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Living with chronic pain

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By *r and Mrs CACA OP   Couple
45 weeks ago

congleton

Anyone else on here who deal with daily pain in whatever form? Any tips on how I can boost my sex drive and motivation xxx

Charlotte x

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By *hilloutMan
45 weeks ago

All over the place! Northwesr, , Southwest

It's an issue that sadly affects more and more people.

Have you been assessed by a Pain Management team or completed a Pain management programme?

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By *estYorkshireGentMan
45 weeks ago

Leeds

My previous partner suffered with a tilted pelvis that caused her a lot of pain day to day. Unfortunately there wasn’t any solution other than painkillers and anti inflammatories on the really bad days.

It’s a bit different as she started doing a lot of physio and that really helped long term but still in pain day to day

Hope you manage to get something sorted so you start feeling better soon

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By *ularliWoman
45 weeks ago

Worcester

I’ve had tears in both shoulders for many years and some days it becomes unbearable.

I recently had my right one fixed and the left will be done this summer time I think but it’ll take at least another year to be fully repaired if it works.

I also have a really bad left leg from lymph node clearance. The pain from that is something else.

I really feel for you.

Depending where your pain is I can highly recommend acupuncture. It’s great but gets expensive as it’s needed regularly

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By *r and Mrs CACA OP   Couple
45 weeks ago

congleton

I get pain in lower back feels stiff and weak struggle to walk at times have had sciatica diagnosed years ago joys of four c sections one epi and four spinals lol. I get pain in my hands my fingers click when I bend them if I don’t they ache. Had bloods done for inflammation it was only at 4 so they said normal. I can’t take ibuprofen anymore as I have asthma. Also it gave me really bad acid reflux to point I couldn’t sleep lost loads of weight. Diabetic too so could be nerve damage. I take Sertaline for my depression that helps alittle. But I’m at a lost been telling my doctor for over a year now. I feel so broken. Xx

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By *r and Mrs CACA OP   Couple
45 weeks ago

congleton


"It's an issue that sadly affects more and more people.

Have you been assessed by a Pain Management team or completed a Pain management programme?"

Ohh what’s this? Never heard of it. All my doctor has done is throw pain killers at me. I’m now on codine as naproxen gave me bad acid reflux xx

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By *ularliWoman
45 weeks ago

Worcester


"I get pain in lower back feels stiff and weak struggle to walk at times have had sciatica diagnosed years ago joys of four c sections one epi and four spinals lol. I get pain in my hands my fingers click when I bend them if I don’t they ache. Had bloods done for inflammation it was only at 4 so they said normal. I can’t take ibuprofen anymore as I have asthma. Also it gave me really bad acid reflux to point I couldn’t sleep lost loads of weight. Diabetic too so could be nerve damage. I take Sertaline for my depression that helps alittle. But I’m at a lost been telling my doctor for over a year now. I feel so broken. Xx"

I dislike how they rely so heavily on blood results.

Have you had any steroid injections or tried prednisone? X

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By *CLM87Woman
45 weeks ago

Derbyshire


"I get pain in lower back feels stiff and weak struggle to walk at times have had sciatica diagnosed years ago joys of four c sections one epi and four spinals lol. I get pain in my hands my fingers click when I bend them if I don’t they ache. Had bloods done for inflammation it was only at 4 so they said normal. I can’t take ibuprofen anymore as I have asthma. Also it gave me really bad acid reflux to point I couldn’t sleep lost loads of weight. Diabetic too so could be nerve damage. I take Sertaline for my depression that helps alittle. But I’m at a lost been telling my doctor for over a year now. I feel so broken. Xx"

I suffer with fibromyalgia most days my pains a 3/4 out of 10. Most flare ups its about a 6/7 and worst was 9 where I nearly ended up in hospital.

Maybe worth asking to be assessed for fibromyalgia as sounds like you may have it.

There's pressure points on your back that are only found in people with fibro and that's how they diagnose at the moment.

I'm on gabapentin which has been a game changer for me and meant I could live a relatively normal life.

Just wondering if a tens machine may help your back?

Hopefully you get something sorted.

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By *hilloutMan
45 weeks ago

All over the place! Northwesr, , Southwest


"I get pain in lower back feels stiff and weak struggle to walk at times have had sciatica diagnosed years ago joys of four c sections one epi and four spinals lol. I get pain in my hands my fingers click when I bend them if I don’t they ache. Had bloods done for inflammation it was only at 4 so they said normal. I can’t take ibuprofen anymore as I have asthma. Also it gave me really bad acid reflux to point I couldn’t sleep lost loads of weight. Diabetic too so could be nerve damage. I take Sertaline for my depression that helps alittle. But I’m at a lost been telling my doctor for over a year now. I feel so broken. Xx"

If your back pain is the main issue and sciatica is intermittent, surgery is usually not considered viable. Bloods for rheumatic factors are indicated for investigation with multi-joint complaints. Someone with your profile should be referred onwards to a local pain management service for further assessment / intervention. It's part of a pathway when standard primary care is not working.

