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"I have an abnormal heart rhythm and endometriosis. I sometimes tell fab meets about the endometriosis as I don't enjoy very deep penetration as a result. Neither is likely to cause me to cancel these days as both are fairly well managed. " do you find the abnormal heart rhythm is evident most specifically after you look at my profile - you saucy minx!! | |||
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"I have a heart arrhythmia that sporadically makes me faint, but I know when it's coming and can usually provide plenty of warning and grab a pillow ![]() Nooo way ![]() | |||
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"I have an abnormal heart rhythm and endometriosis. I sometimes tell fab meets about the endometriosis as I don't enjoy very deep penetration as a result. Neither is likely to cause me to cancel these days as both are fairly well managed. " Lacey hugs xx | |||
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"I've noticed a few people on the forums have them, I do too. I'm wondering if maybe those that want to would be open about theirs on the thread and help others with their knowledge and experiences. And how does it affect your fab life? Do you tell people you're chatting to so they know that you could potentially need to cancel a social or meet if the illness gets the better of you that day? Do you worry they'll think you're making excuses? Do you feel like you're not letting it dictate your life as you're still able to get out there and misbehave or socialise? " What’s yours? | |||
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"I have a heart arrhythmia that sporadically makes me faint, but I know when it's coming and can usually provide plenty of warning and grab a pillow ![]() ![]() 2nd degree heart block (slow/irregular heartbeat, not fast) - no biggy, I just hit the deck 2/3 times a year | |||
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"I have a heart arrhythmia that sporadically makes me faint, but I know when it's coming and can usually provide plenty of warning and grab a pillow ![]() ![]() Sounds scarey xxx | |||
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"Oh, I also have photosensitive epilepsy. Gotta be careful around strobe lights, but only certain ones, and I may have the odd twitch whilst travelling in a moving vehicle or walking past railings when the sun is a certain height " Hugs xxx ![]() ![]() ![]() | |||
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"I have a heart arrhythmia that sporadically makes me faint, but I know when it's coming and can usually provide plenty of warning and grab a pillow ![]() Sounds like POTS with vasovagal syncope. Sorry to hear this. A friend at college had it badly she would faint at the drop of a hat. I caught her once in the car park to stop her smashing her head in the road. It’s scary. Xx | |||
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"Sure. I have Endometriosis, same as Lacey red - I don't really enjoy deep pen as a result (birth trauma has some involvement too). Periods are fairly regular so I can plan meets around them but sometimes I have pain during sex so I wouldn't want to carry on. I wouldn't be drinking before a meet anyway so I can just take some painkillers (the ones that don't put me to sleep ![]() Another endometriosis warrior here x | |||
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"I have an abnormal heart rhythm and endometriosis. I sometimes tell fab meets about the endometriosis as I don't enjoy very deep penetration as a result. Neither is likely to cause me to cancel these days as both are fairly well managed. Lacey hugs xx" Aww thank you! | |||
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"I have an abnormal heart rhythm and endometriosis. I sometimes tell fab meets about the endometriosis as I don't enjoy very deep penetration as a result. Neither is likely to cause me to cancel these days as both are fairly well managed. Lacey hugs xx Aww thank you! " Xxx | |||
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"I have type one diabetes…. I was 27 when I was diagnosed, at that time I had lost around 3 stone had a terrible thirst, little appetite, suffered from exhaustion among other things but these were the main telling signs something was wrong. When I was first diagnosed I thought I’d never be able to eat certain things again, or have alcohol, exercise the way I do etc however I have educated myself over the years by attending courses, reading and joining a forum. I keep active, minimise carbohydrates I eat, and watch my sugar intake.I take my medication daily and check my blood sugar before every meal, the key to managing this condition is consistency Being insulin dependant means I have to inject myself several times per day, I always advise any potential meet that I am diabetic and that I inject my medication. I don’t feel embarrassed or worried about it at all I need this to live, if someone had an issue with it I’d respect that but I wouldn’t be going to hide in a bathroom to take my medication, which 10yrs ago I may have. Xx" It’s amazing what you can still achieve, a friend is type 1 and thought he couldn’t continue with cycling but we found https://www.teamnovonordisk.com/ And opened there eyes again! | |||
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"I have type one diabetes…. I was 27 when I was diagnosed, at that time I had lost around 3 stone had a terrible thirst, little appetite, suffered from exhaustion among other things but these were the main telling signs something was wrong. When I was first diagnosed I thought I’d never be able to eat certain things again, or have alcohol, exercise the way I do etc however I have educated myself over the years by attending courses, reading and joining a forum. I keep active, minimise carbohydrates I eat, and watch my sugar intake.I take my medication daily and check my blood sugar before every meal, the key to managing this condition is consistency Being insulin dependant means I have to inject myself several times per day, I always advise any potential meet that I am diabetic and that I inject my medication. I don’t feel embarrassed or worried about it at all I need this to live, if someone had an issue with it I’d respect that but I wouldn’t be going to hide in a bathroom to take my medication, which 10yrs ago I may have. Xx It’s amazing what you can still achieve, a friend is type 1 and thought he couldn’t continue with cycling but we found https://www.teamnovonordisk.com/ And opened there eyes again! " It is amazing. My late wife had type 1 from 14 years old to 56 when she died. She managed her life in the main with no issues as long as she stuck by her programme. She used to struggle a bit during lambing time when she would be out in the field for 12 hours straight but got by with sandwiches and lucozade - not the best but it seemed to work for her. | |||
