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"It's a part of who I am and I embrace it. I was diagnosed 6 years ago but It had been mentioned when I was a child but my parents dismissed it. I was relieved in a lot of ways because I knew I didn't see things or think about things in the same way as other people and i reacted to things in a way that other people found strange. Being assessed as autistic helped me to understand why I reacted to certain things in the way I did and as a result helped me to find ways of dealing with that. " Mr KC feels pretty much exactly same way. His diagnosis as an adult has also improved our communication together, as I now understand how best to phrase things and to be explicit, not implicit. His mental health has improved exponentially after his diagnosis and that's with zero extra counselling or whatnot. | |||
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"It's a part of who I am and I embrace it. I was diagnosed 6 years ago but It had been mentioned when I was a child but my parents dismissed it. I was relieved in a lot of ways because I knew I didn't see things or think about things in the same way as other people and i reacted to things in a way that other people found strange. Being assessed as autistic helped me to understand why I reacted to certain things in the way I did and as a result helped me to find ways of dealing with that. Mr KC feels pretty much exactly same way. His diagnosis as an adult has also improved our communication together, as I now understand how best to phrase things and to be explicit, not implicit. His mental health has improved exponentially after his diagnosis and that's with zero extra counselling or whatnot. " Thank you for sharing that because that has been a struggle for us, My husband is the most marvellous and understanding man but it has taken him time to understand my triggers And they can change. He totally understands that I'm not being a dickhead when I react in what some may see as an unreasonable way. Certain noises are a major issue for me as well and again depending on the day and how I'm feeling can depend on how strong my reaction is. He is fantastic at warning me if he knows there is going to be a noise that is going to upset me, He is also fantastic at reassuring me if there is a sudden noise like if he drops something. | |||
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"It's a part of who I am and I embrace it. I was diagnosed 6 years ago..." Thanks for sharing. I've often wondered if there's a difference in how people feel about their diagnosis depending if it was late or early. (My hunch was - the later = less positive.) | |||
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"His mental health has improved exponentially after his diagnosis and that's with zero extra counselling or whatnot. " That is so wonderful to hear! Thanks. | |||
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"5 years ago I had a breakdown and got diagnosed with mild autism ,anxiety depression, and social incompatible syndrome (I think that's what it's called) so I got hit with it all at the same time " All of those could be associated with your autism as well. X | |||
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"5 years ago I had a breakdown and got diagnosed with mild autism ,anxiety depression, and social incompatible syndrome (I think that's what it's called) so I got hit with it all at the same time All of those could be associated with your autism as well. X" Totally never thought about it like that x | |||
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"5 years ago I had a breakdown and got diagnosed with mild autism ,anxiety depression, and social incompatible syndrome (I think that's what it's called) so I got hit with it all at the same time All of those could be associated with your autism as well. X Totally never thought about it like that x" Obviously I'm not a doctor however I can totally identify with the things you have just mentioned. Can I ask whether you had a proper autism assessment or whether it was just a possible diagnosis. | |||
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"5 years ago I had a breakdown and got diagnosed with mild autism ,anxiety depression, and social incompatible syndrome (I think that's what it's called) so I got hit with it all at the same time All of those could be associated with your autism as well. X Totally never thought about it like that x Obviously I'm not a doctor however I can totally identify with the things you have just mentioned. Can I ask whether you had a proper autism assessment or whether it was just a possible diagnosis. " It's when I had my breakdown I just remember be assessed and being told so I think it was just an assessment but I could be wrong, I don't really know, it was all alot going on at the time | |||
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"5 years ago I had a breakdown and got diagnosed with mild autism ,anxiety depression, and social incompatible syndrome (I think that's what it's called) so I got hit with it all at the same time All of those could be associated with your autism as well. X Totally never thought about it like that x Obviously I'm not a doctor however I can totally identify with the things you have just mentioned. Can I ask whether you had a proper autism assessment or whether it was just a possible diagnosis. It's when I had my breakdown I just remember be assessed and being told so I think it was just an assessment but I could be wrong, I don't really know, it was all alot going on at the time" OK that makes sense. An autism assessment takes quite a considerable amount of time and you would know you had had it. Personally I think it was an initial diagnosis, My suggestion is speak to your gp or mental health professional and ask them if you can have a formal assessment. Having this assessment and diagnosis really helped me to understand what I was feeling and why and has been really helpful. X | |||
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"I became aware that I'm probably autistic when a bunch of friends studied it during their teacher training and all rushed to me to point out that I hit every trait on the list. Went to the GP and was very literally laughed at for suggesting it and told I was wasting an appointment. Not really keen to seek any kind of formal diagnosis now after being left that humiliated, I am who I am, it has its advantages and disadvantages just like anything else" I'm so sorry you feel humiliated by your doctor's reaction and that is terrible. | |||
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"5 years ago I had a breakdown and got diagnosed with mild autism ,anxiety depression, and social incompatible syndrome (I think that's what it's called) so I got hit with it all at the same time All of those could be associated with your autism as well. X Totally never thought about it like that x Obviously I'm not a doctor however I can totally identify with the things you have just mentioned. Can I ask whether you had a proper autism assessment or whether it was just a possible diagnosis. It's when I had my breakdown I just remember be assessed and being told so I think it was just an assessment but I could be wrong, I don't really know, it was all alot going on at the time OK that makes sense. An autism assessment takes quite a considerable amount of time and you would know you had had it. Personally I think it was an initial diagnosis, My suggestion is speak to your gp or mental health professional and ask them if you can have a formal assessment. Having this assessment and diagnosis really helped me to understand what I was feeling and why and has been really helpful. X" Can I just say thankyou wow what a nice person you are, I will do that but I find it hard to admit I have issues, and kind of embarrassed even talking to a doctor | |||
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"5 years ago I had a breakdown and got diagnosed with mild autism ,anxiety depression, and social incompatible syndrome (I think that's what it's called) so I got hit with it all at the same time All of those could be associated with your autism as well. X Totally never thought about it like that x Obviously I'm not a doctor however I can totally identify with the things you have just mentioned. Can I ask whether you had a proper autism assessment or whether it was just a possible diagnosis. It's when I had my breakdown I just remember be assessed and being told so I think it was just an assessment but I could be wrong, I don't really know, it was all alot going on at the time OK that makes sense. An autism assessment takes quite a considerable amount of time and you would know you had had it. Personally I think it was an initial diagnosis, My suggestion is speak to your gp or mental health professional and ask them if you can have a formal assessment. Having this assessment and diagnosis really helped me to understand what I was feeling and why and has been really helpful. X Can I just say thankyou wow what a nice person you are, I will do that but I find it hard to admit I have issues, and kind of embarrassed even talking to a doctor " Totally understand but the way I see it is if you have these issues anyway, Talking about it and maybe getting a diagnosis and therefore some help isn't going to make it any worse. | |||
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"Where do I begin... I've never fit in, have struggled with many things most people find easy and have a history of mental health issues. Last year my (now former employers) had a psychologist come in to support us around burnout. They suggested I was autistic and to be honest I was pissed off and quite indignant, I was approaching my 50th birthday and I felt I'd have figured it out or one of the nsby professionals I'd engaged with kat have noticed. I did the tests and had a few more meetings and while I don't have a formal diagnosis I very obviously am and very much accept I am autistic. I was angry, I was upset and I was confused. And then it got a whole lot fucking worse. I spoke to my employers of over a decade and agreed to refer myself to occupational health. My manager never mentioned I was autistic to them and posed a number of questions around whst I was going to do to manage my mental health and whether I felt I could still do the job. Instead of support I was presented with capabilities. Fast forward a few weeks and under extreme pressure at work and following abuse and threats from a member of the public i had a massive autistic meltdown (I've been having them all my life although not frequently but at least now at least I know what they are). Ignoring mitigation I was placed on disciplinary, I attempted suicide was signed off work and my employers introduced an ill health review. Long story short, despite a complete lack of support I attempted to return to work. I was refused permission though not suspended. I was declared a risk (no risk assessment) refused reasonable adjustments and told a condition of returning to work I had to tell them what steps I was putting in place to guarantee I would never have another meltdown. So I attempted suicide again, was almost sectioned and resigned. That was all within 6 months of finding out I was autistic and very much clouded my judgement. Just anger, so much fucking anger. And fear that this treatment, this reaction and this lack of support was typical. Fast forward to now and I'm kind of at peace with the diagnosis. I'm in a new job where I'm incredinly well supported, my partner has been incredible as have my friends. I like understanding why I struggle with things. I like being able to be honest about it. I like being able to say to people that I'm autistic and I need clarity because I don't understand somethings. I like being able to take a cuddly toy with me when I know I'll be stressed because I find the texture supporting. I like being able to explain why I need a quiet space. I like understanding why the texture of certain foods makes me wretch. There's a lot of things I like. But there's still anger, anger no one noticed, anger at how I was treated, fear at how I might be treated on the future. And a lot of regret, my life has been very difficult and if I'd known sooner, I wonder how things may have been different. But I was to by a friend in January that I might be scared, and angry and overwhelmed but I'll come through this and find my tribe and find acceptance. And they were right even if I'm not quite there yet"  | |||
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"I wonder if anyone that has received help and been diagnosed as an adult would please message me with how they went about doing that. Please." Go to your GP with a list of traits that are relevant to you. Doing an on line AQ test will be a useful thing to provide when you go. They will refer you for an assessment if they agree with you. | |||
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"I wonder if anyone that has received help and been diagnosed as an adult would please message me with how they went about doing that. Please. Go to your GP with a list of traits that are relevant to you. Doing an on line AQ test will be a useful thing to provide when you go. They will refer you for an assessment if they agree with you." ^^^This is what we did. We put our concerns about Mr KC's autism in a letter then saw the GP. | |||
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"I wonder if anyone that has received help and been diagnosed as an adult would please message me with how they went about doing that. Please." Also Southampton has one of the shortest waiting times for autism assessments for adults. I had mine in Southampton. | |||
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"I wonder if anyone that has received help and been diagnosed as an adult would please message me with how they went about doing that. Please. Go to your GP with a list of traits that are relevant to you. Doing an on line AQ test will be a useful thing to provide when you go. They will refer you for an assessment if they agree with you. ^^^This is what we did. We put our concerns about Mr KC's autism in a letter then saw the GP." And if you feel the GP is being dismissive persevere and ask for a second opinion. I had my first assessment 14 years ago by a junior psychiatrist who's only experience of autism was Rain Man. She said "you can't be, you're making eye contact". I got another assessment and a diagnosis in 2018 with a facility that specialises in adult autism and ADHD. | |||
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"Personally having lived with it and dealt with it all my life the hardest thing for me was seeing that my three children are also on the scale and knowing what they are going to have to go through growing up. T" Because it's more recognised and accepted now our children will not have to go through what we went through growing up. My 14 year old is diagnosed and the very best thing about my own diagnosis is that I can raise him with empathy and understanding and love, teach him coping mechanisms, how to recognise his limitations and to celebrate his strengths. Already he is showing a self-awareness and self-acceptance that were far beyond my capabilities at his age. He hasn't experienced the social isolation and derision that were so pronounced throughout my adolescence. The friendship group he belongs to is full of quirky, beautiful little weirdos just like him | |||