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By *edonisticRockerMan
45 weeks ago

Chorley

Had a bike crash about 5 years ago

Despite doctors claiming everything is fine following an MCL tear it's never stopped aching in that time, even moreso in the cold and honestly I nearly gave up thinking this was me done from now on but got a pop up sauna just on an off chance and its the only thing that helps the pain and makes it manageable for some time

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By *icecouple561Couple
Forum Mod

45 weeks ago

East Sussex


"I get pain in lower back feels stiff and weak struggle to walk at times have had sciatica diagnosed years ago joys of four c sections one epi and four spinals lol. I get pain in my hands my fingers click when I bend them if I don’t they ache. Had bloods done for inflammation it was only at 4 so they said normal. I can’t take ibuprofen anymore as I have asthma. Also it gave me really bad acid reflux to point I couldn’t sleep lost loads of weight. Diabetic too so could be nerve damage. I take Sertaline for my depression that helps alittle. But I’m at a lost been telling my doctor for over a year now. I feel so broken. Xx"

So sorry that you're experiencing this.

Both of us live or have lived with chronic pain. I was fortunate that my issues were mostly fixed by surgery to put a coflex implant in my spine but it took years and a sympathetic consultant. Mr has not been so fortunate.

Drs whatever anyone says aren't too interested in chronic pain (especially womens)because they struggle to fix it. Their go to is physio and I've never met anyone experiencing chronic pain for who that's worked.

All I can suggest is asking for a referral to a pain management clinic, in the time you're waiting for that to come through (if your GP agrees) research some techniques yourself, they don't all work for everyone. Also accepting what you can and can't do, embrace good days, pace yourself, hope for understanding loved ones, look around for things to help you cope and ask for help if you need it.

You mentioned you're taking anti depressants they can affect your sex drive, also have a look at side effects of codeine.

Is there somewhere nearby you can swim and use a hot tub?

How are you coping with day to day living? Cooking, child care etc. it must be exhausting. It's no wonder you're struggling

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By *heonixrising500Man
45 weeks ago

Barnsley

Warm bath then a sexy massage can help

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By *assy69Man
45 weeks ago

West Sussex and Wales


"Anyone else on here who deal with daily pain in whatever form? Any tips on how I can boost my sex drive and motivation xxx

Charlotte x"

Have suffered with chronic pain since breaking my back about 27 odd years ago. Got a lot of my range of movement back, but the pain has never gone, I’ve just learned to manage it. Now, I know it’s there, but recognise the changes as I get to the point where I am overdoing things so can adjust my activity. Now, it rarely interferes with life.

I hope you find some way to manage your own pain OP

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By *ubbie300Couple
45 weeks ago

Bawtry

I have rheumatoid arthritis which plays havoc with my joints. I have an infliximab infusion every 6 weeks. Diclofenac suppositories work better than the usual painkillers when I have a flare up. They maybe worth a try?

Mrs x

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By (user no longer on site)
45 weeks ago


"I get pain in lower back feels stiff and weak struggle to walk at times have had sciatica diagnosed years ago joys of four c sections one epi and four spinals lol. I get pain in my hands my fingers click when I bend them if I don’t they ache. Had bloods done for inflammation it was only at 4 so they said normal. I can’t take ibuprofen anymore as I have asthma. Also it gave me really bad acid reflux to point I couldn’t sleep lost loads of weight. Diabetic too so could be nerve damage. I take Sertaline for my depression that helps alittle. But I’m at a lost been telling my doctor for over a year now. I feel so broken. Xx"

If you're on sertraline and they gave you naproxen should also have given you omeprazole. Might be worth looking into switching from sertraline to duloxetine.

I have the same issue with fingers. Also knee pain, back pain and shoulder pain, after two years of being fobbed off by gp got a diagnosis of early onset osteo then told yeah not much we can do really

I've started seeing the pain management people and it's definitely interesting, only had a few appointments so will see how I get on

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By *r and Mrs CACA OP   Couple
45 weeks ago

congleton


"I get pain in lower back feels stiff and weak struggle to walk at times have had sciatica diagnosed years ago joys of four c sections one epi and four spinals lol. I get pain in my hands my fingers click when I bend them if I don’t they ache. Had bloods done for inflammation it was only at 4 so they said normal. I can’t take ibuprofen anymore as I have asthma. Also it gave me really bad acid reflux to point I couldn’t sleep lost loads of weight. Diabetic too so could be nerve damage. I take Sertaline for my depression that helps alittle. But I’m at a lost been telling my doctor for over a year now. I feel so broken. Xx

If you're on sertraline and they gave you naproxen should also have given you omeprazole. Might be worth looking into switching from sertraline to duloxetine.

I have the same issue with fingers. Also knee pain, back pain and shoulder pain, after two years of being fobbed off by gp got a diagnosis of early onset osteo then told yeah not much we can do really

I've started seeing the pain management people and it's definitely interesting, only had a few appointments so will see how I get on"

Yeah I take Omprezole too I was given it with the naproxen started at 10mg. Then upped it to 20mg. Then upped to twice a day. I’ve managed to decrease it back to 20mg some days I take the second one if I’m suffering. The metformin for diabetes was making me really poorly. They recently diagnosed me with the genetic version of diabetes. I have a crunchy neck as well but they ignored me when I mentioned it. I’ve been referred to physio. No idea when that’s going to appear. I know what sets me off more than other stuff. If I mop the kitchen I’m stiff as a board next day. My shoulders neck and lower back ache on and off all day. Depending on which side I’m standing on my hips can burn and ache like I’ve a knife in it. If I lean forwards when I walk I decrease the pain. I got a walking stick for my really bad days when I struggle to stand up straight. They all bleat on was it prescribed I’m like no I brought it after I blitzed my house and I couldn’t stand up or walk to collect my children from school. I got a shower seat as I nearly fell over in bath numberous times from dizziness. I was taking metazipine can’t spell it lol. But I couldn’t cope with the daytime sleepiness so changed it. I’ve been on a few anti depressants over the years. Have tried without. But I ended up in a bad state of mind. I was just numb felt disconnected from myself and cried all day. I self referred to the shrink service. That took a year to get back to me. By which point I’d resumed my meds and was feeling a lot better. Xx

