FabSwingers.com forum: Chronic pain

By (user no longer on site) OP
over a year ago

I just need to vent...

I have PCOS, HS and possibly some other condition....tests and things have slowed to a stop thanks to the rona.

For the past 2 years I've been dealing with chronic pain, it used to be just a few days each month, but now it's at least 2/3 weeks of constant agony each month.

I use what I can to help, heat packs, hot baths, naproxen, cbd...but honestly it's really getting to me now.

I know I'm not alone in my dealing with chronic pain and fatigue, how do you guys cope?

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By *ersnickety PantsWoman
over a year ago

Club Meets Only

No advice on how to deal with the pain but sending hugs

I can only imagine how awful it is for you

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By (user no longer on site) OP
over a year ago

"No advice on how to deal with the pain but sending hugs

I can only imagine how awful it is for you "

Thank you

I usually just crack on...but I'm feeling sorry for myself today!

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By *wisted999Man
over a year ago

North Bucks

Gabapentin and rest.

It only takes the edge of it and makes me so irritable. I had Botox injected directly into the affected area which worked for a while but I can’t have it long term

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By (user no longer on site)
over a year ago

My mum gets chronic pain and sciatica. She has recently tried CBD and it can work. Can be a bit hit and miss so you need to research it a bit and find one right for you.

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By (user no longer on site) OP
over a year ago

"My mum gets chronic pain and sciatica. She has recently tried CBD and it can work. Can be a bit hit and miss so you need to research it a bit and find one right for you. "

I've been using it for years...since before it was so popular...it certainly helps!

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By *ersnickety PantsWoman
over a year ago

Club Meets Only

"No advice on how to deal with the pain but sending hugs

I can only imagine how awful it is for you

Thank you

I usually just crack on...but I'm feeling sorry for myself today! "

Nothing wrong with that, I'm sure anyone else in your situation would totally relate, in fact pretty sure everyone has days where they feel sorry for themselves without constant pain

hope you get some helpful suggestions on how to ease it

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By (user no longer on site)
over a year ago

Whilst I wouldn’t describe the pains I have as chronic they do at times get quite unbearable. I’ve recently bought what is called an acupuncture pen buts it uses pulses rather than needles. A bit like a small tens machine. It wasn’t expensive on eBay and has helped quite a lot. Good luck x

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By (user no longer on site) OP
over a year ago

"Whilst I wouldn’t describe the pains I have as chronic they do at times get quite unbearable. I’ve recently bought what is called an acupuncture pen buts it uses pulses rather than needles. A bit like a small tens machine. It wasn’t expensive on eBay and has helped quite a lot. Good luck x"

Oh I'll look into that! Thank you

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By (user no longer on site)
over a year ago

Funny enough, exercise helps with pain.

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By (user no longer on site)
over a year ago

"My mum gets chronic pain and sciatica. She has recently tried CBD and it can work. Can be a bit hit and miss so you need to research it a bit and find one right for you.

I've been using it for years...since before it was so popular...it certainly helps!"

Missed that in your original post

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By (user no longer on site)
over a year ago

Oh I'll look into that! Thank you

I got the Meridian one and have just checked it was only £16 x

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By (user no longer on site) OP
over a year ago

"Funny enough, exercise helps with pain. "

yeah...despite being a fat fuck, I do actually work out on a regular basis, cardio, yoga, weight training, I also swim.

Exercise doesn't remove the medical conditions I have and on a day where I can literally barely make it out of bed, I'm physically not able to do much in the way of exercise.

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By (user no longer on site) OP
over a year ago

Oh I'll look into that! Thank you

I got the Meridian one and have just checked it was only £16 x"

Thank you!

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By (user no longer on site)
over a year ago

I dose up on co-codamol. I was on that, tramadol, amitriptyline and diazepam up until i was pregnant, found out I was pregnant and cut them all out, cold turkey.

For about a year now (baba is ten months old) ive been back on co-codamol, after 10 or so doctors, midwives, nurses etc begged me too.

I take co-codamol everyday, I breastfeed so i was so reluctant to do it, but thankfully it doesn’t affect him at all.

And I’m still in agony. I’ve finally been referred for an MRI, but god knows when that’ll happen

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By (user no longer on site) OP
over a year ago

"I dose up on co-codamol. I was on that, tramadol, amitriptyline and diazepam up until i was pregnant, found out I was pregnant and cut them all out, cold turkey.

