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Cluster headaches!!!!

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By *oneyCPL8484 OP   Couple
over a year ago

Gosport

Do any of you fellow fabbers suffer intense cluster headaches like our Michael does?

Please share your experiences and remedies.

Looking for home remedies to try xx

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By (user no longer on site)
over a year ago

Maxilief is a brill pain reliever...it's the only pain relief that kills my headaches...

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By *VineMan
over a year ago

The right place

I used to get them a lot. They are truly horrible.

I was in a job I didn’t enjoy and I found stressful. I changed job and have never had them since.

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By *oneyCPL8484 OP   Couple
over a year ago

Gosport


"Maxilief is a brill pain reliever...it's the only pain relief that kills my headaches..."

I'll give it a go and thank you

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By *oneyCPL8484 OP   Couple
over a year ago

Gosport


"I used to get them a lot. They are truly horrible.

I was in a job I didn’t enjoy and I found stressful. I changed job and have never had them since.

"

I have suffered in the past due to stress and get that but my home and work life are in the green but I have seen on social media that a lot of people are suffering at the same time. I personally haven't seen this before but has got my brain going.

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By (user no longer on site)
over a year ago

I had them,- and Michael has my sympathies

I found that a cold shower running on my head worked….. given I was in a crumpled heap in agony, I’ll take that…

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By *istretchMan
over a year ago

leeds

My blood pressure meds have all but stopped mine.

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By (user no longer on site)
over a year ago

I’ve suffered from bas headaches most of my life and only recently discovered the cause (apart from stress).

I was having caffeine hangovers, didn’t even know it was a thing.

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By (user no longer on site)
over a year ago

I do.. They last days, hurt like fuck... I've not found anything that touches them, so i just take paracetamol to reduce my temperature and just exist whilst they run their course. I've not had one for ages - but my triggers are tiredness +stress

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By (user no longer on site)
over a year ago

I've always suffered with miagraines and headaches but recently they were really bad, lasting for days, sometimes over a week.

Doctor sent me for an MRI scan and bloods, turns out I'm low in B12. In 3 months I've had 1, which lasted a day.

I had a horrible reaction to the tablets they gave me, only to be taken with an attack but the phamasits recommended solpadeine and nurofen. 1 of 1 and 2 of the other..... i always forget which is which but just solpadeine on its own has worked for me.

Might be worth calling your doctors just for a check up.

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By *oneyCPL8484 OP   Couple
over a year ago

Gosport


"I had them,- and Michael has my sympathies

I found that a cold shower running on my head worked….. given I was in a crumpled heap in agony, I’ll take that…"

I do put a bag of ice on my neck which used to calm them down fairly quickly. But this bout are kicking the crap out of me and none of my usual go to methods seem to work.

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By (user no longer on site)
over a year ago

I know a thing or two about these…

You need high flow oxygen, or sumatriptan.

There is a natural remedy for these, DM me for info.

Cluster headache is the devil. Strait up.

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By (user no longer on site)
over a year ago

i do yes, along with migraines. The only thing i have found helps is sumatriptan not the 50 but he 100s i may not take any for 6 months, but then ill have 3-4 days of taking my monthly allowance. I have found diet can help, also removing stresses, mine have got a lot better as in less frequent however they re a re bitch to get rid of.

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By (user no longer on site)
over a year ago

Ive also been seeing a chiropractor which has i think helped!!

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By (user no longer on site)
over a year ago

I was suffering so badly that during one episode I was blue lighted to hospital with a suspected bleed on the brain. The prescribed propanol and have never had any more since na my blood pressure has and is just about perfect

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By *indergirlWoman
over a year ago

somewhere, someplace

I do, I use sumitriptan and Rx strength cocodamol to get me through the day, I also have trigeminal neuralgia on top that flares up out of nowhere now and then

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By (user no longer on site)
over a year ago

Whenever i get tired, eat badly and am stressed i suffer horrendously.

Nothing touches it, so i try to keep my head cool and take paracetamol (reduces temperature)

I try to stay hydrated, eat well and let my body rest as much as possible to scrap through - usually takes 2-3 days before i can start to sleep, see and eat properly again

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By (user no longer on site)
over a year ago

(eat well as in wholefood +plant based, non-processed)

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By (user no longer on site)
over a year ago

Sometimes but they totally self inflicted

Combo off not anuff sleep to much caffeine and sitting at a screen for 12-14 hours will do it

Normal my cure for them pop painkillers stop with the caffeine and go to bed wake up the next day with it gone but feel hung over

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By *parkle1974Woman
over a year ago

Leeds

I use sumitriptan but also get 36 botox injections all around my head which has helped a bit x

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By *ungBlackTopMan
over a year ago

salford

Can never understand why people use this site as a source of medical advice? Half the responses don't even know what cluster headaches are. Should speak with a doctor and use intranasal Triptan. Most clusters need to be seen by a specialist.

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By *asmeenTV/TS
over a year ago

STOKE ON TRENT


"Can never understand why people use this site as a source of medical advice? Half the responses don't even know what cluster headaches are. Should speak with a doctor and use intranasal Triptan. Most clusters need to be seen by a specialist. "

Maybe for reassurance

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By *asmeenTV/TS
over a year ago

STOKE ON TRENT


"Can never understand why people use this site as a source of medical advice? Half the responses don't even know what cluster headaches are. Should speak with a doctor and use intranasal Triptan. Most clusters need to be seen by a specialist. "

Have you tried speaking to a doctor recently

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By *adyJayneWoman
over a year ago

Burnleyish (She/They)


"i do yes, along with migraines. The only thing i have found helps is sumatriptan not the 50 but he 100s i may not take any for 6 months, but then ill have 3-4 days of taking my monthly allowance. I have found diet can help, also removing stresses, mine have got a lot better as in less frequent however they re a re bitch to get rid of. "

This. I don't have one consistent trigger. It's a culmination.

I've recently been reading some research by Angela A Stanton and have just ordered her book.

Basically one thing rarely checked are sodium and potassium levels in conjunction with cluster headaches/migraines.

Mid attack take salt, if it improves (apparently almost instantly) it's a sodium deficiency. If it gets worse it's potassium. No change - it's something else.

I've also been through all prevention type medication. I'm on the max dose of pizotifen. I'm ok provided i get enough sleep, don't drink, don't elevate my heart rate.

I have another neurologist appointment. In just over a year.

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By *parkle1974Woman
over a year ago

Leeds


"Can never understand why people use this site as a source of medical advice? Half the responses don't even know what cluster headaches are. Should speak with a doctor and use intranasal Triptan. Most clusters need to be seen by a specialist. "

I know exactly what they are thank you very much.

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By *azza80Woman
over a year ago

Your wildest Dreams

I suffer bad with them and migraines ever since I was a little girl. I am allergic to codeine so just paracetamol/ibuprofen for me. But last year I got a daith piercing in my ear and it has helped alot. I still get headaches and that but no where near as bad, I am not confined to my bed or toilet being sick for days on end anymore. Alot more manageable now. Maybe google Daith piercing and check it out. Good luck x

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By *oodmessMan
over a year ago

yumsville

[Removed by poster at 05/08/21 14:33:52]

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By *oodmessMan
over a year ago

yumsville

I read in the Guardian a few months ago that a battery operated device used to stimulate the vagus nerve in the neck.. was approved by NICE. It sounds such a way forward as opposed to pills on pills that people are offered, trialled on etc. GammaCore were the makers as I remember. There was something about it treating asthma too but I was more interested in the migraine side of things.

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