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By *r and Mrs CACA OP   Couple
45 weeks ago

congleton

Been tested for carpal tunnel in my hands that came back as fine. Had the hand issues for over six years now. I generally stay away from the doctors if I can help it. They look at me funny because of my age. My partner usually comes with me to support me while I’m there. I just waddle most days. I thank god I drive. But even that is hard work if I do a long drive as my back neck and hands are ruined by the end of day. X

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By *r and Mrs CACA OP   Couple
45 weeks ago

congleton


"Anyone else on here who deal with daily pain in whatever form? Any tips on how I can boost my sex drive and motivation xxx

Charlotte x

Have suffered with chronic pain since breaking my back about 27 odd years ago. Got a lot of my range of movement back, but the pain has never gone, I’ve just learned to manage it. Now, I know it’s there, but recognise the changes as I get to the point where I am overdoing things so can adjust my activity. Now, it rarely interferes with life.

I hope you find some way to manage your own pain OP "

Id like to think my pain fresh hold is quite high. I was walking around doing my daily duties with a ruptured appendix about five years ago. I took my self to doctors after two days. I was munching through pain killers. Surgery was done. Most days my pain is niggly around 3/4. Worse days it’s 7/8. Just wanna be a mum again not a person who can’t run around and enjoy stuff with them. I stay as active as I can. X

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By *r and Mrs CACA OP   Couple
45 weeks ago

congleton


"I get pain in lower back feels stiff and weak struggle to walk at times have had sciatica diagnosed years ago joys of four c sections one epi and four spinals lol. I get pain in my hands my fingers click when I bend them if I don’t they ache. Had bloods done for inflammation it was only at 4 so they said normal. I can’t take ibuprofen anymore as I have asthma. Also it gave me really bad acid reflux to point I couldn’t sleep lost loads of weight. Diabetic too so could be nerve damage. I take Sertaline for my depression that helps alittle. But I’m at a lost been telling my doctor for over a year now. I feel so broken. Xx

So sorry that you're experiencing this.

Both of us live or have lived with chronic pain. I was fortunate that my issues were mostly fixed by surgery to put a coflex implant in my spine but it took years and a sympathetic consultant. Mr has not been so fortunate.

Drs whatever anyone says aren't too interested in chronic pain (especially womens)because they struggle to fix it. Their go to is physio and I've never met anyone experiencing chronic pain for who that's worked.

All I can suggest is asking for a referral to a pain management clinic, in the time you're waiting for that to come through (if your GP agrees) research some techniques yourself, they don't all work for everyone. Also accepting what you can and can't do, embrace good days, pace yourself, hope for understanding loved ones, look around for things to help you cope and ask for help if you need it.

You mentioned you're taking anti depressants they can affect your sex drive, also have a look at side effects of codeine.

Is there somewhere nearby you can swim and use a hot tub?

How are you coping with day to day living? Cooking, child care etc. it must be exhausting. It's no wonder you're struggling "

My partner helps me and splits the load where he can. The doctor is aware of my sex drive issues. There isn’t much they do for women. No blue pills for us lol. I’ve tried so many anti depressants. I can’t swim never learnt. Scares me. I do enjoy a hot bath. But my housing replaced my bath a while ago and for some reason water doesn’t run as hot anymore the bath tub shape is narrower I dislike it but what can I do. My partner helps me out if I can’t manage to step out if I’m feeling wobbly. Xx I only take the codeine as a last resort. Tried on just paracetamol but it didn’t do much. I just waddle and just grin and bear it. But by end of day I’m shattered from dealing with it xx

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By *abioMan
45 weeks ago

Newcastle and Gateshead


"It's an issue that sadly affects more and more people.

Have you been assessed by a Pain Management team or completed a Pain management programme?

Ohh what’s this? Never heard of it. All my doctor has done is throw pain killers at me. I’m now on codine as naproxen gave me bad acid reflux xx"

Technically codine and naproxen are two different things….

Naproxen is an “NSAID” (Non Steroid Anti Inflammatory Drug) …. It’s basically a stronger version of ibuprofen, which is why you don’t take both at the same time.. so it more for soothing joints and muscles rather than pain killers.. which is what codine is

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By *r and Mrs CACA OP   Couple
45 weeks ago

congleton


"It's an issue that sadly affects more and more people.

Have you been assessed by a Pain Management team or completed a Pain management programme?

Ohh what’s this? Never heard of it. All my doctor has done is throw pain killers at me. I’m now on codine as naproxen gave me bad acid reflux xx

Technically codine and naproxen are two different things….

Naproxen is an “NSAID” (Non Steroid Anti Inflammatory Drug) …. It’s basically a stronger version of ibuprofen, which is why you don’t take both at the same time.. so it more for soothing joints and muscles rather than pain killers.. which is what codine is"

I am aware. My friend takes it for her back. I asked for it it helped never quelled the pain totally but it did help. Only reason I stopped taking it was because of the acid reflux. I shake rattle and roll lol. Now I’m aware as all my joints are fizzy and aching after I had to dispose of our broken freezer to the tip took my codeine before I went to sleep but yeah this is my life sort of gotten used to it. Xx

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By *r and Mrs CACA OP   Couple
45 weeks ago

congleton

Awake* not aware haha. Haven’t got my specs on x

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By *ed VoluptaWoman
45 weeks ago

Wirral.


