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Rheumatoid arthritis

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By (user no longer on site) OP   
over a year ago

Around a year ago I advised someone to visit the doctors because she was feeling a little under the weather. She visited the doctors months later and she was eventually diagnosed with rheumatoid arthritis.

I met her again today and I can't believe how much she has deteriorated

. She can't walk a single step without holding on to something. It's quite shocking how she has changed for the worst.

I would like to know if anyone here is familiar with rheumatoid arthritis? Is there any treatment or medication I can tell her about? Any information will be very appreciated. Comment here or feel free to message me privately.

Thank you.

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By (user no longer on site)
over a year ago

I'm not sure anyone here would be able or qualified better than her own gp?

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By (user no longer on site) OP   
over a year ago


"I'm not sure anyone here would be able or qualified better than her own gp? "

This is the thing. I can't believe how long it took her gp to diagnose her with it.

Honestly I have no faith in the doctors around here at all.

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By *allySlinkyWoman
over a year ago

Leeds

There is the National Rheumatoid Arthritis Society which has local branches

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By (user no longer on site) OP   
over a year ago


"There is the National Rheumatoid Arthritis Society which has local branches"

Thank you noted

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By *inky_couple2020Couple
over a year ago

North West

If she has not been already, she should be referred to a Rheumatologist (specialist hospital consultant). There are treatments that GPs cannot prescribe, but consultants can. However, there is likely to be a very long waiting list with the present state of the NHS.

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By (user no longer on site)
over a year ago


"I'm not sure anyone here would be able or qualified better than her own gp?

This is the thing. I can't believe how long it took her gp to diagnose her with it.

Honestly I have no faith in the doctors around here at all."

She should have been referred to rheumatology.

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By (user no longer on site)
over a year ago

As mentioned the NRSA are very helpful.

Medication wise, I was prescribed Amgevita, I self Inject every 2 weeks and it's been very positive for me so far.

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By (user no longer on site) OP   
over a year ago


"If she has not been already, she should be referred to a Rheumatologist (specialist hospital consultant). There are treatments that GPs cannot prescribe, but consultants can. However, there is likely to be a very long waiting list with the present state of the NHS. "

She hasn't been referred to them.

Thanks

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By (user no longer on site)
over a year ago


"If she has not been already, she should be referred to a Rheumatologist (specialist hospital consultant). There are treatments that GPs cannot prescribe, but consultants can. However, there is likely to be a very long waiting list with the present state of the NHS. "

This, nothing changed for my sister until consultant became involved. Now excellent monitoring and access to treatments.

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By (user no longer on site)
over a year ago

Your friend has my sympathy ,my mother suffered from it most of her adult life,hopefully there are some better treatments for it now.

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By (user no longer on site) OP   
over a year ago


"I'm not sure anyone here would be able or qualified better than her own gp?

This is the thing. I can't believe how long it took her gp to diagnose her with it.

Honestly I have no faith in the doctors around here at all.

She should have been referred to rheumatology. "

She hasn't. I will tell her, thanks.

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By (user no longer on site) OP   
over a year ago


"As mentioned the NRSA are very helpful.

Medication wise, I was prescribed Amgevita, I self Inject every 2 weeks and it's been very positive for me so far. "

I see

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By (user no longer on site)
over a year ago

There is a form of RA that is sero-negative and not all GPs seem to be aware of that. They get bloods done, all are clear, no diagnosis.

It's not a regulation treatment but the oral contraceptive pill has a beneficial effect on joint inflammation. GPs are not permitted to prescribe it for RA due to licensing. Google it.

Also, trial and error cutting out activities and food/drink will reduce inflammation. Anything unnatural or processed. Anything that makes your body work harder will add the load on their system and aggravate the inflammation.

There are biological therapies that can have a profound effect on turning symptoms around.

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By *rettyflamingoWoman
over a year ago

Where the flamboyance of flamingos live

My daughter was diagnosed with Crohn’s during covid and along with that came RA, which is quite common as it’s an auto immune condition. She has a Crohn’s specialist

And a rheumatologist, she’s only 31. It’s been difficult to get the drugs right for her over the last 2 yrs.

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By (user no longer on site) OP   
over a year ago


"If she has not been already, she should be referred to a Rheumatologist (specialist hospital consultant). There are treatments that GPs cannot prescribe, but consultants can. However, there is likely to be a very long waiting list with the present state of the NHS.

This, nothing changed for my sister until consultant became involved. Now excellent monitoring and access to treatments."

Sounds good

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By (user no longer on site) OP   
over a year ago


"Your friend has my sympathy ,my mother suffered from it most of her adult life,hopefully there are some better treatments for it now."

Sorry to hear that. Yes hopefully there are better treatments.

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By (user no longer on site) OP   
over a year ago


"My daughter was diagnosed with Crohn’s during covid and along with that came RA, which is quite common as it’s an auto immune condition. She has a Crohn’s specialist

And a rheumatologist, she’s only 31. It’s been difficult to get the drugs right for her over the last 2 yrs."

hope she gets all she needs soon

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By (user no longer on site) OP   
over a year ago


"There is a form of RA that is sero-negative and not all GPs seem to be aware of that. They get bloods done, all are clear, no diagnosis.

It's not a regulation treatment but the oral contraceptive pill has a beneficial effect on joint inflammation. GPs are not permitted to prescribe it for RA due to licensing. Google it.

Also, trial and error cutting out activities and food/drink will reduce inflammation. Anything unnatural or processed. Anything that makes your body work harder will add the load on their system and aggravate the inflammation.

There are biological therapies that can have a profound effect on turning symptoms around."

Gotcha

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By (user no longer on site)
over a year ago

My ex husband suffered from this as a child.. Eventually he seemed to grow out if it, but I'm sure it will come back to haunt him as he gets older

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