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"Where do I begin... I've never fit in, have struggled with many things most people find easy and have a history of mental health issues. Last year my (now former employers) had a psychologist come in to support us around burnout. They suggested I was autistic and to be honest I was pissed off and quite indignant, I was approaching my 50th birthday and I felt I'd have figured it out or one of the nsby professionals I'd engaged with kat have noticed. I did the tests and had a few more meetings and while I don't have a formal diagnosis I very obviously am and very much accept I am autistic. I was angry, I was upset and I was confused. And then it got a whole lot fucking worse. I spoke to my employers of over a decade and agreed to refer myself to occupational health. My manager never mentioned I was autistic to them and posed a number of questions around whst I was going to do to manage my mental health and whether I felt I could still do the job. Instead of support I was presented with capabilities. Fast forward a few weeks and under extreme pressure at work and following abuse and threats from a member of the public i had a massive autistic meltdown (I've been having them all my life although not frequently but at least now at least I know what they are). Ignoring mitigation I was placed on disciplinary, I attempted suicide was signed off work and my employers introduced an ill health review. Long story short, despite a complete lack of support I attempted to return to work. I was refused permission though not suspended. I was declared a risk (no risk assessment) refused reasonable adjustments and told a condition of returning to work I had to tell them what steps I was putting in place to guarantee I would never have another meltdown. So I attempted suicide again, was almost sectioned and resigned. That was all within 6 months of finding out I was autistic and very much clouded my judgement. Just anger, so much fucking anger. And fear that this treatment, this reaction and this lack of support was typical. Fast forward to now and I'm kind of at peace with the diagnosis. I'm in a new job where I'm incredinly well supported, my partner has been incredible as have my friends. I like understanding why I struggle with things. I like being able to be honest about it. I like being able to say to people that I'm autistic and I need clarity because I don't understand somethings. I like being able to take a cuddly toy with me when I know I'll be stressed because I find the texture supporting. I like being able to explain why I need a quiet space. I like understanding why the texture of certain foods makes me wretch. There's a lot of things I like. But there's still anger, anger no one noticed, anger at how I was treated, fear at how I might be treated on the future. And a lot of regret, my life has been very difficult and if I'd known sooner, I wonder how things may have been different. But I was to by a friend in January that I might be scared, and angry and overwhelmed but I'll come through this and find my tribe and find acceptance. And they were right even if I'm not quite there yet" | |||
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"I sometimes feel that I’m holding back a deeper mental illness after all the shit of the last 2 years. " Please go and have a chat with a doc or there may well be self referral support options. If you are on the Bolton side of things, OnePoint is the self referral thingy. I hope you find some resolution. | |||
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"It's a part of who I am and I embrace it. I was diagnosed 6 years ago but It had been mentioned when I was a child but my parents dismissed it. I was relieved in a lot of ways because I knew I didn't see things or think about things in the same way as other people and i reacted to things in a way that other people found strange. Being assessed as autistic helped me to understand why I reacted to certain things in the way I did and as a result helped me to find ways of dealing with that. Mr KC feels pretty much exactly same way. His diagnosis as an adult has also improved our communication together, as I now understand how best to phrase things and to be explicit, not implicit. His mental health has improved exponentially after his diagnosis and that's with zero extra counselling or whatnot. Thank you for sharing that because that has been a struggle for us, My husband is the most marvellous and understanding man but it has taken him time to understand my triggers And they can change. He totally understands that I'm not being a dickhead when I react in what some may see as an unreasonable way. Certain noises are a major issue for me as well and again depending on the day and how I'm feeling can depend on how strong my reaction is. He is fantastic at warning me if he knows there is going to be a noise that is going to upset me, He is also fantastic at reassuring me if there is a sudden noise like if he drops something. " I'm so glad you get that understanding and support LornaJo  I find it a big help when people who know me,help me those ways
I'm fairly comfortable and happy but often wish the world was just a little more accommodating at times.
Love to everyone xx | |||
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"There have been a few posts recently when fabbers have had the opportunity to 'out' themselves. So, I thought I'd hone-in on that and ask, if you're autistic, how do you feel about your autism? [Please respect the question and refrain from commenting if you are not autistic. Thanks.]" Why autism In particular? Most people I’ve meet have little real interest in understanding it let alone really having much tolerance with people with autism. Most of the time it being on the fringe as a friends plus 1. Being the one everyone thinks is a bit of an ass or chore. Happy to share my thoughts though on how it makes me feel, just pleasantly surprised but also a little cautious x | |||
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"I sometimes feel that I’m holding back a deeper mental illness after all the shit of the last 2 years. " Feel free to msg me, mate. No one should be feeling like this. - Jack | |||
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"I became aware that I'm probably autistic when a bunch of friends studied it during their teacher training and all rushed to me to point out that I hit every trait on the list." I had a fairly similar experience. I was at work, aged 38, and some people came in to do a training on working with autistic clients/families. They spent one session sharing symptoms of "Asperger's" (as it was known at the time). I looked-up to see that everyone was staring at me with their mouths open. I went to see my GP 2 days later. | |||
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"It's a part of who I am and I embrace it. I was diagnosed 6 years ago... Thanks for sharing. I've often wondered if there's a difference in how people feel about their diagnosis depending if it was late or early. (My hunch was - the later = less positive.)" My mum got her diagnosis last November aged 64. It's been generally a positive realisation for her, but she also has a lot of grief to work through. | |||
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"My mum got her diagnosis last November aged 64. It's been generally a positive realisation for her, but she also has a lot of grief to work through." I'm glad to hear it's been positive for her. | |||
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"It's a part of who I am and I embrace it. I was diagnosed 6 years ago but It had been mentioned when I was a child but my parents dismissed it. I was relieved in a lot of ways because I knew I didn't see things or think about things in the same way as other people and i reacted to things in a way that other people found strange. Being assessed as autistic helped me to understand why I reacted to certain things in the way I did and as a result helped me to find ways of dealing with that. " How long did it take to get diagnosed? I can only imagine there'd a few folks who are living with it undiagnosed? | |||
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"ASD & ADHD here. My "wonky brain" undoubtedly makes so many aspects of life more difficult and it was hell growing up undiagnosed but now I wouldn't swap it for anything. I think neurodivergent people see the world in so much more colour than others. We're genuine and authentic and full of possibilities. I wish I knew more of us IRL because on the rare occasion I really get to shoot the shit with another neurodivergent I really relish that easy connection when so often I feel like an alien amongst humans." I just read a short article about being neurodivergent, which is not a medical condition, and it struck a chord with me. I don't struggle with social situations as much as I choose not to engage. People who interest me, I will make an effort with. Whilst being very diplomatic, I have no time for pussy footing politics. I can play the game, but refuse to. What really made me think was advancement through skills based tests, rather than social interaction and climbing the greasy pole. My career progression was mostly sideways, and diverse in roles within an objective driven organisation. I mostly excelled, but bombed out on the niceties of arse crawling. I tend to speak the truth, even when it isn't the truth my bosses want to hear! | |||
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"My son was diagnosed about 10 years ago and I was devastated." Why on earth were you "devastated"? | |||
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"My son was diagnosed about 10 years ago and I was devastated. Why on earth were you "devastated"? " Because I had absolutely no understanding of what it was. I struggle with things I don't understand. Nobody during the diagnosis process explained what it was. I just saw my son was going to struggle for the rest of his life. The one thing that does stick in my mind and helped me was a consultant explaining that 90% of NASA employees are on the spectrum because they don't want people that think the same way. | |||
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"I personally think that everyone is 'autistic' to some degree or other " Well, you're wrong. That's fucking bullshit. | |||
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"Only thing I feel about it personally is I feel it’s on the rise in our society " I don't think it's on the rise, I think there is a far better understanding and therefore far more people are being diagnosed and people are talking about it more | |||
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"My son was diagnosed about 10 years ago and I was devastated. Why on earth were you "devastated"? Because I had absolutely no understanding of what it was. I struggle with things I don't understand. Nobody during the diagnosis process explained what it was. I just saw my son was going to struggle for the rest of his life. The one thing that does stick in my mind and helped me was a consultant explaining that 90% of NASA employees are on the spectrum because they don't want people that think the same way. "  | |||
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"I personally think that everyone is 'autistic' to some degree or other. We all have our quirks, foibles habits and issues such as dealing with planning, organisation and social interaction or feeling 'overwhelmed' by life,noise crowded areas and having some type of repetitive behaviours(up to and including sexual activities). Its all part of the human condition, its simply that in some people its more obvious and much more difficult to deal with life in general. Maybe we should try to stop labelling people and just try to accept and love them for 'who they are' rather than making them 'outsiders' people who don't fit in society as general or someone with special needs, after all which of us can honestly say we dont have any traits that could be classed as on the autism spectrum. Not a (shock horror)Beatles fan but their song All You Need is Love does seem to be a suitable starting point for society to become inclusive of everyone rather than exclusive to those that dont fit the norm. " I'm sorry but there is so much wrong with this that I honestly dint know where to begin. It's incredibly ableist, incredibly insulting and and incredibly dismissive. I spent almost 50 years trying to 'fit in' and the reality is I don't. I'm noticeably different and struggle with so many aspects of normal life that neurotypical people simply don't. It's pretty insensitive to post on a thread where people are openly sharing very honest life experiences and effectively dismiss that by saying the condition doesn't exist | |||
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"I personally think that everyone is 'autistic' to some degree or other. We all have our quirks, foibles habits and issues such as dealing with planning, organisation and social interaction or feeling 'overwhelmed' by life,noise crowded areas and having some type of repetitive behaviours(up to and including sexual activities). Its all part of the human condition, its simply that in some people its more obvious and much more difficult to deal with life in general. Maybe we should try to stop labelling people and just try to accept and love them for 'who they are' rather than making them 'outsiders' people who don't fit in society as general or someone with special needs, after all which of us can honestly say we dont have any traits that could be classed as on the autism spectrum. Not a (shock horror)Beatles fan but their song All You Need is Love does seem to be a suitable starting point for society to become inclusive of everyone rather than exclusive to those that dont fit the norm. I'm sorry but there is so much wrong with this that I honestly dint know where to begin. It's incredibly ableist, incredibly insulting and and incredibly dismissive. I spent almost 50 years trying to 'fit in' and the reality is I don't. I'm noticeably different and struggle with so many aspects of normal life that neurotypical people simply don't. It's pretty insensitive to post on a thread where people are openly sharing very honest life experiences and effectively dismiss that by saying the condition doesn't exist" A comment about accepting everyone for who they are, and your insulted by it? That’s an odd take | |||
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"I personally think that everyone is 'autistic' to some degree or other. " That's just not true. It's not a spectrum from neuro typical to autistic. You're either autistic or you aren't. | |||
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"I personally think that everyone is 'autistic' to some degree or other. We all have our quirks, foibles habits and issues such as dealing with planning, organisation and social interaction or feeling 'overwhelmed' by life,noise crowded areas and having some type of repetitive behaviours(up to and including sexual activities). Its all part of the human condition, its simply that in some people its more obvious and much more difficult to deal with life in general. Maybe we should try to stop labelling people and just try to accept and love them for 'who they are' rather than making them 'outsiders' people who don't fit in society as general or someone with special needs, after all which of us can honestly say we dont have any traits that could be classed as on the autism spectrum. Not a (shock horror)Beatles fan but their song All You Need is Love does seem to be a suitable starting point for society to become inclusive of everyone rather than exclusive to those that dont fit the norm. I'm sorry but there is so much wrong with this that I honestly dint know where to begin. It's incredibly ableist, incredibly insulting and and incredibly dismissive. I spent almost 50 years trying to 'fit in' and the reality is I don't. I'm noticeably different and struggle with so many aspects of normal life that neurotypical people simply don't. It's pretty insensitive to post on a thread where people are openly sharing very honest life experiences and effectively dismiss that by saying the condition doesn't exist A comment about accepting everyone for who they are, and your insulted by it? That’s an odd take " Yeah, I mean his post literally contradicted that pount with almost everybody he typed when he said that everyone is autistic and dismissed autistic traits as 'normal'. Bit my take is the odd one 
