FabSwingers.com forum: Diabetes Help Needed Pls

By (user no longer on site) OP
over a year ago

I've been type1 diabetic for 3 years.

I've always had problems managing it and been in and out of hospital a few times DKA.

I inject Novo Rapid insulin with food, Tresiba 24hr booster at night. Carb counting doesn't work for me, but I know roughly what insulin levels to take for meals.

This last week my blood levels are swinging all over. I wake up every other day hypoglycemic and sometimes my insulin with food doesn't work.

Tonight I had my tea around 5.30pm, past out and just woke up. My bloods are 26.3

.(I've done a correction dose)This happens every few days also.

It's not a dodgy injection site, I change these weekly.

My diet and lifestyle hasn't changed so I don't know what's causing this. I've not had any hospital appointments since March cos of Covid (I used to see them monthly) but they are useless anyways. All they do is tweak my insulin levels, which I can do myself anyways.

I don't want to go to A&E cos every time I do, they keep me trapped on a ward for a week on drips and that ain't gonna happen.

Does anyone know what the fek is going on cos it's got my head in bits lol

Thank you

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By *asmeenTV/TS
over a year ago

STOKE ON TRENT

What insulin are you taking

Are you eating Carbohydrates

Check your sugars before you eat and after xx

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By *asmeenTV/TS
over a year ago

STOKE ON TRENT

Glargine?

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By *a LunaWoman
over a year ago

South Wales

Are you poorly? Stressed? Not sleeping? They can affect your bloods.

Are you under the hospital? My mum is a diabetic and goes to a clinic and her blood sugars are monitored? If you are experiencing problems you should give GP a ring and ask for a review (can do it over the phone).

It needs to be stabilised and your doses may need altering/medication altering.

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By *hrista BellendWoman
over a year ago

surrounded by twinkly lights

Are you stressed and run down Cindi

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By *a LunaWoman
over a year ago

South Wales

Keep a blood sugar diary for a week so you can see what may or may not be triggering the highs.

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By *ce WingerMan
over a year ago

P.O. Box DE1 0NQ

Sorry that I can't help you OP, I'm Type 2 which is diet controlled. I cook most of my own stuff from scratch so that I know what's in it x

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By *offiaCoolWoman
over a year ago

Kidsgrove

An insulin pump ?

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By *orraine999Woman
over a year ago

Somewhere

Certain medications can effect your glucose readings such as corticosteroids, statins or niacin.

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By *phroditeWoman
over a year ago

(She/ her) in Sensualityland

OP, I feel for you that your medication has not been sorted, I really do.

With the greatest respect to other posters, I believe the OP should ask for a full review and / or second opinion but from a medcially trained person who has access to the history. Asking on a forum is, in my humble opion, quite dangerous.

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By *asmeenTV/TS
over a year ago

STOKE ON TRENT

Phone Doctor first thing xx

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By *oeBiggs321Man
over a year ago

Reading

Have you looked into getting an insulin pump at all?

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By *phroditeWoman
over a year ago

(She/ her) in Sensualityland

"Phone Doctor first thing xx"

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By (user no longer on site) OP
over a year ago

"What insulin are you taking

Are you eating Carbohydrates

Check your sugars before you eat and after xx"

Yes I do that. I do blood tests every 2 hours and before food.

I eat healthy and make sure I have carbs

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By *offiaCoolWoman
over a year ago

Kidsgrove

"OP, I feel for you that your medication has not been sorted, I really do.

Sometimes certain doctors don't think outside the box. Threads like this can give others experiences that the OP can enquire about.

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By *offiaCoolWoman
over a year ago

Kidsgrove

"Have you looked into getting an insulin pump at all? "

Oi, beat ya earlier

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By *hilledGuerillaMan
over a year ago

In the monkey house

Medtronic Guardian 3 constant glucose monitor used with a minimed 670g works really well for my brother in law. He has type 1 but his blood sugars were all over the place (called fragile diabetes) got the CGM and pump and been steady the vast majority of the time.

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By (user no longer on site) OP
over a year ago

"Are you poorly? Stressed? Not sleeping? They can affect your bloods.

It needs to be stabilised and your doses may need altering/medication altering."

I'm not poorly, stressed maybes, my sleep is ok.

I've had no contact with my diabetes team since March.

But trust me, the ones I see are crap.

They go through my blood monitoring diary, talk bollox for half an hour and send me off again lol

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By (user no longer on site)
over a year ago

Possibly infection somewhere can cause big fluctuations with your blood glucose levels too x

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By (user no longer on site)
over a year ago

Hi. Sorry you’re having all the sugar swings, they’re shit! I’m on tresiba but do it at midday instead. You could see about changing your fast acting and ask about a libre. I was sceptical at first but it changed everything and it’s a good way to double check your ratios. I could see the 6hrs of 1.6 through the night that I’d sleep through! I also have to take metformin as I’m insulin resistant but I’m an old diabetic (28yrs) so they might not want to do that yet. There’s always a lot of tweaking in the first few years unfortunately. Feel free to PM if you just want to rant and bitch about the joy of diabetes x

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By *phroditeWoman
over a year ago

(She/ her) in Sensualityland

"OP, I feel for you that your medication has not been sorted, I really do.