"Awake* not aware haha. Haven’t got my specs on x"

Sorry you're in such pain, OP. Have they given you a diagnosis for what is causing the pain? Are you under a consultant?

I have Rheumatoid arthritis - took 2 yrs for GP to take me seriously & refer me. I've been on all sorts of regimes over the years, but flare ups have always been frequent & horrendous, so I fully understand your depression.

Thankfully, I've been on adalimumab, a so called biologic drug, for 3yrs now and have been pain free ever since. What I'd have given for that to have been available 26yrs ago!

Keep pushing your GP. Nobody should have to live with such pain.

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By *r and Mrs CACA OP   Couple
45 weeks ago

congleton


"Awake* not aware haha. Haven’t got my specs on x

Sorry you're in such pain, OP. Have they given you a diagnosis for what is causing the pain? Are you under a consultant?

I have Rheumatoid arthritis - took 2 yrs for GP to take me seriously & refer me. I've been on all sorts of regimes over the years, but flare ups have always been frequent & horrendous, so I fully understand your depression.

Thankfully, I've been on adalimumab, a so called biologic drug, for 3yrs now and have been pain free ever since. What I'd have given for that to have been available 26yrs ago!

Keep pushing your GP. Nobody should have to live with such pain. "

No they have done a referral for physio. Done a million bloods ranging from menopause to c reactive. Everything is normal or so they say. They are stumped. Last doctor moaned at me said I came in with too many issues and she could only deal with one. I was like it’s all the same issue as a whole stupid woman. Luckily I was having a bad episode and she made me touch my toes I could barely do it. She poked my back along my spine no painful spots but she did this standing up and was rushed. Just looked at me funny because of my age and clear bloods. I did ask her surely a raise from 2 to four on the c reactive is something. She said have you been ill. And left it at that.

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By *ed VoluptaWoman
45 weeks ago

Wirral.


"Awake* not aware haha. Haven’t got my specs on x

Sorry you're in such pain, OP. Have they given you a diagnosis for what is causing the pain? Are you under a consultant?

I have Rheumatoid arthritis - took 2 yrs for GP to take me seriously & refer me. I've been on all sorts of regimes over the years, but flare ups have always been frequent & horrendous, so I fully understand your depression.

Thankfully, I've been on adalimumab, a so called biologic drug, for 3yrs now and have been pain free ever since. What I'd have given for that to have been available 26yrs ago!

Keep pushing your GP. Nobody should have to live with such pain.

No they have done a referral for physio. Done a million bloods ranging from menopause to c reactive. Everything is normal or so they say. They are stumped. Last doctor moaned at me said I came in with too many issues and she could only deal with one. I was like it’s all the same issue as a whole stupid woman. Luckily I was having a bad episode and she made me touch my toes I could barely do it. She poked my back along my spine no painful spots but she did this standing up and was rushed. Just looked at me funny because of my age and clear bloods. I did ask her surely a raise from 2 to four on the c reactive is something. She said have you been ill. And left it at that. "

That's pretty shit! I was 30 when I first presented & gp just didn't take me seriously. But, after having a breakdown in the surgery & demanding they do something as I couldn't move my arm. They sent me straight to physio at the hospital. She was brilliant. Listened to me, asked me questions & asked if I'd had a blood test. I hadn't (in over a year of nagging my gp) She said she thought I may have RA & preceded to ring my GP & wipe the floor with her.

I've used physios twice since. They are fantastic! Let's hope they have some ideas what it could be. x

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By *ositiveVibesJBxMan
45 weeks ago

Birmingham/Wigan

In the past I have suffered terribly with my back and even had a operation for a slipped disc.

Two things that worked for me were Pilates - help to build your core muscles to ease pressure off your back and Acupuncture - with massages and cupping.

I was very fortunate to have two amazing people. The Pilates can be done online, if you need details drop me a message xx

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By *ermite12ukMan
45 weeks ago

Solihull and Brentwood


"Yeah I take Omprezole too I was given it with the naproxen started at 10mg. Then upped it to 20mg. Then upped to twice a day. I’ve managed to decrease it back to 20mg some days I take the second one if I’m suffering. The metformin for diabetes was making me really poorly. They recently diagnosed me with the genetic version of diabetes. I have a crunchy neck as well but they ignored me when I mentioned it. I’ve been referred to physio. No idea when that’s going to appear. I know what sets me off more than other stuff. If I mop the kitchen I’m stiff as a board next day. My shoulders neck and lower back ache on and off all day. Depending on which side I’m standing on my hips can burn and ache like I’ve a knife in it. If I lean forwards when I walk I decrease the pain. I got a walking stick for my really bad days when I struggle to stand up straight. They all bleat on was it prescribed I’m like no I brought it after I blitzed my house and I couldn’t stand up or walk to collect my children from school. I got a shower seat as I nearly fell over in bath numberous times from dizziness. I was taking metazipine can’t spell it lol. But I couldn’t cope with the daytime sleepiness so changed it. I’ve been on a few anti depressants over the years. Have tried without. But I ended up in a bad state of mind. I was just numb felt disconnected from myself and cried all day. I self referred to the shrink service. That took a year to get back to me. By which point I’d resumed my meds and was feeling a lot better. Xx"

You sound very much like my landlady. Especially regarding metzformin. The only difference I can remember in the cocktail of 20 pills she takes at night....in addition to nightime...is that she has morphine patches (x2) stuck to her back as well......but in the mornings, 99% of most mornings, you can see the pain in her eyes.