For about a year now (baba is ten months old) ive been back on co-codamol, after 10 or so doctors, midwives, nurses etc begged me too.

I take co-codamol everyday, I breastfeed so i was so reluctant to do it, but thankfully it doesn’t affect him at all.

And I’m still in agony. I’ve finally been referred for an MRI, but god knows when that’ll happen "

Co-codamol makes me nauseous, I take naproxen on bad pain days but it only takes the edge off.

I would say I usually deal quite well with the pain. It's the mental toll it takes after a while.

I've just had a couple of months where my pain wasn't quite so bad, manageable at least, and then Monday morning I woke up in agony and have only gotten worse, I just feel mentally drained!

Fingers crossed you get some answers lovely!

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By (user no longer on site)
over a year ago

"I just need to vent...

I have PCOS, HS and possibly some other condition....tests and things have slowed to a stop thanks to the rona.

For the past 2 years I've been dealing with chronic pain, it used to be just a few days each month, but now it's at least 2/3 weeks of constant agony each month.

I use what I can to help, heat packs, hot baths, naproxen, cbd...but honestly it's really getting to me now.

I know I'm not alone in my dealing with chronic pain and fatigue, how do you guys cope? "

I feel your pain, I also have pcos and HS, and other things. Like you I'm sick of daily pain, it gets you down sometimes doesn't it? I just try to relax as much as I can when I'm not working, listen to music that makes me happy, sit and watch and listen to the rain by a window. When I'm having a flare I use salt in my bath. Hot water.

I've been on lymecycline for over 4 months now and the HS is under control. Have you tried that? I don't know how long it'll last when I come off it though.

If you need to chat please message, or give me a wink.

Hugs x

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By (user no longer on site) OP
over a year ago

"I just need to vent...

I have PCOS, HS and possibly some other condition....tests and things have slowed to a stop thanks to the rona.

For the past 2 years I've been dealing with chronic pain, it used to be just a few days each month, but now it's at least 2/3 weeks of constant agony each month.

I use what I can to help, heat packs, hot baths, naproxen, cbd...but honestly it's really getting to me now.

I know I'm not alone in my dealing with chronic pain and fatigue, how do you guys cope?

I've been on lymecycline for over 4 months now and the HS is under control. Have you tried that? I don't know how long it'll last when I come off it though.

If you need to chat please message, or give me a wink.

Hugs x"

Thank you so much! Honestly, just to hear someone who knows exactly what I mean helps!

I'm also a huge bath haver! And cbd bath bombs are such a help!

I've not tried that! I was told there wasn't much they could do about my HS and told me to cut out dairy.

I'm in the process of changing my doctors so I'm hoping the next will be more knowledgeable/helpful!

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By (user no longer on site)
over a year ago

"I just need to vent...

I have PCOS, HS and possibly some other condition....tests and things have slowed to a stop thanks to the rona.

For the past 2 years I've been dealing with chronic pain, it used to be just a few days each month, but now it's at least 2/3 weeks of constant agony each month.

I use what I can to help, heat packs, hot baths, naproxen, cbd...but honestly it's really getting to me now.

I know I'm not alone in my dealing with chronic pain and fatigue, how do you guys cope?

I've been on lymecycline for over 4 months now and the HS is under control. Have you tried that? I don't know how long it'll last when I come off it though.

If you need to chat please message, or give me a wink.

Hugs x

Thank you so much! Honestly, just to hear someone who knows exactly what I mean helps!

I'm also a huge bath haver! And cbd bath bombs are such a help!

I've not tried that! I was told there wasn't much they could do about my HS and told me to cut out dairy.

I'm in the process of changing my doctors so I'm hoping the next will be more knowledgeable/helpful!

You need to be referred to a skin specialist. When I finally got to see one I was stage 3. I was put on 2 types of antibiotic for 6 months which took me to stage 1 again. Over 2 to 3 years crept back to stage 2 and got the lymecycline this time which is working.

Your doctor should be able to give that to you.

Giving up Smoking, losing weight defo helps, I can testify to that, both for HS and pcos. Exercise is difficult as it makes it worse.

A lot of doctors know nothing about HS, I was lucky the first time I saw gp she knew exactly what it was and was in hospital weeks later having an op. It is lifelong but can be managed.

