FabSwingers.com mobile

Join us FREE, we're FREE to use

Web's largest swingers site since 2006.

Already registered?
Login here

Back to forum list
Back to The Lounge

I have Bells Palsy

Jump to newest
 

By (user no longer on site) OP   
over a year ago

I have been diagnosed with Bells Palsy. I spent 2 days at hospital, had various tests because they first thought i'd had a stroke. I had mostly great treatment, care and a small amount of advice. I was shell shocked so didn't ask enough questions once diagnosed. My GP is very difficult to get an appointment of any kind. I have used doctor google and facebook but i wondered if anyone here has had it and can offer some basic advice on care etc

Reply privatelyReply in forumReply +quote
 

By (user no longer on site)
over a year ago

I haven't had it Nell but I remember a guy starting a thread in the past few weeks about his own very recent experience.

Sending a cwtch your way

NBVN x

Reply privatelyReply in forumReply +quote
 

By *r WhispererMan
over a year ago

brynmawr

I don’t know much about it except despite how bad it can sometimes look, it passes with no permanent effect.

I remember a famous motorcycle racer was stuck with it just before a race in Malaysia back in the 90’s, he continued to race and did well. The biggest problem he had was the inability to blink which was a problem with the heat and sweat , his solution a ladies sanitary towel taped inside his helmet across his forehead to soak up the sweat

Reply privatelyReply in forumReply +quote
 

By (user no longer on site)
over a year ago


"I don’t know much about it except despite how bad it can sometimes look, it passes with no permanent effect.

I remember a famous motorcycle racer was stuck with it just before a race in Malaysia back in the 90’s, he continued to race and did well. The biggest problem he had was the inability to blink which was a problem with the heat and sweat , his solution a ladies sanitary towel taped inside his helmet across his forehead to soak up the sweat "

Chris walker

Hope you recover soon op

Reply privatelyReply in forumReply +quote
 

By *wisted999Man
over a year ago

North Bucks

Someone else on here has spoken of having it very recently. Think it was Fabio?

Reply privatelyReply in forumReply +quote
 

By *ealitybitesMan
over a year ago

Belfast

I had it 16 years ago. It's from the same viral family that causes shingles.

Some recover in weeks, some never recover.

It took me 8 months to go from an initial 8/10 score where the right side of my face was completely paralysed and I couldn't blink properly and eating and drinking was a nightmare to a 3/10 which is when they said they could do nothing more.

That was a joke in itself because they hadn't done a single thing.

During those 8 months not one doctor or medical professional put a finger on me. All they did was sit across a desk once a month and instruct me to move my face in certain ways.

I paid privately for months of acupuncture which did help a little but even all these years later I still have nerve damage.

I tend to slur my speech when tired and both sides of by face still operate independently.

My advice is to push for as much treatment as possible including physio.

The many months of antibiotics also affected my gut health which has in turn caused further issues so be sure to take a continuous course of probiotics to avoid ongoing problems.

Andrew Lloyd Webber wrote an in depth paper on it when he suffered from it and spent a lot of time and money doing his own research.

Reply privatelyReply in forumReply +quote
 

By *agneto.Man
over a year ago

Bham

Only familiar with it through wrestling commentator Jim Ross.

Reply privatelyReply in forumReply +quote
 

By (user no longer on site)
over a year ago

Oh no I've had it and kind of still got it. Most people recover from it quickly but a few others have it for longer.

Acupuncture helped me and if its serious you might get a referral. There are also some great support groups.

Touch wood you recover quick though x

Reply privatelyReply in forumReply +quote
 

By *arkus1812Man
over a year ago

Lifes departure lounge NN9 Northamptonshire East not West MidlandsMidlands

Go to search forum subjects enter Bells Palsy and it will bring up previous threads on the subject.

I have had shingles in the past and that was quite painful, my understanding of Bells Palsy is that it can be worse than shingles.

Reply privatelyReply in forumReply +quote
 

By *abioMan
over a year ago

Newcastle and Gateshead


"I have been diagnosed with Bells Palsy. I spent 2 days at hospital, had various tests because they first thought i'd had a stroke. I had mostly great treatment, care and a small amount of advice. I was shell shocked so didn't ask enough questions once diagnosed. My GP is very difficult to get an appointment of any kind. I have used doctor google and facebook but i wondered if anyone here has had it and can offer some basic advice on care etc

"

I only laugh because I am about 2 weeks ahead of you in what they call the recovery… so after the 10 days of steroids and anti virals it’s honestly a case of just waiting!

On the practical side… since you may only have half a month working eating hard food is a bitch!! So eating for example jacket potatoes are brilliant and then you can go mad on the fillings

Also… get some drink straws in…. Some artificial tears to help with keeping your eyes moist… and some medical tape to keep your eye closed at night

Reply privatelyReply in forumReply +quote
 

By *abioMan
over a year ago

Newcastle and Gateshead


"I haven't had it Nell but I remember a guy starting a thread in the past few weeks about his own very recent experience.

Sending a cwtch your way

NBVN x"

That would be me!! I’ll try and find the thread..

Reply privatelyReply in forumReply +quote
 

By (user no longer on site) OP   
over a year ago


"I haven't had it Nell but I remember a guy starting a thread in the past few weeks about his own very recent experience.

Sending a cwtch your way

NBVN x"

I will look for it, thank you x

Reply privatelyReply in forumReply +quote
 

By (user no longer on site) OP   
over a year ago


"I don’t know much about it except despite how bad it can sometimes look, it passes with no permanent effect.

I remember a famous motorcycle racer was stuck with it just before a race in Malaysia back in the 90’s, he continued to race and did well. The biggest problem he had was the inability to blink which was a problem with the heat and sweat , his solution a ladies sanitary towel taped inside his helmet across his forehead to soak up the sweat "

Now there's a good idea thank you x

Reply privatelyReply in forumReply +quote
 

By (user no longer on site) OP   
over a year ago


"I don’t know much about it except despite how bad it can sometimes look, it passes with no permanent effect.

I remember a famous motorcycle racer was stuck with it just before a race in Malaysia back in the 90’s, he continued to race and did well. The biggest problem he had was the inability to blink which was a problem with the heat and sweat , his solution a ladies sanitary towel taped inside his helmet across his forehead to soak up the sweat

Chris walker

Hope you recover soon op"

thank you, i read this to hubby and despite him not mentioning them before, he remembers Chris Walker x

Reply privatelyReply in forumReply +quote
 

By (user no longer on site) OP   
over a year ago


"Someone else on here has spoken of having it very recently. Think it was Fabio? "

Thank you x

Reply privatelyReply in forumReply +quote
 

By (user no longer on site) OP   
over a year ago


"I had it 16 years ago. It's from the same viral family that causes shingles.

Some recover in weeks, some never recover.

