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"I mean, you’ve waited 43 years, define “a long time?”" I've never been this much alone. When you are alone a lot, then you are thinking too much. | |||
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"My youngest son has autism and on the Jeremy Vine show this week they said there could be a link if a parent has autism. I don’t think I am (I AM introverted though) but there is a history of ADHD on his dad’s side (a cousin has it) so who knows, could be something in it. Have you done those online questionnaires? That could be a start. I don’t think private tests are that much are they? If so, that’s shocking!! but maybe shop around to a different area." My son has ASD and most likely ADHD as well. Yes, we paid 800£ for a private evaluation. Not sure about my family history, but nothing major. I was growing up in a communist country,10-15 years behind with everything, so... | |||
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"Also, autism and introversion are completely unrelated ![]() ![]() I know that obviously. So am I in my comfort zone. | |||
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"Also, autism and introversion are completely unrelated ![]() ![]() Crosspost with your post about your son. Implied tone: "this is a common misperception, it happens" rather than "I think you're saying something wildly stupid" | |||
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"ASD and AuDHD folk here! Kudos to you for being introspective and wanting to get to know yourself better! As previously mentioned, introversion is different though there's plenty of overlap with a lot of ASD folk. You don't need to get a formal assessment unless you feel the need for a diagnosis and/or you're looking for allowances, e.g. employer medical benefits You can try researching more on your own first- these books can help: Quiet by Susan Cain Untypical by Pete Wharmby Unmasking Autism by Dr. Devon Price There are of course loads others but those helped us immensely.. try asking for more books on Reddit: r/suggestmeabook Good luck OP! ![]() This is a good point. What would a diagnosis be for? My diagnosis felt like a weight off my shoulders. A name to attach to decades of struggle, rejection, blah blah sob story. I'm self-employed so I don't use any accommodations (I handle my shit in ways that regular employers wouldn't like, but it hurts no one and no one sees it), but the law is there for me just in case. I'm not going to dissuade seeking diagnosis, but some will and they absolutely have valid reasons. | |||
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"I don't want any benefits. I am employed since I'm here and never claimed any. Having issues to blend in with groups. Mostly coming through worse than I am with the majority. Not just online and I'm continuously working on it. Sometimes I realise what I've done wrong, but sometimes absolutely no idea. " I've never claimed benefits either, but disability accommodations as a safeguard are still potentially useful to have. Autism has a fair amount of legal protection. It's one of the pros of a formal diagnosis - that a letter will sit with your GP that give you more leeway should your autism manifest in ways that interfere with your employment. | |||
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"My daughter is pursuing a diagnosis privately. So much harder to spot in girls as they mask so well." Sarah Hendrickx, Women and Girls with Autism Spectrum Disorder: Understanding Life Experiences from Early Childhood to Old Age | |||
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"My daughter is pursuing a diagnosis privately. So much harder to spot in girls as they mask so well." Sadly this is exactly why many girls/women don’t get a diagnosis. Hope you manage to get the help and support for your daughter | |||
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"I don't want any benefits. I am employed since I'm here and never claimed any. Having issues to blend in with groups. Mostly coming through worse than I am with the majority. Not just online and I'm continuously working on it. Sometimes I realise what I've done wrong, but sometimes absolutely no idea. I've never claimed benefits either, but disability accommodations as a safeguard are still potentially useful to have. Autism has a fair amount of legal protection. It's one of the pros of a formal diagnosis - that a letter will sit with your GP that give you more leeway should your autism manifest in ways that interfere with your employment." I'm fully functioning with everything in life, except making friends. So I wouldn't claim anything either way. To be fair I had really long relationships and it was always enough for me with no needs for others. Rusty people skills? I'm okay alone, but feels unnatural, strange recently. No, it's not just loneliness. Starting to question myself about things I was always sure. | |||
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"Aspie here. I was diagnosed at 54. Is it worth getting a formal diagnosis? Only you can decide. For me, yes, it was. " Why did you and how did it help? | |||
