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Fibromyalgia

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By (user no longer on site) OP   
over a year ago

I'm sure I'm not the only one on here suffering this god awful condition.

I'm struggling today thanks to the great British weather.

I think I should either hibernate or go to warmer climates in the winter months.

How do you all manage when in pain or flare up.

I'd love someone to come n give me cuddles nothing else. Just some tlc

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By *hunky GentMan
over a year ago

Maldon and Peterborough

Cuddles, kisses.

Massage?

Anything else that helps?

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By (user no longer on site) OP   
over a year ago


"Cuddles, kisses.

Massage?

Anything else that helps? "

thankyou hun. I'm just feeling sorry for myself. Being ill is horrible but goin throu it alone is worse

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By *hunky GentMan
over a year ago

Maldon and Peterborough


"Cuddles, kisses.

Massage?

Anything else that helps? thankyou hun. I'm just feeling sorry for myself. Being ill is horrible but goin throu it alone is worse "

Always happy to chat/listen..

It can't be easy - alone or not.

Hugs xx

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By *in deliveryMan
over a year ago

Tattershall

The power of a cuddle is under rated. more so if naked 2 bodies holding each other can make you feel so good. Roll on some warm weather for you

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By *ealitybitesMan
over a year ago

Belfast

I don't suffer from it but I've had numerous symptoms of long covid for more than 2 years and one of those is relentless muscle and nerve pain which I've been told is very similar to fibromyalgia.

I don't have any answers but I can sympathise.

I just know that in my case it's caused by my nervous system being in permanent fight or flight mode and it's draining more than crippling pain.

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By (user no longer on site) OP   
over a year ago


"The power of a cuddle is under rated. more so if naked 2 bodies holding each other can make you feel so good. Roll on some warm weather for you"
oh cuddles are medicine for the soul.

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By (user no longer on site) OP   
over a year ago


"I don't suffer from it but I've had numerous symptoms of long covid for more than 2 years and one of those is relentless muscle and nerve pain which I've been told is very similar to fibromyalgia.

I don't have any answers but I can sympathise.

I just know that in my case it's caused by my nervous system being in permanent fight or flight mode and it's draining more than crippling pain. "

that's fibro too always in fight or flight

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By *orksRockerMan
over a year ago

Bradford

My ex had it and everyday was a struggle. I'm sorry to hear you are going through it.

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By *ourisfunCouple
over a year ago

Central


"I'm sure I'm not the only one on here suffering this god awful condition.

I'm struggling today thanks to the great British weather.

I think I should either hibernate or go to warmer climates in the winter months.

How do you all manage when in pain or flare up.

I'd love someone to come n give me cuddles nothing else. Just some tlc"

Sorry to hear you're struggling today I have fibromyalgia too and the weather really doesn't help!

I'm not sure what kind of things you already use, but I find heat always makes a huge difference for me in terms of pain. Cbd muscle balm also helps me too.

Hope your flare up starts to ease soon and you can get a bit of relief from it xx

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By *cottish guy 555Man
over a year ago

London

Always here if you want to chat.

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By (user no longer on site) OP   
over a year ago


"I'm sure I'm not the only one on here suffering this god awful condition.

I'm struggling today thanks to the great British weather.

I think I should either hibernate or go to warmer climates in the winter months.

How do you all manage when in pain or flare up.

I'd love someone to come n give me cuddles nothing else. Just some tlc

Sorry to hear you're struggling today I have fibromyalgia too and the weather really doesn't help!

I'm not sure what kind of things you already use, but I find heat always makes a huge difference for me in terms of pain. Cbd muscle balm also helps me too.

Hope your flare up starts to ease soon and you can get a bit of relief from it xx"

I was told to try cbd muscle balm . I hav thc oil but just tends to help me sleep

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By (user no longer on site) OP   
over a year ago


"Always here if you want to chat.

"

I know hun thankyou xxx

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By *injaprincessWoman
over a year ago

herehere

I have fibromyalgia, on days like this I’d normally be in bed or try and go to the sunbed , the pain is excruciating and you can’t explain it

Just remember you can only do what you can

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By (user no longer on site)
over a year ago

I use a massage gun on the Mrs when it flares up, it helps relax her.

Cuddles are also good

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By (user no longer on site) OP   
over a year ago


"I have fibromyalgia, on days like this I’d normally be in bed or try and go to the sunbed , the pain is excruciating and you can’t explain it

Just remember you can only do what you can "

I did wonder if sunbeds mite help I love a soak in a hot bath but I only hav a shower in my house. N I worry I wnt be able to get out if my pains are bad in my arms

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By (user no longer on site) OP   
over a year ago


"I use a massage gun on the Mrs when it flares up, it helps relax her.

Cuddles are also good"

I wish I had someone to give me cuddles. All iv wanted all day

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By *ourisfunCouple
over a year ago

Central


"I'm sure I'm not the only one on here suffering this god awful condition.

I'm struggling today thanks to the great British weather.

I think I should either hibernate or go to warmer climates in the winter months.

How do you all manage when in pain or flare up.

I'd love someone to come n give me cuddles nothing else. Just some tlc

Sorry to hear you're struggling today I have fibromyalgia too and the weather really doesn't help!