It took me 8 months to go from an initial 8/10 score where the right side of my face was completely paralysed and I couldn't blink properly and eating and drinking was a nightmare to a 3/10 which is when they said they could do nothing more.

That was a joke in itself because they hadn't done a single thing.

During those 8 months not one doctor or medical professional put a finger on me. All they did was sit across a desk once a month and instruct me to move my face in certain ways.

I paid privately for months of acupuncture which did help a little but even all these years later I still have nerve damage.

I tend to slur my speech when tired and both sides of by face still operate independently.

My advice is to push for as much treatment as possible including physio.

The many months of antibiotics also affected my gut health which has in turn caused further issues so be sure to take a continuous course of probiotics to avoid ongoing problems.

Andrew Lloyd Webber wrote an in depth paper on it when he suffered from it and spent a lot of time and money doing his own research. "

Thank you, that is really informative and helpful. I am going to battle to see my GP tomorrow. I have been given high doses of steriods but no extra antibiotics, i already take a small dose of preventative antibiotics but oddly the consultant never mentioned infection or virus causing it.

Thank you x

Reply privatelyReply in forumReply +quote
 

By (user no longer on site) OP   
over a year ago


"Only familiar with it through wrestling commentator Jim Ross. "

x

Reply privatelyReply in forumReply +quote
 

By *r WhispererMan
over a year ago

brynmawr

It was the stalker himself

Reply privatelyReply in forumReply +quote
 

By (user no longer on site) OP   
over a year ago


"Oh no I've had it and kind of still got it. Most people recover from it quickly but a few others have it for longer.

Acupuncture helped me and if its serious you might get a referral. There are also some great support groups.

Touch wood you recover quick though x"

Thank you, i will look into accupuncture as well as physio.

I hope yours improves too x

Reply privatelyReply in forumReply +quote
 

By (user no longer on site) OP   
over a year ago


"Go to search forum subjects enter Bells Palsy and it will bring up previous threads on the subject.

I have had shingles in the past and that was quite painful, my understanding of Bells Palsy is that it can be worse than shingles.

"

Thank you, i will do x

Reply privatelyReply in forumReply +quote
 

By *uke olovingmanMan
over a year ago

Gravesend

Hugs Nell xx

Reply privatelyReply in forumReply +quote
 

By (user no longer on site) OP   
over a year ago


"I have been diagnosed with Bells Palsy. I spent 2 days at hospital, had various tests because they first thought i'd had a stroke. I had mostly great treatment, care and a small amount of advice. I was shell shocked so didn't ask enough questions once diagnosed. My GP is very difficult to get an appointment of any kind. I have used doctor google and facebook but i wondered if anyone here has had it and can offer some basic advice on care etc

I only laugh because I am about 2 weeks ahead of you in what they call the recovery… so after the 10 days of steroids and anti virals it’s honestly a case of just waiting!

On the practical side… since you may only have half a month working eating hard food is a bitch!! So eating for example jacket potatoes are brilliant and then you can go mad on the fillings

Also… get some drink straws in…. Some artificial tears to help with keeping your eyes moist… and some medical tape to keep your eye closed at night "

Thank you that's very informative.

I have got steriods to take and gel tears (which i use anyway) but no anti virals so i will ask my GP about them. I also wear a sressing over my eye at night to keep it moist because it's not blinking or closing properly.

As you say, eating and drinking is difficult, luckily i already have straws (washable ones), and am trying to eat suitable food lol.

Thank you x

Reply privatelyReply in forumReply +quote
 

By *ed VoluptaWoman
over a year ago

Wirral.

Aw, big hugs Nell.

I can't offer much more than the responses above, only to say that my friend had it last year. Was quite scary as I was with her & thought it was a stroke. We went straight to A&E & they were brilliant. Thankfully she was fine after a couple of weeks, with no lasting effects. Hopefully this will be you

Reply privatelyReply in forumReply +quote
 

By (user no longer on site) OP   
over a year ago


"It was the stalker himself "

?

Reply privatelyReply in forumReply +quote
 

By (user no longer on site) OP   
over a year ago


"Hugs Nell xx"

Thank you x

Reply privatelyReply in forumReply +quote
 

By *issmorganWoman
over a year ago

Calderdale innit

Hi Nell ,

Yes I've had it about 5 years ago

The doctor gave me steroids for 2 weeks to take & I was lucky that I made a full recovery .

It took about 6 weeks to 8 weeks before everything got back to normal.

Feel free to message me if you want to x

Reply privatelyReply in forumReply +quote
 

By (user no longer on site) OP   
over a year ago


"Aw, big hugs Nell.

I can't offer much more than the responses above, only to say that my friend had it last year. Was quite scary as I was with her & thought it was a stroke. We went straight to A&E & they were brilliant. Thankfully she was fine after a couple of weeks, with no lasting effects. Hopefully this will be you "

Thank you, i went to A&E too and had the stroke team (FAST) come runing into the room, excellent, thorough response.

Thank you x

Reply privatelyReply in forumReply +quote
 

By (user no longer on site) OP   
over a year ago


"Hi Nell ,

Yes I've had it about 5 years ago

The doctor gave me steroids for 2 weeks to take & I was lucky that I made a full recovery .

It took about 6 weeks to 8 weeks before everything got back to normal.

Feel free to message me if you want to x"

Thank you, that's very kind of you x

Reply privatelyReply in forumReply +quote
 

By (user no longer on site) OP   
over a year ago

Thank you everyone, it's heart warming to read the help and good wishes as i am very stressed xx

Reply privatelyReply in forumReply +quote
 

By (user no longer on site) OP   
over a year ago


"It was the stalker himself "

Chris Walker the stalker

Reply privatelyReply in forumReply +quote
 

By *octor DeleriumMan
over a year ago

Wellingborough

It's generally accepted that it's an inflammatory reaction in CNVII (facial nerve).

A number of viruses have been implicated including herpes simplex, Epstein-Barr, herpes zoster, cytomegalovirus, rubella, Coxsackie, mump, influenza as well as SARS-CoV-2 (and some post-covid vaccinations).

Other causes are trauma, degenerative change, various neuropathies, neoplasia etc.

Predispositions include pregnancy, recent respiratory infection, diabetes, high blood pressure, obesity and immune suppression.

It may, rarely, be recurrent (this tends to run in families and is likely to be a genetic predisposition).

Spontaneous resolution is anticipatory, steroids can be useful if prescribed early but the most important intervention is to protect the conjunctiva of the eye on the affected side: use of an eye patch during the day and application of a cotton wool pad and taping at night. The aim is to keep the conjunctiva moist and free of dust/foreign bodies.

Duration 4 - 8 weeks with most cases resolving completely by 6 months.

There's no compelling evidence that adjunctive treatments r.g. acupuncture etc. have beneficial effects.

The rapid assessment by the CVA team has, effectively, excluded more serious causes and, hopefully, you'll make a complete recovery.

