FabSwingers.com forum: Illness and being fed up

By *naswingdress OP Woman
over a year ago

Manchester (she/her)

I'm looking less for sympathy and more for strategies to deal with things.

I'm flat on my arse with post viral fatigue. (Yes, that virus) I'm six weeks in, about a month past the risk period they know of. I'm fucking sick of being helpless.

Have phone, have books, am introverted anyway, just am so goddamn sick of my bed and injuring myself taking the damn bin out. I have no idea my long term prognosis. Chest pain all the time sucks.

And I had a couple of hours feeling normal yesterday - that was almost worse, because I remember what I'm missing.

Getting my strength back is going to be a bitch. I'll do it, I know I will.

Anyone got any words of wisdom?

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By *VineMan
over a year ago

The right place

Not really any words of wisdom sorry. But sending you positive thoughts and good wishes.

That sounds really tough.

I really hope you feel more strength and energy return to you soon.

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By *otsossieMan
over a year ago

Chesterfield

My sympathies, not fun.

Self care, eat well, gentle exercise.

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By (user no longer on site)
over a year ago

There’s a wonderful German course of vitamins and minerals you can take for 14 days. It really helps. Google Orthomol. Expensive, but this is your health we’re talking about. Good luck!

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By *isaB45Woman
over a year ago

Fabville

"I'm looking less for sympathy and more for strategies to deal with things.

I'm flat on my arse with post viral fatigue. (Yes, that virus) I'm six weeks in, about a month past the risk period they know of. I'm fucking sick of being helpless.

Have phone, have books, am introverted anyway, just am so goddamn sick of my bed and injuring myself taking the damn bin out. I have no idea my long term prognosis. Chest pain all the time sucks.

And I had a couple of hours feeling normal yesterday - that was almost worse, because I remember what I'm missing.

Getting my strength back is going to be a bitch. I'll do it, I know I will.

Anyone got any words of wisdom?"

No wise words here, but boobie hugs..xx

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By (user no longer on site)
over a year ago

Remind yourself this isn't a new you, aim to do a bit more each day physically, no matter how small and take joy from that progress

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By *lbinoGorillaMan
over a year ago

Redditch

As above, I can't offer anything more than good wishes and general platitides

It does sound harsh, though, this virus. Because I've been lucky (so far) and haven't witnessed it close up I probably haven't fully appreciated how devastating this thing can be, and just assumed it's like a bad cold....

Wishing you the very best and a speedy recovery, as the forum ain't the same without you x

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By (user no longer on site)
over a year ago

Have you tried practicing your mindfulness. X

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By *naswingdress OP Woman
over a year ago

Manchester (she/her)

"As above, I can't offer anything more than good wishes and general platitides

Wishing you the very best and a speedy recovery, as the forum ain't the same without you x

I think that's really important, and I'd yell it from the rooftop but my lungs would object

Mild is anything not requiring hospital treatment. I have a *mild* case.

This crap is not a minor illness.

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By *ark ph0enixWoman
over a year ago

Teesside

No real advice to offer but sending ever so gentle virtual hugs your way x

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By *naswingdress OP Woman
over a year ago

Manchester (she/her)

"Remind yourself this isn't a new you, aim to do a bit more each day physically, no matter how small and take joy from that progress "

Oh, I am. Just the fatigue and strength comes and goes in unpredictable waves. I'm doing breathing exercises, mostly. That's as much exercise as I can tolerate.

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By (user no longer on site)
over a year ago

Huge massive hugs and really hope you feel better soon xxx

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By *naswingdress OP Woman
over a year ago

Manchester (she/her)

Thank you. And sorry for not replying to everyone. My energy is in the process of fucking off again

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By *ohnjones3210Man
over a year ago

Chester

Get out into your garden if you have one and start planting some seeds. Go out and care for them every day. Watch them grow.

Have a tidy up or reorganise something.

Learn a new skill.

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By *naswingdress OP Woman
over a year ago

Manchester (she/her)

"Get out into your garden if you have one and start planting some seeds. Go out and care for them every day. Watch them grow.

Have a tidy up or reorganise something.

Learn a new skill.

Skills I'm working on. I'm too weak for the rest.

