannot see him ever living independently, and I wouldn’t want his brother to put his life on hold to look after him. Of course there is his dad, but his dad is older than me. So would he have to go into special accommodation. How does that work? How much is it? Would he be vulnerable to being ripped off and taken advantage of? I see such horrible things in my job as a social care provider, that it really worries me. So financial concerns yes, but also other concerns." ❤️ | |||
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"Two posts past the OP, and the sentiment of the post is ignored and we start on the "my mate got rich off pretending to be disabled." A new world record? I wonder why society sees disabled people the way that it does? Answers on the back of a postcard!" I don’t think it does. It sees fakes because they are more visible and because populist politics and MSM plays on dividing people. I think disabled people are sadly , a bit invisible ? We don’t hear politicians campaigning much, they don’t protest , they dont fill up the busses or metros , gyms , offices or swingers clubs often enough and tell us thier problems…. | |||
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"Two posts past the OP, and the sentiment of the post is ignored and we start on the "my mate got rich off pretending to be disabled." A new world record? I wonder why society sees disabled people the way that it does? Answers on the back of a postcard! I don’t think it does. It sees fakes because they are more visible and because populist politics and MSM plays on dividing people. I think disabled people are sadly , a bit invisible ? We don’t hear politicians campaigning much, they don’t protest , they dont fill up the busses or metros , gyms , offices or swingers clubs often enough and tell us thier problems…." Well. When a max of 1 wheelchair per bus IF the driver deigns to get out and deploy the ramp and the pushchair owners are willing to move. When most metro/underground systems are totally inaccessible. When most gyms are totally inaccessible and when they ARE physically suitable for entry, the disabled person always needs to pay for PT to help move and set up equipment. When offices, swingers clubs and myriad other businesses are not just inaccessible but actively unwilling to consider ways to become more accessible. Why do you think society is the way that it is? | |||
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"... with disabilities. Inspired by the misguided belief from another thread that acquiring the label of disability somehow improves one's financial standing, I wonder how many people have really thought about the cost of living with a disability? As a starter for 10, here is a juicy little statistic: "a homecare package of an hour’s help a day can cost £10,000 a year." Remember, most people pay either in full or a contribution towards their care. My 1hr a day of personal care costs £34 an hour. I have it 5 days a week, so I can get ready for work and to do the school run. If I have this care support for 52 weeks a year, it's costing me £8,840 a year. If I were eligible for the highest rate of both elements of PIP, it would just about cover this cost. But what about the costs of my mobility equipment that enable me to work and go out? How do I pay for those? Because they're not free. How will I pay to convert my bathroom into an accessible bathroom that I could use safely? Because we don't qualify for a Disabled Facilities Grant. Has anyone thought about the costs of being disabled? How would you cope if you or a loved one acquired a disability or you had a child born with a disability?" Same with eye care, dentistry, old age care etc. those that pay nothing in seem to get more out than those that do pay in. | |||
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"I am temporarily disabled. Can’t walk and need a wheelchair to move around. I spend 85-90% of my time in bed. This has opened my eyes BIG TIME at how un-inclusive and unaccessible the world is. All the forethought and planning that has to be made for the simplest of tasks is simply exhausting. Equipment is expensive- very. I am at least £1,000 down on the purchase/hire of several mobility aids. Care is also prohibitely expensive for the people who don’t qualify for care. I really, really feel for every disabled person. Also to add- I’ve been in this country 21 years and I have never, ever come across any people cheating the disability benefit system. This nonsense comes from the same people who go on about the “bloody foreigners come to take our jobs” … Un cafecito ☕️ y un abrazo, amiga KC! 🤗 " Vamos a tomar una copa cuando podamos  | |||
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"... with disabilities. Inspired by the misguided belief from another thread that acquiring the label of disability somehow improves one's financial standing, I wonder how many people have really thought about the cost of living with a disability? As a starter for 10, here is a juicy little statistic: "a homecare package of an hour’s help a day can cost £10,000 a year." Remember, most people pay either in full or a contribution towards their care. My 1hr a day of personal care costs £34 an hour. I have it 5 days a week, so I can get ready for work and to do the school run. If I have this care support for 52 weeks a year, it's costing me £8,840 a year. If I were eligible for the highest rate of both elements of PIP, it would just about cover this cost. But what about the costs of my mobility equipment that enable me to work and go out? How do I pay for those? Because they're not free. How will I pay to convert my bathroom into an accessible bathroom that I could use safely? Because we don't qualify for a Disabled Facilities Grant. Has anyone thought about the costs of being disabled? How would you cope if you or a loved one acquired a disability or you had a child born with a disability? Same with eye care, dentistry, old age