Drop me a PM if you require any additional information or links to EBM as posting these on the fora usually earns me a temporary ban as medical journals aren't considered acceptable by FS as sources of information.

Reply privatelyReply in forumReply +quote
 

By *rMs.NeekCouple
over a year ago

Worcestershire

Look up Freddie Burns the rugby player as he's had one and often talks about it

Reply privatelyReply in forumReply +quote
 

By (user no longer on site)
over a year ago

Sorry to hear this OP. My brother has had it before and recovered ok. Hope it all goes ok for you x

Reply privatelyReply in forumReply +quote
 

By *layTimeEssexCouple
over a year ago

Stansted

I had in 25 years ago when living in China. I had on one side and maybe too one month to go away. 6 months later and appeared on the other side and again one month. Never had a problem since so fingers crossed for you. Occasionally feel a bit of an ache but maybe completely different and I can't wink very well

I saw doctors in China and HK and really nothing they could do. Massages did help relief the ache and pain - the little spot behind top of jaw near ear. Press really hard myself and got it done by others. I went to a clinic in shanghai specialising in Bells Palsy and saw about 30 people in the waiting room all with the same problem. Feel free to PM if would like to take more x

Reply privatelyReply in forumReply +quote
 

By *layTimeEssexCouple
over a year ago

Stansted

oh yes basic care - had to tape up eye at night to sleep and lots of eye drops to keep eyes moist and clean as couldn't blink. Also as little time as possible looking at screens which is a shame

Reply privatelyReply in forumReply +quote
 

By (user no longer on site)
over a year ago

Get well soon Nell x

Reply privatelyReply in forumReply +quote
 

By (user no longer on site) OP   
over a year ago


"It's generally accepted that it's an inflammatory reaction in CNVII (facial nerve).

A number of viruses have been implicated including herpes simplex, Epstein-Barr, herpes zoster, cytomegalovirus, rubella, Coxsackie, mump, influenza as well as SARS-CoV-2 (and some post-covid vaccinations).

Other causes are trauma, degenerative change, various neuropathies, neoplasia etc.

Predispositions include pregnancy, recent respiratory infection, diabetes, high blood pressure, obesity and immune suppression.

It may, rarely, be recurrent (this tends to run in families and is likely to be a genetic predisposition).

Spontaneous resolution is anticipatory, steroids can be useful if prescribed early but the most important intervention is to protect the conjunctiva of the eye on the affected side: use of an eye patch during the day and application of a cotton wool pad and taping at night. The aim is to keep the conjunctiva moist and free of dust/foreign bodies.

Duration 4 - 8 weeks with most cases resolving completely by 6 months.

There's no compelling evidence that adjunctive treatments r.g. acupuncture etc. have beneficial effects.

The rapid assessment by the CVA team has, effectively, excluded more serious causes and, hopefully, you'll make a complete recovery.

Drop me a PM if you require any additional information or links to EBM as posting these on the fora usually earns me a temporary ban as medical journals aren't considered acceptable by FS as sources of information.

"

Thank you, it's very informative. I was tested straight incase i was having/ have had a stroke, TIA, i had numerous tests including a CT scan and a stroke was ruled out and then went to the TIA clinic the next day for more tests.

They decided it was Bells Palsy and gave me steriods and eye gel. The consultant was excellent, he said the nerves to the side of my face go through a small hole and for some reason they had become inflammed and then they were blocked.

Feel free to send me info

Thank you x

Reply privatelyReply in forumReply +quote
 

By (user no longer on site) OP   
over a year ago


"Look up Freddie Burns the rugby player as he's had one and often talks about it "

Will do, thank you x

Reply privatelyReply in forumReply +quote
 

By (user no longer on site) OP   
over a year ago


"Sorry to hear this OP. My brother has had it before and recovered ok. Hope it all goes ok for you x"

Thank you x

Reply privatelyReply in forumReply +quote
 

By (user no longer on site) OP   
over a year ago


"I had in 25 years ago when living in China. I had on one side and maybe too one month to go away. 6 months later and appeared on the other side and again one month. Never had a problem since so fingers crossed for you. Occasionally feel a bit of an ache but maybe completely different and I can't wink very well

I saw doctors in China and HK and really nothing they could do. Massages did help relief the ache and pain - the little spot behind top of jaw near ear. Press really hard myself and got it done by others. I went to a clinic in shanghai specialising in Bells Palsy and saw about 30 people in the waiting room all with the same problem. Feel free to PM if would like to take more x"

Thank you, i will try massaging, i enjoy that anyway x

Reply privatelyReply in forumReply +quote
 

By (user no longer on site) OP   
over a year ago


"oh yes basic care - had to tape up eye at night to sleep and lots of eye drops to keep eyes moist and clean as couldn't blink. Also as little time as possible looking at screens which is a shame "

Thank you, i'm using gel tears and cover my eye at night x

Reply privatelyReply in forumReply +quote
 

By *etwifeandhim69Couple
over a year ago

Darlington


"I haven't had it Nell but I remember a guy starting a thread in the past few weeks about his own very recent experience.

Sending a cwtch your way

NBVN x

That would be me!! I’ll try and find the thread.. "

Aww Damn man. Wishing you a speedy recovery.

Reply privatelyReply in forumReply +quote
 

By (user no longer on site) OP   
over a year ago


"Get well soon Nell x"

Thank you x

Reply privatelyReply in forumReply +quote
 

By (user no longer on site) OP   
over a year ago


"I haven't had it Nell but I remember a guy starting a thread in the past few weeks about his own very recent experience.

Sending a cwtch your way

NBVN x

That would be me!! I’ll try and find the thread..

Aww Damn man. Wishing you a speedy recovery. "

Thank you x

Reply privatelyReply in forumReply +quote
 

By *ad NannaWoman
over a year ago

East London

Hope you recover soon

Reply privatelyReply in forumReply +quote
 

By *avexxMan
over a year ago

cheshire

i wish you a speedy recovery x

Reply privatelyReply in forumReply +quote
 

By (user no longer on site) OP   
over a year ago


"Hope you recover soon "

Thank you x

Reply privatelyReply in forumReply +quote
 

By (user no longer on site) OP   
over a year ago


"i wish you a speedy recovery x"

Thank you x

Reply privatelyReply in forumReply +quote
 

By *atisfiedSighWoman
over a year ago

NW Wiltshire

Although I've not had Bell's Palsy, I did experience some left-sided facial droop after a significant head injury. Years later I just have a bit of a lopsided smirky smile. I wish you all the best for recovery.