Sometimes certain doctors don't think outside the box. Threads like this can give others experiences that the OP can enquire about."
I agree, not every GP can be an expert on every illness but.... I value the opinion of fellow fabsters on a number of swinging, music, whatever related things but as for medical advice this would be the last place I would consult. Perhaps I am too cautious, who knows - each to their own.

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By (user no longer on site) OP
over a year ago

"Are you stressed and run down Cindi "

Maybes, there's a shit load happening with my family.

My sister is in Canada, my 2yr old niece needs operation to remove a brain tumor and could lose mobility.

It's breaking my heart and me and my Mam n dad can't go over cos of Covid.

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By *phroditeWoman
over a year ago

(She/ her) in Sensualityland

"OP, I feel for you that your medication has not been sorted, I really do.

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By (user no longer on site) OP
over a year ago

"An insulin pump ?"

I don't want something permanently attached to me, but that's an option I need to think about properly if it can help me

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By (user no longer on site) OP
over a year ago

"OP, I feel for you that your medication has not been sorted, I really do.

I'm hoping other diabetics can help. That's always the best solution for diabetics, share best practices etc.

It's not my medication causing this

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By (user no longer on site) OP
over a year ago

"Medtronic Guardian 3 constant glucose monitor used with a minimed 670g works really well for my brother in law. He has type 1 but his blood sugars were all over the place (called fragile diabetes) got the CGM and pump and been steady the vast majority of the time. "

I think this is the route I have to go down.

I've always hated the idea of a pump, but it may be the only way

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By *asmeenTV/TS
over a year ago

STOKE ON TRENT

Phone 111 for advice xx

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By (user no longer on site) OP
over a year ago

"Feel free to PM if you just want to rant and bitch about the joy of diabetes x"

You may regret that offer

But thank you, it's a horrible infliction eh?

But what can you do

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By *offiaCoolWoman
over a year ago

Kidsgrove

"OP, I feel for you that your medication has not been sorted, I really do.

Sometimes certain doctors don't think outside the box. Threads like this can give others experiences that the OP can enquire about. I agree, not every GP can be an expert on every illness but.... I value the opinion of fellow fabsters on a number of swinging, music, whatever related things but as for medical advice this would be the last place I would consult. Perhaps I am too cautious, who knows - each to their own. "

People also make connections with people with similar conditions. I have seen people come back and day that something they found in here that worked. But yes, advice should always be taken with caution.

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By (user no longer on site) OP
over a year ago

"Phone 111 for advice xx"

I'm due another blood test at 10pm, I'll do that if I don't start to stabilise

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By *offiaCoolWoman
over a year ago

Kidsgrove

I think this is the route I have to go down.

I've always hated the idea of a pump, but it may be the only way

It can be very liberating in other ways.

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By (user no longer on site)
over a year ago

"I've been type1 diabetic for 3 years.

I've always had problems managing it and been in and out of hospital a few times DKA.

I inject Novo Rapid insulin with food, Tresiba 24hr booster at night. Carb counting doesn't work for me, but I know roughly what insulin levels to take for meals.

This last week my blood levels are swinging all over. I wake up every other day hypoglycemic and sometimes my insulin with food doesn't work.

Tonight I had my tea around 5.30pm, past out and just woke up. My bloods are 26.3

.(I've done a correction dose)This happens every few days also.

It's not a dodgy injection site, I change these weekly.

I don't want to go to A&E cos every time I do, they keep me trapped on a ward for a week on drips and that ain't gonna happen.

Does anyone know what the fek is going on cos it's got my head in bits lol

Thank you"

Before I read any further, my advice, get ye to the doctor!!! I'm not sure if that's terribly helpful and if everyone else has said the same in the thread, I concur.

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By *asmeenTV/TS
over a year ago

STOKE ON TRENT

"Phone 111 for advice xx

I'm due another blood test at 10pm, I'll do that if I don't start to stabilise

Xx and I understand you dont want to go hospital especially at this time xx

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By (user no longer on site) OP
over a year ago

Before I read any further, my advice, get ye to the doctor!!! I'm not sure if that's terribly helpful and if everyone else has said the same in the thread, I concur."

They are useless with this stuff Miles.

All they do is tell me to tweak my insulin levels which I can work out and do myself.

I'm looking for a reason why this is happening, doctors and nurses just say "that's diabetes for ya"

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By (user no longer on site) OP
over a year ago

"Phone 111 for advice xx

I'm due another blood test at 10pm, I'll do that if I don't start to stabilise

Xx and I understand you dont want to go hospital especially at this time xx"

That's another reason, no way I'm going to a Covid hotspot.

My local hospital is the big one for all South Tyneside, it's full of covid

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By (user no longer on site)
over a year ago

My other piece of advice....do you have a trusted neighbour who can have access to your house during lockdown? Someone needs to check in with you at regular intervals. Perhaps a wave out the window or some such thing.

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By *asmeenTV/TS
over a year ago

STOKE ON TRENT

"Phone 111 for advice xx

I'm due another blood test at 10pm, I'll do that if I don't start to stabilise

Xx and I understand you dont want to go hospital especially at this time xx

That's another reason, no way I'm going to a Covid hotspot.

My local hospital is the big one for all South Tyneside, it's full of covid"

Read your emails x

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By (user no longer on site) OP
over a year ago

"My other piece of advice....do you have a trusted neighbour who can have access to your house during lockdown? Someone needs to check in with you at regular intervals. Perhaps a wave out the window or some such thing."