I'm not sure what kind of things you already use, but I find heat always makes a huge difference for me in terms of pain. Cbd muscle balm also helps me too.

Hope your flare up starts to ease soon and you can get a bit of relief from it xx I was told to try cbd muscle balm . I hav thc oil but just tends to help me sleep "

I find the muscle balm really good, there are different strengths, so I just got the strongest I could! The smell is really strong, quite like deep heat, and it pretty much works in the same way, I've been swearing by it for the last couple of weeks. There is also a cbd massage bar from lush which is amazing too xx

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By (user no longer on site)
over a year ago

My fwb suffers from fibromyalgia and she has to have hot baths and uses an electric blanket every night to help relieve some of the issues x

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By *oodmessMan
over a year ago

yumsville


"I don't suffer from it but I've had numerous symptoms of long covid for more than 2 years and one of those is relentless muscle and nerve pain which I've been told is very similar to fibromyalgia.

I don't have any answers but I can sympathise.

I just know that in my case it's caused by my nervous system being in permanent fight or flight mode and it's draining more than crippling pain. "

Have a look at L-carnitine, creatine rich foods or supplementation by creatine monohydrate, foods rich in folic acid, vits b, d and magnesium. CO-Q10 too but as with all, you feel a benefit then get bored of taking them.

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By *mf123Man
over a year ago

with one foot out the door

Hope you find a way thru i dont really know much about it but hope you feel better soon

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By (user no longer on site)
over a year ago

I take CBD. It’s a matter of finding the right plant & strength as well. Also I take high high strength vit d and a b vitamin complex (I can’t remember why I take the b - but it helps).

Hydration, warmth & orgasms help too.

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By *ensible lady 1960Woman
over a year ago

Near Bishop Auckland.

i have just read about that condition. Aww hugs coming your way.

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By *ebauchery DivineWoman
over a year ago

Down in Dickleburgh Drive

Haven't found anything that helps so far hope you manage to find something op!

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By (user no longer on site) OP   
over a year ago


"I'm sure I'm not the only one on here suffering this god awful condition.

I'm struggling today thanks to the great British weather.

I think I should either hibernate or go to warmer climates in the winter months.

How do you all manage when in pain or flare up.

I'd love someone to come n give me cuddles nothing else. Just some tlc

Sorry to hear you're struggling today I have fibromyalgia too and the weather really doesn't help!

I'm not sure what kind of things you already use, but I find heat always makes a huge difference for me in terms of pain. Cbd muscle balm also helps me too.

Hope your flare up starts to ease soon and you can get a bit of relief from it xx I was told to try cbd muscle balm . I hav thc oil but just tends to help me sleep

I find the muscle balm really good, there are different strengths, so I just got the strongest I could! The smell is really strong, quite like deep heat, and it pretty much works in the same way, I've been swearing by it for the last couple of weeks. There is also a cbd massage bar from lush which is amazing too xx"

oh il have to go hav a look in lush

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By (user no longer on site) OP   
over a year ago


"My fwb suffers from fibromyalgia and she has to have hot baths and uses an electric blanket every night to help relieve some of the issues x"
I dnt hav a bath in my house only a shower just not the same

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By (user no longer on site) OP   
over a year ago


"I take CBD. It’s a matter of finding the right plant & strength as well. Also I take high high strength vit d and a b vitamin complex (I can’t remember why I take the b - but it helps).

Hydration, warmth & orgasms help too."

I am b12 deficient so get injections for them. I prob dnt drink enough fluids and deffo dnt get enough orgasms

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By (user no longer on site) OP   
over a year ago


"Haven't found anything that helps so far hope you manage to find something op!"
I havnt either hun. It's such a debilitating illness. I'm so fed up of feeling like this.

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By (user no longer on site) OP   
over a year ago


"i have just read about that condition. Aww hugs coming your way. "
thankyou lovely. I feel so sorry for myself .

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By *ablo minibar123Woman
over a year ago

.

You are definitely not the only one on here with it, the first time I had heard of fibro was through fab. I know at least 6 fab friends with it.

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By (user no longer on site) OP   
over a year ago


"I'm sure I'm not the only one on here suffering this god awful condition.

I'm struggling today thanks to the great British weather.

I think I should either hibernate or go to warmer climates in the winter months.

How do you all manage when in pain or flare up.

I'd love someone to come n give me cuddles nothing else. Just some tlc

Sorry to hear you're struggling today I have fibromyalgia too and the weather really doesn't help!

I'm not sure what kind of things you already use, but I find heat always makes a huge difference for me in terms of pain. Cbd muscle balm also helps me too.

Hope your flare up starts to ease soon and you can get a bit of relief from it xx I was told to try cbd muscle balm . I hav thc oil but just tends to help me sleep

I find the muscle balm really good, there are different strengths, so I just got the strongest I could! The smell is really strong, quite like deep heat, and it pretty much works in the same way, I've been swearing by it for the last couple of weeks. There is also a cbd massage bar from lush which is amazing too xx"

I git the bar from lush

I deffo think it helped thankyou so much xxxxx

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By (user no longer on site)
over a year ago

The condition is really taking its toll on me now and causing me to feel sore and tired all the time.