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By *reya73Woman
over a year ago

Whitley Bay

Oh love, I'm so sorry to hear this!

I just want to remind you that you come across as an incredibly resourceful and wise woman..your posts reflect the work and self help you do for yourself. You have it all within you to get through this .. and .. this bit of helplessness and hopelessness is part of the process. Give in to it for a while and let your bottom lip proper stick out. Give yourself a huge hug.

Are you getting practical support? If you have friends nearby, call out for help those tasks like putting out the bins, shopping etc.

Sending well wishes xxx

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By *otsossieMan
over a year ago

Chesterfield

"This crap is not a minor illness."

Amen.

Folk really need to appreciate this.

It can be incredibly debilitating.

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By *naswingdress OP Woman
over a year ago

Manchester (she/her)

"Oh love, I'm so sorry to hear this!

Are you getting practical support? If you have friends nearby, call out for help those tasks like putting out the bins, shopping etc.

Sending well wishes xxx

Thank you. I know I'll get through. Just. Ugh. You know?

A friend got my pills the other day because they wouldn't deliver. Tesco have been good on socially distanced groceries. Bin, I'm doing myself because I have to. I'll get through and it improves every day.

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By (user no longer on site)
over a year ago

Hey OP

Sending you virtual social distancing hugs and healing wishes xx

Keep up with the breathing exercises

as boring and exhausting as they are.

Vitamin C and healthy eating.

Enjoy sitting in your garden, watching and listening to nature.

Important to do some gentle lower limb exercises, even if you have to sit down...

1:Marching on the spot

2:Straight leg raise

3:Sit to stands (even if you can manage a couple)

And some gentle upper arm:

Bicep /Tricep curls

Wall press ups

Anything gentle, little and often... A couple every other day is better than nothing.

And alternative is your local physio dept might have advice on their website.

Feel free to message anytime if you just need a rant...

Stay well, positive and strong xx

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By *ouple in LancashireCouple
over a year ago

in Lancashire

Got family going through the same and whilst they are trying to stay positive at times it just gets to them..

Long term health implications, job security etc..

Yes obviously being positive is great but recognise that when the bad periods hit they are all part of the recovery, perhaps especially more so given the shielding and lack of close contact with friends and family etc..

Just a thought, how about looking for a social media covid support group on fb or setting one up as an option for if you want to chat with others who are also in recovery..?

Very best wishes..

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By *naswingdress OP Woman
over a year ago

Manchester (she/her)

"Got family going through the same and whilst they are trying to stay positive at times it just gets to them..

Long term health implications, job security etc..

Just a thought, how about looking for a social media covid support group on fb or setting one up as an option for if you want to chat with others who are also in recovery..?

Very best wishes.. "

I'm on the long termers Facebook page, although fortunately I'm at the short end of that. I can't even imagine some of the stuff some of them are going through

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By *agneto.Man
over a year ago

Bham

If you haven't done so already, get some protein powder. It was great for healing and regenerating after I had an op.

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By (user no longer on site)
over a year ago

So sorry to read of your suffering and wishing you all the best getting over it!!

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By *naswingdress OP Woman
over a year ago

Manchester (she/her)

"If you haven't done so already, get some protein powder. It was great for healing and regenerating after I had an op. "

That's what I "eat" when I don't have the energy to put some beans in the microwave

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By *agicfingerslovelyMan
over a year ago

Rugby

Their are Groups online for people recovering from it. It usually is a good idea to chat with people who know what you are suffering. Good Luck

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By *ouple in LancashireCouple
over a year ago

in Lancashire

"Got family going through the same and whilst they are trying to stay positive at times it just gets to them..

Long term health implications, job security etc..

Just a thought, how about looking for a social media covid support group on fb or setting one up as an option for if you want to chat with others who are also in recovery..?

Very best wishes..

I'm on the long termers Facebook page, although fortunately I'm at the short end of that. I can't even imagine some of the stuff some of them are going through

It's a very weird one it seems, got one elderly relative with fairly serious respiratory issues and they are doing OK then another with none and they can't shake it even though initially they had it mild..

