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"Find out what triggers them. With me its coffee, uncooked cheese, lack of sleep and stress. " Hear hear. Take some time, at least once each day, to listen to your body. Lay down or sit, in a space with fewest distractions, close your eyes, breathe deeply for a few moments and then just allow what comes up to come up. Avoid dwelling on particular thoughts, just let them come and go. Some call it yoga, some people say meditation, quiet time or "me time". | |||
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"Drink lots and lots of water." Preferably cold...does help a bit. | |||
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"Yeah I used to have it but it clashes with other meds. " Are there other triptans you could take that don't clash? Sumatriptan is the most common but a lot of GPs don't realise there are others. One tip someone gave me (even though I hate using it.) Dunk your head in a bowl of iced water, or put an ice pack against your neck. I find that not enough (or too much) sleep Not eating regularly Stress Are my major triggers. | |||
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"Find out what triggers them. With me its coffee, uncooked cheese, lack of sleep and stress. " It’s a combo of stress and vision problems on top of an old head injury which started it all. First day back after a week. I had a snack and a cold drink and a lie down in the dark for 15mins and it mostly sorted it. When I got covid it kicked off with the worst a/v migraine I’ve ever had and have had constant tinnitus ever since, along with regular “sparkles”. It’s ruined my early warning system, now I have to rely upon getting a bit light headed as the signal. As I understand it the Triptans basically release seratonin (which just pushed the pain into the back of my head). Trying to regulate Seratonin levels by taking SSRIs so this is an absolute no-go. Cocodamol don’t even touch the sides ?? I think low doses of Amitryptiline do work but they knock me out for hours on end. Which is why I was wondering about non-chemical treatments like acupuncture or magnesium supplements or something. Finding a different job would probably help but I don’t fancy starting again. | |||
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"This stuck with me.. it was approved by NICE last year but is likely little known by GP's. It's non medicative as it's battery operated - the move away from standard prescription meds is likely pretty hard but may be worth an ask https://www.theguardian.com/society/2021/apr/03/nhs-expands-use-of-device-that-zaps-away-cluster-headaches" Hmmm. Thankfully i don’t get cluster headaches any more, but the migraines seem to start behind my right eye, not sure how zappable that would be. I’ll discuss it - thanks. | |||
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"Find out what triggers them. With me its coffee, uncooked cheese, lack of sleep and stress. It’s a combo of stress and vision problems on top of an old head injury which started it all. First day back after a week. I had a snack and a cold drink and a lie down in the dark for 15mins and it mostly sorted it. When I got covid it kicked off with the worst a/v migraine I’ve ever had and have had constant tinnitus ever since, along with regular “sparkles”. It’s ruined my early warning system, now I have to rely upon getting a bit light headed as the signal. As I understand it the Triptans basically release seratonin (which just pushed the pain into the back of my head). Trying to regulate Seratonin levels by taking SSRIs so this is an absolute no-go. Cocodamol don’t even touch the sides ?? I think low doses of Amitryptiline do work but they knock me out for hours on end. Which is why I was wondering about non-chemical treatments like acupuncture or magnesium supplements or something. Finding a different job would probably help but I don’t fancy starting again. " Ahhh most migraine medications are seratonin inhibitors. (I know pizotifen that I take for it is) I know quite a few people who have had success with a daith piercing (which is where they do the acupuncture for a migraine) I'm getting my brave up to get one (I'm on 2 preventative meds so I'm down to 4 or so a month unless I get stressed and/or have an ME flare) | |||
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"Find out what triggers them. With me its coffee, uncooked cheese, lack of sleep and stress. It’s a combo of stress and vision problems on top of an old head injury which started it all. First day back after a week. I had a snack and a cold drink and a lie down in the dark for 15mins and it mostly sorted it. When I got covid it kicked off with the worst a/v migraine I’ve ever had and have had constant tinnitus ever since, along with regular “sparkles”. It’s ruined my early warning system, now I have to rely upon getting a bit light headed as the signal. As I understand it the Triptans basically release seratonin (which just pushed the pain into the back of my head). Trying to regulate Seratonin levels by taking SSRIs so this is an absolute no-go. Cocodamol don’t even touch the sides ?? I think low doses of Amitryptiline do work but they knock me out for hours on end. Which is why I was wondering about non-chemical treatments like acupuncture or magnesium supplements or something. Finding a different job would probably help but I don’t fancy starting again. Ahhh most migraine medications are seratonin inhibitors. (I know pizotifen that I take for it is) I know quite a few people who have had success with a daith piercing (which is where they do the acupuncture for a migraine) I'm getting my brave up to get one (I'm on 2 preventative meds so I'm down to 4 or so a month unless I get stressed and/or have an ME flare)" The ex had her daith done. Made no difference at all. | |||
