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Trigeminal neuralgia.........

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By *reat me right OP   Woman
over a year ago

Rotherham

Does anyone else suffer with this? Mine has just ramped up again after a few weeks of no pain - and it's getting worse each time

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By (user no longer on site)
over a year ago

My ex mother in law has this, it's horrible when it flares up and I feel so bad for her.

NBVN x

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By (user no longer on site)
over a year ago

No but I know someone who does and it appears to be agony. Sorry you’re suffering.

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By (user no longer on site)
over a year ago

Worst. Pain. Ever.

So much sympathy...

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By *indergirlWoman
over a year ago

somewhere, someplace

I suffer with thus, currently in a phase if remission fingers crossed.

Worst pain ever, literally wanted to rip my face off

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By *reat me right OP   Woman
over a year ago

Rotherham

I had months of back and forth to the Dr's and dentist

Dr's say dentist have to investigate and do the diagnosis- dentists say they can't prescribe anything for the pain (not that anything I've had thus far helps). Dr's say it's "notoriously difficult" to treat.

Then managed a few weeks pain free (relatively) but today - oh boy is it back - feels like someone is trying to rip my lower left teeth out whilst at the same time some kind soul is repeatedly punching the left side of my face and a third is punching my jaw from the bottom. I'm super super fed up with it, nowt gives me any relief in any way AT ALL

Thank you for listening guys xxxx

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By (user no longer on site)
over a year ago

I think my ex mother in law has meds for it but she also has botox injections which she pays privately for with the consultant. These originally lasted a year but the timings are lowering now. Her face would be so bruised for a week, bless her.

She has also had an operation to remove a nerve which they accessed via the roof of her mouth but this was not successful and the pain restarted.

Seeing her suffer with this is awful, my heart goes out to those who live with it.

NBVN x

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By *indergirlWoman
over a year ago

somewhere, someplace


"I had months of back and forth to the Dr's and dentist

Dr's say dentist have to investigate and do the diagnosis- dentists say they can't prescribe anything for the pain (not that anything I've had thus far helps). Dr's say it's "notoriously difficult" to treat.

Then managed a few weeks pain free (relatively) but today - oh boy is it back - feels like someone is trying to rip my lower left teeth out whilst at the same time some kind soul is repeatedly punching the left side of my face and a third is punching my jaw from the bottom. I'm super super fed up with it, nowt gives me any relief in any way AT ALL

Thank you for listening guys xxxx"

There are drugs they can treat it with but they're reluctant to because of what they're normally prescribed for, gabapentin is one and the other is an anti epilepsy drug

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By *indergirlWoman
over a year ago

somewhere, someplace

I survive with sumatriptan and rx strength cocodamol but it barely touches it when I have a bad attack

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By *aceandHimCouple
over a year ago

Essex

One of the drugs that have been used for a long time is carbamazepine also known as tegretol. This was mainly used to treat epilepsy.

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By *ecky and justCouple
over a year ago

Godalming

I suffer with this occasionally but mainly due to a sebaceous cyst that sat on my TG nerve on the left side of my face.

Terrible agony when flared up but under control for the last few years.

I sympathise with anyone that suffers this.

Just x

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By *bsolutley FabMan
over a year ago

Fareham

I did suffer from this, they prescribed Gabapentin…the worse drug in the world in my opinion. The side effects were horrendous. So I would rather live with the pain than have the side effects. It has eased a lot over the years.

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By *reat me right OP   Woman
over a year ago

Rotherham


"One of the drugs that have been used for a long time is carbamazepine also known as tegretol. This was mainly used to treat epilepsy."

I'm on this doesn't help though

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By *reat me right OP   Woman
over a year ago

Rotherham

Thank you again chaps and chapesses x

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