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"I have type one diabetes…. I was 27 when I was diagnosed, at that time I had lost around 3 stone had a terrible thirst, little appetite, suffered from exhaustion among other things but these were the main telling signs something was wrong. When I was first diagnosed I thought I’d never be able to eat certain things again, or have alcohol, exercise the way I do etc however I have educated myself over the years by attending courses, reading and joining a forum. I keep active, minimise carbohydrates I eat, and watch my sugar intake.I take my medication daily and check my blood sugar before every meal, the key to managing this condition is consistency Being insulin dependant means I have to inject myself several times per day, I always advise any potential meet that I am diabetic and that I inject my medication. I don’t feel embarrassed or worried about it at all I need this to live, if someone had an issue with it I’d respect that but I wouldn’t be going to hide in a bathroom to take my medication, which 10yrs ago I may have. Xx It’s amazing what you can still achieve, a friend is type 1 and thought he couldn’t continue with cycling but we found https://www.teamnovonordisk.com/ And opened there eyes again! " That’s great! I’m glad he managed to continue doing what he loves xx | |||
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"I have Sjogrens Syndrome, i do mention it when i have a meet arranged because it causes dryness !! Plus lots of other issues too. I also have Essential Tremors, i mention that if I'm having a bad day otherwise they might think i need alcohol to stop the shaking ![]() ![]() I was investigated for Sjögrens in 2018/19 but it was found in January this year that I do not have it, but I do have Sicca syndrome. Hope you are ok ![]() | |||
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"I've got psoriatic arthritis and when I had the 2nd vaccine in May it triggered my skin, I'm only just recovering from it which obviously meant I had to put off meeting people until recently." Sorry to hear that. My sister has the same it affects so much more than just your skin. She is on methotrexate injections they’ve massively helped her. X | |||
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"I've got psoriatic arthritis and when I had the 2nd vaccine in May it triggered my skin, I'm only just recovering from it which obviously meant I had to put off meeting people until recently. Sorry to hear that. My sister has the same it affects so much more than just your skin. She is on methotrexate injections they’ve massively helped her. X" Had the injections and they’ve had to change it twice. It’s annoying but have learned to live with it x | |||
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"I've got psoriatic arthritis and when I had the 2nd vaccine in May it triggered my skin, I'm only just recovering from it which obviously meant I had to put off meeting people until recently." Oh, poor you. I have Rheumatoid Arthritis - very similar. I've been fine with the vaccines & my booster, but the new meds I'm on have triggered a skin condition which I'm very self conscious of. I'll stay on the meds though, as this is the first time I've been pain free in 25 yrs. I'll just have to live with the skin issue. X | |||
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"I've got psoriatic arthritis and when I had the 2nd vaccine in May it triggered my skin, I'm only just recovering from it which obviously meant I had to put off meeting people until recently. Oh, poor you. I have Rheumatoid Arthritis - very similar. I've been fine with the vaccines & my booster, but the new meds I'm on have triggered a skin condition which I'm very self conscious of. I'll stay on the meds though, as this is the first time I've been pain free in 25 yrs. I'll just have to live with the skin issue. X" So I’ve avoided getting the booster as I don’t want the joints or even the skin to kick off again. X | |||
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"I have Sjogrens Syndrome, i do mention it when i have a meet arranged because it causes dryness !! Plus lots of other issues too. I also have Essential Tremors, i mention that if I'm having a bad day otherwise they might think i need alcohol to stop the shaking ![]() ![]() ![]() I had to google sicca ![]() | |||
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"I've noticed a few people on the forums have them, I do too. I'm wondering if maybe those that want to would be open about theirs on the thread and help others with their knowledge and experiences. And how does it affect your fab life? Do you tell people you're chatting to so they know that you could potentially need to cancel a social or meet if the illness gets the better of you that day? Do you worry they'll think you're making excuses? Do you feel like you're not letting it dictate your life as you're still able to get out there and misbehave or socialise? What’s yours? " Chronic Fatigue Syndrome. | |||
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"I had covid a few weeks after the initial lockdown. It has left me with several ongoing new health issues I’m now being treated for. This pesky little virus really does do some damage! " DC, I'm sorry to hear that; hope the prognosis is positive. | |||
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"I also have another hidden illness. But a but more shy about that one. " RIP your inbox | |||
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"Yes, my mental health when im good im reallly good.. the past few week have been good. When its bad its bad to the point ive tried to end it twice in the past few years, ive coped & controlled it for years but the past 3 years its become more and more uncontrollable. Id trade everything to have a sane mind and wouldnt wish this horrendous feeling on anyone. It stops me getting close to people and getting deep relationships as i know it will be the end of me ![]() ![]() *hugs* | |||