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By *iamondCougarWoman
over a year ago

Norfuck! / Lincolnshire

Oh no! Hope your equilibrium of healthy is soon restored

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By *naswingdress OP Woman
over a year ago

Manchester (she/her)

"It's a very weird one it seems, got one elderly relative with fairly serious respiratory issues and they are doing OK then another with none and they can't shake it even though initially they had it mild.. "

It's very weird. Lots of different presentations initially and it can go all over the place. My viral stage was the severity of mild-moderate proper flu, but this fatigue and lingering chest weakness is just something else.

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By (user no longer on site)
over a year ago

You must be feeling like shit.

My approach is to try and use some ACT and mindfulness techniques.

To mot fight the feelings, know they are coming and know you you won't like them but let them come, let them sit where they need to, knowing they will pass. You won't feel like this forever. The feelings will pass.

Try not to be at odds with them. Like getting caught in a storm. You know you are going to get wet. It won't be pleasant getting caught in it, but allow the rain to flow over you and accept it

I hope you feel better soon x

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By *abonWoman
over a year ago

L’boro/Ashby & Cheltenham

That sounds really tough...you just want to get well when you’ve been ill. I’d take it easy...if you have post viral fatigue, it’s your body still recovering. I wouldn’t push it...just try and find mentally and physically nourishing things. If this bug affects lungs and blood vessels, they need time to repair. I’m always one for really good quality probiotics...like really good ones. The best food you can manage. Agree that post covid support groups would be a good place to look. Best of luck xx

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By (user no longer on site)
over a year ago

"I'm looking less for sympathy and more for strategies to deal with things.

I'm flat on my arse with post viral fatigue. (Yes, that virus) I'm six weeks in, about a month past the risk period they know of. I'm fucking sick of being helpless.

Have phone, have books, am introverted anyway, just am so goddamn sick of my bed and injuring myself taking the damn bin out. I have no idea my long term prognosis. Chest pain all the time sucks.

And I had a couple of hours feeling normal yesterday - that was almost worse, because I remember what I'm missing.

Getting my strength back is going to be a bitch. I'll do it, I know I will.

Anyone got any words of wisdom?"

I've heard that post virus fatigue can be unreal. I'm no doctor but try and do what you can to prevent muscle wastage. Just keep some movement in your life, don't get pyjama paralysis.

I hope you overcome it soon.

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By *ouple in LancashireCouple
over a year ago

in Lancashire

We both had chest infections in jan which was for Lynn a first in her life, it took about five weeks before we didn't feel shattered even to the point of sleeping after walking the dogs during the day..

Whatever that was, and it took a young teenager just before the Christmas it was very unpleasant..

Stay strong..

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By *agneto.Man
over a year ago

Bham

"If you haven't done so already, get some protein powder. It was great for healing and regenerating after I had an op.

That's what I "eat" when I don't have the energy to put some beans in the microwave

Sounds like you also need some proper scran then!

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By *naswingdress OP Woman
over a year ago

Manchester (she/her)

"If you haven't done so already, get some protein powder. It was great for healing and regenerating after I had an op.

That's what I "eat" when I don't have the energy to put some beans in the microwave

Sounds like you also need some proper scran then! "

I cook when I have the energy. When that fails, cereal or beans. When that fails, protein powder.

For awhile I didn't want to eat, it hurt, and my fallback was people ringing me up and yelling at me

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By *innie The MinxWoman
over a year ago

Under the Duvet

Icecream works for me.

Or try cleaning your teeth..random

but the mint flavour kind of resets my brain sometimes.

Hug lite to you OP.

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By (user no longer on site)
over a year ago

Wish I could say something helpful but sending healing hugs x

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By (user no longer on site)
over a year ago

I havent got any wise words either - but hugs from me too.

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By *uriousscouserWoman
over a year ago

Wirral

Patience, patience and patience. It's a bitch I know.

The fatigue comes in waves, but finding something to monitor/measure can help. I know someone who is using a fitbit to measure steps over a full week, to see the increase week on week and know that even when the fatigue knocks her on her arse for a day she is still making progress every week.

Anything you can use to see the glimmers of progress is a benefit.

I hope you're soon recovered and regain your strength. You will get through this

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By *ig1gaz1Man
over a year ago

bradford

a silly thought.

But have you got any high energy food in house that you could eat more as an extra energy boost to your system?