Re the pcos, I don't know what your levels are, but please try and reduce your t level or you'll end up losing your hair, I now shave bald head because of it, and if there's one thing I can pass on, it's to lose weight to prevent permanent hair loss, it's truly devastating along with everything else we have to deal with. I know doctors say lose weight for every complaint under the sun and it sounds like a cop out, but in this instance I believe if I had then i wouldn't now be bald.

Best wishes x

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By (user no longer on site) OP
over a year ago

Reviving this to have a whinge...

So after speaking with the doctor, they are pretty convinced now that I have endometriosis. Which doesn't surprise me, a friend who has it has been telling me I do for months now...it will take ages to get a diagnosis unfortunately and the pain is not going anywhere!

I've had 3 days pain free in almost 3 weeks, and I'm fucking exhausted

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By (user no longer on site)
over a year ago

"Reviving this to have a whinge...

I've had 3 days pain free in almost 3 weeks, and I'm fucking exhausted

I love you

And god, I feel your pain. I’m on my period, and I can’t function. I’m in agony. I also have endometriosis, and fuck. It’s horrible. It got worse after I gave birth - baba pushed down my ovaries and they’re not hitting a nerve. I still get the same pains (severe leg pain to the point where I can’t walk when it’s at it’s worse, cramps, sore back, I get the shakes, I throw up, feel faint and weak) but it’s intensified since giving birth.

Big hugs

xxxx

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By (user no longer on site) OP
over a year ago

"Reviving this to have a whinge...

I've had 3 days pain free in almost 3 weeks, and I'm fucking exhausted

I love you

Big hugs

xxxx"

Thank you Queenie

Aunt flow arrived here yesterday too, what a cunt she is! I've not moved from my bed except to waddle across the hall to the bathroom.

I hope you get some relief soon!

Love you right back!

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By *naswingdressWoman
over a year ago

Manchester (she/her)

I'm so sorry.

I'm not for a moment denying your medical condition. I say that because... sometimes this suggestion reads dismissive and it's not intended as such. I've dealt with chronic pain myself (although mine has resolved).

I've found meditation has helped me cope with my pain. Not get rid of it, but make it more bearable to live with. In conjunction with appropriate medical care, and I definitely know that's being disrupted right now.

It's free and DIY, worth a go. I have resources I can send you in the direction of if you'd like them.

I hope you cope and you have as much as possible to help alleviate your pain. All my empathy.

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By (user no longer on site)
over a year ago

"Reviving this to have a whinge...

I've had 3 days pain free in almost 3 weeks, and I'm fucking exhausted

I love you

Big hugs

xxxx

Thank you Queenie

Aunt flow arrived here yesterday too, what a cunt she is! I've not moved from my bed except to waddle across the hall to the bathroom.

I hope you get some relief soon!

Love you right back!

Get yourself some bloody food!!!!!!

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By *rumpyMcFuckNuggetMan
over a year ago

Den of Iniquity

I'm sad you two are on pain .

you both x

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By (user no longer on site) OP
over a year ago

"I'm so sorry.

It's free and DIY, worth a go. I have resources I can send you in the direction of if you'd like them.

I hope you cope and you have as much as possible to help alleviate your pain. All my empathy."

Thank you

I have tried various medications, and I do use some home remedies that help a little on occasion. Today is a particularly bad day

My doctor is referring me to a gynae which I'm told is gonna be the best way for me to get the treatment I need and importantly a diagnosis, but I'm gonna be in limbo for a while thanks to covid.

I've asked to go back onto my old pill, as my symptoms started getting bad when I came off 2 years ago and as a POP it could well help a lot!

I'm just exhausted from being so ouchy

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By (user no longer on site) OP
over a year ago

"I'm sad you two are on pain .

you both x"

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By (user no longer on site)
over a year ago

"I just need to vent...

I have PCOS, HS and possibly some other condition....tests and things have slowed to a stop thanks to the rona.

For the past 2 years I've been dealing with chronic pain, it used to be just a few days each month, but now it's at least 2/3 weeks of constant agony each month.

I use what I can to help, heat packs, hot baths, naproxen, cbd...but honestly it's really getting to me now.

