FabSwingers.com forum: •· · Endometriosis

By *eroLondon OP Man
over a year ago

Covent Garden

Dear Lådìes and Persons of Interest...

Earlier I was ambling around the Health & Lifestyle section of my local bookstore before stopping to read a few blurbs about Endometriosis.

What I read was quite profound and educating. This condition affects so many women - much more than I ever imagined - and their quality of life is impacted severely, limiting their activities and having to live with severe discomfort.

Quite an êyê opener. Well, for me anyway.

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By *ad NannaWoman
over a year ago

East London

I had it. It made periods very painful and I used to lose a lot of blood.

A hysterectomy and removal of two large fibroids was the solution for me.

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By (user no longer on site)
over a year ago

Yeah. It's shit mate.

No fun to watch at all.

8 hours of surgery, lasering it off to finally get to the job at hand. Fentanyl pump after which of course, ran out. Nice one guys.

That was brutal to witness, let alone live through.

The amnesia taking that away, was a mild blessing in my eyes.

All the sympathy in the world because I'll be fucked if I could ever truly empathise that kind of misery.

Horrid.

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By *naswingdressWoman
over a year ago

Manchester (she/her)

When they last looked, I had mild endometriosis. I don't know what is endometriosis and what is miscellaneous other lady bits fuckery. It's a mess down there for me.

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By *inky_couple2020Couple
over a year ago

North West

I have endo and also adenomyosis. Adenomyosis is where uterine lining grows in the muscle walls of the uterus and of course, proliferates and sheds with each cycle, but there's nowhere for the blood to go. I also have uterine prolapse. I'm supposed to be in a medically induced menopause to control it, in anticipation of total hysterectomy but I've bled most of this month so far and am regularly in agony with it. My uterine prolapse means I can't easily use internal sanitary protection so I am using period knickers. They work but are horribly hot and stifling in this humidity.

I've also become anaemic as a result of the internal and uterine wall bleeding.

The hysterectomy will not happen this side of 2024 and I'm supposed to take HRT because of the menopause, but the minute I took HRT, I started bleeding again, all symptoms back but they haven't gone away again when the HRT has been stopped. I now risk osteoporosis and heart problems to add to my problems.

Fucking ace, being female

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By *aitonelMan
over a year ago

Travelling

It's the devil's bdsm fetish which he forces upon women without their consent.

Friend of mine suffers greatly from it, and even the whole process of diagnosis and possible "treatments" is grade A Fubar.

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By *naswingdressWoman
over a year ago

Manchester (she/her)

"It's the devil's bdsm fetish which he forces upon women without their consent.

Friend of mine suffers greatly from it, and even the whole process of diagnosis and possible "treatments" is grade A Fubar. "

Diagnosis apparently takes years and a lot of women are told to just suck up the pain.

Mine was found incidentally while investigating and correcting what turned out to be a life threatening incident.

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By *eroLondon OP Man
over a year ago

Covent Garden

"I had it. It made periods very painful and I used to lose a lot of blood.

A hysterectomy and removal of two large fibroids was the solution for me."

•

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By *aitonelMan
over a year ago

Travelling

"It's the devil's bdsm fetish which he forces upon women without their consent.

Friend of mine suffers greatly from it, and even the whole process of diagnosis and possible "treatments" is grade A Fubar.

Diagnosis apparently takes years and a lot of women are told to just suck up the pain.

Mine was found incidentally while investigating and correcting what turned out to be a life threatening incident."

It is more a case of the diagnosis is standard, but the effort put in to diagnosing it takes that long.

Indeed it is simply brushed off and put down to standard pains.

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By *naswingdressWoman
over a year ago

Manchester (she/her)

"It's the devil's bdsm fetish which he forces upon women without their consent.

Friend of mine suffers greatly from it, and even the whole process of diagnosis and possible "treatments" is grade A Fubar.

Diagnosis apparently takes years and a lot of women are told to just suck up the pain.

Mine was found incidentally while investigating and correcting what turned out to be a life threatening incident.

It is more a case of the diagnosis is standard, but the effort put in to diagnosing it takes that long.

Indeed it is simply brushed off and put down to standard pains. "

Yes, that's my understanding. Obviously my diagnosis was non standard. I've had no treatment since the surgery and have indeed sucked up any pain (it's usually manageable, I suspect my endometriosis problems are minor compared to others, and especially compared to my miscellaneous shitty uterus problems)

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By *ehindHerEyesCouple
over a year ago

SomewhereOnlyWeKnow

Fingers crossed from what I'm reading in the press is scientists in Japan may have found a cause and potential cure/treatment for it and are going into human trials woth it now.

Australia are also making some breakthroughs too.

Tinder x

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By *inky_couple2020Couple
over a year ago

North West

"Fingers crossed from what I'm reading in the press is scientists in Japan may have found a cause and potential cure/treatment for it and are going into human trials woth it now.

Australia are also making some breakthroughs too.

Tinder x"

I read the original paper and the press (as usual) have massively hyped it. There's a possibility that endo is triggered or sustained by the same bacteria that cause gum disease and that long term antibiotics might help, but the animal models used (rats) do not have regular menstrual cycles under the same cyclical hormonal control as humans, so there's every possiblity it's completely irrelevant to humans. I'm not getting my hopes up!

