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Thyroid Issues

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By (user no longer on site) OP   
over a year ago

Seams to be a fair few people on here with an over active or under active one.. wondered if people wanted to share stories and how they find the treatments.

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By (user no longer on site) OP   
over a year ago

Ive an under active thyroid and was diagnosed when i was 11 years of age. In the past 5 years i have been under an Endocrinologist and subject to a lot of various tests. Im currently on 400mcg daily and i still feel like shit most days lol

fingers crossed i'll wake up 'normal' one day and my body will behave itself and function correctly

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By (user no longer on site)
over a year ago


"Seams to be a fair few people on here with an over active or under active one.. wondered if people wanted to share stories and how they find the treatments. "

Born in 1980 with congenital hypothyroidism, was only diagnosed in 1982. Was a miracle I wasnt brain damaged. Been in and out of illness and depression ever since though and all I get are these crappy thyroxine tablets.

Always battling my weight and now my stomach is permanently damaged, I am on a simpler diet for life.

I just try to eat foods more rich in iodine and avoid goitrogen rich foods. I also keep powdered sea and st johns wort for a booster which is great for my digestive system and metabolism.

Make sure you get your fruit and veg, dairy and seafood weekly. Stay away from processed foods as much as possible too.

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By (user no longer on site) OP   
over a year ago

darkhorse i was advised to avoid iodine.. will have to check that out then

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By (user no longer on site)
over a year ago

Mine was diagnosed 3 years ago and take 150mg of thyroxine. I still feel like poo and mine could have been brought on by the carbmezipine I tale

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By (user no longer on site)
over a year ago


"darkhorse i was advised to avoid iodine.. will have to check that out then "

Iodine is what the thyroid needs to produce thyroxine. Your doctor is a blert. Its Hyperthyroidism where Iodine needs reducing. Ask me anything about it, I was born fucked lol

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By (user no longer on site)
over a year ago

Found undersctive in my teens on 150mg Thyroxine, weight is a constant battle between that and other drugs I take.

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By (user no longer on site)
over a year ago

Underactive is Hypo by the way

Overactive is Hyper

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By (user no longer on site)
over a year ago

I'm on 200mcg a day, I very rarely have the energy for a full day

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By *3xymamaWoman
over a year ago

Uptown Top Ranking

i've been on thyroxine for 25 years. still feel like poo. now seeing an endocrinologist at last. hoping to find some answers/help at last

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By *innamon!Woman
over a year ago

no matter

I have had hypothyroidism since 1990 .. seems to run along side depression and weight gain.. I also have lichen sclerosis which is very uncomfortable auto immune condition that runs along side thyroid problems. Its pretty miserable and needs checking twice a year.

I only take 200mcg daily .

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By (user no longer on site)
over a year ago

Has anyone noticed I'm the only man here with it? lol

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By (user no longer on site)
over a year ago

So if the doctor upped my dosage would I feel better?

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By (user no longer on site)
over a year ago

I was a fit and healthy person until I caught a virus whilst on holiday in Turkey in 2005. Suddenly I started to become ill, sleeping a lot and just generally being tired.

In 2008 I put 10 stone on suddenly, then another couple of stone the year later. It was only because I had registered with a new DR, that I had to have full bloods taken and was told I had an underactive thyroid. Was very very shocked.

Later that year I was diagnosed with 3 chronic health problems, so with steroids, I put more weight on. Going from a size 8 to a 24 in 18 months.

Last year I managed to lose nearly 4 stone and I'm still continuing to lose weight.

Purring pussy

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By (user no longer on site) OP   
over a year ago

The reason i see the specialist is that my body does not absorb the Thyroxine tablets i take. So despite taking a high dose of 400mg my blood test results show an extremely low level of Thyroxine within my body TSH levels 360 ish at the latest blood test when the normal result should be between 0.5 and 5

I have been tested for Cushings syndrome and also my Pituitry (T3) has been investigated and they are both fine.

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By *innamon!Woman
over a year ago

no matter

I know a few men that have a thyroid problem but it is mostly women that suffer.