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By *naswingdress OP Woman
over a year ago

Manchester (she/her)

"a silly thought.

But have you got any high energy food in house that you could eat more as an extra energy boost to your system?"

Oh the energy thing isn't connected to food or sleep. It just kind of comes and goes.

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By *naswingdress OP Woman
over a year ago

Manchester (she/her)

I appreciate all of you. Please don't catch this.

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By *llaboutthewifeCouple
over a year ago

Cardiff

Oh bless you.

Don't put massive amounts of pressure on yourself.

Do what you can.

Speak to your ladies if you can summon up the strength, they will spur you on, they must miss you.

Here if you need to chat ever

Jo x

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By (user no longer on site)
over a year ago

Only advice I can give you is live and eat well. Eat as much of natural foods and exercise as often as you can!

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By *naswingdress OP Woman
over a year ago

Manchester (she/her)

"Oh bless you.

Don't put massive amounts of pressure on yourself.

Do what you can.

Speak to your ladies if you can summon up the strength, they will spur you on, they must miss you.

Here if you need to chat ever

Jo x "

Being away from my volunteering hurts

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By (user no longer on site)
over a year ago

"Oh bless you.

Don't put massive amounts of pressure on yourself.

Do what you can.

Speak to your ladies if you can summon up the strength, they will spur you on, they must miss you.

Here if you need to chat ever

Jo x

Being away from my volunteering hurts

Can you do online/ remote volunteering? That might give you a boost, to be helping people.

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By *entle giraffeMan
over a year ago

Minehead

Aww, I hope you start to recover your energy soon. I think others on here have given good advice. Be kind to yourself it's difficult to rush these things.

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By *naswingdress OP Woman
over a year ago

Manchester (she/her)

"Oh bless you.

Don't put massive amounts of pressure on yourself.

Do what you can.

Speak to your ladies if you can summon up the strength, they will spur you on, they must miss you.

Here if you need to chat ever

Jo x

Being away from my volunteering hurts

Can you do online/ remote volunteering? That might give you a boost, to be helping people. "

I had been since lockdown, but they've temporarily taken me off the rota as my energy is too unreliable. I'm getting regular messages of support but I want to be back to it. And can't yet.

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By (user no longer on site)
over a year ago

No word of wisdom but you are not alone, I know of lady who had it, got sepsis as well. Just know you are strong and everyday is one step closer to better health.

one day at a time.

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By *naswingdress OP Woman
over a year ago

Manchester (she/her)

Sepsis

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By *wisted999Man
over a year ago

North Bucks

Vit D.

And deep breathing exercises really get that O2 to every corner of your being.

Vikram Yoga. (Honestly try it online it reinvigorates)

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By (user no longer on site)
over a year ago

"Oh bless you.

Don't put massive amounts of pressure on yourself.

Do what you can.

Speak to your ladies if you can summon up the strength, they will spur you on, they must miss you.

Here if you need to chat ever

Jo x

Being away from my volunteering hurts

Can you do online/ remote volunteering? That might give you a boost, to be helping people.

I had been since lockdown, but they've temporarily taken me off the rota as my energy is too unreliable. I'm getting regular messages of support but I want to be back to it. And can't yet."

You were out of action (op, illness, not sure sorry) before, how did you get through it?

What advice would you give someone else in this situation?

You often give positive, motivational advice. I think you are stronger than you give yourself credit for.

I mean that, not being sarcy.

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By (user no longer on site)
over a year ago

"Sepsis

"
I know, not only a hugh knock to her health but a hugh mental blow as well.

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By *naswingdress OP Woman
over a year ago

Manchester (she/her)

"Oh bless you.

Don't put massive amounts of pressure on yourself.

Do what you can.

Speak to your ladies if you can summon up the strength, they will spur you on, they must miss you.

Here if you need to chat ever

Jo x

Being away from my volunteering hurts

Can you do online/ remote volunteering? That might give you a boost, to be helping people.

I had been since lockdown, but they've temporarily taken me off the rota as my energy is too unreliable. I'm getting regular messages of support but I want to be back to it. And can't yet.

You were out of action (op, illness, not sure sorry) before, how did you get through it?

What advice would you give someone else in this situation?