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"I personally think that everyone is 'autistic' to some degree or other Well, you're wrong. That's fucking bullshit. " Well your wrong as Autism is a spectrum disorder. As in.. we are all on it. Not bring comfy socialising… Needed an order…. More comfy on your own… Very much focused on an interest to the exclusion of others. Very literal.. All human traits… | |||
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" Well your wrong as Autism is a spectrum disorder. As in.. we are all on it." I'm afraid you've just demonstrated that you need to educate yourself about autism. You have misunderstood what is meant when people talk about the autism spectrum. Plus, your logic is faulty. Autism is a spectrum condition. That doesn't mean everyone is "on" it. It means that everyone with autism is "on" it. | |||
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"I personally think that everyone is 'autistic' to some degree or other Well, you're wrong. That's fucking bullshit. Well your wrong as Autism is a spectrum disorder. As in.. we are all on it. Not bring comfy socialising… Needed an order…. More comfy on your own… Very much focused on an interest to the exclusion of others. Very literal.. All human traits… " It's not a spectrum from: Neuro typical to high needs Autistic. Either you're on the Autistic spectrum or you aren't. | |||
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"I personally think that everyone is 'autistic' to some degree or other Well, you're wrong. That's fucking bullshit. Well your wrong as Autism is a spectrum disorder. As in.. we are all on it. Not bring comfy socialising… Needed an order…. More comfy on your own… Very much focused on an interest to the exclusion of others. Very literal.. All human traits… " You're wrong. And again I'm not sure why neurotypicals are banging on and trying to invalidate autism as a condition | |||
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"It is a spectrum disorder. Just like Asperger’s is higher functioning Autism for years… now it isn’t.. but it will be again soon. " Again, you're demonstrating your ignorance of the subject. Asperger's is *extremely* unlikely to ever crop up in any diagnostic material again. Please stop talking about a subject you are clearly not very informed about. And perhaps start listening to the autistic community. | |||
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"You're wrong. And again I'm not sure why neurotypicals are banging on and trying to invalidate autism as a condition" Because we're just simple folk who like having meltdowns and pouring over train timetables, I guess | |||
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"It is a spectrum disorder. Just like Asperger’s is higher functioning Autism for years… now it isn’t.. but it will be again soon. " Given the links of Dr Hans Aspergers to the Nazi regime in WW2 I'm pretty confident that term is resigned to history now | |||
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"Given the links of Dr Hans Aspergers to the Nazi regime in WW2 I'm pretty confident that term is resigned to history now "  | |||
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"You're wrong. And again I'm not sure why neurotypicals are banging on and trying to invalidate autism as a condition Because we're just simple folk who like having meltdowns and pouring over train timetables, I guess" In fairness I do love a timetable! And trains for that matter! | |||
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"You're wrong. And again I'm not sure why neurotypicals are banging on and trying to invalidate autism as a condition Because we're just simple folk who like having meltdowns and pouring over train timetables, I guess In fairness I do love a timetable! And trains for that matter! " I like maps and planes. And damn it, I'm still having those meltdowns when something frazzles my brain. I'm understanding it better now though | |||
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"You're wrong. And again I'm not sure why neurotypicals are banging on and trying to invalidate autism as a condition Because we're just simple folk who like having meltdowns and pouring over train timetables, I guess In fairness I do love a timetable! And trains for that matter! I like maps and planes. And damn it, I'm still having those meltdowns when something frazzles my brain. I'm understanding it better now though "I used to love maps when I was younger and loved measuring out routes with a peace of string before I had a computer for my bike! Even now, in the digital age I love looking over a map of any races I've got planned and strava is rabbithole I can disappear down for hours! | |||
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"It is a spectrum disorder. Just like Asperger’s is higher functioning Autism for years… now it isn’t.. but it will be again soon. Again, you're demonstrating your ignorance of the subject. Asperger's is *extremely* unlikely to ever crop up in any diagnostic material again. Please stop talking about a subject you are clearly not very informed about. And perhaps start listening to the autistic community. " Yes, please do! | |||
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"All humans have autistic behaviours.. because auric behaviours.. are human too. " Weak. Just accept that you're wrong on this subject, learn more and move on. All Autistic people are humans but not all humans are Autistic. See how that works? | |||
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"I start the diagnosis for ADHD in September. It would explain a lot if I am. MrWho." Hope the process helps you. Work in N Yorkshire of you ever fancy a chat and the Mrs is gorgeous! | |||
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"I start the diagnosis for ADHD in September. It would explain a lot if I am. MrWho." I hope it helps mate | |||
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"It is a spectrum disorder. Just like Asperger’s is higher functioning Autism for years… now it isn’t.. but it will be again soon. Given the links of Dr Hans Aspergers to the Nazi regime in WW2 I'm pretty confident that term is resigned to history now " Yep I well be as they us Autism now as the Umbrella term. Here something thou and its sad but true without those horrible experiments those doctors did during WW2 we wouldn't be as medically advance as we are now. I had a friend who went to Uni to study to become a surgeon and they still use old books from that time as they are that detailed in describing how to operate and the diagrams. | |||
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"So sorry you had this experience, John. If you can get a sunflower lanyard, I know many autistic people use those as "evidence" that they have an unseen disability and may require support. Ignorance is, sadly, everywhere though. Hope you are okay now? " I am thank you. Ironically the appointment was fine and I'd have been fine on my own...
To be honest it just caught me off guard, having rang and checked and been told it would be fine I didn't expect that sort of aggression.
Sadly I'm not sure he'd have been the type to understand a lanyard!
It's annoying because he was clearly showing off, it was very clear I wasn't the first to complain about him and I think he just wanted to feel important rather than not letting us in.
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"It's a part of who I am and I embrace it. I was diagnosed 6 years ago... Thanks for sharing. I've often wondered if there's a difference in how people feel about their diagnosis depending if it was late or early. (My hunch was - the later = less positive.)" Diagnosed when I was 22 after years of depression. On the one hand I think late diagnosis has made me harder and more self reliant, having been forged in the crucible of a bad school with no support or understanding. On the downside this has led to a lot of permanent psychological problems. | |||
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"So today I'm feeling somewhat embarrassed about my Autism and hating on ignorant neurotypicals" 
I actually do have an ID badge precisely for clowns like him. It's meaningless, because anyone can apply for one online, but I don't imagine he'd know that.
Before I got it, during the first lockdown, Alice was coming into a shop with me and the guard said "one person per family." I explained that she supports me with my autism and he asked if I could prove I am autistic. I said, "yeah, but I don't think you want me to do that."
In the end, the only thing that worked was asking him if he really wanted to be the guy who turned away an autistic customer.
I hope your guy got sacked. That's a disgusting way to treat you *and* your partner.
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"Judging by my son's diagnosis I guess I must be on the low end as I feel similar to the OP but when at around the 50 mark I asked for an assessment they said what good would it do you now !!! "My mum got her diagnosis at 64, as I said upthread. It's helped her in ways she couldn't have forseen. If you want the diagnosis be persistent and fight for it. | |||
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"It's fine really. Don't get me wrong, sometimes I get a bit upset when I don't understand things or I say what I think is the right thing (learned social responses) only for it to not quite be but I think because I've spent many years masking and a relatively young diagnosis, it doesn't really affect me day to day. I still get sensory overloads in some situations but I've learned to lessen the stim to a hand. Maybe two depending! Most people don't realise/notice it so I think I get away with passing even when overwhelmed. Overall I don't see it as impacting too much on me day to day nowadays, I'm a bit weird anyway. More comfortable in being me. Quirks, follies and all." Ahh Meli, my shared vagina sister. Love you | |||
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"It's fine really. Don't get me wrong, sometimes I get a bit upset when I don't understand things or I say what I think is the right thing (learned social responses) only for it to not quite be but I think because I've spent many years masking and a relatively young diagnosis, it doesn't really affect me day to day. I still get sensory overloads in some situations but I've learned to lessen the stim to a hand. Maybe two depending! Most people don't realise/notice it so I think I get away with passing even when overwhelmed. Overall I don't see it as impacting too much on me day to day nowadays, I'm a bit weird anyway. More comfortable in being me. Quirks, follies and all. Ahh Meli, my shared vagina sister. Love you "Oh gosh. Yes. Ha! How could I forget. Love you too Nell, thank you for being such a brilliant ND friend - it really means a lot to me and makes things so much easier. | |||
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"It's fine really. Don't get me wrong, sometimes I get a bit upset when I don't understand things or I say what I think is the right thing (learned social responses) only for it to not quite be but I think because I've spent many years masking and a relatively young diagnosis, it doesn't really affect me day to day. I still get sensory overloads in some situations but I've learned to lessen the stim to a hand. Maybe two depending! Most people don't realise/notice it so I think I get away with passing even when overwhelmed. Overall I don't see it as impacting too much on me day to day nowadays, I'm a bit weird anyway. More comfortable in being me. Quirks, follies and all. Ahh Meli, my shared vagina sister. Love you
Oh gosh. Yes. Ha! How could I forget. Love you too Nell, thank you for being such a brilliant ND friend - it really means a lot to me and makes things so much easier. " | |||
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"It's fine really. Don't get me wrong, sometimes I get a bit upset when I don't understand things or I say what I think is the right thing (learned social responses) only for it to not quite be but I think because I've spent many years masking and a relatively young diagnosis, it doesn't really affect me day to day. I still get sensory overloads in some situations but I've learned to lessen the stim to a hand. Maybe two depending! Most people don't realise/notice it so I think I get away with passing even when overwhelmed. Overall I don't see it as impacting too much on me day to day nowadays, I'm a bit weird anyway. More comfortable in being me. Quirks, follies and all." You more than pass. I've noticed your hyper-vigilance, it's hardly surprising you would feel overwhelmed. But what insights you have! I lovee your quirks. | |||
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"So this seems like a good thread to post this on. Today I had to go to Peterborough for an appointment at the office. I'm stupidly anxious about this, I go away in 17 days, I've lost my old one, they wanted yo se my deed poll (lost it years ago) so I've had a lot of stress sorting the paperwork... So my partner came with me, because if there was a problem it would have sent me in to a meltdown (I've been close to one all day), I'd phoned and they were fine. Security staff on the door, brilliant, let her on with me and really kind. Security staff inside, "she can't come in" politely explain I'm autistic and she's there to support me. "Well do you have a card?" what? "Do you have a card, or some other proof?" what, we don't get given fucking ID cards... "Well you don't look autistic, you look normal to me?" All this is at the top of his voice, everyone can here. I explain she's with me because while I may look fine, I'm super stressed and if there's a problem she'll keep me calm and sort it. "Well we all get stressed mate, I reckon I might ne Autistic" turns to colleague " What do you reckon, do you think we're Autistic" But result, let's my partner in with me. Parting shot "well mate we can see who wears the trousers, I need tobget myself a woman like that who does everything for me" I did get a very grovelling apology from a colleague who took it very seriously when we complained on our way out. So today I'm feeling somewhat embarrassed about my Autism and hating on ignorant neurotypicals" I'm sorry you experienced this. That doesn't sound like ignorant neurotypicals, just plain ugly power-hungry bullies. | |||
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"Judging by my son's diagnosis I guess I must be on the low end as I feel similar to the OP but when at around the 50 mark I asked for an assessment they said what good would it do you now !!!