care etc. those that pay nothing in seem to get more out than those that do pay in. " I'm sorry, what has this statement got to do with the OP? I haven't seen a dentist in over a year because the clinic we're with is upstairs, no lift, and I can no longer manage to force myself up them. There are no accessible NHS dentists round here anyway and certainly none taking new patients. Hospital clinics will only see you if you have serious problems. Have you tried getting a high street eye test in a wheelchair? Have you tried to use those eye pressure machines? No. I have and it's simply only designed for if you can sit in the chair they provide. They do not work for wheelchair users (I know other disabled people also exist). I don't get eye care or dentistry for free either! My Dad, who worked his whole life, doesn't get his elder dementia care for free either, he pays the majority of the cost despite having hardly any actual money. | |||
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"... with disabilities. Inspired by the misguided belief from another thread that acquiring the label of disability somehow improves one's financial standing, I wonder how many people have really thought about the cost of living with a disability? As a starter for 10, here is a juicy little statistic: "a homecare package of an hour’s help a day can cost £10,000 a year." Remember, most people pay either in full or a contribution towards their care. My 1hr a day of personal care costs £34 an hour. I have it 5 days a week, so I can get ready for work and to do the school run. If I have this care support for 52 weeks a year, it's costing me £8,840 a year. If I were eligible for the highest rate of both elements of PIP, it would just about cover this cost. But what about the costs of my mobility equipment that enable me to work and go out? How do I pay for those? Because they're not free. How will I pay to convert my bathroom into an accessible bathroom that I could use safely? Because we don't qualify for a Disabled Facilities Grant. Has anyone thought about the costs of being disabled? How would you cope if you or a loved one acquired a disability or you had a child born with a disability? Same with eye care, dentistry, old age care etc. those that pay nothing in seem to get more out than those that do pay in. I'm sorry, what has this statement got to do with the OP? I haven't seen a dentist in over a year because the clinic we're with is upstairs, no lift, and I can no longer manage to force myself up them. There are no accessible NHS dentists round here anyway and certainly none taking new patients. Hospital clinics will only see you if you have serious problems. Have you tried getting a high street eye test in a wheelchair? Have you tried to use those eye pressure machines? No. I have and it's simply only designed for if you can sit in the chair they provide. They do not work for wheelchair users (I know other disabled people also exist). I don't get eye care or dentistry for free either! My Dad, who worked his whole life, doesn't get his elder dementia care for free either, he pays the majority of the cost despite having hardly any actual money. " Exactly my point. | |||
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"... with disabilities. Inspired by the misguided belief from another thread that acquiring the label of disability somehow improves one's financial standing, I wonder how many people have really thought about the cost of living with a disability? As a starter for 10, here is a juicy little statistic: "a homecare package of an hour’s help a day can cost £10,000 a year." Remember, most people pay either in full or a contribution towards their care. My 1hr a day of personal care costs £34 an hour. I have it 5 days a week, so I can get ready for work and to do the school run. If I have this care support for 52 weeks a year, it's costing me £8,840 a year. If I were eligible for the highest rate of both elements of PIP, it would just about cover this cost. But what about the costs of my mobility equipment that enable me to work and go out? How do I pay for those? Because they're not free. How will I pay to convert my bathroom into an accessible bathroom that I could use safely? Because we don't qualify for a Disabled Facilities Grant. Has anyone thought about the costs of being disabled? How would you cope if you or a loved one acquired a disability or you had a child born with a disability? Same with eye care, dentistry, old age care etc. those that pay nothing in seem to get more out than those that do pay in. I'm sorry, what has this statement got to do with the OP? I haven't seen a dentist in over a year because the clinic we're with is upstairs, no lift, and I can no longer manage to force myself up them. There are no accessible NHS dentists round here anyway and certainly none taking new patients. Hospital clinics will only see you if you have serious problems. Have you tried getting a high street eye test in a wheelchair? Have you tried to use those eye pressure machines? No. I have and it's simply only designed for if you can sit in the chair they provide. They do not work for wheelchair users (I know other disabled people also exist). I don't get eye care or dentistry for free either! My Dad, who worked his whole life, doesn't get his elder dementia care for free either, he pays the majority of the cost despite having hardly any actual money. Exactly my point." Did you read the bit about access? That's nothing to do with how things are paid for. I fail to understand how people have translated the OP from "have you thought about the cost of living when disabled" to "some people might try and cheat the system"? | |||
