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"Recently found out I'm more than likely on the autism spectrum at a very deep level (relating to interpersonal relationships mostly, but with a few quirks that now look obvious in hindsight) and while it's a big thing to find out you have at 31, its also been a huge relief answering questions I've had my whole life. Coming to terms with it happily, as the first 30 years of my life not knowing about it has caused me so much trouble and grief for so long. Things are looking up, and I'm glad to have an answer finally I've searched the few times on the forums and there doesn't seem to be many people with it here but I decided I'd try ask again as I was wondering if anyone here has been in the same boat, getting diagnosed with it late in life, or even lucky enough to get the diagnosis early on in life where you could get the support to help you live as well as you could. And a swinging site is definitely not the place for autism support but was just asking as a matter of interest. Enjoy the lovely monday My little boy was diagnosed on Autism scale and when I read report of his assessment I smiled...as it was like reading my own childhood....did answer few questions in my head but also knew that my little boy will grow up to be happy legend of a boy..as the social skills he will need he will get taught earlier to him for me I didn't start becoming more social until I was at university and started work in a Bar... " Retail helped me too, but unfortunately it was only surface deep. I learned from an early age to wear a friendly happy mask that would stop people worrying about me, til things got too bad for me to pretend I was fine any longer. It's been a struggle, but I can look back with pride now that I accomplished what I have even with the serious difficulty I had to connect to people on a deeper level, and very happy that the younger generation are getting the help they need at an early age. Have a friend who's daughter was diagnosed at 4 and it's amazing how much we can do now for children with special needs to help them grow in a society with tonnes of support, and no need to be ashamed or guilty for being different | |||
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"I'm not on the spectrum.. but one of my kids is, and was lucky to be diagnosed early. It's been a journey learning about this, but my experience has been that its about learning tools and techniques to deal with the difficulties that your particular type of autism will bring, along with learning the times that you will need to challenge yourself and face up to the things you find hard, together with the times you can allow yourself to be different and do what you feel you need. I know that sounds wishy washy.. but for me as a parent thats the key. Sometimes you need to force yourself to come into the world and interact and others on their level, and sometimes you can do what you feel you need and expect others to understand that you might have different instincts or feelings that they need to be mindful of and respect. It's learning when to apply which technique that comes with experience. Good luck " Thank you and as I said it's been a relief, but I don't want to use it as an excuse to stay the way I am. Autism hasn't been my problem, but not knowing has, and most of my difficulties have been because I wasn't aware of it at all and the issues I have to deal with are the aftermath of years upon years of self blame and constant self analysis. I've always felt like an outsider around groups of people, even if it's a lovely family event, and understanding the root cause now can have me relaxed in company, with my mind not constantly racing wondering why I can't be as social and care free as everyone else. I care deeply about people, even strangers, but built up lots of guilt throughout my years for not picking up on social cues, not being able to empathise normally people, and even hating how I had such a good family and place to grow up in when so many people suffer (even getting addicted to watching videos of people pranking these telemarketer scammers to convince myself I wasn't a bad person). It's still going to be a challenge, but in comparison to my last few decades, its a challenge I'll face head on and full of motivation. | |||
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"One of my daughters is on the spectrum. We fought for years to have her assessed to no avail. Even when we had her assessed privately we discovered the education system didn't accept private assessment. We were told if she hadn't been through the system by the age of 13 she would receive no special assistance. Numerous school meetings and letters to the education board all fell on deaf ears and she got no help whatsoever. She is now in her mid 20's and still struggles with a lack of social filters. " This makes me so sad. My sister was caught in the same way for one of her kids where she was pushed to pay for a private assessment due to a long waiting list, and was stretched to manage it, but after waiting and getting a diagnosis there, it wasn't accepted by the authorities for support. It makes me so angry thinking about it. Generations of kids previously went without support back in the day, and bureaucracy and lack of funding these days is STILL leaving kids unsupported. If private assessments aren't good enough then they HAVE to fund more sanctioned testing services. It's not good enough letting kids slip through the net. | |||
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"Really great to read others personal stories of Autism! It's always amazed me, but saddening that hindsight reveals the traits of Autism to leave folks feeling 'that was me'.. What if you had assistance? Chats like this fill me with hope, that acceptance and general recognition of Autism will lead to better services and a happy life for ASD Best wishes to you all!" some of the traits of autism I think we all can identify with but with autism it’s more exaggerated, who hates large crowds meeting new people new places, who hates routine going awol . Like getting up late for work and it throws you throughout the day, I’m not saying if this is you and you have autism but it’s a slight understanding of some of the traits. Before my daughter was diagnosed she would only drink from a certain bottle and a certain colour. I travelled miles getting this bottle and stocking up and wondered why she wouldn’t take the same bottle but the top was a different colour everthing else the same. She had no eye contact and wouldn’t respond if you called her. She walked when excited on her toes and flapped her hands. When she was with other children apart from her sister she would play on her own and watch. I used to wonder why the kids wouldn’t play with her it wasn’t the other kids it was her she didn’t respond with them. I’m grateful she diagnosed early two is very young but knowing what I know now it was plain also she had other traits too, her world now is lovely she don’t worry bout heartache or bills nothing will worry her she has a beautiful life | |||