Nope, I'm 100% isolated.

My mum n dad live 40miles away.

If I had a heart attack or stroke no one would know lol

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By (user no longer on site)
over a year ago

Have u been naughty? If so it's not the fairies gettin u back!

other than that can't say no clue? Hope get better soon

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By (user no longer on site) OP
over a year ago

"Have u been naughty? If so it's not the fairies gettin u back!

other than that can't say no clue? Hope get better soon"

It's those damm cucumbers I tell ya

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By *asmeenTV/TS
over a year ago

STOKE ON TRENT

Nope, I'm 100% isolated.

My mum n dad live 40miles away.

If I had a heart attack or stroke no one would know lol"

Don't say that have you got a blood pressure machine check your blood pressure if you have xx

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By (user no longer on site)
over a year ago

Best of luck OP, ring your GP first thing in the morning but if it was me I'd go to A/E NOW but I understand completely why you don't want to

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By *mnipotent_BehemothMan
over a year ago

near Merry Hill shopping centre

I know this is a long shot but have you had non sympathetic Covid, one of the lads who worked for me has and it’s totally screwing his blood sugars now for weeks after and he has ended up with a few visits to A&E when normally he hasn’t an issue, he had no signs of Covid but was picked up in some antibody testing

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By (user no longer on site) OP
over a year ago

"Best of luck OP, ring your GP first thing in the morning but if it was me I'd go to A/E NOW but I understand completely why you don't want to

Thank you, I'll have no choice but ring 111 if it doesn't sort out.

I hate going hospital lol

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By (user no longer on site) OP
over a year ago

"I know this is a long shot but have you had non sympathetic Covid, one of the lads who worked for me has and it’s totally screwing his blood sugars now for weeks after and he has ended up with a few visits to A&E when normally he hasn’t an issue, he had no signs of Covid but was picked up in some antibody testing "

The only way I'd catch Covid is from food shopping.

I've seen no one at all since March.

But I'm not sure id be non sympathetic, my health is pretty bad. More than likely I'd be one of those poor people on a ventilator

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By *opsy RogersWoman
over a year ago

London

Dr Betnstein law of small numbers. Google it, you'll be set free.

Join the T1 forum in diabetes.co.uk

Read 'think like a pancreas'.

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By (user no longer on site)
over a year ago

Nope, I'm 100% isolated.

My mum n dad live 40miles away.

If I had a heart attack or stroke no one would know lol"
the forums would b quite we'd know

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By (user no longer on site) OP
over a year ago

"Dr Betnstein law of small numbers. Google it, you'll be set free.

Join the T1 forum in diabetes.co.uk

Read 'think like a pancreas'."

That's a good idea, I didn't think to join a diabetes forum, thanks

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By (user no longer on site) OP
over a year ago

"the forums would b quite we'd know

Not sure id trust you with my mobile number to check up on me.

You might want some dirty phone chat about sniffing knickers or something

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By *adame 2SwordsWoman
over a year ago

Victoria, London

I understand the concern, but is FAB really the forum? Is there not a local support group that would give proper information?

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By *ools and the brainCouple
over a year ago

couple, us we him her.

"Phone Doctor first thing xx

Exactly this.

You could be unwell or getting something.

Mine always go haywire when I am unwell.

Phone doctor's please

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By (user no longer on site) OP
over a year ago

"I understand the concern, but is FAB really the forum? Is there not a local support group that would give proper information?"

I'm not on any, was hoping fellow diabetics would be here

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By *offiaCoolWoman
over a year ago

Kidsgrove

"I understand the concern, but is FAB really the forum? Is there not a local support group that would give proper information?"

A diabetes forum has just been mentioned that may be worth pursuing, an insulin pump etc. I think some useful options have been highlighted, plus connections have been made for further support for someone who admits they extremely isolated.

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By *asmeenTV/TS
over a year ago

STOKE ON TRENT

"I understand the concern, but is FAB really the forum? Is there not a local support group that would give proper information?"

Yes we have given proper support and information

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By (user no longer on site)
over a year ago

"I understand the concern, but is FAB really the forum? Is there not a local support group that would give proper information?"

Why wouldn't it be the right place?

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By (user no longer on site)
over a year ago

"the forums would b quite we'd know

Not sure id trust you with my mobile number to check up on me.

You might want some dirty phone chat about sniffing knickers or something

"
tried that yrs ago nickin off washing line took me ages to realise jack & Danny didn't smell of Ariel! Seriously not for me knicker sniffin to each their own lol

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By (user no longer on site) OP
over a year ago

Thanks for the advice all.

I'll ring 111 if not stabilise.

I'll ring the quacks in the morning

Look to get insulin pump.

I don't think there's much else, so feel free to ignore this thread now.

It's just my heads is in bits and I got no where else to turn to at the moment and I'm not bothering my mum n dad with this, they got more important things to worry about

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By *uke olovingmanMan
over a year ago

Gravesend

My mum's got a similar problem...her diabetes nurse suggested avoiding potatoes.. pastries.biscuits ...pasta .. not sure about rice ..but it's the sugar..as you know that's the problem and secondary sugar from the broken down carbs ..try celeriac and Cauliflower instead of potatoes .. good luck

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By *asmeenTV/TS
over a year ago

STOKE ON TRENT

"Thanks for the advice all.

I'll ring 111 if not stabilise.