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"I also have another hidden illness. But a but more shy about that one. RIP your inbox" Profile is hidden! | |||
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"I have a heart arrhythmia that sporadically makes me faint, but I know when it's coming and can usually provide plenty of warning and grab a pillow ![]() Blimey, that could be quite unnerving | |||
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"I suffer from anxiety, depression and I have a growth on my lung of which can make me feel sick and causes me issues with breathing if I do too much. Fortunately it hasn't yet stopped me from having fun but it's only a matter of time and I have a scan on the 24th to check progression followed by breathing tests on the 9th December and then hopefully I will have some medication to help relieve my symptoms. " That's rough, I hope it can be controlled. | |||
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"I suffer from anxiety, depression and I have a growth on my lung of which can make me feel sick and causes me issues with breathing if I do too much. Fortunately it hasn't yet stopped me from having fun but it's only a matter of time and I have a scan on the 24th to check progression followed by breathing tests on the 9th December and then hopefully I will have some medication to help relieve my symptoms. That's rough, I hope it can be controlled. " Thank you, it's non treatable apart from relieving symptoms unfortunately but hopefully they can give me something to make it more manageable | |||
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"I've noticed a few people on the forums have them, I do too. I'm wondering if maybe those that want to would be open about theirs on the thread and help others with their knowledge and experiences. And how does it affect your fab life? Do you tell people you're chatting to so they know that you could potentially need to cancel a social or meet if the illness gets the better of you that day? Do you worry they'll think you're making excuses? Do you feel like you're not letting it dictate your life as you're still able to get out there and misbehave or socialise? What’s yours? Chronic Fatigue Syndrome. " My sister has that P. It's totally changed her life and she struggled for a long time getting the right medical advice | |||
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"Yes, my mental health when im good im reallly good.. the past few week have been good. When its bad its bad to the point ive tried to end it twice in the past few years, ive coped & controlled it for years but the past 3 years its become more and more uncontrollable. Id trade everything to have a sane mind and wouldnt wish this horrendous feeling on anyone. It stops me getting close to people and getting deep relationships as i know it will be the end of me ![]() ![]() I know how that feels, ive made 2 attempts during the toxic relationship i was in for 4 years, until i got away from it in august last year. Im still wounded from that relationship and the scars havent fully healed, which im still feeling the effects of Ive found the best way for me to cope with the depression side is to embrace it. Being a spiritual person, ive delved into the darker realm of the human psyche. Due to my depression i often have existential crises, bouts of anger and often thoughts that most ppl would find very disturbing, sometimes i wonder if id end up in a straitjacket if i werent able to keep control of myself. Knowing how my thoughts can drift into darkness, the misery and suffering i put myself through, ive learnt to embrace that dark side. Its better to sit down and drink tea with your demons than trying to fight them off, as i feel that the more you try to fight them off, the more resistance and push back you receive, which makes it harder to deal with them. Giving them the space they need without fighting them, youre accepting their presence. Being a sane person doesnt mean youre free from depression for good, it will always be there, it never fully goes away, being sane simply means that your head is always in a good space and you maintain control of your emotions. If the demons live in that dark forest in your head, dont try to cut the forest down, leave it there. Instead focus on building that paradise within your mind, the more space your paradise occupies, the smaller that dark forest becomes in comparison, and so do the problems you face. Try explore spirituality if you havent done that before, it helps put things into persepctive and reflecting on your life. My way of coping with my depression and my thoughts may or may not work for you, but you wont know until you try. But taking a spiritual perspective could help you find your coping mechanisms. Theres plenty out there for you to follow to help you on your journey Hope all of that made some sense and helps you. Couldnt really explain it without it being long winded | |||
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"Yes, my mental health when im good im reallly good.. the past few week have been good. When its bad its bad to the point ive tried to end it twice in the past few years, ive coped & controlled it for years but the past 3 years its become more and more uncontrollable. Id trade everything to have a sane mind and wouldnt wish this horrendous feeling on anyone. It stops me getting close to people and getting deep relationships as i know it will be the end of me ![]() ![]() Somehow your post really made me stop and I’m so sorry that you have such intense feelings that can be good but also bad!! I know it isn’t of comfort, but know that there’s always some light in the dark, even if you can’t see it! X | |||
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"I have both types of glaucoma and tinnitus. It doesn’t affect me and as long as I have my eye drops with me I’m happy. ![]() Tinnitus!!! I have that sometimes , it gets back when I’m feeling ill but there have been times I wanted to poke my ears out with a pen… disgusting | |||
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"I have Sjogrens Syndrome, i do mention it when i have a meet arranged because it causes dryness !! Plus lots of other issues too. I also have Essential Tremors, i mention that if I'm having a bad day otherwise they might think i need alcohol to stop the shaking ![]() ![]() ![]() ![]() Yeah I’m ok apart from , dry eyes, partially dry mouth, teeth are crap due to quality of saliva, and also the drying out of certain places ![]() | |||