She found out recently that metzaformin will also make you gain weight....After she took her greyhound to a vet and they wanted to give the dog metzaformin....and explained to her the side effects. If was a lightbulb moment for her.

For acid reflux, I don't take omrazepole. (Landlady takes lansopresol.) I buy a pack of, 56 I think, anti acid tables from either Tescos, or morrisons. My anti acid is manageable now. And I'm not dependant on taking Omprazepole every day.

Just one large round pill every now and again. Perhaps once a week or even once every two weeks.

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By *reeneggsandsamMan
45 weeks ago

Perpignan and cap

I suggest learning how to swim, it's an easy fix, just do it!

Then get yourself off on a hot hot beach holiday and bake for two or three weeks, obviously with suncream but the combination of exercise and rest will have you out like a light. Leave the kids, this is you time.

Drink lots of water, eat well and exercise (hense swimming). Bring the couldrun with you but go easy on the pills as it can be like cutting off your head to cure a headache.

Chronic pain is exhausting, I know.

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By *r and Mrs CACA OP   Couple
45 weeks ago

congleton


"I suggest learning how to swim, it's an easy fix, just do it!

Then get yourself off on a hot hot beach holiday and bake for two or three weeks, obviously with suncream but the combination of exercise and rest will have you out like a light. Leave the kids, this is you time.

Drink lots of water, eat well and exercise (hense swimming). Bring the couldrun with you but go easy on the pills as it can be like cutting off your head to cure a headache.

Chronic pain is exhausting, I know. "

I’ve tried on and off over the years. I reckon it’s deep wet from childhood. My father let me fall in canal as a toddler and only rescued me when I bobbed back up. He was a waste of space d*unken wife beater. So maybe it’s set from that. I have no memory of it but my mother told me once I was older and struggled with swimming lessons.

How true it is I don’t know. But I see no reason for my mother to lie to me x. I try to eat well. A holiday would be lovely. But sadly no time or money. We are looking forward to our honeymoon which curtis’ father is paying for us. I’ve already warned him I shall be going for the rest not to site see he is welcome to do it. I burn far to easily. I’ll end up having a suitcase full of sunscreen x

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By *r and Mrs CACA OP   Couple
45 weeks ago

congleton

Deep set* lol I’m not doing well with my phone auto correct this morning x

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By *adyJayneWoman
45 weeks ago

Burnleyish (She/They)

I've had chronic pain for years, previously because I broke my back... Now because I have ME/CFS.

So back pain... Ideally as much as possible you want to get off co-codamol (I know it's harder said than done) but I was just thrown painkiller after painkiller for years... I was thinking I was fine, had no idea about what drugs I was taking, just what ever I was prescribed.

My mother is a pain management nurse, she asked one day what I was on (we are fairly low contact). By that point I was on tramadol daily, I do not recommend having to go through tramadol withdrawal.

After years and years of pain, self referral to the MSK physio at my local hospital etc...

I found myself a phiso who was also an osteopath. Omg the difference, that and pilates and gentle (then not so gentle as I got better) gym work to build up my core and I was a new woman.

I had 5 maybe 6 glorious pain free years where I went from not being able to walk 20meters to running, learning to snowboard and doing tough mudders.

Sciatica is a nightmare to deal with, I still even now get the occasional twinge (I have herniated disks as a result of the injury...) if the pain is in my legs, this sounds weird but sit on the edge of a table, one where your legs don't touch the floor, then swing your legs back and forth, something about the gentle movement helps the trapped nerves free up, I haven't felt it work as well for sciatic arm pain it it's the best thing my osteo/physio taught me.

Otherwise... Have you tried CBD? It is one of those that either it works for you or it doesn't.

But it's pretty much the only thing that helps with the pain from ME/CFS which is stupid and neurological so can't have anything specific to work on physio/pain management wise (they think and certainly that was why I was told by pain management), I use 100% legal CBD gummies and I've just discovered CBD infused deep heat which is an amazing thing, as long as you wash your hands really well afterwards cause it's like chilli if you don't

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By *atter3127Man
45 weeks ago

stoke on trent

Right that Naproxen with your asthma is probably a bad idea.

If you get a bad reaction from ibuprofen then god help you on that.

I’m asthmatic. Never had a problem with ibuprofen before. In a lot of pain I borrowed a naproxen. Never felt so bad in my entire life. And with it being an NSAID… it’s most likely the reasons for the acid at the least!

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By *r and Mrs CACA OP   Couple
45 weeks ago

congleton


"Right that Naproxen with your asthma is probably a bad idea.

If you get a bad reaction from ibuprofen then god help you on that.

I’m asthmatic. Never had a problem with ibuprofen before. In a lot of pain I borrowed a naproxen. Never felt so bad in my entire life. And with it being an NSAID… it’s most likely the reasons for the acid at the least!"

Since the bad acid I just avoid all of that group of pain killers now. Currently in bed. Have a headache I’m going to slowly ease into my day. My partners walked the kids to school since I had a bad night restless legs and all my joints hurt. No rest for the wicked as they say x

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By *adyJayneWoman
45 weeks ago

Burnleyish (She/They)


"Right that Naproxen with your asthma is probably a bad idea.

If you get a bad reaction from ibuprofen then god help you on that.

I’m asthmatic. Never had a problem with ibuprofen before. In a lot of pain I borrowed a naproxen. Never felt so bad in my entire life. And with it being an NSAID… it’s most likely the reasons for the acid at the least!