I'll ring the quacks in the morning

Look to get insulin pump.

I don't think there's much else, so feel free to ignore this thread now.

It's just my heads is in bits and I got no where else to turn to at the moment and I'm not bothering my mum n dad with this, they got more important things to worry about

No I won't ignore the thread and if you need to speak you know where I am xxx

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By (user no longer on site)
over a year ago

"Phone 111 for advice xx

I'm due another blood test at 10pm, I'll do that if I don't start to stabilise

Xx and I understand you dont want to go hospital especially at this time xx"

Definitely phone 111.

I'm not type 1 I have latent autoimmune diabetes often called 1.5.

I had a terrible time with my diabetes at the beginning of the year and had a similar thing where I struggled to have ongoing treatment because of the restrictions due to covid.

I wasn't getting anywhere with my GP or diabetes specialist so called 111 out of desperation and got emergency doctors appointment as it was the weekend, It was a game changer as the doctor prescribed me a different type of injection and haven't looked back since.

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By (user no longer on site) OP
over a year ago

"My mum's got a similar problem...her diabetes nurse suggested avoiding potatoes.. pastries.biscuits ...pasta .. not sure about rice ..but it's the sugar..as you know that's the problem and secondary sugar from the broken down carbs ..try celeriac and Cauliflower instead of potatoes .. good luck

I think that's the only sensible post you have done today

Thank you

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By *asmeenTV/TS
over a year ago

STOKE ON TRENT

"Phone 111 for advice xx

I'm due another blood test at 10pm, I'll do that if I don't start to stabilise

Xx and I understand you dont want to go hospital especially at this time xx

Definitely phone 111.

I'm not type 1 I have latent autoimmune diabetes often called 1.5.

I had a terrible time with my diabetes at the beginning of the year and had a similar thing where I struggled to have ongoing treatment because of the restrictions due to covid.

Xxxxxxxxx

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By (user no longer on site)
over a year ago

"Thanks for the advice all.

I'll ring 111 if not stabilise.

I'll ring the quacks in the morning

Look to get insulin pump.

I don't think there's much else, so feel free to ignore this thread now.

It's just my heads is in bits and I got no where else to turn to at the moment and I'm not bothering my mum n dad with this, they got more important things to worry about

No I won't ignore the thread and if you need to speak you know where I am xxx

You were a fantastic support to me at the beginning of the year when I was very poorly with my diabetes you are a superstar.

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By (user no longer on site)
over a year ago

If you have the testing strips then I’d suggest that you test for keytone poisoning because of your bad control.

You won’t want to hear this but the experts are experts for a reason and trust me(or don’t) when I say they know more than us.

If you keep on topping up your insulin then you run the risk of having a major hypo which sounds like is happening to you.

Pumps are fucking brilliant,ugly but brilliant.As are the glucose readers in my opinion.

Again you won’t want to hear this but in my opinion the problem could well be you and your approach to diabetes and I say this from my own experience because after 23 years running at between 20 and 35 most if not every day my last hospital stay taught me that I was a cunt in my approach to my diabetes and taught me that after 23 years I really didn’t understand my condition at all.

So far because of my arrogance I’m impotent and when I orgasm nothing comes out but goes straight into my bladder and I’m on a swinging site because my wife whom I love more than chocolate and life itself hasn’t had sex in over 11 years.

Three of my toenails are fucked up so I have to wear socks at all times and I’ve had 13 lazer eye ops to stop my eyes leaking and to stop me going blind.

All of this because I knew better than the experts and didn’t listen.

I’ve paid a very high cost for basically being a stupid twat but I know that and I own it but seriously look at yourself and ask are you doing enough??

Best of luck op.

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By (user no longer on site) OP
over a year ago

"Phone 111 for advice xx

I'm due another blood test at 10pm, I'll do that if I don't start to stabilise

Xx and I understand you dont want to go hospital especially at this time xx

Definitely phone 111.

I'm not type 1 I have latent autoimmune diabetes often called 1.5.

I had a terrible time with my diabetes at the beginning of the year and had a similar thing where I struggled to have ongoing treatment because of the restrictions due to covid.

It's amazing isn't it, diabetes is so common, yet the doctors and diabetes specialists are useless.

I've never understood that

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By *uke olovingmanMan
over a year ago

Gravesend

I think that's the only sensible post you have done today

Thank you

"
I do sensible when it's necessary

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By (user no longer on site)
over a year ago

"Phone 111 for advice xx

I'm due another blood test at 10pm, I'll do that if I don't start to stabilise

Xx and I understand you dont want to go hospital especially at this time xx

Definitely phone 111.

I'm not type 1 I have latent autoimmune diabetes often called 1.5.

I had a terrible time with my diabetes at the beginning of the year and had a similar thing where I struggled to have ongoing treatment because of the restrictions due to covid.

It's amazing isn't it, diabetes is so common, yet the doctors and diabetes specialists are useless.

I've never understood that

I totally understand where you are coming from and for a while I was bagging my head against a brick wall.

Have a look on the diabetes UK website as there is quite a lot of information.

Are you up-to-date with all your other checks like your feet, eyes and legs?

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By (user no longer on site) OP
over a year ago

"If you have the testing strips then I’d suggest that you test for keytone poisoning because of your bad control.

You won’t want to hear this but the experts are experts for a reason and trust me(or don’t) when I say they know more than us.