My mum got her diagnosis at 64, as I said upthread. It's helped her in ways she couldn't have forseen. If you want the diagnosis be persistent and fight for it."Thank you for your support. But just understanding that I think differently to others and see things differently helps me deal with life. It's why you won't see a post from me complaint that I don't get meets. They are few and far between. I try to respond in the way the advice recommends but it seems to get me know where. But one day I'll come across someone who gets me | |||
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"It's fine really. Don't get me wrong, sometimes I get a bit upset when I don't understand things or I say what I think is the right thing (learned social responses) only for it to not quite be but I think because I've spent many years masking and a relatively young diagnosis, it doesn't really affect me day to day. I still get sensory overloads in some situations but I've learned to lessen the stim to a hand. Maybe two depending! Most people don't realise/notice it so I think I get away with passing even when overwhelmed. Overall I don't see it as impacting too much on me day to day nowadays, I'm a bit weird anyway. More comfortable in being me. Quirks, follies and all. You more than pass. I've noticed your hyper-vigilance, it's hardly surprising you would feel overwhelmed. But what insights you have! I lovee your quirks. " Thanks Lickety, that means a lot. I like how you've described it - hyper-vigilance. Makes me feel like it's a power and not an annoying trait of mine.  | |||
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"There have been a few posts recently when fabbers have had the opportunity to 'out' themselves. So, I thought I'd hone-in on that and ask, if you're autistic, how do you feel about your autism? [Please respect the question and refrain from commenting if you are not autistic. Thanks.]" First I will say I don't have an official diagnosis. I say I have autistic traits. My NHS therapist picked up on it and made me do the initial test and I got bloody 9 out of 10 when I was expecting 5 or 6 traits. Currently dragging my feet over the official one...NHS or Private. I feel about it the same way I feel about my BPD and C-PTSD....it's validating as to why I can't just be like everyone else and why I don't need to force myself to be like everyone else....anymore. It has literally freed me from so much bullshit that neurotypicals have to go through but have the stomach and brain to go through and come out unscathed which is perfectly ok for them but I don't have to do it anymore as it's torture and something that I can't change easily, especially at 40 something. It's also entertaining when I have to tell new managers/supervisors and watch them freak out.  | |||
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"Me: "Fuck knows! Ive never been anyone else!" Them: But that's solipsism Me: : "But I'm right here and just do not get what the fuck is going on [...And I'm bored out of my mind, waiting to be clued in, figure it out]" " Hugs. I only got the hint when I went to intensive therapy. | |||
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"Im definitely undiagnosed, i can barely pay attention to anything for longer than 2 seconds if i dont find it interesting, i can skim read stuff incredibly, if i do find stuff interesting i want to know every single thing about it. Im socially awkward to the point where I can't look someone in the eyes if I fancy them and talk really quickly, I change subjects all the time and pace around "I live on the other side of Wandsworth Borough. I definitely talk really quickly and too much and change subjects really quickly. My attention isn't great and seems to be getting worse as I get older but Tik Tok is teaching me coping strategies because there is no official treatment for Adult Autism. I get by. | |||
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"I was only diagnosed as mildly HFA within the last five years. Suddenly, a lot of things made sense - but, no, not going to bore you with endless anecdotes. It's a nuisance, occasionally, being useless at reading signals, for example - especially when clubbing. I don't let it define me and, obviously, have no idea how different life would have been without it. " I'm a bit pissed off that it wasn't picked up earlier. Could have saved me so much job hassle. Uni and friends and romantic partners were ok but the workplace and marriage were brutal on me and I ended up in the hospital after a serious attempt. I now know it to be autistic burnout/overstimulation. | |||
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"I'm a bit pissed off that it wasn't picked up earlier. Could have saved me so much job hassle. Uni and friends and romantic partners were ok but the workplace and marriage were brutal on me and I ended up in the hospital after a serious attempt. I now know it to be autistic burnout/overstimulation." I have occasionally wondered whether I had a meltdown while a student. I certainly cracked up, spending five hours one afternoon with the university psychotherapist - plus, eventually, GP and, towards the end, a sent-for social worker. Spent the next two years in weekly psychotherapy and on a variety of depression medications. This was 35 years ago and I suspect that autism was rarely diagnosed back then... | |||
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"I don't know if the results one way or another will have a positive effect on my life. I could do with some advice on if it's worth proceeding." I don't know if you guys are aware, but there's now a series of threads (12 and counting) regarding autism and other neurodivergence. The latest is here: https://m.fabswingers.com/forum/swingers/1409222 | |||
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"Me: "Fuck knows! Ive never been anyone else!" Them: But that's solipsism Me: : "But I'm right here and just do not get what the fuck is going on [...And I'm bored out of my mind, waiting to be clued in, figure it out]" " Yeah, what's it like to be autistic assumes I know what it's like to be not autistic. I have no idea what goes on in the heads of neurotypicals, why the fuck would I? I've only had my brain. | |||
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I (Miss L) got diagnosed with autism when I was 17. It has been a wonderful diagnosis for me and has made me understand the way my brain works.
In regard to swinging and autism I can find things difficult when people are not honest about things, when people do not stick to their promises and when people just block us without a reason. But I also find my autism helps with eliminating awkward silences because I can just talk for hours about random things. x | |||
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"Hello All, I have no diagnosis for autism but would like to involve myself in this thread. Feel free to tell me to get stuffed! For my whole life I have acted and felt different to everyone else. It was never discussed when I was a child but, now I look back, some of the symptoms were pretty typical. I have sufficient self awareness as an adult and comments from people who know/have met me to believe I may have this disorder. I won't go into all my symptoms here, suffice to say I have a huge list. About 18 months ago, I visited my GP and she was very accommodating. She gave me a bunch of paperwork and tests to complete which were then fired off to the local autism 'service'. I subsequently got a letter back saying they had a backlog of two years and, because it wasn't significantly affecting my daily life, they rejected my case!! Grrr. So, I am now about to spend somewhere in the region of £2k for a private assessment. Does anybody know of another reliable route? Interestingly, this has never really affected my Fab life. Social situations wear me out after a few hours and most meets are short enough that it doesn't become an issue. My long standing friends have obviously grown up with me and probably think I'm just being me. I have actually had a few 'normal' dates who have asked me if I was autistic. Through ignorance and naivety, I was offended and rebuffed the suggestion. I am now comfortable with it and believe I can (largely) handle my particular traits. That said, I believe an official diagnosis would help me understand my triggers and identify good coping mechanisms. Far from using it to excuse my behaviour at any given time, I think it would also help to be able to explain to someone if I have upset them it wasn't me being deliberately objectionable. Anyway, I've banged on far too long and it's possible many of the thread contributors won't see this due to the time lapse. Thoughts on the above, anyone? (not the last sentence hahaha)" If they say yes you are on the autism spectrum (or whatever the correct terms are)... then what? From reading these threads it seems there is no real help for adults. So I'm wondering what the worth is of finding out - if it's going to cost time, money and heartache. What if you or whoever does an online test would that be sufficient 'evidence' to make you feel understood/ happier/ relieved/ ?? (This sounds harsh but it's a genuine question.) | |||
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"Hello All, I have no diagnosis for autism but would like to involve myself in this thread. Feel free to tell me to get stuffed! For my whole life I have acted and felt different to everyone else. It was never discussed when I was a child but, now I look back, some of the symptoms were pretty typical. I have sufficient self awareness as an adult and comments from people who know/have met me to believe I may have this disorder. I won't go into all my symptoms here, suffice to say I have a huge list. About 18 months ago, I visited my GP and she was very accommodating. She gave me a bunch of paperwork and tests to complete which were then fired off to the local autism 'service'. I subsequently got a letter back saying they had a backlog of two years and, because it wasn't significantly affecting my daily life, they rejected my case!! Grrr. So, I am now about to spend somewhere in the region of £2k for a private assessment. Does anybody know of another reliable route? Interestingly, this has never really affected my Fab life. Social situations wear me out after a few hours and most meets are short enough that it doesn't become an issue. My long standing friends have obviously grown up with me and probably think I'm just being me. I have actually had a few 'normal' dates who have asked me if I was autistic. Through ignorance and naivety, I was offended and rebuffed the suggestion. I am now comfortable with it and believe I can (largely) handle my particular traits. That said, I believe an official diagnosis would help me understand my triggers and identify good coping mechanisms. Far from using it to excuse my behaviour at any given time, I think it would also help to be able to explain to someone if I have upset them it wasn't me being deliberately objectionable. Anyway, I've banged on far too long and it's possible many of the thread contributors won't see this due to the time lapse. Thoughts on the above, anyone? (not the last sentence hahaha) If they say yes you are on the autism spectrum (or whatever the correct terms are)... then what? From reading these threads it seems there is no real help for adults. So I'm wondering what the worth is of finding out - if it's going to cost time, money and heartache. What if you or whoever does an online test would that be sufficient 'evidence' to make you feel understood/ happier/ relieved/ ?? (This sounds harsh but it's a genuine question.) "I'm no longer interested in a formal diagnosis, it will change nothing. Self diagnosis is perfectly acceptable, once you're at peace with that then you can learn to understand yourself better | |||
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"Hello All, I have no diagnosis for autism but would like to involve myself in this thread. Feel free to tell me to get stuffed! For my whole life I have acted and felt different to everyone else. It was never discussed when I was a child but, now I look back, some of the symptoms were pretty typical. I have sufficient self awareness as an adult and comments from people who know/have met me to believe I may have this disorder. I won't go into all my symptoms here, suffice to say I have a huge list. About 18 months ago, I visited my GP and she was very accommodating. She gave me a bunch of paperwork and tests to complete which were then fired off to the local autism 'service'. I subsequently got a letter back saying they had a backlog of two years and, because it wasn't significantly affecting my daily life, they rejected my case!! Grrr. So, I am now about to spend somewhere in the region of £2k for a private assessment. Does anybody know of another reliable route? Interestingly, this has never really affected my Fab life. Social situations wear me out after a few hours and most meets are short enough that it doesn't become an issue. My long standing friends have obviously grown up with me and probably think I'm just being me. I have actually had a few 'normal' dates who have asked me if I was autistic. Through ignorance and naivety, I was offended and rebuffed the suggestion. I am now comfortable with it and believe I can (largely) handle my particular traits. That said, I believe an official diagnosis would help me understand my triggers and identify good coping mechanisms. Far from using it to excuse my behaviour at any given time, I think it would also help to be able to explain to someone if I have upset them it wasn't me being deliberately objectionable. Anyway, I've banged on far too long and it's possible many of the thread contributors won't see this due to the time lapse. Thoughts on the above, anyone? (not the last sentence hahaha) If they say yes you are on the autism spectrum (or whatever the correct terms are)... then what? From reading these threads it seems there is no real help for adults. So I'm wondering what the worth is of finding out - if it's going to cost time, money and heartache. What if you or whoever does an online test would that be sufficient 'evidence' to make you feel understood/ happier/ relieved/ ?? (This sounds harsh but it's a genuine question.)
I'm no longer interested in a formal diagnosis, it will change nothing.