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By (user no longer on site) OP   
over a year ago


"Has anyone noticed I'm the only man here with it? lol"

special case lol.. think it is more common in women though

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By (user no longer on site)
over a year ago


"So if the doctor upped my dosage would I feel better?"

Not necessarily. Sodium Levothyroxine is just like any other supplement but essentially it's a form of salt. In order for the body to get better benefits, you need high natural forms of iodine which means getting them from various fresh foods.

But goitrogens can be found in certain healthy foods which prevent your thyroid making use of iodine.

Cabbage, Spinach, Radishes, Brocolli, Strawberries, Corn, Pears, Apples should be avoided if not eaten a lot less to give your thyroid a chance to process iodine into thyroxine.

Any other fruit and veg is okay. Yoghurt, sea and sea food should be part of your diet

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By (user no longer on site)
over a year ago


"Has anyone noticed I'm the only man here with it? lol

special case lol.. think it is more common in women though "

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By (user no longer on site)
over a year ago

And yep more women develop it through life. I was one of the first cases diagnosed as congenital in the UK. They started noticing around 1977

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By (user no longer on site)
over a year ago


"So if the doctor upped my dosage would I feel better?

Not necessarily. Sodium Levothyroxine is just like any other supplement but essentially it's a form of salt. In order for the body to get better benefits, you need high natural forms of iodine which means getting them from various fresh foods.

But goitrogens can be found in certain healthy foods which prevent your thyroid making use of iodine.

Cabbage, Spinach, Radishes, Brocolli, Strawberries, Corn, Pears, Apples should be avoided if not eaten a lot less to give your thyroid a chance to process iodine into thyroxine.

Any other fruit and veg is okay. Yoghurt, sea and sea food should be part of your diet"

Cheers sweetie id rather take the natural approach so will be trying this

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By (user no longer on site)
over a year ago


"Has anyone noticed I'm the only man here with it? lol"

Is it down to most blokes won't see a doctor?. I know I won't see mine.

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By (user no longer on site)
over a year ago


"Has anyone noticed I'm the only man here with it? lol

Is it down to most blokes won't see a doctor?. I know I won't see mine. "

Can I stroke your cheeky

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By (user no longer on site)
over a year ago

Also if any of you get depressed, I recommend the liquid/tincture iodine solution of St Johns Wort. Drop some in warm water and down it once or twice a day for a week or two and you will feel pretty good again.

Dont take prozac!

Thyroid sufferers also suffer a disorder known as Myxedema. Because of the high levels of fluoride in Prozac used for depression it is severely bad for your health. You can go into a coma

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By (user no longer on site) OP   
over a year ago


"And yep more women develop it through life. I was one of the first cases diagnosed as congenital in the UK. They started noticing around 1977"

so what are the differences with yours being congenital to the 'standard' thyroid problem? is it treated differently

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By (user no longer on site)
over a year ago


"Has anyone noticed I'm the only man here with it? lol

Is it down to most blokes won't see a doctor?. I know I won't see mine.

Can I stroke your cheeky "

Anytime

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By (user no longer on site)
over a year ago


"And yep more women develop it through life. I was one of the first cases diagnosed as congenital in the UK. They started noticing around 1977

so what are the differences with yours being congenital to the 'standard' thyroid problem? is it treated differently"

Nope there is nothing else they can do. In America they have better thyroxine tablets for it but here it's a crock of shit. I grew up through a lot of problems and admittedly I'm mentally slower than i should be.

Ive struggled with depression since as far back as 25 years.

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By (user no longer on site)
over a year ago

I've had all sorts of health issues throughout life and was diagnosed with MS in 1994 and because of my restricted mobility I was unable to exercise as much as I needed to and my weight increased to almost 20 stone.

Then in 1996 I suddenly lost almost 7 stone in 11 weeks - diagnosis - life threateningly overactive thyroid, put on meds for just over 2 years to try to bring my thyroid function back within the safe-zone. Got the T4 count down into the 50s and was told that I needed to have the thyroid removed.

Late 1998 following a total hyper-parathyroidectomy (I think that's the right name for it) I ended up with no thyroid and on Thyroxine for the rest of my life.