Reply privatelyReply in forumReply +quote
 

By (user no longer on site) OP   
over a year ago


"Although I've not had Bell's Palsy, I did experience some left-sided facial droop after a significant head injury. Years later I just have a bit of a lopsided smirky smile. I wish you all the best for recovery. "

Thank you x

Reply privatelyReply in forumReply +quote
 

By (user no longer on site) OP   
over a year ago

Many thanks to the guys that have sent me numerous distressing, abusive messages on the lines of me being rude as f##k and to wear a bag over my head ... similar comments to those

Reply privatelyReply in forumReply +quote
 

By *adyBugsWoman
over a year ago

cognito

Oh I’m so sorry you are struggling, my boss years ago had it but sadly I don’t have anywhere to signpost you to. Sending some virtual hugs x

Reply privatelyReply in forumReply +quote
 

By *layTimeEssexCouple
over a year ago

Stansted


"Many thanks to the guys that have sent me numerous distressing, abusive messages on the lines of me being rude as f##k and to wear a bag over my head ... similar comments to those "

Seriously. Just why would they say that. Despair at times with this place. Just ignore the twats xxx

Reply privatelyReply in forumReply +quote
 

By *oodmessMan
over a year ago

yumsville

This is likely complete nonsense but as I am thinking it I might as well type it.

I saw a 'gimmick' device for exercising your jaw on qvc or something. It looked like a headband that went under your chin. Don't know if something like that might be useful to help exercise the muscles - or just disregard

Good luck all

Reply privatelyReply in forumReply +quote
 

By (user no longer on site)
over a year ago

My mum had bell's palsy and it is usually a temporary condition but can't come back. Rather unpleasant when symptoms occur but it is not usually very long term.

Reply privatelyReply in forumReply +quote
 

By (user no longer on site) OP   
over a year ago


"Oh I’m so sorry you are struggling, my boss years ago had it but sadly I don’t have anywhere to signpost you to. Sending some virtual hugs x"

Thank you x

Reply privatelyReply in forumReply +quote
 

By (user no longer on site) OP   
over a year ago


"Many thanks to the guys that have sent me numerous distressing, abusive messages on the lines of me being rude as f##k and to wear a bag over my head ... similar comments to those

Seriously. Just why would they say that. Despair at times with this place. Just ignore the twats xxx"

I've blocked and reported them x

Reply privatelyReply in forumReply +quote
 

By (user no longer on site) OP   
over a year ago


"This is likely complete nonsense but as I am thinking it I might as well type it.

I saw a 'gimmick' device for exercising your jaw on qvc or something. It looked like a headband that went under your chin. Don't know if something like that might be useful to help exercise the muscles - or just disregard

Good luck all "

Thank you, I'll have a look x

Reply privatelyReply in forumReply +quote
 

By (user no longer on site)
over a year ago


"Many thanks to the guys that have sent me numerous distressing, abusive messages on the lines of me being rude as f##k and to wear a bag over my head ... similar comments to those

Seriously. Just why would they say that. Despair at times with this place. Just ignore the twats xxx"

Thats fucking disgraceful, rise above it op and dont give it a second thought

Reply privatelyReply in forumReply +quote
 

By (user no longer on site) OP   
over a year ago


"My mum had bell's palsy and it is usually a temporary condition but can't come back. Rather unpleasant when symptoms occur but it is not usually very long term. "

It can come back x

Reply privatelyReply in forumReply +quote
 

By (user no longer on site) OP   
over a year ago


"Many thanks to the guys that have sent me numerous distressing, abusive messages on the lines of me being rude as f##k and to wear a bag over my head ... similar comments to those

Seriously. Just why would they say that. Despair at times with this place. Just ignore the twats xxx

Thats fucking disgraceful, rise above it op and dont give it a second thought "

Thank you x

Reply privatelyReply in forumReply +quote
 

By *agneto.Man
over a year ago

Bham


"My mum had bell's palsy and it is usually a temporary condition but can't come back. Rather unpleasant when symptoms occur but it is not usually very long term.

It can come back x"

Yes came back 3 times with JR from wrestling.

Sorry you had to put up with those messages. I forget how idiotic some people are.

Reply privatelyReply in forumReply +quote
 

By (user no longer on site)
over a year ago


"My mum had bell's palsy and it is usually a temporary condition but can't come back. Rather unpleasant when symptoms occur but it is not usually very long term.

It can come back x"

Sorry that was a typo I meant that it can come back. My mum had 7 bouts however each time affected her less.

Reply privatelyReply in forumReply +quote
 

By (user no longer on site) OP   
over a year ago


"My mum had bell's palsy and it is usually a temporary condition but can't come back. Rather unpleasant when symptoms occur but it is not usually very long term.

It can come back x

Yes came back 3 times with JR from wrestling.

Sorry you had to put up with those messages. I forget how idiotic some people are. "

Thank you x

Reply privatelyReply in forumReply +quote
 

By (user no longer on site) OP   
over a year ago


"My mum had bell's palsy and it is usually a temporary condition but can't come back. Rather unpleasant when symptoms occur but it is not usually very long term.

It can come back x

Sorry that was a typo I meant that it can come back. My mum had 7 bouts however each time affected her less. "

Thank you x

Reply privatelyReply in forumReply +quote
 

By (user no longer on site) OP   
over a year ago

Day 5 and no improvement so far, in fact it's probably worse

Reply privatelyReply in forumReply +quote
 

By *layTimeEssexCouple
over a year ago

Stansted

Sorry to hear that but still early days. Have you got is completely down one side including mouth?

Reply privatelyReply in forumReply +quote
 

By (user no longer on site) OP   
over a year ago

Yes its down all one side.

Reply privatelyReply in forumReply +quote
 

By (user no longer on site) OP   
over a year ago

I'm so dispirited as i've not improved apart from my eye being less watery and painful at times

Reply privatelyReply in forumReply +quote
 

By (user no longer on site)
over a year ago


"I'm so dispirited as i've not improved apart from my eye being less watery and painful at times "

That's still an improvement. Hopefully it will improve more this week. xx

Reply privatelyReply in forumReply +quote
 

By *enhaligonerMan
over a year ago

somewhere

Rest rest rest. Try take it easy

Reply privatelyReply in forumReply +quote
 

By *abioMan
over a year ago

Newcastle and Gateshead


"I'm so dispirited as i've not improved apart from my eye being less watery and painful at times "

It will get a bit worse before it gets better… my doctor told me not to expect anything for the first 3-4 weeks and then it should start getting better! I think you are near the end of the steroids stage

I now in what I like to call the “shriek smile” phase .. you’ll know what I mean and you’ll also be going through the “what is the largest thing you can comfortably eat”‘stage ( ps I am adamant I am not cutting up a scone.. but like I said soft foods like jacket potatoes are a godsend!)

Just stick with it… I even went eyepatch shopping but they were just too uncomfortable for me…

I am find the speech thing the most frustrating.. as the harder you think about what you are saying, the more pronounced the slurring is! B and P’s are a bitch!!

Reply privatelyReply in forumReply +quote
 

By *ed VoluptaWoman
over a year ago

Wirral.

Oh Nell!