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"Ask what do you hope to achieve from professional diagnosis? How will effect/change things for you in your everyday life with professional diagnosis at this stage in life? Will a diagnosis give you access to help that you can't access without it? Many people find a professional diagnosis handy. However many others don't find they need it. Lots of the help out there is self help and open access knowledge. And theirs no silver bullet. You are just wired the way you're wired. Personally I find it's helpful to understand why you are how you are. Why beyond the mask the human world is dam right confusing. However sometimes I think people can do more harm than good with their aproach when they discover this knowledge about themselves and work overtime to "fix it" rather than to live at peace with it and mange it. So I would say really have a think as to if you actually need a diagnosis and what the implications and gains a diagnosis would bring you? Mr" I would just know that either just my people/social skills need work, or I need professional help. Nothing more, nothing less in it. | |||
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"I don't want any benefits. I am employed since I'm here and never claimed any. Having issues to blend in with groups. Mostly coming through worse than I am with the majority. Not just online and I'm continuously working on it. Sometimes I realise what I've done wrong, but sometimes absolutely no idea. I've never claimed benefits either, but disability accommodations as a safeguard are still potentially useful to have. Autism has a fair amount of legal protection. It's one of the pros of a formal diagnosis - that a letter will sit with your GP that give you more leeway should your autism manifest in ways that interfere with your employment. I'm fully functioning with everything in life, except making friends. So I wouldn't claim anything either way. To be fair I had really long relationships and it was always enough for me with no needs for others. Rusty people skills? I'm okay alone, but feels unnatural, strange recently. No, it's not just loneliness. Starting to question myself about things I was always sure. " Fair enough. Upon my diagnosis I was *only* directed towards benefits types claims, for what it's worth. I've claimed nothing and my note on my file with my GP has gone unused. I also don't know to what extent "social skills" can be learned given that it's a flat out neurological difference, it's just something to be worked around. As someone involved in the politics of autism, I also find the "functioning" label to be highly problematic. I'm glad that you've managed to abide by the rules that the powerful set for you. I have too. But it doesn't mean that the majority are right, and it doesn't mean that the only correct way of being is twisting ourselves into pretzels because the majority refuse to consider the world in a different way, bend a little (and then have the audacity to call us inflexible ![]() | |||
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"I got an ADHD diagnosis this year and I've started meds last couple of weeks. I've been described as introvert, extrovert and a bunch of other stuff. ![]() ![]() ![]() I ended up curled up in a tiny little ball recalling my childhood. I found the assessment incredibly challenging. So much to relive. | |||
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"I got an ADHD diagnosis this year and I've started meds last couple of weeks. I've been described as introvert, extrovert and a bunch of other stuff. ![]() ![]() ![]() Unlikely I have ADHD, but unfortunately I had quite few similar experiences like you mentioned above. My dad didn't need a reason to beat me up. Sometimes it was just a simple question after pub closed. "Are you sleeping?" Yes and no answers both got the same results. | |||
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"Aspie here. I was diagnosed at 54. Is it worth getting a formal diagnosis? Only you can decide. For me, yes, it was. Why did you and how did it help?" I wanted answers. And it explains my past and present as well as helping me plan for the future. | |||
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"Aspie here. I was diagnosed at 54. Is it worth getting a formal diagnosis? Only you can decide. For me, yes, it was. Why did you and how did it help? I wanted answers. And it explains my past and present as well as helping me plan for the future. " ![]() | |||
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"Aspie here. I was diagnosed at 54. Is it worth getting a formal diagnosis? Only you can decide. For me, yes, it was. Why did you and how did it help? I wanted answers. And it explains my past and present as well as helping me plan for the future. " Kind of the same reason here. | |||
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" Unlikely I have ADHD, but unfortunately I had quite few similar experiences like you mentioned above. My dad didn't need a reason to beat me up. Sometimes it was just a simple question after pub closed. "Are you sleeping?" Yes and no answers both got the same results. " ![]() | |||
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"I asked the thread to be deleted. Sorry!" I've found it really useful, thank you for posting it. It's good to learn real things. ![]() | |||