I know I'm not alone in my dealing with chronic pain and fatigue, how do you guys cope? "

Too many people are not getting the attention they need because of COVID. With me it’s depression coupled with other health issues, was making some progress before lockdown started now I hardly go out hardly leave my bedroom. Oh I don’t call yourself fat, you look pretty good to me xx

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By *essica FlabbitWoman
over a year ago

west midlands/shropshire

"I just need to vent...

I have PCOS, HS and possibly some other condition....tests and things have slowed to a stop thanks to the rona.

For the past 2 years I've been dealing with chronic pain, it used to be just a few days each month, but now it's at least 2/3 weeks of constant agony each month.

I use what I can to help, heat packs, hot baths, naproxen, cbd...but honestly it's really getting to me now.

I know I'm not alone in my dealing with chronic pain and fatigue, how do you guys cope? "

I've arthritis and nerve damage so I feel your pain. Fentanyl is the only thing that helps. I've tried everything x

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By (user no longer on site) OP
over a year ago

"I just need to vent...

I have PCOS, HS and possibly some other condition....tests and things have slowed to a stop thanks to the rona.

For the past 2 years I've been dealing with chronic pain, it used to be just a few days each month, but now it's at least 2/3 weeks of constant agony each month.

I use what I can to help, heat packs, hot baths, naproxen, cbd...but honestly it's really getting to me now.

I know I'm not alone in my dealing with chronic pain and fatigue, how do you guys cope?

It's a real problem, tho unfortunately women's health, like mental health (suffer myself) are often pushed to the bottom of the pile anyway. I hope you're able to get the help you need soon!

And I refer to myself as fat, because I am very fat...doesn't make me less attractive. It's quite possible to be fat AND look good

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By (user no longer on site) OP
over a year ago

"I just need to vent...

I have PCOS, HS and possibly some other condition....tests and things have slowed to a stop thanks to the rona.

For the past 2 years I've been dealing with chronic pain, it used to be just a few days each month, but now it's at least 2/3 weeks of constant agony each month.

I use what I can to help, heat packs, hot baths, naproxen, cbd...but honestly it's really getting to me now.

I know I'm not alone in my dealing with chronic pain and fatigue, how do you guys cope?

I've arthritis and nerve damage so I feel your pain. Fentanyl is the only thing that helps. I've tried everything x"

Not the first time fentanyl has been mentioned to me! It's horrid isn't it!

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By (user no longer on site)
over a year ago

"I just need to vent...

I have PCOS, HS and possibly some other condition....tests and things have slowed to a stop thanks to the rona.

For the past 2 years I've been dealing with chronic pain, it used to be just a few days each month, but now it's at least 2/3 weeks of constant agony each month.

I use what I can to help, heat packs, hot baths, naproxen, cbd...but honestly it's really getting to me now.

I know I'm not alone in my dealing with chronic pain and fatigue, how do you guys cope?

It's a real problem, tho unfortunately women's health, like mental health (suffer myself) are often pushed to the bottom of the pile anyway. I hope you're able to get the help you need soon!

And I refer to myself as fat, because I am very fat...doesn't make me less attractive. It's quite possible to be fat AND look good

That’s the best thing I’ve been told for I long time. I’m fat as you may have guessed, take care xxx

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By (user no longer on site)
over a year ago

Fentanyl is a killer !

Sativex -really good but not available on nhs to most

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By (user no longer on site)
over a year ago

"I dose up on co-codamol. I was on that, tramadol, amitriptyline and diazepam up until i was pregnant, found out I was pregnant and cut them all out, cold turkey.

For about a year now (baba is ten months old) ive been back on co-codamol, after 10 or so doctors, midwives, nurses etc begged me too.

I take co-codamol everyday, I breastfeed so i was so reluctant to do it, but thankfully it doesn’t affect him at all.

And I’m still in agony. I’ve finally been referred for an MRI, but god knows when that’ll happen

Co-codamol makes me nauseous, I take naproxen on bad pain days but it only takes the edge off.

I would say I usually deal quite well with the pain. It's the mental toll it takes after a while.

I've just had a couple of months where my pain wasn't quite so bad, manageable at least, and then Monday morning I woke up in agony and have only gotten worse, I just feel mentally drained!

Fingers crossed you get some answers lovely!

Who are you under for pain?