Great big hugs to you xx

Reply privatelyReply in forumReply +quote
 

By (user no longer on site)
over a year ago

Good luck Nell, wishing you a speedy recovery xx

Reply privatelyReply in forumReply +quote
 

By (user no longer on site) OP   
over a year ago

Thank you so much lovely people xx

Reply privatelyReply in forumReply +quote
 

By *he FAB Social - MCRCouple (FF)
over a year ago

manchester

My Mum has suffered with it for years, she used to have a flare up every few weeks but more recently it’s months without any issues. As people have said previously, it’s not had any long lasting damage visually and she can feel when it’s about to come on now too

Pixie

Reply privatelyReply in forumReply +quote
 

By *layTimeEssexCouple
over a year ago

Stansted

Don't be dispirited. It was a few weeks before I felt any improvement and as I said after two incidents lasting a month or two many years ago been absolutely fine since. Just need to be patient. A week or two is not very long.

Reply privatelyReply in forumReply +quote
 

By (user no longer on site) OP   
over a year ago

I'm just over 3 weeks now and have a slightly better smile and my eye is almost ok but my eyebrow isn't normal yet and i have a lot of pain in my lower skull and behind my ear.

People are still staring at me though

I'm going to start taking tumeric today because it's meant to calm down inflamation.

Reply privatelyReply in forumReply +quote
 

By *eyond PurityCouple
over a year ago

Lincolnshire


"I'm just over 3 weeks now and have a slightly better smile and my eye is almost ok but my eyebrow isn't normal yet and i have a lot of pain in my lower skull and behind my ear.

People are still staring at me though

I'm going to start taking tumeric today because it's meant to calm down inflamation."

I can offer no words of advice; it's not something I'd even heard about before. I just wanted to send you some love

C

Reply privatelyReply in forumReply +quote
 

By (user no longer on site)
over a year ago


"I have been diagnosed with Bells Palsy. I spent 2 days at hospital, had various tests because they first thought i'd had a stroke. I had mostly great treatment, care and a small amount of advice. I was shell shocked so didn't ask enough questions once diagnosed. My GP is very difficult to get an appointment of any kind. I have used doctor google and facebook but i wondered if anyone here has had it and can offer some basic advice on care etc

"

I had it many years ago, came out of nowhere, a course of steroids and two weeks later was on the mend, fingers crossed I've had no lasting affects. When I tell people about it now they are like I'd never had guessed, so you'll be fine I'm sure. Still doesn't stop you worrying though.

Reply privatelyReply in forumReply +quote
 

By *layTimeEssexCouple
over a year ago

Stansted


"I'm just over 3 weeks now and have a slightly better smile and my eye is almost ok but my eyebrow isn't normal yet and i have a lot of pain in my lower skull and behind my ear.

People are still staring at me though

I'm going to start taking tumeric today because it's meant to calm down inflamation."

Great news. I had the pain behind ear too at times. Even now get the odd twinge there. Did find pressing hard on the painful point helped relieve it for a bit.

Reply privatelyReply in forumReply +quote
 

By (user no longer on site) OP   
over a year ago


"I'm just over 3 weeks now and have a slightly better smile and my eye is almost ok but my eyebrow isn't normal yet and i have a lot of pain in my lower skull and behind my ear.

People are still staring at me though

I'm going to start taking tumeric today because it's meant to calm down inflamation.

Great news. I had the pain behind ear too at times. Even now get the odd twinge there. Did find pressing hard on the painful point helped relieve it for a bit. "

I'm doing that almost constantly

I had it before i developed the BP so I'm wondering if it's a warning sign

Reply privatelyReply in forumReply +quote
 

By (user no longer on site) OP   
over a year ago


"I'm just over 3 weeks now and have a slightly better smile and my eye is almost ok but my eyebrow isn't normal yet and i have a lot of pain in my lower skull and behind my ear.

People are still staring at me though

I'm going to start taking tumeric today because it's meant to calm down inflamation.

I can offer no words of advice; it's not something I'd even heard about before. I just wanted to send you some love

C"

Thank you x

Reply privatelyReply in forumReply +quote
 

By (user no longer on site) OP   
over a year ago


"I have been diagnosed with Bells Palsy. I spent 2 days at hospital, had various tests because they first thought i'd had a stroke. I had mostly great treatment, care and a small amount of advice. I was shell shocked so didn't ask enough questions once diagnosed. My GP is very difficult to get an appointment of any kind. I have used doctor google and facebook but i wondered if anyone here has had it and can offer some basic advice on care etc

I had it many years ago, came out of nowhere, a course of steroids and two weeks later was on the mend, fingers crossed I've had no lasting affects. When I tell people about it now they are like I'd never had guessed, so you'll be fine I'm sure. Still doesn't stop you worrying though. "

I'm such a worrier

Reply privatelyReply in forumReply +quote
 

By *olf and RedCouple
over a year ago

Nr Cardiff or at Chams Darlaston


"I'm just over 3 weeks now and have a slightly better smile and my eye is almost ok but my eyebrow isn't normal yet and i have a lot of pain in my lower skull and behind my ear.

People are still staring at me though

I'm going to start taking tumeric today because it's meant to calm down inflamation."

One of my friends has had it a couple of times and it does gradually get better. I don’t think people notice it as much as you might think they do.

Red

Reply privatelyReply in forumReply +quote
 

By (user no longer on site) OP   
over a year ago


"I'm just over 3 weeks now and have a slightly better smile and my eye is almost ok but my eyebrow isn't normal yet and i have a lot of pain in my lower skull and behind my ear.

People are still staring at me though

I'm going to start taking tumeric today because it's meant to calm down inflamation.

One of my friends has had it a couple of times and it does gradually get better. I don’t think people notice it as much as you might think they do.

Red "

If i don't (try) to smile then i look okish now, at first i didn't though because my affected eye didn't close or blink and watered constantly, my eyebrow is a lot lower than the other one and my mouth on the affected side was turned downwards, didn't move at all, drooled most of the time too

Reply privatelyReply in forumReply +quote
 

By *esthetic21Man
over a year ago

Birmingham/Bristol

Happened to a friend of mine went away after a week or so. Hope you feel better ASAP

Reply privatelyReply in forumReply +quote
 

By (user no longer on site) OP   
over a year ago


"Happened to a friend of mine went away after a week or so. Hope you feel better ASAP"

Thank you

Reply privatelyReply in forumReply +quote
 

By *layTimeEssexCouple
over a year ago

Stansted


"I'm just over 3 weeks now and have a slightly better smile and my eye is almost ok but my eyebrow isn't normal yet and i have a lot of pain in my lower skull and behind my ear.

People are still staring at me though

I'm going to start taking tumeric today because it's meant to calm down inflamation.

Great news. I had the pain behind ear too at times. Even now get the odd twinge there. Did find pressing hard on the painful point helped relieve it for a bit.