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"And while I'm happy now with knowing (because of what I went through in my life) it's definitely disheartening seeing so many people struggling to get proper help where needed, and how difficult they make it to get a proper diagnosis unless someone has really obvious symptoms of it. To be honest, I haven't gotten a proper diagnosis but went to a group specialising in autism, with me still thinking it was merely a possibility, the other being deep psychological issues I hadn't figured out yet. It was supposed to be a little chat to see if it would be worth going for a professional assessment before coming back to receive support, but I was immediately asked to go straight to treatment and support. I'd say they really don't like seeing someone who clearly has issues related to autism needing to pay over a grand for a private assessment just so they can get much needed help. It may be worth looking around at groups like that, and seeing if they'll forego the professional assessment before helping. These are the people who went in to the job to help people. They're not the ones that want to profit off of people's misfortune and hard times." I'm not sure 'official' diagnosis is that important for adults in terms of supports, as there isn't much in the way of support. The real gains are seen as part of early diagnosis and early intervention, which is why the MADNESS of waiting lists and non-acceptance of private diagnosis is so so unfair. I know this doesn't help much but you can get involved in all the groups. There are loads on Facebook. | |||
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"Were waiting to have our youngest assessed for autism. All were getting is theres a waiting list, theres a waiting list. So im tracking down resources and courses online to try do things in the meantime. We are considering getting her assessed privately so we can have a better idea on how to approach things with her and we are considering home schooling when she gets to the age" It is definitely worth getting her privately assessed. Having that knowledge will.be a big help in giving you a clear idea on what is needed ahead. | |||
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"Were waiting to have our youngest assessed for autism. All were getting is theres a waiting list, theres a waiting list. So im tracking down resources and courses online to try do things in the meantime. We are considering getting her assessed privately so we can have a better idea on how to approach things with her and we are considering home schooling when she gets to the age" Just be careful because our SENO wouldn't accept a private diagnosis and it had to be by an authorised party. | |||
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"Were waiting to have our youngest assessed for autism. All were getting is theres a waiting list, theres a waiting list. So im tracking down resources and courses online to try do things in the meantime. We are considering getting her assessed privately so we can have a better idea on how to approach things with her and we are considering home schooling when she gets to the age It is definitely worth getting her privately assessed. Having that knowledge will.be a big help in giving you a clear idea on what is needed ahead. " Definitely. Its very expensive but the waiting lists here are insane. I think OT and speech therapy are over 2 years and that not including the impact of covid when they shut everything down. | |||
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"Were waiting to have our youngest assessed for autism. All were getting is theres a waiting list, theres a waiting list. So im tracking down resources and courses online to try do things in the meantime. We are considering getting her assessed privately so we can have a better idea on how to approach things with her and we are considering home schooling when she gets to the age Just be careful because our SENO wouldn't accept a private diagnosis and it had to be by an authorised party." Thats the other side of it. I have an appt with our GP when he comes back from hols to discuss going privately. They cant call it early intervention when youre forced to wait over 2 years for assessment and in the meantime left in limbo. On the upside she trying to form words with the little bit weve done with her and shes happy out lining up her army men and cars. Its just very frustrating | |||
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"Were waiting to have our youngest assessed for autism. All were getting is theres a waiting list, theres a waiting list. So im tracking down resources and courses online to try do things in the meantime. We are considering getting her assessed privately so we can have a better idea on how to approach things with her and we are considering home schooling when she gets to the age It is definitely worth getting her privately assessed. Having that knowledge will.be a big help in giving you a clear idea on what is needed ahead. Definitely. Its very expensive but the waiting lists here are insane. I think OT and speech therapy are over 2 years and that not including the impact of covid when they shut everything down. " Before covid the waiting list for ot and speech was 3 years,we are still waiting and its been pushed back so many times | |||