I used to be a very fit and healthy person, played lots of sport, ran, swam etc., but now writing constantly for several minutes causes pains in my hands. Any real excercises (oddly apart from sex) causes my muscles to feel as if they are being stripped off the bones, or are on fire constantly.

How do others combat this? Does diet help?

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By *ourisfunCouple
over a year ago

Central


"I'm sure I'm not the only one on here suffering this god awful condition.

I'm struggling today thanks to the great British weather.

I think I should either hibernate or go to warmer climates in the winter months.

How do you all manage when in pain or flare up.

I'd love someone to come n give me cuddles nothing else. Just some tlc

Sorry to hear you're struggling today I have fibromyalgia too and the weather really doesn't help!

I'm not sure what kind of things you already use, but I find heat always makes a huge difference for me in terms of pain. Cbd muscle balm also helps me too.

Hope your flare up starts to ease soon and you can get a bit of relief from it xx I was told to try cbd muscle balm . I hav thc oil but just tends to help me sleep

I find the muscle balm really good, there are different strengths, so I just got the strongest I could! The smell is really strong, quite like deep heat, and it pretty much works in the same way, I've been swearing by it for the last couple of weeks. There is also a cbd massage bar from lush which is amazing too xxI git the bar from lush

I deffo think it helped thankyou so much xxxxx"

Amazing, I'm so glad it has given you a bit of relief! xx

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By *oodmessMan
over a year ago

yumsville


"The condition is really taking its toll on me now and causing me to feel sore and tired all the time.

I used to be a very fit and healthy person, played lots of sport, ran, swam etc., but now writing constantly for several minutes causes pains in my hands. Any real excercises (oddly apart from sex) causes my muscles to feel as if they are being stripped off the bones, or are on fire constantly.

How do others combat this? Does diet help?

"

It's near the same for me, though as time goes on I've given up as I found myself having more cursory-rudimentary sex, spontaneous blow your socks off sex was an Everest like ask.

Carbs and sugars affect me, as does ultra processed junky take away type foods. Gluten free helps a lot, fresh everything but that's only to keep things ticking really.

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By (user no longer on site) OP   
over a year ago


"The condition is really taking its toll on me now and causing me to feel sore and tired all the time.

I used to be a very fit and healthy person, played lots of sport, ran, swam etc., but now writing constantly for several minutes causes pains in my hands. Any real excercises (oddly apart from sex) causes my muscles to feel as if they are being stripped off the bones, or are on fire constantly.

How do others combat this? Does diet help?

"

so I hav always worked in either retail or bar work. Always busy didn't really exercise but always on the go. Til 2 or so yrs ago . I had crippling pains in my arms I managed to carry on work for a yr but had to finish as I wld spend days n days in bed. I'm on meds they helped for a while but no longer. Thank I need another trip to the docs

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By *eyeYCouple
41 weeks ago

Nr Leicester

Sympathies, I struggle with fibro, D is incredibly understanding but he openly admits in not fully.

The brain fog is sometimes the worst, that and when he's been his normal 'giving' 😈 self, I'm frankly exhausted and can't reciprocate..

I'm fully aware of leaving him frustrated and it hurts.. x

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By (user no longer on site)
18 weeks ago

It's hard n everyday is a struggle, I wish I could just have a day or two a week where it would leave me alone but it just keeps on attacking me all day every day.

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By (user no longer on site)
18 weeks ago

This is a random question but does anyone else's sex life seem to be disappearing with this condition ?

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By *aulaxd2020TV/TS
14 weeks ago

Dudley


"I'm sure I'm not the only one on here suffering this god awful condition.

I'm struggling today thanks to the great British weather.

I think I should either hibernate or go to warmer climates in the winter months.

How do you all manage when in pain or flare up.

I'd love someone to come n give me cuddles nothing else. Just some tlc"

I’ve been waiting 18mths for referral to rheumatologist, appointment came this week I’ve been told I have fibromyalgia, years ago I was diagnosed with sarcoidosis which has similar symptoms, since I had Covid I’ve been suffering badly with pain and fatigue also I was diagnosed with coeliac so now on gluten free diet, also I’ve been having non stop kidney stones for last 3years (which I think is down to over production of Calcium due to sarcoidosis), I believe Covid has triggered my problems, I’m sceptical about the fibromyalgia diagnosis when I already have similar symptoms from sarcoidosis,

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By *cottish guy 555Man
14 weeks ago

London

I've been told a nuga bed helps.

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By *ad NannaWoman
14 weeks ago

East London


"This is a random question but does anyone else's sex life seem to be disappearing with this condition ? "

Mine.

The whole process of resting beforehand and having one or two rest days afterwards, getting my body looking mildly attractive, facing the journey there and back, plus the actual sex itself, puts me off even thinking about sex..

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By *uttymonkeyMan
7 weeks ago

devon

I wonder how many people feel left out / excluded or that they give off the wrong vibe simply because of the pain and exhaustion and having to ease into things. It's the anxiety over letting people down and not meeting expectations as well which is a killer

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