I'm doing that almost constantly

I had it before i developed the BP so I'm wondering if it's a warning sign "

I've had the pain come back many times since my two incidents 20 plus years ago but BP never has. Don't be surprised if you get again a few months later mind perhaps on the other side like me. Still can't wink very well but not sure if that is BP or just me Not good for flirting purposes

Reply privatelyReply in forumReply +quote
 

By (user no longer on site) OP   
over a year ago


"I'm just over 3 weeks now and have a slightly better smile and my eye is almost ok but my eyebrow isn't normal yet and i have a lot of pain in my lower skull and behind my ear.

People are still staring at me though

I'm going to start taking tumeric today because it's meant to calm down inflamation.

Great news. I had the pain behind ear too at times. Even now get the odd twinge there. Did find pressing hard on the painful point helped relieve it for a bit.

I'm doing that almost constantly

I had it before i developed the BP so I'm wondering if it's a warning sign

I've had the pain come back many times since my two incidents 20 plus years ago but BP never has. Don't be surprised if you get again a few months later mind perhaps on the other side like me. Still can't wink very well but not sure if that is BP or just me Not good for flirting purposes "

Thank you

I was no good at flirting even when i could wink lol

Reply privatelyReply in forumReply +quote
 

By (user no longer on site)
over a year ago

Mee meeee currently on month 5 . If you want a chat then feel free to message and we can compare notes. If your not on antivirals now then I'd suggest you've missed your window so to speak. They need to be admistered really early or have limited effect. Not sure why your on antibiotics though.

Reply privatelyReply in forumReply +quote
 

By (user no longer on site) OP   
over a year ago


"Mee meeee currently on month 5 . If you want a chat then feel free to message and we can compare notes. If your not on antivirals now then I'd suggest you've missed your window so to speak. They need to be admistered really early or have limited effect. Not sure why your on antibiotics though. "

Thank you. I'm on a low dose of antibiotics anyway for another heath reason, not for the Bells Palsy. I was given high doses of steriods, which i've finished now plus eye gel

Reply privatelyReply in forumReply +quote
 

By *ream2972TV/TS
over a year ago

newquay

I had it about 30 years ago but don't remember to much about it apart from they said it was probably from an ear infection caused by driving with the window open and everything returned to normal in about 4 or 5 months.

I hope things work out well for you.

Reply privatelyReply in forumReply +quote
 

By *ranny-CrumpetWoman
over a year ago

The Town by The Cross

Did you call 111 Nell ?

Reply privatelyReply in forumReply +quote
 

By (user no longer on site) OP   
over a year ago


"I had it about 30 years ago but don't remember to much about it apart from they said it was probably from an ear infection caused by driving with the window open and everything returned to normal in about 4 or 5 months.

I hope things work out well for you."

Thank you

Reply privatelyReply in forumReply +quote
 

By (user no longer on site) OP   
over a year ago


"Did you call 111 Nell ?"

No i called 999

Reply privatelyReply in forumReply +quote
 

By (user no longer on site)
over a year ago


"Mee meeee currently on month 5 . If you want a chat then feel free to message and we can compare notes. If your not on antivirals now then I'd suggest you've missed your window so to speak. They need to be admistered really early or have limited effect. Not sure why your on antibiotics though.

Thank you. I'm on a low dose of antibiotics anyway for another heath reason, not for the Bells Palsy. I was given high doses of steriods, which i've finished now plus eye gel "

I was given eye gel and also some drops. The gel is artifical vitamin a , it worked wonders even if I couldn't see when I used it. My eye is now producing its own tears, which in itself is a challenge as I still can't blink properly so my eye kinda fills up ! I've stopped taking lumps out of my lip now and I know it's improved massively. Metallic taste in the mouth is better and I get no pain. It was suggested facial massage had mixed results. I did try acupuncture but I was visiting the UK at the time. I googled acupressure points and do them a couple of times a week.

Reply privatelyReply in forumReply +quote
 

By (user no longer on site) OP   
over a year ago

I have to use eyedrops/gel several times a day even before getting BP because i have Sjogrens Syndrome so i don't make tears much anyway.

I'm so very tired and breathless all the time since getting BP.

My mouth is very sore from me biting inside but i always have a sore mouth from SS anyway.

The pain in my lower skull and up near my ear is horrible and gets me down

Reply privatelyReply in forumReply +quote
 

By *abioMan
over a year ago

Newcastle and Gateshead


"Did you call 111 Nell ?"

Because the first symptoms of bells are the same as a stroke, the drooping face, 111 tell you to get yourself to a hospital safely asap ( don’t drive yourself!) or to ring 999 for an ambulance.

Reply privatelyReply in forumReply +quote
 

By *abioMan
over a year ago

Newcastle and Gateshead

As a long of people know… I am about 10 further on in my Bell’s palsy diagnosis from nell.. so today is 28 days

It’s slow… face doesn’t look as bad as it did originally, but still can’t move it with, the biggest tells are when I laugh or cry, and then it looks like what I call “shriek face”

But I can now close my eyes… can now drink from a glass without a straw if done really slowly (cans are still a mess) but straws are still a lot easier… still on a soft food not eating anything I can’t cut up into little pieces diet! Jackets potatoes are now the favourite food for me!

Hadn’t had the tenderness behind the ear thing until yesterday, so I was thinking oh god ear infection! But reading this.. if it’s normal part of recovery then I’ll just get the pain killers out…

Reply privatelyReply in forumReply +quote
 

By *ranny-CrumpetWoman
over a year ago

The Town by The Cross


"Did you call 111 Nell ?

No i called 999"

I meant AFTER that for advice.

I thought they were an advice line if you cannot access a doctor.

Reply privatelyReply in forumReply +quote
 

By *eni78Woman
over a year ago

Yateley

Hi Nell

Ive had it twice

I can sympathise completely, luckily i fully recovered both times.

Try and rest as much as possible it is exhausting

If you are on facebook there is a really good support group with lots of advice etc

Hope you recover quickly xxx

Reply privatelyReply in forumReply +quote
 

By (user no longer on site) OP   
over a year ago


"Did you call 111 Nell ?

No i called 999

I meant AFTER that for advice.

I thought they were an advice line if you cannot access a doctor. "

I did a few days ago but they told me to go to A & E even though all i wanted was advice.

My GP has said he will phone me this coming week, partly because of the BP but also because i have some mental health issues but i'm not holding out much hope that he will.

Reply privatelyReply in forumReply +quote
 

By (user no longer on site) OP   
over a year ago


"Hi Nell

Ive had it twice

I can sympathise completely, luckily i fully recovered both times.

Try and rest as much as possible it is exhausting

If you are on facebook there is a really good support group with lots of advice etc

Hope you recover quickly xxx"

Thank you. I have found some groups on facebook which have good advice xxx

Reply privatelyReply in forumReply +quote
 

By *ranny-CrumpetWoman
over a year ago

The Town by The Cross


"Did you call 111 Nell ?