If you keep on topping up your insulin then you run the risk of having a major hypo which sounds like is happening to you.

Pumps are fucking brilliant,ugly but brilliant.As are the glucose readers in my opinion.

Three of my toenails are fucked up so I have to wear socks at all times and I’ve had 13 lazer eye ops to stop my eyes leaking and to stop me going blind.

All of this because I knew better than the experts and didn’t listen.

I’ve paid a very high cost for basically being a stupid twat but I know that and I own it but seriously look at yourself and ask are you doing enough??

Best of luck op.

Thank you for this.

When I have problems my coping mechanism has always been to just ignore it, pretend it isn't happening.

Maybes that's my approach to my diabetes. Maybes I'm not caring enough about it and looking after it enough.

The long terms problems I understand are dangerous, increased risk of heart attack etc.

I think I swallow the bullet and get a pump

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By (user no longer on site) OP
over a year ago

Are you up-to-date with all your other checks like your feet, eyes and legs?

Every September, but this year's was canceled due to covid

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By (user no longer on site)
over a year ago

"If you have the testing strips then I’d suggest that you test for keytone poisoning because of your bad control.

You won’t want to hear this but the experts are experts for a reason and trust me(or don’t) when I say they know more than us.

If you keep on topping up your insulin then you run the risk of having a major hypo which sounds like is happening to you.

Pumps are fucking brilliant,ugly but brilliant.As are the glucose readers in my opinion.

Three of my toenails are fucked up so I have to wear socks at all times and I’ve had 13 lazer eye ops to stop my eyes leaking and to stop me going blind.

All of this because I knew better than the experts and didn’t listen.

I’ve paid a very high cost for basically being a stupid twat but I know that and I own it but seriously look at yourself and ask are you doing enough??

Best of luck op.

Thank you for this.

When I have problems my coping mechanism has always been to just ignore it, pretend it isn't happening.

Maybes that's my approach to my diabetes. Maybes I'm not caring enough about it and looking after it enough.

The long terms problems I understand are dangerous, increased risk of heart attack etc.

I think I swallow the bullet and get a pump

I ignored mine for ages and had the biggest wake up call at the beginning of March.

As awful as it is your diabetes is going nowhere all you can do is live well with it but its not easy. X

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By (user no longer on site)
over a year ago

Are you up-to-date with all your other checks like your feet, eyes and legs?

Every September, but this year's was canceled due to covid

So were mine as I was due everything in April.

I did finally have mine in mid October so I guess they are playing catch up.

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By (user no longer on site) OP
over a year ago

As awful as it is your diabetes is going nowhere all you can do is live well with it but its not easy. X"

I hate it lol

I'll have a good look at the diabetes forum tomorrow see if there's any little gems and other ideas there also.

That was a good suggestion

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By (user no longer on site) OP
over a year ago

Bloods are 15.8 so insulin correction dose is working

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By (user no longer on site)
over a year ago

As awful as it is your diabetes is going nowhere all you can do is live well with it but its not easy. X

I hate it lol

I'll have a good look at the diabetes forum tomorrow see if there's any little gems and other ideas there also.

That was a good suggestion"

There is a well known condition amongst diabetics called burnout and it sounds like thats where you are.

It's hard work to manage but there is support available. X

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By (user no longer on site)
over a year ago

"Bloods are 15.8 so insulin correction dose is working

Excellent. X

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By (user no longer on site)
over a year ago

OP you need to go to AE and let them do a full check on all your vital signs.

You are clearly in need of medical intervention and expert assistance.

A recreational sex site is no place to seek solutions to your current medical issues.

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By (user no longer on site)
over a year ago

I have no advice but wanted to send hugs x

It sounds incredibly crap

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By *asmeenTV/TS
over a year ago

STOKE ON TRENT

"Thanks for the advice all.

I'll ring 111 if not stabilise.

I'll ring the quacks in the morning

Look to get insulin pump.

I don't think there's much else, so feel free to ignore this thread now.

It's just my heads is in bits and I got no where else to turn to at the moment and I'm not bothering my mum n dad with this, they got more important things to worry about

No I won't ignore the thread and if you need to speak you know where I am xxx

You were a fantastic support to me at the beginning of the year when I was very poorly with my diabetes you are a superstar.

Awww xxxx

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By *asmeenTV/TS
over a year ago

STOKE ON TRENT

"Bloods are 15.8 so insulin correction dose is working

Great xx

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By *orny PTMan
over a year ago

Peterborough

"Dr Betnstein law of small numbers. Google it, you'll be set free.

Join the T1 forum in diabetes.co.uk

Read 'think like a pancreas'."

I was thinking of that as I went down the thread.

Daft question coming up.

Have you been given the correct diagnosis?

As too many big diseases have a lesser known disease that, keeps getting overlooked, by the hospitals, chemists and even authors.

Lots of old ground getting retrodden, time after time; with no new ground getting covered. Centipede syndrome, sounds like a good name for it.

Anyway...I was diagnosed with exercised induced asthma when I was eleven (1981). Turns out I'd been wasting my time with all the various inhalers.

Why because after changing GP practices over the years and telling them that I don't respond to the inhalers, falling on deaf ears.

So, eventually I was given a 30 minute chat with an asthma nurse, who finally listened to me and agreed that It wasn't asthma. But my symptoms were real and this needs a thorough investigation. Yippee, someone listened!