Self diagnosis is perfectly acceptable, once you're at peace with that then you can learn to understand yourself better"Do you think you would have felt this way if you had tried to find a diagnosis when you were younger, say early 20's? | |||
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"Hello All, I have no diagnosis for autism but would like to involve myself in this thread. Feel free to tell me to get stuffed! For my whole life I have acted and felt different to everyone else. It was never discussed when I was a child but, now I look back, some of the symptoms were pretty typical. I have sufficient self awareness as an adult and comments from people who know/have met me to believe I may have this disorder. I won't go into all my symptoms here, suffice to say I have a huge list. About 18 months ago, I visited my GP and she was very accommodating. She gave me a bunch of paperwork and tests to complete which were then fired off to the local autism 'service'. I subsequently got a letter back saying they had a backlog of two years and, because it wasn't significantly affecting my daily life, they rejected my case!! Grrr. So, I am now about to spend somewhere in the region of £2k for a private assessment. Does anybody know of another reliable route? Interestingly, this has never really affected my Fab life. Social situations wear me out after a few hours and most meets are short enough that it doesn't become an issue. My long standing friends have obviously grown up with me and probably think I'm just being me. I have actually had a few 'normal' dates who have asked me if I was autistic. Through ignorance and naivety, I was offended and rebuffed the suggestion. I am now comfortable with it and believe I can (largely) handle my particular traits. That said, I believe an official diagnosis would help me understand my triggers and identify good coping mechanisms. Far from using it to excuse my behaviour at any given time, I think it would also help to be able to explain to someone if I have upset them it wasn't me being deliberately objectionable. Anyway, I've banged on far too long and it's possible many of the thread contributors won't see this due to the time lapse. Thoughts on the above, anyone? (not the last sentence hahaha) If they say yes you are on the autism spectrum (or whatever the correct terms are)... then what? From reading these threads it seems there is no real help for adults. So I'm wondering what the worth is of finding out - if it's going to cost time, money and heartache. What if you or whoever does an online test would that be sufficient 'evidence' to make you feel understood/ happier/ relieved/ ?? (This sounds harsh but it's a genuine question.)
I'm no longer interested in a formal diagnosis, it will change nothing.
Self diagnosis is perfectly acceptable, once you're at peace with that then you can learn to understand yourself better
Do you think you would have felt this way if you had tried to find a diagnosis when you were younger, say early 20's? "I don't know. Its not something I like to dwell on or overly think about. I was diagnosed weeks before my 50th birthday, and everything has fallen in to place as to why I've struggled throughout my life with so many aspects of life most people find easy. When I started reading up on late diagnosis, I quickly realised people a half or even a quarter of my age seem to consider that a late diagnosis. I'm aware my life could have been very different, without meaning to sound arrogant I've never done a job where my intellect hasn't dwarfed my immediate colleagues, I've massively under achieved. Similarly relationships, friendships, there have been so many disasters... So yeah, the 'what if I'd been diagnosed earlier' Rabbit hole is one of actively avoid!! | |||
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"Hello All, I have no diagnosis for autism but would like to involve myself in this thread. Feel free to tell me to get stuffed! For my whole life I have acted and felt different to everyone else. It was never discussed when I was a child but, now I look back, some of the symptoms were pretty typical. I have sufficient self awareness as an adult and comments from people who know/have met me to believe I may have this disorder. I won't go into all my symptoms here, suffice to say I have a huge list. About 18 months ago, I visited my GP and she was very accommodating. She gave me a bunch of paperwork and tests to complete which were then fired off to the local autism 'service'. I subsequently got a letter back saying they had a backlog of two years and, because it wasn't significantly affecting my daily life, they rejected my case!! Grrr. So, I am now about to spend somewhere in the region of £2k for a private assessment. Does anybody know of another reliable route? Interestingly, this has never really affected my Fab life. Social situations wear me out after a few hours and most meets are short enough that it doesn't become an issue. My long standing friends have obviously grown up with me and probably think I'm just being me. I have actually had a few 'normal' dates who have asked me if I was autistic. Through ignorance and naivety, I was offended and rebuffed the suggestion. I am now comfortable with it and believe I can (largely) handle my particular traits. That said, I believe an official diagnosis would help me understand my triggers and identify good coping mechanisms. Far from using it to excuse my behaviour at any given time, I think it would also help to be able to explain to someone if I have upset them it wasn't me being deliberately objectionable. Anyway, I've banged on far too long and it's possible many of the thread contributors won't see this due to the time lapse. Thoughts on the above, anyone? (not the last sentence hahaha) If they say yes you are on the autism spectrum (or whatever the correct terms are)... then what? From reading these threads it seems there is no real help for adults. So I'm wondering what the worth is of finding out - if it's going to cost time, money and heartache. What if you or whoever does an online test would that be sufficient 'evidence' to make you feel understood/ happier/ relieved/ ?? (This sounds harsh but it's a genuine question.) "Fair question, Outsider
For me it is purely about two things - an official diagnosis which may help me at work (we have excellent OH provision etc) but, most importantly, I can identify coping mechanisms and help myself navigate life more easily.
Whether that is any more available with an official diagnosis appears to be up for debate, but I would feel better for it. Like a mystery solved. That is just how my brain works
Totally appreciate others’ views but I feel this is something I need to do for me. | |||
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"There have been a few posts recently when fabbers have had the opportunity to 'out' themselves. So, I thought I'd hone-in on that and ask, if you're autistic, how do you feel about your autism? [Please respect the question and refrain from commenting if you are not autistic. Thanks.]" Must admit I personally find topics that single out a specific demographic and trying to coax people to out themselves as rude and overly intrusive. A topic generally on mental well-being where everyone share their own issues is one thing, however unless your a neurologist or specialist writing a book that may be beneficial. What business is it of anyones else on any of it? You wouldn’t intrusively ask strangers to spill their heart and soul out over other sensitive matters. That something for friends and family. I’d ask everyone without autism on here that reads these post to also post something equally, deeply revealing and personal that you are hesitant to share with strangers? | |||
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"Hello All, I have no diagnosis for autism but would like to involve myself in this thread. Feel free to tell me to get stuffed! For my whole life I have acted and felt different to everyone else. It was never discussed when I was a child but, now I look back, some of the symptoms were pretty typical. I have sufficient self awareness as an adult and comments from people who know/have met me to believe I may have this disorder. I won't go into all my symptoms here, suffice to say I have a huge list. About 18 months ago, I visited my GP and she was very accommodating. She gave me a bunch of paperwork and tests to complete which were then fired off to the local autism 'service'. I subsequently got a letter back saying they had a backlog of two years and, because it wasn't significantly affecting my daily life, they rejected my case!! Grrr. So, I am now about to spend somewhere in the region of £2k for a private assessment. Does anybody know of another reliable route? Interestingly, this has never really affected my Fab life. Social situations wear me out after a few hours and most meets are short enough that it doesn't become an issue. My long standing friends have obviously grown up with me and probably think I'm just being me. I have actually had a few 'normal' dates who have asked me if I was autistic. Through ignorance and naivety, I was offended and rebuffed the suggestion. I am now comfortable with it and believe I can (largely) handle my particular traits. That said, I believe an official diagnosis would help me understand my triggers and identify good coping mechanisms. Far from using it to excuse my behaviour at any given time, I think it would also help to be able to explain to someone if I have upset them it wasn't me being deliberately objectionable. Anyway, I've banged on far too long and it's possible many of the thread contributors won't see this due to the time lapse. Thoughts on the above, anyone? (not the last sentence hahaha) If they say yes you are on the autism spectrum (or whatever the correct terms are)... then what? From reading these threads it seems there is no real help for adults. So I'm wondering what the worth is of finding out - if it's going to cost time, money and heartache. What if you or whoever does an online test would that be sufficient 'evidence' to make you feel understood/ happier/ relieved/ ?? (This sounds harsh but it's a genuine question.)
I'm no longer interested in a formal diagnosis, it will change nothing.
Self diagnosis is perfectly acceptable, once you're at peace with that then you can learn to understand yourself better
Do you think you would have felt this way if you had tried to find a diagnosis when you were younger, say early 20's?
I don't know. Its not something I like to dwell on or overly think about. I was diagnosed weeks before my 50th birthday, and everything has fallen in to place as to why I've struggled throughout my life with so many aspects of life most people find easy. When I started reading up on late diagnosis, I quickly realised people a half or even a quarter of my age seem to consider that a late diagnosis.
I'm aware my life could have been very different, without meaning to sound arrogant I've never done a job where my intellect hasn't dwarfed my immediate colleagues, I've massively under achieved. Similarly relationships, friendships, there have been so many disasters...
So yeah, the 'what if I'd been diagnosed earlier' Rabbit hole is one of actively avoid!!"Glad you know now and have the future. | |||
(closed, thread got too big) | |||
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"Hello All, I have no diagnosis for autism but would like to involve myself in this thread. Feel free to tell me to get stuffed! For my whole life I have acted and felt different to everyone else. It was never discussed when I was a child but, now I look back, some of the symptoms were pretty typical. I have sufficient self awareness as an adult and comments from people who know/have met me to believe I may have this disorder. I won't go into all my symptoms here, suffice to say I have a huge list. About 18 months ago, I visited my GP and she was very accommodating. She gave me a bunch of paperwork and tests to complete which were then fired off to the local autism 'service'. I subsequently got a letter back saying they had a backlog of two years and, because it wasn't significantly affecting my daily life, they rejected my case!! Grrr. So, I am now about to spend somewhere in the region of £2k for a private assessment. Does anybody know of another reliable route? Interestingly, this has never really affected my Fab life. Social situations wear me out after a few hours and most meets are short enough that it doesn't become an issue. My long standing friends have obviously grown up with me and probably think I'm just being me. I have actually had a few 'normal' dates who have asked me if I was autistic. Through ignorance and naivety, I was offended and rebuffed the suggestion. I am now comfortable with it and believe I can (largely) handle my particular traits. That said, I believe an official diagnosis would help me understand my triggers and identify good coping mechanisms. Far from using it to excuse my behaviour at any given time, I think it would also help to be able to explain to someone if I have upset them it wasn't me being deliberately objectionable. Anyway, I've banged on far too long and it's possible many of the thread contributors won't see this due to the time lapse. Thoughts on the above, anyone? (not the last sentence hahaha) If they say yes you are on the autism spectrum (or whatever the correct terms are)... then what? From reading these threads it seems there is no real help for adults. So I'm wondering what the worth is of finding out - if it's going to cost time, money and heartache. What if you or whoever does an online test would that be sufficient 'evidence' to make you feel understood/ happier/ relieved/ ?? (This sounds harsh but it's a genuine question.)
Fair question, Outsider
For me it is purely about two things - an official diagnosis which may help me at work (we have excellent OH provision etc) but, most importantly, I can identify coping mechanisms and help myself navigate life more easily.