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"I know quite a few people who have had success with a daith piercing (which is where they do the acupuncture for a migraine) I'm getting my brave up to get one (I'm on 2 preventative meds so I'm down to 4 or so a month unless I get stressed and/or have an ME flare) The ex had her daith done. Made no difference at all." So that's 4 it works for and now 2 it hasn't. Still worth a shot and even if it doesn't work it's pretty | |||
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"This stuck with me.. it was approved by NICE last year but is likely little known by GP's. It's non medicative as it's battery operated - the move away from standard prescription meds is likely pretty hard but may be worth an ask https://www.theguardian.com/society/2021/apr/03/nhs-expands-use-of-device-that-zaps-away-cluster-headaches Hmmm. Thankfully i don’t get cluster headaches any more, but the migraines seem to start behind my right eye, not sure how zappable that would be. I’ll discuss it - thanks. " It is an old report, I looked into what it does a while ago. It's not specific to cluster migraines but more migraine in general. It's now being used to treat ptsd, back pain and a few other things, you apply it to a nerve in the neck | |||
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"The ex had her daith done. Made no difference at all." I think that’s what I need to hear - cheers. | |||
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"It is an old report, I looked into what it does a while ago. It's not specific to cluster migraines but more migraine in general. It's now being used to treat ptsd, back pain and a few other things, you apply it to a nerve in the neck " Yeah, reading up on it - thanks. | |||
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"Ask your GP about Sumatriptan, its a drug used for Cluster Headache and Migraine. Its available in tablet form, spray and injections. " I recommend this , I bought a load in Dubai Sumafix 50s and 100s. I took the 50 and within 10 mins the migraine was completely gone and didn't come back , it’s normally 48 hours min. So I’m cutting the 100s in half . I think they were £2 each. I’ve suffered for years and this is like a miracle. In the U.K. you may need to get a prescription or online consultation first as you’re meant to take anti sickness tables with them but I had zero side effect from the 50 | |||
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"Find out what triggers them. With me its coffee, uncooked cheese, lack of sleep and stress. It’s a combo of stress and vision problems on top of an old head injury which started it all. First day back after a week. I had a snack and a cold drink and a lie down in the dark for 15mins and it mostly sorted it. When I got covid it kicked off with the worst a/v migraine I’ve ever had and have had constant tinnitus ever since, along with regular “sparkles”. It’s ruined my early warning system, now I have to rely upon getting a bit light headed as the signal. As I understand it the Triptans basically release seratonin (which just pushed the pain into the back of my head). Trying to regulate Seratonin levels by taking SSRIs so this is an absolute no-go. Cocodamol don’t even touch the sides ?? I think low doses of Amitryptiline do work but they knock me out for hours on end. Which is why I was wondering about non-chemical treatments like acupuncture or magnesium supplements or something. Finding a different job would probably help but I don’t fancy starting again. " I take a low dose of amitryptiline daily at night and that seemed to help for a bit | |||
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"Find out what triggers them. With me its coffee, uncooked cheese, lack of sleep and stress. It’s a combo of stress and vision problems on top of an old head injury which started it all. First day back after a week. I had a snack and a cold drink and a lie down in the dark for 15mins and it mostly sorted it. When I got covid it kicked off with the worst a/v migraine I’ve ever had and have had constant tinnitus ever since, along with regular “sparkles”. It’s ruined my early warning system, now I have to rely upon getting a bit light headed as the signal. As I understand it the Triptans basically release seratonin (which just pushed the pain into the back of my head). Trying to regulate Seratonin levels by taking SSRIs so this is an absolute no-go. Cocodamol don’t even touch the sides ?? I think low doses of Amitryptiline do work but they knock me out for hours on end. Which is why I was wondering about non-chemical treatments like acupuncture or magnesium supplements or something. Finding a different job would probably help but I don’t fancy starting again. I take a low dose of amitryptiline daily at night and that seemed to help for a bit " I wake up with almost hungover and can’t get moving if I take amilttyptyline at night. But do sleep like a baby | |||
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