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Dementia and Social Care

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By *yron69 OP   Man
over a year ago

Fareham

To pay for care seems reasonable to me though the weekly charges are huge.

But why does having dementia mean a care home not a hospital? It’s a disease.

My mum had severe dementia and ended up bounced between care homes.

My eldest sister had an inoperable brain tumour and died in a hospice.

Both diseases of the brain. But two different approaches to care.

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By *parkle1974Woman
over a year ago

Leeds


"To pay for care seems reasonable to me though the weekly charges are huge.

But why does having dementia mean a care home not a hospital? It’s a disease.

My mum had severe dementia and ended up bounced between care homes.

My eldest sister had an inoperable brain tumour and died in a hospice.

Both diseases of the brain. But two different approaches to care."

Dementia is a disease of the brain, sadly though nothing can be done to cure it, hence why no need to be in hospital x

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By *yron69 OP   Man
over a year ago

Fareham

They said my sister had depression until they found an inoperable tumour. No cure but she still was hospitalised.

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By (user no longer on site)
over a year ago


"To pay for care seems reasonable to me though the weekly charges are huge.

But why does having dementia mean a care home not a hospital? It’s a disease.

My mum had severe dementia and ended up bounced between care homes.

My eldest sister had an inoperable brain tumour and died in a hospice.

Both diseases of the brain. But two different approaches to care."
very sorry for your losses. That must be hard.

Was the hospice NHS or a charity ?

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By *yron69 OP   Man
over a year ago

Fareham


"To pay for care seems reasonable to me though the weekly charges are huge.

But why does having dementia mean a care home not a hospital? It’s a disease.

My mum had severe dementia and ended up bounced between care homes.

My eldest sister had an inoperable brain tumour and died in a hospice.

Both diseases of the brain. But two different approaches to care.very sorry for your losses. That must be hard.

Was the hospice NHS or a charity ?"

Charity.

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By *icecouple561Couple
Forum Mod
over a year ago

East Sussex

I think it's reasonable that care is paid for, by who and in what proportion is open to debate.

I think dementia/Alzheimer's etc are cared for out of a hospital setting because very little actual nursing care is required.

My mum is frequently shunted (and that is the correct word to use) from hospital to a care or respite facility because she is "medically fit"

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By *yron69 OP   Man
over a year ago

Fareham


"I think it's reasonable that care is paid for, by who and in what proportion is open to debate.

I think dementia/Alzheimer's etc are cared for out of a hospital setting because very little actual nursing care is required.

My mum is frequently shunted (and that is the correct word to use) from hospital to a care or respite facility because she is "medically fit" "

My mum was beyond control. She climbed the fence to escape, punched other patients and staff and smeared shit here there and everywhere.

Secure homes were few and far between .

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By (user no longer on site)
over a year ago

I think it's very sad to see people have to sell their homes to pay privately, which is a lot more than funded residents paid by councils or nhs. But I do understand that being in a residential home does have a cost.

I too often see people discharged from hospital far too soon, sent from pillar to post, and at times I struggle with all the red tape and multi disciplinary agencies involved with providing the right setting and care for people.

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By *icecouple561Couple
Forum Mod
over a year ago

East Sussex


"I think it's reasonable that care is paid for, by who and in what proportion is open to debate.

I think dementia/Alzheimer's etc are cared for out of a hospital setting because very little actual nursing care is required.

My mum is frequently shunted (and that is the correct word to use) from hospital to a care or respite facility because she is "medically fit"

My mum was beyond control. She climbed the fence to escape, punched other patients and staff and smeared shit here there and everywhere.

Secure homes were few and far between ."

That must have been difficult for you to witness.

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By *oodmessMan
over a year ago

yumsville

Dementia / Alzheimer patients need both nursing and care staff. Those who can medicate and those who can clean up, change and keep them active. Nurses aren't charged with the role of care staff so it's largely care homes that patients are moved to or kept in.

Nurses cost more than care staff, so to keep them in hospitals or homes where nurses are looking after them, both drives the price up and (so to speak) may not receive the appropriate level of service.

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By *yron69 OP   Man
over a year ago

Fareham


"I think it's reasonable that care is paid for, by who and in what proportion is open to debate.

I think dementia/Alzheimer's etc are cared for out of a hospital setting because very little actual nursing care is required.

My mum is frequently shunted (and that is the correct word to use) from hospital to a care or respite facility because she is "medically fit"

My mum was beyond control. She climbed the fence to escape, punched other patients and staff and smeared shit here there and everywhere.

Secure homes were few and far between .

That must have been difficult for you to witness. "

Yes especially as it took 6 months to get her into hospital in the first place. They misdiagnosed nervous breakdown as my 2 eldest sisters had both died young.

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By *icecouple561Couple
Forum Mod
over a year ago

East Sussex

Currently in this area a care home that I'd deem acceptable costs around £1500 per week. The rooms are small, usually have an en suite toilet and sink but a shower outside the room. The aim mostly seems to be to keep people in their own homes with carers and to give people the money to pay for them and any other needs via benefits and allowances. From my experience this leads to people living in difficult and sometimes dangerous conditions while not receiving adequate care simply because they refuse to acknowledge there's a problem and they feel that accepting care is losing their independence

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By *icecouple561Couple
Forum Mod
over a year ago

East Sussex


"I think it's reasonable that care is paid for, by who and in what proportion is open to debate.

I think dementia/Alzheimer's etc are cared for out of a hospital setting because very little actual nursing care is required.

My mum is frequently shunted (and that is the correct word to use) from hospital to a care or respite facility because she is "medically fit"

My mum was beyond control. She climbed the fence to escape, punched other patients and staff and smeared shit here there and everywhere.

Secure homes were few and far between .

That must have been difficult for you to witness.

Yes especially as it took 6 months to get her into hospital in the first place. They misdiagnosed nervous breakdown as my 2 eldest sisters had both died young."

I'm sorry to hear that and absolutely understand

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