She couldn't say what it was, but that was a start, so with her referral, I went along to the hospital. This was the same place that confirmed that I was allergic to dust in 2005, that wasn't surprise, as the bloody stuff makes my nasal passages sting and makes my nose drip, drip, drip.

At the hospital I was given all the breathing tests, max in, max out try not to black out as my results were monitored on the screen, in that now spinning and darkened room.

I was finally asked some strange questions. One of them pertained to heartburn, something I know too well.

This was they said I had.

Dysfunctional breathing - I breathe in and out too shallow and too fast, at rest. I need reprogramming. Mechanics think of remapping. 25 breathes instead of 12 breathes per minute.

Deviated sepulum - bent nasal passage divider (was operated on some time later)

Collapsing right nostril - the surgeon forgot to do this, grrr.

GERD - long term heartburn, the valve to my stomach never fully closes, that explains vurps, hiccups and coughing at the same time. I now have tablets to dampen down those flames.

So as you can imagine, this makes skipping, jogging and climbing hills on my bike harder than it should be...as my VO2 max is 49 and that's not bad.

As for yourself, this should encourage you to demand better answers from the diabetes forum, clinic and hospital. Don't be shy in asking for a full investigation.

Gregory House would!

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By (user no longer on site)
over a year ago

"Bloods are 15.8 so insulin correction dose is working

Great xx"

Is it????

It’s double what it should be and running at levels like that only does damage.

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By (user no longer on site)
over a year ago

I know what you are meaning x that's a shame you have got to go through all of that x im diabetic type 2 . Im fortunate enough to control it with tablets and food x always remember that you have got a lot of friends on here who you can talk to whenever you're feeling a bit down x

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By (user no longer on site) OP
over a year ago

"I have no advice but wanted to send hugs x

It sounds incredibly crap"

Thank you x

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By (user no longer on site) OP
over a year ago

"Bloods are 15.8 so insulin correction dose is working

Great xx

Is it????

It’s double what it should be and running at levels like that only does damage.

Yes it's great, because they were 26 two hours ago so they are dropping = great

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By (user no longer on site) OP
over a year ago

"I know what you are meaning x that's a shame you have got to go through all of that x im diabetic type 2 . Im fortunate enough to control it with tablets and food x always remember that you have got a lot of friends on here who you can talk to whenever you're feeling a bit down x

Thanks Jack, you're a good guy x

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By (user no longer on site)
over a year ago

"Bloods are 15.8 so insulin correction dose is working

Great xx

Is it????

It’s double what it should be and running at levels like that only does damage.

Yes it's great, because they were 26 two hours ago so they are dropping = great

T is a diabetic, a few months back his bloods were shooting up and dropping. It was stress related.

Hope you get it sorted out, it can be so scary, take of yourself. x

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By (user no longer on site) OP
over a year ago

"It was stress related.

Hope you get it sorted out, it can be so scary, take of yourself. x"

Thank you, it could be this

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By (user no longer on site)
over a year ago

I believe that the cold weather affects sugar levels of people who have type one diabetes and it has been very cold over the last couple of weeks.

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By *ENGUYMan
over a year ago

Hull

"It was stress related.

Hope you get it sorted out, it can be so scary, take of yourself. x

Thank you, it could be this

I'm Type 2 Diabetic and I went through rough times for a year or so, during which I messed up with my meds, plus I wasn't getting the right support from GP Surgeries.

Then, I was taken I'll, rushed into hospital and was given lots of advice about what can affect my condition.

But one key element was the Diabetes UK website where there is a Forum page, on which there are countless others all going through every related issue possible.

On there, I got almost instant advice, suggestions and links to help me through. It worked for me and all is fine for me now.

But one key point came through, in that not all GP's are tuned into Diabetes. Best options are Diabetic Nurses within GP Surgeries, or failing that, speak to Phlebotomists who visit surgeries often; they'll know who the good Diabetes nurses are.

Good luck.

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By (user no longer on site) OP
over a year ago

"I believe that the cold weather affects sugar levels of people who have type one diabetes and it has been very cold over the last couple of weeks."

I've never even thought of that, and with living at the coast it's been freezing.

I notice changes when it's a heat wave, so yes, the reverse can happen also.

Thank you

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By *asmeenTV/TS
over a year ago

STOKE ON TRENT

"Bloods are 15.8 so insulin correction dose is working

Great xx

Is it????

It’s double what it should be and running at levels like that only does damage.

Yes it is it was higher before

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By (user no longer on site)
over a year ago

"I believe that the cold weather affects sugar levels of people who have type one diabetes and it has been very cold over the last couple of weeks."

We have had temperatures of 12 to 16 deg C in the last few weeks?

How about the OP phones the doctor asks for an appointment to speak to a qualified medical practitioner and has a full medical analysis of all factors that are connected to diabetes. The OP can then make a value judgement on what advice to follow.

Jesus

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By (user no longer on site) OP
over a year ago

But one key element was the Diabetes UK website where there is a Forum page, on which there are countless others all going through every related issue possible.

On there, I got almost instant advice, suggestions and links to help me through.

I'm ring the doctor in the morning.

I'm also going to join the diabetes forum.