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"... with disabilities. Inspired by the misguided belief from another thread that acquiring the label of disability somehow improves one's financial standing, I wonder how many people have really thought about the cost of living with a disability? As a starter for 10, here is a juicy little statistic: "a homecare package of an hour’s help a day can cost £10,000 a year." Remember, most people pay either in full or a contribution towards their care. My 1hr a day of personal care costs £34 an hour. I have it 5 days a week, so I can get ready for work and to do the school run. If I have this care support for 52 weeks a year, it's costing me £8,840 a year. If I were eligible for the highest rate of both elements of PIP, it would just about cover this cost. But what about the costs of my mobility equipment that enable me to work and go out? How do I pay for those? Because they're not free. How will I pay to convert my bathroom into an accessible bathroom that I could use safely? Because we don't qualify for a Disabled Facilities Grant. Has anyone thought about the costs of being disabled? How would you cope if you or a loved one acquired a disability or you had a child born with a disability? Same with eye care, dentistry, old age care etc. those that pay nothing in seem to get more out than those that do pay in. I'm sorry, what has this statement got to do with the OP? I haven't seen a dentist in over a year because the clinic we're with is upstairs, no lift, and I can no longer manage to force myself up them. There are no accessible NHS dentists round here anyway and certainly none taking new patients. Hospital clinics will only see you if you have serious problems. Have you tried getting a high street eye test in a wheelchair? Have you tried to use those eye pressure machines? No. I have and it's simply only designed for if you can sit in the chair they provide. They do not work for wheelchair users (I know other disabled people also exist). I don't get eye care or dentistry for free either! My Dad, who worked his whole life, doesn't get his elder dementia care for free either, he pays the majority of the cost despite having hardly any actual money. Exactly my point. Did you read the bit about access? That's nothing to do with how things are paid for. I fail to understand how people have translated the OP from "have you thought about the cost of living when disabled" to "some people might try and cheat the system"?" You started the thread about costs, not access. The fact that 8.6 billion pounds were lost through the benefits system in 23/24 suggests it might be part of the problem. That’s 8.6 billion that could go to people who actually need it. People like you and your father. | |||
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"To answer your questions….. No, I don’t think about the costs of being disabled, because I’m not. From what you’d describe however, it would appear that they’re pretty fuckin’ horrendous. How would I cope? I have no idea, it’s one of those worst case scenarios I hope never befalls me. BUT, I’ll cross the bridge IF I have to. There’s always the doomsday scenarios hiding around the corner, terminal illness, disability, untimely death, etc……..but if spent time thinking about how I’d cope, I’d forget to live the life I’m leading. I’ll react to a situation if it comes my way, but I won’t spend my days planning for every eventuality. " I'm with this | |||
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"... with disabilities. Inspired by the misguided belief from another thread that acquiring the label of disability somehow improves one's financial standing, I wonder how many people have really thought about the cost of living with a disability? As a starter for 10, here is a juicy little statistic: "a homecare package of an hour’s help a day can cost £10,000 a year." Remember, most people pay either in full or a contribution towards their care. My 1hr a day of personal care costs £34 an hour. I have it 5 days a week, so I can get ready for work and to do the school run. If I have this care support for 52 weeks a year, it's costing me £8,840 a year. If I were eligible for the highest rate of both elements of PIP, it would just about cover this cost. But what about the costs of my mobility equipment that enable me to work and go out? How do I pay for those? Because they're not free. How will I pay to convert my bathroom into an accessible bathroom that I could use safely? Because we don't qualify for a Disabled Facilities Grant. Has anyone thought about the costs of being disabled? How would you cope if you or a loved one acquired a disability or you had a child born with a disability? Same with eye care, dentistry, old age care etc. those that pay nothing in seem to get more out than those that do pay in. I'm sorry, what has this statement got to do with the OP? I haven't seen a dentist in over a year because the clinic we're with is upstairs, no lift, and I can no longer manage to force myself up them. There are no accessible NHS dentists round here anyway and certainly none taking new patients. Hospital clinics will only see you if you have serious problems. Have you tried getting a high street eye test in a wheelchair? Have you tried to use those eye pressure machines? No. I have and it's simply only designed for if you can sit in the chair they provide. They do not work for wheelchair users (I know other disabled people also exist). I don't get eye care or dentistry for free either! My Dad, who worked his whole life, doesn't get his elder dementia care for free either, he pays the majority of the cost despite having hardly any actual money. Exactly my point. Did you read the bit about access? That's nothing to do with how things are paid for. I fail to understand how people have translated the OP from "have you thought about the cost of living when disabled" to "some people might try and cheat the system"? You started the thread about costs, not access. The fact that 8.6 billion pounds were lost through the benefits system in 23/24 suggests it might be part of the problem. That’s 8.6 billion that could go to people who actually need it. People like you and your father. " You realise not all benefits are related to disability? There's all manner of general low income ones available to the entire population. There's ones relating only to employment, available to all. Ones for bereavement. All kinds. Carer's allowances are so paltry that scamming them is hardly going to enrich anyone. | |||