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By (user no longer on site)
over a year ago

Sorry to hear you are really suffering and hope you get some help very soon for your pain

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By (user no longer on site) OP
over a year ago

"Fentanyl is a killer !

Sativex -really good but not available on nhs to most "

Naproxen is what I've been using for about 2 years, but my pain levels have increased A LOT over the past few months and the naproxen just isn't much help on really bad pain days.

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By (user no longer on site) OP
over a year ago

"I dose up on co-codamol. I was on that, tramadol, amitriptyline and diazepam up until i was pregnant, found out I was pregnant and cut them all out, cold turkey.

For about a year now (baba is ten months old) ive been back on co-codamol, after 10 or so doctors, midwives, nurses etc begged me too.

I take co-codamol everyday, I breastfeed so i was so reluctant to do it, but thankfully it doesn’t affect him at all.

And I’m still in agony. I’ve finally been referred for an MRI, but god knows when that’ll happen

Co-codamol makes me nauseous, I take naproxen on bad pain days but it only takes the edge off.

I would say I usually deal quite well with the pain. It's the mental toll it takes after a while.

I've just had a couple of months where my pain wasn't quite so bad, manageable at least, and then Monday morning I woke up in agony and have only gotten worse, I just feel mentally drained!

Fingers crossed you get some answers lovely!

Who are you under for pain? "

I've not been offered anything. I buy my own naproxen when I'm in Turkey.

Getting this referral has taken me almost a year, and my last diagnosis took years of keeping on at the doctors.

It's been a NIGHTMARE! I've changed GP 4 times in the past 5 years or so.

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By (user no longer on site) OP
over a year ago

"Sorry to hear you are really suffering and hope you get some help very soon for your pain

Thank you so much

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By *naswingdressWoman
over a year ago

Manchester (she/her)

"I'm so sorry.

It's free and DIY, worth a go. I have resources I can send you in the direction of if you'd like them.

I hope you cope and you have as much as possible to help alleviate your pain. All my empathy.

Thank you

I have tried various medications, and I do use some home remedies that help a little on occasion. Today is a particularly bad day

My doctor is referring me to a gynae which I'm told is gonna be the best way for me to get the treatment I need and importantly a diagnosis, but I'm gonna be in limbo for a while thanks to covid.

I've asked to go back onto my old pill, as my symptoms started getting bad when I came off 2 years ago and as a POP it could well help a lot!

I'm just exhausted from being so ouchy

Oh meditation. Like mindfulness.

In addition to not instead of other treatments. Worth a try.

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By (user no longer on site) OP
over a year ago

"I'm so sorry.

It's free and DIY, worth a go. I have resources I can send you in the direction of if you'd like them.

I hope you cope and you have as much as possible to help alleviate your pain. All my empathy.

Thank you

I have tried various medications, and I do use some home remedies that help a little on occasion. Today is a particularly bad day

My doctor is referring me to a gynae which I'm told is gonna be the best way for me to get the treatment I need and importantly a diagnosis, but I'm gonna be in limbo for a while thanks to covid.

I've asked to go back onto my old pill, as my symptoms started getting bad when I came off 2 years ago and as a POP it could well help a lot!

I'm just exhausted from being so ouchy

Oh meditation. Like mindfulness.

In addition to not instead of other treatments. Worth a try."

obviously totally misread!

I've been a huge advocate for meditation for years! I meditate every day. It helps me cope for sure!

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By (user no longer on site)
over a year ago

"Fentanyl is a killer !

Sativex -really good but not available on nhs to most

Naproxen is what I've been using for about 2 years, but my pain levels have increased A LOT over the past few months and the naproxen just isn't much help on really bad pain days."

Unfortunately most nhs pain killers are opiate based and mainly addictive

I’ve tried them all nerve damage I have

Annoying but there’s other drugs that have proved effective but due to costs they are pulled and there’s a new study into a drug on low dose originally used to treat alcohol addiction but they won’t prescribe costs less than a quid a day

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By *naswingdressWoman
over a year ago

Manchester (she/her)

No worries. And I'm glad!

I don't want to be an aggravating evangelist, but... gee it can help. So gentle prod in that direction.

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By (user no longer on site) OP
over a year ago

"No worries. And I'm glad!

I don't want to be an aggravating evangelist, but... gee it can help. So gentle prod in that direction."

Totally! It's the only thing that gets me through some days!

