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This is going to be a random question but....

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By *az080378 OP   Woman
over a year ago

Cromer

Has anyone here been diagnosed with or have any experience with Marfan's syndrome?

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By (user no longer on site)
over a year ago

No, what is it?

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By *az080378 OP   Woman
over a year ago

Cromer


"No, what is it?"

It's a syndrome that can affect heart, skeleton,eyes,lungs.

I had never heard of it before Friday and now I'm desperately trying to find out information!

Just wondered if any fab members had it!!

Was worth a try

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By (user no longer on site)
over a year ago


"No, what is it?

It's a syndrome that can affect heart, skeleton,eyes,lungs.

I had never heard of it before Friday and now I'm desperately trying to find out information!

Just wondered if any fab members had it!!

Was worth a try "

I see and yes that is serious too. I hope you find the information you need

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By *eandluCouple
over a year ago

Thames Ditton

Check out the marfan association. There is a UK one. Lots of info online.

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By *az080378 OP   Woman
over a year ago

Cromer


"Check out the marfan association. There is a UK one. Lots of info online. "

Thank you,I've had a look at the information and it's all bloody scary!

Was hoping to find someone who actually has it!!

Thank you for the advice though

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By (user no longer on site)
over a year ago

Just bumping for you.

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By *az080378 OP   Woman
over a year ago

Cromer


"Just bumping for you. "

Thank you,its a pretty rare condition but you never know!xx

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