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" I fail to understand how people have translated the OP from "have you thought about the cost of living when disabled" to "some people might try and cheat the system"?" Because it's easier to look away and give out about things than face a situation with compassion and understanding. It's easier to talk about how hard it is to be middle class while people cash in on social welfare than admit to being privileged when compared to people with real social social disadvantage And then there's the people who will derail your thread because they don't care about your point of view at all. They just need an opportunity to espouse theirs. | |||
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"... with disabilities. Inspired by the misguided belief from another thread that acquiring the label of disability somehow improves one's financial standing, I wonder how many people have really thought about the cost of living with a disability? As a starter for 10, here is a juicy little statistic: "a homecare package of an hour’s help a day can cost £10,000 a year." Remember, most people pay either in full or a contribution towards their care. My 1hr a day of personal care costs £34 an hour. I have it 5 days a week, so I can get ready for work and to do the school run. If I have this care support for 52 weeks a year, it's costing me £8,840 a year. If I were eligible for the highest rate of both elements of PIP, it would just about cover this cost. But what about the costs of my mobility equipment that enable me to work and go out? How do I pay for those? Because they're not free. How will I pay to convert my bathroom into an accessible bathroom that I could use safely? Because we don't qualify for a Disabled Facilities Grant. Has anyone thought about the costs of being disabled? How would you cope if you or a loved one acquired a disability or you had a child born with a disability? Same with eye care, dentistry, old age care etc. those that pay nothing in seem to get more out than those that do pay in. I'm sorry, what has this statement got to do with the OP? I haven't seen a dentist in over a year because the clinic we're with is upstairs, no lift, and I can no longer manage to force myself up them. There are no accessible NHS dentists round here anyway and certainly none taking new patients. Hospital clinics will only see you if you have serious problems. Have you tried getting a high street eye test in a wheelchair? Have you tried to use those eye pressure machines? No. I have and it's simply only designed for if you can sit in the chair they provide. They do not work for wheelchair users (I know other disabled people also exist). I don't get eye care or dentistry for free either! My Dad, who worked his whole life, doesn't get his elder dementia care for free either, he pays the majority of the cost despite having hardly any actual money. Exactly my point. Did you read the bit about access? That's nothing to do with how things are paid for. I fail to understand how people have translated the OP from "have you thought about the cost of living when disabled" to "some people might try and cheat the system"? You started the thread about costs, not access. The fact that 8.6 billion pounds were lost through the benefits system in 23/24 suggests it might be part of the problem. That’s 8.6 billion that could go to people who actually need it. People like you and your father. You realise not all benefits are related to disability? There's all manner of general low income ones available to the entire population. There's ones relating only to employment, available to all. Ones for bereavement. All kinds. Carer's allowances are so paltry that scamming them is hardly going to enrich anyone. " Well it’s an industry worth 8.6 billion to scammers. Hardly paltry. | |||
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"... with disabilities. Inspired by the misguided belief from another thread that acquiring the label of disability somehow improves one's financial standing, I wonder how many people have really thought about the cost of living with a disability? As a starter for 10, here is a juicy little statistic: "a homecare package of an hour’s help a day can cost £10,000 a year." Remember, most people pay either in full or a contribution towards their care. My 1hr a day of personal care costs £34 an hour. I have it 5 days a week, so I can get ready for work and to do the school run. If I have this care support for 52 weeks a year, it's costing me £8,840 a year. If I were eligible for the highest rate of both elements of PIP, it would just about cover this cost. But what about the costs of my mobility equipment that enable me to work and go out? How do I pay for those? Because they're not free. How will I pay to convert my bathroom into an accessible bathroom that I could use safely? Because we don't qualify for a Disabled Facilities Grant. Has anyone thought about the costs of being disabled? How would you cope if you or a loved one acquired a disability or you had a child born with a disability? Same with eye care, dentistry, old age care etc. those that pay nothing in seem to get more out than those that do pay in. I'm sorry, what has this statement got to do with the OP? I haven't seen a dentist in over a year because the clinic we're with is upstairs, no lift, and I can no longer manage to force myself up them. There are no accessible NHS dentists round here anyway and certainly none taking new patients. Hospital clinics will only see you if you have serious problems. Have you tried getting a high street eye test in a wheelchair? Have you