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Fybromyalgia bad days

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By *carlett 44 OP   Woman
over a year ago

bootle

I'm feeling very sorry for myself today. I suffer with fybromyalgia and today is a bad day.my body is in so much pain. I also hav a headache above my eyes and feel sickly.

To any of you lovely fabbers that suffer with this wonderful condition how do you manage on your bad days. I just want to cry

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By *MisschiefxTV/TS
over a year ago

London


"I'm feeling very sorry for myself today. I suffer with fybromyalgia and today is a bad day.my body is in so much pain. I also hav a headache above my eyes and feel sickly.

To any of you lovely fabbers that suffer with this wonderful condition how do you manage on your bad days. I just want to cry "

Undiagnosed but usually comes with the neurodivergent package deal, along with severe migraines.

I don't have flair ups too often but when I do it's really miserable. Sofa, painkillers and gentle yoga if I can manage it. Stress is a big trigger for me so If I can bring my stress levels down it helps a bit, much easier said than done when youre in pain though.

Take it easy x

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By *rHotNottsMan
over a year ago

Dubai & Nottingham

No but if I have headaches and migraine I take paracetamol instantly if that doesn’t work within 15 mins I take Sumatriptan 50 and it’s gone in 15 mins normally.

Ion Dubai I use walk in oxygen cafe not found then here but you can buy oxygen on Amazon for migraine, i tried it here, it also shifts it within 10-15 mins

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By *MisschiefxTV/TS
over a year ago

London


"No but if I have headaches and migraine I take paracetamol instantly if that doesn’t work within 15 mins I take Sumatriptan 50 and it’s gone in 15 mins normally.

Ion Dubai I use walk in oxygen cafe not found then here but you can buy oxygen on Amazon for migraine, i tried it here, it also shifts it within 10-15 mins "

Interesting, I didn't know that about Oxygen and migraines.

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By *otsossieMan
over a year ago

local, but not too local

Interesting. I find CBD helps with the migraines. I have some cans of that “Trip” drink in the fridge.

That, a glass of water, and a lie down in the dark - maybe with some Chillout tunes.

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By *otsossieMan
over a year ago

local, but not too local


"fybromyalgia "

It seems almost impossible to get a diagnosis for this as it is a diagnosis of exclusion.

These days they seem to blame Long Covid.

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By *rHotNottsMan
over a year ago

Dubai & Nottingham


"No but if I have headaches and migraine I take paracetamol instantly if that doesn’t work within 15 mins I take Sumatriptan 50 and it’s gone in 15 mins normally.

Ion Dubai I use walk in oxygen cafe not found then here but you can buy oxygen on Amazon for migraine, i tried it here, it also shifts it within 10-15 mins

Interesting, I didn't know that about Oxygen and migraines."

Been used a long time even on the NHS but the can I bought on Amazon was just as good as as the machines in cafes/hospitals you just have to keep pumping it rather than sit & breathe as normal . Migraine / cluster headache is caused by lack of oxygen to the brain

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By (user no longer on site)
over a year ago

Jay here,

Not fibro but Polymyalgia, I'm also a chronic cluster headache and chronic migraine sufferer.

Bad days... I do cry sometimes! I don't know how I do it but I just get through even though during a cluster attack I wanna jump of something very high! (Gladly I'm in no state to find something high!)

Remembering each time that last time I got through it and it will pass and get a bit better.

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By *hortarseWoman
over a year ago

Norfolk

I just try rest when I can and take lots pain killers. To many but it helps me through.

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By (user no longer on site)
over a year ago

Oxygen and triptans are the first line of abortive for cluster headaches.

I have home oxygen as well as sumatriptan Injunctions which I carry everywhere with me.

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By (user no longer on site)
over a year ago


"No but if I have headaches and migraine I take paracetamol instantly if that doesn’t work within 15 mins I take Sumatriptan 50 and it’s gone in 15 mins normally.

Ion Dubai I use walk in oxygen cafe not found then here but you can buy oxygen on Amazon for migraine, i tried it here, it also shifts it within 10-15 mins

Interesting, I didn't know that about Oxygen and migraines.

Been used a long time even on the NHS but the can I bought on Amazon was just as good as as the machines in cafes/hospitals you just have to keep pumping it rather than sit & breathe as normal . Migraine / cluster headache is caused by lack of oxygen to the brain"

No one knows the cause of cluster headaches. If we did I may not suffer any longer

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By *ad NannaWoman
over a year ago

East London

It depends what I have to do that day.

I try to exercise a little or just rest, depending on how much energy I have.

I've hit a wall today and am going to have a hot bath later.

I'm too tired and aching to run a bath so I'm going to snooze.

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By *MisschiefxTV/TS
over a year ago

London


"No but if I have headaches and migraine I take paracetamol instantly if that doesn’t work within 15 mins I take Sumatriptan 50 and it’s gone in 15 mins normally.

Ion Dubai I use walk in oxygen cafe not found then here but you can buy oxygen on Amazon for migraine, i tried it here, it also shifts it within 10-15 mins

Interesting, I didn't know that about Oxygen and migraines.

Been used a long time even on the NHS but the can I bought on Amazon was just as good as as the machines in cafes/hospitals you just have to keep pumping it rather than sit & breathe as normal . Migraine / cluster headache is caused by lack of oxygen to the brain

No one knows the cause of cluster headaches. If we did I may not suffer any longer "

I recently realised that gluten was a huge trigger for me. Since I've cut gluten out the amount of migraines I get has gone way down. They were near constant for a while

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By *otsossieMan
over a year ago

local, but not too local


"No one knows the cause of cluster headaches. If we did I may not suffer any longer "

You have my sympathies. I had these after a bad car crash years ago. They don’t call them “suicide headaches” for nothing.

I can’t take sumatriptan, so nothing helped.

Thankfully I just get the odd visual or tinnitus these days.

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By *imi_RougeWoman
over a year ago

Portsmouth

Mostly lie on the sofa and feel sorry for myself.

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