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By (user no longer on site)
over a year ago

I’d have a look at sativex if it’s available in Turkey and the cost it’s really expensive in the uk it’s a canaboid thc mouthspray

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By (user no longer on site)
over a year ago

"I dose up on co-codamol. I was on that, tramadol, amitriptyline and diazepam up until i was pregnant, found out I was pregnant and cut them all out, cold turkey.

For about a year now (baba is ten months old) ive been back on co-codamol, after 10 or so doctors, midwives, nurses etc begged me too.

I take co-codamol everyday, I breastfeed so i was so reluctant to do it, but thankfully it doesn’t affect him at all.

And I’m still in agony. I’ve finally been referred for an MRI, but god knows when that’ll happen

Co-codamol makes me nauseous, I take naproxen on bad pain days but it only takes the edge off.

I would say I usually deal quite well with the pain. It's the mental toll it takes after a while.

I've just had a couple of months where my pain wasn't quite so bad, manageable at least, and then Monday morning I woke up in agony and have only gotten worse, I just feel mentally drained!

Fingers crossed you get some answers lovely!

Who are you under for pain?

I've not been offered anything. I buy my own naproxen when I'm in Turkey.

Getting this referral has taken me almost a year, and my last diagnosis took years of keeping on at the doctors.

It's been a NIGHTMARE! I've changed GP 4 times in the past 5 years or so."

GPS do appear to be lax lately when it comes to referring to specialists - I'm convinced it's all to do with funding/profits.

Glad you've now been referred. Hopefully you'll be on the most appropriate meds that'll give you relief.

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By (user no longer on site) OP
over a year ago

"I’d have a look at sativex if it’s available in Turkey and the cost it’s really expensive in the uk it’s a canaboid thc mouthspray "

I'll look into it! We're in the UK now til December but I can't imagine I'll be much different by then!

Thank you

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By (user no longer on site) OP
over a year ago

"I dose up on co-codamol. I was on that, tramadol, amitriptyline and diazepam up until i was pregnant, found out I was pregnant and cut them all out, cold turkey.

For about a year now (baba is ten months old) ive been back on co-codamol, after 10 or so doctors, midwives, nurses etc begged me too.

I take co-codamol everyday, I breastfeed so i was so reluctant to do it, but thankfully it doesn’t affect him at all.

And I’m still in agony. I’ve finally been referred for an MRI, but god knows when that’ll happen

Co-codamol makes me nauseous, I take naproxen on bad pain days but it only takes the edge off.

I would say I usually deal quite well with the pain. It's the mental toll it takes after a while.

I've just had a couple of months where my pain wasn't quite so bad, manageable at least, and then Monday morning I woke up in agony and have only gotten worse, I just feel mentally drained!

Fingers crossed you get some answers lovely!

Who are you under for pain?

I've not been offered anything. I buy my own naproxen when I'm in Turkey.

Getting this referral has taken me almost a year, and my last diagnosis took years of keeping on at the doctors.

It's been a NIGHTMARE! I've changed GP 4 times in the past 5 years or so.

GPS do appear to be lax lately when it comes to referring to specialists - I'm convinced it's all to do with funding/profits.

Glad you've now been referred. Hopefully you'll be on the most appropriate meds that'll give you relief. "

Thank you!

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By *rHotNottsMan
over a year ago

Dubai & Nottingham

I can sympathise I suffered for about 7 years with disc problem and left with slight nerve damage.

Gabapentin, Progaba, Naproxen, Amiltryptlyne, tramadol, diazepam tried them all, nerve root blockers and pain clinic, the clinic helped a little.The best consultant in the UK could only offer indefinite meds or laser surgery.

What worked for me in the end was ice, stretching , walking, then running, which lead to weight loss and took pressure of root nerve. It’s still there but i stretch it out and do qigong each morning and it’s fine , I can run a marathon on it now

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By *naswingdressWoman
over a year ago

Manchester (she/her)

"No worries. And I'm glad!

I don't want to be an aggravating evangelist, but... gee it can help. So gentle prod in that direction.

Totally! It's the only thing that gets me through some days! "

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By (user no longer on site)
over a year ago

"Fentanyl is a killer !

Sativex -really good but not available on nhs to most

Naproxen is what I've been using for about 2 years, but my pain levels have increased A LOT over the past few months and the naproxen just isn't much help on really bad pain days.