No i called 999

I meant AFTER that for advice.

I thought they were an advice line if you cannot access a doctor.

I did a few days ago but they told me to go to A & E even though all i wanted was advice.

My GP has said he will phone me this coming week, partly because of the BP but also because i have some mental health issues but i'm not holding out much hope that he will."

I find it hard to believe the way it has become nigh impossible to get advice, help or treatment in this country......

I hope the FB group is a good answer for you Nell ......

I can only wish you well.

Reply privatelyReply in forumReply +quote
 

By (user no longer on site) OP   
over a year ago


"Did you call 111 Nell ?

No i called 999

I meant AFTER that for advice.

I thought they were an advice line if you cannot access a doctor.

I did a few days ago but they told me to go to A & E even though all i wanted was advice.

My GP has said he will phone me this coming week, partly because of the BP but also because i have some mental health issues but i'm not holding out much hope that he will.

I find it hard to believe the way it has become nigh impossible to get advice, help or treatment in this country......

I hope the FB group is a good answer for you Nell ......

I can only wish you well. "

Thank you.

Reply privatelyReply in forumReply +quote
 

By *urga2076Woman
over a year ago

London

I’m so sorry to hear this. I hope you get through ok x

Reply privatelyReply in forumReply +quote
 

By (user no longer on site) OP   
over a year ago

Thank you x

Reply privatelyReply in forumReply +quote
 

By *torm in a G cupWoman
over a year ago

Land of the Long White Cloud

There is a New Zealand cricketer called Jess Kerr who was diagnosed with Bell's Palsy at 9 years old.

She has written an interesting article about her own experiences.

All the best with getting the help, advice and support you need.

Reply privatelyReply in forumReply +quote
 

By *iceButtSlimMan
over a year ago

somewhere


"Oh no I've had it and kind of still got it. Most people recover from it quickly but a few others have it for longer.

Acupuncture helped me and if its serious you might get a referral. There are also some great support groups.

Touch wood you recover quick though x

Thank you, i will look into accupuncture as well as physio.

I hope yours improves too x"

A friend of mine had this last year, he got told by the doctor to use a vibrator on his mouth to help, not sure if he did that or not.

Reply privatelyReply in forumReply +quote
 

By *heArrowsCouple
over a year ago

I had it. I was OK after a few weeks. Our hospital was so over crowded I was put into a storage room. I couldn't sleep because there were nurses in and out all the time. The treatment for me was iv antibiotics and many stern lectures about my diabetes.

After the initial shock of seeing my face fall on one side I was pretty much freaked out until I recovered.

I hope you get well soon

Reply privatelyReply in forumReply +quote
 

By (user no longer on site) OP   
over a year ago


"There is a New Zealand cricketer called Jess Kerr who was diagnosed with Bell's Palsy at 9 years old.

She has written an interesting article about her own experiences.

All the best with getting the help, advice and support you need. "

I will look online for it, thank you.

Reply privatelyReply in forumReply +quote
 

By (user no longer on site) OP   
over a year ago


"Oh no I've had it and kind of still got it. Most people recover from it quickly but a few others have it for longer.

Acupuncture helped me and if its serious you might get a referral. There are also some great support groups.

Touch wood you recover quick though x

Thank you, i will look into accupuncture as well as physio.

I hope yours improves too x

A friend of mine had this last year, he got told by the doctor to use a vibrator on his mouth to help, not sure if he did that or not."

Reply privatelyReply in forumReply +quote
 

By (user no longer on site) OP   
over a year ago


"I had it. I was OK after a few weeks. Our hospital was so over crowded I was put into a storage room. I couldn't sleep because there were nurses in and out all the time. The treatment for me was iv antibiotics and many stern lectures about my diabetes.

After the initial shock of seeing my face fall on one side I was pretty much freaked out until I recovered.

I hope you get well soon"

Weren't you given steriods ?

Thank you.

Reply privatelyReply in forumReply +quote
 

By *piping-hot.Man
over a year ago

Rutland

I got it a few years ago.

I got a massive fright when it happened. I thought I'd had a stroke. For me, the left side of my face didn't drop but it wouldn't move. It was as if I'd had verticle botox

I was given a course of steroids to take and fortunately made a full recovery after about 4-6 weeks.

Reply privatelyReply in forumReply +quote
 

By (user no longer on site) OP   
over a year ago


"I got it a few years ago.

I got a massive fright when it happened. I thought I'd had a stroke. For me, the left side of my face didn't drop but it wouldn't move. It was as if I'd had verticle botox

I was given a course of steroids to take and fortunately made a full recovery after about 4-6 weeks. "

That's good, i'm hoping i make a full recovery.

Reply privatelyReply in forumReply +quote
 

By *piping-hot.Man
over a year ago

Rutland

I hope you do

Reply privatelyReply in forumReply +quote
 

By (user no longer on site)
over a year ago


"I have been diagnosed with Bells Palsy. I spent 2 days at hospital, had various tests because they first thought i'd had a stroke. I had mostly great treatment, care and a small amount of advice. I was shell shocked so didn't ask enough questions once diagnosed. My GP is very difficult to get an appointment of any kind. I have used doctor google and facebook but i wondered if anyone here has had it and can offer some basic advice on care etc

"

There has been a lot of this on the rise. May i ask if you're vaccinated? It could be worth seeing if linked and get vaccine injury compensation.

Reply privatelyReply in forumReply +quote
 

By (user no longer on site) OP   
over a year ago


"I have been diagnosed with Bells Palsy. I spent 2 days at hospital, had various tests because they first thought i'd had a stroke. I had mostly great treatment, care and a small amount of advice. I was shell shocked so didn't ask enough questions once diagnosed. My GP is very difficult to get an appointment of any kind. I have used doctor google and facebook but i wondered if anyone here has had it and can offer some basic advice on care etc

There has been a lot of this on the rise. May i ask if you're vaccinated? It could be worth seeing if linked and get vaccine injury compensation. "

Are you wearing your tinfoil hat ?

Reply privatelyReply in forumReply +quote
 

By (user no longer on site)
over a year ago


"I have been diagnosed with Bells Palsy. I spent 2 days at hospital, had various tests because they first thought i'd had a stroke. I had mostly great treatment, care and a small amount of advice. I was shell shocked so didn't ask enough questions once diagnosed. My GP is very difficult to get an appointment of any kind. I have used doctor google and facebook but i wondered if anyone here has had it and can offer some basic advice on care etc

There has been a lot of this on the rise. May i ask if you're vaccinated? It could be worth seeing if linked and get vaccine injury compensation.

Are you wearing your tinfoil hat ? "

Very mature. At least my tinfoil hat never gave me any lasting side effects. Speedy recovery

Reply privatelyReply in forumReply +quote
 

By *ady LickWoman
over a year ago

Northampton Somewhere

Hi Nell. A lady I work with has just come back to work after 3 weeks off, she has the same thing. You wouldn't know to look at her. She took herself to A&E, they started treatment the same day. She was told the sooner you start you recover quicker. She has joined some support grouos on fb which she has found really helpful.