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By (user no longer on site)
over a year ago

I wish more people knew about it.

I'm waiting for another referral to the Endo centre but until then, it's pain management which doesn't do wonders for my stomach with the different pain meds, dealing with side effects etc.

Women's health isn't a top priority it seems.

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By *eroLondon OP Man
over a year ago

Covent Garden

"I have endo and also adenomyosis. Adenomyosis is where uterine lining grows in the muscle walls of the uterus and of course, proliferates and sheds with each cycle, but there's nowhere for the blood to go. I also have uterine prolapse. I'm supposed to be in a medically induced menopause to control it, in anticipation of total hysterectomy but I've bled most of this month so far and am regularly in agony with it. My uterine prolapse means I can't easily use internal sanitary protection so I am using period knickers. They work but are horribly hot and stifling in this humidity.

I've also become anaemic as a result of the internal and uterine wall bleeding.

Fucking ace, being female

•

Heavens above KC²! You don't do things in ½ measures, do you?!

You're still pretty fly for a "female".

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By *ehindHerEyesCouple
over a year ago

SomewhereOnlyWeKnow

"Fingers crossed from what I'm reading in the press is scientists in Japan may have found a cause and potential cure/treatment for it and are going into human trials woth it now.

Australia are also making some breakthroughs too.

Tinder x

From what I've read the Australian research is based more around targeted therapy for the specific type. Either way then main thing that need to happen is it being able to be diagnosed quicker rather than dismissed as 'time of the month'

Tinder x

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By *inky_couple2020Couple
over a year ago

North West

"Fingers crossed from what I'm reading in the press is scientists in Japan may have found a cause and potential cure/treatment for it and are going into human trials woth it now.

Australia are also making some breakthroughs too.

Tinder x

Tinder x"

Absolutely! I've had symptoms of endo and adeno since I was 17, so over 20yrs, but only got concrete diagnosis and interventions of a sort this past 6 months.

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By *eroLondon OP Man
over a year ago

Covent Garden

"Fingers crossed from what I'm reading in the press is scientists in Japan may have found a cause and potential cure/treatment for it and are going into human trials woth it now.

Australia are also making some breakthroughs too.

Tinder x"

•

Fingers crossed indeed!

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By (user no longer on site)
over a year ago

There's no amount of mefenamic acid in the world that helps us

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By *eroLondon OP Man
over a year ago

Covent Garden

"I wish more people knew about it.

I'm waiting for another referral to the Endo centre but until then, it's pain management which doesn't do wonders for my stomach with the different pain meds, dealing with side effects etc.

Women's health isn't a top priority it seems.

•

Best of luck with the referral, my Scandi' ice flower.

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By (user no longer on site)
over a year ago

Had symptoms for 10 years now, finally seen someone and told my only choice was to have the mirena coil because my "bmi is too high" for a proper investigation ie keyhole surgery

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By *imply DeeWoman
over a year ago

Wherever

I’m an endometriosis sufferer.

It affects every single aspect of my life at the moment, and with a peri menopause on the top of it - it’s a nightmare.

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By *om and JennieCouple
over a year ago

Chams or Socials

I was diagnosed many years ago aged 19. Because I took my dad to Gynae appointments with me. My older male consultants spoke to him & not me. It took over my life because of where I had it. 4 years post-hysterectomy I still have 1 problem but can deal with it.

To any one who has a child complaining of severe period pain, please don’t dismiss it.

J x

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By *naswingdressWoman
over a year ago

Manchester (she/her)

"Had symptoms for 10 years now, finally seen someone and told my only choice was to have the mirena coil because my "bmi is too high" for a proper investigation ie keyhole surgery

I love my mirena coil but wtf?

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By (user no longer on site)
over a year ago

"Had symptoms for 10 years now, finally seen someone and told my only choice was to have the mirena coil because my "bmi is too high" for a proper investigation ie keyhole surgery

I love my mirena coil but wtf?"

Tell me about it, all he was concerned about was my weight, I told him "Tell me something I don't know" keen to exercise more than what I do already but when I have one week out of the month where I'm relatively pain free it's not easy but I've had the coil for 3 weeks now so I'll see how it goes

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By *eroLondon OP Man
over a year ago

Covent Garden

"Had symptoms for 10 years now, finally seen someone and told my only choice was to have the mirena coil because my "bmi is too high" for a proper investigation ie keyhole surgery

I love my mirena coil but wtf?

•

I echo the "wtf" comment from above. Is there any possibility that you could get a second opinion?

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By (user no longer on site)
over a year ago

"Had symptoms for 10 years now, finally seen someone and told my only choice was to have the mirena coil because my "bmi is too high" for a proper investigation ie keyhole surgery

I love my mirena coil but wtf?

•

I echo the "wtf" comment from above. Is there any possibility that you could get a second opinion?"