Unfortunately most nhs pain killers are opiate based and mainly addictive

I’ve tried them all nerve damage I have

If you're treated for neuropathic pain, you'll know opiates don't always help (and should only be prescribed by a specialist). The majority of neuropathy analgesia are GABA related - gabapentin and pregabalin (anti-convulsives) or the tricyclic antidepressants like amytriptiline.

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By (user no longer on site)
over a year ago

I take it it’s neuropathic pain which is a fucker to treat

Careful on the naproxen as it can go at the stomach lining as well and cause an acid reflux problem

I find the more I move about the less pain I’m in ,I’d push for a specialist I had a five year fight to get at the neurologist I needed but then his hands are tied by the nhs finding certain meds

For fatigue I was given something for the last 8 years which the govt nicely pulled without warning and my sleep pattern is now fucked! As a higher rate tax payer I thought that was a piss take in itself

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By (user no longer on site) OP
over a year ago

"I can sympathise I suffered for about 7 years with disc problem and left with slight nerve damage.

Glad you've found something that helps!

I've tried everything I can without a prescription. A few things take the edge off and help sometimes but nothing as yet that offers any real relief.

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By (user no longer on site)
over a year ago

Unfortunately it seems very old fashioned in the uk with the treatment of neurological conditions they do not embrace new medicine and tend to try and pump you full of cheap alternatives

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By (user no longer on site)
over a year ago

What does help is movement tho ,I ain’t gonna lie it hurts but it’s worth it ,madam been really good she had already done massage courses and was trained but went off to do some more and that really helps too ,I opted out of spinal block surgery as it may well shove me in a wheelchair full time and at the moment it’s a risk I’m not prepared to take

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By *rHotNottsMan
over a year ago

Dubai & Nottingham

Seriously don’t bother with NHS in the UK for chronic pain , take a loan if needed and go private or alternative therapy, you will get much better advise and solve it. No one in 7 years of NHS ever told me I could solve severe sciatic pain by focusing on reducing inflammation naturally and live with, even climb mountains and run marathons - as long as it doesn’t touch the root nerve

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By *otsossieMan
over a year ago

Chesterfield

You have my sympathy.

I’ve had the golden healing light meditation suggested (stop sniggering at the back) but haven’t found a solution yet.

Painkillers don’t seem to help. Tried Gabapentine and similar but that just messed my head up, still in pain.

CBD just made me poor! I’d quite like to try THC, but problems sourcing some

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By *otsossieMan
over a year ago

Chesterfield

"focusing on reducing inflammation naturally "

How did you achieve this? I’ve a fun mix of old injury and stress making each other worse.

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By (user no longer on site)
over a year ago

Sourcing thc sativex is a nightmare

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By *rHotNottsMan
over a year ago

Dubai & Nottingham

"What does help is movement tho ,I ain’t gonna lie it hurts but it’s worth it ,madam been really good she had already done massage courses and was trained but went off to do some more and that really helps too ,I opted out of spinal block surgery as it may well shove me in a wheelchair full time and at the moment it’s a risk I’m not prepared to take "

Exactly I refused for the sane reason and so glad I did as it wasn’t needed. Spinal blocks never helped me either. They wouldn’t give me morpheme patches but I got them off the internet - didn't work either, Pharma is not the solution

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By (user no longer on site)
over a year ago

"Seriously don’t bother with NHS in the UK for chronic pain , take a loan if needed and go private or alternative therapy, you will get much better advise and solve it. No one in 7 years of NHS ever told me I could solve severe sciatic pain by focusing on reducing inflammation naturally and live with, even climb mountains and run marathons - as long as it doesn’t touch the root nerve "

This -after trying for years and popping everything available the only help was massage an osteopath and moving my arse,it still hurts I’m just not rattling with tablets now tho

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By (user no longer on site) OP
over a year ago

Unfortunately an alternative just isn't an option for me. I can't afford to go private with or without a loan.

I plan to live in Turkey permanently in a couple of years, and I know I will get better treatment there, I just want my diagnosis before I go.

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By *rHotNottsMan
over a year ago

Dubai & Nottingham

Spinal blocks - I mean the epidural injections, guided in by x-ray , they didn't work, the spinal surgery was the next thing they wanted to try

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By (user no longer on site)
over a year ago

CBS oil can help.