tried to use those eye pressure machines? No. I have and it's simply only designed for if you can sit in the chair they provide. They do not work for wheelchair users (I know other disabled people also exist). I don't get eye care or dentistry for free either! My Dad, who worked his whole life, doesn't get his elder dementia care for free either, he pays the majority of the cost despite having hardly any actual money. Exactly my point. Did you read the bit about access? That's nothing to do with how things are paid for. I fail to understand how people have translated the OP from "have you thought about the cost of living when disabled" to "some people might try and cheat the system"? You started the thread about costs, not access. The fact that 8.6 billion pounds were lost through the benefits system in 23/24 suggests it might be part of the problem. That’s 8.6 billion that could go to people who actually need it. People like you and your father. You realise not all benefits are related to disability? There's all manner of general low income ones available to the entire population. There's ones relating only to employment, available to all. Ones for bereavement. All kinds. Carer's allowances are so paltry that scamming them is hardly going to enrich anyone. Well it’s an industry worth 8.6 billion to scammers. Hardly paltry. " You are conflating the entire benefits system, which isn't specific to disabled people, with the tiny portion of the benefits system that IS available specifically to disabled people. When one raises the cost of being disabled, the FIRST thing many people scream about is benefits. The second word is using scam or scammer. Why? This is the same no matter what brand of Govt we have too. Our shiny new Labour Govt made that clear from day 1. No actual help for disabled people but plenty of bleating about disabled people allegedly committing the scam of the century. For the sake of the record, I personally do not receive a single penny in any kind of disability benefit. I've finally made a PIP application after 8yrs because of the care costs but I hold out zero hope of it being successful. | |||
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"If people don't ever stop to think about the costs of becoming disabled, is this partly why society is so blind to the issue? Is this why The System simply does not work for disabled people? " If people spent their lives planning for every worst case scenario , they'd either be completely miserable or eternally anxious about the what ifs. The system doesn't work for lots of people due to the lack of resources | |||
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"If people don't ever stop to think about the costs of becoming disabled, is this partly why society is so blind to the issue? Is this why The System simply does not work for disabled people? If people spent their lives planning for every worst case scenario , they'd either be completely miserable or eternally anxious about the what ifs. The system doesn't work for lots of people due to the lack of resources " The reason, in part, that The System can't cope is because so many people do not plan for their future. | |||
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"... with disabilities. Inspired by the misguided belief from another thread that acquiring the label of disability somehow improves one's financial standing, I wonder how many people have really thought about the cost of living with a disability? As a starter for 10, here is a juicy little statistic: "a homecare package of an hour’s help a day can cost £10,000 a year." Remember, most people pay either in full or a contribution towards their care. My 1hr a day of personal care costs £34 an hour. I have it 5 days a week, so I can get ready for work and to do the school run. If I have this care support for 52 weeks a year, it's costing me £8,840 a year. If I were eligible for the highest rate of both elements of PIP, it would just about cover this cost. But what about the costs of my mobility equipment that enable me to work and go out? How do I pay for those? Because they're not free. How will I pay to convert my bathroom into an accessible bathroom that I could use safely? Because we don't qualify for a Disabled Facilities Grant. Has anyone thought about the costs of being disabled? How would you cope if you or a loved one acquired a disability or you had a child born with a disability? Same with eye care, dentistry, old age care etc. those that pay nothing in seem to get more out than those that do pay in. I'm sorry, what has this statement got to do with the OP? I haven't seen a dentist in over a year because the clinic we're with is upstairs, no lift, and I can no longer manage to force myself up them. There are no accessible NHS dentists round here anyway and certainly none taking new patients. Hospital clinics will only see you if you have serious problems. Have you tried getting a high street eye test in a wheelchair? Have you tried to use those eye pressure machines? No. I have and it's simply only designed for if you can sit in the chair they provide. They do not work for wheelchair users (I know other disabled people also exist). I don't get eye care or dentistry for free either! My Dad, who worked his whole life, doesn't get his elder dementia care for free either, he pays the majority of the cost despite having hardly any actual money. Exactly my point. Did you read the bit about access? That's nothing to do with how things are paid for. I fail to understand how people have translated the OP from "have you thought about the cost of living when disabled" to "some people might try and cheat the system"? You started the thread about costs, not access. The fact that 8.6 billion pounds were lost through the benefits system in 23/24 suggests it might be part of the problem. That’s 8.6 billion that could go to people who actually need it. People like you and your father. You realise not all benefits