Whether that is any more available with an official diagnosis appears to be up for debate, but I would feel better for it. Like a mystery solved. That is just how my brain works
Totally appreciate others’ views but I feel this is something I need to do for me. "That makes sense, thank you. I can see how an official confirmation would help. | |||
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"There have been a few posts recently when fabbers have had the opportunity to 'out' themselves. So, I thought I'd hone-in on that and ask, if you're autistic, how do you feel about your autism? [Please respect the question and refrain from commenting if you are not autistic. Thanks.] Must admit I personally find topics that single out a specific demographic and trying to coax people to out themselves as rude and overly intrusive. A topic generally on mental well-being where everyone share their own issues is one thing, however unless your a neurologist or specialist writing a book that may be beneficial. What business is it of anyones else on any of it? You wouldn’t intrusively ask strangers to spill their heart and soul out over other sensitive matters. That something for friends and family. I’d ask everyone without autism on here that reads these post to also post something equally, deeply revealing and personal that you are hesitant to share with strangers?" Posting on threads isn't mandatory. If someone doesn't want to answer a deeply personal question they don't have to. Why are you so irritated by people who want to share? These threads help a lot of people. | |||
(closed, thread got too big) | |||
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"There have been a few posts recently when fabbers have had the opportunity to 'out' themselves. So, I thought I'd hone-in on that and ask, if you're autistic, how do you feel about your autism? [Please respect the question and refrain from commenting if you are not autistic. Thanks.] Must admit I personally find topics that single out a specific demographic and trying to coax people to out themselves as rude and overly intrusive. A topic generally on mental well-being where everyone share their own issues is one thing, however unless your a neurologist or specialist writing a book that may be beneficial. What business is it of anyones else on any of it? You wouldn’t intrusively ask strangers to spill their heart and soul out over other sensitive matters. That something for friends and family. I’d ask everyone without autism on here that reads these post to also post something equally, deeply revealing and personal that you are hesitant to share with strangers?" Here’s an idea, if you personally find a forum thread rude and intrusive, scroll on down to the next one and leave it alone. If you’ve read any comments you’ll see that many autistic people have found this thread helpful. This thread is for them, not you. | |||
(closed, thread got too big) | |||
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"There have been a few posts recently when fabbers have had the opportunity to 'out' themselves. So, I thought I'd hone-in on that and ask, if you're autistic, how do you feel about your autism? [Please respect the question and refrain from commenting if you are not autistic. Thanks.] Must admit I personally find topics that single out a specific demographic and trying to coax people to out themselves as rude and overly intrusive. A topic generally on mental well-being where everyone share their own issues is one thing, however unless your a neurologist or specialist writing a book that may be beneficial. What business is it of anyones else on any of it? You wouldn’t intrusively ask strangers to spill their heart and soul out over other sensitive matters. That something for friends and family. I’d ask everyone without autism on here that reads these post to also post something equally, deeply revealing and personal that you are hesitant to share with strangers?" I wasn’t going to respond to this because I don’t relish arguments and confrontation with people. I also cringe when I see spats on here. The previous two posts kinda said it, but - This lounge forum has (for the most part) a very supportive and friendly community. I like being a part of it and I read and contribute to all sorts of different topics. If I see one that doesn’t apply to me, I ignore it. This thread was started by someone who wanted to give those with autism an opportunity to comment and discuss. Happily, those (like myself) with as yet undiagnosed symptoms felt they could also contribute. If this thread isn’t for you then, respectfully, please feel free to go and find one that is. This world would be a lot easier to navigate when people finally stop getting offended on behalf of others who are actually quite happy. | |||
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"I don't have autism i have aspergers syndrome (i don't care what so called new expert claims is outdated, I was diagnosed with aspergers not autism and thats what I have), and apart from not being able to communicate at all with the opposite sex, avoiding all social activities, spending a large part of my childhood and adult life obsessed with public transport, and being a heavy gamer, I just live like any other person. But confrontation I have to avoid, I can't do loud situations ie pubs/clubs etc and if I have a meltdown, its best to leave me to shout it out. I also swear a lot, I was partially diagnosed with tourettes. Its hard for people to understand our differences but as the wise man said, it is what it is. " It’s not that a new expert called it anything, it’s that Hans Asperger was a big horrible nazi so “aspergers” is no longer a diagnosis, it all comes under the umbrella of autism/ASD/ASC. Historically both my daughter and I would have been diagnosed with aspergers, but it’s not a thing anymore according to the diagnostic guides. Aspergers = autism, whether you personally like the change or not. | |||
(closed, thread got too big) | |||
| Reply privately |
"There have been a few posts recently when fabbers have had the opportunity to 'out' themselves. So, I thought I'd hone-in on that and ask, if you're autistic, how do you feel about your autism? [Please respect the question and refrain from commenting if you are not autistic. Thanks.] Must admit I personally find topics that single out a specific demographic and trying to coax people to out themselves as rude and overly intrusive. A topic generally on mental well-being where everyone share their own issues is one thing, however unless your a neurologist or specialist writing a book that may be beneficial. What business is it of anyones else on any of it? You wouldn’t intrusively ask strangers to spill their heart and soul out over other sensitive matters. That something for friends and family. I’d ask everyone without autism on here that reads these post to also post something equally, deeply revealing and personal that you are hesitant to share with strangers? I wasn’t going to respond to this because I don’t relish arguments and confrontation with people. I also cringe when I see spats on here. The previous two posts kinda said it, but - This lounge forum has (for the most part) a very supportive and friendly community. I like being a part of it and I read and contribute to all sorts of different topics. If I see one that doesn’t apply to me, I ignore it. This thread was started by someone who wanted to give those with autism an opportunity to comment and discuss. Happily, those (like myself) with as yet undiagnosed symptoms felt they could also contribute. If this thread isn’t for you then, respectfully, please feel free to go and find one that is. This world would be a lot easier to navigate when people finally stop getting offended on behalf of others who are actually quite happy. "
There's a great little neurodiverse community on here, we share we support and we advocate. And that's why these threads are always beneficial | |||
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"I don't have autism i have aspergers syndrome (i don't care what so called new expert claims is outdated, I was diagnosed with aspergers not autism and thats what I have), and apart from not being able to communicate at all with the opposite sex, avoiding all social activities, spending a large part of my childhood and adult life obsessed with public transport, and being a heavy gamer, I just live like any other person. But confrontation I have to avoid, I can't do loud situations ie pubs/clubs etc and if I have a meltdown, its best to leave me to shout it out. I also swear a lot, I was partially diagnosed with tourettes. Its hard for people to understand our differences but as the wise man said, it is what it is. It’s not that a new expert called it anything, it’s that Hans Asperger was a big horrible nazi so “aspergers” is no longer a diagnosis, it all comes under the umbrella of autism/ASD/ASC. Historically both my daughter and I would have been diagnosed with aspergers, but it’s not a thing anymore according to the diagnostic guides. Aspergers = autism, whether you personally like the change or not. " I think it's important to recognise that the diagnosis of aspergers existed fir decades and I can understand why those diagnosed with it may struggle to accept the new terminology.
I see this a lot, with people wanting to retain their aspergers diagnosis and completely support it | |||
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"I don't have autism i have aspergers syndrome (i don't care what so called new expert claims is outdated, I was diagnosed with aspergers not autism and thats what I have), and apart from not being able to communicate at all with the opposite sex, avoiding all social activities, spending a large part of my childhood and adult life obsessed with public transport, and being a heavy gamer, I just live like any other person. But confrontation I have to avoid, I can't do loud situations ie pubs/clubs etc and if I have a meltdown, its best to leave me to shout it out. I also swear a lot, I was partially diagnosed with tourettes. Its hard for people to understand our differences but as the wise man said, it is what it is. It’s not that a new expert called it anything, it’s that Hans Asperger was a big horrible nazi so “aspergers” is no longer a diagnosis, it all comes under the umbrella of autism/ASD/ASC. Historically both my daughter and I would have been diagnosed with aspergers, but it’s not a thing anymore according to the diagnostic guides. Aspergers = autism, whether you personally like the change or not. I think it's important to recognise that the diagnosis of aspergers existed fir decades and I can understand why those diagnosed with it may struggle to accept the new terminology.
I see this a lot, with people wanting to retain their aspergers diagnosis and completely support it"I don’t think anybody’s denying it existed. There’s a lot of internalised ableism involved when people refuse to accept the change of name, like having aspergers is somehow better than merely being autistic, and that’s offensive. Whether people accept the name change or not, it’s changed, and rather than deny it I’d encourage people to question why they take issue with being autistic. | |||
(closed, thread got too big) | |||
| Reply privately |
"I don't have autism i have aspergers syndrome (i don't care what so called new expert claims is outdated, I was diagnosed with aspergers not autism and thats what I have), and apart from not being able to communicate at all with the opposite sex, avoiding all social activities, spending a large part of my childhood and adult life obsessed with public transport, and being a heavy gamer, I just live like any other person. But confrontation I have to avoid, I can't do loud situations ie pubs/clubs etc and if I have a meltdown, its best to leave me to shout it out. I also swear a lot, I was partially diagnosed with tourettes. Its hard for people to understand our differences but as the wise man said, it is what it is. It’s not that a new expert called it anything, it’s that Hans Asperger was a big horrible nazi so “aspergers” is no longer a diagnosis, it all comes under the umbrella of autism/ASD/ASC. Historically both my daughter and I would have been diagnosed with aspergers, but it’s not a thing anymore according to the diagnostic guides. Aspergers = autism, whether you personally like the change or not. I think it's important to recognise that the diagnosis of aspergers existed fir decades and I can understand why those diagnosed with it may struggle to accept the new terminology.
I see this a lot, with people wanting to retain their aspergers diagnosis and completely support it
I don’t think anybody’s denying it existed. There’s a lot of internalised ableism involved when people refuse to accept the change of name, like having aspergers is somehow better than merely being autistic, and that’s offensive. Whether people accept the name change or not, it’s changed, and rather than deny it I’d encourage people to question why they take issue with being autistic. "Because quite simply im not autistic.im a mostly functioning aspie with normalish traits. I don't care who claims about nazism etc, I was diagnosed with aspergers and I will not change my diagnosis just to appease a new generation who cry offense at name terms we have used for years. That said words like spastic etc belong In the ban bin. | |||
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"I don't have autism i have aspergers syndrome (i don't care what so called new expert claims is outdated, I was diagnosed with aspergers not autism and thats what I have), and apart from not being able to communicate at all with the opposite sex, avoiding all social activities, spending a large part of my childhood and adult life obsessed with public transport, and being a heavy gamer, I just live like any other person. But confrontation I have to avoid, I can't do loud situations ie pubs/clubs etc and if I have a meltdown, its best to leave me to shout it out. I also swear a lot, I was partially diagnosed with tourettes. Its hard for people to understand our differences but as the wise man said, it is what it is. It’s not that a new expert called it anything, it’s that Hans Asperger was a big horrible nazi so “aspergers” is no longer a diagnosis, it all comes under the umbrella of autism/ASD/ASC. Historically both my daughter and I would have been diagnosed with aspergers, but it’s not a thing anymore according to the diagnostic guides. Aspergers = autism, whether you personally like the change or not. I think it's important to recognise that the diagnosis of aspergers existed fir decades and I can understand why those diagnosed with it may struggle to accept the new terminology.
I see this a lot, with people wanting to retain their aspergers diagnosis and completely support it
I don’t think anybody’s denying it existed. There’s a lot of internalised ableism involved when people refuse to accept the change of name, like having aspergers is somehow better than merely being autistic, and that’s offensive. Whether people accept the name change or not, it’s changed, and rather than deny it I’d encourage people to question why they take issue with being autistic.