Hope you have a full recovery

Reply privatelyReply in forumReply +quote
 

By (user no longer on site) OP   
over a year ago


"Hi Nell. A lady I work with has just come back to work after 3 weeks off, she has the same thing. You wouldn't know to look at her. She took herself to A&E, they started treatment the same day. She was told the sooner you start you recover quicker. She has joined some support grouos on fb which she has found really helpful.

Hope you have a full recovery "

Thank you

I have found some fb groups which seen helpful.

Reply privatelyReply in forumReply +quote
 

By (user no longer on site) OP   
over a year ago

On sunday i got Bells Palsy again, on the other side of my face spent most of yesterday in hospital and am going back today as an inpatient. I hadn't recovered completely from the first bout !

I'm very fed up

Reply privatelyReply in forumReply +quote
 

By (user no longer on site)
over a year ago


"On sunday i got Bells Palsy again, on the other side of my face spent most of yesterday in hospital and am going back today as an inpatient. I hadn't recovered completely from the first bout !

I'm very fed up "

Hope they can help you. Xxxx

Reply privatelyReply in forumReply +quote
 

By (user no longer on site) OP   
over a year ago

Thank you, i hope so too xxx

Reply privatelyReply in forumReply +quote
 

By *uke olovingmanMan
over a year ago

Gravesend

Big hugs nell

Reply privatelyReply in forumReply +quote
 

By (user no longer on site) OP   
over a year ago

Thank you xx

Reply privatelyReply in forumReply +quote
 

By (user no longer on site)
over a year ago


"On sunday i got Bells Palsy again, on the other side of my face spent most of yesterday in hospital and am going back today as an inpatient. I hadn't recovered completely from the first bout !

I'm very fed up "

Hugs from me get well soon

Reply privatelyReply in forumReply +quote
 

By (user no longer on site) OP   
over a year ago

Thank you xx

Reply privatelyReply in forumReply +quote
 

By *coobyBoobyDooWoman
over a year ago

Markfield

Oh gosh, I hope they can help with this and help to get you loads better super soon x

Reply privatelyReply in forumReply +quote
 

By (user no longer on site) OP   
over a year ago

Thank you xx

Reply privatelyReply in forumReply +quote
 

By *abioMan
over a year ago

Newcastle and Gateshead


"On sunday i got Bells Palsy again, on the other side of my face spent most of yesterday in hospital and am going back today as an inpatient. I hadn't recovered completely from the first bout !

I'm very fed up "

Oh I feel for you hun…. You know I was 1 week ahead of you in the first bout.. I can’t imagine what it’s like on both sides at the same time!!

Hang in there and tell them you want loads of jacket potatoes!!

Reply privatelyReply in forumReply +quote
 

By *ustamanMan
over a year ago

weymouth


"I have been diagnosed with Bells Palsy. I spent 2 days at hospital, had various tests because they first thought i'd had a stroke. I had mostly great treatment, care and a small amount of advice. I was shell shocked so didn't ask enough questions once diagnosed. My GP is very difficult to get an appointment of any kind. I have used doctor google and facebook but i wondered if anyone here has had it and can offer some basic advice on care etc

"

Yes I've had it, it's severity varies from people to people - it does go away but the time it takes can also vary, mine took about a week or so.

Reply privatelyReply in forumReply +quote
 

By (user no longer on site) OP   
over a year ago


"I have been diagnosed with Bells Palsy. I spent 2 days at hospital, had various tests because they first thought i'd had a stroke. I had mostly great treatment, care and a small amount of advice. I was shell shocked so didn't ask enough questions once diagnosed. My GP is very difficult to get an appointment of any kind. I have used doctor google and facebook but i wondered if anyone here has had it and can offer some basic advice on care etc

Yes I've had it, it's severity varies from people to people - it does go away but the time it takes can also vary, mine took about a week or so."

I originally got it in mid august, it was improving but now i've got it on the other side aswell.

Reply privatelyReply in forumReply +quote
 

By (user no longer on site) OP   
over a year ago


"On sunday i got Bells Palsy again, on the other side of my face spent most of yesterday in hospital and am going back today as an inpatient. I hadn't recovered completely from the first bout !

I'm very fed up

Oh I feel for you hun…. You know I was 1 week ahead of you in the first bout.. I can’t imagine what it’s like on both sides at the same time!!

Hang in there and tell them you want loads of jacket potatoes!! "

Good job i love jacket potatoes

Reply privatelyReply in forumReply +quote
 

By *ustamanMan
over a year ago

weymouth

Have you been offered any treatment? I had nothing just loads of tests to eliminate a stroke. Sorry to hear it's resurfaced, my understanding is it's a viral attack on a nerve tends to happen if you're rundown/stressed.

Reply privatelyReply in forumReply +quote
 

By (user no longer on site) OP   
over a year ago

Yes, high dose steriods which then reduce, eye gel. Had bloods taken and CT scan incase it was a stroke. Plus the next day went to a TIA clinic. No stroke.

Im on day 2 of high dose steriods for the 2nd time. I'm now in hospital waiting for a bed, got a trolley atm. Once i have a bed i can then go on the list for an MRI scan incase it's something sinister.

I think i'm just unlucky.

Reply privatelyReply in forumReply +quote
 

By (user no longer on site) OP   
over a year ago

It's been a bloody awful and very scary week, home at last though.

Reply privatelyReply in forumReply +quote
 

By *nightsoftheCoffeeTableCouple
over a year ago

Leeds

My mum had it, tbh didn’t seem to bother her, one side of her face dropped like she’s had a stroke, but she’s all fine now and back to normal, think it lasted for about 6 months.

The mr

Reply privatelyReply in forumReply +quote
 

By (user no longer on site)
over a year ago


"It's been a bloody awful and very scary week, home at last though."

That's good news you're home. Hope you can relax. X

Reply privatelyReply in forumReply +quote
 

By (user no longer on site) OP   
over a year ago


"My mum had it, tbh didn’t seem to bother her, one side of her face dropped like she’s had a stroke, but she’s all fine now and back to normal, think it lasted for about 6 months.

The mr "

I'm on my 2nd bout in 6 weeks, right first, not fully recovered now left side, spent this week in hospital.

Face is paralysed can't see properly, it's painful, very difficult to eat, drink and talk.

Only guesses at what causes it.

Reply privatelyReply in forumReply +quote
 
 

By (user no longer on site) OP   
over a year ago


"It's been a bloody awful and very scary week, home at last though.

That's good news you're home. Hope you can relax. X"

Thank you, it's lovely to be home x

Reply privatelyReply in forumReply +quote
Post new Message to Thread
back to top