My GP said he'd have no issue with me having keyhole as I've had it before, don't smoke/rarely drink and generally in good health but the gynae has insisted I try the coil first

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By *imply DeeWoman
over a year ago

Wherever

"Had symptoms for 10 years now, finally seen someone and told my only choice was to have the mirena coil because my "bmi is too high" for a proper investigation ie keyhole surgery

I love my mirena coil but wtf?

•

I echo the "wtf" comment from above. Is there any possibility that you could get a second opinion?

My GP said he'd have no issue with me having keyhole as I've had it before, don't smoke/rarely drink and generally in good health but the gynae has insisted I try the coil first"

Same thing happened to me so it looks like it’s not uncommon, but still, I stand with wtf comment too.

I refused coil and they put me on Provera which gave me s******l thoughts so I stopped using it swiftly.

All I have left now is hope and despair as I don’t qualify for surgery.

Fingers crossed coil works for you.

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By *inky_couple2020Couple
over a year ago

North West

"Had symptoms for 10 years now, finally seen someone and told my only choice was to have the mirena coil because my "bmi is too high" for a proper investigation ie keyhole surgery

I love my mirena coil but wtf?

•

I echo the "wtf" comment from above. Is there any possibility that you could get a second opinion?

My GP said he'd have no issue with me having keyhole as I've had it before, don't smoke/rarely drink and generally in good health but the gynae has insisted I try the coil first

Same thing happened to me so it looks like it’s not uncommon, but still, I stand with wtf comment too.

I refused coil and they put me on Provera which gave me s******l thoughts so I stopped using it swiftly.

All I have left now is hope and despair as I don’t qualify for surgery.

Fingers crossed coil works for you. "

Depo Provera is the devil's work! Horrific stuff. I had it twice after my son was born and it made me want to die. I'm now on ProStap, but due to the HRT they insisted on introducing, I'm back to random bleeding etc. It started again today, I had 2 days with no bleeding and then, it's back

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By *injaprincessWoman
over a year ago

herehere

Love to all beautiful ladies suffering with this and many other hidden conditions

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By (user no longer on site)
over a year ago

Now - imagine if a man went to his GP complaining of extreme abdominal pain, contraction like pain, contraction of the bowels which results in being bound to the toilet, non stop - severe bleeding, painful back, hips, pelvis, thighs, legs. Now imagine all that and still having to do your job, look after your child(ren) if you have them, cook/clean, put on a smile and brave face. He'd get put into the ICU until he was all sorted.

Ontop of that for uterus owners, your GP doesn't understand a slither of what you go through and insists the pain is manageable with OTC painkillers, hydration and some rest (ie the rest you get at night time). If you so happen to get referred on, it's usually to a consultant who has no clue in endometriosis. (I suggest all people needing endometriosis surgery to research for a BSGE surgeon). Endometriosis can not be diagnosed through an MRI like some hospitals might suggest, the gold standard for diagnosing and treating this is via a laparoscopy (keyhole surgery) and excision of endo (NOT ablation). Adenomyosis could so be confirmed too however the treatment for that is a hysterectomy.

Don't let anybody fob you off. If you can't function or cope with the pain of your menstrual cycle then speak to someone and insist you are referred. You can give the GP all the referral information they need if you research and pick the centre/surgeon you want to go to. I travelled 3 hours to the surgeon I wanted to do my surgery.

As a fellow endo sufferer, I know what it's like. It's not nice, it is isolating and I understand the feeling of not wanting to make a fuss and just to get on with it. If you feel like that, it's time to get the ball rolling.

and

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By *eroLondon OP Man
over a year ago

Covent Garden

Love to all beautiful ladies suffering with this and many other hidden conditions

•

Absolutely! And thank you •all• for sharing.

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By *eliciousDiva69Woman
over a year ago

Schitts Creek

[Removed by poster at 25/06/23 20:48:50]

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By (user no longer on site)
over a year ago

You hit the nail on the head!

Actually these days my actual periods aren't too bad in comparison to what I've suffered with since they started 30 years ago but mid cycle onwards I can barely walk some days, this lasts until my period finishes and then I have a good week and back to the pain, its shit but have to keep going

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By *eliciousDiva69Woman
over a year ago

Schitts Creek

Debilitated me from the age of 11 but undiagnosed until I had cancerous cells removed in my 20s. Even then the operations to remove it was only ever a temporary reprieve

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By (user no longer on site)
over a year ago

Horrible amd very debilitating. From a male perspective, I feel that its something that isnt talked about much but can ve horrendous for those suffering with it.

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By (user no longer on site)
over a year ago

Ah endo. The enemy of the womb.

I had endo and adenomyosis. I was really lucky to get from diagnosis to hysterectomy in 18 months. Weirdly I got a letter from the surgeon while I was away telling me they found fibroids when they operated too.

I have huge sympathy for anyone suffering this, it’s absolutely bloody horrific. As said above, 3/4 days a month with no pain, over the counter painkillers don’t touch it, anaemia from the bleeding, get in the bin.

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By *hawn ScottMan
over a year ago

london Brixton

I've also become anaemic as a result of the internal and uterine wall bleeding.

Fucking ace, being female

My wife has both of those and was in agony for a week.every month. She wanted a kid so manged to have one via ivf but she will be getting a hysterectomy later this year

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