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"I don't meet as I don't like bad sex. I don't see the point in exchanging messages as people aren't really here to chat so I tend to cut people off if they do. Now, I'm mostly here to perv and (try) take the piss. Compared to when I was well, it's a bit different yeah (even this has taken me 10+ mins to type and it's not coming across that well)." It's coming across fine. Try not to be so hard on yourself x | |||
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"PTSD, Depression and Anxiety.. largely controlled but it takes work. Love to anyone going through similar. It’s a shitty illness. ![]() Thank you Saffron. Stay beautiful xx | |||
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"I have Sjogrens Syndrome, i do mention it when i have a meet arranged because it causes dryness !! Plus lots of other issues too. I also have Essential Tremors, i mention that if I'm having a bad day otherwise they might think i need alcohol to stop the shaking ![]() ![]() ![]() ![]() ![]() Yes, after googling it i can see that i have Sicca as part of Sjogrens. My teeth are crap too. I had to see a different dentist this summer, he was extremely rude to me about my teeth and gums, made me cry, i pointed out that i have SS and he went very quiet and was much nicer after !! Might have helped if he had read my notes first ! | |||
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"Can anyone elaborate on what functional disorder is? I guess I could Google it but better to ask those who have it. I get the shakes, struggle to maintain body temperature randomly, and a few other bits. And this is why I posted. Because others sharing can highlight things or be helpful to others. And I like knowing I'm not alone to be fair. Some people just don't get it. They really don't understand at all. And some hidden Illnesses aren't even accepted by some people. Like CFS, some can say it's just a fancy label for a lazy person. But they clearly don't know what fatigue is compared to tiredness. " Impairs normal body Functions x | |||
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"Can anyone elaborate on what functional disorder is? I guess I could Google it but better to ask those who have it. I get the shakes, struggle to maintain body temperature randomly, and a few other bits. And this is why I posted. Because others sharing can highlight things or be helpful to others. And I like knowing I'm not alone to be fair. Some people just don't get it. They really don't understand at all. And some hidden Illnesses aren't even accepted by some people. Like CFS, some can say it's just a fancy label for a lazy person. But they clearly don't know what fatigue is compared to tiredness. " My sister has fnd, she was fine and then started getting numbness and then out of nowhere she woke one morning and could only move one arm and she's been like that for months now. There's a chance she will recover partly or fully but it can return after | |||
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"Can anyone elaborate on what functional disorder is? I guess I could Google it but better to ask those who have it. I get the shakes, struggle to maintain body temperature randomly, and a few other bits. And this is why I posted. Because others sharing can highlight things or be helpful to others. And I like knowing I'm not alone to be fair. Some people just don't get it. They really don't understand at all. And some hidden Illnesses aren't even accepted by some people. Like CFS, some can say it's just a fancy label for a lazy person. But they clearly don't know what fatigue is compared to tiredness. " Not answering the question, just adding that I had post viral fatigue after having pneumonia (that's what damaged my heart) and that has a lot of overlap with CFS and the clinic I went to covered both. I had lots of issues maintaining my body temperature (I used to just sit in a hot bath of water trying to warm myself up) and my blood sugar levels. It was also the start of digestive issues for me. I basically felt like my body and my brain just stopped working properly for a couple of years. It was mad. I just thought I'd say though in case it helped you relate your experiences as its so much more than just the fatigue as shit as that part is. | |||
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"I have IBD. Not the sexiest topic to talk about so I'll leave it at that. Generally well controlled at the moment, touch wood. " Oh bless you. A good friend of mine has Crohn's so you have my sympathy. | |||
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"I have too many to mention, but possibly the most ‘important’ one for here is that I have Lichen Sclerosis. I was diagnosed with it after being misdiagnosed with recurring thrush, because many of the symptoms are the same except that there is none of the discharge you get with thrush, and you get ‘white plaques’ on the skin. LS is an autoimmune disorder that attacks the genital area. Because mine was misdiagnosed it cause atrophy of the vagina and clit. This now means that I don’t have very good nerve endings in my clit, and my vag can no longer accommodate very big cocks. I’m probably one of the few who now prefer a smaller more average sized member, but as they say, it’s not the size, it’s what is done with it that matters. After all is said and done, I now prefer anal. Getting an orgasm is nigh on impossible, but I still enjoy sex. If any lady has been diagnosed with LS and wants to talk about it, just let me know. My preferences for ladies is turned off, but I can reverse that if needed. ![]() Oh my goodness this was like reading about myself'im in exactly the same situations regarding sex as you, and also many years to get diagnosed, started after Menopause, strange how its called men-o-pause, are we meant to give up men haha Damage to clitoris so cannot cum with oral, and so many meets focus on oral so I feel very insecure, can only cum with pneumatic drill that being doxy wand on full force! Thank goodness I love anal.xx | |||
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"I have IBD. Not the sexiest topic to talk about so I'll leave it at that. Generally well controlled at the moment, touch wood. " It's shit isn't it ![]() ![]() | |||
