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Kolbe special school

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By (user no longer on site) OP   
over a year ago

It’s a bloody disgrace that parents of kids with special needs have too fight for a school for their kids

When you think of all the money that this and other governments have squandered down the years

All these people want is a right that is supposed to be available to all kids and it’s country wide not just in koble

And with James winning an Oscar and ya I know not all kids with special needs can go on too achieve this but the basic right is at very least is a deserved right

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By * la carteCouple
over a year ago

Dublin

If you knew some of the sh*t that goes on based on interpersonal relationships/feuds between the department and principals, that has directly had an impact on not opening units/classrooms in mainstream schools funded for by the department for neuro diverse children until questioned by parents who dig deeper, you'd be spewing fire.

Believe me, I seethe, thinking about the department of education and how our government has been failing our most vulnerable, continually, for years, decades even.

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By (user no longer on site)
over a year ago

As the parent of a child with a disability, I do like the word, my ex and I started fighting for him the day he was born when a dr started telling us what was best for him.

We were lucky that we live in an area with a very strong charity branch which provides Speech Therapy, OT, support and sporting activities

To deal with the dept of education was ok, in that there was plenty of money at the time for snas and some additional support.

It was the attitude of some teachers towards him, how dare you have him in my class, was worse and then being told that he would bring down the overall results for the school if he was accepted into 3 particular schools.

We were exceptionally lucky that we met a vice principal who cared about the children who went through the doors of a particular school and with the help of a brilliant SNA and Teachers, he did a leaving cert.

Today he attends an IT and works, it’s a battle that never stops, not until that last breath

Apologies for the length of the post, I could write the book

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By * la carteCouple
over a year ago

Dublin


"As the parent of a child with a disability, I do like the word, my ex and I started fighting for him the day he was born when a dr started telling us what was best for him.

We were lucky that we live in an area with a very strong charity branch which provides Speech Therapy, OT, support and sporting activities

To deal with the dept of education was ok, in that there was plenty of money at the time for snas and some additional support.

It was the attitude of some teachers towards him, how dare you have him in my class, was worse and then being told that he would bring down the overall results for the school if he was accepted into 3 particular schools.

We were exceptionally lucky that we met a vice principal who cared about the children who went through the doors of a particular school and with the help of a brilliant SNA and Teachers, he did a leaving cert.

Today he attends an IT and works, it’s a battle that never stops, not until that last breath

Apologies for the length of the post, I could write the book

"

Sounds like a success in so many different ways! Do write the book, even if only for yourself, your family and your son.

I hope and pray I can get my teen to adulthood alive and well

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By *rmrs1234Couple
over a year ago

Waterford

Only getting started with this particular battle. We are lucky she has been given an extension for a pre school year but as of right now she has had zero therapies and one assessment for OT which i had to bring her to cork for. She still has no formal diagnosis and places are extremely limited for where she can attend owing to the fact she will not be able for a mainstream school so we could very well be looking at home schooling

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By * la carteCouple
over a year ago

Dublin


"Only getting started with this particular battle. We are lucky she has been given an extension for a pre school year but as of right now she has had zero therapies and one assessment for OT which i had to bring her to cork for. She still has no formal diagnosis and places are extremely limited for where she can attend owing to the fact she will not be able for a mainstream school so we could very well be looking at home schooling "

You have a constitutional right to an assessment of need to be carried out within 3 months of application with the HSE, and for this assessment to be completed within another 3 months.

Though you possibly already know this.

Wishing you all the best on your journey x

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By (user no longer on site)
over a year ago


" You have a constitutional right to an assessment of need to be carried out within 3 months of application with the HSE, and for this assessment to be completed within another 3 months.

Though you possibly already know this.

Wishing you all the best on your journey x"

Unfortunately rights for children/adults wit a disability is not something the state holds in any regard

IMO parents are on their own and it is those who can fight the hardest and longest win

Just think about The Grace Case and Kerry CAMHS just to list 2

What is really unfortunate are the families who drop between the stools and are told the children are “borderline”

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By * la carteCouple
over a year ago

Dublin


" You have a constitutional right to an assessment of need to be carried out within 3 months of application with the HSE, and for this assessment to be completed within another 3 months.