Since then, my medical team have fiddled with the amount of Thyroxine I have to take because my weight has rocketed back up. The Endocrynologist says that the maximum SAFE daily limit for Thyroxine is 200mcg although I've been on between 300 & 400mcg for the past 10yrs. My last blood test has recently shown that I'm being UNDER-medicated, so my GP has increased me to 450mcg a day ... so much for 'safe limits'

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By *rs and Mr PandoraCouple
over a year ago

LUTTERWORTH

interesting reading, thanks for sharing everyone

Miss P x

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By (user no longer on site)
over a year ago


"I've had all sorts of health issues throughout life and was diagnosed with MS in 1994 and because of my restricted mobility I was unable to exercise as much as I needed to and my weight increased to almost 20 stone.

Then in 1996 I suddenly lost almost 7 stone in 11 weeks - diagnosis - life threateningly overactive thyroid, put on meds for just over 2 years to try to bring my thyroid function back within the safe-zone. Got the T4 count down into the 50s and was told that I needed to have the thyroid removed.

Late 1998 following a total hyper-parathyroidectomy (I think that's the right name for it) I ended up with no thyroid and on Thyroxine for the rest of my life.

Since then, my medical team have fiddled with the amount of Thyroxine I have to take because my weight has rocketed back up. The Endocrynologist says that the maximum SAFE daily limit for Thyroxine is 200mcg although I've been on between 300 & 400mcg for the past 10yrs. My last blood test has recently shown that I'm being UNDER-medicated, so my GP has increased me to 450mcg a day ... so much for 'safe limits'

"

DAMN!!! Bet your sense of humour is rock solid

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By (user no longer on site) OP   
over a year ago

Id love to just be medicated correctly but i accept that im a bit of a mystery. I am very much well aware that i am over weight.

I suffer vomiting a lot, cramp, palpitations, tiredness,short term memory loss dry skin, confusion, hair falls out. Due to the thyroid i also have a small amount of renal failure,am anemic, have carpal tunnel syndrome and have a fatty liver.

Having a 3yr old and working is tough some days i just want to sleep and when i was younger (before i was diagnosed) i nearly slipped into a coma. Its a struggle but i try to keep happy and chirpy. Other days i just want to cry and wallow in my own pity of 'why me, why cant i be normal'

Its so hard to describe how it feels to people who just purely look at me as a fat lass and thinks she crams her face with junk food.

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By (user no longer on site)
over a year ago


"DAMN!!! Bet your sense of humour is rock solid "

One tries ... I'd give anything to be able to lose just one of these health issues, but I know it's not to be, I'm stuck with them for life.

If it wasn't for my food allergies as well, then I'd be able to eat more healthily too, but I've even been robbed of that.

Hey ho ... I'm breathing and I do try to make sure that I at least smile every day if not have a good old laugh about something.

It's a good thing there's still sex otherwise life probably would be too depressing ... lol

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By (user no longer on site)
over a year ago


"I suffer vomiting a lot, cramp, palpitations, tiredness,short term memory loss dry skin, confusion, hair falls out. Due to the thyroid i also have a small amount of renal failure,am anemic, have carpal tunnel syndrome and have a fatty liver.

Having a 3yr old and working is tough some days i just want to sleep and when i was younger (before i was diagnosed) i nearly slipped into a coma. Its a struggle but i try to keep happy and chirpy. Other days i just want to cry and wallow in my own pity of 'why me, why cant i be normal'

Its so hard to describe how it feels to people who just purely look at me as a fat lass and thinks she crams her face with junk food. "

All you describe is my life story. As for the vomiting, I now have a hernia, gastritis and barretts oesophagus and am on cancer watch for the rest of my life as a result. But boy did it work wonders for my sense of humour... not

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By (user no longer on site)
over a year ago


"DAMN!!! Bet your sense of humour is rock solid

One tries ... I'd give anything to be able to lose just one of these health issues, but I know it's not to be, I'm stuck with them for life.

If it wasn't for my food allergies as well, then I'd be able to eat more healthily too, but I've even been robbed of that.

Hey ho ... I'm breathing and I do try to make sure that I at least smile every day if not have a good old laugh about something.