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"[Removed by poster at 15/11/21 16:59:30]" You removed your post after I had read it. I can't begin to imagine what it's like for you. Sending you so many hugs right now. I know they might not help much, but virtual hugs are all I have xx | |||
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"I have a cerebral aneurysm that may rupture at any time. It is monitored regularly but in vain. If it breaks, it breaks and I may go on living for years or I may be dead within minutes, unaware it has ruptured. No one knows. Nothing can be done about it. It was discovered during a brain scan for another matter and is my sword of Damocles. It doesn’t weigh on my mind because I forget it’s even there but at times, especially when I’m enjoying myself, I think “this is a good moment to go.” Sometimes, I want to kill myself because I don’t want to live like this. Sometimes, I want to live all at once because I don’t want to die like this. I live alone. If I ‘drop’ at home, I won’t be missed for several days. Sometimes, this dawns on me and I sit alone and cry. I’m very tired. I want someone to hold me and tell me I was worth knowing. I have told no one but now, I have here and it will go no further." Bloody hell ![]() | |||
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"I have a cerebral aneurysm that may rupture at any time. It is monitored regularly but in vain. If it breaks, it breaks and I may go on living for years or I may be dead within minutes, unaware it has ruptured. No one knows. Nothing can be done about it. It was discovered during a brain scan for another matter and is my sword of Damocles. It doesn’t weigh on my mind because I forget it’s even there but at times, especially when I’m enjoying myself, I think “this is a good moment to go.” Sometimes, I want to kill myself because I don’t want to live like this. Sometimes, I want to live all at once because I don’t want to die like this. I live alone. If I ‘drop’ at home, I won’t be missed for several days. Sometimes, this dawns on me and I sit alone and cry. I’m very tired. I want someone to hold me and tell me I was worth knowing. I have told no one but now, I have here and it will go no further." I wish I had anything helpful to say. I’m so sorry to read that ![]() | |||
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"I have a cerebral aneurysm that may rupture at any time. It is monitored regularly but in vain. If it breaks, it breaks and I may go on living for years or I may be dead within minutes, unaware it has ruptured. No one knows. Nothing can be done about it. It was discovered during a brain scan for another matter and is my sword of Damocles. It doesn’t weigh on my mind because I forget it’s even there but at times, especially when I’m enjoying myself, I think “this is a good moment to go.” Sometimes, I want to kill myself because I don’t want to live like this. Sometimes, I want to live all at once because I don’t want to die like this. I live alone. If I ‘drop’ at home, I won’t be missed for several days. Sometimes, this dawns on me and I sit alone and cry. I’m very tired. I want someone to hold me and tell me I was worth knowing. I have told no one but now, I have here and it will go no further. I wish I had anything helpful to say. I’m so sorry to read that ![]() I can't imagine how that feels, but I'm sending you a whole heap of love | |||
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"I have stage 4 endometriosis. I had surgery for it earlier this year so aprt from dealing with that, I now have scars I'm cripplingly self conscious off. I can manage the condition mostly, but I am occasionally floored by an unexpected flare up, which could in theory lead to me cancelling a meet at short notice, so I would have to warn a potential meet beforehand I suppose " Hugs xx I've recently been checked out for this. Turns out I've got Atypical Hyperplasia, so they're keeping an eye on me. | |||
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"I have IBD. Not the sexiest topic to talk about so I'll leave it at that. Generally well controlled at the moment, touch wood. Oh bless you. A good friend of mine has Crohn's so you have my sympathy. " Many thanks. ![]() | |||
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"I have IBD. Not the sexiest topic to talk about so I'll leave it at that. Generally well controlled at the moment, touch wood. It's shit isn't it ![]() ![]() Ha! Yeah I read yours. I'm Crohns. Mine seems to go through stages, all ok, then bad when I have a flare up. | |||
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"I have stage 4 endometriosis. I had surgery for it earlier this year so aprt from dealing with that, I now have scars I'm cripplingly self conscious off. I can manage the condition mostly, but I am occasionally floored by an unexpected flare up, which could in theory lead to me cancelling a meet at short notice, so I would have to warn a potential meet beforehand I suppose Hugs xx I've recently been checked out for this. Turns out I've got Atypical Hyperplasia, so they're keeping an eye on me. " I’v just had it all whipped out because of that and adenomyosis. Have they put a coil in? | |||
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"I have a cerebral aneurysm that may rupture at any time. It is monitored regularly but in vain. If it breaks, it breaks and I may go on living for years or I may be dead within minutes, unaware it has ruptured. No one knows. Nothing can be done about it. It was discovered during a brain scan for another matter and is my sword of Damocles. It doesn’t weigh on my mind because I forget it’s even there but at times, especially when I’m enjoying myself, I think “this is a good moment to go.” Sometimes, I want to kill myself because I don’t want to live like this. Sometimes, I want to live all at once because I don’t want to die like this. I live alone. If I ‘drop’ at home, I won’t be missed for several days. Sometimes, this dawns on me and I sit alone and cry. I’m very tired. I want someone to hold me and tell me I was worth knowing. I have told no one but now, I have here and it will go no further." X | |||