Because quite simply im not autistic.im a mostly functioning aspie with normalish traits. I don't care who claims about nazism etc, I was diagnosed with aspergers and I will not change my diagnosis just to appease a new generation who cry offense at name terms we have used for years. That said words like spastic etc belong In the ban bin. "“Normalish traits” 
I’m going to dip out here, good luck | |||
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"I don't have autism i have aspergers syndrome (i don't care what so called new expert claims is outdated, I was diagnosed with aspergers not autism and thats what I have), and apart from not being able to communicate at all with the opposite sex, avoiding all social activities, spending a large part of my childhood and adult life obsessed with public transport, and being a heavy gamer, I just live like any other person. But confrontation I have to avoid, I can't do loud situations ie pubs/clubs etc and if I have a meltdown, its best to leave me to shout it out. I also swear a lot, I was partially diagnosed with tourettes. Its hard for people to understand our differences but as the wise man said, it is what it is. It’s not that a new expert called it anything, it’s that Hans Asperger was a big horrible nazi so “aspergers” is no longer a diagnosis, it all comes under the umbrella of autism/ASD/ASC. Historically both my daughter and I would have been diagnosed with aspergers, but it’s not a thing anymore according to the diagnostic guides. Aspergers = autism, whether you personally like the change or not. I think it's important to recognise that the diagnosis of aspergers existed fir decades and I can understand why those diagnosed with it may struggle to accept the new terminology.
I see this a lot, with people wanting to retain their aspergers diagnosis and completely support it
I don’t think anybody’s denying it existed. There’s a lot of internalised ableism involved when people refuse to accept the change of name, like having aspergers is somehow better than merely being autistic, and that’s offensive. Whether people accept the name change or not, it’s changed, and rather than deny it I’d encourage people to question why they take issue with being autistic.
Because quite simply im not autistic.im a mostly functioning aspie with normalish traits. I don't care who claims about nazism etc, I was diagnosed with aspergers and I will not change my diagnosis just to appease a new generation who cry offense at name terms we have used for years. That said words like spastic etc belong In the ban bin.
“Normalish traits”
I’m going to dip out here, good luck "Normalish traits meaning I'm able to work normally, travel independently etc which a lot of aspies can't do. | |||
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"Because quite simply im not autistic.im a mostly functioning aspie with normalish traits. I don't care who claims about nazism etc, I was diagnosed with aspergers and I will not change my diagnosis just to appease a new generation who cry offense at name terms we have used for years. That said words like spastic etc belong In the ban bin. " You seem confused about both autism and the reasons why Asperger's was dropped as a diagnosis. If you are an "aspie" then you *are* autistic. It's impossible to be otherwise - and that was always the case. | |||
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"Because quite simply im not autistic.im a mostly functioning aspie with normalish traits. I don't care who claims about nazism etc, I was diagnosed with aspergers and I will not change my diagnosis just to appease a new generation who cry offense at name terms we have used for years. That said words like spastic etc belong In the ban bin. You seem confused about both autism and the reasons why Asperger's was dropped as a diagnosis. If you are an "aspie" then you *are* autistic. It's impossible to be otherwise - and that was always the case. " Autism is a lesser form of function and control of your mind and body functions. I am NOT autistic. | |||
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"Because quite simply im not autistic.im a mostly functioning aspie with normalish traits. I don't care who claims about nazism etc, I was diagnosed with aspergers and I will not change my diagnosis just to appease a new generation who cry offense at name terms we have used for years. That said words like spastic etc belong In the ban bin. You seem confused about both autism and the reasons why Asperger's was dropped as a diagnosis. If you are an "aspie" then you *are* autistic. It's impossible to be otherwise - and that was always the case. Autism is a lesser form of function and control of your mind and body functions. I am NOT autistic. " I'm very sorry, but you are incorrect. You can have whatever label you like for yourself and I hope that that's respected, but Asperger's has always been a part of the autism spectrum. The National Autistic Society says: "Autism, including Asperger syndrome, is much more common than most people think." The NHS says: "Asperger's (or Asperger syndrome) is used by some people to describe autistic people with average or above average intelligence" The Asperger's syndrome foundation says: "Asperger’s Syndrome is a pervasive developmental condition that falls within the autistic spectrum." | |||
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"Because quite simply im not autistic.im a mostly functioning aspie with normalish traits. I don't care who claims about nazism etc, I was diagnosed with aspergers and I will not change my diagnosis just to appease a new generation who cry offense at name terms we have used for years. That said words like spastic etc belong In the ban bin. You seem confused about both autism and the reasons why Asperger's was dropped as a diagnosis. If you are an "aspie" then you *are* autistic. It's impossible to be otherwise - and that was always the case. Autism is a lesser form of function and control of your mind and body functions. I am NOT autistic. I'm very sorry, but you are incorrect. You can have whatever label you like for yourself and I hope that that's respected, but Asperger's has always been a part of the autism spectrum. The National Autistic Society says: "Autism, including Asperger syndrome, is much more common than most people think." The NHS says: "Asperger's (or Asperger syndrome) is used by some people to describe autistic people with average or above average intelligence" The Asperger's syndrome foundation says: "Asperger’s Syndrome is a pervasive developmental condition that falls within the autistic spectrum." " Autistic spectrum and autism are very different things. | |||
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"Because quite simply im not autistic.im a mostly functioning aspie with normalish traits. I don't care who claims about nazism etc, I was diagnosed with aspergers and I will not change my diagnosis just to appease a new generation who cry offense at name terms we have used for years. That said words like spastic etc belong In the ban bin. You seem confused about both autism and the reasons why Asperger's was dropped as a diagnosis. If you are an "aspie" then you *are* autistic. It's impossible to be otherwise - and that was always the case. Autism is a lesser form of function and control of your mind and body functions. I am NOT autistic. I'm very sorry, but you are incorrect. You can have whatever label you like for yourself and I hope that that's respected, but Asperger's has always been a part of the autism spectrum. The National Autistic Society says: "Autism, including Asperger syndrome, is much more common than most people think." The NHS says: "Asperger's (or Asperger syndrome) is used by some people to describe autistic people with average or above average intelligence" The Asperger's syndrome foundation says: "Asperger’s Syndrome is a pervasive developmental condition that falls within the autistic spectrum." Autistic spectrum and autism are very different things. " That's not my understanding. What evidence do you have of that? It's probably pertinent to me because my parents were offered a diagnosis for me in 2001 (they refused), of Asperger's, and I was diagnosed with autism/autism spectrum disorder (used interchangeably by the adult mental health team) in 2019. | |||
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"Because quite simply im not autistic.im a mostly functioning aspie with normalish traits. I don't care who claims about nazism etc, I was diagnosed with aspergers and I will not change my diagnosis just to appease a new generation who cry offense at name terms we have used for years. That said words like spastic etc belong In the ban bin. You seem confused about both autism and the reasons why Asperger's was dropped as a diagnosis. If you are an "aspie" then you *are* autistic. It's impossible to be otherwise - and that was always the case. Autism is a lesser form of function and control of your mind and body functions. I am NOT autistic. I'm very sorry, but you are incorrect. You can have whatever label you like for yourself and I hope that that's respected, but Asperger's has always been a part of the autism spectrum. The National Autistic Society says: "Autism, including Asperger syndrome, is much more common than most people think." The NHS says: "Asperger's (or Asperger syndrome) is used by some people to describe autistic people with average or above average intelligence" The Asperger's syndrome foundation says: "Asperger’s Syndrome is a pervasive developmental condition that falls within the autistic spectrum." Autistic spectrum and autism are very different things. That's not my understanding. What evidence do you have of that? It's probably pertinent to me because my parents were offered a diagnosis for me in 2001 (they refused), of Asperger's, and I was diagnosed with autism/autism spectrum disorder (used interchangeably by the adult mental health team) in 2019. " When I was diagnosed in 2002 I was told my brain functions classed me as Aspergers syndrome, part of the autistic spectrum but NOT autism because I had mostly full control of my actions. Autistic people struggle with independence a lot more and need a lot more support. | |||
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"Because quite simply im not autistic.im a mostly functioning aspie with normalish traits. I don't care who claims about nazism etc, I was diagnosed with aspergers and I will not change my diagnosis just to appease a new generation who cry offense at name terms we have used for years. That said words like spastic etc belong In the ban bin. You seem confused about both autism and the reasons why Asperger's was dropped as a diagnosis. If you are an "aspie" then you *are* autistic. It's impossible to be otherwise - and that was always the case. Autism is a lesser form of function and control of your mind and body functions. I am NOT autistic. I'm very sorry, but you are incorrect. You can have whatever label you like for yourself and I hope that that's respected, but Asperger's has always been a part of the autism spectrum. The National Autistic Society says: "Autism, including Asperger syndrome, is much more common than most people think." The NHS says: "Asperger's (or Asperger syndrome) is used by some people to describe autistic people with average or above average intelligence" The Asperger's syndrome foundation says: "Asperger’s Syndrome is a pervasive developmental condition that falls within the autistic spectrum." Autistic spectrum and autism are very different things. That's not my understanding. What evidence do you have of that? It's probably pertinent to me because my parents were offered a diagnosis for me in 2001 (they refused), of Asperger's, and I was diagnosed with autism/autism spectrum disorder (used interchangeably by the adult mental health team) in 2019. When I was diagnosed in 2002 I was told my brain functions classed me as Aspergers syndrome, part of the autistic spectrum but NOT autism because I had mostly full control of my actions. Autistic people struggle with independence a lot more and need a lot more support. " OK. That may have been the diagnostic criteria then. It is no longer. (Unless, of course, you can show me some evidence that Asperger's remains outside the umbrella of "autism"). Your label is your right to choose. It does not mean that you get to claim that you are distinguished from other people within the autism spectrum. If you were diagnosed today within UK guidance, you would be diagnosed with autism (and presumably the diagnosis my parents refused is some evidence of that). I believe that this kind of distinction - on top of the Nazi connotations - both dismisses the suffering of those who used to be called "higher functioning", including those with Asperger's, and undermines the worth of those who are deemed to be "lower functioning". Fortunately, I know that even the most brilliant, charming, successful person with Asperger's is is of exactly equal worth to the person with autism who is entirely non-verbal and incontinent. Because autism is not about how pleasing or useful we are to the neurotypicals. They can fuck off out of our neurology with their value judgements. | |||
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"I don't know if I actually am, it's simply that a lot of people tell me I am. The things they tend to point out I consider and say "Yes that's why I'm effective" " Do you notice things that others wouldnt. Like the smallest of details. With me for example. A car. Others just see the car, i see the numberplate, brand, colour, how many dents are in the side. Or a glass of water. Others see the water. I see the scratches, the indent in the bottom of the glass, the tiniest details. | |||
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"Autism is a lesser form of function and control of your mind and body functions. I am NOT autistic. " 1. No, it's not. Your language is inaccurate, unhelpful and offensive. 2. Yes, you are. If you have been diagnosed with asperger's then you are autistic. It was not considered a separate condition. | |||
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" Because quite simply im not autistic.im a mostly functioning aspie with normalish traits. I don't care who claims about nazism etc, I was diagnosed with aspergers and I will not change my diagnosis just to appease a new generation who cry offense at name terms we have used for years. That said words like spastic etc belong In the ban bin. " Lorna Wing coined the term Asperger's Syndrome in 1981 in order to address the stigma of parents not wishing to get their child diagnosed with the standard 'Kanner' style of autism. In terms of criteria, the only required difference is lack of speech delay in infants -- so you could be fully verbal and still have all the other signs. It's my diagnosis too, and I accept it, but I'm still autistic. Incidentally, it's been dropped from DSM because clinicians felt it wasn't being taken seriously enough, and that aspie kids weren't getting enough support -- it seems that Lorna Wing's original intention kinda backfired. | |||
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"Autism is a lesser form of function and control of your mind and body functions. I am NOT autistic. 1. No, it's not. Your language is inaccurate, unhelpful and offensive. 2. Yes, you are. If you have been diagnosed with asperger's then you are autistic. It was not considered a separate condition. " Thank you. I did not have the spoons for this. | |||
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"Autism is a lesser form of function and control of your mind and body functions. I am NOT autistic. 1. No, it's not. Your language is inaccurate, unhelpful and offensive. 2. Yes, you are. If you have been diagnosed with asperger's then you are autistic. It was not considered a separate condition. " I am not autistic, don't dare try and tell me im something that I aint. I have aspergers not autism its as simple as that really. | |||
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"Autism is a lesser form of function and control of your mind and body functions. I am NOT autistic. 1. No, it's not. Your language is inaccurate, unhelpful and offensive. 2. Yes, you are. If you have been diagnosed with asperger's then you are autistic. It was not considered a separate condition. I am not autistic, don't dare try and tell me im something that I aint. I have aspergers not autism its as simple as that really. "I’m sorry to tell you, but you’re wrong. There is nothing wrong with being autistic, it’s quite bizarre that you’re so adamant about something so categorically incorrect. The language you use and the ableism you give off is really offensive. You aren’t separate from or better than us mere autistics. If you aren’t going to take our word for it, i can only suggest you speak to a trained professional so they can confirm that aspergers was - and is - autism. | |||
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"Autism is a lesser form of function and control of your mind and body functions. I am NOT autistic. 1. No, it's not. Your language is inaccurate, unhelpful and offensive. 2. Yes, you are. If you have been diagnosed with asperger's then you are autistic. It was not considered a separate condition. I am not autistic, don't dare try and tell me im something that I aint. I have aspergers not autism its as simple as that really.