It's a good thing there's still sex otherwise life probably would be too depressing ... lol "

Lol good on ya, that's the way to be. Life is what it is and there are people still worse off.

And thanks for that. I havent had sex in over a year... one time I went 3 and a half between shags and yes it does depress the shite out of you!

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By *phroditeWoman
over a year ago

(She/ her) in Sensualityland

I find the thread really interesting as it has told me a few things I did not know.

My heart goes out to you thyroid sufferers.

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By *innamon!Woman
over a year ago

no matter

Hmm 3 and half huh.. I went ten years total celibacy after i was diagnosed 1993/2003 before i got a hold of my depression enough to even consider sex again. Still an uphill battle totally does your libido in .

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By (user no longer on site) OP   
over a year ago


"I find the thread really interesting as it has told me a few things I did not know.

My heart goes out to you thyroid sufferers. "

Ive learnt things too.

I have often wondered about being treated with natural thyroxine rather than the artificially made stuff. But sadly its not available in the Uk

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By (user no longer on site)
over a year ago


"I find the thread really interesting as it has told me a few things I did not know.

My heart goes out to you thyroid sufferers. "

Thanks CoCo xxx

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By (user no longer on site) OP   
over a year ago


"Hmm 3 and half huh.. I went ten years total celibacy after i was diagnosed 1993/2003 before i got a hold of my depression enough to even consider sex again. Still an uphill battle totally does your libido in ."

so glad you mentioned that. My Libido comes and goes.. I'm either rampant or completely have no interest in sex

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By (user no longer on site)
over a year ago


"I havent had sex in over a year... one time I went 3 and a half between shags and yes it does depress the shite out of you!"

I went 4 and a half years before I met my now-ex last year. He introduced me to swinging and I've not looked back since

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By (user no longer on site)
over a year ago


"Hmm 3 and half huh.. I went ten years total celibacy after i was diagnosed 1993/2003 before i got a hold of my depression enough to even consider sex again. Still an uphill battle totally does your libido in ."

Okay well I kinda cheated lol I only gave my virginity away at the dusty age of 24 then went two more years without, then three and a half, then another and another and I've never had a relationship longer than half a year long lol

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By (user no longer on site)
over a year ago

When I get my sex drive, I'm a beast. There's no other way of saying it and then all of a sudden its a year or a few later and I'm wondering where my hard on and my life went hahaha

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By *eicsCouple
over a year ago

leicester

Well , i am one of the few men who has posted . I`m overactive & have been on & off since 2004 when i came back from the gulf. I lost over a stone in one month (not that i had a stone to loose) and my fitness went down hill big time. If i never ate every few hours, i`d get the shakes and feel weak.

Went to the MO and had blood test , came back with over active thyroid. Cleared up after 2 years then came back in 2008 . They want me to take the radioactive iodine but have refused it as i will make me underactive & on medication for the rest of my life. Something i dont wish to do

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By (user no longer on site)
over a year ago


"Well , i am one of the few men who has posted . I`m overactive & have been on & off since 2004 when i came back from the gulf. I lost over a stone in one month (not that i had a stone to loose) and my fitness went down hill big time. If i never ate every few hours, i`d get the shakes and feel weak.

Went to the MO and had blood test , came back with over active thyroid. Cleared up after 2 years then came back in 2008 . They want me to take the radioactive iodine but have refused it as i will make me underactive & on medication for the rest of my life. Something i dont wish to do "

Try eatting a lot of greens and fruit in your diet. A lot of them have chemicals known as goitrogens - cabbage, brocolli, spinach, corn, apples, pears, strawberries. Goitrogens prevent your thyroid turning iodine into thyroxine, which your body is making too much of.