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" I ended up curled up in a tiny little ball recalling my childhood. I found the assessment incredibly challenging. So much to relive." I'd already done it a few times, in therapy and EMDR. I go into a dissociative state when I recall it and my emotions switch off - kind of. A really amazing therapist helped me reprocess my CSA and it's tied into the stuff with my dad as she told me he would be angry and hit me if he found out. When I reprocessed it with her, she was crying. I asked her why. She said 'because you can't'. That moment changed my life. Now I can recall things and most of the time when I am triggered I go into hypo-arousal. Much better than fight or flight. It's hard to talk about though, I can only do it with people I trust deeply. Stuff like that can be used against you. You don't get it, unless you get it. Not everyone can. | |||
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" I ended up curled up in a tiny little ball recalling my childhood. I found the assessment incredibly challenging. So much to relive. I'd already done it a few times, in therapy and EMDR. I go into a dissociative state when I recall it and my emotions switch off - kind of. A really amazing therapist helped me reprocess my CSA and it's tied into the stuff with my dad as she told me he would be angry and hit me if he found out. When I reprocessed it with her, she was crying. I asked her why. She said 'because you can't'. That moment changed my life. Now I can recall things and most of the time when I am triggered I go into hypo-arousal. Much better than fight or flight. It's hard to talk about though, I can only do it with people I trust deeply. Stuff like that can be used against you. You don't get it, unless you get it. Not everyone can. " I hear you. I've done the therapy thing too. It was worse in the diagnostic setting - not an established relationship, etc. | |||
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"I asked the thread to be deleted. Sorry!" . People have posted quite a lot of their thoughts though. The problem here is that people will be worried about replying to these kind of threads if too many vanish this way. It's been a problem on the forum before - what to keep, what to delete. I so know that some chefs can get quite focused on their job. I've know a quite a few local ones (just jobbing chefs really), and some of them to often go a bit wild sometimes, to counterbalance it I think. Certainly the idea of counterbalance might help though, especially if you are working long hours. pt | |||
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"I'd fill in some of the online referral questionnaires and see also ask some people close to you, I've recently been referred I am quite introvert and I was surprised when asking some close friends if they thought I had some mild form of autism, they all said yes, more enthusiastically than I'd have liked, but I was surprised when hearing why that I hadn't quite picked up what they had spotted as traits I guess, for example me speaking and taking everything very literally, the need for routine, having no filter, my need for a focus/obsession something that distracts me, my absolute detest for noise, there was lots of other things too but they are the ones that stuck out. I actually didn't want the referral to be honest, when the GP suggested it I kept the forms for months and didn't do them, another visit prompted another lot of forms and some additional ADHD ones, my only issue for me personally is there isn't that much help for autistic adults in this area, what would having a diagnosis give me other than the diagnosis itself, the waiting list is years and as there's no "treatment" I don't really see the point (that's just me though) I have done the forms only through frustration of being given them every appointment I have. If I was younger I'd probably be more invested in trying to understand myself, I guess now I've just accepted the way I am, yes I think different but so what, I've managed to far. Mrs I'm wondering the same. Why bother getting a diagnosis. Friend's adult relation is currently questioning himself but why bother with the angst. What would it achieve apart from a label. If it's a get out of jail free card then maybe, but otherwise many of the 'symptoms' seem to describe many people I know. They can't all be autistic. " That's it, I don't really understand what sticking a label on myself changes so if rather not. For me personally I don't see it making any difference to my quality of life in the slightest. Mrs | |||
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"I asked the thread to be deleted. Sorry!" Oh no I found it quite intriguing, different people's experiences and views are always great. Mrs | |||
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" You don't get it, unless you get it. Not everyone can. I hear you. I've done the therapy thing too. It was worse in the diagnostic setting - not an established relationship, etc." I do get that - makes total sense. That's probably far more usual than how I respond. | |||
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