are related to disability? There's all manner of general low income ones available to the entire population. There's ones relating only to employment, available to all. Ones for bereavement. All kinds. Carer's allowances are so paltry that scamming them is hardly going to enrich anyone. Well it’s an industry worth 8.6 billion to scammers. Hardly paltry. You are conflating the entire benefits system, which isn't specific to disabled people, with the tiny portion of the benefits system that IS available specifically to disabled people. When one raises the cost of being disabled, the FIRST thing many people scream about is benefits. The second word is using scam or scammer. Why? This is the same no matter what brand of Govt we have too. Our shiny new Labour Govt made that clear from day 1. No actual help for disabled people but plenty of bleating about disabled people allegedly committing the scam of the century. For the sake of the record, I personally do not receive a single penny in any kind of disability benefit. I've finally made a PIP application after 8yrs because of the care costs but I hold out zero hope of it being successful. " Attendance allowance isn't means tested as far as I'm aware | |||
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"... with disabilities. Inspired by the misguided belief from another thread that acquiring the label of disability somehow improves one's financial standing, I wonder how many people have really thought about the cost of living with a disability? As a starter for 10, here is a juicy little statistic: "a homecare package of an hour’s help a day can cost £10,000 a year." Remember, most people pay either in full or a contribution towards their care. My 1hr a day of personal care costs £34 an hour. I have it 5 days a week, so I can get ready for work and to do the school run. If I have this care support for 52 weeks a year, it's costing me £8,840 a year. If I were eligible for the highest rate of both elements of PIP, it would just about cover this cost. But what about the costs of my mobility equipment that enable me to work and go out? How do I pay for those? Because they're not free. How will I pay to convert my bathroom into an accessible bathroom that I could use safely? Because we don't qualify for a Disabled Facilities Grant. Has anyone thought about the costs of being disabled? How would you cope if you or a loved one acquired a disability or you had a child born with a disability? Same with eye care, dentistry, old age care etc. those that pay nothing in seem to get more out than those that do pay in. I'm sorry, what has this statement got to do with the OP? I haven't seen a dentist in over a year because the clinic we're with is upstairs, no lift, and I can no longer manage to force myself up them. There are no accessible NHS dentists round here anyway and certainly none taking new patients. Hospital clinics will only see you if you have serious problems. Have you tried getting a high street eye test in a wheelchair? Have you tried to use those eye pressure machines? No. I have and it's simply only designed for if you can sit in the chair they provide. They do not work for wheelchair users (I know other disabled people also exist). I don't get eye care or dentistry for free either! My Dad, who worked his whole life, doesn't get his elder dementia care for free either, he pays the majority of the cost despite having hardly any actual money. Exactly my point. Did you read the bit about access? That's nothing to do with how things are paid for. I fail to understand how people have translated the OP from "have you thought about the cost of living when disabled" to "some people might try and cheat the system"? You started the thread about costs, not access. The fact that 8.6 billion pounds were lost through the benefits system in 23/24 suggests it might be part of the problem. That’s 8.6 billion that could go to people who actually need it. People like you and your father. You realise not all benefits are related to disability? There's all manner of general low income ones available to the entire population. There's ones relating only to employment, available to all. Ones for bereavement. All kinds. Carer's allowances are so paltry that scamming them is hardly going to enrich anyone. Well it’s an industry worth 8.6 billion to scammers. Hardly paltry. You are conflating the entire benefits system, which isn't specific to disabled people, with the tiny portion of the benefits system that IS available specifically to disabled people. When one raises the cost of being disabled, the FIRST thing many people scream about is benefits. The second word is using scam or scammer. Why? This is the same no matter what brand of Govt we have too. Our shiny new Labour Govt made that clear from day 1. No actual help for disabled people but plenty of bleating about disabled people allegedly committing the scam of the century. For the sake of the record, I personally do not receive a single penny in any kind of disability benefit. I've finally made a PIP application after 8yrs because of the care costs but I hold out zero hope of it being successful. " You refuse to accept the fact that as more money is defrauded, the less there is to payout to the people it was intended for. I am not choosing political sides. All as bad as each other in one way or the other. Good luck with your pip application, I hope it goes well and you get the help that you need. | |||