Since the bad acid I just avoid all of that group of pain killers now. Currently in bed. Have a headache I’m going to slowly ease into my day. My partners walked the kids to school since I had a bad night restless legs and all my joints hurt. No rest for the wicked as they say x"

I'd discounted fibro and similar earlier (even though someone said it sounded like you had something related) because you original post comment on back issues...

But restless legs and all your joints hurting... Yeah that's sounding more Fibromyalgia/EDS/ME

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By (user no longer on site)
45 weeks ago

I have had chronic pain for 20 years or more. Mostly ignored by my GP when i asked for help. However last year a new GP diagnosed me with Fibro and that, along with several other chronic illnesses, is now being helped a bit. Still in pain, not controlled that yet but i do allow myself to rest more.

Today is an especially bad day and i've been in tears since early morning. Hoping it eases soon.

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By *vlizTV/TS
45 weeks ago

merseyside and anglesey

Yes I do, I have rheumatoid athritis,osteoarthritis, and inflammatory athritis, also need a new hip and have a crushed spinal cord, , in pain 24 /7

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By *icecouple561Couple
Forum Mod

45 weeks ago

East Sussex


"Yes I do, I have rheumatoid athritis,osteoarthritis, and inflammatory athritis, also need a new hip and have a crushed spinal cord, , in pain 24 /7"

That must be exhausting! How do you cope?

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By *unlovin72Man
45 weeks ago

BARNSLEY


"Been tested for carpal tunnel in my hands that came back as fine. Had the hand issues for over six years now. I generally stay away from the doctors if I can help it. They look at me funny because of my age. My partner usually comes with me to support me while I’m there. I just waddle most days. I thank god I drive. But even that is hard work if I do a long drive as my back neck and hands are ruined by the end of day. X"

Hi I suffer with sciatica and arthritis in my right knee I also have neuropathy in my hands and feet due to diabetes and take a drug called pregabalin but you have to be careful as it's strong and has side effects as it's an opioid but I know about it after 24hrs and the drug wears off

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By *rHotNottsMan
45 weeks ago

Dubai & Nottingham


"I get pain in lower back feels stiff and weak struggle to walk at times have had sciatica diagnosed years ago joys of four c sections one epi and four spinals lol. I get pain in my hands my fingers click when I bend them if I don’t they ache. Had bloods done for inflammation it was only at 4 so they said normal. I can’t take ibuprofen anymore as I have asthma. Also it gave me really bad acid reflux to point I couldn’t sleep lost loads of weight. Diabetic too so could be nerve damage. I take Sertaline for my depression that helps alittle. But I’m at a lost been telling my doctor for over a year now. I feel so broken. Xx"

I used to have chronic lower back & leg pain L3 L4 pressing into root nerve when I was younger Much heavier than I am now. Suggested for around 5 years often couldn’t walk or even stand

I used to get nerve root block injections every few months, The strongest painkillers possible I even had Oramorph patches for awhile, tried gabapeptin, progaba, loads of amiltrytyline to get through the night. It left me with nerve damage down the outside of one leg/foot. I did pain clinics and considered lazer on my spine even

You say you can’t take ibuprofen have you tried naproxen? Much easier on your stomach

In the end I gave up asking experts they had no answers and I fixed it with a personal trainer and alternative medicine

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By *rHotNottsMan
45 weeks ago

Dubai & Nottingham


"Been tested for carpal tunnel in my hands that came back as fine. Had the hand issues for over six years now. I generally stay away from the doctors if I can help it. They look at me funny because of my age. My partner usually comes with me to support me while I’m there. I just waddle most days. I thank god I drive. But even that is hard work if I do a long drive as my back neck and hands are ruined by the end of day. X

Hi I suffer with sciatica and arthritis in my right knee I also have neuropathy in my hands and feet due to diabetes and take a drug called pregabalin but you have to be careful as it's strong and has side effects as it's an opioid but I know about it after 24hrs and the drug wears off"

If you take gaba regularly you’re basically robbing yourself of a life - I think I came to conclusion I’d rather have the pain !

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By *inky_couple2020Couple
45 weeks ago

North West


"Been tested for carpal tunnel in my hands that came back as fine. Had the hand issues for over six years now. I generally stay away from the doctors if I can help it. They look at me funny because of my age. My partner usually comes with me to support me while I’m there. I just waddle most days. I thank god I drive. But even that is hard work if I do a long drive as my back neck and hands are ruined by the end of day. X

Hi I suffer with sciatica and arthritis in my right knee I also have neuropathy in my hands and feet due to diabetes and take a drug called pregabalin but you have to be careful as it's strong and has side effects as it's an opioid but I know about it after 24hrs and the drug wears off"

Pregabalin is not an opiod, it is a gabapentinoid. It is anti convulsant that suppresses some central nervous system activity by inhibiting calcium channels.

Pregabalin isn't for short term use, it has to be taken over long periods to be effective. It does have potential side effects, like any drug. You shouldn't be taking pregabalin as an occasional painkiller type medication, that's not how it works and keeping taking it and stopping will just result in lots of up and down side effects.

I've been on pregabalin for neuropathic pain since 2017. It completely floored me at first but within a couple of months, I didn't have any obvious side effects. I've taken it continuously, twice a day, for 7 years. It doesn't completely get rid of my pain, but it makes it liveable with.