Hope you feel better.

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By (user no longer on site)
over a year ago

I’ve been on drug trials the lot ,mine is progressive ,I think a lot is positive mental attitude,if you lay down it’s gonna get you end of ,most of the pharmacy shyte they dish out causes other side effects and problems so you end up as a narcotic roundabout crash dummy ,neuropathy is complex and pain terminated in the brain. I tend to fight it now with as little as possible and try not to drink too much as well ,you may find chanting diet helps too a lot of processed food can make it worse and certain foods with higher than normal levels of certain vitamins can also make it worse ,I can’t eat certain shellfish now because of it

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By *rHotNottsMan
over a year ago

Dubai & Nottingham

Unfortunately an alternative just isn't an option for me. I can't afford to go private with or without a loan.

I plan to live in Turkey permanently in a couple of years, and I know I will get better treatment there, I just want my diagnosis before I go.

What’s the actual cause of the pain ?

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By (user no longer on site)
over a year ago

My friend had his spine fused and now he’s in a wheelchair and that was on the cards for me

It will happen one day just not yet !

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By (user no longer on site) OP
over a year ago

"I’ve been on drug trials the lot ,mine is progressive ,I think a lot is positive mental attitude,if you lay down it’s gonna get you end of ,most of the pharmacy shyte they dish out causes other side effects and problems so you end up as a narcotic roundabout crash dummy ,neuropathy is complex and pain terminated in the brain. I tend to fight it now with as little as possible and try not to drink too much as well ,you may find chanting diet helps too a lot of processed food can make it worse and certain foods with higher than normal levels of certain vitamins can also make it worse ,I can’t eat certain shellfish now because of it "

I'm very mindful of my mental health as I suffer with that anyway, and on the whole, I'm good with regards to that.

I don't really do processed foods at all, and despite being a fatty have a pretty healthy diet mostly. Tho I'm not eating much atm just due to not being able to physically make/go get anything due to the pain.

When I'm able to, I eat well and work out regularly.

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By (user no longer on site)
over a year ago

Neuropathic pain is underdiagnosed in the UK. If you want to find out whether the pain is neuropathic then Google S-LANSS. It's a diagnostic tool.

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By (user no longer on site) OP
over a year ago

Unfortunately an alternative just isn't an option for me. I can't afford to go private with or without a loan.

I plan to live in Turkey permanently in a couple of years, and I know I will get better treatment there, I just want my diagnosis before I go.

What’s the actual cause of the pain ?"

I was diagnosed with PCOS a few years back and has been blamed on that for a while but endometriosis is what I'm being told I have now, which is what I've suspected having done my own research for a while. I will need surgery to diagnose it.

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By (user no longer on site)
over a year ago

"You have my sympathy.

I’ve had the golden healing light meditation suggested (stop sniggering at the back) but haven’t found a solution yet.

Painkillers don’t seem to help. Tried Gabapentine and similar but that just messed my head up, still in pain.

CBD just made me poor! I’d quite like to try THC, but problems sourcing some

Sadly, this site's rules prevent me from discussing the medical benefits of THC in its purest form, which is a shame. Once the "hippy" aspect comes in to play, people regard it as a recreational drug rather than being mature enough to realise its medicinal properties, as many countries and cultures have.

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By *rHotNottsMan
over a year ago

Dubai & Nottingham

"focusing on reducing inflammation naturally

How did you achieve this? I’ve a fun mix of old injury and stress making each other worse. "

I would put an ice pack under my belt and walk for 10-15 mins to numb it up then I would do a qigong stretch called lift the rock and meditate and will the fucker to reduce ! As it eased off away from the nerve I’d start western style stretches (Glutes and IT Band) , Pilates and core workouts to prevent it going back into spasm.

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By *naswingdressWoman
over a year ago

Manchester (she/her)

Endo is awful

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By *om and JennieCouple
over a year ago

Chams or Socials

I was diagnosed with endometriosis in 1995 aged 19. Only because my dad came with me to every medical appointment & fought for me. I finally got a total hysterectomy last year aged 42. I also had adenomyosis & fibroids. The last little bit of my cervix (previously chipped away at over due time CIN3 at every bloody smear test I had) was also removed.

Keep fighting ladies, do not give up until you get a proper diagnosis

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