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"... with disabilities. Inspired by the misguided belief from another thread that acquiring the label of disability somehow improves one's financial standing, I wonder how many people have really thought about the cost of living with a disability? As a starter for 10, here is a juicy little statistic: "a homecare package of an hour’s help a day can cost £10,000 a year." Remember, most people pay either in full or a contribution towards their care. My 1hr a day of personal care costs £34 an hour. I have it 5 days a week, so I can get ready for work and to do the school run. If I have this care support for 52 weeks a year, it's costing me £8,840 a year. If I were eligible for the highest rate of both elements of PIP, it would just about cover this cost. But what about the costs of my mobility equipment that enable me to work and go out? How do I pay for those? Because they're not free. How will I pay to convert my bathroom into an accessible bathroom that I could use safely? Because we don't qualify for a Disabled Facilities Grant. Has anyone thought about the costs of being disabled? How would you cope if you or a loved one acquired a disability or you had a child born with a disability? Same with eye care, dentistry, old age care etc. those that pay nothing in seem to get more out than those that do pay in. I'm sorry, what has this statement got to do with the OP? I haven't seen a dentist in over a year because the clinic we're with is upstairs, no lift, and I can no longer manage to force myself up them. There are no accessible NHS dentists round here anyway and certainly none taking new patients. Hospital clinics will only see you if you have serious problems. Have you tried getting a high street eye test in a wheelchair? Have you tried to use those eye pressure machines? No. I have and it's simply only designed for if you can sit in the chair they provide. They do not work for wheelchair users (I know other disabled people also exist). I don't get eye care or dentistry for free either! My Dad, who worked his whole life, doesn't get his elder dementia care for free either, he pays the majority of the cost despite having hardly any actual money. Exactly my point. Did you read the bit about access? That's nothing to do with how things are paid for. I fail to understand how people have translated the OP from "have you thought about the cost of living when disabled" to "some people might try and cheat the system"? You started the thread about costs, not access. The fact that 8.6 billion pounds were lost through the benefits system in 23/24 suggests it might be part of the problem. That’s 8.6 billion that could go to people who actually need it. People like you and your father. You realise not all benefits are related to disability? There's all manner of general low income ones available to the entire population. There's ones relating only to employment, available to all. Ones for bereavement. All kinds. Carer's allowances are so paltry that scamming them is hardly going to enrich anyone. Well it’s an industry worth 8.6 billion to scammers. Hardly paltry. You are conflating the entire benefits system, which isn't specific to disabled people, with the tiny portion of the benefits system that IS available specifically to disabled people. When one raises the cost of being disabled, the FIRST thing many people scream about is benefits. The second word is using scam or scammer. Why? This is the same no matter what brand of Govt we have too. Our shiny new Labour Govt made that clear from day 1. No actual help for disabled people but plenty of bleating about disabled people allegedly committing the scam of the century. For the sake of the record, I personally do not receive a single penny in any kind of disability benefit. I've finally made a PIP application after 8yrs because of the care costs but I hold out zero hope of it being successful. Attendance allowance isn't means tested as far as I'm aware" DLA and PIP aren’t either. Attendance allowance is only for pensioners. Carers allowance is means tested. | |||
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"... with disabilities. Inspired by the misguided belief from another thread that acquiring the label of disability somehow improves one's financial standing, I wonder how many people have really thought about the cost of living with a disability? As a starter for 10, here is a juicy little statistic: "a homecare package of an hour’s help a day can cost £10,000 a year." Remember, most people pay either in full or a contribution towards their care. My 1hr a day of personal care costs £34 an hour. I have it 5 days a week, so I can get ready for work and to do the school run. If I have this care support for 52 weeks a year, it's costing me £8,840 a year. If I were eligible for the highest rate of both elements of PIP, it would just about cover this cost. But what about the costs of my mobility equipment that enable me to work and go out? How do I pay for those? Because they're not free. How will I pay to convert my bathroom into an accessible bathroom that I could use safely? Because we don't qualify for a Disabled Facilities Grant. Has anyone thought about the costs of being disabled? How would you cope if you or a loved one acquired a disability or you had a child born with a disability? Same with eye care, dentistry, old age care etc. those that pay nothing in seem to get more out than those that do pay in. I'm sorry, what has this statement got to do with the OP? I haven't seen a dentist in over a year because the clinic we're with is upstairs, no lift, and I can no longer manage to force myself up them. There are no accessible NHS dentists round here anyway and certainly none taking new patients. Hospital clinics will only see you if you have serious problems. Have you tried getting a high street eye test in a wheelchair? Have you tried to use those eye pressure machines? No. I have and it's simply only designed for if you can sit in the chair they provide. They do not work for wheelchair users (I know other disabled people also exist). I don't get eye care or dentistry for free either! My Dad, who worked his whole life, doesn't get his elder dementia care for free either, he pays the majority of the cost despite having hardly any actual money. Exactly my point. Did you read the bit about access? That's nothing to do with how things are paid for. I fail to understand how people have translated