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By (user no longer on site)
over a year ago

I was diagnosed with a under active thyroid and pernicious anaemia 8 years ago. 200mg levothyroxine daily and regular b12 shots keep me going. One thing didn't know and that its hereditary x

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By (user no longer on site)
over a year ago

One thing it hasn't harmed is my libido

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By (user no longer on site)
over a year ago


"One thing it hasn't harmed is my libido "

Oh it's terrible for some people. Dont speak too soon and get your shags in now just in case lol

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By (user no longer on site)
over a year ago


"One thing it hasn't harmed is my libido

Oh it's terrible for some people. Dont speak too soon and get your shags in now just in case lol"

Sorry

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By (user no longer on site)
over a year ago


"One thing it hasn't harmed is my libido

Oh it's terrible for some people. Dont speak too soon and get your shags in now just in case lol

Sorry "

I was trying to be humorous. I can still get it up at the mo hahaha but, yeah, Im goin out for a walk now before I say too much

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By (user no longer on site)
over a year ago


"One thing it hasn't harmed is my libido

Oh it's terrible for some people. Dont speak too soon and get your shags in now just in case lol

Sorry

I was trying to be humorous. I can still get it up at the mo hahaha but, yeah, Im goin out for a walk now before I say too much "

So was I my excuse was I was married for 24 years to Victor Meldrew so now I'm divorced I'm making the most of it

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By *b586Couple
over a year ago

pemberton twp

Hi everyone. First I want to say that the forum post have been a life saver since I signed onto Fab. And thank you all. In January I had a total thyroidectomy and in March I had a dose of the radioactive iodine131. Dr. Said most people don't even know they are on anything. First 24 hrs I went to emergency room because I was so nauseous and half my throat swelled up. I was afraid I'd end up with a tracheotomy because I couldn't even swallow an anti inflammatory. Treated for gastritis and he gave me some fluid n a steroid and sent home. The steroid reduced the imflamation. I was flat on my back for 4 straight days. Couldnt eat and was so achy. Total of three weeks on low iodine diet , which defiantly will be easier next time. Been on synthroid for about a month and still am so achy and tired. Just finally started reading up on options and relief of symptoms. The Internet can be informative but scary. I have avoided looking any of the info up and trusting my dr. I got to take control of this. The bit of extra weight is depressing on its own. I hope that with the warmer weather I can be more active and get sum more energy and want to move my achy body. Unfortunately it seems that with or without a thyroid , the issues faced can be difficult. Thanks to the people who love me and support me thru the mood swings ,fatigue and depression, all of which I have managed to keep moving thru. Only took off work two weeks after the surgery and the two weeks surrounding the RAI. Which in hindsight should have been a little longer. Thanks for all who shared. Xoxo k

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By (user no longer on site)
over a year ago

I was diagnosed under active 4 years ago, I weighed just over 18 stone I'm now down to 11 1/2 stone I'm on 200mg of thyroxine one day and 150mg the next. I do suffer the occasional bought of depression, but my libido is fine(touch wood) lol

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By *andjCouple
over a year ago

tempsford

I was diagnosed at 20 with over active thyroid, although they think I suffered from it for a long time before diagnosis. According to the doctor it mainly affects women during menopause.....what utter tripe I know loads that were diagnosed young.

Iodine is a must I agree with another commenter, and never take your thyroid drugs with milk as it diminishes there effectiveness.

There is new research from the states that coconut oil capsules are great for sufferers, I've yet to manage to get any in the uk though.

What you must watch for is other auto immune problems, since diagnosis I've been hit with chrohns disease and sarcoidosis, both common amongst thyroid sufferers.

I went from a size 8/10 to a size 22/24 and could not move down past an 18 for years. Then I was given a shitty diet by a homeopath that worked.

I could have as much salmon, rice, fruit ( except banana) milk and sugar as I wanted but had to avoid skinned foods ie beans, sweet corn or alike. I dropped to a size 12 in 4 months and have gone back to a normal diet and been fine. This diet was boring but better than the specialist advice that was get pregnant as that will restart your hormones!!! Hard to do with no womb lol.

The tiredness is an issue as are the horrific nightmares etc but we have to accept its life as a sufferer.

The bonus to it is you will never have to pay for surgical stockings or prescription drugs ever again........

Is there anyone out there with a surgical stocking fetish?? Lol

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By (user no longer on site) OP   
over a year ago

I agree that because its lifelong i should get thyroxine free but not sure why everything else is free too.

Asthma sufferers should get meds free in my opinion

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