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"Were waiting to have our youngest assessed for autism. All were getting is theres a waiting list, theres a waiting list. So im tracking down resources and courses online to try do things in the meantime. We are considering getting her assessed privately so we can have a better idea on how to approach things with her and we are considering home schooling when she gets to the age It is definitely worth getting her privately assessed. Having that knowledge will.be a big help in giving you a clear idea on what is needed ahead. Definitely. Its very expensive but the waiting lists here are insane. I think OT and speech therapy are over 2 years and that not including the impact of covid when they shut everything down. Before covid the waiting list for ot and speech was 3 years,we are still waiting and its been pushed back so many times " We were waiting for OT for nearly 3 years - went to our first group talk to start the process and Covid hit!!! Tried finding someone private - NADA!!! | |||
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"No speech language therapist in the southeast will look at a child if only put on the list I know people that waiting 5 yesrs, be careful with education department assessment they are prone to put autistic tendencies which won’t give a full time sna or even put into asd school. All down to funds, on Facebook there is s group called can cottage autism network. Help snd advise there is brilliant " I know all about the speech therapists,I have my child going private with that,just so he can be understood. The guy that was over the assessments signed his name to the assessments of my child because he was shocked and sickened by the lenght it took to have them done,he rang me apologising for the schools complete disregard and disinterest to what I was telling them.I later found out he never signs any of them and its his signature is needed to get the relevant help. He has pushed to get things as far as they have come so thankfully it seems to be working | |||
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"Recently found out I'm more than likely on the autism spectrum at a very deep level (relating to interpersonal relationships mostly, but with a few quirks that now look obvious in hindsight) and while it's a big thing to find out you have at 31, its also been a huge relief answering questions I've had my whole life. Coming to terms with it happily, as the first 30 years of my life not knowing about it has caused me so much trouble and grief for so long. Things are looking up, and I'm glad to have an answer finally I've searched the few times on the forums and there doesn't seem to be many people with it here but I decided I'd try ask again as I was wondering if anyone here has been in the same boat, getting diagnosed with it late in life, or even lucky enough to get the diagnosis early on in life where you could get the support to help you live as well as you could. And a swinging site is definitely not the place for autism support but was just asking as a matter of interest. Enjoy the lovely monday" Makes a lot of sense now. Good luck. Hope you are well. | |||
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"I am astonished that a person with an asd diagnosis would find their way onto fab swingers. You must the exception but glad that you functioning so well " Perfect example of it being such a wide and varied spectrum. As the quote goes "If you've met one individual with autism, you've met one individual with autism"... No two people with an ASD diagnosis are ever the same. | |||
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"I am astonished that a person with an asd diagnosis would find their way onto fab swingers. You must the exception but glad that you functioning so well " I'd be more astonished if the op was the exception. | |||
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"I am astonished that a person with an asd diagnosis would find their way onto fab swingers. You must the exception but glad that you functioning so well Perfect example of it being such a wide and varied spectrum. As the quote goes "If you've met one individual with autism, you've met one individual with autism"... No two people with an ASD diagnosis are ever the same. " I always think of the less fortunate kids and adults on the lower end of the spectrum who have to beg for services in this country | |||
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"I am astonished that a person with an asd diagnosis would find their way onto fab swingers. You must the exception but glad that you functioning so well Perfect example of it being such a wide and varied spectrum. As the quote goes "If you've met one individual with autism, you've met one individual with autism"... No two people with an ASD diagnosis are ever the same. I always think of the less fortunate kids and adults on the lower end of the spectrum who have to beg for services in this country " The very reason it becomes a vocation for many parents. The work isn't done in a 30min therapy session, it's the reiteration at home and the support in school (when receiving). You cannot care for a child with needs without educating and upskilling as a parent. It's a full time job. It changes everything. | |||
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"I am astonished that a person with an asd diagnosis would find their way onto fab swingers. You must the exception but glad that you functioning so well Perfect example of it being such a wide and varied spectrum. As the quote goes "If you've met one individual with autism, you've met one individual with autism"... No two people with an ASD diagnosis are ever the same. I always think of the less fortunate kids and adults on the lower end of the spectrum who have to beg for services in this country The very reason it becomes a vocation for many parents. The work isn't done in a 30min therapy session, it's the reiteration at home and the support in school (when receiving). You cannot care for a child with needs without educating and upskilling as a parent. It's a full time job. It changes everything. " I agree.. it becomes a big part of your life, you must separate time for yourself and partner. All work and no play as they say,makes life more difficult thsn it already is. Do not let autism consume your life. I've seen relationships and marriages fall apart due to the stresses it brings.. | |||
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"I am astonished that a person with an asd diagnosis would find their way onto fab swingers. You must the exception but glad that you functioning so well " Why are you astonished by it? | |||