I just hope I remember which forum I have open for my comments, don't want to talk about strapons on a thread about insulin management

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By *asmeenTV/TS
over a year ago

STOKE ON TRENT

Xxxx cindy xx

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By *ENGUYMan
over a year ago

Hull

But one key element was the Diabetes UK website where there is a Forum page, on which there are countless others all going through every related issue possible.

On there, I got almost instant advice, suggestions and links to help me through.

I'm ring the doctor in the morning.

I'm also going to join the diabetes forum.

I just hope I remember which forum I have open for my comments, don't want to talk about strapons on a thread about insulin management

At least you still have a sense of humour!

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By (user no longer on site) OP
over a year ago

Jesus "

With all due respect, this has happened many times to me before.

I know exactly what the doctors and diabetes team will tell me, they have told me it before.

I've tried something new and got some great tips and help and advice here.

Would the doctor mention a diabetes forum? No

Would they ask about stress? No

Would they mention the weather? No

Would they mention a pump? No

This thread has given me more to work with in a couple of hours than 3 years of speaking to doctors and so called specialists

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By (user no longer on site) OP
over a year ago

Thank you all for your help

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By (user no longer on site)
over a year ago

Jesus

With all due respect, this has happened many times to me before.

I know exactly what the doctors and diabetes team will tell me, they have told me it before.

I've tried something new and got some great tips and help and advice here.

Would the doctor mention a diabetes forum? No

Would they ask about stress? No

Would they mention the weather? No

Would they mention a pump? No

This thread has given me more to work with in a couple of hours than 3 years of speaking to doctors and so called specialists

I don’t know what your doctors would ask you but why not ask them about all the issues mentioned?

Medicine is a two way communication process.

You have had an episode of black out this evening that needs to be investigated further. Your call

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By (user no longer on site)
over a year ago

No problem xx you know that we are always here if you want to talk about anything x

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By (user no longer on site) OP
over a year ago

You have had an episode of black out this evening that needs to be investigated further. Your call"

I had a black out because my blood levels went through the roof, something that's happened many times before.

Something I've mentioned many times before to my doctor.

I've heard it all from them before

"Adjust your night insulin, adjust your food insulin"

And thats it.

No explanation on what's happened, they don't know the answers.

Fellow diabetes sufferers are the best help for sharing best practice

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By *ENGUYMan
over a year ago

Hull

Jesus

With all due respect, this has happened many times to me before.

I know exactly what the doctors and diabetes team will tell me, they have told me it before.

I've tried something new and got some great tips and help and advice here.

Would the doctor mention a diabetes forum? No

Would they ask about stress? No

Would they mention the weather? No

Would they mention a pump? No

This thread has given me more to work with in a couple of hours than 3 years of speaking to doctors and so called specialists

I don’t know what your doctors would ask you but why not ask them about all the issues mentioned?

Medicine is a two way communication process.

You have had an episode of black out this evening that needs to be investigated further. Your call"

What the OP is saying that they can and have asked doctors a the right questions and they still don't get anywhere!

I've encountered it before myself both with Diabetes and a secondary issue, with eyesight.

I was born virtually blind in one eye which could not be rectified. But the number of times when in Eye hospitals to deal with the better seeing eye, I have to go through the "protocols" of being forced to "see" with a non functioning eye!!

It's the same with Diabetes. Doctors aren't always clued up on the ever changing condition and need to learn that the patient knows their own body and its key problems best!

Unfortunately some medical professionals don't factor in that essential component when diagnosing!

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By (user no longer on site) OP
over a year ago

What the OP is saying that they can and have asked doctors a the right questions and they still don't get anywhere!

This

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By (user no longer on site)
over a year ago

What the OP is saying that they can and have asked doctors a the right questions and they still don't get anywhere!

This

I am sorry but I think that you need to seek medical advice.

Good Luck

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By (user no longer on site) OP
over a year ago

What the OP is saying that they can and have asked doctors a the right questions and they still don't get anywhere!

This

I am sorry but I think that you need to seek medical advice.

Good Luck"

Ok, I'll comment back on here in the morning when I've spoken to doctor.

I'll explain everything that's happened like I did in my thread and I'll post what he replies.

Then maybes you'll understand they are useless when it comes to this stuff

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By *inky_couple2020Couple
over a year ago

North West

What the OP is saying that they can and have asked doctors a the right questions and they still don't get anywhere!

This

I am sorry but I think that you need to seek medical advice.

Good Luck"

If the OPs doctor hasn't helped, and her regular medical check ups cancelled due to Covid, what kind of medical help should she pursue? I fully agree with seeking help, but if that is not forthcoming, what then? This whole pandemic period has seen even urgent healthcare needs pushed away. My husband is now going for a biopsy on a suspicious lump on his neck that he's had since July. It was dismissed by telephone appointment twice by a GP and it's only due to tenacity and bloody mindedness that he eventually saw one in person. In NOVEMBER. Long story short, the ENT consultant who saw him on Tuesday cannot rule out lymphoma. Cancer. This might have been festering for four months but not properly addressed because of crappy phone appointments. He had to wait longer for the ENT appt than he should too, again due to Covid. But the consultant was clearly very concerned and has instigated all sorts of tests immediately.

Healthcare right now is in a mess and people cannot get answers in the way they should.

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By (user no longer on site) OP
over a year ago

Healthcare right now is in a mess and people cannot get answers in the way they should."

Sending

My thoughts are with you

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By (user no longer on site)
over a year ago

What the OP is saying that they can and have asked doctors a the right questions and they still don't get anywhere!