You often give positive, motivational advice. I think you are stronger than you give yourself credit for.

I mean that, not being sarcy."

Thank you

I'll get through. Just hitting a bump in the road. And yes, I've done stuff like this before. In the middle of it it can be a bit hard to see your way out. Taking it hour by hour. (Since I last posted I had a nap. Naps help)

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By (user no longer on site)
over a year ago

Hi Swing. I was just reading an article about post-viral fatigue, a hangover from coronavirus which is affecting many survivors. I had no idea you had it; how unlucky. Many years ago and after many tests, I was diagnosed with toxoplasmosis. Getting out of bed was a huge effort every day, my body ached and I wondered if I would ever get back to normal, back to my county netball and all the sports I loved. And I did, but not pushing myself too hard, good nutrition and baby steps each day. All I can say is that I have observed what a strong woman you are and one day you will be fully recovered. Try your best to stay positive. Are you getting any help at all? xx

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By (user no longer on site)
over a year ago

Sending you lots of love and hugs!

Please take it easy, don't push yourself too soon....

And be kind to yourself! Xx

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By *naswingdress OP Woman
over a year ago

Manchester (she/her)

"Hi Swing. I was just reading an article about post-viral fatigue, a hangover from coronavirus which is affecting many survivors. I had no idea you had it; how unlucky. Many years ago and after many tests, I was diagnosed with toxoplasmosis. Getting out of bed was a huge effort every day, my body ached and I wondered if I would ever get back to normal, back to my county netball and all the sports I loved. And I did, but not pushing myself too hard, good nutrition and baby steps each day. All I can say is that I have observed what a strong woman you are and one day you will be fully recovered. Try your best to stay positive. Are you getting any help at all? xx"

Thank you x

I have a support network and offers of help. My fwb picked up my prescriptions at the weekend.

I had a pain disorder in my 20s which I recovered from with baby steps, like you talk about. I had a great specialist physio. I have that in mind as my way out of this.

I definitely know this is a known phenomenon. It's so unlike any illness I've ever had, really disorienting in how random it is. Makes it harder to manage psychologically. They say mental health blips are part of the syndrome. If nothing else, the fact it's so unpredictably debilitating is depressing.

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By (user no longer on site)
over a year ago

Thank you x

I have a support network and offers of help. My fwb picked up my prescriptions at the weekend.

I had a pain disorder in my 20s which I recovered from with baby steps, like you talk about. I had a great specialist physio. I have that in mind as my way out of this.

I'm glad you have some help and can only imagine how bloody awful this must be for you. May be also contact your GP and push for some urgent rehab help or tertiary help and advice? x

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By *naswingdress OP Woman
over a year ago

Manchester (she/her)

Thank you xx

I'm a bit hesitant to ask for help, I know the NHS is still struggling. I'm trying some very deep breathing and very basic movements to build my strength. I've had a few messages with advice, which I really appreciate.

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By *naswingdress OP Woman
over a year ago

Manchester (she/her)

I've been a bit Ministry of Silly Walks in here today

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By *naswingdress OP Woman
over a year ago

Manchester (she/her)

I've had a big old setback. Bastard virus.

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By (user no longer on site)
over a year ago

I read this the other day when I was on holiday and couldn't comment. It really struck a chord, having been ill myself with what I suspect was the bastard virus over Christmas (early I know) very severely with breathing issues and also into Jan, Feb, March, April and right up until now, slowy getting almost better but not quite right. Whatever it is it's the worst I've ever felt and the longest I've ever felt ill but thankfully it's slowly going. I hope you're on the up soon OP, much love

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By (user no longer on site)
over a year ago

COVID is not frequently not a mild illness I hope all of those who are suffering with it are soon through the awful knock on effects Scientists are learning every day more about it and I hope more treatments are soon readily available to help speed up recovery.

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By *rumpyMcFuckNuggetMan
over a year ago

Den of Iniquity

you Swingy .

Get well soon x

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By *naswingdress OP Woman
over a year ago

Manchester (she/her)

Thank you guys.