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"My hidden disability always scares the bejesus out of people as there is so much stigma attached ….. I have schizoaffective disorder - which is a form of schizophrenia with mood disorder attached . I take a shed load of medication for this , have had numerous hospital stays and some very very dark times but if I didn’t tell you about it you wouldn’t ever no . I talk about my mental health to professionals now as part of some charity work , most people are surprised to know given my job and their internal bias or unknown judgement as to what they think a person with my mental health condition would be like ! The best way to break down barriers is to go through them ! We have to talk about disability more in order for it to become less stigmatised !" Amen to this! I’ve found the same with my BPD I linked in with a not for profit organisation which genuinely saved my life. I now want to help others as a lived through practitioner teaching CBT and DBT and other skills I’ve learned on my journey. I’ve been well now for over a year and meds help! God knows they help haha. Invisible illnesses are being highlighted more and more but mental health still has some stigma attached. It’s a real shame. Thank you for sharing and empowering. Xx | |||
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" Amen to this! I’ve found the same with my BPD I linked in with a not for profit organisation which genuinely saved my life. I now want to help others as a lived through practitioner teaching CBT and DBT and other skills I’ve learned on my journey. I’ve been well now for over a year and meds help! God knows they help haha. Invisible illnesses are being highlighted more and more but mental health still has some stigma attached. It’s a real shame. Thank you for sharing and empowering. Xx" Yes to medication!! How ever many wizards and witches have tried to tell me to take a walk and take some herbs of some sort lol - that my friends is not going help ![]() ![]() | |||
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"My hidden disability always scares the bejesus out of people as there is so much stigma attached ….. I have schizoaffective disorder - which is a form of schizophrenia with mood disorder attached . I take a shed load of medication for this , have had numerous hospital stays and some very very dark times but if I didn’t tell you about it you wouldn’t ever no . I talk about my mental health to professionals now as part of some charity work , most people are surprised to know given my job and their internal bias or unknown judgement as to what they think a person with my mental health condition would be like ! The best way to break down barriers is to go through them ! We have to talk about disability more in order for it to become less stigmatised !" ![]() | |||
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"After seeing all the crohns, ibd and ulcerative colitis.... My other hidden one is IBS. And I hate it. Its not sexy at all. " Same here, it’s horrible | |||
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"I have stage 4 endometriosis. I had surgery for it earlier this year so aprt from dealing with that, I now have scars I'm cripplingly self conscious off. I can manage the condition mostly, but I am occasionally floored by an unexpected flare up, which could in theory lead to me cancelling a meet at short notice, so I would have to warn a potential meet beforehand I suppose Hugs xx I've recently been checked out for this. Turns out I've got Atypical Hyperplasia, so they're keeping an eye on me. I’v just had it all whipped out because of that and adenomyosis. Have they put a coil in? " No, no coil. I can't take any kind of hormone therapy. It just makes my endo worse | |||
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" Amen to this! I’ve found the same with my BPD I linked in with a not for profit organisation which genuinely saved my life. I now want to help others as a lived through practitioner teaching CBT and DBT and other skills I’ve learned on my journey. I’ve been well now for over a year and meds help! God knows they help haha. Invisible illnesses are being highlighted more and more but mental health still has some stigma attached. It’s a real shame. Thank you for sharing and empowering. Xx Yes to medication!! How ever many wizards and witches have tried to tell me to take a walk and take some herbs of some sort lol - that my friends is not going help ![]() ![]() Oh I’m so with you on that. Any formal diagnoses other than depression and you get that weird raised eyebrow , slightly scared look or you see peoples body language change. It’s like don’t worry love I’m not plotting your murder in my mind. Haha. Honestly some people. ![]() | |||
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"I have stage 4 endometriosis. I had surgery for it earlier this year so aprt from dealing with that, I now have scars I'm cripplingly self conscious off. I can manage the condition mostly, but I am occasionally floored by an unexpected flare up, which could in theory lead to me cancelling a meet at short notice, so I would have to warn a potential meet beforehand I suppose Hugs xx I've recently been checked out for this. Turns out I've got Atypical Hyperplasia, so they're keeping an eye on me. I’v just had it all whipped out because of that and adenomyosis. Have they put a coil in? No, no coil. I can't take any kind of hormone therapy. It just makes my endo worse" I’ve tried Norethisterone for my endo. It didn’t do anything. My best friend for a flare is heat. Honestly I live with my hot water bottle and heat packs. Mines only mild but I know that stages don’t always indicate pain levels. I had my lap done in summer. I’ve had a d&c due to my bleeding and been admitted on the gynae ward on a drip because I faint and pass out with pain and blood loss. It’s a shit condition. I saw an interesting statistic that more is spend on men and erectile dysfunction than is spent on endometriosis and gynaecology combined. Sickening. If this was a condition which men had to endure our treatment would be much better. | |||
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"I have stage 4 endometriosis. I had surgery for it earlier this year so aprt from dealing with that, I now have scars I'm cripplingly self conscious off. I can manage the condition mostly, but I am occasionally floored by an unexpected flare up, which could in theory lead to me cancelling a meet at short notice, so I would have to warn a potential meet beforehand I suppose Hugs xx I've recently been checked out for this. Turns out I've got Atypical Hyperplasia, so they're keeping an eye on me. I’v just had it all whipped out because of that and adenomyosis. Have they put a coil in? No, no coil. I can't take any kind of hormone therapy. It just makes my endo worse" Oh ![]() | |||