Though you possibly already know this.

Wishing you all the best on your journey x

Unfortunately rights for children/adults wit a disability is not something the state holds in any regard

IMO parents are on their own and it is those who can fight the hardest and longest win

Just think about The Grace Case and Kerry CAMHS just to list 2

What is really unfortunate are the families who drop between the stools and are told the children are “borderline”"

Unfortunately you are only too right . It is up to us parents to advocate for our youngsters, fight the good fight for them and for future generations.

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By (user no longer on site) OP   
over a year ago

Borderline that’s just an excuse to say we have no room or the resources for what your child needs in my opinion

This is just not acceptable in this day and age I know I’m not wrong and we certainly won’t stay quiet on this

We also know this is a swing site but if a football thread gets a lot of attention well so should this if not more

And yes it’s me Lisa and I’m going to bed now so good night

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By *ilthyNightsCouple
over a year ago

East / North, Cork

8 years ago i went through the assessment of needs process with my second son. Got assessed in a timely process via AON process, and get his ASD diagnosis. Spoke to our SENO and got a local unit place no issue.

Last year my 4th child also needs assessment. Wait for ages for AON with little response. Give up and pay for a private assessment (€1600) diagnosed ASD. Call the SENO. No response. Call again. No response. Call daily for weeks. No response. In the end we got lucky because the headmistress of our local primary knocked on our door and told us they were opening a new unit this year and asked us to apply. We now have a place.

Things seem to be going backwards

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By (user no longer on site)
over a year ago


"Things seem to be going backwards"

Since Noonan became minister for health, imo, the whole process changed to we challenge everything and our children became nothing more than hinderences

In 15 years, my son was never called to a hse speech and language, ot or any other assessment that he was entitled to.

I’m fully aware my next comment may not be well received but with o’gormon as minister, it seems to be getting worse, just be trans something and you’ll be fine

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By *itemeagainMan
over a year ago

Wexford

World wide governments never meet the mark when it comes to all needed spectrums of learning . It takes strong determined self educated advocates for these children to gain prosperity . Write your books , demand what you need .. advocate for your kids and above all else talk to eachother... change always comes from those who are most effected. Your great people and even better in numbers

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By *ilthyNightsCouple
over a year ago

East / North, Cork


"World wide governments never meet the mark when it comes to all needed spectrums of learning . It takes strong determined self educated advocates for these children to gain prosperity . Write your books , demand what you need .. advocate for your kids and above all else talk to eachother... change always comes from those who are most effected. Your great people and even better in numbers "

Holy fuckung shit. I had to read that twice to make sure I wasn't misunderstanding it. What a compassionate post.

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By *itemeagainMan
over a year ago

Wexford


"World wide governments never meet the mark when it comes to all needed spectrums of learning . It takes strong determined self educated advocates for these children to gain prosperity . Write your books , demand what you need .. advocate for your kids and above all else talk to eachother... change always comes from those who are most effected. Your great people and even better in numbers

Holy fuckung shit. I had to read that twice to make sure I wasn't misunderstanding it. What a compassionate post."

Cheers .... I think

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By (user no longer on site) OP   
over a year ago


"World wide governments never meet the mark when it comes to all needed spectrums of learning . It takes strong determined self educated advocates for these children to gain prosperity . Write your books , demand what you need .. advocate for your kids and above all else talk to eachother... change always comes from those who are most effected. Your great people and even better in numbers "

Amazing kind words and everything you said is right thank you

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By *ohn8922Man
over a year ago

Portlaoise

I live down the road from it here in Portlaoise

It’s unbelievable how run down it has got,

In past 5 to 7 years they have built I’d say 4 to 5 new schools here in portloaise and that has just been left neglected you’d think they’d push in the funding for it , the staff are the best in the world in there and they just get in with it

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