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By *naswingdress OP Woman
over a year ago

Manchester (she/her)

I'm getting worse. I'm scared

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By *abonWoman
over a year ago

L’boro/Ashby & Cheltenham

"I'm getting worse. I'm scared

With the fatigue, or covid symptoms still. We got you...xxx You will recover xx

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By *naswingdress OP Woman
over a year ago

Manchester (she/her)

Chest pain and intermittent loss of vision

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By *parkle1974Woman
over a year ago

Leeds

I have been tested 3 times now for Covid...thankfully all came back negative but did end up with severe pneumonia.

Hope you start to feel better OP

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By *abonWoman
over a year ago

L’boro/Ashby & Cheltenham

Chest pain can be tons of things...indigestion if you’re not eating, diaphragm tension if you’re breathing is off or your tense or nauseous. Vision...id get that checked. Prob low blood pressure but you don’t want to mess about.

You’ll be fine but I would call 111 and then come back here to dissect what they say xx

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By *jonesMan
over a year ago

Plymouth

Staying positive and managing the mental aspects are so important in allowing the body to heal, I believe. Occupy yourself so you dont dwell on things, enjoy the moment, be in the present and enjoy it. Look for things that make you laugh.

You will get better

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By (user no longer on site)
over a year ago

111 or the GP plus also keep one special friend you can actually speak with on the phone to keep you calm and stop your thoughts racing. I've been exactly where you are earlier this year, even down to the vision issues (which is very freaky because I've not heard that from anyone else). Important to remember you're on the mend and things will slowly get better, just very slowly....

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By (user no longer on site)
over a year ago

I know this is over a week old but just to say that I had this virus end of March and I still struggle to get through the day without a nap or a lay down as a bare minimum.

I single parent also which has been an added strain. My GP had been amazing throughout and I know i’m very lucky there.

It’s played havoc with my T2 diabetes and there’s been days where I’ve just had the strength to chew anything.. I make protein shakes on those days.

It will take a while but you will slowly start to feel like you’re getting some part of your life back.

The mental health side needs supporting too, chat chat and more chat sweet x

You got this x

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By (user no longer on site)
over a year ago

"I'm getting worse. I'm scared

To add on.. after the initial virus hit, I had 2 more bouts of ‘flu’ like symptoms.

Have basically been ill for the whole lockdown, only now am I starting to feel myself!

Ring 111 or if you have a COVID hub near you ring them too x

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By *ensualtouch15Man
over a year ago

ashby de la zouch

"Chest pain and intermittent loss of vision"

Seriously as I said

Get yourself to a medic

Just because cov sars2 is the flavour of the month does not mean that's what you have

You have isolated exceptionally well you may need treatment for something urgent that is not a contagious virus

Humans have other illnesses and organ problems which are not spread

You have had a negative test and shielded as if the virus would kill you

I'm very concerned you have something else that requires immediate treatment

Xxxx

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By (user no longer on site)
over a year ago

Hi OP,

I totally understand - I have fibromyalgia and that has very similar symptoms. Things I find help:

Sleep (I nap a lot!)

Supplements - potassium and magnesium

Vitamin B12 spray from Holland and Barratt

Stretching

Epsom salt baths

Please don't feel like you can't go to your doctor. It might be worth checking out that it isn't something more like fibro or CFS as they often start after an illness and talking to a doctor friend of mine they are expecting a rise in these conditions with post COVID patients.

I know how rubbish fatigue is, sending you tons of love xx

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By *naswingdress OP Woman
over a year ago

Manchester (she/her)

"I'm getting worse. I'm scared

To add on.. after the initial virus hit, I had 2 more bouts of ‘flu’ like symptoms.

Have basically been ill for the whole lockdown, only now am I starting to feel myself!

Ring 111 or if you have a COVID hub near you ring them too x "

I'm going to the hospital. Thank you

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By *naswingdress OP Woman
over a year ago

Manchester (she/her)

"Chest pain and intermittent loss of vision

Seriously as I said

Get yourself to a medic

Just because cov sars2 is the flavour of the month does not mean that's what you have

You have isolated exceptionally well you may need treatment for something urgent that is not a contagious virus

Humans have other illnesses and organ problems which are not spread

You have had a negative test and shielded as if the virus would kill you

I'm very concerned you have something else that requires immediate treatment

Xxxx

Clinical diagnosis still, though x

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