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"I am astonished that a person with an asd diagnosis would find their way onto fab swingers. You must the exception but glad that you functioning so well " I would be astounded if there weren't many many more. | |||
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"I am astonished that a person with an asd diagnosis would find their way onto fab swingers. You must the exception but glad that you functioning so well " honestly i find it brilliant many forms of the spectrum from Aspergers to high functional asd…. | |||
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"I am astonished that a person with an asd diagnosis would find their way onto fab swingers. You must the exception but glad that you functioning so well Perfect example of it being such a wide and varied spectrum. As the quote goes "If you've met one individual with autism, you've met one individual with autism"... No two people with an ASD diagnosis are ever the same. I always think of the less fortunate kids and adults on the lower end of the spectrum who have to beg for services in this country " it’s harder I find when they reach adulthood thrown out of children services into adult and the situation don’t get better. We plod on cause you gotta . | |||
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"Recently found out I'm more than likely on the autism spectrum at a very deep level (relating to interpersonal relationships mostly, but with a few quirks that now look obvious in hindsight) and while it's a big thing to find out you have at 31, its also been a huge relief answering questions I've had my whole life. Coming to terms with it happily, as the first 30 years of my life not knowing about it has caused me so much trouble and grief for so long. Things are looking up, and I'm glad to have an answer finally I've searched the few times on the forums and there doesn't seem to be many people with it here but I decided I'd try ask again as I was wondering if anyone here has been in the same boat, getting diagnosed with it late in life, or even lucky enough to get the diagnosis early on in life where you could get the support to help you live as well as you could. And a swinging site is definitely not the place for autism support but was just asking as a matter of interest. Enjoy the lovely monday Makes a lot of sense now. Good luck. Hope you are well. " Thanks and hope you've been doing well too. At least there's a reason now for my absolute idiocy when it comes to talking about things without considering who I'm talking to, or my constant looking away during conversations. Keep doing you. | |||
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"I am astonished that a person with an asd diagnosis would find their way onto fab swingers. You must the exception but glad that you functioning so well " There's loads A whole thread full in the Lounge the other day | |||
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"All this talk about the spectrum makes me need to say I think the Commodore 64 was a vastly superior computer in it's day.... there I've said it! " You're just showing your age now | |||
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"All this talk about the spectrum makes me need to say I think the Commodore 64 was a vastly superior computer in it's day.... there I've said it! You're just showing your age now " I'm like a fine wine.... Expensive | |||
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"My son is waiting on early intervention over 2 years now it’s a joke he’s only getting assessment of needs now " Can you not go private for stuff like that | |||
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"My son is waiting on early intervention over 2 years now it’s a joke he’s only getting assessment of needs now Can you not go private for stuff like that " I can only speak about up here and 15 years ago when one of mine was waiting on assessment. We had it done privately but the education authority would not accept a private assessment so it was a complete waste of time and money. They said it had to be done through the system. It never was and as soon as she turned 13 the system no longer allowed for assessment and she never received any assistance at all. | |||
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"I'm not on the spectrum.. but one of my kids is, and was lucky to be diagnosed early. It's been a journey learning about this, but my experience has been that its about learning tools and techniques to deal with the difficulties that your particular type of autism will bring, along with learning the times that you will need to challenge yourself and face up to the things you find hard, together with the times you can allow yourself to be different and do what you feel you need. I know that sounds wishy washy.. but for me as a parent thats the key. Sometimes you need to force yourself to come into the world and interact and others on their level, and sometimes you can do what you feel you need and expect others to understand that you might have different instincts or feelings that they need to be mindful of and respect. It's learning when to apply which technique that comes with experience. Good luck " This....very well said. And hopefully some really good support to guide you on your journey. Best of luck. | |||
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"My son is waiting on early intervention over 2 years now it’s a joke he’s only getting assessment of needs now Can you not go private for stuff like that I can only speak about up here and 15 years ago when one of mine was waiting on assessment. We had it done privately but the education authority would not accept a private assessment so it was a complete waste of time and money. They said it had to be done through the system. It never was and as soon as she turned 13 the system no longer allowed for assessment and she never received any assistance at all. " Its terrible to think that you're saving the health board the money but they wont accept the results | |||
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"Yeah I could but it’s expensive and I don’t have that kinda money " Apologies...probably an insensitive question to ask | |||
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