This

I am sorry but I think that you need to seek medical advice.

Good Luck

Healthcare right now is in a mess and people cannot get answers in the way they should."

The OP had a period of blackout which is classed as a medical emergency but the OP seems reluctant to attend the AE of the local hospital for treatment. I need no lectures on the current state of clinical care in the NHS but clinical guidelines would suggest a period of black needs medical assistance as it may not be related to a known condition.

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By (user no longer on site) OP
over a year ago

as it may not be related to a known condition. "

My blood test results prove otherwise combined with the fact it happened just after I'd eaten

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By *inky_couple2020Couple
over a year ago

North West

I agree re: the blackout however if the OP wishes to garner experiences from others with the same medical condition, she can. She was advised to seek medical help in the first messages above. It's her perogative as an adult to make that decision and also her choice about the extent to which she takes advice here. She has also recognised issues in her treatment which she can address, through the conversation.

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By (user no longer on site)
over a year ago

"I agree re: the blackout however if the OP wishes to garner experiences from others with the same medical condition, she can. She was advised to seek medical help in the first messages above. It's her perogative as an adult to make that decision and also her choice about the extent to which she takes advice here. She has also recognised issues in her treatment which she can address, through the conversation."

The OP is free to garnish as many opinions as desired and I gave such an opinion. So what is your point?

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By (user no longer on site)
over a year ago

as it may not be related to a known condition.

My blood test results prove otherwise combined with the fact it happened just after I'd eaten

With the greatest of respect a blackout lasting 3 hours needs to have a medical practitioner look see. Just to be safe.

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By (user no longer on site) OP
over a year ago

Let's just leave it at that for now.

I don't want to be the cause of an argument.

I've got some great help here and I'm truly thankful and I'll give the quacks a ring in the morning.

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By (user no longer on site)
over a year ago

Have you tried a keto diet

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By (user no longer on site) OP
over a year ago

"Have you tried a keto diet"

Carbs are fine, as long as I take the required insulin, but periodically for some mysterious reason the insulin says "nope, I'm not gonna work for this meal for ya"

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By (user no longer on site)
over a year ago

"Let's just leave it at that for now.

I don't want to be the cause of an argument.

I've got some great help here and I'm truly thankful and I'll give the quacks a ring in the morning.

That is the best course of action and I really hope you feel better and all is well.

Good luck

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By (user no longer on site) OP
over a year ago

"Let's just leave it at that for now.

I don't want to be the cause of an argument.

I've got some great help here and I'm truly thankful and I'll give the quacks a ring in the morning.

That is the best course of action and I really hope you feel better and all is well.

Good luck"

Thank you x

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By (user no longer on site)
over a year ago

"Have you tried a keto diet"

ketoacidosis is a very dangerous place for a diabetic to be

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By (user no longer on site)
over a year ago

"Have you tried a keto diet

Carbs are fine, as long as I take the required insulin, but periodically for some mysterious reason the insulin says "nope, I'm not gonna work for this meal for ya""

my hubs is type one and and after about 10 years on one type of insulin his body just stated to reject it making him ill they changed his insulin and like magic it worked again you body maybe rejecting your insulin..

never give in hubs has been type one for 20yrs and some of the so called specialist have been truly awful if it was not for diabetes uk web site forums and talking to other type ones he would never got any real help i can honestly say that site has saved him so much hospital time because he goes to him drs or specialist fully armed and he no longer gets fobbed off....

you need to sort it and as an emergency if to past out for 3 hours thats not a good place to be as a type one ..

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By (user no longer on site)
over a year ago

"Bloods are 15.8 so insulin correction dose is working

Great xx

Is it????

It’s double what it should be and running at levels like that only does damage.

Yes it's great, because they were 26 two hours ago so they are dropping = great

No op it’s really not great as you are out of control and you need to be in control and to be honest I get the impression that you are

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By (user no longer on site)
over a year ago

Sorry op I was going to comment more but thought better of it but then did a toilet accident post.!!!!!!

I’ve been there and I’m embarrassed by my own stupidity over a 23 year period and are so grateful to the hospital staff and doctors here that set me straight a few months ago.

Best of luck.

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By (user no longer on site) OP
over a year ago

By way of an update and to thank you all for your great advice and help, my bloods were 7.8 this morning so back to normal.

The doctor has just rang me back and I explained everything that's been happening.

He said to reduce my 24 insulin to stop waking up hypoglycemic, and to increase my food insulin a couple of units (no shit Sherlock)

I told him my insulin levels have been roughly the same for a few months, why this happening now? No explanation.

Why does this happen somedays and not everyday? No explanation.

He didn't ask about stress, if any changes to my diet, hell he didn't even mention about changing injection sites!(should have been the very first thing to ask)

He said report back in a few days if no better, goto A&E if gets worse and he's made a referral to the diabetes team at the hospital, but obviously given circumstances it could take a while.

I've rang the diabetes team at the hospital for their advice.

They are all working on the Covid wards to help out so I told the receptionist not to worry about it (what they are doing is more important than my little issue)

I thank everyone for your amazing help and love you showed last night and I'll check out the main diabetes forum to see if there are others with such issues.

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By *asmeenTV/TS
over a year ago

STOKE ON TRENT

"By way of an update and to thank you all for your great advice and help, my bloods were 7.8 this morning so back to normal.