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"I have stage 4 endometriosis. I had surgery for it earlier this year so aprt from dealing with that, I now have scars I'm cripplingly self conscious off. I can manage the condition mostly, but I am occasionally floored by an unexpected flare up, which could in theory lead to me cancelling a meet at short notice, so I would have to warn a potential meet beforehand I suppose Hugs xx I've recently been checked out for this. Turns out I've got Atypical Hyperplasia, so they're keeping an eye on me. I’v just had it all whipped out because of that and adenomyosis. Have they put a coil in? No, no coil. I can't take any kind of hormone therapy. It just makes my endo worse I’ve tried Norethisterone for my endo. It didn’t do anything. My best friend for a flare is heat. Honestly I live with my hot water bottle and heat packs. Mines only mild but I know that stages don’t always indicate pain levels. I had my lap done in summer. I’ve had a d&c due to my bleeding and been admitted on the gynae ward on a drip because I faint and pass out with pain and blood loss. It’s a shit condition. I saw an interesting statistic that more is spend on men and erectile dysfunction than is spent on endometriosis and gynaecology combined. Sickening. If this was a condition which men had to endure our treatment would be much better. " So true, it’s really disgusting. | |||
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"I had covid a few weeks after the initial lockdown. It has left me with several ongoing new health issues I’m now being treated for. This pesky little virus really does do some damage! DC, I'm sorry to hear that; hope the prognosis is positive. " Thank you lovely xx | |||
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"I've got psoriatic arthritis and when I had the 2nd vaccine in May it triggered my skin, I'm only just recovering from it which obviously meant I had to put off meeting people until recently. Oh, poor you. I have Rheumatoid Arthritis - very similar. I've been fine with the vaccines & my booster, but the new meds I'm on have triggered a skin condition which I'm very self conscious of. I'll stay on the meds though, as this is the first time I've been pain free in 25 yrs. I'll just have to live with the skin issue. X" I have just been diagnosed with arthritis in one wrist and and severe soft tissue damage in the other. This made me look at things in a totally different way. I am still going through tests to ascertain how severe both diagnoses are. I was thinking about leaving swinging because of this as I will have to probably give up driving, however reading this thread, it has given me a real boost. Thank you to all and kudos for coming forward with your health issues ![]() ![]() | |||
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"I've got psoriatic arthritis and when I had the 2nd vaccine in May it triggered my skin, I'm only just recovering from it which obviously meant I had to put off meeting people until recently. Oh, poor you. I have Rheumatoid Arthritis - very similar. I've been fine with the vaccines & my booster, but the new meds I'm on have triggered a skin condition which I'm very self conscious of. I'll stay on the meds though, as this is the first time I've been pain free in 25 yrs. I'll just have to live with the skin issue. X I have just been diagnosed with arthritis in one wrist and and severe soft tissue damage in the other. This made me look at things in a totally different way. I am still going through tests to ascertain how severe both diagnoses are. I was thinking about leaving swinging because of this as I will have to probably give up driving, however reading this thread, it has given me a real boost. Thank you to all and kudos for coming forward with your health issues ![]() ![]() More thank happy for you to message mate | |||
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"After seeing all the crohns, ibd and ulcerative colitis.... My other hidden one is IBS. And I hate it. Its not sexy at all. Same here, it’s horrible " It is but people on here are so amazingly understanding and it's lot more common than people think. | |||
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"Social anxiety and panic attacks It's what stops me attending clubs and socials They have only manifested themselves in later life I had my first panic attack on a plane and then they started when I was driving I can feel them coming on and if I do I avoid driving on roads that I can't escape off " I've had panic attacks in the past. After a few I learned the tell tale signs and use to call a friend. Any one of them, and I'd just say I'm starting panic, just chat bollocks to me, about anything but just talk and distract my thoughts. It worked really well for me. As you can feel them coming on do you have any ideas on what you can do to stop it progressing? They are horrid things, and embarrassing. I feel you. | |||
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"After seeing all the crohns, ibd and ulcerative colitis.... My other hidden one is IBS. And I hate it. Its not sexy at all. Same here, it’s horrible It is but people on here are so amazingly understanding and it's lot more common than people think. " Increasingly so. Or more people are just open about it. I bump into more people with Crohn's these days than I used too. I've had it for over 20 years. | |||
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"After seeing all the crohns, ibd and ulcerative colitis.... My other hidden one is IBS. And I hate it. Its not sexy at all. Same here, it’s horrible It is but people on here are so amazingly understanding and it's lot more common than people think. Increasingly so. Or more people are just open about it. I bump into more people with Crohn's these days than I used too. I've had it for over 20 years. " I have a friend with crohns and ulcerative colitis and she suffers bless her. It's horrible. 20 years is a long time. | |||