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By *inky_couple2020Couple
45 weeks ago

North West


"Been tested for carpal tunnel in my hands that came back as fine. Had the hand issues for over six years now. I generally stay away from the doctors if I can help it. They look at me funny because of my age. My partner usually comes with me to support me while I’m there. I just waddle most days. I thank god I drive. But even that is hard work if I do a long drive as my back neck and hands are ruined by the end of day. X

Hi I suffer with sciatica and arthritis in my right knee I also have neuropathy in my hands and feet due to diabetes and take a drug called pregabalin but you have to be careful as it's strong and has side effects as it's an opioid but I know about it after 24hrs and the drug wears off

If you take gaba regularly you’re basically robbing yourself of a life - I think I came to conclusion I’d rather have the pain ! "

I've been on pregabalin, which is similar. I'd had have no life whatsoever without it, so each person has their own experience that cannot be projected on anyone else.

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By *unlovin72Man
45 weeks ago

BARNSLEY


"Been tested for carpal tunnel in my hands that came back as fine. Had the hand issues for over six years now. I generally stay away from the doctors if I can help it. They look at me funny because of my age. My partner usually comes with me to support me while I’m there. I just waddle most days. I thank god I drive. But even that is hard work if I do a long drive as my back neck and hands are ruined by the end of day. X

Hi I suffer with sciatica and arthritis in my right knee I also have neuropathy in my hands and feet due to diabetes and take a drug called pregabalin but you have to be careful as it's strong and has side effects as it's an opioid but I know about it after 24hrs and the drug wears off

Pregabalin is not an opiod, it is a gabapentinoid. It is anti convulsant that suppresses some central nervous system activity by inhibiting calcium channels.

Pregabalin isn't for short term use, it has to be taken over long periods to be effective. It does have potential side effects, like any drug. You shouldn't be taking pregabalin as an occasional painkiller type medication, that's not how it works and keeping taking it and stopping will just result in lots of up and down side effects.

I've been on pregabalin for neuropathic pain since 2017. It completely floored me at first but within a couple of months, I didn't have any obvious side effects. I've taken it continuously, twice a day, for 7 years. It doesn't completely get rid of my pain, but it makes it liveable with."

I have taken it daily now for nearly 13 years 150mg twice a day I still get pain though my knee usually it was my Dr who told me it was an opioid but I shouldn't trust him he his useless

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By *ittlemissFlirtyCouple
45 weeks ago

Southampton


"Been tested for carpal tunnel in my hands that came back as fine. Had the hand issues for over six years now. I generally stay away from the doctors if I can help it. They look at me funny because of my age. My partner usually comes with me to support me while I’m there. I just waddle most days. I thank god I drive. But even that is hard work if I do a long drive as my back neck and hands are ruined by the end of day. X

Hi I suffer with sciatica and arthritis in my right knee I also have neuropathy in my hands and feet due to diabetes and take a drug called pregabalin but you have to be careful as it's strong and has side effects as it's an opioid but I know about it after 24hrs and the drug wears off

Pregabalin is not an opiod, it is a gabapentinoid. It is anti convulsant that suppresses some central nervous system activity by inhibiting calcium channels.

Pregabalin isn't for short term use, it has to be taken over long periods to be effective. It does have potential side effects, like any drug. You shouldn't be taking pregabalin as an occasional painkiller type medication, that's not how it works and keeping taking it and stopping will just result in lots of up and down side effects.

I've been on pregabalin for neuropathic pain since 2017. It completely floored me at first but within a couple of months, I didn't have any obvious side effects. I've taken it continuously, twice a day, for 7 years. It doesn't completely get rid of my pain, but it makes it liveable with.

I have taken it daily now for nearly 13 years 150mg twice a day I still get pain though my knee usually it was my Dr who told me it was an opioid but I shouldn't trust him he his useless "

He's also wrong, pregabalin is NOT an opiate..

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By *unlovin72Man
45 weeks ago

BARNSLEY


"Been tested for carpal tunnel in my hands that came back as fine. Had the hand issues for over six years now. I generally stay away from the doctors if I can help it. They look at me funny because of my age. My partner usually comes with me to support me while I’m there. I just waddle most days. I thank god I drive. But even that is hard work if I do a long drive as my back neck and hands are ruined by the end of day. X

Hi I suffer with sciatica and arthritis in my right knee I also have neuropathy in my hands and feet due to diabetes and take a drug called pregabalin but you have to be careful as it's strong and has side effects as it's an opioid but I know about it after 24hrs and the drug wears off

Pregabalin is not an opiod, it is a gabapentinoid. It is anti convulsant that suppresses some central nervous system activity by inhibiting calcium channels.

Pregabalin isn't for short term use, it has to be taken over long periods to be effective. It does have potential side effects, like any drug. You shouldn't be taking pregabalin as an occasional painkiller type medication, that's not how it works and keeping taking it and stopping will just result in lots of up and down side effects.

I've been on pregabalin for neuropathic pain since 2017. It completely floored me at first but within a couple of months, I didn't have any obvious side effects. I've taken it continuously, twice a day, for 7 years. It doesn't completely get rid of my pain, but it makes it liveable with.

I have taken it daily now for nearly 13 years 150mg twice a day I still get pain though my knee usually it was my Dr who told me it was an opioid but I shouldn't trust him he his useless

He's also wrong, pregabalin is NOT an opiate.. "

It does help though I would be in agony without it

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By *moothpussyMan
45 weeks ago

Glasgow

I have chronic pain and it is so very draining. I've seen the pain clinic, they are very weary of giving meds. I take painkillers, anti-inflammatory meds, muscle relaxants, tranquillisers and sleeping tablets. Thankfully I have a very good relationship with my physician, hence the meds. Qi gong can be good for chronic pain. Very hot baths help too.

