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Psoriatic Arthritis Help

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By (user no longer on site) OP   
over a year ago

Hi ladies and gents, I have had psoriasis and psoriatic arthritis for a number of years now. I had numerous sessions of UVA and UVB treatment which has helped the psoriasis somewhat but due to the arthritis side of things, I am going to have to go onto methotrexate on a small dose which is a chemo drug and will knock my immune system out which should help the arthritis and the psoriasis.

I have looked everywhere for something more natural that might help as I feel that it is a little bit evasive to be on a drug like that but just do not know where to start.

Does anyone else suffer or know someone who suffers with the same that could give me some pointers please

Many thanks

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By *uicy jonesMan
over a year ago

near a big hill in s/ shropshire NOT in

Have you looked into enbrel ? Not sure if is suitable but it's a wonder drug , one injection every week or stronger injection once a month ,,,

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By *uicy jonesMan
over a year ago

near a big hill in s/ shropshire NOT in

[Removed by poster at 15/05/20 21:22:00]

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By *uicy jonesMan
over a year ago

near a big hill in s/ shropshire NOT in

Just tried to send you a private message , with a link , shall I paste it here ?

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By *nabelle21Woman
over a year ago

B38

I really don't have any advice to help alleviate this for you..I wish that I did.

But, I hope you find something that really helps x

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By (user no longer on site) OP   
over a year ago


"Have you looked into enbrel ? Not sure if is suitable but it's a wonder drug , one injection every week or stronger injection once a month ,,, "

Havent heard of it but will do, thank you xx

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By (user no longer on site) OP   
over a year ago


"Just tried to send you a private message , with a link , shall I paste it here ? "

Send privately if you want x

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By (user no longer on site) OP   
over a year ago


"I really don't have any advice to help alleviate this for you..I wish that I did.

But, I hope you find something that really helps x"

Thank you so much xx

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By *uicy jonesMan
over a year ago

near a big hill in s/ shropshire NOT in


"Just tried to send you a private message , with a link , shall I paste it here ?

Send privately if you want x"
can't as I'm not a site supporter xx

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By *nabelle21Woman
over a year ago

B38


"I really don't have any advice to help alleviate this for you..I wish that I did.

But, I hope you find something that really helps x

Thank you so much xx"

You are very welcome...it sounds awful for you.

Again wishing you all the best xx

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By (user no longer on site) OP   
over a year ago


"Just tried to send you a private message , with a link , shall I paste it here ?

Send privately if you want x can't as I'm not a site supporter xx "

Just send it here then hunni thanks xx

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By *uicy jonesMan
over a year ago

near a big hill in s/ shropshire NOT in


"Just tried to send you a private message , with a link , shall I paste it here ?

Send privately if you want x can't as I'm not a site supporter xx

Just send it here then hunni thanks xx"
ok here it is ,https://www.enbrel.com

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By *uicy jonesMan
over a year ago

near a big hill in s/ shropshire NOT in


"Just tried to send you a private message , with a link , shall I paste it here ?

Send privately if you want x can't as I'm not a site supporter xx

Just send it here then hunni thanks xx"
its relative new , well I say that , my exwife was crippled and this helped and that was 10 years ago ,,,, it's was means tested when the ex was on it and she had to have a few examinations from other Drs and hospitals , but in the end it was worth it 100 % xxx good luck

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By (user no longer on site)
over a year ago

Have you looked into anti TNF infusion.

Not sure if its suitable for your type of arthritis but I know its used for some forms and helps the psoriasis.

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By (user no longer on site) OP   
over a year ago


"Just tried to send you a private message , with a link , shall I paste it here ?

Send privately if you want x can't as I'm not a site supporter xx

Thanks xx

Just send it here then hunni thanks xx ok here it is ,https://www.enbrel.com "

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By (user no longer on site)
over a year ago


"Have you looked into anti TNF infusion.

Not sure if its suitable for your type of arthritis but I know its used for some forms and helps the psoriasis. "

We actually know a fair bit about both conditions so please feel free to message.

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By (user no longer on site) OP   
over a year ago


"Have you looked into anti TNF infusion.