the OP from "have you thought about the cost of living when disabled" to "some people might try and cheat the system"? You started the thread about costs, not access. The fact that 8.6 billion pounds were lost through the benefits system in 23/24 suggests it might be part of the problem. That’s 8.6 billion that could go to people who actually need it. People like you and your father. You realise not all benefits are related to disability? There's all manner of general low income ones available to the entire population. There's ones relating only to employment, available to all. Ones for bereavement. All kinds. Carer's allowances are so paltry that scamming them is hardly going to enrich anyone. Well it’s an industry worth 8.6 billion to scammers. Hardly paltry. You are conflating the entire benefits system, which isn't specific to disabled people, with the tiny portion of the benefits system that IS available specifically to disabled people. When one raises the cost of being disabled, the FIRST thing many people scream about is benefits. The second word is using scam or scammer. Why? This is the same no matter what brand of Govt we have too. Our shiny new Labour Govt made that clear from day 1. No actual help for disabled people but plenty of bleating about disabled people allegedly committing the scam of the century. For the sake of the record, I personally do not receive a single penny in any kind of disability benefit. I've finally made a PIP application after 8yrs because of the care costs but I hold out zero hope of it being successful. Attendance allowance isn't means tested as far as I'm aware DLA and PIP aren’t either. Attendance allowance is only for pensioners. Carers allowance is means tested. " Of course! I'd completely forgotten that. 🤦 | |||
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"... with disabilities. Inspired by the misguided belief from another thread that acquiring the label of disability somehow improves one's financial standing, I wonder how many people have really thought about the cost of living with a disability? As a starter for 10, here is a juicy little statistic: "a homecare package of an hour’s help a day can cost £10,000 a year." Remember, most people pay either in full or a contribution towards their care. My 1hr a day of personal care costs £34 an hour. I have it 5 days a week, so I can get ready for work and to do the school run. If I have this care support for 52 weeks a year, it's costing me £8,840 a year. If I were eligible for the highest rate of both elements of PIP, it would just about cover this cost. But what about the costs of my mobility equipment that enable me to work and go out? How do I pay for those? Because they're not free. How will I pay to convert my bathroom into an accessible bathroom that I could use safely? Because we don't qualify for a Disabled Facilities Grant. Has anyone thought about the costs of being disabled? How would you cope if you or a loved one acquired a disability or you had a child born with a disability? Same with eye care, dentistry, old age care etc. those that pay nothing in seem to get more out than those that do pay in. I'm sorry, what has this statement got to do with the OP? I haven't seen a dentist in over a year because the clinic we're with is upstairs, no lift, and I can no longer manage to force myself up them. There are no accessible NHS dentists round here anyway and certainly none taking new patients. Hospital clinics will only see you if you have serious problems. Have you tried getting a high street eye test in a wheelchair? Have you tried to use those eye pressure machines? No. I have and it's simply only designed for if you can sit in the chair they provide. They do not work for wheelchair users (I know other disabled people also exist). I don't get eye care or dentistry for free either! My Dad, who worked his whole life, doesn't get his elder dementia care for free either, he pays the majority of the cost despite having hardly any actual money. Exactly my point. Did you read the bit about access? That's nothing to do with how things are paid for. I fail to understand how people have translated the OP from "have you thought about the cost of living when disabled" to "some people might try and cheat the system"? You started the thread about costs, not access. The fact that 8.6 billion pounds were lost through the benefits system in 23/24 suggests it might be part of the problem. That’s 8.6 billion that could go to people who actually need it. People like you and your father. You realise not all benefits are related to disability? There's all manner of general low income ones available to the entire population. There's ones relating only to employment, available to all. Ones for bereavement. All kinds. Carer's allowances are so paltry that scamming them is hardly going to enrich anyone. Well it’s an industry worth 8.6 billion to scammers. Hardly paltry. You are conflating the entire benefits system, which isn't specific to disabled people, with the tiny portion of the benefits system that IS available specifically to disabled people. When one raises the cost of being disabled, the FIRST thing many people scream about is benefits. The second word is using scam or scammer. Why? This is the same no matter what brand of Govt we have too. Our shiny new Labour Govt made that clear from day 1. No actual help for disabled people but plenty of bleating about disabled people allegedly committing the scam of the century. For the sake of the record, I personally do not receive a single penny in any kind of disability benefit. I've finally made a PIP application after 8yrs because of the care costs but I hold out zero hope of it being successful. Attendance allowance isn't means tested as far as I'm aware" Attendance Allowance is for pension age people only. I am not eligible. My Dad gets it but it doesn't cover his care costs even slightly. | |||
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