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"Social anxiety and panic attacks It's what stops me attending clubs and socials They have only manifested themselves in later life I had my first panic attack on a plane and then they started when I was driving I can feel them coming on and if I do I avoid driving on roads that I can't escape off I've had panic attacks in the past. After a few I learned the tell tale signs and use to call a friend. Any one of them, and I'd just say I'm starting panic, just chat bollocks to me, about anything but just talk and distract my thoughts. It worked really well for me. As you can feel them coming on do you have any ideas on what you can do to stop it progressing? They are horrid things, and embarrassing. I feel you. " Stress / being burnt out I had my first one after 20+ years in senior management roles, which also involved me being 'on call' 24/7 for 18 years I got out and took the easy road job wise and they stopped (or very much slowed down) Now, I have issues with both my parents health (one terminal, one long term) and they have started to make their presence known again | |||
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"Social anxiety and panic attacks It's what stops me attending clubs and socials They have only manifested themselves in later life I had my first panic attack on a plane and then they started when I was driving I can feel them coming on and if I do I avoid driving on roads that I can't escape off I've had panic attacks in the past. After a few I learned the tell tale signs and use to call a friend. Any one of them, and I'd just say I'm starting panic, just chat bollocks to me, about anything but just talk and distract my thoughts. It worked really well for me. As you can feel them coming on do you have any ideas on what you can do to stop it progressing? They are horrid things, and embarrassing. I feel you. Stress / being burnt out I had my first one after 20+ years in senior management roles, which also involved me being 'on call' 24/7 for 18 years I got out and took the easy road job wise and they stopped (or very much slowed down) Now, I have issues with both my parents health (one terminal, one long term) and they have started to make their presence known again " That's a hard one and I'm sorry to hear about your parents. Mine disappeared after after I ended a relationship which I think speaks volumes. Removing the cause helps like you did with work but they are often a reaction to something you can't control and can't always solve. Finding a coping mechanism helps. But when you feel fine you don't think to. Not easy. | |||
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"I have type one diabetes…. I was 27 when I was diagnosed, at that time I had lost around 3 stone had a terrible thirst, little appetite, suffered from exhaustion among other things but these were the main telling signs something was wrong. When I was first diagnosed I thought I’d never be able to eat certain things again, or have alcohol, exercise the way I do etc however I have educated myself over the years by attending courses, reading and joining a forum. I keep active, minimise carbohydrates I eat, and watch my sugar intake.I take my medication daily and check my blood sugar before every meal, the key to managing this condition is consistency Being insulin dependant means I have to inject myself several times per day, I always advise any potential meet that I am diabetic and that I inject my medication. I don’t feel embarrassed or worried about it at all I need this to live, if someone had an issue with it I’d respect that but I wouldn’t be going to hide in a bathroom to take my medication, which 10yrs ago I may have. Xx" Me too and it doesn't effect my sex life just have to eat the right things and ensure my energy levels get topped up | |||
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"Social anxiety and panic attacks It's what stops me attending clubs and socials They have only manifested themselves in later life I had my first panic attack on a plane and then they started when I was driving I can feel them coming on and if I do I avoid driving on roads that I can't escape off I've had panic attacks in the past. After a few I learned the tell tale signs and use to call a friend. Any one of them, and I'd just say I'm starting panic, just chat bollocks to me, about anything but just talk and distract my thoughts. It worked really well for me. As you can feel them coming on do you have any ideas on what you can do to stop it progressing? They are horrid things, and embarrassing. I feel you. Stress / being burnt out I had my first one after 20+ years in senior management roles, which also involved me being 'on call' 24/7 for 18 years I got out and took the easy road job wise and they stopped (or very much slowed down) Now, I have issues with both my parents health (one terminal, one long term) and they have started to make their presence known again " Have you tried the 5 4 3 2 1 method? | |||
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"I have too many to mention, but possibly the most ‘important’ one for here is that I have Lichen Sclerosis. I was diagnosed with it after being misdiagnosed with recurring thrush, because many of the symptoms are the same except that there is none of the discharge you get with thrush, and you get ‘white plaques’ on the skin. LS is an autoimmune disorder that attacks the genital area. Because mine was misdiagnosed it cause atrophy of the vagina and clit. This now means that I don’t have very good nerve endings in my clit, and my vag can no longer accommodate very big cocks. I’m probably one of the few who now prefer a smaller more average sized member, but as they say, it’s not the size, it’s what is done with it that matters. After all is said and done, I now prefer anal. Getting an orgasm is nigh on impossible, but I still enjoy sex. If any lady has been diagnosed with LS and wants to talk about it, just let me know. My preferences for ladies is turned off, but I can reverse that if needed. ![]() I also have this, I was lucky enough to be aware of what it is and went to my doctor armed with a self-diagnosis and she agreed! Got there early with the steroid ointment and *touch wood* it seems to be in remission for now. I’m sorry you struggled with a diagnosis. I saw the practice nurse first who said she couldn’t see anything (mine wasn’t external) but took myself back to see a doctor x I’m also currently battling health anxiety which is a complete bitch. I’m having CBT so fingers crossed it will ease at some point! | |||
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