Not sure if its suitable for your type of arthritis but I know its used for some forms and helps the psoriasis. "

Something else to look into, thank you. My dermatologist and consultant down here just tend to chuck you on methotrexate so if I can go with other items in hand, they can look into them once this virus has got a little better and they start treatment again xx

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By (user no longer on site)
over a year ago


"Have you looked into anti TNF infusion.

Not sure if its suitable for your type of arthritis but I know its used for some forms and helps the psoriasis.

Something else to look into, thank you. My dermatologist and consultant down here just tend to chuck you on methotrexate so if I can go with other items in hand, they can look into them once this virus has got a little better and they start treatment again xx"

Yes that seems to be case and have experience of that drug too.

There are actually a lot of different anti TNF treatments available. Maybe have a look into in to it.

All the treatments are available on the NHS and its been a game changer.

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By *ark ph0enixWoman
over a year ago

Teesside

[Removed by poster at 15/05/20 21:51:50]

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By *ark ph0enixWoman
over a year ago

Teesside

I'm on weekly injections of benapali immune suppressants. Inbox me if you'd like more info

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By (user no longer on site)
over a year ago

I'm on a 7 weekly infusion of infliximab witch is an anti TNF drug its given me my life back feel free to message me if you would like more info

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By (user no longer on site)
over a year ago


"I'm on a 7 weekly infusion of infliximab witch is an anti TNF drug its given me my life back feel free to message me if you would like more info "
Exactly the same as our experience.

The anti TNF is a game changer.

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By (user no longer on site)
over a year ago


"I'm on a 7 weekly infusion of infliximab witch is an anti TNF drug its given me my life back feel free to message me if you would like more info Exactly the same as our experience.

The anti TNF is a game changer.

"
I suffer from AS and before this I couldn't even walk unaided 2 weeks after my last loading douse I run a 5k truck

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By (user no longer on site)
over a year ago

Becareful of methotrexate and interstitial lung disease.

Obviously your specialist will monitor you regularly and they generally know best.

Look at alternatives for methotrexate and ask about those to see why they think this medication is best for you.

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By *toC Thats MeWoman
over a year ago

Sheffield

Also a sufferer here. Currently doing the light treatment at home which has really helped. Combined with a new steroid cream. X

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By *ce WingerMan
over a year ago

P.O. Box DE1 0NQ

I've had psoirasis since I was 23,the arthritis didn't kick in until about 7years ago, it's not very severe, but somedays it takes me half an hour or so to put ma socks on in the morning

I generally use Tramadol, but only sparingly

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By (user no longer on site)
over a year ago


"I'm on a 7 weekly infusion of infliximab witch is an anti TNF drug its given me my life back feel free to message me if you would like more info Exactly the same as our experience.

The anti TNF is a game changer.

I suffer from AS and before this I couldn't even walk unaided 2 weeks after my last loading douse I run a 5k truck "

Have you heard of NASS

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By (user no longer on site) OP   
over a year ago


"Have you looked into anti TNF infusion.

Not sure if its suitable for your type of arthritis but I know its used for some forms and helps the psoriasis.

We actually know a fair bit about both conditions so please feel free to message. "

Thank you I will do xx

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By (user no longer on site) OP   
over a year ago

Thank you to everyone, I will be writing down what you have all said. It is so nice to know that there are others who can understand how it feels. I am currently having to move house alone during a flare up. It took me 3 hours this morning and a dose of MST for the pain just to be able to get half a car filled xx

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By (user no longer on site)
over a year ago


"I'm on a 7 weekly infusion of infliximab witch is an anti TNF drug its given me my life back feel free to message me if you would like more info Exactly the same as our experience.

The anti TNF is a game changer.

I suffer from AS and before this I couldn't even walk unaided 2 weeks after my last loading douse I run a 5k truck

Have you heard of NASS"
yes was one of the first places the doctor pointed me to when I finally got diagnosed

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By *ustfulmusingCouple
over a year ago

ilpseich


"Thank you to everyone, I will be writing down what you have all said. It is so nice to know that there are others who can understand how it feels. I am currently having to move house alone during a flare up. It took me 3 hours this morning and a dose of MST for the pain just to be able to get half a car filled xx"

Thats awful,l’m guessing the stress of the move has had an effect on your skill.l hope it goes well and you can relax in your new home soon X

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