I’m sorry to tell you, but you’re wrong. There is nothing wrong with being autistic, it’s quite bizarre that you’re so adamant about something so categorically incorrect. The language you use and the ableism you give off is really offensive. You aren’t separate from or better than us mere autistics. If you aren’t going to take our word for it, i can only suggest you speak to a trained professional so they can confirm that aspergers was - and is - autism. "Also - why comment on a thread specifically about autism then if you’re convinced you aren’t autistic? | |||
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"There have been a few posts recently when fabbers have had the opportunity to 'out' themselves. So, I thought I'd hone-in on that and ask, if you're autistic, how do you feel about your autism? [Please respect the question and refrain from commenting if you are not autistic. Thanks.]" Until I found out, I just thought I was the village freak! Now, I am open about it, and was very open about it when I interviewed for my job. My biggest issue is socialising and interacting with others, They accepted it, accepted me and my quirks and we all work around it. It means I can do my job well and we all work to our strengths. Have learned how to react and respond to people and situations so I manage much better these days, at my worst, people now just assume I am a little eccentric and I can live with that | |||
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"Because quite simply im not autistic.im a mostly functioning aspie with normalish traits. I don't care who claims about nazism etc, I was diagnosed with aspergers and I will not change my diagnosis just to appease a new generation who cry offense at name terms we have used for years. That said words like spastic etc belong In the ban bin. You seem confused about both autism and the reasons why Asperger's was dropped as a diagnosis. If you are an "aspie" then you *are* autistic. It's impossible to be otherwise - and that was always the case. Autism is a lesser form of function and control of your mind and body functions. I am NOT autistic. I'm very sorry, but you are incorrect. You can have whatever label you like for yourself and I hope that that's respected, but Asperger's has always been a part of the autism spectrum. The National Autistic Society says: "Autism, including Asperger syndrome, is much more common than most people think." The NHS says: "Asperger's (or Asperger syndrome) is used by some people to describe autistic people with average or above average intelligence" The Asperger's syndrome foundation says: "Asperger’s Syndrome is a pervasive developmental condition that falls within the autistic spectrum." Autistic spectrum and autism are very different things. That's not my understanding. What evidence do you have of that? It's probably pertinent to me because my parents were offered a diagnosis for me in 2001 (they refused), of Asperger's, and I was diagnosed with autism/autism spectrum disorder (used interchangeably by the adult mental health team) in 2019. When I was diagnosed in 2002 I was told my brain functions classed me as Aspergers syndrome, part of the autistic spectrum but NOT autism because I had mostly full control of my actions. Autistic people struggle with independence a lot more and need a lot more support. " I'm not trying to be confrontational here but when yiu say you have mostly full control of your actions do you think that is how you described yourself in your first contribution to this thread? As I have said repeatedly on this and other threads, I fully accept your right to describe yourself as Aspergers , but even by your own admission that sits on the autistic spectrum, I'm genuinely saddened by the aggression yiu are directing at the autistic community, we are your allies yet you seem to want nothing to do with us | |||
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"Because quite simply im not autistic.im a mostly functioning aspie with normalish traits. I don't care who claims about nazism etc, I was diagnosed with aspergers and I will not change my diagnosis just to appease a new generation who cry offense at name terms we have used for years. That said words like spastic etc belong In the ban bin. You seem confused about both autism and the reasons why Asperger's was dropped as a diagnosis. If you are an "aspie" then you *are* autistic. It's impossible to be otherwise - and that was always the case. Autism is a lesser form of function and control of your mind and body functions. I am NOT autistic. I'm very sorry, but you are incorrect. You can have whatever label you like for yourself and I hope that that's respected, but Asperger's has always been a part of the autism spectrum. The National Autistic Society says: "Autism, including Asperger syndrome, is much more common than most people think." The NHS says: "Asperger's (or Asperger syndrome) is used by some people to describe autistic people with average or above average intelligence" The Asperger's syndrome foundation says: "Asperger’s Syndrome is a pervasive developmental condition that falls within the autistic spectrum." Autistic spectrum and autism are very different things. That's not my understanding. What evidence do you have of that? It's probably pertinent to me because my parents were offered a diagnosis for me in 2001 (they refused), of Asperger's, and I was diagnosed with autism/autism spectrum disorder (used interchangeably by the adult mental health team) in 2019. When I was diagnosed in 2002 I was told my brain functions classed me as Aspergers syndrome, part of the autistic spectrum but NOT autism because I had mostly full control of my actions. Autistic people struggle with independence a lot more and need a lot more support. I'm not trying to be confrontational here but when yiu say you have mostly full control of your actions do you think that is how you described yourself in your first contribution to this thread? As I have said repeatedly on this and other threads, I fully accept your right to describe yourself as Aspergers , but even by your own admission that sits on the autistic spectrum, I'm genuinely saddened by the aggression yiu are directing at the autistic community, we are your allies yet you seem to want nothing to do with us" Its not a case of aggression or not wanting anything to do with you. Its a case of not wanting to be called something im not. | |||
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"It's a part of who I am and I embrace it. I was diagnosed 6 years ago... Thanks for sharing. I've often wondered if there's a difference in how people feel about their diagnosis depending if it was late or early. (My hunch was - the later = less positive.)" I was diagnosed really late (26) which made me very depressed because I couldn't understand what was wrong with me. Also it meant I went to a mainstream school which I absolutely hated. | |||
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"Autism is a lesser form of function and control of your mind and body functions. I am NOT autistic. 1. No, it's not. Your language is inaccurate, unhelpful and offensive. 2. Yes, you are. If you have been diagnosed with asperger's then you are autistic. It was not considered a separate condition. I am not autistic, don't dare try and tell me im something that I aint. I have aspergers not autism its as simple as that really.
I’m sorry to tell you, but you’re wrong. There is nothing wrong with being autistic, it’s quite bizarre that you’re so adamant about something so categorically incorrect. The language you use and the ableism you give off is really offensive. You aren’t separate from or better than us mere autistics. If you aren’t going to take our word for it, i can only suggest you speak to a trained professional so they can confirm that aspergers was - and is - autism. "Yes. The ableism coming in is really upsetting. You can call yourself what you like, VL, but clinging to your diagnosis 20-odd years ago to deny reality (as documented by evidence, including by organisations specifically for people with Asperger's - obviously I didn't link because of forum rules, but you can find them yourself quite easily) doesn't change reality. It's also unhelpful for other people on the spectrum, at any level, to be maligned in the way you seem to be. You do whatever you like, but please stop shitting on us in the process. | |||
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"It's a part of who I am and I embrace it. I was diagnosed 6 years ago... Thanks for sharing. I've often wondered if there's a difference in how people feel about their diagnosis depending if it was late or early. (My hunch was - the later = less positive.) I was diagnosed really late (26) which made me very depressed because I couldn't understand what was wrong with me. Also it meant I went to a mainstream school which I absolutely hated." Do you think you would have faired better at a different school or being homeschooled? Sorry, not autistic but your input would interest me as the mother of a struggling autistic teen - and school is a big trigger for her (I have started a separate thread if you do wish to comment there, in order not to derail this particular thread but I respect if you prefer not to). | |||
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"It's a part of who I am and I embrace it. I was diagnosed 6 years ago... Thanks for sharing. I've often wondered if there's a difference in how people feel about their diagnosis depending if it was late or early. (My hunch was - the later = less positive.) I was diagnosed really late (26) which made me very depressed because I couldn't understand what was wrong with me. Also it meant I went to a mainstream school which I absolutely hated. Do you think you would have faired better at a different school or being homeschooled? Sorry, not autistic but your input would interest me as the mother of a struggling autistic teen - and school is a big trigger for her (I have started a separate thread if you do wish to comment there, in order not to derail this particular thread but I respect if you prefer not to)." Assuming I'd had a diagnosis at school... School was hell on wheels for me, but at the time I was in school (1991-2003) there wasn't provision for children with special needs (other than physical provision like ramps for wheelchairs) who also had academic potential. It is possible I might have done better home schooling if the online resources existed that do now. Although there is something to be said for dealing with the hardest social blows while you still have your parents to fall back on. | |||
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"Autism is a lesser form of function and control of your mind and body functions. I am NOT autistic. 1. No, it's not. Your language is inaccurate, unhelpful and offensive. 2. Yes, you are. If you have been diagnosed with asperger's then you are autistic. It was not considered a separate condition. I am not autistic, don't dare try and tell me im something that I aint. I have aspergers not autism its as simple as that really. "Don't dare try to tell me to stop speaking-up when people post public misinformation about autism. You do have autism. What you'ee posting - which you clearly strongly believe for your own personal reasons - is simply inaccurate. In terms of this discussion, I don't care if you prefer to identify with asperger's, or don't personally like to be thought of as being autistic. It doesn't matter. I don't like being short for a guy, but guess what? That doesn't change the fact that I am! Your protests are as nonsensical as someone saying, "I have a ginger ponytail. Don't you dare try to tell me that I have hair!" You have made a very basic mistake that I suspect you are clinging to despite the facts. Either way, pick up a single book on asperger's, or do some research, speak to your diagnostician, etc. and use that apparently superior brain of yours to figure it out. | |||
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"I am not autistic, don't dare try and tell me im something that I aint. I have aspergers not autism its as simple as that really. "Considering your age, you would have been diagnosed under DSM-4 or ICD-10 criteria, probably the latter as DSM is largely an American publication, and they called it Asperger's Disorder. However, both manuals list Asperger's as a form of Autism, characterised by lack of speech delay. You can be severely autistic and still be in control of your mind or bodily functions (your words), or you can be an aspie and still be completely lost to the world. My guess is that you've fallen into denial about your diagnosis. | |||
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