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By *ittlemissFlirtyCouple
45 weeks ago

Southampton


"Been tested for carpal tunnel in my hands that came back as fine. Had the hand issues for over six years now. I generally stay away from the doctors if I can help it. They look at me funny because of my age. My partner usually comes with me to support me while I’m there. I just waddle most days. I thank god I drive. But even that is hard work if I do a long drive as my back neck and hands are ruined by the end of day. X

Hi I suffer with sciatica and arthritis in my right knee I also have neuropathy in my hands and feet due to diabetes and take a drug called pregabalin but you have to be careful as it's strong and has side effects as it's an opioid but I know about it after 24hrs and the drug wears off

Pregabalin is not an opiod, it is a gabapentinoid. It is anti convulsant that suppresses some central nervous system activity by inhibiting calcium channels.

Pregabalin isn't for short term use, it has to be taken over long periods to be effective. It does have potential side effects, like any drug. You shouldn't be taking pregabalin as an occasional painkiller type medication, that's not how it works and keeping taking it and stopping will just result in lots of up and down side effects.

I've been on pregabalin for neuropathic pain since 2017. It completely floored me at first but within a couple of months, I didn't have any obvious side effects. I've taken it continuously, twice a day, for 7 years. It doesn't completely get rid of my pain, but it makes it liveable with.

I have taken it daily now for nearly 13 years 150mg twice a day I still get pain though my knee usually it was my Dr who told me it was an opioid but I shouldn't trust him he his useless

He's also wrong, pregabalin is NOT an opiate..

It does help though I would be in agony without it

"

Oh without a doubt... it's thought to work by blocking the nerve signals which tell you brain something hurts

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By *unlovin72Man
45 weeks ago

BARNSLEY


"Been tested for carpal tunnel in my hands that came back as fine. Had the hand issues for over six years now. I generally stay away from the doctors if I can help it. They look at me funny because of my age. My partner usually comes with me to support me while I’m there. I just waddle most days. I thank god I drive. But even that is hard work if I do a long drive as my back neck and hands are ruined by the end of day. X

Hi I suffer with sciatica and arthritis in my right knee I also have neuropathy in my hands and feet due to diabetes and take a drug called pregabalin but you have to be careful as it's strong and has side effects as it's an opioid but I know about it after 24hrs and the drug wears off

Pregabalin is not an opiod, it is a gabapentinoid. It is anti convulsant that suppresses some central nervous system activity by inhibiting calcium channels.

Pregabalin isn't for short term use, it has to be taken over long periods to be effective. It does have potential side effects, like any drug. You shouldn't be taking pregabalin as an occasional painkiller type medication, that's not how it works and keeping taking it and stopping will just result in lots of up and down side effects.

I've been on pregabalin for neuropathic pain since 2017. It completely floored me at first but within a couple of months, I didn't have any obvious side effects. I've taken it continuously, twice a day, for 7 years. It doesn't completely get rid of my pain, but it makes it liveable with.

I have taken it daily now for nearly 13 years 150mg twice a day I still get pain though my knee usually it was my Dr who told me it was an opioid but I shouldn't trust him he his useless

He's also wrong, pregabalin is NOT an opiate..

It does help though I would be in agony without it

Oh without a doubt... it's thought to work by blocking the nerve signals which tell you brain something hurts

"

The only downside is if you run out and it's a weekend after 24hrs without I feel like s##t having withdrawals

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By *r and Mrs CACA OP   Couple
45 weeks ago

congleton

Have gotten an MRI appointment through so fingers crossed that shows something if it doesn’t I dunno what next steps are x

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By *unlovin72Man
45 weeks ago

BARNSLEY


"Have gotten an MRI appointment through so fingers crossed that shows something if it doesn’t I dunno what next steps are x"

My fingers are crossed for you and hopefully you get some answers

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By *ittlemissFlirtyCouple
45 weeks ago

Southampton


"Been tested for carpal tunnel in my hands that came back as fine. Had the hand issues for over six years now. I generally stay away from the doctors if I can help it. They look at me funny because of my age. My partner usually comes with me to support me while I’m there. I just waddle most days. I thank god I drive. But even that is hard work if I do a long drive as my back neck and hands are ruined by the end of day. X

Hi I suffer with sciatica and arthritis in my right knee I also have neuropathy in my hands and feet due to diabetes and take a drug called pregabalin but you have to be careful as it's strong and has side effects as it's an opioid but I know about it after 24hrs and the drug wears off

Pregabalin is not an opiod, it is a gabapentinoid. It is anti convulsant that suppresses some central nervous system activity by inhibiting calcium channels.

Pregabalin isn't for short term use, it has to be taken over long periods to be effective. It does have potential side effects, like any drug. You shouldn't be taking pregabalin as an occasional painkiller type medication, that's not how it works and keeping taking it and stopping will just result in lots of up and down side effects.

I've been on pregabalin for neuropathic pain since 2017. It completely floored me at first but within a couple of months, I didn't have any obvious side effects. I've taken it continuously, twice a day, for 7 years. It doesn't completely get rid of my pain, but it makes it liveable with.

I have taken it daily now for nearly 13 years 150mg twice a day I still get pain though my knee usually it was my Dr who told me it was an opioid but I shouldn't trust him he his useless

He's also wrong, pregabalin is NOT an opiate..

It does help though I would be in agony without it

Oh without a doubt... it's thought to work by blocking the nerve signals which tell you brain something hurts

The only downside is if you run out and it's a weekend after 24hrs without I feel like s##t having withdrawals "

Oh very much so... if you want to come off them they have to be tapered down slowly

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